Link Disability Magazine August 2021 by The Intermedia Group

australia’s national disability magazine August/September 2021 | Volume 31 Issue 4 linkonline.com.au $9.95AUD / $11.50NZ

Defying the odds - an inspiring love story

In this issue:

Paralympians taking on Tokyo – Seeing Eye Dogs charm the politicians – How a Local Council is improving accessibility

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Inside

From the Editor

06-07

Cover Story – A couple who defied the odds

30-31

Our Paralympians – all set for a Tokyo high

34-55

Special Feature – Household & Personal Aids

58-65

Accommodation & Home Support

66-67

Penrith Council – delivering progress in accessibility

68-73

Travel & Leisure

74-79

Employment

69 linkonline.com.au

80-82

Happenings and Events Calendar

August/September 2021

Publisher

Simon Cooper

Editor

Kymberly Martin kymberly@intermedia.com.au

Contributor

Caitlin Maynard maynardcaitlin@gmail.com

Advertising

Michelle Stevens mstevens@intermedia.com.au 0419 822 717

Design

Jim L Koh

Prepress

Tony Willson

Production Manager Jacqui Cooper

To subscribe visit www.intermedia.com.au P: 1800 651 422 or E: subscriptions@intermedia.com.au www.linkonline.com.au Link is published six times a year by Interpoint Events Pty Ltd. ABN: 9810 451 2469 A : 41 Bridge Road, Glebe NSW 2037 P : +61 2 9660 2113 F : +61 2 9660 4419 Reprints from Link are permitted only with the permission of the publisher. In all cases, reprints must be acknowledged as follows: ‘Reprinted with permission from Link Magazine’, and must include the author’s byline. The opinions expressed in this publication are those of the authors and do not necessarily represent those of the publisher. The Intermedia Group takes its Corporate and Social Responsibilities seriously and is committed to reducing its impact on the environment. We continuously strive to improve our environmental performance and to initiate additional CSR based projects and activities. As part of our company policy we ensure that the products and services used in the manufacture of this magazine are sourced from environmentally responsible suppliers. This magazine has been printed on paper produced from sustainably sourced wood and pulp fibre and is accredited under PEFC chain of custody. PEFC certified wood and paper products come from environmentally appropriate, socially beneficial and economically viable management of forests. The wrapping used in the delivery process of this magazine is 100% biodegradable.

August/September 2021

From the Editor

pring is almost here as Link celebrates its first anniversary with The Intermedia Group. And what a year it has been. As I write my editorial, I keep hoping that each time will be the last where I mention Covid, but it continues to unravel in all directions with over half our population currently in lockdown. Onto this issue where there are articles that I hope will make you smile – with animals, children and a charming cover story - for an enjoyable and ‘happy read’. Dogs are certainly making an appearance in several stories. Among them is a lifetime robotic friend for Kevin (Page 8), and Apollo who is helping his owner run a dog biscuit business (Page 60) and some special dogs that made a trip to Canberra to meet with MPs (page 64). Dogs, and cats, make great companions especially for those who are living alone and confined in these unsettling times. And here is another – hens! Two turned up

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in a friend’s garden and are now permanent residents with their own coop. I know dogs are good listeners, but they don’t deliver breakfast every morning! Legal contributor Natalie Wade has written an article with advice about planning for the future and what the options are, not just for parents of a son or daughter with disability, but the person with the disability (Page 22). I also spoke to Penrith Council’s Claire Galvin about how inclusion is meeting the needs of the entire community when it comes to accessibility. (Page 66). Our contributing writer, Caitlin Maynard was lucky to take a road trip to Queensland before the borders closed. Go to page 72 to catch a pic of her with a snake on her shoulder!

Kymberly Martin Editor kymberly@intermedia.com.au

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FOCUS ON ABILITY

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August/September 2021

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A VIP Love Story Scott and Melissa Darmanin run VIP Access in Queensland. Melissa spoke to Kymberly Martin about how a teenage romance turned into a deep attachment and how a near-fatal accident changed their lives.

elissa met Scott at Surfers Paradise in 1999. She was 16 and still at school, while Scott had started his trade as a carpenter. Scott was riding his skateboard around with his mate and drove a nice Commodore ute that she thought was “pretty cool.”

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“Two of our close friends started dating and we all started to hang out together and got to know each other as friends but before long we realised how much we liked each other and spent every weekend together. Scott would visit me on the weekends as I worked in the local surf shop and

occasionally pick me up from school if he finished work early. We used to write letters to each other, then fax them to read faster! We moved in together after I finished school, bought our first dog Roxy, and eight acres at Coomera on a sloping block with beautiful ocean views. We worked every weekend preparing to build.” Scott had his accident just before Christmas Day in 2004. It was a Sunday and Melissa had asked him to go shopping but he decided to go for a ride with mates and all went well until another group of riders came towards them. Scott was first in his group, swerved to miss the first rider but caught a direct hit from the second rider whose bike snapped in two, leaving Scott’s bike without a scratch. Melissa got a call from one of his mates who said that Scott had an accident and had hurt his leg. “I rushed to the hospital unprepared for what I was to see. He was in emergency going in and out of consciousness and I was told his conditioning was life-threatening. Shortly after Scott’s parents arrived a doctor delivered the news that Scott would not walk again. “I was in shock and that’s when the rollercoaster of the spinal ward and paraplegia started. Scott’s leg was broken in five places, his big toe had been ripped off, he had a massive wound on his arm, a punctured lung and his heart had moved from the impact. He lay flat on a bed for two months. We spent Christmas at the hospital with all the family visiting and even Roxy got to visit. The things that happened on the spinal ward are probably best kept there,” she said. After several months in hospital, it was time to think about going home. “This is when we started looking at completing home modifications at Scott’s parent’s house so we could live there. A makeshift room was set up downstairs and the bathroom modified but there were limited options available for home modifications. However, with Scott’s knowledge of the building industry and Scott’s mother Cheryl’s ideas, they came up with a very accessible and beautiful bathroom.

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Tasmyn, Scott, Emersyn and Melissa Darmanin

After his recovery Scott started working with Langs Building Supplies as an estimator but a ramp was required for access into their office, and these were not just difficult to source but expensive. Between the home mods and the ramp Scott started thinking he could do better which is the idea of how VIP Access came to be. He studied for his builders licence each night and continued to work at Langs four days a week and after getting his license began doing renovations before work, at lunchtime and after work. This continued until VIP Access was busy enough for him to leave Langs and the business officially started trading in 2009. Melissa was working at an accounting firm while Scott was busy running jobs and bookings leaving Melissa to handle the bookkeeping at night and weekends. “In October 2008, they married. Earlier Melissa had surprised Scott with a trip to Thailand where he proposed. They bought their first home, but the block of land was sold as it was too steep for Scott. Their house was renovated to be wheelchair accessible and after their first child, Tasmyn was

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born Melissa decided to stay home and help Scott with the business. The couple have two girls, Tasmyn 10 and Emersyn 7 and travel often in an accessible caravan and a fishing boat. The girls and Scott have quad bikes and ride around together. “Emersyn is our little miracle. She had a stroke when she was born and we were told when she was four days old that she may never walk as she had suffered brain damage, but to everyone amazement she is now fully recovered.” The family recently moved to a larger property and Scott gets around in an off-road wheelchair. Tasmyn recently found her father’s old skateboard, the one he was riding when the couple met, which has been restored and she is now learning to ride with Scott’s guidance. According to Melissa, Scott is the builder and ideas man, visiting sites with clients and the occupational therapist, designing plans, preparing quotes, going on-site throughout the job and at completion. “I work in the office with the help of our office administrator, Alana, scheduling the trades, ordering materials, liaising with clients and

the OT’s. I prepare quotes for minor modification and take care of the bookwork. We work well together, and Scott helps me with the building requirements, so I am always learning new things. Occasionally I go with him to carry out the final inspection, meet the client and see the finished work rather than do it via email/ phone and following progress via job photos.” Most of the time things run smoothly, occasionally it gets difficult being in the same office together each day as both work long hours and it is hard juggling family life and work. “With kids comes homework, after school activities and the general house chores but somehow we work it out. “Scott tries not to let too much get in his way and finds different ways of doing things he wants to do whether it’s mowing the lawn or operating earth moving equipment. He makes it happen. “Sometimes people are amazed at what we do but they appreciate the personal service we offer, and the insight Scott has with lived experience. We just do what we do each day and make the most of what we have.”

August/September 2021

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Aruma helps

Kevin

ruma prides itself on putting their customers, first. This is evident in all that they do. To give the best support, Aruma has recruited and trained dedicated support workers that understand their customers’ needs and support them to live a great life. The life they want and choose. One such customer who has benefited from Aruma’s attentive support is Kevin, a Victorian-based customer who lives in a Supported Independent Living home. Kevin loves dogs and he takes up every opportunity to be around them! Kevin’s support worker often takes Kevin to the Melbourne Zoo and Collingwood Children’s Farm where he spends time with the animals and of course, dogs. He also volunteers at the local pound. Although Kevin has a deep love for dogs, he cannot have a four-legged friend of his own due to his dementia and the risk of falls. And on top of

August/September 2021

find a lifetime companion

that, the various Victoria lockdowns were incredibly difficult for Kevin. Like most Victorians, Kevin could not leave the house for weeks and he missed visiting his fur friends. Kevin and his support worker came up with an idea to help him through the lockdowns and beyond that came in the form of a robotic companion dog named Goldie. “Kevin has previously walked many golden retrievers, so the purchase of a golden pup was great,” said house supervisor, Lauren Jakowenko.

“It was love at first sight for Kevin and he couldn’t stop grinning and patting his new furry companion. His smile was priceless,” she said. It’s moments like these that Aruma’s staff live for and that is putting customers first. If you are on the hunt for a fur baby, you can find a range of them on the Dementia Shop Australia website. Or, contact one of Aruma’s staff members to find out how they can support you to live the great life you want and choose.

About Aruma:

Aruma is one of Australia’s leading NDIS service providers. A trusted partner and mentor to over 5000 adults and children with disability, it all comes down to a clear promise – they will always put you first.   Aruma offers quality services and amazing staff throughout the east coast of Australia.   Find out more information visit: www.aruma.com.au or phone the Aruma team on: 1300 538 746 or enquiries@aruma.com.au. The organisation is also always on the hunt for committed staff. Interested? Head to www.aruma.com.au to check out their current job vacancies.

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celebrates diversity By Oliv ia Kara o lis

hildren make meaning through play; they make meaning about their experiences and the experiences of others. Powerful messages about societal values are communicated through children's play and children's toys as the medium for play, carry powerful messages about our lives. Toys can reflect, even subtly forms of stereotypes, racism, sexism and ableism. For this reason, children should have toys that authentically reflect their identity and recognise diversity. The latest Barbie, Fashionista, is a perfect example of how toymakers are responding to this change in societal attitudes. Yet her journey to the toy shelves is a long time coming, starting over 20 years ago with the release of

August/September 2021

"Share a Smile Becky", the first Barbie to use a wheelchair. "Share a Smile Becky" was initially a huge success for Mattel, until it turned out that Barbie, not unlike the individuals she represented, faced many barriers, the most significant of those being a design flaw that made it impossible for her to fit inside the doors of the Barbie Dream House. Mattel responded to the accessibility issue by withdrawing her from the market. Becky was reconceptualised in 2000 as Paralympic Barbie and now Barbie Fashionista. The latest DreamHouse has a wheelchair accessible elevator, so now all Barbie's can play. The DreamHouse is available at Myer and Barbie Wheelchair Doll from

Kmart and Target. This doll inspires new play possibilities with a manual wheelchair that has rolling wheels and a working brake. It matters to the children who experience disability to see themselves represented in their toys. It also matters to other children, as playing with toys that have a disability supports them in seeing disability as a natural part of our society and certainly part of life in the Dream House. This article is based on a story that aired on PRI's Studio 360 with Kurt Andersen. Dr Olivia Karaolis teaches at Sydney University Faculty of Education and Social Work. She was Adjunct Professor, Faculty of Childhood Education, Santa Monica College, California.

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fter fleeing persecution in Sri Lanka, Ashok has overcome physical, emotional and language barriers to land a job as a cleaner in Melbourne. Ashok grew up in Sri Lanka, and as a Tamil, faced discrimination and persecution in his home country. He lost the use of his right arm after being shot and was also jailed for three years for his ethnicity. “I was not safe in my home country,” Ashok said. Fleeing Sri Lanka, the refugee was granted a temporary protection visa by the Australian Government. Like many other refugees, Ashok found the adjustment to life in Australia challenging as he didn’t speak English. He was determined to find work, started English lessons and found a job as a waiter. “I wanted to work so I could continue to support my parents financially. It’s been 10 years since I’ve seen them.”

“I “I was lucky to was lucky to escape escape to to Australia.” Australia ” . Ashok’s A s h o k s t’ r . y story. But he found himself out of work by the end of 2019. Undeterred and with help from MatchWorks post placement support consultant, Grace Cugliari and business development consultant, Natasha Boshier, Ashok was able to: • Arrange driving lessons • Liaise with his occupational therapist to provide medical information to VicRoads • Complete his application to extend his visa.

Soon after, he secured part-time work as a labourer and a cleaner. “I had never met anyone so motivated and enthusiastic,” Grace said. “He wasn’t going to let the language barrier or his injury stop him. His employer is thrilled with his work ethic, performance and attitude and Ashok is very keen to keep moving, to work and to earn an honest living.” “Grace helped me so much,” Ashok said. “I really like the work that I’m doing now and am happy to be working, I have friends here and hope to stay in Australia and stay safe.”

Connect today, change tomorrow. LET’S WORK TOGETHER TO FIND A JOB Is a health condition, injury or disability impacting your ability to work? At MatchWorks, we believe you can overcome any obstacle. When you choose MatchWorks as your Disability Employment Services provider, we work with you to find and reach your job goals. Together, we’ll get you working. P: 1300 13 23 63 W: matchworks.com.au E: info@matchworks.com.au

www.matchworks.com.au

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August/September 2021

Link to...News Ryan Honschooten and Harry Nicholas

A dose of determination for medical student

Harry Nicholas

arry Nicholas has never let his vision loss stand in the way of his career aspirations. He spent six months in Europe studying at the University of Bristol and travelling and is now completing his medicine degree at the University of Western Australia. This academically gifted 22-yearold who is an enthusiastic sportsman and competent musician, has set the bar high for his future. Harry is classified as legally blind because he has just 10 per cent vision. "I was born with blonde hair and a fair complexion, but it wasn’t until I was three months old when I had trouble focusing, that my family received a diagnosis of nystagmus and albinism,” he told Link. He attended a mainstream school, but had large print school books and made full use of assistive

August/September 2021

technology including magnifiers. “In the classroom, I used a special camera so I could pick up the writing on a white board and had some inspiring teachers and plenty of support." As a teenager, he went on camps where he formed a firm friendship with VisAbility youth support officer, Ryan Honschooten who lost his sight to cancer as a toddler. According to Harry, Ryan is a shining example of someone who has never let a vision impairment get in his way. "He is blind but spent three months sailing around Cape Horn and South America. He has even got me behind the helm of a yacht’s steering wheel!” Harry has a white cane, but with his small amount of vision has benefited from orientation and mobility therapy from his therapist, Jodie.

“With Harry, mobility means we are looking at additional things he can do for all important tasks with the vision he has, Jodie said. “For example, crossing the road might mean standing at the roadside, so you have a better field of oncoming cars.” You could say that the degree of support Harry has received throughout his life has set him up for his degree in medicine. He lives at home with his parents and younger brother but hopes to move into a flat on his own when he finishes his studies. And his mother Helen said early intervention went a long way to helping Harry. "He had therapy sessions with vision service provider VisAbility and this early intervention helped to improve his fine and gross motor skills as well as eyeto-hand coordination. I always felt a lack of vision doesn’t impede a sharp brain."

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August/September 2021

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unter Disability Expo ambassador Nathan Basha and Gold Coast Disability Expo ambassador Tim McCallum, have one thing in common. Neither wants to be defined by their disability. Nathan might have Down syndrome, but he said, “that’s not who I am”. Likewise, Tim has managed to forge a successful career as a singer and performer, recently singing the national anthem at the AFL grand final held in Brisbane. After becoming a paraplegic in his 20’s, Tim’s message was clear, “life doesn’t stop, paths just change.” And so it was for the thousands that came through the doors of the expos recently, seeking to forge their own pathway through life. The Hunter Disability and Gold Coast Disability Expos were by all accounts a run-away success. Now, more than ever, people with disability are demanding to see, feel, touch and road test equipment, products and aids before purchasing. They are hungry for the greater choice and control promised by the introduction of NDIS. “People come to the expo to understand how best to utilise their funding to enhance their lives in meaningful and practical ways,” My Future, My Choice Disability Expo and Social Impact Institute senior advisor, Kathryn Carey said. “I found it very inspirational to go to the stands. Absolutely fantastic and informative. I needed to see and talk to the people I needed to talk to face-to-face. Everyone I saw has gone beyond my expectations, and I am so appreciative of them for going that extra mile,” said one Expo attendee. And now it’s the turn of Sydneysiders, with both the My Future, My Choice Sydney Disability Expo and Nepean Disability Expo set to be held in September and December respectively. The new dates are a result of Covid lockdowns in Sydney. The expos will be informative: a one-stop shop where you can ask real questions of real people. You can also expect a vibrant, friendly atmosphere at both two-day events, with all-ages entertainment, live performances, workshops and demonstrations.

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Tim Crakenthorp MP and Sharon Claydon MP with Nathan Basha at the Hunter Disability Expo

NEW DATES

for My Future, My Choice Disability Expos in Sydney The Sydney Disability Expo will be held on September 17-18 at Exhibition Hall 4, Sydney Olympic Park. The Nepean Disability Expo will be held on December 3-4 at the Penrith Valley Regional Sports Centre. "This year our face-to-face expos have returned in a Covid-safe way. The practices we have become familiar with physical distancing, hand washing,

extra cleaning, crowd management, health questionnaires and contract tracing all forming part of the Covidsafe practices you can expect to see at this year’s Sydney Disability Expo and Nepean Disability Expo," Carey said. Entry is FREE for all attendees. Visit the Sydney Disability Expo and Nepean Disability Expo websites to check out expo guide and to register.

Tim McCallum with assistance dog Casper and Hot Tomato radio announcer at the Gold Coast Disability Expo

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FREE ENTRY

FACE TO FACE EXPOS RETURN IN 2021 The recent Hunter Disability and Gold Coast Disability Expos were by all accounts a run-away success. Now, more than ever, people with disability are demanding to see, feel, touch and road test equipment, products and aids before purchasing. They are hungry for the greater choice and control promised by the introduction of NDIS.

“I found it very inspirational to go to the stands, absolutely fantastic and informative. I needed to see and talk to the people, I needed to talk face to face. Everyone I saw has gone beyond my expectations... and I am so appreciative of them for going that extra mile,”

Now its Sydney’s turn to host the My Future, My Choice Disability Expo in September. The unique expo format, which has exhibitors providing a one-stop shop for those who are on the hunt for information, products and services for people with disability and their carers, are back in a COVIDsafe way. The practices we have all become familiar with – physical distancing, hand washing, extra cleaning, crowd management, health questionnaires and contact tracing will all form part of the COVIDsafe practices you can expect to see at this years Social Impact Institute disability expos.

- Expo attendee

“People come to expos to find out how to utilise their funding to enhance their lives in meaningful and practical ways,” says Social Impact Institute Senior Advisor Kathryn Carey. “At the Expos it’s all here in the one place and you can ask real questions from real people in real time.”

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August/September 2021

an initiative of

Link to...NDIS

For more information on skin care visit →

Are you at

f your skin is often exposed to bodily fluids it is at risk of breaking down. Damage generally begins with a slight reddening of the skin that may also burn and itch. In some cases, blisters and breakdown of the skin occur causing pain. If a person is not incontinent the reddening of the skin maybe caused by other factors, this should be flagged to a health care provider immediately. Harsh detergents like soap contribute to an increasing pH and this weakens the skin’s natural protective barrier even more. Dry and flaky skin is more vulnerable and at a higher risk of breaking down, frequent washing with soap and water makes the skin more prone to irritation.

August/September 2021

Others at risk of skin breakdown include diabetics and people in poor general health, those with a poor nutritional status (underweight, overweight, obese), people needing care and people who are no longer mobile. Taking certain medication can also weaken the skin and increase susceptibility to skin breaking down. Sometimes skin surfaces can be in contact with each other especially in the natural large skin folds of the body like the axillas, underneath the breasts, umbilical and perianal areas. This friction and trapped perspiration may lead to redness and inflammation on the skin. These skin areas should be kept clean and dry and inspected regularly. A structured skincare

risk?

routine is recommended as well as moisture wicking textiles, barrier products and films may also help reduce friction. The surrounding skin of a weeping wound maybe at risk of breaking down. The skin breakdown will delay the overall wound healing process and may cause pain prior and during dressing changes. Using a barrier film around the edge of the wound for protection will prevent the skin damage that is caused by the wound exudate. It is important that you notify your healthcare provider if you feel any of these symptoms. If you have questions or concerns contact your healthcare professional for advice.

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References

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Scan the QR code to learn more

Smith & Nephew Pty Ltd (Australia) www.smith-nephew.com/australia. Smith & Nephew Ltd (New Zealand) www. smith-nephew.com/new-zealand. ◊Trademark of Smith+Nephew. All trademarks acknowledged. 11911-anz V1 04/21. This product may not be right for you. Always read the label and instructions for use before purchase. If symptoms worsen or change unexpectedly, talk to your healthcare professional.

1. 2016 NHS purchases for skincare systems that include both a cleanser and barrier product; Data on File. PR001. 2. Smith+Nephew 2019.Claims Support - “Gentle / Low Irritation” and “non-irritating and non-sensitising”. Internal Report. PSS390. 3. Smith+Nephew 2020.Review of certificate of analysis for PROSHIELD FOAM & SPRAY Incontinence Cleanser. Internal Report. RD/20/015. 4. Wall L, Vernon T. Launch of a Skin Care Regime to Reduce Incidence of Moisture Associated Skin Damage. Paper presented at: Tissue Viability Conference; 2016; Cardiff, UK. 5. Ling L. Proshield skin care protective system: A sequence of evaluations Paper presented at: Wounds UK; 2011; Harrogate, UK. 6. Flynn D, Williams S. Barrier creams for skin breakdown. Nursing & Residential Care. 2011;13(11):553 - 558. 7. Shah S, Cornell M, Ward AJ. Evaluation of moisture through skin protectant barriers by paper chromatography. Adv Skin Wound Care. 1995;8(4):20 - 21, 25, 27. 8. Hoggarth A, Waring M, Alexander J, Greenwood A and Callaghan T. A controlled three-part trial to investigate the barrier function and skin hydration properties of six skin protectants. Ostomy wound man 2005; 51(12): 30-42. 10. 9. Howers L, Boyett F. Evaluation of Proshield Plus in nursing homes for inclusion onto formulary in a healthcare trust. NHS Surrey. Presented at Wounds UK 2012. 10. Maxwell J, Sinclair D. Treatment of moisture related lesions in children. Great Ormond St Hospital for Children NHS Foundation Trust, London UK. Poster presented at EWMA 2012, Vienna, Austria. 11. Meuleneire, F. A new solution in the treatment of moisture lesions. AZ St Elisabeth Zottegem, Belgium. Presented at EPUAP 2010.

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August/September 2021

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Marilyn and Dave Phillips

carer

Journey of a – a familiar path for many

aring for a child with disability can be many things, rewarding, challenging, wonderful, stressful and as children grow to adults, the journey of the carer grows and changes with them. For Marilyn Phillips, mother of 34-year-old Dave, that journey saw her research disability support models, study various supports and advocate fiercely for her son, particularly through his younger years. Now with the NDIS supporting Dave, she finally is seeing her son on his way to living his best life. Dave has Down syndrome and according to Marilyn for much of his life she was told all of the things that Dave couldn’t do and was constantly disappointed by the services on offer.

August/September 2021

“We fought as much as we could, but I used to get ‘you’re a mother, looking through rose-coloured glasses’ response’ Dave wasn’t allowed to develop and spread his wings, and blocked at every turn.” “The NDIS is a game changer,” Marilyn said. “Since the NDIS, Dave’s whole world has changed: he is a different person, having a life. Once assumed to be non-verbal, Dave is getting speech therapy and making good progress. During Covid he received all the supports he needed to keep moving forward, doing everything over the phone and through Zoom, receiving speech therapy and occupational therapy that has given him confidence. “He wants to try, because when he uses his voice now, someone listens!”

Marilyn and Dave access Local Area Coordination services through the NDIS partner, Social Futures. “Winston, our current LAC is very understanding, he listens, and he knows what we need to do to make sure Dave has the support he needs,” Marilyn said, “creating a plan that really meets Dave’s needs.” One of the things that has been helpful is visiting a place with animals where Dave feeds the cows, which has benefited him for his communication, and as a step toward independence. Seeing her son doing well, Marilyn is now throwing her energy into the next part of his journey, to shore up his ongoing independence. “We are trying to find a model that will work for him, so when I’m not around, when his dad’s not around, he can still move on with his life,” she said. After researching different models of support, Marilyn came across the Microboard, which she is adapting to suit Dave, describing it as like running a small business and Dave is the business. “It’s a board of people who all have Dave’s best interests at heart, including his paid and informal supports, expert consultants, our solicitor and GP, and Dave’s sister Louise and her husband, Dave’s father and myself. A group of people who are like-minded and understanding. We call it Team Dave.” Dave shares a home with his mother, with Team Dave now looking into options for him to live more independently and Winston is helping to create an independent living plan over the next three years. “We are trying to create a sense of safety and security for him, a base, which is secure and with the right supports so Dave can have a chance to look at what’s out there in the world and to decide what he likes, and what he doesn’t like. The I will be able to move on. And rest in peace!” According to Marilyn, caring is very complex and sometimes people land in caring roles not by their choice. “But this is my choice to be a carer and I love it and I would not have it any other way. It’s the most rewarding thing I could possibly do and I get a huge amount out of it.”

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Support is here: Advocacy help for you to speak up

Do you have disability? Has someone hurt you, treated you badly or taken advantage of you?

f you have been hurt, treated badly or taken advantage of and are thinking of telling your story to the Disability Royal Commission, you might need support. Free and confidential help from an advocate is available if you have difficulty communicating or need assistance to understand how to take part in the Disability Royal Commission. An advocate is an independent person that can support you to speak up when you can’t speak up for yourself or feel overwhelmed. They can also help family members or carers who are speaking up on your behalf. It is important for you to feel comfortable when you meet with an advocate. That’s why they are independent – they are not part of the government or the Disability Royal Commission. An advocate is there to support you, make sure you feel safe and will not judge you, and help you to understand and participate in the process of telling your story to the Disability Royal Commission, and talk about options to tell your story. They can also help to protect your rights, work out problems and find other supports for you, such as communication, legal and counselling supports. An advocate won’t make decisions for you or tell you what to do. It is your decision if you want to tell your story and how you would like to do that. They can help you tell your story in any way that feels comfortable for you. You can draw it, write it down, tell it over the phone, or they can type it out for you. The advocate might be able to come and see you in person or chat with you over the phone or through a video call. They can also organise communication supports such as an Auslan interpreter if you need it. Getting support does not mean you have to take part in the Disability Royal Commission – it is your choice. You can take your time to think about getting support. It’s here for you when you are ready. For advocacy support, call the National Counselling and Referral Service on: 1800 421 468 - 9am to 6pm weekdays or 9am to 5pm weekends, or visit: dss.gov.au/disability-royal-commission-support

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Free, independent, confidential counselling and advocacy support is available. Call the National Counselling and Referral Service on

1800 421 468

For more information visit http://dss.gov.au/disability-royal-commission-support dss.gov.au/disability-royalhttp://dss.gov.au/disability-royal-commission-support commission-support Support is here for you. NDAP

National Disability Advocacy Program

August/September 2021

Link to...NDIS

What We Don’t Know

hil Hayes-Brown is the CEO of Wallara, a disability support provider in Victoria, and the parent of a child with a cognitive impairment. He contributed this article to Link. In Julia Baird’s excellent book, Phosphorescence, there is a passage that really resonated with me. “We should,” Baird writes, “regularly doubt ourselves and question what has shaped our own thinking, what unconscious biases we might harbour, and whether we might be wrong. All of us have limited understanding of most things, most especially of the lived experience of other people. The older I get, the more I realise how little I know about people who have different lives to me. In the disability space, this idea of “not knowing what we don’t know” is a personal one for me. I have spent more than a decade working for Wallara, an agency that supports people living with intellectual disability. And for 19 years, I have cared for my daughter, Phoebe, who has a moderate intellectual disability and is non-verbal. I see the barriers to inclusion faced by Phoebe and other people with intellectual disabilities and their struggle to be the best they can be and the stress it places on families like mine. But I also see progress and the amazing things that are occurring. The latest report from the NDIS shows that 30 per cent of participants in the scheme have an intellectual disability. But in my experience, most of the voices advocating for change in our sector do not come from this cohort. I agree that having one type of disability usually makes you more empathetic to the rest. But every lived experience is different.

August/September 2021

Phil and Phoebe Hayes-Brown

As we debate the future of the NDIS, I hope we all can acknowledge what we don’t know, so that we can work to create more space to hear the lived experiences of people living with intellectual disabilities. When I joined Wallara a decade ago, I remember looking in newsagencies and on TV for the stories of people like my daughter. All I could find was Backyard Blitz, where a crew would give someone with disability a new backyard. There were tears, but these shows told me nothing about the lived experiences of their characters. The Paralympics in London were a breakthrough, but change is slow. I want a TV channel that tells stories from around the world on disability. What technologies, or treatments, are making a difference? What jobs are people with disability doing? How do they modify their homes for independent living? How do they find love?

These stories would make my daughter, and my family, feel seen. To that end, I started Invis-Ability, a podcast exploring lived experiences of intellectual disability and the different debates that exist in this space. Alongside my co-host, former Paralympian and Wallara Online’s Don Elgin, I have been working to produce our second season, with a focus on education for people with intellectual disability. Our entire first season is already online. I want to encourage more people with experiences like mine to raise their voices and think about how we can push to make them heard. Because we all don’t know what we don’t know. Invis-Ability, a podcast about intellectual disability, is available on Spotify, Apple Podcasts, Whooshka, and other platforms. If you would like to contact Phil or the podcast team email: invisability.podcast@gmail.com.

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Living and enjoying an independent life

arrin is your typical Aussie bloke. He likes to mow the lawn, loves the footy (go Broncos!) and is chief of the BBQ every Sunday. Darrin has intellectual disability and is supported to live independently by disability service provider Endeavour Foundation. “I’ve been living with Endeavour Foundation for more than 20 years,” Darrin said. “I love living by myself, with some support. It’s a good thing.”

Darrin exercises every day, does his shopping, goes to the movies and cooks his meals. Support worker Stephanie Moore has seen a lot of growth in Darrin in the time she’s been working with him, and he has achieved a lot of firsts in the past year, she said. “He loves to participate in the weekly shop and assists with meal planning, list preparation and the shop itself and enjoys the whole experience. Our housemates get the chance to live their life their way and learn new things along the way. “I love seeing housemates develop on the skills that other people may take for granted. I’ve seen the pride in their home and possessions, inviting friends and family over and showing off all the new and exciting features of their homes, and making a cuppa for their visitors,” she said. Last year Endeavour Foundation launched the new housing initiative My Home, My Life, building new homes for people like Darrin.

CEO Andrew Donne said people with disability face many challenges in securing long-term accommodation. “We know many people with intellectual disability are living at home with aging parents who may even need support themselves,” Donne said. “Often on a low fixed income, it’s challenging for people with disability to find suitable accommodation in the open rental market. “Most new homes in Australia are still not built to accessible standards which is why we launched the biggest spending initiative in our organisation’s 70-year history.” The $35m My Home, My Life initiative, will see Endeavour Foundation build 59 new homes and refurbish a further 26 homes around Queensland, providing 352 people with the opportunity to live more independently.” For more information or to register your interest in living in the new homes visit: www.endeavour.com.au/ myhome-mylife

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At Endeavour Foundation, we know a home is about more than bricks and mortar. It’s a sanctuary and a symbol of our individuality and independence. Thinking about moving out of home? We can help give you the choice and control you want, with 24/7 support when you need it. To learn more visit

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MyHome MyLife

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au/ my ho me -m yli

August/September 2021

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Planning safe and secure

Natalie Wade

futures T

his is an article for the parents of people with disability but is also for people with disability to be across so that they can have a say in how their parents allow for their futures. “What will happen when I am gone?” is a question that plagues the minds of parents of people with disability, especially during the early hours of the morning. It is a question that was born sometime around the deinstitutionalisation of people with disability and when there was an increase in reliance on family support to keep a person with disability in a good, ordinary life; in the absence of government support to do so. But even with the roll out of the National Disability Insurance Scheme (NDIS), which aims to provide funding to support people with disability to be social and economic parents, families are still left wondering. As a lawyer, I hear from families who want to know their options to ensure that their loved one has the basics – a house, a job, some cash to do the fun things and personal connections with other friends and family. Most families fear that their loved one will be left at

August/September 2021

home, doing nothing fun or will face a lifetime of insecure housing when they are no longer around to advocate for their rights. As a South Australian, I saw all of those fears become very real for our families when news broke in April 2020 that Ann-Marie Smith had passed away after being cared for by a paid support worker. Ms Smith’s family had left the family home to her with paid supports to provide for her daily needs. Building a safe and secure future looks different for every family. Every version of planning should include the person with disability to make sure the future plan suits them, and what they want. With those two important points in mind, here are my top tips for leaving your legacy for the person you love with a disability so that they have a safe and happy life: 1. Know what your loved one wants and have a system in place for them to communicate what they want with other people. 2. Have an idea of what you want to go into the plan, for example, a purpose-built home or cash in the bank.

Every version of planning should include the person with disability to make sure the future plan suits them, and what they want.

3. Get the right experts into the conversation. People like lawyers, NDIS specialists and financial planners are commonly involved. 4. Plan for an inclusive future. The rights of people with disability are advancing every day and the current situation for work, education or housing is, unlikely to be that way in 20 or 30 years. Think about the most inclusive version of a future and strive for that. 5. Do not forget to help your loved one do their estate planning. It is a shame for your loved one to inherit it all, only to not have their own estate plans in place. For specialist disability rights legal advice on planning a safe and secure future, contact me directly at: hello@equalitylawyers.com.au or phone: (08) 7084 1190.

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Don't Dream it, Drive it!

ave you ever dreamed of being able to just get in the car and go anywhere you want whenever you want and not have to worry about who will take you, or if you will be able to get a taxi later when you are ready to go home. What if we told you that this doesn't have to be a dream any longer.

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At Freedom Motors Australia we say: Don't Dream it, Drive it! Freedom Motors Australia is the leading disability vehicle modifier in Australia and are known for their high quality, reasonably priced wheelchair accessible vehicle modifications. But did you know that Freedom also modify vehicles so you can transfer into the driver’s seat or drive them from your wheelchair? No matter your ability whether you can transfer into a driver’s seat or prefer to drive from your wheelchair, we have a solution that we can make to your specifications all in consultation with you and your driver trained occupational therapist. Freedom Motors Australia works closely together with a supplier who only offers the best and latest driving aids on the market, and we believe these complement the design and styling of our modifications.

Self-drive vehicles are highly customizable in layout but also with the driving aids that you may require. We offer a varying range of hand controls like the push pull system, Satellite accelerators right up to highly complex systems such as the mini steering wheel or joystick controller for those that can’t use a standard steering wheel. Freedom Motors even have the option of the newer, highly innovative voice control system that can operate the vehicles auxiliary features such as lights and indicators, all making it possible for you to drive the way that you need to. Why not give Freedom Motors Australia a call on: 1800 672 437 to arrange a consultation to see how we can help you get back to driving and living the life that you choose. We deliver freedom - you just choose the destination.

WE DELIVER FREEDOM

YOU CHOOSE THE DESTINATION

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FREE CALL 1800 672 437OR VISIT OUR WEBSITE WWW.FREEDOMMOTORSAUSTRALIA.COM.AU

August/September 2021

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Choosing his own team of support led

Jordan

on an exciting pathway

or 25-year-old Jordan, photography and cycling are deep passions. Currently studying for his Diploma in Photography at TAFE and training rigorously as a competitive cyclist, Jordan is a driven young man. Jordan is visually impaired and experiences memory loss, after acquiring a brain injury at age 11.

August/September 2021

Jordan has a unique team of support workers, a sighted pilot to ride a tandem bicycle with him and an independent support worker to assist him in his photography pursuits. Originally, Jordan’s family tried to access support through traditional providers but found they either didn’t cater for clients his age or were only focused on specific services, which didn’t apply in Jordan’s case. When the family discovered Mable, a website that connects clients seeking support with independent support workers, they found they could choose workers whose interests matched Jordan’s. “I had felt like a square trying to fit into a round hole,” Jordan said. “But with Mable, you get to pick out your own support worker.” The freedom to choose has been a game-changer for Jordan and his family. His mother Marie said her son used to stay at home all day, every day, and she acted as his main support. “Mable is unique because you go through people’s profiles,” she said. “Jordan and I discuss them and look for a good fit. We exchange messages with them, have a little chat, meet for about 20 minutes and make a decision. The empowering thing is you can say no if it doesn’t feel right. Support is most successful if both the support worker and the client are on the same page and enjoy working together.” One of the support workers Jordan has connected with via Mable is Jim, who accompanies him to TAFE classes and assists with transport. They go to the library and work on assignments together and Jim has been instrumental in helping Jordan to use memory aids and developing independence skills. “Jordan and Jim have lots of laughs together,” Marie said. “They get on well, they’re a great match.” During TAFE holidays, the two go out to locations where Jordan can take photos that he can then edit at home in Photoshop. He is learning darkroom film development at TAFE so some of his best shots are printed. Marie is keen to point out that Jordan’s photography is a vocational option as much as it’s a hobby. “He’s hoping to use his photography

Diploma to do his own work and establish an exhibition,” she explains. “Jordan actually has a very structured week, so his fun stuff happens on the weekends. A support worker might take him to the movies, for instance.” For people like Jordan, the opportunity to explore their interests and work on their passions is instrumental in working towards becoming more independent. Jordan says that being able to choose his own support worker around his interests developed them into real goals. “Originally, I didn’t seem to be getting anywhere because I was being sent generic support workers that I had nothing in common with. Now, with Mable, I can choose my support workers to suit my hobbies and goals. I’m achieving things and loving what I do every day,” Jordan said. Building a team of suitable supports is easy on Mable. You can find independent support workers who match your interests, can help you explore your passions, increase your independence and much more just like Jordan. Head to mable.com.au to find out more or sign up today for free.

Jordan and his mother, Marie

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27-28 OCT 2021 EXHIBITION PARK IN CANBERRA (EPIC) Corner of Flemington Rd and Northbourne Ave, Mitchell, ACT

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More than

60 EXHIBITORS

at Australia’s foremost assistive technology & disability event

REGISTER NOW Free coffee voucher Free parking Free entry Free seminar program – includes speakers from NDIS, TGA, MACA and OT Australia. Opening hours: Wednesday 27 Oct 8:30am – 4:00pm Thursday 28 Oct 8:30am – 3:00pm

1300 789 845 www.atsaindependentlivingexpo.com.au Organised by

Media Partner

August/September 2021

Link to...News

Enriching the

AT and OT

community Occupational therapist, Rachael Schmidt recently attended the ATSA Expo in Melbourne. As a prescriber-educator she has an interest in what influences are necessary when it comes to choosing appropriate assistive technology (AT) according to personal needs. The range is enormous and retaining knowledge currency can be challenging but OTs are uniquely positioned to be able to advise clients on AT.

“T

he term assistive technology (AT) describes a vast array of products, devices, aids and equipment plus aligned services designed to enhance personal performance in everyday activities and greater participation within one’s community. The aim of ATSA Expo events is for AT vendors and services to showcase their AT range free to the public. It is an annual exhibition of AT vendor/suppliers and aligned AT services and is held across Australian cities including Sydney, Melbourne, Brisbane, Perth, Canberra and New Zealand. The accumulated success of each expo attracts contributions from a diverse range of vendors, along with a steady attendee growth.

August/September 2021

All event venues are consistently spacious, allowing ample floor space for AT displays of technologies both new and the tried-and-tested, ranging from the generic to specialised technologies for all activities of life. This allows unique opportunity for attendees to compare, contrast and trial AT within a non-threatening environment. An ever-expanding AT related educational program aims to share collective knowledge regarding AT application, assessment-prescription processes, research and development, specific AT modification and technical support. I enthusiastically attend an ATSA Expo each year for its collegial comradery, that allows me to network and catch up with AT consumers, clinicians, vendors, families and support

workers. Active networking and sharing of experiences – the successes and not – solidifies knowledge. Listening to consumer stories helps me to better understand how AT can be applied or adapted, and which services will deliver for better outcomes for the people I work with and for. Attending an ATSA Expo nurtures my sense of belonging to a robust community of AT practice that augments my AT practice and knowledge currency. Current AT knowledge is clinically advantageous and as AT prescriber I will continue to attend ATSA events while I can and hope I see you there too? Dr Rachael Elliott Schmidt, PhD, MHSc(OT), BOccThy is a regular contributor to Link.

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Chelsea,

who suffered from a spinal cord injury, tells us her story.

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We are EveryHuman; a curated online platform for life changing adaptive clothing, footwear and accessible lifestyle products. We are a community that believes in a future where getting dressed is made easy and people with disabilities can take control of their own narrative.

“I

t was January 2018. It wasn’t meant to be a memorable day, instead, it became one of the most important days in my life.. when I became a wheelchair user. I sustained a spinal cord injury from a swimming accident, leaving me paralysed from my hips down. It has been three years since I was depressed, anxious, lonely and isolated. I lied, trying to convince everyone, including myself, that I was okay when I felt the complete opposite. Things began to change for me and by 2020, I got to the point where I was sick of feeling this way, and I knew the only person who could change this was me. I wanted part of my old self back. But didn't know how to get it. That’s when I discovered fashion… Fashion has led me to be more confident, accepting of my disability and given me a platform to raise

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more awareness about the inclusion of the disability community through modelling. Fashion has helped me express who I am. I didn’t know the power that fashion could have on helping shape a persons' perspective and acceptance of others. My experience as a model with disability has been great and everyone I have worked with has treated me well. Finding my community through fashion has been incredibly helpful in my journey to discover what’s next. Platforms like EveryHuman make it easier for us to find our community and be represented. All I can say to anyone going through any sort of change in your life, is that you have nothing to lose from reaching out and trying your best. If anything, you have more to gain. Find all of your adaptive fashion and lifestyle needs at everyhuman.com.au

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August/September 2021

Link to...News

A new way to find disability services and support

he Australian Government’s new Disability Gateway is a free, Australia-wide service dedicated to helping people living with disability, their families and carers, find trusted information and connect them to services in their area. The Disability Gateway includes a website, phone line and a Facebook page to help connect people to the right disability information and services. “The Disability Gateway was developed in consultation with people with disability, carers and the disability sector in Australia,” Department of Social Services spokesperson, Helen Green said.

August/September 2021

“We know finding and accessing supports for people with disability can be a barrier to independence and community participation. The Disability Gateway aims to improve access to information and is a starting point to help provide information that you can trust, and is safe, accessible and easy to use.” For people like Janelle, who grew up with a disability, the Disability Gateway is a welcome resource that can make a difference in their lives. “I had a lot of surgeries and setbacks and my parents constantly adapted and made modifications to help me with everyday living. If the Disability Gateway was available when I was growing up, it would have been invaluable, not just for my parents, but also my siblings,” she said.

I can access employment services on the Disability Gateway – Dane.

“I still see children with congenital disorders like mine, and families with a child living with a disability. The Disability Gateway is a helpful resource I can share with families to help them find the support and services they need.” Information on the website is structured around 10 areas of life that provide useful categories for searching for and finding services, including: • aids and equipment • education • employment • everyday living • health and wellbeing • housing • income and finance • leisure • rights and legal • transport The Disability Gateway phone line provides free, fact-checked information and can transfer people directly to other support services if needed, such as counselling or advocacy. To use the Disability Gateway, go to: disabilitygateway.gov.au or call: 1800 643 787. The Disability Gateway phone line is available Monday to Friday, 8am to 8pm AEDT. For information in a language other than English, call the Translating and Interpreting Service on: 131 450. Those who are deaf, have a hearing or speech impairment, call the National Relay Service on: 133 677.

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The Disability Gateway is here.

The Disability Gateway is here. It’s helping connect people with disability, as well as their families, friends and carers, to the information and services they need. Visit disabilitygateway.gov.au or call 1800 643 787 Monday to Friday, 8am to 8pm AEST/AEDT Authorised by the Australian Government, Canberra. linkonline.com.au

August/September 2021

Link to...News

NDSP Plan Managers helps put

paralympians on Path to Tokyo

Microsoft Teams image credit

DSP Plan Managers are looking to increase community connection and participation having recently become an official supporter of the Australian Paralympic Team, set to compete at the Paralympic Games in Tokyo, beginning August 24. NDSP CEO, Graham Oades is excited about the possibilities this creates for their clients. “Our passion at NDSP is increasing the participation pathway and community connection for our clients by inspiring them to get involved in sport. “Through our partnership with Paralympics Australia, we aim to encourage NDIS participants to see the benefits of including goals linked to physical activity and participation in their Plans,” he said. In the build-up to the Paralympic Games, NDSP will also be providing opportunities to become more engaged and active at Come and Try Days, Meet a Paralympian events, and other activities around the country. Six-time Paralympian and cocaptain of the Team for Tokyo, Danni Di Toro is equally excited about the partnership and having a company such as NDSP plan managers on board.

August/September 2021

“Living with a disability is challenging at times but NDSP does great work in taking away the added stress, allowing NDIS participants to put more of their energy into doing positive things, like getting involved in sport. It’s a natural fit and I’m really pleased that we’ve started this partnership,” he told Link. Paralympics Australia CEO, Lynne Anderson said, “we are appreciative of the work of all our official supporters, but it’s especially positive to have an organisation join us who works directly with NDIS participants and gives them the tools to build their networks and capabilities.”  The support of NDSP and other likeminded organisations will assist those athletes competing at the Tokyo Paralympics be better equipped to reach their full sporting potential. Co-captain and four-time Paralympian Ryley Batt went on to expand on the importance of sponsorship from companies like NDSP. “Sponsorship has allowed Paralympics Australia to run programs such as talent identification, the Para-sport Equipment Fund, Come and Try

Days and the Paralympic Education Program, which have all added to the opportunities for our people to compete in Tokyo,” he said. “Having NDSP join the Australian Team through this sponsorship is really important and means a lot.” It’s not only their athletic endeavours and achievements that makes NDSP proud to be associated with role models like Di Toro and Batt, but also the positive impact they have on the whole community. “Through our partnership with Paralympics Australia, our clients and all NDIS participants are encouraged to include physical and community activity in their Plan Goals,” Graham Oades said. “With the aim of enhancing mental and physical health and increasing levels of integration and participation. Overall, this partnership exemplifies our values and is a natural pathway to providing an inspiring range of valueadded supports.” The Paralympics start on August 24 and finish September 5, 2021. If you would like to find out more about plan management call NDSP plan managers on: 1800 63 63 77 or email: info@ndsp.com.au.

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Ready, Set & GO – Our Paralympians head to Tokyo

ne of Australia’s most successful Paralympians, swimmer Matt Levy, is heading to Tokyo this month for his fifth Paralympics. Levy has won seven medals, including two gold, one silver and four bronze, spanning four games. Levy, who is 33, has cerebral palsy and is legally blind, currently holds the world record for the S7 men’s 200m freestyle and is reigning Commonwealth Games champion in the 50m freestyle S7. Asked what the Paralympics meant personally, he told Link it gave him a sense of identity. “It’s an opportunity to do something better, show the world what is possible and

achieving it by not being limited by your impairment.” Levy hopes his actions by turning up every day to try and improve on what he did the day before, in some way encourages others with disability to do what he has done. While Covid affected his training program with three months out of the pool, it also gave him the opportunity to recharge and re-energise. Levy is writing a children’s book he hopes will inspire the next generation, which he described as a take on his book, Keeping Your Head Above Water. Released last November it details how his perceived shortcomings led him to discover his unique The Aussie Belles

Aussie Aussie Belles Belles goalballers goalballers

gunning for

Tokyo gold linkonline.com.au

ave you heard of the Australian women’s goalball team? You have now. They play a sport that requires them to dive onto a wooden floor blindfolded, to stop a 1.25kg ball thrown up to 65 km/h from entering the goals.

Matt Levy

strengths. As his companion, you will learn how to stop comparing yourself to others, capitalise on your talents and stay focused as you charge forward. Outside the pool he is a member of Paralympics Australia’s Mob Leadership Team and World ParaSwimming and Commonwealth Australia’s Athlete Advisor Groups. He is an ambassador for Australia Day, Westpac International Disability Day, Life’s Little Treasures, Athlete Leader Swimming Australia, Telstra Paralympic Education Program and the Vision Australia Speaking Program. To purchase Keeping Your Head Above Water go to: www. mattlevyoam.com.au

These Aussie Belles are currently ranked ninth in the world and Tokyo will be their third consecutive Paralympics appearance. Head coach Peter Corr reckons they have a good chance of bringing home Australia’s first goalball medal. “We are very excited about our chances in Tokyo. We have a great national team which is a balance between experience and youth. As a group we have proved to be determined, skilled and willing to challenge the best in the world with our own brand of goalball,” he told Link. Corr said it is a fast-paced action sport that requires athleticism, coordination, skill and confidence. “Personally, I think the team are determined, motivated and quite brave.!” The team comprises captain Meica Horsburgh, and Raissa Martin both from Brisbane; Jenny Blow from Melbourne; Brodie Smith from Newcastle and Tyan Taylor and Amy Ridley from Sydney.

August/September 2021

Link to...News

Taking deaf education from

Brisbane to Bhutan

Australian volunteer Robyn Whitney shares her experience supporting fellow deaf educators overseas and online during a pandemic.

“G

rowing up I was the only deaf person in my family of seven. My parents learnt sign language to communicate with me after I was diagnosed profoundly deaf as an infant due to an illness that my mother contracted while pregnant. When I was eight years old there was a pivot point which motivated me to pursue a career in teaching. I remember observing a deaf classmate struggling with English. I wondered why I had excellent English skills while he didn’t, so I regularly helped him with his English in the deaf unit at school in my early years. After many years teaching and as an Auslan coach, I saw an advertisement for an assignment with the Australian Volunteers Program, working with the Wangsel Institute for the Deaf, the only deaf school in Bhutan. I had never worked in a deaf school before and thought it would be a great opportunity. I successfully applied and volunteered in Bhutan for eight months in 2019-20. I loved the experience of working alongside Bhutanese people towards accessible and equal education for deaf students in Bhutan. My colleagues at the institute were amazing and generous, and the country is simply stunning with its scenery and surrounds.

August/September 2021

When I returned to Australia due to the pandemic, I continued to volunteer remotely, working on best practices for online education for the students. There were lockdowns in Bhutan which impacted on the ways classes were run so I helped develop manuals, resources and information that were provided to teachers at the institute on the best ways of teaching online. I had to work quickly, learning what was happening with online education in Australia, so I could adapt that to what was happening in Bhutan. I feel especially at that time in late 2020 there wasn’t enough research into online education for deaf children. The way the institute worked needed to change, and I was there to help them do that. There were challenges with volunteering remotely however, and the internet was one. Sometimes we would have blurry images or dropouts when meeting online, and you need a strong connection for sign language to be understood clearly. A positive of working remotely was how I could connect with Australian colleagues to gain a better understanding of what was happening with online education for deaf students here and pass that information on to my colleagues in Bhutan. My presentation skills improved significantly and I became fluent in Bhutanese sign language.

Because of the lockdown my colleagues were in different locations, and I did miss being able to come together and have a conversation. And then there were the times my colleagues forgot I was back in Australia and would call me in the middle of the night! Being an Australian volunteer made me braver and gave me more confidence while working at the deaf school in Bhutan and I keep in contact with many friends, hearing and deaf, that I made while I was a volunteer. I know these things take time, but I also know I can help to empower others. My parents gave me the best environment at home for language development, despite the barriers they encountered while raising me, and this is what motivates me to be passionate about deaf education. The Australian Volunteers Program matches a broad range of skilled Australians with partner organisations in 26 countries across the Indo-Pacific region, to support them to achieve their development goals. It actively encourages people with a lived experience of disability to participate in the program and develops access and inclusion plans to ensure assignments are much more accessible. To learn more and apply to become a remote volunteer like Robyn, visit: www.australianvolunteers.com

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Your unique talents can help support change in developing countries. Sign up for the Australian Volunteers Program’s Talent Pool to let us know you’re ready to volunteer. Visit australianvolunteers.com

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August/September 2021

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Waking up to a new reality

rian, who has a spinal cord injury, shares his story on incontinence and working with Coloplast. When you meet Brian, your first impression is: what a strong and positive man. It is almost unimaginable that back in 1996, he spent his most difficult months in hospital, where he struggled to adapt to his new reality: life in a wheelchair. Due to a spinal cord injury, he also lost his bladder control and needed to start using a catheter. For Brian, this was the hardest part. “I remember thinking I usually wear shorts and I could not imagine a life wearing leg bags.” Helpful advice was hard to come by and after seven years of catheterising with an uncoated, cheap catheter, it had become hard to insert and was causing blood and pain. Brian required surgery to fix the issue. “I would have liked to have had the support Coloplast provides as soon as the shock of my injury wore off”, he said. “I didn’t realise until speaking to Coloplast that I could get funding support from the NDIS. Coloplast Care supported me through the process, and I had no issues getting funding.

August/September 2021

I didn’t realise until speaking to Coloplast that I could get funding support from the NDIS. Coloplast Care supported me through the process, and I had no issues getting funding.

The Coloplast Care team made my transition onto the NDIS quick and easy, and it’s quite surprising to hear how so many people have difficulties getting approved”, he said. “With the NDIS, the act of balancing between what is right and what you can afford need not happen anymore. “Having SpeediCath Flex means I don’t need to carry around so many products, since it’s ready to use with no risk of contamination.” With the support of Coloplast Care, Brian has better control of his bladder health and now has the confidence to do what he loved doing prior to his accident. The impact of bladder or bowel issues on an individual can be devastating. It not only has a massive impact on one’s health and the back pocket, but confidence and family life too. So, for anyone with continence issues, talk to the team at Coloplast Care. They can support you onto the NDIS, assist your preparation for your next NDIS review meeting or guide you to other funding options where necessary – the Consumer Care team can help.

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August/September 2021

Link to...Automotive & Assistive Technology

How can Astris PME help you? As market leaders in special needs equipment in Australia, Astris PME can provide solutions that match the needs of people with a disability, and help therapists achieve the best outcomes for every client, in every age bracket. We have a huge range of trial equipment available so if you would like to make an appointment with one of our Specialist Consultants, or enquire about any of the products and services we oﬀer, please call us. We will be happy to help!

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August/September 2021

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Astris PME serving the rehab industry for over 70 years

DIS manages and approves funding to secure life changing equipment to eligible participants, so selecting the right equipment can be overwhelming, with pressure to “get it right the first time”. Leading Assistive Technology [AT] supplier Astris PME, has been in the Australian rehabilitation industry for over 70 years. Astris PME’s head of clinical education, Venesha Moodley, said NDIS participants will benefit from using resourceful partnerships to gain information on available AT which will safely meet their lifestyle goals. “This contributes to increasing the participant’s involvement in decision making, problem solving and overall aesthetics of the preferred AT”. Moodley told Link the participant and therapist will benefit in the long term by selecting a supplier: • With extensive knowledge and training of the relevant AT • Has a non-biased approach to product selection and • Supports the participant through the process during trial, delivery and fitting, and after- purchase support.

August/September 2021

Most AT offered in Australia will be covered by an Australian or International Safety Standard or TGA, which is available on request. Astris PME carries a huge inventory of AT including wheelchairs, seating systems, walking and standing frames, hygiene, and exercise equipment. Covid-19 caused disrupted supply challenges, increasing AT lead times and costs. According to Astris PME managing director, Steve Joyce, “Reducing waiting times is the primary strategic challenge we were working with in 2020 and into 2021. To help our clients receive their equipment in a timely manner, the Astris PME board have invested heavily in our national distribution centre in Sydney, driving lead times down to 35 per cent,” he said.

Delivery, supply and ongoing support

Successful AT delivery and outcomes are best met with correct set-up and education on safe AT use. According to the company this prevents discomfort, unnecessary wear on products and ultimately effective attainment of the participant’s goals. Astris PME customer service director, Wes Roach has been in the rehabilitation industry for over 30 years and knows the importance of looking after clients. “We have worked with thousands of equipment users, right across Australia, providing service and repairs. This support for participants and their product specialists is what makes Astris PME a leading support of complex AT,” he said.

ABOUT ASTRIS PME

Showrooms and specialist consultants are located in Sydney, Newcastle, Canberra, Melbourne, Brisbane and throughout Eastern Australia. Astris PME is available to attend equipment trials in an area of your choice. Astris PME is a reliable first choice for thousands of equipment users and therapists across Australia. Give them a call on: 1300 131 884 or visit them online at: www.astris-pme.com.au

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Mrs Pegg ’s Portable Clothesline

- the ideal Household and Personal Aid.

othing beats air drying with this portable clothesline because the wind and sun work together to create the ultimate all-natural dryer for freshly cleaned laundry, providing you with freshly airdried clothes. If you can’t get access to outside drying a Mrs Pegg’s Handy Line is portable and shifted around inside to catch the sun in winter. Mrs Pegg’s Handy Lines are a massive help to people with mobility issues because they have a lower line level than conventional lines and being portable, can be placed near the washing machine, so heavy wet washing doesn’t have to be carried very far. Carers just love it! It’s so easy to do a load of washing while attending those in need of care. Just put the

Handy Line undercover so there is no going back to wet or sun damaged washing. As the clothesline can also be used as an airer, as well as for drying washing, there is no double handling which is such a time saver. The Handy Line can easily be moved, clothes and all inside, where household heating can be utilised. Think of the energy saved. Because many of us live in more confined spaces and find that when the washing is dry, the Handy Line is easy to fold away to hang out of sight. Many carers and health professionals choose the Easy 8 Handy Line for their clients, or family. The lower line level allows easy reach for people in wheelchairs and with mobility problems. The Easy 8 weighs just 2.5 kilos making it very portable

and with 12m of drying space the Easy 8 will hold over a full wash load. The Easy 8 Handy Line is delivered fully assembled and comes with a 2-year warranty. Mrs Pegg's Handy Lines are accredited suppliers to the Department of Veteran Affairs through the RAP program and are purchased by many occupational therapists, physiotherapists and doctors on behalf of patients. The Handy Lines are also Home Care Package approved and are registered with the NDIS under Assistive Products for household tasks and for Assistive Products for personal care and safety. For further information about Mrs Pegg’s Handy Lines visit: www.mrspeggs.com.au or Free Call: 1800 111 811 to order.

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August/September 2021

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VIP Access - more than home modification builders

VIP

Access are lucky to have an expert builder that has invaluable inside knowledge of the building industry on its team. After becoming a paraplegic from a motorbike accident in 2004, Scott Darmanin started VIP Access after struggling to find builders with the knowledge on the requirements necessary to design and modify his home for accessibility. His experience with the same frustrations as his clients, has given him a unique perspective when it comes to developing innovative solutions to improve the quality of life

Scott Darmanin

for people in wheelchairs and turning that solution into a reality for people with disability. VIP Access services are available from the Gold Coast to South Brisbane, Scenic Rim and Ipswich areas for minor and major accessible modifications. In addition to building modifications, VIP Access are the only Queensland distributor of the portable Careport unit which provides an immediate solution for accessible showering and toileting. The unit can be installed and removed quickly in a home with minimal disruption.

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The cubicle is suitable for almost any type of shower chair and the shower rose height can be adjusted to suit or be used as a handheld. The freestanding unit is safe and easy to clean and conforms to Australian plumbing and electrical standards with its own hot water system and macerator pump. It is a practical idea for where a renovation is not feasible or as a shortterm solution. The Careports are available to purchase or hire. Contact VIP Access on: enquiries@ vipaccess.net.au or PH: 07 3807 4309.

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August/September 2021

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eading is something that many people take for granted, but for those with disabilities reading is generally very stressful and sometimes impossible. Audio books have been a great help but what do you do if you want to read the newspaper, a magazine, or the power bill? The ReaderPen uses state-of-the art technology to scan words and sentences from any printed material and reads them aloud. Users can listen through the built-in speaker, earphones, or an external speaker. The smart pen is recommended by health professionals including speech pathologists and occupational therapists across Australia and around the world. It helps people with issues such as dyslexia, autism, dementia, anxiety disorders, strokes, and mild cognitive impairment. The ReaderPen speaks in a natural voice and has various accents available – including Australian, British, Irish and Scottish. Besides English, the pen also reads French and Spanish. Other ReaderPen models

Level the Reading Playing Field – this new technology enables everyone to read.

read other languages such as Italian, German, Swedish and Chinese. Oxford and Collins dictionaries are built-in to the pen and word definitions can be read aloud or read on the LED screen. Other pens provide single word translation. The global distributor, Scanning Pens, works closely with NDIS plan managers and the pen can be funded under consumables, daily activities or assistive technology. The ReaderPen is used in schools, libraries, hospitals and workplaces across Australia. Many prisons and correctional centres use the ReaderPen for inmates with a low reading level. Scanning Pens offers a free trial of the ReaderPen which normally sells for $360. It is GST exempt as it is an assistive technology device. To arrange a trial or place an order contact Scanning Pens on: 02 8855 7100 or email: david@scanningpens.com or order online at: www.scanningpens.com.au

a smart pen that reads for you! The ReaderPen™ converts text to speech & reads words out for those that struggle with reading. Simply scan and listen.

Read independently – without assistance

Boosts self-confidence & reduces reading anxiety

Built-in Dictionaries – hear word definitions

02 8855 7100

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Multiple accents incl Australian, UK, USA

Recommended by speech therapists around the world

david@scanningpens.com NDIS Registered Provider

AUSTRALIA

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August/September 2021

Link to...Household & Personal Aids

Aids for supporting independence and adding to

quality of life

ousehold and personal aids are items that are designed for the elderly, people with a disability and those who experience limited strength or mobility. These aids for daily living help us move around our home environment more independently and are modified, accessible versions of special equipment and common household items. These items assist with a variety of everyday tasks that able-bodied individuals may overlook, such as putting on a pair of socks, or opening a jar. There are hundreds of household and personal aids for a variety of accessibility and mobility needs. These can range from clothing and dressing aids, walking and mobility aids, household aids and eating, drinking and meal preparation aids. Maintaining an independent and active lifestyle is very important at all stages of mobility and when learning to live independently and home and personal aids allow us to do this, giving people increased autonomy over their choices.

Preserving a level of independence is a huge contributor to selfconfidence and quality of life and empowers people to live in their own homes for as long as possible. Thankfully, with the help of mobility aids and other equipment, most people can continue to live a safe and comfortable life at home. There are a few things to consider when buying household and personal aids, such as affordability, reliability, and portability. Having the right aid to fit your needs is the most important of all. Some NDIS plans may fund certain supports to help with mobility and accessibility in your household. Chat to your plan manager to see what supports may be available for you. Independence Australia and Mobility Aids Australia (MAA) both stock a wide range of household aids and personal care products and are leading suppliers of mobility aids and assistive technology products, with MAA servicing Victoria and Independence Australia shipping to anywhere in Australia.

NDIS

Buy Consumables Use your NDIS consumables budget to buy continence, wound care, home enteral nutrition (HEN) and disability-related health products. No matter how your NDIS plan is managed, you can shop online for the everyday items you need, from all the major healthcare brands. With warehouses in every state, your order can be delivered quickly to your doorstep.

https://store.independenceaustralia.com

Visit store.independenceaustralia.com or call 1300 788 855

June/July 2021

Our range of aids help to make life as independent and comfortable as possible and includes kitchen aids, dressing aids, gripping aids, reaching aids, and assisted living products. Live comfortably in your own home and feel confident completing tasks with our great range of aids for daily living. Help make a difference when you source your health care products – with fast and reliable delivery, from store.independenceaustralia.com

Trusted provider Discreet packaging available Fast reliable delivery

As a social enterprise, the income we make is invested back into the vital services we provide to help people with disabilities. Your purchases help us to enhance people’s lives.

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trivida – a wheel like no other

trivida

is the world’s first wheel that makes it possible to transfer from and into a wheelchair without any obstacles. The upper segment of the wheel can be easily removed so that a lateral transfer from the wheelchair to the external seat, and vice versa, is possible without any obstacles, thanks to the revolutionary triatec technology, with German engineering. In anyone’s everyday life there are countless situations where a change in position is required. For wheelchair users, their family and/or

carers, these transfers from and into the wheelchair are a time-consuming and exhaustive task. Depending on individual mobility, many wheelchair users rely on help. For those users who can manage transfers themselves, this may become more difficult with increasing age due to loss of strength or age-related mobility restrictions. The detachable wheelchair wheel from trivida allows wheelchair users to make an obstacle-free transfer – from and into the wheelchair – for the first time. The transfer can be done with minimal physical effort in comparison.

Family and friends of wheelchair users can be required to assist with transfers to and from the chair. This can build to become a permanent strain on the back, particularly for carers over the long term. With the wheel from trivida, wheelchair users are less reliant on assistance. Depending on their level of mobility, they may even manage the transfer entirely by themselves. A great relief for loved ones and for the person in the wheelchair too, the trivida wheel can help create a sense of fun and relaxation more often. Daily transfers between wheelchair and bed, toilet or shower stool, couch, chair, stair lift or car seat require less energy and are therefore much easier to carry out. Even more, the innovative triatec technology guarantees complete stability, allowing the user to lean on their wheelchair during transfer. An incredibly simple design with minimum components, to guarantee easy operation with maximum safety and a long life.

trivida® Introducing a new state-ofthe-art wheelchair wheel. A triumph for freedom and independence

Barrier-free living.

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trivida® plastic wheel

The trivida wheel facilitates mobility for wheelchair users in everyday life. Daily transfers Find out more at: and bed, between wheelchair www.trivida.com.au toilet or shower stool, couch, chair, stair lift or car seat require less energy and are therefore easier. Sales & Service Australia/New Zealand For825 more information: +61 (0) 400 533 +61 (0) 400 533 825 info@trivida.com.au info@trivida.com.au

August/September 2021

MePacs -prioritising prioritising safety in the home

Leon Waldhuter

hile living independently in your own home, safety is one of the things that matters most, even more so when a medical emergency can happen when you least expect it. When time is of the essence, what is the easiest and quickest way to signal for help on your own? MePACS is one of the leading providers in Australia for personal alarms. For over 30 years, over 40,000 clients have trusted it to keep them safe with a convenient and discreet safety device connected to a 24/7 response team of trained professionals. At the touch of a button, its response team is guaranteed to answer a signal for help within two minutes, at any time of the day or night. With a fully monitored personal alarm service, it can quickly call for the

most appropriate help on their clients’ behalf, whether it is a family member or an ambulance, and stay on the line until that vital assistance arrives. It supports many clients with a disability and their families to have the ultimate peace of mind they deserve, knowing they can rely on MePACS to provide a personalised and efficient response service.

Home alone but reassured

A client, Leon Waldhuter, has a passion for anything vintage and a happy-go-lucky attitude to life. Leon has secondary-progressive Multiple sclerosis and decided a MePACS alarm would help him maintain his independence at home and in his local community. “I live on my own with limited mobility due to MS and walk around the house with a walking frame. I have a wheelchair for when I go out and can still do things quite safely but having both a MePACS Home and Mobile alarm means I’ve got someone to call on immediately if I have a fall,

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August/September 2021

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no matter where I am and that’s a big reassurance,” Leon said. Backed by an Australian Public Health Provider, MePACS home alarms are a popular choice for many of its clients with a disability. Worn on a lightweight chain or wristband, the waterproof home pendant is comfortable enough to wear 24/7; with a simple one-touch activation making it easy to signal for help. “MePACS is a necessity for people with MS. I would encourage anyone living with a disability to have a MePACS alarm because you just don’t want to take the risk if you are prone to falls,” Leon said. He used NDIS funding under assistive technologies to ensure his personal safety at home was prioritised. Having a MePACS alarm has supported many of its clients with a disability to participate in their community and become more confident to achieve their personal goals. MePACS is an NDIS provider. Find out more on: www.mepacs.com.au/ ndis or call: 1800 685 329.

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.au linkonline.com.au

Staying connected to the world

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ay Kirkwood has spent his life 'being a part of it'. He played 2nd division football for Hawthorn in Victoria, was secretary to a regional board of education and ran a travel agency for a decade. After a diagnosis of MS, some things changed, but many stayed the same. Getting about has become more difficult, but he has remained connected to the world and to his community. A descendant of the Victorian Premier George Kerferd, he organises the presentation of the medal at the annual Kerferd Oration. He is involved with the local council as an advocate for accessibility. He volunteers on a Gippsland University project researching public transport accessibility. It's safe to say Ray is both very organised and very determined. He is also one of the very first Australian adopters of the portable travel scooter. Back in the late 2000s there were only a couple on the market. Now there are dozens, designed to cater to all sorts of needs and preferences. But Ray has remained with his trusty Luggie, a little machine that has repaid that trust many times over. 'It's surprisingly robust, and it's small enough that I can go almost anywhere that someone can walk', Ray said. And the list of places he has gone is certainly surprising. From the snowy Japanese Alps to a lazy Mauritian

Ray Kirkwood admiring the Japanese Alps

beach, and just about every altitude in between, Ray has put the Luggie through its paces. Aeroplanes, buses, cruise ships and the car boot – the scooter is manoeuvrable enough, and can fold compactly enough, to handle them all. But it's on the domestic front that the Luggie truly changes lives. For Ray, it means going to the gym, slipping out the front door for a coffee, or

enjoying the nearby lake. It means his excited grandkids clamouring around as they all shop at the loud Queen Victoria Markets. It means a weekend away with the family at Inverloch, or a sculpture park with a big white monkey, its gravel paths unexpectedly accommodating. It means connection. As Ray said: “You need to be organised and determined to be a part of it.”

wUnpack, ww. Unfold and Go scoo tersa us.c om. au This portable fold up scooter gives you the convenience and freedom to get around. 8 Luggie models to choose from including: • Wide track version for more stability • Soft suspension and pneumatic tyres for a softer, smoother ride.

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Online sales & free delivery*

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August/September 2021

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Carer Gateway – new model delivering more services

he latest Carer Gateway service delivery model was launched over a year ago. This national network of service providers is designed to deliver a range of local and tailored services, from counselling and peer support groups to respite care, home help and equipment, selfguided coaching, skills courses and practical help and advice, either in person or online. All carers looking after someone with disability, a medical condition, mental illness or who is frail due to age can access the services. And it is not necessary to be a new carer to use the services as it is available to any carer at any time.

The changes to carer services does not affect services delivered through the NDIS, My Aged Care or state or territory carer services or carer payments already being received.

• Approximately 91 per cent of primary carers are related to the people they are caring for • Around 43 per cent of carers are caring for partners • 25 per cent of carers are caring for a parent • 23 per cent are caring for a child • 23 per cent of those caring for someone with a disability, also have a disability.

expands to Queensland

ocial carers group, Like Family, has expanded to Queensland. The NDIS-approved provider operates with a network of social carers, providing companionship and non-medical support to people with disabilities as well as the elderly, to help combat loneliness in the community. The platform links people based on their interests, likes and skills which facilitates the development of meaningful connections. “While loneliness is not a diagnosed disease with a defined protocol for recovery it can be mentally and physically draining and is an issue that’s on the rise around us,” Like Family co-founder, Jenna Leo said. “We see a great opportunity to spread our message and our mission into Queensland to help more people

August/September 2021

connect to the community and to mitigate the negative impacts of social isolation on NDIS participants and older Australians.” The Brisbane launch event featured a guest presentation by Madeline Stuart, the first model with Down syndrome to feature at Paris Fashion Week. The key topic of discussion amongst attendees was the increasing visibility and importance of mental health services, especially

during Covid. “As a response to the lockdowns, we are now hosting virtual events that bring the community together online, without compromising their safety or preference to socially isolate,” Leo said, “helping members do their groceries, cook, travel to their vaccine appointments or learn and develop new skills.” Like Family has been established in NSW and Victoria for the past five years where it has over 3,000 active carers.

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Trionic Velopeds and Walkers are Made for Walking

rionic Australia supplies two premium rollator models to assist users with walking: the Walker and the Veloped. Both come with a 10-year guarantee. The Trionic Walker is a fourwheel outdoor rollator that offers a comfortable ride over uneven pavements, cobblestones, gravel, tan bark and grass. All Trionic Walker models have a patented steering system. On walkers without a steering system, one of the front swivel wheels inevitably loses contact with the ground, starts shimmying or spinning and may regain contact with the ground in a skewed position. This can lead to an abrupt stop and considerable risk of tripping or even falling over. The Trionic synchronised steering system prevents this from happening.

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Choose from three-wheel sizes: Walker 9er (9 inch super soft solid), Walker 12er (12 inch pneumatic) and Walker 14er (14 inch pneumatic). The Trionic Veloped is our larger, more ‘off-road capable’ three-wheel rollator. The Veloped three-wheel design and patented climbing wheel enables you to negotiate tougher terrain. All Velopeds are the same in terms of frame, brakes, wheels, tyres, functionality and performance. It is just the textile fittings, colours and accessories which are different. Choose from two-wheel sizes: Veloped 12er (12 inch pneumatic) and Veloped 14er (14 inch pneumatic). All Trionic Walker and Veloped models have all-terrain hub brakes which are completely protected from dirt, water and snow. Call David for a no-obligation chat to discuss which model and wheel

Link to...Household & Personal Aids size you should choose. Walkers and Velopeds can be used in both urban and country environments. For example, at the beach, either a Walker 14er or Veloped 14er is recommended. Beaches vary greatly so your choice will depend on many variables: your abilities and goals, beach track entry/exit points, shoreline gradient, sand type, sun, wind, tides, rain and foot traffic. As a registered NDIS provider, Trionic Australia works closely with physiotherapists, occupational therapists and carers to enable client trials Australia-wide, without obligation. A key trial test is whether yourself or your carer can load the walkers into your vehicle. Visit www.trionic.com.au for weights and dimensions of all models, including when folded. A Trionic Walker or Veloped will help you to enjoy an active lifestyle. Our mobile showroom is visiting Ballina, Byron Bay, Gold Coast and Brisbane in October 2021. Call David on: 1300 50 30 30.

August/September 2021

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ast year, Christy Goodyear was struggling with her five-year-old son Jesse’s meltdowns. Jesse has autism spectrum disorder (ASD) with pandemic-induced lockdowns and raising a toddler adding to her stress levels. Then, she and her family undertook a 12-week online pilot ASD program. ParentWorks-Spectrum addresses child social-communication skills, disruptive child behaviour, and parent wellbeing in a beneficially cohesive manner. It is for Australian parents and caregivers of children aged between 2 and 5 years 11 months with a diagnosis of autism (level 2 or 3). Christy said: “It made such a positive impact on our family life in all areas. It wasn’t just how we related to Jesse, it was also how we were able to improve our relationship with each other and improve our marriage.” Conceived by Professor Mark Dadds from the University of Sydney Child Research Behavior Clinic, the program has recently been clinically evaluated with promising results. On this basis, a federally funded rollout of the program recently started.

Why including parents works

“ParentWorks-Spectrum is evidence-based, but also free, accessible and holistic in that it considers whole families’ needs, not just those of children with ASD. We believe these unique features contribute to the program’s success,” Professor Dadds said. In a randomised controlled trial conducted in 2020, around 40 families who undertook ParentWorksSpectrum reported significantly lower child behaviour difficulties, improved child social-communication skills and reduced parental anxiety, stress and depression compared to those who were waitlisted for the program. They also reported higher self-efficacy and confidence in their parenting abilities and fewer problems related to parenting. After completing the intervention, parents also reported more positive interactions with their child and better family functioning relative to the waitlist group.

August/September 2021

Parent-inclusive autism treatment goes national

Daniel, Asher, Jesse and Christy Goodyear

About ParentWorks-Spectrum The program is split into 3 modules: 1. Improving disruptive behaviours – reducing child behavioural difficulties and their impact on general functioning and the family system 2. Improving social communication skills – enhancing parent-child interactions though the development of parents’ skills 3. Parent wellbeing – ASD interventions are only as effective as parents’ ability to implement them with a focus on facilitating parental teamwork, partner support and wellbeing.

Caregivers who participate in the program are invited to attend 12 individual (approximately 1.5 hour) family sessions with a psychologist, online via Zoom, over 12 weeks. Christy Goodyear found the program’s bespoke nature particularly helpful: “When Jesse started day care in September 2019, his meltdowns began. ParentWorks-Spectrum taught him to change his thinking, for example, ‘you can be angry, but you can’t push or hit anyone’. This really helped Jesse express himself without hurting others.” Other benefits Christy reported were learning how to have a consistent, non-emotional approach to parenting and discipline, and improved parental mental health.

National rollout – register your interest.

As phase one of a national rollout, 120 families will be eligible to undertake ParentWorks-Spectrum, free of charge. Email scbrc@sydney.edu.au or call: (02) 9114 4326 to register your interest. In phase two, the program will be disseminated more widely, with potential for international reach. It will be evaluated on an ongoing basis.

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Large bodysuits to assist everyday living

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ave you or someone you know, cared for people with challenging behaviours such as fecal smearing and undressing in public? These are topics which are uncomfortable to discuss and can be a constant worry for many parents and caregivers. Fecal smearing is a frustrating behaviour compounded by the unpleasant smell and unhygienic mess it causes, as well as the constant worry that it can happen anywhere, anytime. Disrobing, especially in older children and adults in public spaces, can also create consequences due to the embarrassment of public nudity and lack of dignity to the person involved. Wonsie is an Australian business which started 10 years ago. They specialise in larger sized bodysuits and their products are particularly helpful to kids and adults with special needs. Here are just a few reasons why they have satisfied customers all over the world: • They help to protect the modesty and dignity of people who tend to disrobe in public • Help wearers keep wandering hands out of their nappies and pants (prevent smearing) • Benefit people in wheelchairs as clothes won’t ‘ride up’ • Great for people who are tube fed as it provides an opening to the abdominal area but keeps unclean fingers out of the stoma area. As the range is available from a size 4 toddler to an XL adult, it covers kids and adults of all sizes and are also popular amongst aged care. The suits are designed to be worn under clothing or as the outerwear themselves (teamed with skirts or pants). They look just like regular clothes so no one can really tell that they are wearing a specialty garment. Wonsie features three main unisex ranges, Everyday basic range, Back zips (for the clever Houdini) and a Tummy access range which assist tube feeding. All the garments in the range feature low legs to fully cover nappies and are made from a strong cotton material which is very hardwearing but soft to minimise irritation for people with heightened sensory issues. Wonsie offers worldwide shipping and is a registered NDIS provider. You can purchase their products by visiting their website: www. wonsie.com.au or email: info@wonsie.com.au for more information.

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WONSIE – helping to encourage positive behaviour

unisex onesies to help keep wandering hands out of nappies & pants deters inappropriate undressing & other challenging behaviour

range includes tummy access styles designed for tube feeding available in sizes for kids & adults

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www.wonsie.com.au August/September 2021

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Throne child’s rail with belt

Support when you need it Throne toilet systems, designed by occupational therapists, are modern looking, secure and safe to use.

or those wanting assistance using a toilet then this Australian company, established in 1998, could be the answer. Throne products are designed simply to aid in getting up and down from the toilet, specifically for those undergoing rehabilitation or who have a physical disability or impairment. The products make a valuable difference to the lives of the user, as well as their family and carers. “It is a category which is not considered as much as it should be, especially in aged care,” Throne MD, James Ross told Link. “Throne toilet support rail systems are the only rail on the market that, as its point of differentiation, attaches directly to the toilet through the same means that the toilet seat is attached,” he said. “Throne rail systems are an alternative to most toilet aids giving improved access and safety during toileting. The rails are considered safer than free standing toilet frames that do not provide stable support. Also, other users can access the toilet without having to remove the rail.”

August/September 2021

Key benefits include: • Reduces falls as no frame system • Fits in small bathrooms or where space is restricted • Secure as fits directly onto toilet, it can be used in circumstances where standard toilet frames cannot be fitted • It can be removed and taken with the client if the client moves house. The Throne 3-in-1 toilet support rail provides the necessary support for those who need assistance transferring on and off the toilet and is available in three positions: standard, splayed and fold down. Standard: Helps support the user to lower and raise themselves to and from the toilet providing them with better stability in doing so, in this position both grab rails are in a standard vertical position. Splayed: In this position the grab rails are much the same as the standard position only now offering a wider option for users who prefer a wider grip from the grab rails. Fold Down: The fold down position is there to offer the option of side access to the toilet in situations where side access is needed, the fold down option is also a useful choice for users in wheelchairs and for situations where space is limited, by folding

most

down one of the grab rails this can reduce the space being taken up. It has a maximum user loading of 130kg. Throne also markets a heavy-duty rail in stainless steel which has legs grounded to the floor on either side of the toilet, with a maximum user load of 250kg. A versatile addition to the range is the Throne Spacer, a toilet seat raiser that adds height to the standard toilet seat without changing its appearance, integrating with bathroom décor. There is also a toilet rail for children, which suits a very small child and can include a step. According to James Ross, schools and kindergartens purchase the child rail which is designed for smaller toilets, which are often installed in infant schools. “It is becoming more common for the adult rail to be used if the child is growing normally and is using adult toilets,” he said. Throne products are available through the NDIS, DVA and selected distributors. Throne exhibits at the Occupational Therapists of Australia conferences which held virtual events due to Covid. For more information visit: www.throne.com.au or call us on 02 6280 6851.

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Contact: www.throne.com.au or 02 6280 6851

DIGNITY, INDEPENDENCE AND CONFIDENCE FOR EVERYONE

3-in-1 Rail

THRONE SPACER

• Standard • Splayed • Fold-Down

THE ULTIMATE AND MOST VERSATILE TOILET SEAT RAISER The Throne Spacer has been developed to add height without changing the appearance of a standard toilet and toilet seat, and offers comfort and safety.

Two sizes! 50mm & 80mm heights The best option OT’s could hope for! Use with or without Throne Rails The functions of the ‘Standard’, ‘Splayed’ and ‘Fold Down’ rails have been incorporated into the ‘3-in-1’, making it the most convenient toilet support system on the market. The benefits of the Throne Accessories ‘3-in-1’ Rail System include: This rail replaces the previous three models Simplified ordering... etc The new Throne Accessories ‘3-in-1’ Rail System will be of great advantage for: Equipment loan departments in hospitals, schools, respite care and hospice facilities Nursing homes and retirement villages Hotels, motels, hostels, residential and other accommodation outlets

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The Throne Spacer fits under the toilet seat Unobtrusively integrates with the bathroom decor Raises the height of toilet seats and electronic bidets Easily installed and conveniently transportable Spacers and rails are available from reputable healthcare suppliers

BARIATRIC TOILET SUPPORT RAIL

This particular Bariatric Rail model meets the needs of the larger built person. The handgrips are supported by adjustable legs that are firmly positioned to the side of the toilet by rubber-capped feet to prevent tripping. The Bariatric model comes in polished stainless steel.

August/September 2021

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Using Widgit and new Boardmaker 7 symbols to

communicate What are symbols and why should we use them? Symbols are used everywhere - on road signs, on mobiles and computers and in public spaces to highlight everything from cafes to toilets. Symbols help communicate ideas quickly and simply, to visualise and remember what we have seen. This principle has led to the development of comprehensive symbol sets that, after extensive research are clinically proven to give greater support than clip art or icons. Symbol Sets often follow a schematic structure, or set of design 'rules', that help the reader independently grow their own vocabulary. They are designed primarily to give people with learning difficulties a simple alternative to text, but prove useful to a wider range of people, with low literacy or who do not use English as a first language.

August/September 2021

What software can I use to access symbols and create my own communication resources? The two largest collections of symbols are provided within the Widgit and Boardmaker software offerings. Health and education professionals around the world use both these products extensively with learners of all ages and abilities to support language development, communication, literacy, and learning. Widgit Symbols are used globally to support people and help them realise their full potential, no matter what their age, ability, or background. The ever-expanding Widgit Symbol Set has been developed over the past 35 years and now contains more than 18,000 symbols, which cover an English vocabulary of over 45,000 words. The Widgit software family includes InPrint, which enables you to make any document or teaching resource into accessible, symbolsupported resources quickly and easily. Widgit Online is a web-based subscription, that allows you to create, save and share visual communication and learning supports as both print and interactive materials. Lastly, SymWriter supports writers of any ability and allows them to begin writing independently by providing key words, phrases, and sentence structure. Boardmaker provides a fully inclusive education environment for parents, special education teachers and schools to millions of users around the world, who rely on Boardmaker’s learning resources and education activities. It includes Picture Communication Symbols (PCS), the largest symbol library

available with over 45,000 individual picture symbols adapted for children, adults, individuals with vision impairments and those with Aphasia. The PCS symbols are translated into 44 languages and used to create and personalize communication and education activities. In the new Boardmaker 7, features from previous generations have been combined in a new software that runs on Windows, Mac and Chromebooks in 14 languages. The software integrates with Boardmaker’s online features, student management platform and the large online sharing community. It includes a modern and streamlined user interface allowing users to easily create and deliver print or interactive curriculum and communication support. Using a range of symbol resources and strategies can give people more freedom. By making small changes to encourage independence, a large impact can be made on people’s self-esteem and confidence. Where people’s physical abilities are restricted, or they cannot speak, symbols can assist them to communicate their needs and wants, enabling them to make choices. Symbols empower them to be able to share their thoughts and ideas in ways that others can more easily understand. No matter what your level of language or reading, everybody should have fair and equal access to information. This allows every student to succeed at their own pace, with communication and literacy at the heart of it all. For further information contact Spectronics on (07) 3808 6833 or visit www.spectronics.com.au.

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August/September 2021 (07) 3808 6833

MORE than blind ambition for Samuel Valavanis

erwick teenager Samuel Valavanis lost his vision at a young age, but it has not stopped him from accomplishing anything he puts his mind to. A passionate disability advocate, 18-year-old Samuel is working hard to forge a career in the radio industry so he can share his own lived experiences of growing up blind and help educate the wider community for the better. “I like to prove to myself that I can achieve things that other sighted people can do. When people started to find out about my vision impairment, it made me want to be able to self-advocate as they would often misrepresent it. I want to help spread awareness and the media is a very largescale way to do that,” Samuel said.

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Samuel Valavanis at JMC Academy

At 12-weeks-old, he was diagnosed with bilateral retinoblastoma, a form of cancer and had to undergo surgery to have both of his eyes removed. Although he has been completely blind for most of his life, Samuel said that he never saw his disability as a hindrance. “I am not just going to take on the ‘woe is me’ type personality, because there’s plenty of people who do that, and I don’t want to be one of them,” he said. Samuel has already started making strides towards achieving his radio dreams and recently started studying a diploma of audio engineering and sound production at Melbourne’s JMC Academy. Samuel is quickly learning the ropes of the radio industry and thanks to a Vision Australia further education bursary, he’s now got the tools to hone his craft at home.

The bursary provided Samuel with a suite of state-of-the-art audio equipment to help him fine tune his skills, including a Victor Reader Trek, headphones, voice recorder, lapel microphone and an iPhone, which all help make his studies a lot easier. He can do his own recordings and work on his presenting techniques and his plan is to one day present and air his own radio show. “I’m very thankful to all the people who kindly donated money to Vision Australia and to me, because without that equipment I don’t know how I’d go in my academic and personal life.” Samuel said that he hoped he could go on to make a difference in his career and help change the narrative around disability in mainstream media, so kids with similar experiences wouldn’t feel alone. “We can do things just as any other person can. If you are passionate about something and want to make it happen, then do your best and don’t let anything get in your way.”

www.varadio.org 54

August/September 2021

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National EB Dressing Scheme to continue with Independence Australia

ollowing a successful tender, services provider Independence Australia will continue to administer the National Epidermolysis Bullosa Dressing Scheme, the NEBDS, for another three years from July 1,2021. The scheme is funded by the Australian Government Department of Health in partnership with Independence Australia. It supports people living with Epidermolysis Bullosa (EB), a rare genetic disease characterised by extremely fragile and blister prone skin. The scheme gives access to a range of subsidised dressings, bandages and

wound care products to help reduce infections and complications from EB, minimising the need for hospitalisation and also reducing the financial burden. Most children with EB are not expected to live past the age of 5, however 39-year-old NEBDS participant Dean Clifford has defied the odds of this disease. Dean has had access to subsidised wound-care products through the NEBDS since the program’s inception in 2010 and said that without the scheme, his quality of life would continue to be drastically reduced.

“The NEBDS has been one of the most significant factors contributing to my overall health and well-being continuing to improve at such a phenomenal rate. To have the bandages and dressings that I require arrive at my house every month instead of having to work out what I can afford, budget for and cut corners, has been life changing,” he said. A Clinical Advisory Committee provides advice on the operation of the scheme, eligibility criteria and the dressings to be subsidised. To find out more about the NEBDS visit: www.ebdressings.com.au

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LEFT FOOT ACCELERATORS ELECTRIC LIFT SEAT VEHICLES WHEELCHAIR/SCOOTER CRANE VEHICLES

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August/September 2021

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Permobil launches new ‘crashtested’ backrests for active users

August/September 2021

he new products just keep coming from Permobil and the latest, the Dreamline Ignite Series of backrests is one. Unveiled at the ATSA Melbourne Expo in May, the new Ignite Series is a first in a design that provides additional support to active users. Engineered for support and adjustability, the backrest features a dual layer foam cushion with bubble technology that maximises immersion while reducing vibration as well as a new FLO2 4-way stretch cover that allows therapists greater flexibility in customising the backrest while still keeping the user cool and comfortable. The drawcards for both users and prescribing therapists extend beyond just premium materials. The Ignite Series has a level of adjustability not normally seen on active backrests. Link caught up with Permobil product manager, Samuel Baker, at ATSA who explained the features and benefits of the new product.

He said the new backrest allows for configuring to the individual’s needs and can accommodate a wide range of body types. “For example, if you have a client who is broad in the shoulders but narrow in the hips, or vice versa, it’s important to fit the backrest to the individual not the wheelchair. “With the Ignite it’s possible to achieve four inches of width adjustment and 60 degrees of angle adjustment for that perfect fit. Along with the backrest’s open profile and optional inserts, I think both therapists and clients will be pleasantly surprised with what can be achieved,” Baker said. The Ignite has been crash tested for occupant use or can be easily removed thanks to its quick release mounting hardware. There are two versions of the backrest available, the Ignite in anodised aluminium and Ignite Pro in ultralight carbon fibre. For trials and enquiries contact Permobil at: info.au@permobil.com or PH: 1300 845 483.

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CAST your VOTE for the Focus on Ability Short Film Festival

et your vote in for a showcase from film makers around the world. Now in its 13th year, the Focus on Ability Film Festival tells stories about people with disability. Presented by NOVA Employment, this festival of film gives film makers the opportunity to win a share in over $100,000 in prizes.

NOVA CEO Martin Wren has already started checking out the films which he said motivate, inspire and capture the spirit of the festival. View and vote the films from August 10-16 for International Finalists and from August 19-25, 2021 for Australian Finalists and ANZ School Finalists. To vote go to: www.focusonability.com.au

ww w.d awn -clo cks. com .au “We seriously love the Dawn Clock. It’s quite amazing that a clock has completely changed her level of independence!” ~ Jen, Mother of Emily J Prior - ABC Me Star & Neurodiversity Advocate

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August/September 2021

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Simply Helping

you achieve independence at home

emember the first time you achieved a moment of independence as you transitioned from adolescence into adulthood? The sense of pride, happiness and that shot of selfconfidence made many of us feel we could take on the world. This fond, memorable experience should not be reserved for mainstream society. Everyone, no matter what age, gender, or ability should have the freedom to live their own life, and the chance to achieve their own goals and independence. Living with disability has its challenges. There can be communication barriers, accessibility issues to overcome, and securing relevant assistive technology is not always easy. However, at the core of it all, people living with disability are no different to anyone else when it comes to making their own decisions, and questioning “How can I live my own independent life?” Simply Helping is one NDIS home care provider striving to make a difference. With a caring nature and a genuine desire to enrich the lives of others.

August/September 2021

Simply Helping in regional Victoria was founded by Angela FeeryRichards more than 20 years ago. “Our simple mission is to add value, meaning and dignity to the lives of others. We find that many people living with disability have an incredible appetite for self-determination, and that is wonderful,” Feery-Richards said. “Providing home care and supports that assist people to reach independence is just a part of the journey. Before the journey begins, we recognise the value in taking time to understand each person’s unique circumstances and personal goals, many of which include a form of independence. Independence means being exempt from external control, and we believe the only person who should be in control is the person we’re supporting.” In addition to providing domestic help, community support and personal care, Simply Helping offers a wellrounded suite of NDIS supports which includes lesser-known services such as gardening and home maintenance. “Helping people achieve a level of self-sufficiency often entails providing a mix of supports, not just personal

care supports, but also assisting with daily living around the home. Our gardening service plays a significant role in helping people live more independently in their own home, so does our home maintenance. If your disability prevents you from doing certain jobs in the garden, such as lawn mowing, weeding and mulching, the NDIS provides funding for a gardening service to help with these tasks. The same applies with home maintenance,” she said. Pet sitting and dog walking are other important services provided by Simply Helping. For many people living with disability, owning a pet can provide comfort, companionship and even increase independence and community involvement. “Many of our support workers are avid animal-lovers and jump at the chance to provide pet sitting and dog walking services.” Simply Helping has locations in Victoria, New South Wales and Western Australia, and will soon be opening in Queensland. Visit simplyhelping.com.au to learn more about the wide range of disability services and supports to help you achieve independence at home.

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Registered NDISProvider TAC/WorkCover Preferred Provider

August/September 2021

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Kyal

now a dog business entrepreneur TO ORDER GO TO Facebook: @kyal’sdoggydelights Instagram: @Kyalsdoggydelights Video link: www.youtube.com/watch? v=-1Z8yDtorvE

August/September 2021

here is no ‘business like doggy biscuits business’ for Kyal Chamberlain. And Kyal can thank the family husky Apollo for helping to turn Doggy Delights into a business success story. Kyal felt that Apollo, deserved some healthy home-made treats so after doing online research on recipes, his first batch of cookies was a huge success with Apollo choosing Kyal’s home made biscuit over a commercial variety, making Apollo ‘official taste tester’. Kyal started his business when he was 16, through Ticket to Work, participating in the School to Work transition pilot in Western Australia through Rocky Bay Disability Service, funded by the NDIS. Rocky Bay staff used a customised employment technique, tailoring the unique abilities of the person to match the needs of the business, or in Kyal’s case using his cooking skills to create his own business. Customised Employment has four essential components; discovery, job search planning,

job development and negotiation and post-employment support. During the ‘discovery’ phase, it was decided that Kyal preferred hands-on practical activities and was interested in combining cooking with his love for animals. A meticulous worker, he does everything to a high standard. Rocky Bay approached a local dog friendly café to trial Kyal’s dog biscuits, which were a hit and soon other local cafes, dog groomers and dog daycare centres followed suit. The business is very much a family affair with twin brother Benji looking after designs and branding. As Kyal has taken over the household kitchen, the family are in the process of building a kitchen in the back yard. Kyal is currently making more than 2,000 biscuits a week, including hemp biscuits’ as well as ‘pup cakes’ and Doggy Breath Mints, all made by hand. He said the best part about his job is making dogs and their owners happy. “I have autism and ADHD and cooking is relaxing and fun for me” he said. And business remains strong even throughout Covid.

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Support Coordination services to help you live Your Life, Your Way.

ommunity Support Inc has been providing home care services for people living with a disability, mental health, or aged care related need for 30 years. The organisation offers a range of professional, flexible services for children, young people and adults requiring home or community support across all metropolitan and most regional areas of South Australia. With qualified staff supporting clients across the state, the organisation provides individuals with everything they need to help them live their life, their way.

Support coordination is a key service offering. Support coordination is an NDIS funded support, designed to assist individuals to make the most out of their NDIS funds, CEO Dr Angela Littleford said. “A Support coordinator is a key person who works closely with the client and other service providers to balance funding arrangements, support needs and ensure goals are met.” Support Connection allow you to start your plan, connecting you with other providers and monitoring your plan’s progress. It also provides ‘Assist Life Stages and Transitions’

services to prepare you for the challenges you may face when undergoing life changes. Coordination of Support involves helping you start your NDIS plan and monitor and address any issues or barriers that may arise regarding the delivery of supports in accordance with the plan. Specialist Support Coordination uses a specialist framework to assist in reducing barriers and build capacity around NDIS plan implementation required by high-level needs. Capacity Building and Training in plan and Financial Management provides assistance to strengthen your ability to undertake tasks associated with the management of your supports. “We have also begun providing psychosocial recovery coaching and this service type has certainly grown over the last six months,” Littleford said. “Our skilled coaches work collaboratively with clients and their carers or families to help clients implement a daily living plan. They will assist them with their NDIS supports and link clients to other providers as required to allow them to manage their everyday needs. It is rewarding to see the benefits that support coordination provides for clients,” she said. To find out more contact Community Support on: 08 8429 1200 or email: hello@csisa.org.au or website: csisa.org.au

Providing you with personalised and professional services to help you live Your Life, Your Way. Community Support Inc deliver in-home and community support to hundreds of people every day across South Australia. We provide tailored supports to people living with a disability, mental illness and complex health conditions. We can provide services to help you at home or in the community. Wherever you need us, we’re there to help you live Your Life, Your Way.

www.csisa.org.au csisa.org.au

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To find out more contact us today! Telephone 08 8429 1200 Email hello@csisa.org.au Or via our website csisa.org.au

August/September 2021

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ix years ago Caleb Turpie was given two weeks to live after a precautionary MRI of his brain revealed a stage IV medulloblastoma (cancerous brain tumour). “I knew something was wrong because I was sick every day,” Caleb said. Overnight, his mother Suzanne became his carer. He was transported from Port Macquarie to Sydney for urgent brain surgery and three days later embarked on a long road of chemotherapy and radiation. Coming out of surgery, Caleb experienced paralysis of the right side of his body not only restricting his movement but stopping his ability to smile. Caleb had to re-learn how to stand and walk again and spent extended time in a wheelchair due to weakness and fatigue from the gruelling chemotherapy. This time was very confronting for Caleb and his family as they learnt to adapt to a temporary way of life, with a feeding tube for nutrition and a port for vascular access. In 2018, Caleb underwent a six-hour surgery to restore his smile. A piece of muscle from his leg was taken with microsurgery and then used to attach a nerve within the muscle to another nerve in his cheek, ordinarily responsible for chewing and clenching. The surgeon then joined artery-to- artery and vein-to-vein with sutures finer than hair, magnified eight times under a microscope. This pioneering surgery paved the way for other people as young as 11 years old to be treated at the Chris O’Brien Lifehouse in Sydney.

August/September 2021

A family determined to improve care

- for young Australians diagnosed with brain cancer A new journey begins

After having a taste at creating change and now enjoying remission, Caleb, now 15 years old, and his mother are embarking on a new journey to improve care and experiences for young Australian’s diagnosed with brain cancer. They have told their story at fundraisers and events for various non-for-profits across Australia, as well as being featured in an art exhibition at Sydney Children’s Hospital and in a book ‘You’re So Lucky’, by Grace Wethor. Suzanne has gone onto make a submission to Parliament and be involved in a Senate committee for funding for research into cancers with low survival rates, where she highlights key opportunities for improvement in care. Future areas of focus for improvement for Suzanne and Caleb include holistic care, more comprehensive support after

treatment especially addressing medical trauma and challenges in accessing appropriate services in regional areas. “Treatment shouldn’t just cover, surgery, radiation and chemotherapy, there are many more things than just that,” Suzanne said, “after treatment it’s like you’re kicked out on the street and told to swim.” For this family, their story is their power, and creating awareness around what their experience has been in order to improve the process for others is paramount to them. Suzanne and Caleb are represented by Champion Health Agency, a world first agency representing people with disability, chronic illness and carers to use their lived experience to improve the health system and beyond and the wish to continue maximising on their lived experience to create positive change.

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INS

Security, Reassurance, Independence and Healthcare

LifeGuard are NDIS registered and provide NDIS participants, people living with disabilities or chronic medical conditions help at the press of a button. With so many choices available today, it can be hard to know which one to choose. The fact that alarms are handled by qualified healthcare professionals is unique to INS LifeGuard and we feel it’s an important distinction. Emergency personnel are engaged quickly if required, and our nurses can not only share personal details, but also medical information that could save a life. They can offer medical advice that can even help people avoid a medical emergency to begin with. We offer both in-home and mobile systems that let you summon assistance at any time wherever you may be. We can assist whether it’s a medical emergency, or personal safety and security concern. Whether

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it means contacting a friend, carer or family member, or summoning an ambulance, police or fire brigade, rest assured, help is on the way. We can also provide a free TeleHealth Service. Your vital signs can be recorded automatically with the results monitored by your family or carer via a free app or secure web portal. Alternately, choose our Professional TeleHealth Service to have them monitored by a registered nurse. The nurse will also conduct monthly reviews and report back to your GP or specialist, with your permission. Much more than a Personal Response System, our LifeGuard SmartHome suite of world-patented technologies are the most advanced offering in the industry and have received commendations and awards for innovation. Give us a call today or visit us online to learn more about Australia’s only premier nurse response service. PH: 1800 636 040 or go to: www.inslifeguard.com.au

CALL

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August/September 2021

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Social Services Minister, Ann Ruston, Chris Edwards and Odie

lind and low vision people with Seeing Eye Dogs are being turned away from various public places including taxis and restaurants in what is being called a ‘systemic issue’. In the space of one week, Vision Australia advocacy manager, Chris Edwards was denied entry with his Seeing Eye Dog Odie, into two rideshare vehicles and a restaurant. In Australia, Seeing Eye Dogs are legally allowed into all public spaces, excluding a small number of areas such as operating theatres and commercial kitchens. According to Edwards, it is all too common for Seeing Eye Dog handlers to be denied access to public spaces, describing it as ‘systemic issue for blind and low vision people’ and further education on the problem is urgently needed. Being denied access to a public place is embarrassing and discriminatory for handlers, he said. “The access rights of Seeing Eye Dogs and their handlers are protected by law across Australia, but unfortunately we still need more awareness about where Seeing Eye Dogs are allowed to go. The more understanding we have of this, the closer we’ll be to creating an inclusive society for people who are blind or have low vision,” he said.

August/September 2021

Edwards was part of a Vision Australia delegation in Canberra recently, that included Seeing Eye Dog handlers and Seeing Eye Dog puppies to highlight the importance of Seeing Eye Dogs access rights and meet with decision makers, including Social Services Minister Anne Ruston. “Seeing Eye Dogs and other guide dogs play a vital role in the lives of people who are blind or have low vision and it’s important people recognise and understand the access rights they are granted by law,” the minister said. “Unfortunately, it’s all too common for them to be denied access to public spaces. These little legends should be allowed in all public and common areas.” Vision Australia CEO Ron Hooton said the organisation is committed to advocating on behalf of the blind

and low vision community. “Working together, we can continue to improve conditions and opportunities and support people who are blind or have low vision to live the life they choose,” he said. Vision Australia's position is that expanding the service will give blind and people with low vision better transport opportunities. A large portion of rideshare companies are accommodating for users with Seeing Eye Dogs, but the organisation wants to see this across the board, he said. The Victorian Parliament is running an inquiry into the Multi-Purpose Taxi Program that will examine the prevention of exploitation of vulnerable users and review minimum safety requirements, among other things.

No dogs allowed

Health Minister Greg Hunt and MP Trent Zimmerman

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Link to...Accommodation & Home Support

ocated in Adelaide’s northern suburb, Salisbury, The Gums is SACARE’s most impressive accommodation to date. Completed in 2019, the accommodation has been designed to provide a complex healthcare solution to get participants out of hospital quicker. As SACARE’s accommodations are renowned for their exceptional amenities and modern design, it is hard to believe just one can surpass the rest. But with a rehabilitation gym, hydrotherapy pool, sensory garden and an allied health team all located on one stunning premises, The Gums covers all bases for a strong rehabilitation and enviable lifestyle. The Gums is unique from the other SACARE properties, as it has been specifically designed to support a participant’s path back into the community and their own home. The Gums offers short, medium and long-term accommodation options dependent on the participant’s needs. In the most basic sense, The Gums is the next step after hospital on the

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Between Between Hospital Hospital and and Home: Home : THE THE GUMS GUMS rehabilitation journey for somebody with an acquired disability, or similar. From here a structured support and rehabilitation plan is developed with the ultimate goal to have the participant confidently re-join their community. Once a participant has begun their transition home, they will still have access to the full suite of SACARE services including community support workers and continued access to the SACARE allied health team and facilities. The Gums includes eight rooms dedicated to clients with high or complex care needs and an additional 12 rooms for transitional participants with low to moderate care needs.

The Gums amenities are elevated with the inclusion of the on-site clinical and allied health team. All coming under the umbrella of SACARE’s THRIVE therapeutic services at The Gums you will find, occupational therapy, physiotherapy and clinical nursing. SACARE are also happy to work with participants to include their award winning ‘THRIVE peer-goal mentoring’ service. This is a unique therapeutic service which works towards a participant’s life and functional goals by doing activities they love and enjoy. Want to learn more about The Gums? Head to SACARE’s website at: www.sacare.com.au

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au August/September 2021

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Penrith Council

– delivering progress in accessibility

Claire Galvin with Council Access Committer member, Matt Rodger

Kymberly Martin spoke to Penrith Council community capacity officer, Claire Galvin, about the council’s role in accessibility, coping with Covid, its Disability Action Plan and more.

he introduction of the NSW Disability Inclusion Act (2014) which mandates that all NSW Councils must have an active Disability Inclusion Action Plan (DIAP) gave further impetus for Penrith Council striving to be a Local Government leader in supporting people with disability to fully participate in community places, programs and events. The council’s first Disability Action Plan (2003-2006) and the Penrith Inclusion Plan – People with Disability 2009-2013 delivered significant progress in making Penrith more accessible and inclusive. Between March and August 2016, more than 120 people with disability, their family members, carers, advocates and staff working in the local disability sector contributed to the DIAP consultation process. Council organised two public community forums, 12 focus groups and meetings with people with a disability, and hosted a ‘Have Your Say’ website, as well as receiving consultation submissions in alternate formats. Following this community consultation, actions were drafted to respond to the issues raised.

August/September 2021

Importantly, all of council’s disability inclusion actions were integrated within the overall community strategic planning process and the 2017-2021 Delivery Program. Having disability inclusion priorities within the Delivery Program embeds inclusion into Council’s day-to-day work and enables effective monitoring of progress in delivering the actions. Actions included accessible and environmentally sustainable bus shelters, inclusive and accessible play spaces, accessibility to council website and a project to increase employment of people with disabilities locally. In her role as community capacity officer, Claire Galvin works on various projects all with the aim of strengthening the communities of Penrith. She convenes several interagency meetings, such as the Penrith Community Care Forum (PCCF), and the Penrith Early Childhood Early Intervention interagency. At monthly PCCF meetings, disability and aged care service providers attend and receive information, training, networking opportunities, and collaborate to organise community events.

“This helps to ensure a robust service sector to support our residents with a disability or who are aging,” she told Link. Galvin also coordinate the Council’s Community Assistance Program of small grants, that enable community groups to increase their capacity to operate and function. This includes community capacity projects supporting youth, multicultural communities and responding to customer queries where callers need to support or information to get in touch with the community services they need. She publishes a fortnightly Penrith Community Care Forum e-newsletter which goes out to people working in the disability and aged care sectors in the area. Speaking about inclusion Galvin said it has long been the attitude at Penrith City Council that inclusion is a part of every person’s job with no one person having responsibility and oversight for ensuring people with a disability have been considered. Instead, each council officer, with training and the support of relevant planning and thought, is aware of the variety of different community needs to consider when responding to a customer, or designing a playground, or planning an event. “Having a disability inclusion officer, youth worker and multicultural liaison officer, etc. can sometimes

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Link to...News diminish the complexity of the community work of council. People don’t just ‘have a disability’ or are a ‘youth’, each person in our community has a variety of roles and attributes. Working holistically as a Community Capacity Team helps us better meet the needs of our whole community, rather than working in a more siloed way,” Galvin said. Apart from the annual International Day of People with Disability community event, the council does not run specific events for people with disability. The council has invested in staff training and event planning processes, to make sure that every event run by council is accessible, welcoming and inclusive for people with disability. “It’s great if there are activities specially designed for people with disability, but better when every event is designed for inclusion of people with disability and every community member is welcome.” Events are promoted in the local newspaper, banners around the Local Government Areas, posters at libraries / council facilities, the council website and Facebook that has 30,000 followers. While council does not have any overlap or direct action with the National Disability Insurance Scheme through its interagency meetings it tries to facilitate the National Disability Insurance Agency in getting information to service providers.

During the initial roll-out of the NDIS, the council worked closely assisting the NDIS with community information sessions, organising accessible venues and distributing information via council networks, to provide information to residents. NSW Dept of Communities and Justice monitor the implementation of local government DIAPs and through Local Government NSW provide advice to council about DIAP planning and implementation. As for Covid, initially it impacted many council meetings, such as Council’s Access Committee (a formal committee of council which advises on access issues and promotes the inclusion of people with a disability as full members of the community) and interagency meetings which were held online rather than face-toface. Galvin said this has continued as it was discovered that it was possible to still meet effectively while saving travel time. “Eventually some meetings will return online because the element of social connection is very important in community work,” she said. “We were able to use some funding for face-to-face projects that were cancelled due to Covid, to instead launch a Community Covid Recovery fund, which assisted community groups to develop projects to help the community connect during and Covid and post-lockdown.”

Changing Spaces

It’s great if there are activities specially designed for people with disability, but better when every event is designed for inclusion of people with disability and every community member is welcome. linkonline.com.au

The council has also demonstrated a commitment to progressively improve the provision of publicly available adult change facilities across the Local Government Area (LGA) which included a hoist and change table, in addition to an accessible toilet. These have been installed in the arcade off Triangle Park in Penrith, East Lane St Marys, Jordan Springs Community Hub and Thornton Community Centre. Additionally, through Council’s Development Assessment process, some private developers have upgraded their accessible toilet amenities to include adult change facilities including Nepean Village Shopping Centre.

During public consultation about adult change facilities within Penrith in early 2020, Mayor Ross Fowler received a letter from The Disability Council NSW commending the excellent leadership shown by council around accessibility for people with disability, specifically adult changing facilities, and for becoming the first council to exceed National Standards in NSW for constructing these facilities in venues not currently requiring them. At least 1,900 residents in the Penrith Local Government Area (LGA) require assistance to use the toilet. Access to accessible toilets that feature height adjustable change tables and hoists in convenient locations transform the lives of many residents and their families in our communities. Looking ahead, the ICT team is working on a Penrith City Council app, and one of the features will be a geo-tagged photo option, for instantly reporting a problem to council. An example would be kerbramp that is damaged and unsafe or difficult to navigate in a wheelchair. By opening the app and taking a photo of the issue, it will be sent with the geographic location automatically from a smartphone and reported to council. The council also runs a Toy Library Outreach Service for borrowing switch-adapted toys, with large switches and buttons that can be used by children with motor difficulties, such as Cerebral palsy. For library details go to: www.penrithcity.nsw.gov.au/ community-library/library/childrenyoung-people#quick-link-7 For more information on events visit: The REAL festival: www. sydneypoint.com.au/events/realfestival/ held November or www.penrithcity.nsw.gov.au/ upcoming-events For library events: www.penrithcity. nsw.gov.au/community-library/library/ upcoming-library-events The council created an arts project to connect people with disability as part of IDPWD on December 3. Visit a short video here: www.youtube.com/ watch?v=zqsRgp600WI

August/September 2021

Link to...Travel & Leisure

Postcards

from Leisure Options

Small group holidays and travel for people with disabilities

1. B ea chside Ex pl ore Vi ct Hol idays & Respite Pa coas ts . Year-ror ia’s su rf an d sh ip w re ck ckages pa ck ag es av ou nd de pa rt ures an d re ai la bl e. sp ite

a ls Fe s t iv M u s ic ve nt d n a s e c a s io n a n d s p e c ia l a r ’s c ia l O c Ye al 3. Sp e p u la r fe s tiv a s a n d N e w n s of Elv is , O u r p oay s . C h r is t m li d ay s fo r faic . g et a w t u re s p lu s h o C e ltic m u s d e pa r r y, Blu e s a n d Co u nt

s 2. Ind ivi du al Ho lid ay po rte d ho lid ays to a sup 1:1 d ize tom cus Fu lly ice. Lo cal, inters tate de stinati on of you r cho rtu nities . po op al on ati an d intern

4 . G o ld S u m m e r a n d S u n s h in e e s c a p e s a n d W inte r p roC o a s t G e t a w a S u n s h in , A n ima l Love rs g ra m s . T h e m e y s e Coa s t RetreatsA d ve ntu re s a n dPa rk .

August/September 2021

ay s an d Cr uis ing 5. Int ern ati on al Ho lid ng cru ise or azi am an for d ea ah Pla n the wo rld wit h re plo Ex ay. lid ho ove rseas ate d staff. dic de r ou d an s ne w frie nd

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Brodie & Mycalie in Broome

s we reach the second half of 2021, for many people the thought of travelling seems like an unattainable goal, especially with the uncertainty created by fluctuating travel restrictions. In reality this is not the case and now is actually the perfect time to start putting those travel ideas or bucket lists together with a view to arranging some well needed rest and relaxation. Whether you have a grand ‘dream destination’ or are just keen to take a relaxing break, opportunities abound to plan and prepare for your future adventure or to pack your bags and start exploring now.

Prepare to be flexible with your travel plans In the current climate flexibility is key when considering your travel opportunities as sometimes your travel plans may need to change at the last minute due to new restrictions. New locations may also become available to visit and having plans in place and ready to go will enable you to reach these destinations as soon as possible. The team at Leisure Options has been busy throughout 2021 helping both individual and group travellers explore this wonderful country of ours as well as putting in place the steps to return to international travel. Many travellers have been able to experience the holidays they missed

out on in 2020 with some participants taking the opportunity to take multiple holidays now that domestic travel begins to return to normal. Leisure Options travellers have been lucky enough to visit destinations such as Broome, Perth, Port Douglas, Cairns, the Gold Coast, Sydney, Tasmania and Victoria’s surf coast. Future plans to return to international travel include holidays to New Zealand, Singapore and Tokyo. Eager travellers are already booking on these holidays indicating a strong desire to explore the world when conditions allow. If you have a holiday or travel destination in mind and are looking to travel with the assistance of experienced, compassionate and funloving support staff contact Leisure Options to discuss your requirements. Leisure Options can be reached on: 03 9646 066 or 1300 363 713 Email enquiries: mail@leisureoptions.com.au

ww w.le isur eop tion s.co m.a u We support the

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August/September 2021

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Home away from home

- Tailored New Zealand holidays with a central base

f the idea of a road trip around New Zealand seems daunting, then consider a different approach. Marina Hanger from Ability Adventures designs bespoke holidays where the itinerary can be built around a central point for accommodation and spans outwards from there. It involves setting up in your preferred style of holiday accommodation for the duration of your trip and taking a series of day excursions to nearby destinations. “There are so many places in New Zealand within a couple of hours’ drive of each other, the choices are

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endless” Marina told Link. “It’s similar to the cruise ship experience where you unpack once and every day you get to explore a different place.” An experienced occupational therapist, Marina can cater to a wide variety of needs, arranging any special equipment, personal care service or other items and have it all installed and ready before your arrival. “Everything is there already, and it removes the hassle of having to pack it all up and carry it around as you would on a traditional touring holiday.” Rotorua is a good example of a great ‘central point’ base. Aside from its own extensive range of attractions

and activities, there is the Bay of Plenty coastal experiences within reach and hot spots like Hobbiton just down the road. Lake Taupo is an hour away and the mountains and snow at Ruapehu are a feasible option for a day trip. Marina has also designed several holidays based out of Queenstown that have included local activities and day trips to Wanaka, Glenorchy and Clyde in their itineraries. “The beauty of this type of holiday is, everything is tailorable. You don’t even have to have a location in mind. I start with a list of things you enjoy doing and then come up with a place where it all fits together,” she said.

www.abilityadventures.co.nz August/September 2021

Link to...Travel & Leisure

A road trip to Queensland Planning a trip to South-East Queensland? Covid permitting! Caitlin Maynard did just that in true wheelchair style.

“L

ike many people I love taking trips and going on holiday. Since flying with a disability is difficult and stressful, it is often easier to take a road trip. Driving means I can be sure my wheelchair will be safe and in sight and I am not limited to one suitcase so I can take things that make my daily life easier. My partner, Duncan, and I decided to take a road trip to Queensland. Neither of us are Australian so we were very excited to get out and explore a bit more of what this country has in store. We spent eight days driving through Queensland from NSW and had a wonderful time. Our trip was jam packed with activities but as a wheelchair user there were a few extra steps we had to take when planning this trip such as calling ahead to find accessible accommodation and check on accessible attractions. Everywhere that I called was very accommodating and it was easy to find out what I needed to know. The first two days were spent on the Gold Coast visiting Warner Bros Movie World and Sea World. When we arrived at both parks it was easy to find the main office and register as a visitor with disability. Office staff go through personal capabilities, issue you a wrist band detailing which rides you can go on and how much assistance you will need. This eliminates waiting in queues and having to explain your disability at each ride. It also avoids disappointment as I was told up front which rides I could or could not go on, so I could plan my day accordingly.

August/September 2021

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Link to...Travel & Leisure After visiting the parks and going for hand cycle rides on the beach we headed to Brisbane where we stayed with friends. A visit to Australia Zoo was on our list which involved a day trip to the Sunshine Coast to what is a huge and fully accessible zoo. It was reassuring to see more than the usual one or two disability seating options with at least three areas available for wheelchair users, with each having up to four spots. But the best part of our trip was the two nights we spent at O’Reilly’s Rainforest Retreat, set in the World Heritage listed Lamington National Park on the Gold Coast Hinterland. The retreat offers a few different options in accessible accommodation, including accessible camping tents. The campground features 17 powered safari tents, two of them are accessible.

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We chose to stay in one of the fully accessible mountain view rooms, located close to the main house. The front desk gave us a sheet detailing all activities at the retreat with the accessible activities clearly marked and easy to find. One was the animal encounter. For this we sat overlooking a gorgeous view of Green Mountain and heard about a few Australia native animals. I held a snake (yes pictured!) and fed honey to some flying squirrels. The retreat made this experience as inclusive as possible. And since it was outdoors people could come and go as needed during the talk.

We had dinner both nights in the retreat restaurant, which had a set price for a 3-course meal. Staff were helpful and made me feel that me and my chair were no different from any other diners. There are also some beautiful wheelchair accessible hikes that take you further into the national park, with staff more than happy to help with questions or concerns. In the afternoon we went on the wheelchair accessible Tree Top Walk, an amazing walkway construction of suspension bridges that goes through the canopy of the rainforest. On our way back to Sydney, we stopped off at the Gold Coast to celebrate our birthdays at Dracula’s Cabaret, a horror-themed dining experience that was great fun and I was able to appreciate the evening from my own chair. We could not take advantage of the Ghost Train ride to get into the main room, but staff made up for it by having our table set next to the stage. Staff made themselves known to us and made sure we could see the show and order what we needed. I just love it when even somewhere like a haunted cabaret finds a way to be inclusive. I have found that venues geared towards children are more likely to be made accessible so children with disability don’t miss out, but adults with disability are not considered as much. The whole trip was a blast. Between having our car full of the right pillows and accessibility equipment, to the friendly and welcoming people we met on the way, our trip was a huge success. Some parts of our trip were done a little bit differently with more effort and planning to accommodate my disability, but it was a wonderful experience that I would enjoy doing again. I am constantly impressed by Australia’s effort to making as many things as it can accessible. These kinds of trips and experiences are not always possible, but this one certainly ticked all the boxes.

August/September 2021

Link to...Employment

Get on and check out the films

or the 13th consecutive year NOVA Employment presents the Focus on Ability Short Film Festival. This festival asks film makers to ‘Focus on the Ability’ of people with a disability and tell a story on film for the world to view. Film makers are competing for a share in over $100,000 in cash and prizes. Film makers across the globe have again answered the call and there is a wonderful array of talent to showcase. “You would think after 13 years we couldn’t be wowed but each year we are. This year’s films are extraordinary, and we can’t wait to show them to the world,” FOA creative director, Ryan Goodwin said. The international finalists will be available on the NOVA website from August 10 for viewing and voting. The Australian finalists and Australian and New Zealand school finalists following on August 19.

August/September 2021

Each voting period runs for one week with film makers vying for their share in $15,000 worth of prizes for most online votes. “The online voting section of our festival is very much the most exciting time. Last year we were averaging over two votes per minute, and they were coming in from across the globe,” Goodwin said. The Focus on Ability Film Festival is for people of all talent levels with many first-time film makers taking out major prizes. Films are also judged by a professional judging panel who have the unenviable task of trying to choose the winners. The prizes for this festival are truly life changing with ‘money can’t buy’ industry experiences providing winners with unparalleled opportunities. The team at NOVA Employment are also hard at work watching all the films and trying to decide which film in

their opinion best represents the Focus on Ability theme. The winner will drive home in a new Toyota Corolla. NOVA Employment CEO, Martin Wren has already begun checking out the films. “Wow, wow, wow. These films motivate, inspire and truly capture the spirit of the festival and viewers are going to be blown away,” he told Link. Once voting finishes all films will remain on the website and join the over 1,500 other entries from years past. To take part in the excitement visit: www.focusonability.com.au NOVA Employment is a not-forprofit NSW Disability Employment Service and is on pace for a record setting year of placements. If you’re an employer looking for great staff or a person with disability looking for work, get in touch with them today on: (02) 88865800.

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c nt. me www.novaemployment.com.au

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disability

Telstra brings people with into the product testing room

t has been described as the “most real” product testing Telstra has ever done. But for the 20 people living with disability who took part, it was the beginning of something much more significant – a chance to play a personal part in the development of products and services that will help millions of Australians stay in touch with the world. Telstra Digital launched its handson user testing pilot for people with disability from November 2020 to February 2021, with four rounds of ‘live testing’ of various aspects of the My Telstra app on a multitude of platforms and devices. Diversity of experiences was key: the pilot involved people who are blind or have low vision, participants with mobility and dexterity challenges and others with a variety of neurodiverse conditions. There were people who spend little time online and others who connect every hour, using a variety of assistive technologies. And there were people of all ages, genders, jobs and backgrounds. For the facilitators, the pilot represented the beginning of a new era incorporating real customer

August/September 2021

experiences into Telstra’s product development journey – a journey that got fully underway in late April, when a new Telstra Digital team rolled out the first regular monthly user testing program for participants with disabilities. “This testing is significant not only in the context of Telstra, but for corporate Australia as a whole,” said co-founder of accessibility consultancy Intopia, Adem Cifcioglu who facilitated several of the pilot sessions. “The current Web Content Accessibility Guidelines provide a good starting point but testing with real users is the only way to know that the things you’re building actually work for people.” Intopia has supported Telstra’s accessibility work for several years and will continue to recruit participants for the user testing from its renowned Connect database. But from this month, Telstra will be taking over the principal running of the testing itself. Telstra’s commitment is manifested in the allocation of a dedicated team to the project, including a user experience (UX) researcher and an accessibility lead from Telstra Digital, together

with product developers, designers and owners observing the sessions to witness first-hand the challenges and defects identified by participants. As well as insights into specific features, the pilot provided rich foundational knowledge on how best to run this kind of research in-house, including: • Tech setups to follow participants’ on-screen journeys through a multitude of platforms and technologies • Frameworks for developers to pose individual challenges, and for participants to ask specific questions • The best ways to document and share findings. Telstra Digital will run the monthly sessions on specific accessibility targets from now on, taking the program into their user testing schedules – alongside their regular fortnightly testing – for 2022. A cohort of accessibility-focused developers and designers have received early training, and a schedule of priority ‘use cases’ has been drawn up, with the Telstra.com website next in line.

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Myths About Supported Employment Common misconceptions people have about working in an Australian Disability Enterprise Australian Disability Enterprises (ADE) has been around a long time and often referred to as many different things; sheltered workshops, supported employment, factories and more. But as they have evolved into modern social enterprises, many of the misconceptions and myths remain. What is it really like working as a supported employee in an ADE, and what is really involved? Myth: Supported employees have low skill sets and are not able to perform tasks that would allow them opportunities in the general community. Fact: Many employees are highly skilled and have spent years honing their skills in sorting, packing, quality checking, heat sealing and even pasteurising food products.

www.barkuma.com.au

We’re Hiring! We’re looking for some new people to join our production teams. Barkuma has two commercial businesses in South Australia that offer Supported Employment.

Myth: Supported employees are slow and take a long time to learn new tasks. Fact: Most staff are dedicated, love attending work and work exceptionally well as a team. Many employees are able to work autonomously and even assist with training of new employees.

Production workers

Myth: Supported employees don’t get opportunities to learn new skills. Fact: A good workplace prioritises regular training and skill development. Employees should have skill development plans and opportunities to try new roles, learn new tasks and be supported to move into open employment if they choose.

superannuation and

Myth: Supported employees don’t get flexibility in days and hours of work. Fact: Supported employees have choices in days and hours of work and are covered under an enterprise agreement.

are valued employees of Barkuma. You will receive a wage, flexible hours, leave entitlements, other benefits. You will do meaningful tasks and receive training to help you reach your employment goals.

Myth: If you work in an ADE you cannot move to open employment. Fact: Supported employees are able to set goals to move to open employment. Managers will actively support people to link to a DES provider to assist with transition to open employment supports. Make your own mind up. Hear what supported employees have to say by scanning the QR code below or book a tour at: barkuma@barkuma.com.au

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APPLY NOW 08 8414 7100 barkuma@barkuma.com.au

www.barkuma.com.au Barkuma.com.au

August/September 2021

Link to...Employment

SA Group employee Jim

role model

A on and off the court A

lready wearing his state colours with pride, SA Group Enterprises employee Jim took his game to the next level by hitting the courts of the annual Ivor Burge Basketball Championship as captain of one of two South Australian teams. Jim, who is part of the company’s team at the Lonsdale site in South Australia, said he was thrilled with the honour of leading his side throughout the tournament held in Mackay in Queensland. “It made me feel really good, it was my first-time being captain and I enjoyed taking on the responsibility of that role and trying to look out for everyone,” Jim said. “I looked after them and told them what to do on

August/September 2021

court and tried to be a role model on and off the court.” Run in conjunction with the Under-20s National Championship in May, the Ivor Burge is the Australian championship for athletes with an intellectual disability and named after one of the founding fathers of the game in Australia. Proudly independent, Jim is always keen to make the most of his opportunities and pursues his passion for basketball during the week as well as donning the boots on the weekend to play football with his beloved Kenilworth Football Club. “I’ve done state basketball for a few years since I was 13 or 14, it has been a really great honour to achieve a high

level. I enjoy teamwork, I like to keep fit and making new friends, meeting new people and going to new places but also trying to improve my skills.” While results didn’t fall the way of Jim and his teammates in SA Blue, they were still courtside to cheer on the SA Red team which triumphed in the gold medal match, making it three in a row for that side. And Jim loved the whole tournament experience. “Mackay has great scenery, and we did some sight-seeing and I had family up there who came to support me and watch me play. I am looking forward to more tournaments, next year is in Mackay again so I’ll be training for that, as well as practicing on my own to improve,” he said.

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Creating life-long friendships, while developing new skills and working in a team environment, is something we all aim for. At SA Group Enterprises we deliver it.

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Contact us today to find out how you can join our team. P. (08) 7231 4999 E. recruitment@sage.org.au W. sage.org.au www.sage.org.au August/September 2021

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Braille House launches national literary competition

he Dickinson Memorial Literary Competition for 2021 is open with entries invited from children and adults who are blind or have low vision, with ‘Growing’ the theme for its 100th year. Pen a short story or poem and be in the running to win cash prizes. There is also a special ‘People’s Choice’ award that will be open to anyone, including those who are sighted, and all entries in this category will be published on the Braille House website with the audience choosing the winner. Entry is $10 per category and there are six categories for all ages to enter. Prize money is awarded in every category: $350 first prize per category and $150 second prize per category. The categories are: • Adult Short Story • Adult Poem/Song Lyrics/Limerick • Adult Article/Opinion e.g.: self- reflection, blog

• Senior Student Creative Category, e.g: story, poem, song lyrics, limerick, blog, • Junior Student Creative Category, e.g: story, poem, song lyrics, limerick, blog • People’s Choice Category – Short Story. Manuscripts must be an unpublished work, not on offer for publication before the announcement of the awards and not recognised in any other competition. Entries close August 30, 2021, and can be submitted in hard copy Braille, Simbraille or Duxbury-readable file or in a word document. This unique competition has a proud history of showcasing the work of blind and low vision writers to a broader audience and has provided a platform for these people to tell their amazing stories. To enter go to: www.braillehouse. org.au/dickinson-2021/

ATSA Expo New Product Awards

here were more than 30 entries from the Melbourne and Perth Expos for this award event and for the first time there were two winners, the Trivida Wheelchair Wheel and the Rove Wheelchair. All exhibitors were asked to vote. Accepting their award were from left, Trivida director Ursula Pflaumbaum, Indigo Australasia CEO Steve Glew, Trivida managing director Dieter Pflaumbaum and Trivida sales manager Sheryl Swarbrick. The finalist included: Billy Footwear High Top (EveryHuman); Krabat Pirat (Medix 21); The Handi Joystick; Tilt In Space Rehab Shower Commode (K Care); Panthera ReTyre Traction (Motum) and Sara Flex (Rehab Hire).

August/September 2021

Join MS in Sugar Free September month

uscular Dystrophy NSW’s (MDNSW) Sugar Free September 2021 challenge has teamed up with Able Foods. Cofounded by Paralympian Dylan Alcott, Able Foods is a disability-led, profit for purpose start-up offering readymade meals for people of all abilities. The event invites participants to cut out refined and added sugar for the month to raise awareness and funds to help support people living with MS. Those who sign up receive a discount on Able Food’s snacks and meals, and the chance to win a month’s supply of meals free. Challengers will be supported by Sugar Free September and its partners with advice from Nutrition Australia, a free fitness program from Peaches Pilates, daily tips and inspiration and Able Foods meals. All funds raised will go towards MDNSW programs and services that include camps, retreats and online peer support programs. For information, registrations and donations go to: www. sugarfreeseptember.org.au

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Sunshine Butterflies receive fundraising fundraising boost boost

Archibald success for Studio A

rtists from Studio A were finalists in Australia’s most prestigious and oldest art prizes, the Archibald and Sulman Prize. Victoria Atkinson and Thom Roberts were selected to exhibit in the Archibald’s 100-year anniversary. For her entry into the Archibald, Victoria painted the Federal Member for North Sydney, Trent Zimmerman. Titled, ‘Trent mango tree all the colours of the rainbow Trent,’ the portrait exhibits Victoria’s characteristic use of bright, bold colours to capture “rainbow love”. Thom, one of the studios founding artists, painted his good friend, Studio A chair and founder of the Arts Law Centre of Australia, Shane Simpson. They have forged a strong bond over the years through their mutual love of art. A Portriff of Adam is the result of this friendship. “I wanted to do a portriff of Adam on a great big canvas. He’s like my big brother,” Thom said, who loves painting on a large scale. Asked why he called the portrait ‘a portriff’, he said: “I do it Thom’s way”. Studio A, the only supported studio for professional artists with intellectual disability in NSW, was established in 2010.

unshine Coast Queensland charity Sunshine Butterflies recently launched a fundraising campaign to help expand their fiveacre ‘Our Backyard’ facility onto the 10-acre property next door.

Two days into their campaign it received a $20,000 donation from Lift Brands Asia Pacific, part of the global Lift Brand wellness franchise organisation. The Sunshine Butterflies community development team spent an afternoon with over 300 staff from the Lift Brands APAC network, participating as ONETEAM in their annual team building summit. “We have partnered with Sunshine Butterflies for over three years now and raised $45,000,” Lift Brands APAC CEO, Chris Caldwell said. Sunshine Butterflies founder and CEO Leanne Walsh thanked the Lift Brands APAC team and Chris Caldwell for their, “incredible generosity towards a life changing project for people living with disability and their families”. The expansion will help Sunshine Butterflies provide more programs, services and activities for those living with disability as well as expand their inclusive facility and provide smallscale, residential supported homes.

First Nations Artist to head Arts Activated

J. Norman, one of Australia’s most intriguing creative forces has been announced as the opening keynote speaker at the Arts Activated 2021 conference, Australia’s leading arts and disability forum, that is taking place on August 9 & 23. The final program includes a mix of 14 virtual and live sessions featuring over 80 artists, arts workers, disability advocates and researchers from across Australia and around the world with over 70 per cent identifying as people with disability.

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S.J. who has an 18-year internationally celebrated career as a cross-disciplinary artist and writer will headline the conference which this year is focused on ensuring the post-Covid recovery of Australia’s arts and cultural sector is inclusive of arts practitioners and audiences with disability or who are d/Deaf. Delegates can join online at WSU and UTS in Sydney. Register at: www.aarts.net.au/ news/acclaimed-first-nations-artist-s-jnorman-heads-ups-final-program-forarts-activated-2021-conference/

August/September 2021

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What’s ON August / September / October 2021

August 9 & 23 Arts Activated 2021 Conference

Australia’s leading arts and disability forum is now an all-virtual event with 14 sessions including a keynote from S. J. Norman, one of Australia’s most intriguing creative forces. The conference portal will continue to support the delivery of all relevant content and as well as the participation of all programmed speakers. It features over 80 artists, arts workers, disability advocates and researchers from across Australia and around the world with over 70 per cent identifying as people with disability. For details go to: www.aarts.net.au

September 3 FARA GALA

The Friedreich Ataxia Research Association is holding its gala dinner at Doltone House, Hyde Park, Sydney, to raise funds to support research into the treatment and cure for FA. Join the John Field band and participate in a silent auction to win some great prizes To purchase tickets visit: www.events.humanitix.com/ fara-gala-sydney-2021

September 9 RUOK?Day

Suicide is a major public health concern and a public health priority. R U OK? Day is intended to help prevent suicide by encouraging and empowering Australians to reach out to friends and family who might be experiencing personal difficulties. To access resources for fund raising and events or get involved, share the message and learn how to ask at: www.ruok.org.au/join-r-u-ok-day #aretheyreallyOK #ruok #ruokday or www.ruok.org.au

September 9 The Business Disability Awards of Australia

This event recognises and rewards businesses that ensure they have an inclusive workplace. Awards categories include Social Inclusion, Outstanding Employer, Employee and Volunteer, Innovation & success, Business Engagement, Indigenous Champion, Elise Flanagan Aim High Scholarship and Judy Antonio Memorial Award. It will be held at The Good Shed, Toowoomba. For more details visit: www.tbda.net.au

August/September 2021

September 17-18 Sydney Disability Expo

The My Future, My Choice Sydney Disability Expo is an informative one-stop shop for products and services for people with disability, with all-ages entertainment, live performances, workshops and demonstrations. The expo will be held at Exhibition Hall 4, Sydney Olympic Park. Entry is free for all attendees. To register visit: Sydney Disability Expo

September 23 Youngcare Giving Day

This 24-hour fundraising marathon hopes to raise $500,000 to support young people physical disabilities. Help by volunteering, donating, forming a team or spreading the word. For details email: fundraising@youngcare.com.au

September 28 Arts Activated Live Vivid Sydney

The Vivid Sydney Festival has been rescheduled to September 17 – October 9. The four free sessions in the Arts Activated program will be held at the Vivid Ideas Exchange, University of Technology Sydney Great Hall, Ultimo, from 10am - 8pm, on September 28. The four sessions will feature artists, academics, advocates and accessibility experts who will explore a range of different topics related to creativity, innovation, career development, access and inclusion. For more details go to: www.touchpoint.eventsair.com/ arts-activated-2021/live-sessions

October 27-28 ATSA Expo Canberra

This exhibition of assistive technologies and lifestyle services for people with disability, carers, allied health professionals and consumers will be held at Exhibition Park, Canberra. There is a diverse seminar program with presentations from the NDIS Quality and Safety Commission, the Therapeutic Goods Administration and an OT panel discussion. Entry to the expo is free and those who pre-register can reserve seats at the seminar sessions. For details email: info@interpoint.com.au linkonline.com.au

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We want to help every Australian build a connected future, including those who have difficulty using a standard home phone.

Telstra’s Disability Equipment Program offers a range of solutions to support customers who are older or have a disability. Visit telstra.com/disability, or call our Hotline 1800 068 424 (Voice), 133 677 (TTY).

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August/September 2021

Local Disability Guide

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Link Disability Magazine August 2021

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