October/November 2021 | Volume 31 Issue 5 linkonline.com.au $9.95AUD / $11.50NZ
ERIC BROWN
Getting his life back on track In this issue:
Pharmacy and disability working together – A new exercise trainer put to the test – Special Feature - Mobility
24-25 NOV 2021 EXHIBITION PARK IN CANBERRA (EPIC) Corner of Flemington Rd and Northbourne Ave, Mitchell, ACT
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Inside
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From the Editor
06-07
Cover Story – Eric Brown getting his life back
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14
14-15
Pharmacy working at the coalface of disability
20-21
What’s next? Two Paralympians post-Games plans
34-49
Special Feature – Mobility
20
35
50-53
Travel & Leisure
54-61
Accommodation & Home Support
62-65
Employment
50
60
69-70
What’s On & Book Giveaways
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Publisher
Simon Cooper
Editor
Kymberly Martin kymberly@intermedia.com.au
Contributor
Caitlin Maynard maynardcaitlin@gmail.com
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Michelle Stevens mstevens@intermedia.com.au 0419 822 717
Design
Sarah Vella
Prepress
Tony Willson
Production Manager Jacqui Cooper
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From the Editor Eric Brown went from being ‘on top of the world’ to a deep depression. In our cover story he tells us how he turned his life around, rediscovered his competitive drive and his work in Youth Justice. Covid has taken pharmacists into the vaccination spotlight and not before time. Read how pharmacist Dr Manya Angley has pioneered new roles for the profession and why pharmacists can make a greater contribution to the disability sector. I admit to a connection here as I did my cadetship on a pharmacy publication and that ‘willingness to serve’ was evident, and to some extent undervalued, even 30 years ago. And for something completely different, and a first for Link, Caitlin Maynard was given the task of a product review, putting new exercise equipment to the test! Also in this issue is the first in a series of articles from Assistive
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Technology Suppliers Australia (ATSA), and the growing contribution AT is delivering to the disability sector. We have two book giveaways. Fran Connelly, author of Workplace Culture & The NDIS, said disability support workers have been the forgotten essential workforce during Covid, but pressures on them began long before the pandemic. In our other giveaway, award winning writer Natalie Scott has just written her 12th book at aged 93, Wobbly Truths & Other Stories, adding to her collection of books for children, non-fiction and audio books. She has just completed her third novel and a further collection of short stories that will be published in 2022. Kymberly Martin | Editor kymberly@intermedia.com.au
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Eric Brown had ambitions, but a sporting injury brought these to a halt Eric Brown is a Yuin, Gundungarra man born and raised in La Perouse, Sydney in the local Aboriginal mission with his mother and three siblings. He witnessed domestic violence in the streets, alcohol abuse, exposure to heroin users and overdoses, and watched peers entering and reentering custody. “Luckily, I had a mother who was extremely caring who made sure I attended school, participated in football and stayed out of trouble,” he said.
“As I went in to get under the ribs of the other player, he stepped slightly, lifted his leg and copped his knee into the left side of my neck. I was lying there a bit dizzy and realised my arm was not working but thought it was just a stinger. I was walked off the field in a jelly like state not feeling the best.”
He completed his HSC and held various jobs in the construction industry, landing a fulltime role as a water proofer where he stayed for eight years. During this time he played for La Perouse at a local level in South Juniors competition and represented South Sydney Junior Rugby League Club in the Harold Matthews’s cup, SG Ball and Jersey Flegg teams. He joined the Western Suburbs Devils in the Illawarra Carlton League, representing Illawarra Country.
He sat on the bench for five minutes waiting for his arm to come back but nothing happened. “I waited another 10 minutes and realised that this was a lot more serious to what I first thought. I was then walked over to the medic table where they tried to settle me and see where I was at but the pain worsened.” Shortly afterwards he was taken to Cairns hospital in an ambulance.
An offer to play for Moranbah Miners football club in Mackay, North Queensland came along, and he got full time work in the mining industry earning $150,000 a year. He played in and won his last Grand Final with the club that year and, in his words, was “on top of the world”. He made long term plans with his brother to buy their first home. On October 16, 2011, while playing in the Aboriginal knockout Rugby League competition in Cairns, when five minutes into the second half, the other team scored a try. “They were screaming and celebrating in our faces, and anyone who knows me, knew this would piss me off,” he said. “The trainer asked me to come off for five minutes for a rest and I told him I was going to smash the next guy that runs it before I came off and proceeded to the kick-off. In a tackle that I’ve done off the kick, over and over again, everything went right for it to go wrong.
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Reflecting on this time Brown recalled not feeling too bad after receiving morphine for the pain, however, as time went on the pain set in, describing it “like someone was trying to pull my skeleton out of my body”, with throbbing pain from the tip of his toes to the tips of his fingers, and into his head. “After being administered the largest amount of morphine possible I was able to fall asleep but when I woke up the next day my body was stiff as a board, and I struggled to move.” As a result of a blood build up between his spinal cord and vertebrae his body had shut off for a short time. “I thought to myself what the f… have I done here”. Because doctors were unable to treat his type of injury, but only manage the pain, Brown was transferred by the Royal Flying Doctor Service to Royal North Shore hospital in Sydney where he stayed for four months being monitored with concerns about meningitis. He had sustained a brachial plexus injury, tearing the C5, C6 and C7 nerve roots completely out
of his spinal cord which ran his left arm, leaving the arm completely dead. After four surgeries including a nerve graft, with muscle moved from his forearm to his bicep, stem cell treatment and his wrist surgically fused in place, he has regained limited use of his left arm. However, he has been left without tri-cep muscle function, no peck muscle and or muscle function to open his left hand.
Australia in Minnesota Vikings stadium granite games and Canada in the 2021 seasons against the top 12 in his division, although, due to the current Covid situation travelling overseas is uncertain at this stage.
But it was following discharge from hospital when reality hit. He was living with his mother in La Perouse, without a job, and told by doctors be would never play football again and with the use of only one arm, his future looked uncertain. And with this uncertainty came a deep depression.
Brown has been a caseworker with Youth Justice since 2016 in an Aboriginal Practice Officer role teaching Aboriginal and non-Aboriginal staff how to work, with and develop practice and programs for young people with high needs in the justice system.
He admitted that while not reaching a point where he wanted to hurt himself, he was down there. “I began drinking every day, taking whatever drugs I could get my hands on, and doctor-shopping to get as much of the drugs to help relieve the mental and physical pain I was going through.” This drug and alcohol addiction went on for two years.
“I love helping our young people stay out of custody and getting them on the right track delivering cultural interventions and programs in custody on a weekly basis.I can also be a role model in my chosen sport to compete in a worldwide CrossFit competition,” he said.
In 2014 he rediscovered his competitive drive and started training at CrossFit Kia Kaha gym losing over 20 kg. Fast forward to 2019, and he is a member of CrossFit Inventive in Caringbah, Sydney, and recently competed in the WheelWOD open worldwide, the equivalent of the CrossFit Games but for adaptive athletes. He was placed eighth in a top 12 finish out of 40 athletes worldwide and invited to represent
“This is a big achievement for me, not as the only Australian in my division, but the first Aboriginal man to compete at this level in Crossfit,” he said.
“I now have a family of seven, a proud partner and father to five young boys, aged from 15months to 14 years, including 6-year-old twin boys.”
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A Covid Q&A for children The coronavirus impacts the lives of children and young people as much as it does adults. It is important to make time and space for children to ask questions about the virus and to have those questions answered. Here are some common questions and a social story to share with your child. By Olivia Karaolis Can I catch it? Yes, you can catch the virus, just like you can catch the flu and other germs, through the air or by touching something with the virus on it and then touching your mouth or rubbing your nose or eyes. What can I do? The best protection you have is to wear a mask, stay home during an outbreak, keep 1.5 meters away from other people and wash your hands. Make sure you give your hands a good wash (count to 20).
Image by Won-Bhin Karaolis What is the coronavirus? The coronavirus is a new germ that makes you feel sick. All illnesses start with a germ, just like the flu or a tummy bug. Some people feel hot, or have a sore throat, they may sneeze and have a cough, Some people lose their sense of smell. The virus can make you feel a little bit sick and for some people they may feel very sick. How does it spread? The coronavirus spreads like other colds and flus, through droplets in the air. For example, when someone coughs, sneezes, or even talks, they send out very tiny germs into the air. It can also spread by landing on surfaces, such as doorknobs, desks or pens.
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When will we go back to school? Answer this question as honestly as you can. Explain to your child that they will go back to school when it is safe for the schools to open. Use a calendar to show the length of the lockdown and highlight the date when an announcement will be made about schools opening or staying closed for another period.
Learn more: Read this book with younger children and check in with your children about how they feel. https://www.mindheart.co/descar gables?fbclid=IwAR1Quc7gnKXImf VX8pwxf5QYrmgW4TlTUnlXGb5_ d7BOgrMZ3NKUlGavOBg Dr Olivia Karaolis teaches at Sydney University Faculty of Education and Social Work. She was Adjunct Professor, Faculty of Early Childhood Education, Santa Monica College, California.
Mable is a website where people living with disability can find and connect directly with independent support workers. By joining Mable, you’re able to: Choose your independent support worker from over 10,000 people offering care and support services.
Choose which services you need from the wide range people offer through the website.
Choose when you receive those services so you can fit the support to your schedule.
Choose with confidence knowing all workers have the relevant Police and reference checks.
Scan the QR code to learn more, wvisit w.m able.com. or w mable.com.au
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This Wikipedia volunteer makes sure of his mark! Graham Pearce has made more than 200,000 edits in the 16 years he has been moderating and editing Wikipedia entries. Graham Pearce. (Picture courtesy of Glenda Nikoliv)
It's always fascinating to learn what prompts people to become Wikipedia editors and Graham, who has grown up with technology, claims it's an extension to his love for computers. “Because I am blind, I use screen readers and assistive technology, so I suppose some people may call me a computer geek.” He monitors a lot of articles about Western Australia, such as pages on suburbs and historical events like the 1946 Pilbara Strike. “I know when a school is studying a particular subject because there'll be amendments made in a short time. Sometimes, it's just youngsters who want to alter things when boredom sets in.” As an administrator, Graham has the power to block people if they are persistent offenders. Each edit must be recorded and logged which can be time consuming. He receives no payment for the work he does but has access to the online Wikipedia Library.
He joins an army of volunteers who ensure entries remain correct and up-to-date and is one of just two Wikipedia editors worldwide who is blind. He makes his edits to the online encyclopaedia using the JAWS screen reader which read the content out. The 33-year-old, who also has partial hearing loss in one ear, moved from Perth to Busselton 18 months ago and receives support and services from NDIS provider VisAbility. Graham spends more than four hours a day checking articles, have not been vandalised with misinformation. 10
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Graham also had the opportunity to attend Wikimania, the official annual conference of the Wikimedia Foundation, and has visited Washington DC, Hong Kong and Montreal. “They paid for me and my mother to go to Washington DC, but they have never held one in Australia.” Outside editing Wikipedia, he enjoys listening to music, preferring classical music and hits from the 60s and 70s. He can play piano and it's no surprise to learn that he enjoys computer games. Out of all his edits and checking of Wikipedia sites, is there one more memorable than most? “Early in Wikipedia's history, edits were made to the Sicilian Mafia page, and they later disappeared without a trace. I am sure it was a software bug, but my imagination would run wild, could it have been Mafia members themselves at work? I'd like to think so!”
“I’ve found my love of art again.” Tim’s story.
NEWS
Tim Rapley is a skin art tattooist, marrying his love of art and design. He had been running his own sign-making business, but the work was physically taxing and exacerbated his back issues. Unable to continue, Tim met with MatchWorks Bundaberg employment consultant, Heidie Grimson. “Tim was already an accomplished tattoo graphic design artist, and wanted to become a skin art tattooist,” Heidie said. “We were able to provide Tim with funding to purchase a tattoo kit, complete the relevant checks and support him through the required course – infection prevention for skin penetration treatments and once completed, he commenced tattooing in store.” But it was not all smooth sailing. Close skin contact triggered an unresolved trauma and
Tim was referred to the MatchWorks Health and Wellbeing team for support. He was provided with regular sessions with a psychologist, goal setting, coping strategies for his trauma and a workable plan to tattoo again. “This support had a positive impact and Tim was able to realise his dream and recommence tattooing a few months later,” Heidie said. “MatchWorks has been unbelievable,” Tim said. “I hadn’t had solid employment since hurting my back and no other job agency recognised my disability. Having employers who understand the things that I can and can’t do makes a big difference.”
Connect today, change tomorrow. LET’S WORK TOGETHER TO FIND A JOB Is a health condition, injury or disability impacting your ability to work? At MatchWorks, we believe you can overcome any obstacle. When you choose MatchWorks as your Disability Employment Services provider, we work with you to find and reach your job goals. Together, we’ll get you working. P: 1300 13 23 63 W: matchworks.com.au E: info@matchworks.com.au
www.matchworks.com.au
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Adena turned a holiday daydream into a reality with independent support When 36-year-old Victorian mum of two Adena booked a holiday to the Gold Coast, the whole family had a fantastic time because, with support, she said they “got to have a proper holiday”. “My hubby was able to have good fun with the kids without having to worry about me, which meant so much.” When selecting her Gold Coast support team, Adena was eager to find people who were up for an adventure. “During each interview, I asked them if they liked going on roller coasters because it’s important to find support workers who fit with the activities you and your family are looking to do. And I always want someone who cares and isn’t just doing it for a job,” she said.
Adena uses the Mable website to connect with independent support workers for her daily needs at home in Melbourne. For the holiday arrangements, she was able to reach out to local support workers on the website, have a meetand-greet through Mable’s video chat feature and choose two support workers to work with during her stay. Living with Motor neurone disease means Adena uses a wheelchair and needs support around mobility, showering, bed transfers and other daily essentials. One of the first considerations in booking the holiday was to ensure that accommodation and all attractions the family visited were wheelchair accessible. As the family flew to Queensland, it was necessary to rent bulky items including a shower chair, hoist and over-toilet frame. Adena also hired a lift chair so she didn’t have to remain in her wheelchair at the apartment. The Gold Coast support workers fed and dressed her as well as helping the family out and about, and also helped to keep the apartment tidy. 12
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The family visited three major theme parks and Adena got her ‘adrenalin rush’ from the Superman ride at Movie World. Fun days on the beach, dining out and visiting the Marketta night market all added up to “the best holiday ever” for Adena’s family.
If this inspired you to think about arranging a getaway, or simply having more choice over who supports you, join Mable.com.au today and start connecting with over 11,000 independent support workers across Australia.
The My Future, My Choice Brisbane Disability Expo is coming to town
NEWS
The Brisbane Disability Expo is a one-stop-shop for innovative programs, services, aids, disability equipment and technologies.. “We intentionally work with representatives from the local disability community to ensure that the expo offers real, meaningful solutions and increases inclusion for all people in their community,” Disability Expo and Social Impact Institute senior advisor, Kathryn Carey said. "Businesses are responding with better and more innovative offerings,” she said. “People with disability are demanding to see, feel, touch and road test equipment, products and aids before purchasing. They are hungry for the greater choice and control promised by the introduction of NDIS,” she said. The expo will feature all-ages entertainment, live performances, workshops and demonstrations.
“I found it very inspirational to go to the stands as I needed to see and talk to people faceto-face. Everyone I spoke to went beyond my expectations and I appreciated them going that extra mile,” a recent expo attendee said. The Expo is on at the Royal International Convention Centre, from October 15-16. Entry is FREE for attendees. Register online for fast access on the day and follow the Brisbane Disability Expo Facebook page for regular updates.
WE CAN’T WAIT TO SEE YOU FACE TO FACE! The Brisbane Disability Expo is Back! The unique expo format, providing a one-stop shop for those who are on the hunt for information, products and services for people with disability and their carers, is back in a COVIDsafe way. The practices we have all become familiar with – physical distancing, hand washing, extra cleaning, crowd management, health questionnaires and contact tracing - will all form part of the COVIDsafe practices you can expect to see at this years Brisbane Disability Expos. “People come to expos to find out how to utilise their funding to enhance their lives in meaningful and practical ways,” says ImpactInstitute Senior Advisor Kathryn Carey. “At the Expos it’s all here in the one place and you can ask real questions from real people in real time.” “I found it very inspirational to go to the stands. Absolutely fantastic and informative. I needed to see and talk to the people, I needed to talk face to face. Everyone I saw has gone beyond my expectations... and I am so appreciative of them for going that extra mile.” Expo attendee
Entry is FREE for all attendees! Register Online Now brisbanedisabilityexpo.com.au www.brisba nedisabilityexpo.com.au
FRI 15TH & SAT 16TH
OCT 2021 9AM - 3PM
ROYAL INTERNATIONAL CONVENTION CENTRE
FEATURING singer & entertainer
Renee
McAlpin
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A pharmacist making a difference for people with disability Dr Manya Angley took out the 2021 AACP MIMS Consultant Pharmacist of the Year for her medication safety advocacy for people living with disability and testified at the Royal Commission into Exploitation with Disability on inappropriate use of medicines. She spoke to Kymberly Martin about why pharmacy should have a greater role in the disability sector.
Since leaving academia in 2010 where her interest included transitions of care and disability, Manya Angley has pioneered new roles for pharmacists, including activities on improving medication management services to people with cognitive disability. According to Angley, people with intellectual and developmental disability experience stark mental and physical health disadvantage 14
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compared to the general population. “Medicines are the most powerful intervention used in health care and pharmacists are well positioned to improve overall health by ensuring the Quality Use of Medicines (QUM)”, she said. “Inappropriate medicine use, especially psychotropics, is a problem concerning both the health and disability sectors, and interdisciplinary collaboration is required to address it.”
NEWS
She said there is clearly a bigger role for pharmacy in supporting Disability Providers with respect to medication management. “QUM pharmacists are funded to provide services to aged care facilities, but an equivalent service is not funded for Disability Service Providers or Group Homes, and this should be urgently addressed. The is also a clear need for consultant pharmacists working with behaviour support practitioners in a supervisory role with respect to compiling a best possible medication history and identifying chemical restraint when preparing Behaviour Support Plans.” When it comes to caring for people with disability, it is a major issue that pharmacists are unable to register as NDIS providers. “Existing medication management services require a referral from a GP or medical specialist which is a barrier and prescribers often don’t recognise the potential benefits of the service and medication management is not a priority. Vaccine hesitancy, particularly among family and carers of people on the autism spectrum, is particularly problematic with respect to Covid-19,” she said. Covid is presenting challenges to everyone including pharmacists especially when it comes to medication management services, which during lockdowns are being delivered via telehealth. With Covid vaccinations now being administered by vaccinating pharmacists, for some community pharmacies it means greater access opportunities, especially in rural and remote locations.
“People with cognitive disability may prefer to be vaccinated at their local community pharmacy especially if the pharmacy is closer to their home, or they have a preexisting relationship with the pharmacist and the environment is familiar and less likely to cause sensory overload.” Consultant pharmacists might shy away from working in the disability sector, because they don’t feel adequately trained or lack confidence, and find the work time consuming
and remuneration does not match the effort required. “My experience working in the sector is that it is equally challenging and rewarding. The key role pharmacists can play in the healthcare of these Australians needs to be clearly defined and resourced accordingly.” Angley grew up in outback New South Wales where she was involved in the care of her sister who had Down syndrome, dying prematurely aged 46. Her 24-year-old son Will has autism, intellectual disability, epilepsy and is non-verbal. She said coordinating care and services for her son and late sister has enabled her to identify significant gaps in care necessary to navigate a complex health system. She said Australia’s obligation to ensure people with disability experience receive the same “range, quality, and standard” of health care as the general population, is far from being realised. “This issue fires my passion to make a difference where I can.” linkonline.com.au
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Disability Gateway - a passionate Piper The Disability Gateway is a relatively new website and phone line that connects people with information, support and services for areas of life such as employment, education, aids and equipment and money. One of the first calls Piper received was from a distressed woman in her 60s, who was concerned about the future of herself and her husband after they both experienced falls within weeks of each other. Her husband had also sustained permanent physical disability from accidents in the last couple of years. “She called us crying and it can be hard to answer the phone to someone who’s obviously already so upset,” Piper said. “We were their first call, which can be good because you know there will be resources they haven’t tried that you can suggest.” Piper connected her to the Victorian Aids and Equipment Program who were able to secure a walking frame for her husband, convert two steps at the front of their home to a ramp for easier access and arrange personal alert devices for them both.
And if there is a need to ring the Gateway, a vibrant and positive Piper is just the sort of person you would want to be on the other end of the phone. Always ready to help, Piper is passionate about most things in her life, and that includes her job as a Community Services consultant with the Gateway. “I like being able to connect to so many different people in a day,” Piper said. “There’s something to be said for long lasting relationships with clients but I think what the Gateway is able to give is a whole lot of connections in a short amount of time. “I could get maybe 20 calls in a day all about different things all about different people. Some callers only want an answer, and they hang up and you can be happy with that while others need to chat.” 16
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According to Piper it was a great outcome. “She contacts me quite often just to let me know how they are going.” To contact the Disability Gateway visit: disabilitygateway.gov.au or call: 1800 643 787. For information in a language other than English, call the Translating and Interpreting Service on: 131 450 and ask to be connected to the Disability Gateway. If you are deaf or have a hearing or speech impairment, call the National Relay Service on: 1800 555 677 and ask to be connected to the Disability Gateway.
The Disability Gateway is here.
The Disability Gateway is here. It’s helping connect people with disability, as well as their families, friends and carers, to the information and services they need. Visit disabilitygateway.gov.au or call 1800 643 787 Monday to Friday, 8am to 8pm AEST/AEDT Authorised by the Australian Government, Canberra.
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Making law about us? Talk to us! On June 3, 2021, the Australian Government introduced the National Disability Insurance Scheme Amendment (Improving Supports for At Risk Participants) Bill 2021 (NDIS Amendment Bill). The NDIS Amendment Bill proposed to change the National Disability Insurance Scheme Act 2013 (Cth) to include recommendations from the Independent Review into circumstances relating to the death of Ann-Marie Smith authored by Alan Roberston QC (the Robertson Review). The NDIS Amendment Act proposed a number of changes including how the National Disability Insurance Agency (NDIA) would share the personal information of NDIS participants, to change the Quality and Safeguards Commissioner’s compliance and enforcement powers and to clarify provider registration provisions. It all sounds fine in theory, but there was uproar from the disability community and Disability Representatives Organisations (DROs). When a Bill is introduced to Parliament, a Parliamentary Committee can review the Bill. The NDIS Amendment Bill was brought before the Senate Standing Committees on Community Affairs on August 2, 2021. Representatives from the disability community and DROs gave evidence to the committee about their concerns. A significant concern brought to the committee was the lack of consultation with the disability community. The government had not spoken with people with disability or the DROs specifically about the NDIS Amendment Bill. It is fundamental that people with disabilities, their families, carers and supporters are consulted when laws and policies are changed. The impact on people with disabilities cannot be assumed and must be brought into the conversation. If they are not consulted, there is a significant risk that what people with disability need to protect and promote, their human rights will not be included. The NDIS Amendment Bill is still before Federal Parliament.
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NEWS
Portable Clotheslines The answer to your client’s needs. Mrs Peggs Handy Lines are Australia’s favourite portable clotheslines and the answer to your client’s laundry needs. A Mrs Peggs Handy Line delivers great value and provides clients with drying options to suit their lifestyle and living space.
likelihood of falls. It is light weight, ultra-strong and easy to carry and folds flat for easy storage.
The portable clotheslines are ideal for anyone who faces laundry days with mobility problems, arthritis or workplace injuries. They have the capacity to dry more than a full wash load without having to use an electric dryer which is a huge saving on power bills. A Handy Line will give client’s confidence to be independent on laundry days. Australians are moving away from the conventional clothesline as they are too hard to reach while hanging clothes and keeping balanced. A Mrs Peggs Handy Line is the best solution for those clients with mobility issues as they are easy to reach and can prevent the
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Department of Veterans’ Affairs
We support the
The Classic Easy 8 is for clients with mobility issues. At 110cm off the ground this portable clothesline allows for easy reach even from a wheelchair. These Handy Lines, which are available in five different sizes and hold Queen size and King size sheets, are delivered fully assembled. Mrs Peggs Handy Lines are Age Care approved, available through a NDIS registered provider and is a provider to the Department of Veterans Affairs through occupational therapists, physios and GPs.
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For further information visit: www.mrspeggs.com.au or call: 1800 111 811 to order.
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NDSP Plan Managers supporting Brodie Smith and Aussie Belles NDSP Plan Managers announced on June 11 they would be an Official Supporter of the Australian Paralympic Team. They have now extended this to also sponsor 23-year-old Aussie Belles Goalball Paralympian Brodie Smith. to a Braille camp she was attending in Sydney as a 15-year-old to give a demonstration. Brodie took part and ‘thought it was quite fun’ and the coach suggested that if she was good enough there would be the option to travel the world. This was all Brodie needed to, as she put it: ‘beg her parents to take her to the next training session,’ and now plays for the love of the sport with travel an added bonus. Talking about her experiences after going from not liking sport to participating in the biggest competition in the world is something she did not take for granted. “I am extremely lucky to have the opportunity to represent myself, Australia and Goalball at such a high level.” The sponsorship from NDSP will help Brodie not just continue to perform at the highest level but also with her studies in Secondary Education at Newcastle University. This aligns with NDSP’s goals of helping people living with disability achieve not just sporting goals but those off the sporting field.
Goldball is played on a court with each team rolling a ball with bells in it. The team at the other end has to stop the ball from reaching their goal. Both teams do this blindfolded. The Tokyo 2020 Paralympic Games were Brodie’s debut Games. She represented Australia in the 2017 World Youth Championships in Budapest, where she led the team to win gold as leading goal scorer for the competition. As a child Brodie, who does not have any peripheral vision, never enjoyed sport but, that all changed when her future youth coach came 20
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While not receiving a medal at this year’s games, they recorded their first win in 25 years, making the quarter finals. An effort NDSP managing director, Don Dickie described as being “supreme and one they can be exceptionally proud of”. After such a great performance, NDSP made a donation to each of the six players in the team . This is the first step on the path to NDSP becoming long term sponsors of the Belles in the future. The opportunity came about through conversations with Aussie Belles assistant coach, Simon Smith and NDSP’s recent partnership with Disability Sports Australia. Don Dickie hopes this sponsorship will help the current team further improve and inspire future generations of Goalball players.
Our most successful Paralympics with 80 medals including 20 gold. Among the highlights were Madison de Rozario winning gold in the marathon, Dylan Alcott collecting his fourth gold in the wheelchair tennis, Matt Levy winning a silver in swimming and Darren Hicks a silver for the individual pursuit.
Paralympian sprinter has bob sledding in his sights T38 Paralympian sprinter, Evan O’Hanlon has won five gold, one silver and just added a bronze to his medal tally at the Tokyo Paralympics. However, he told Link, it would probably be his last Paralympic Games, but he is already preparing for another Games, the Beijing Winter Olympics in 2022. He will be the first person with cerebral palsy to go to the Winter Olympics and the first athlete from the Paralympics to go to the Olympics in a different sport or new sport, piloting the Australian bobsleigh team. O’Hanlon welcomed the recent decision by the government to pay Paralympians for the first time. “It’s a good step forward for all competitors and legitimises the Paralympics to the Australian public. It also helps us move ahead in terms of sponsorships and getting in front of more people.” And, with nearly everyone in lockdown, the TV coverage “captured more eyeballs”, he said. “This year people had the opportunity to give it go and maybe fall in love with the Paralympics!” According to O’Hanlon one of the biggest issues around the event is getting the local media to understand how the Paralympics work.
“In the UK for example, when an article is written they have it nailed and can explain it in simple terms. I think the Australian public looks at the Paralympics and ask: “what is going on? There is a different clarification for every Paralympic sport and it can be difficult for people to get their head around it. I compete with someone with CP but there are eight difference classes from the most severe to least severe.” linkonline.com.au
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Link to...NDIS
A giant leap…transitioning from school to what’s next Finishing school can be a challenging life phase, especially with a disability or learning difficulty. Knowing your options and potential pathways for your child or student can seem overwhelming, or at the other extreme, limited. Barkuma’s Transition Program supports young people and their families through this period to ensure they have the best possible chance for the future. “I didn't think school was for me and I wasn’t even going to complete year 12. Thankfully my school knew there was a way I could get through, and make sure I was supported through the process,” - Harrison, Transition Program Graduate. The 12-month program is designed to assist final year students with disability and learning difficulties make the smooth transition from school to future pathways. Through structured learning, skill development, accredited training and work placement opportunities, students are offered ongoing support to find and keep a job. Students attend Barkuma one day a week in Terms 1 and 2, building practical employment skills and career development. In Term 3, they
start accredited training through TAFE SA or private registered training organisations in Retail or Hospitality. In the final term, students complete their vocational qualification gaining credits towards SACE and undertake work experience. After graduating, students are supported to transition to an Employment Pathway, either through School Leaver Employment Supports (SLES) or Disability Employment Services (DES). “Confidence gives a student a direction and purpose in life. Barkuma has been able to make students feel good about themselves, and value themselves,” - Kevin Woolford, St Michaels College. Expressions of Interest for 2022 are open now. visit: https://www.barkuma.com.au/thetransition-program/ or call: (08) 8414 7100
Transition Program Enrolments Open for 2022 The Transition Program is a 12 month program designed to assist final year students with disabilities and learning difficulties to make the smooth transition from school to future pathways. Through structured learning, skill development, accredited training and work placement opportunities, students are offered ongoing support to find and keep a job. The Transition Program supports students and their family through a challenging life phase and ensures the best possible chance for the future. Enrol now for 2022 08 8414 7100
barkuma@barkuma.com.au
Barkuma.com.au www.barkuma.com.au
Proudly supporting South Australians since 1967
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Support is here: Free legal support to safely share your story
Do you have disability? Has someone hurt you, treated you badly or taken advantage of you?
Are you a person living with disability? Have you experienced problems because of your disability, such as trouble with the police, NDIS, child protection or accessing the right services? The Disability Royal Commission wants to hear about the experiences of people with disability, their family, friends, carers and advocates, to help promote a more inclusive, just society. Senior solicitor Sifa Mtango said the Disability Royal Commission has been granted an extension until September 2023. “So there is more time for people with disability and their supporters to share their stories,” Mtango said. There are many things Your Story can help with, and you might talk to Your Story if: • you worry about your safety, access to services or employment • you want to keep your story private • you want to name a person or organisation who hurt or mistreated you • you signed a document that said you can’t talk about what happened • you have ongoing legal proceedings.
Free, independent, confidential counselling and advocacy support is available.
If you are Aboriginal and/or Torres Strait Islander, Your Story can provide Aboriginal legal services to support you to share your story in a culturally safe way. If you need an interpreter,
1800 421 468
Call the National Counselling and Referral Service on
Your Story can arrange one for you for free. Your Story strives to be inclusive and accessible and reduce barriers to both the service and the Disability Royal Commission. “We understand people with disability and their supporters may be facing additional challenges and barriers to services during Covid,” Mtango said.
For more information visit http://dss.gov.au/disability-royal-commission-support dss.gov.au/disability-royalhttp://dss.gov.au/disability-royal-commission-support commission-support Support is here for you. NDAP
National Disability Advocacy Program
Link to...NDIS
“I feel like clean hands are key to maintaining a healthy bladder.” Samantha, who has a spinal cord injury, shares her story on her acceptance of self-catheterising and the importance of a hygienic routine. Due to her spinal cord injury, Samantha lost her bladder control and needed to start using a catheter. To leave rehab and resume life, she had to learn to self-catheterise. “I remember not wanting to do it, thinking this isn’t fair. I shouldn’t be doing this, but I ended up doing it to get out of rehab, because I thought by going home, everything was going to go back to normal.” Being paralysed and bound to a wheelchair can be challenging enough, so needing to use a catheter on top of all the other changes the body is going through, can be frightening. Samantha chose a different outlook on intermittent catheterising and considers it “one more thing that comes with life”. “You have to realise this is how it's going to be, and the healthiest thing you can do for yourself.” One thing she learnt early on is how important her hygiene routine must be. “I feel like clean hands are key to maintaining a healthy bladder.” The harmful effects of urinary tract infections (UTIs) are a common issue for many catheter users. Maintaining good hygiene is essential with intermittent catheterisation to limit the risk
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of getting a UTI, as 41 per cent of all users of intermittent catheters find UTIs a daily concern If you have worries or feel uncertain about how to reduce your risk of UTIs, you’re not alone. With many users experiencing two or more UTIs every year, they represent a significant source of concern, but practical steps can reduce the risk. In a study comparing the SpeediCath hydrophilic coated intermittent catheter with an uncoated intermittent catheter, those using SpeediCath had a 21 per cent reduction of UTIs and twice as many in the SpeediCath group were completely UTI free SpeediCath catheters have one thing in common, they are all designed to fit your needs. Every SpeediCath catheter benefits from being: • Clean and easy to use • Has a 21 per cent reduction in UTIs • Discreet and easy to dispose of • Environmentally friendly. Request your FREE SpeediCath® catheters today! visit: www.coloplast.to/au_speedicath call: 1800 316 650
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Link to...NDIS
Disability stereotyping needs addressing The SBS documentary series, What Does Australia Really Think About Disability paints a clear picture of how stereotypes and misconceptions are still prevalent in our society. Curtin University, Culture and Technology director, Professor Katie Ellis, who was interviewed in the series, spoke to Link. What does the show tell us about what Australians think of disability? What Australians say they think about disability doesn’t match the ways they treat people with disability in real life. The documentary compares survey data where people respond quite positively towards hypothetical people with disability with hidden camera footage of people reacting to real people with disability out in the community. These reactions show us that for many Australians, people with disability are not welcome in the community. How does what we see on TV and in movies impact how we treat people with disability in real life? What we see in the media informs how we relate to people. So, if images of people with disability as tragedy, inspiration, pathetic and unable to participate in the community are constantly reproduced it sends a message about what people with disability are like in real life. These stereotypes can, and do, isolate people with disability as somehow separate from the rest of the community. Because people with disability are underrepresented in the media they are absent. How do tragedy and inspiration dominate the stereotypical representations of disability in the media? Disability is still understood from a medical framework. In 2015 Screen Australia published the findings of a 5-year diversity review of Australian television drama and found only four per cent of almost 2000 main characters on TV drama over five years had a disability. Compare this to 18 per cent of the population with a disability. Most of these representations occurred on shows like Neighbours and Home & Away where storylines focused on inspiration or overcoming. 26
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Why are people with disability generally not represented as a romantic partner on screens? The documentary pointed out the way people with disability are infantalised or treated as perpetual children, contributing to why they are rarely represented as a romantic partner onscreen. How could having more people with disability portrayed as main characters on TV help? By raising visibility and representing the idea that people with disability are part of our community and that stories go beyond inspiration and tragedy. Characters with disability should be like all of us, good bad, right, wrong, strong and weak. What can be done to help people with disability feel more inclusive and better understood? From a media context there are two clear strategies we and the media can take. First, to include people with disability in behind-thescenes roles. Second, to recognise disability as more than a medical problem. What role can social media play? It gives people with disability a chance to control their own narratives; it also allows people with, and without disability, a chance to form communities around topics that interest them or topics that seemingly have nothing to do with disability. And the biggest challenge in your opinion facing people with disability? We talk a lot about making public spaces accessible to people with disability and that is a pressing concern but what this documentary shows is that people’s attitudes towards disability are very disabling, and are in fact the biggest challenge facing people with disability.
NDIS
Imagine What’s Possible – meet five lucky winners! The Endeavour Foundation has been imagining possibilities for people with disability for 70 years, and this year, they dreamed bigger than ever before. The Imagine What’s Possible competition launched in February and dream-makers had their say. Kassidy loves to dance and spend time with her friends. Kassidy’s dream - “Young special needs adults, come one and come all, my dream of ‘what's possible’ is a ball for all in Brisbane Town Hall.” Singing is Zac’s passion and his dream “To start a karaoke business and Glee Club for people with disabilities. We’ll perform shows for kids in hospitals, people in aged care homes.” Carol, listens to Triple J radio station, knows all the words to songs, and writes down her favourite lyrics. Carol’s dream - “My biggest dream is to be a guest presenter on Triple J,
to play my favourite music.” Kristel didn’t get the 1:1 support she needed at school to develop her reading. When she received a reading C-Pen, it opened up a world full of tales. Kristel’s dream – “I would love to give my wish of a C-Pen to every school for reading.” Nicholas is an award-winning member of his local drama group for people with intellectual disability. His favourite genre is comedy. Nicholas’ dream - “To be an extra in a movie.” To see how the winners were surprised with the news, visit the Endeavour Foundation Facebook page. And stay tuned to find out how they make these dreams come true!
Learn, the way you want
Endeavour Foundation is a registered NDIS provider that has been proudly supporting and advocating for people with intellectual disability for 70 years. Learn to cook, try our virtual reality learning programs, be supported in being active, make friends and more at our learning and lifestyle hubs located across Queensland.
Call us today on 1800 112 112 or visit
www. endeavour.com.au to find out more. endeavour.com.au
EF2293.LM.0921
linkonline.com.au
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Link to...NDIS
Emily’s Story from her Dad “As parents who have a child with a disability, there are many emotions you go through when your son or daughter is born with a disability. Sometimes these uncertainties can distract you from the joy of having a beautiful daughter.” I see a pretty young girl who will share many of the same feelings, hopes, interests and dreams that other girls have. She will also face the same challenges with friends, school, socially and at work. She has a unique personality with different likes and dislikes, just like the rest of us. Communication has always been a challenge with Emily. Our communication approach has been multidisciplinary and we have tried everything including sign language, gestures, Picture Exchange (PECS), some basic words, and now an App called Proloquo to Go. To any other parent or carer, I would say never give up, just because one approach doesn’t work never hesitate to try something else as you never know what might work. Our successes came not only from our own knowledge of Emily, but we also partnered with numerous speech therapists, occupational therapists, exercise physiologists and many carers. Everyone needs to be on the same page including schools and support providers to help Emily to be the best person she can be. From our perspective it’s worth investing time to find the right school and supports for any child, and you only get out what you put in. Many of the schools and carers become like extended families, the teachers can be amazing, and you will meet lifelong friends.
"Our beautiful daughter Emily is now a young woman who has just turned 20. Emily is non-verbal and has a dual disability of Down syndrome and autism. When I think about my daughter Emily, I think about her like every other parent. I don’t see someone with a disability, 28
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Schools and your support network play a vital role. Emily started with Lifestart Intervention from newborn to 4 years old. She then attended St Lucy’s Special Catholic School in Wahroonga for her primary years and moved to Giant Steps in Gladesville for high school. She now attends a mix of day programs from Sunnyfield in Dulwich Hill and Adult Services at Giant Steps along with home support workers. Aged appropriate activities and community involvement are also a big part of Emily's family. We had Emily in a learn to swim
NDIS
program when she was a one-year-old. She didn’t swim for many years after, but now it’s something she enjoys and can do unsupervised. Emily also needed over three years to learn to walk but if you saw her walk now you would never know as she loves walking. Both these activities have given Emily a sense of freedom and independence, so always plan for the long game. Get involved, do whatever you can to help, join a disability group or committee, and if a program doesn’t exist you want for your child go set one up like we did for dancing and swimming in our local area which still run today. There are struggles and demands having a child with a disability, it can impact relationships and life is filled with challenges. However, the successes we have is what makes Emily special and we wouldn’t want her to be someone else. We can see how hard she tries with everything, and how frustrated she is when she can’t communicate what she wants from time to time. Emily is a young woman with feelings and emotions she wants to share, so being frustrated occasionally is understandable. Always maintain your own sanity and relationships. Sometimes it can be a struggle and it’s important to remember to put time aside for yourself and your relationships. We took our first holiday without Emily a few years ago after 18 years, it was fantastic, but we should have started doing that many years ago. Don’t wait, just plan for it. Regardless of the challenges, like every child Emily has brought us plenty of love, hugs, happiness and laughter. She has shown us what true love really is and has even started saying a few words from time to time.” Emily’s Dad, John Collins, is one of the founding partners of Plan Manage Assist (PMA), and with other founding partners, Kathleen Collins, John Corrigan and Josephine Proust, have families with disabilities. PMA are passionate about disability and pride themselves as being different from other providers. They have first-hand experience and knowledge as they have been through the journey and understand the frustrations and the challenges you can go through.
Plan Manage Assist NDIS Plan Management Providers Ph: 1300 199 960 Email: enquiries@planmanageassist.com.au www.planmanageassist.com.au
linkonline.com.au
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Link to...NDIS
Client input is number one for NDSP Plan Managers NDSP Plan Managers have always been a client focused organisation and are now taking that to the next level with their client advisory panel. The panel will comprise up to 40 clients who will be active participants in upcoming NDSP Plan Managers projects. NDSP Plan Managers CEO Graham Oades is excited by the new initiative: “This new panel will help us continue our client focused approach and ensure we are meeting the expectations of our clients through a highly collaborative process,” he told Link. The panel aims to give clients critical input into improving upcoming client centric projects NDSP Plan Managers have in their pipeline by having them involved in the project development phase. NDSP also hope that through their participation, the advisory panel will feel they represent and support their fellow NDIS participants and gain a sense of pride and purpose making them an even
more valued and engaged part of the NDIS and NDSP community. The panel will be consulted on a range of upcoming projects including the new app for their online client portal, Nappa. According to NDSP this will help ensure the new app is the best easy-to-use a client centric app on the market and meets all the requirements of their clients by having the end user inform the functionality. All of this will ensure when the app releases in early 2022, it will meet the expectations and needs of their clients from day one. The app is designed to facilitate understanding and generate further interest to use NDSP Plan Managers expertise for plan utilisation and is not designed to replace direct client contact. The panel will also inform certain internal decisions relating to NDSP’s operating procedures to ensure they meet the everchanging requirements of the NDIS. This level of engagement will go a long way to assisting NDSP reach another of their goals of educating their clients and the wider community about the NDIS and improve plan utilisation for participants to achieve their life goals. The panel will ensure the information NDSP supplies to the community is relevant and makes the NDIS clearer and easier to understand for participants, their families, and providers. NDSP Plan Managers hope the panel will help them continue to improve the services they provide to their clients and the community. If you would like to learn more about NDSP Plan Managers and their services, you can contact them on: 1800 63 63 77 or info@ndsp.com.au
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NEWS
Accessible beauty products for all
EveryHuman, the platform for adaptive fashion and footwear with brands like Tommy Hilfiger and Billy Footwear, has launched a range of beauty tools. These inclusive beauty products feature adaptive elements making the products simple, and quick to use. It includes Winged Eyeliner Stamps that allows you to “stamp” the shape on, so all you do is fill in the rest. This is perfect for anyone with reduced dexterity or who struggle with precision. The Makeup Eraser Pen can erase any mistakes, smudges or imperfections on eyeliner, brows, mascara, lipstick or eyeshadow. The Cleanser and Makeup Remover is an all-in-one cleanser
designed with a pump for easy use and dispersion. All makeup products are vegan and cruelty-free with non-toxic ingredients.
Any questions? Contact us at: info@everyhuman.com.au or call on: 02 8437 1799. Find these products and more accessible beauty at: everyhuman.com.au
Wide Fit Shoes Wide fit adaptive shoes are now available for kids and adults! • • • •
Easy on, Easy off Wrap-around zipper design AFO/SMO & Orthotic friendly NDIS eligible products*
everyhuman.com.au
linkonline.com.au
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Link to...ATSA
Before, during and after the Covid-19 pandemic, ATSA looks after you - and the people who look after you, too. Did you know that more than 4.4 million people in Australia experience some form of disability?
Assistive technology (AT) is dramatically improving the health and well-being of Australians facing reduced functionality arising from age, illness or disability every day. AT covers a multitude of products, from mobility aids and therapeutic home health care equipment to vehicle modifications and sophisticated electronic devices. People rely on expert advice and care from a trusted supplier when selecting assistive technology to improve quality of life. In a time of uncertainty, how can AT users feel confident that they are engaging with ethical and competent providers of assistive technology? Australian standards offer broad protection for consumers and legislation continues to evolve to support cutting edge technology and improved safety benchmarks – this is where the peak AT industry organisation steps in to look after the interests of assistive technology suppliers and their clients… Introducing Assistive Technology Suppliers Australia (ATSA) You may have enjoyed attending the ATSA Independent Living Expos held each year in various states of Australia, but did you know that ATSA is also a quiet achiever working tirelessly behind the scenes? Established in 2000 (originally as the Independent 32
October/November 2021
Rehabilitation Suppliers Association - IRSA) by AT users and experts and now also a registered charity, ATSA represents AT supplier members at all levels of government, providing a strong and united voice on behalf of AT suppliers and the AT users who benefit from dealing with knowledgeable and ethical AT businesses. ATSA members are required to abide by the widely respected ATSA Code of Practice and are trusted to provide honest and fair dealings in all aspects of their business and client interactions. Keep an eye out for the ATSA logo when you’re searching for new products and suppliers. How do I find an ATSA member to help source the AT I need? ATSA works with all industry stakeholders to ensure the market for AT is competitive, efficient, viable and appropriately regulated. ATSA strives to improve the quality of AT provision through the education of health care professionals and promoting ethical business practices for the collective mutual benefit and interests of their members and the public. Get in touch with a reputable supplier of AT by viewing the ATSA Member Directory at: https://www.atsa.org.au/find-an-atsaorganisation/
“ATSA are a great organisation that have played a major role in influencing changes in standards and regulations that affect the
ATSA
industry. For a small business, they offer sound advice and high quality mentoring on how to navigate issues that arise in the unique industry” – Magic Mobility. How would my AT business benefit from ATSA membership? ATSA members are businesses of varying sizes who provide AT solutions for people with disabilities, seniors, and their carers, to increase independence and make everyday living easier. They are manufacturers, importers, distributors, prescribers, and suppliers of services including the hiring and maintenance of AT devices. When you become a member, you are supporting the AT industry’s strongest voice to government. ATSA advocates on your behalf and ensures that members benefit from the opportunity to be represented by an organisation with a seat at the table when it matters most: • Join ATSA now for support, guidance, industry contacts and savings • Be heard by government as regulation and policies are drafted • Receive context and insight on how new regulations and policies affect your business • Have access to our trusted network of advisors and suppliers with industry knowledge • Enjoy discounts and priority bookings for exhibition space at the ATSA Independent Living Expos • Enjoy savings from business service providers, including HR and insurance consultants. How do I join ATSA? ATSA has a range of membership tiers to suit your AT business – from sole traders to large multinational companies. Regardless of the size of your operations, ATSA represents your interests and provides advocacy, information and support at an affordable price point. Find out more at: https://www.atsa.org.au/join-atsa/ Or complete the application form at: https://www.atsa.org.au/membershipform/
How can I find out more about ATSA? Simply look at the ATSA website at: https://www.atsa.org.au/ or contact the ATSA team at: info@atsa.org.au phone: (02) 8006 7357 Follow ATSA on LinkedIn: https://www. linkedin.com/company/atsa-assistivetechnology-suppliers-assn-aust/
ATSA Independent Living Expos Despite the challenges Covid-19 has caused in hosting events the ATSA Independent Living Expos, Melbourne and Perth forged ahead, showcasing the latest and best AT to thousands of AT users, with the next Expo scheduled for Canberra on Wednesday 24-Thursday 25 November 2021 at Exhibition Park In Canberra (EPIC). Learn more at: https://www. atsaindependentlivingexpo.com.au/ Plan ahead for the 2022 events in Brisbane 11-12 May 2022 at the RNA Showgrounds and Sydney 25-26 May 2022 at Sydney Olympic Park See you there!
linkonline.com.au
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Mini Over 20 leading global manufacturers trustHybrid APEX Mobility and ourMonster dealer network to look after Hybrid your Assistive Technology needs. Contact us today, so weand canour putdealer you innetwork touch with a local Over 20 leading global manufacturers trust APEX Mobility to look after consultant that can guide you with your technical, clinical and funding questions! your Assistive Technology needs. Contact us today, so we can put you in touch with a local Over leading global manufacturers trust APEX Mobility and our dealer network look after Over 2020 leading global manufacturers trust APEX Mobility and our dealer network toto look after consultant that can guide youContact with your technical, clinical andyou funding questions! your Assistive Technology needs. us today, we can put touch with a local your Assistive Technology needs. Contact today, soso we can put you inin touch with local Over 20 leading global manufacturers trustus APEX Mobility and our dealer network toalook after consultant that can guide you with your technical, clinical and funding questions! consultant can guide you with your technical, funding questions! your Assistive that Technology needs. Contact us today, soclinical we canand put you in touch with a local
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Con-grats on opening co-able! Recently opened in the port side suburb of Port Adelaide is an innovative and contemporary space dedicated to people with a ranging level of abilities. those with disabilities and is a warm, fun place for people coming to see these professionals. Hryhorec said it can be lonely starting a new business or charity as you are often the only employee. “Having a workspace to go with likeminded people seemed like a good idea,” he said. Located on Marryatt Street, it offers a spacious communal café area known as The Noshery, that features lowered benches, a sensor opening bin, pull-out drawer dishwasher, a table with plenty of leg clearance and a coffee machine with under bench access. There is also a high-tech soundproof meeting room with video conference facilities and accessible bathrooms with premium fixtures and fittings. The site is also the Adelaide base for accessibility business, Push Mobility. Co-able is a 20-minute drive from the CBD and only 300m from the closest train station with a flat footpath with curb cut-outs and tactile pads for easy access to co-able. Just 50m away is Port Plaza shopping centre.
Co-able is not just a community hub, and it’s not just a co-working space, or a centre for a range of different health specialists. It is all three of these things! Described as a first of its kind in Australia, co-able is a unique destination, according to founder, Shane Hryhorec. “When I was searching for commercial space to rent, it quickly became obvious that many places were not accessible for wheelchair users like me and that sparked an idea. What if there was a fully accessible place to rent dedicated to housing disability service providers? And that is how co-able came about.” He said co-able is ideal for sole traders and small businesses who may benefit from a fully accessible co-working environment. It is perfect for allied health professionals who work with 36
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Push Mobility SA manager, Grant Allen said co-able is “a space for everyone that is inclusive, accessible and a happy place to be with good people”. To arrange a visit phone: 1300 089 349.
WELCOME
to Adelaide’s newest destination designed especially for YOU. co-able is a work, health and wellness destination. Every area of this brand new space has been thought through and custom designed with accessibility in mind. • Allied health specialists • Co-working space • Accessible gym • Custom designed kitchen/café • High tech meeting room
SPACE FOR LEASE
Be one of the first to take advantage of this rare opportunity. Enquire about our spaces that are ready for lease. Our suites and private rooms are perfect for health and wellness professionals. And our co-working space is ideal for sole traders and small businesses wanting a more accessible work environment and to be part of a welcoming community. For details and to enquire go to: www.coable.com.au/space-for-lease
60 Marryatt St, Port Adelaide P: 1300 089 349 E: info@coable.com.au
www.coable.com.au
Link to...Mobility
Astris PME leads the way for 70 years! Family business Astris PME are heading into their platinum year, with 70 years of service to the disability sector in Australia. therapist, and an Astris PME equipment specialist to review personal goals and circumstances, as well as trialling equipment.
CEO John Anderson said: “We are grateful we are part of something that has been improving lives for 70 years. The disability sector has changed dramatically over this time, but we have adapted to evolving demands and technology”. Anderson has been instrumental in building the business to where it is today, with a passion for customer care and a creative mind for finding solutions. The company has continued to innovate, expand their services and range of technologically advanced AT equipment. Expansion continues with a merger between Astris PME and Lightning Mobility, founded by Rod Aussel in 1992. “The improved equipment range, inventory and support, means we can provide greater support to therapists and clients in Regional NSW and the ACT,” Aussel said. “A new showroom in Queanbeyan will also open.” Astris PME has arguably the largest range of configured Assistive Technology in Australia, with an experienced background in mobility aids. Their range of manual and powered wheelchairs configured seating systems, walkers, standers, hygiene equipment, strollers and outdoor recreational equipment, means they can provide you, or your client, with any type of AT to suit your requirements. All Astris PME equipment supplies start with a consultation with the equipment user, their 38
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Following the consultation, Astris PME provide a written quotation for the cost of prescribed new equipment. Clients then liaise with their therapist to have the NDIS AT Funding Application form completed in a timely manner, if that is the relevant funding source. After the application is approved, production and logistics teams swing into action, to ensure equipment is sourced and assembled to suit individual specifications. Once the equipment has been configured and prepared, the equipment specialist will make the delivery, supervise the final fitting, with the therapist present, and provide advice about safe use and maintenance of the new equipment. Astris PME understand you may need the equipment for a short time. In many cases, equipment hire is also available for extended trials. Brands include Motion Composites, Sunrise, SPEX, Schuchmann, Rifton, Ormesa, Leckey, Careflex, Magic Mobility, Quantum, Easystand, Anatomic SITT, Klaxon, i-Xpress, Solo, Freedom Designs, Juvo, Nuprodx, NRS, Hippocampe, xRover, Timo, Akces MED, Thomashilfen, Kaye, Eurovema and Light Drive. Some of the branches also supply Permobil PWC, Ki Mobility, Glide Centro, Caremed Alrick, ICare and CareQuip. Astris PME showrooms are in Sydney (Seven Hills and Ingleburn), Newcastle (Boolaroo), ACT & Regional NSW (Queanbeyan and Young), Melbourne (Truganina) and Brisbane (Wynnum). Warehouses for new equipment are in Sydney, Melbourne and Brisbane.
Call: 1300 131 884 or email: sales@astris-pme.com.au
MOBILITY
Freedom to go wherever you choose
Whether they are planning trips out of state, within their current home state or just down the road to Bunnings for a sausage sandwich. They tell us all these amazing travels were not possible before they had their cars modified. Travel is as easy as getting in the car and just going. Hopefully with this pandemic lockdown, restrictions will soon ease, and we can all start to get out and about. With a Freedom Motors modified car destinations are endless. We can’t wait to hear where you go next.
In these uncertain times of a global pandemic, lockdowns and stay at home orders it still doesn’t cease to amaze us the positivity and future planning that our current customers are telling us a about.
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Call Freedom Motors on: 1800 672 437 to arrange a consultation to see how we can help you get back to travelling and living the life that you choose. We deliver Freedom you just choose the destination.
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MOTOmed trainer put to the TEST Caitlin Maynard reviewed the MOTOmed trainer. This German manufactured exercise equipment, available from Aidacare, is designed for people with movement restrictions. As a wheelchair user who is still able to move around and walk short distances (with aides) this device was perfect for me. It was easy to use and not only helped during the workout but also assists with teaching the muscles the correct way to move. And I could use it independently! workout. There are two ways to use it: arms or legs. To switch between arms and legs the screen at the top of the machine will take you through the simple steps to set it up in either mode. To work your arms, get the handles in a comfortable position and start your workout. The MOTOmed automatically starts to revolve and move your arms with it. This is passive mode; where the machine does the movement for you and all you need to do is hold on. This allows your muscles to move and work whatever your physical ability or energy level. Go into the settings to choose the speed in passive mode and the level of work you want your arms to do. To switch the machine into resistance training put your own force into pushing the handles around. After a few seconds the machine will automatically switch to resistance mode and you can chose the level of resistance you want to use. Using the footplates to work out your legs is much the same, just switch the motor to the bicycle style footplates and lock the handles into place, with straps for feet and calves to keep everything in the right place. There is a passive and a resistance mode for legs, and you can switch between modes in the same way. It is also easy to use for a continuous workout.
One of the best things about the MOTOmed is that it was made for someone in a wheelchair to use. There is no transferring to a built-in seat or having to stand, you can roll your wheelchair straight up to the machine and start your 40
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The big challenge for me is because of not having much stamina, when I do conventional workouts I need to take lots of breaks, but was able to stay in passive mode during my breaks and ended up doing a full workout. It set it up in front of the TV and worked out. There are options available to test this equipment. Some gyms or rehab centres have one or apply through the NDIS.
A barrier-free transfer with trivida
MOBILITY
trivida is the world’s first wheel that increases mobility by allowing a barrier free transfer!
For those users who can manage transfers themselves, this may become more difficult with increasing age due to loss of strength or agerelated mobility restrictions.
It is now possible to safely transfer from and into the wheelchair without any obstacles. The upper segment, of the three, can be easily removed so a safe lateral transfer from wheelchair to the external seat and vice versa is possible without any obstacles, thanks to the revolutionary triatec technology, with German engineering.
The detachable wheelchair wheel from trivida allows, for example, a much simpler transfer from the wheelchair to the car seat. The wheelchair can be placed parallel to the car. By removing the upper segment one can simply slide into the car from the wheelchair and the transfer can be done with minimal physical effort.
In anyone’s everyday life there are countless situations where a change in position is required. For wheelchair users, their family and/or carers, these transfers from and into the wheelchair are a time-consuming and exhaustive task. Depending on individual mobility, many wheelchair users rely on help.
With the wheel from trivida, wheelchair users are less reliant on assistance, and depending on their level of mobility, may even manage the transfer entirely by themselves. The innovative triatec technology guarantees complete stability, allowing the user to safely lean on their wheelchair during transfer.
trivida® Introducing a new devidable wheelchair wheel. A triumph for freedom and independence!
Barrier-free living.
trivida® plastic wheel
The dividable trivida wheel facilitates mobility for wheelchair users in everyday life. By removing theFind top segment of the out more at: wheel, daily transfers between wheelchair and www.trivida.com.au bed, toilet or shower stool, couch, chair, stair lift or car seat require less energy and are therefore easier. Sales & Service Australia/New Zealand For825 more information: +61 (0) 400 533 +61 (0) 400 533 825 info@trivida.com.au info@trivida.com.au
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Queensland alert - watch out for Bevan on his bike After a delay due to Covid restrictions, Bevan Kearsley has finally set off across Queensland to raise money for spinal research, with his main goal to fund a rehabilitation centre. Following a motorbike accident where he sustained a spinal cord injury, he spent six months in the spinal unit, but there was nowhere for families of patients to stay together. “And 30 years on and still nothing,” he said. “It would be nice to have a place where you can move out of the spinal unit, and instead of living in the hospital ward, be in a rehab centre with gym, hydro pools and units designed with wheelchair facilities, so families and patients can be rehabilitated together. Even the families need that rehab.” Bevan was retired and looking for something to do and a challenge to raise funds for a reasonable cause appealed. “I had the wheelchair scooter and always wanted to go around Australia and thought I would combine the whole thing,” he said. “I ripped the seats out of my Toyota HiAce Commuter and converted it into a wheelchair assessable campervan so I have somewhere to sleep, and my mate will drive the van behind me as a support vehicle.” He plans to travel up the Queensland coast, across to Mt Isa from Townsville, down the western corridor through Winton to Charleville and back to Brisbane, and hopes to continue his travels in 2022, taking in the rest of the country.
Together with help from Spinal Life Australia, he also wants to raise awareness for his notfor-profit Miller Chase Foundation, Accessible Australia Ride and encourage tourist operators and councils to become more inclusive and consider people with disability as customers. 42
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There is a free tool, AcccessibleAustralia.com.au that gives people with disability information and the confidence to explore more of the country, so they know before they travel whether a place is accessible or not. “Users can upload photos or put in a review. Simply go on the app, or the website, to register.” Bevan received assistance to continue to implement his NDIS funding from Carers Queensland Local Area Coordination Partner in the Community Program for the Brisbane region.
Walking and Wheeling with MS
MOBILITY
Maureen Corrigan likes to write and travel and has combined these passions into a book. Walking & Wheeling Tales. The book spans five decades and as many continents. It begins in Tasmania, tackling walks along the Freycinet peninsula. Nearly 50 years later, still active despite a diagnosis of MS, Corrigan is sitting in a gondola zooming up the Swiss Alps. Even in Covid times her appetite for adventure remains strong. She takes her walker out in her hometown of Port Melbourne, hopped aboard the Spirit of Tasmania, wheeled along boardwalks around The Hazards mountains and took a road trip to the Sunshine Coast. Maureen has been meeting the twin challenges of Covid and MS quite well. But it hasn’t all been smooth sailing as lockdowns are the enemy of plans. “Things come up and you have to think on your feet,” she said, “but it can be exciting.” Maureen uses a Luggie scooter on her travels and her first one lasted a surprising eight years. Its lightweight frame, foldability and manoeuvrability make it ideal for transportation in a plane or car boot.
Walking and Wheeling Tales is published by Shawline Publishing Group and can be found at all major online retailers. Visit her website at: www.maureentcorriganauthor.com.au/
Unpack, Unfold and Go This portable fold up scooter gives you the convenience and freedom to get around. 8 Luggie models to choose from including: • Wide track version for more stability • Soft suspension and pneumatic tyres for a softer, smoother ride.
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Commonly asked AT prescription questions series: Part 1 Decision making (DM): factors that impact making sound specialised assistive technology (AT) choices Dr Rachael Elliott Schmidt is a regular contributor to Link. IMPEDING FACTORS
ENABLING FACTORS
frustrated relationship trust
Trustworthy relationships
Consumer complexity
AT Service access
• AT personal inexperience • Personal health = diminished capacity & control making decisions • Inadequate, poor support networks • Distance to appropriate AT services/trial product access • Inadequate funding access or experience
• Poorly skilled/ networked team collaboration • Delayed specialist AT expert service access • Limited AT range aligned with specialist AT pre & post purchase services • Inadequate AT trial prototype occasions & appropriate servicing • Restrictive/complex funding protocols
Stakeholders AT Players Consumers User people/family support networks Services AT experts Specialist AT vendors Manufacture services Overarching agencies Funding agencies Umbrella health community services
Extends service dependancy
As an Assistive Technology (AT) prescribermentor, I am commonly asked for advice on prescribing (non-standard) specialised AT designed for individual fit-for-function satisfaction. Four commonly questions regarding AT prescription will be discussed in following issues starting with: What factors enhance, or not, when prescribing specialised (non-standard) AT? Unlike Standardised AT or ‘off-the-shelf’ universal technologies, Specialised and Complex AT describes a range of ATs specifically designed, assembled, modified and adjusted, to customise for one person’s fit-for-purpose goals. Successful specialised solutions require ongoing support and training (Link, June 2020). A powered wheelchair base fitted with a customfitted seating system exemplifies specialised and complex AT and requires considerable stakeholder experience, skilled technology service collaboration and additional resources such as adequate time and funding. How well 44
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Teamwork
Services attributes
• Knowledgeable consumer & family supports • Experienced AT stakeholder partnerships • Collaborative teamwork with all essential stakeholders • Clear communication channels
• Accessible knowledgeable service/AT support providers • Access to expertise as needed (electronically to address travel/ remoteness) • Transparent funding protocol & communication • Appropriate AT trials & Skilled AT services
Expedites decision making
decisions are made are impacted by many factors including who has control of making the choices. Customising AT requires vision to envisage and construct a successful AT outcome. Prescribing specialised AT is complex and unsurprisingly, less experienced stakeholders request assistance. Decision-Making (DM): factors that impact making sound specialised AT choices. Using a broad-brush approach, the accompanying diagram - Decision-Making (DM): factors that impact making sound specialised AT choices describes components of a decision-making process. It highlights three essential elements influencing decision making: as AT Players and Enabling and Impeding factors. These three elements identify essential considerations when prescribing this technology successfully.
MOBILITY
Looking at the diagram, central to the process sits the Stakeholders, who are: • AT Players consisting of the consumer groups (i.e., people who use AT, their family members and care/support networks) • Services describe direct specialist AT service providers and • Overarching agencies outline the external AT funding, health-community services inherent within our assistive technology sector. To the right of the Stakeholders, sits the Enabling factors as: • Teamwork and • Service attributes. Teamwork enhanced by knowledgeable, experienced stakeholders who are open communicators and tend to work collaboratively. Service attributes it enables are stakeholder’s ready access to aligned knowledgeable AT services, support systems and AT expertise, as required, build trustworthy relationships. Timely access to appropriate a AT trial product range with transparent funding and open communication protocols encourage AT user/ family control to make sound choices based on personal goals. Conversely, left of centre sits the Impeding factors as: • Consumer Complexity and • AT service access.
Consumer complexity complicates building relationship trust. Compromised personal health, AT inexperience and diminished personal control, fragmented family/care support systems that need additional support. Additionally, inadequate service availability thwarts access to an appropriate AT product range for trial. Inadequate funding resources or complex protocols frustrates sound AT choices based on defined goals. All frustrate building trusting team collaborations and instead substitute service dependency. Consideration for AT prescription As specialised AT prescription is a complex process, it’s best to be prepared because prepared stakeholders can avert AT disappointment by anticipating potential factors adversely within an AT prescription process. Being informed enables allocation of services and resources proactively to bolster any decision-making process. Allocating additional supports early enhances greater knowledge exchange and development, encouraging collaborative, confident AT choices. References How Assistive Technology can provide Independence. Link, 2021 31(3), 67. Retrieved from: Linkonline.com.au
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Linds Rehab introduces Alltrack power wheelchairs Linds Rehabilitation Equipment has announced its distribution partnership with Canadian based manufacturer Amylior, to bring their renowned Amystem power wheelchair Alltrack series to Australia. The range consists of a midwheel drive base with heavy-duty and paediatric options, as well as a narrow base configuration option (20.5” width). Undeniable tight turning circles enhance indoor accessibility with a dual action suspension system damping road vibration to maximise comfort in outdoor environments with a variety of custom rehabilitation seating options and accessories. The Alltrack R3 is the one true Hybrid-Wheel Drive power wheelchair, melding the best attributes of rear-wheel drive and mid-wheel drive in one package. It is ideal for users that demand outdoor performance, speed, and comfort of a traditional
rear-wheel drive but need the manoeuvrability provided by mid-wheel drive. Linds Rehabilitation Equipment has been serving the Victorian community for over 55 years. The family owned and operated business has developed a reputation as ‘The Wheelchair People’ with its wide range of manual and power wheelchair solutions. See and discover the complete range now. visit: www.amylior.com
Contact Linds Rehab to find your closest dealer to experience the all new range of Alltrack Series Power Wheelchairs.
03 9796 3399 sales@lindsrehab.com.au ww w.lindsrehab.com.au www.lindsrehab.com.au 46
October/November 2021
MOBILITY
Motorised portable solution for wheelchairs and stairs Karan Monkhurst has to transport Harry up and down the five steps at their apartment building in Cronulla. Previously, she used a portable ramp (too steep), a winch (too slow) and another motorised device. The expensive device climbed one step at a time and Karan found it too dangerous to use. It continually tried to catapult her away from the steps and she ended up giving it away. Recently, Karan discovered the Stair Climbers “Jacob” motorised wheelchair lift. The long rubber tracks cover 2-3 steps at a time which allows Jacob to glide up and down steps.
With some minor modifications, Jacob was fitted to Harry’s wheelchair. It only takes a few minutes to attach and detach and the whole operation is completed in a fraction of the previous times using other methods. The ramp is gone, the winch is idle, and she is not catapulted forward anymore! Harry and Karan are delighted to use this safe, cost-effective and portable solution.
“Stair Climbers provide a range of motorised devices to help people negotiate steps and stairs easily and safely.”
www.stairclimbers.com.au info@stairclimbers.com.au
High quality, long battery life
12 months (Australian Based)
Australia wide
For Features, instructions etc.
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PolySpine for maximum support PolySpine is an emerging piece of assistive technology designed to support a person out of their wheelchair or accessibility equipment. A customisable supportive exoskeleton has been developed for people with moderate to severe physical disabilities and moulds into the back for maximum comfort and postural support. PolySpine was founded by father and son team, Clint and Riley Saban. Riley has Spastic Dystonic cerebral palsy with a GMFCS classification 5 requiring support for the upper body and head. By using the device to support his upper body, he is able to reach a near-standing position. The squat frame is a valuable addition as it can be routinely used as a rehabilitative tool.
Because his family lead an active lifestyle, to participate Riley needed a support system to maintain an upright trunk position. Unable to find anything suitable on the market, the idea of PolySpine was born. The device is in the process of NDIS registration and TGA application. PolySpine will have exhibition space at the ATSA Expo in Canberra, from November 24-25, 2021. To set up a trial contact: liz@polyspine.com
AFO System wins Dyson Award RMIT University student Aaron Nguyen has developed an Ankle Foot Orthosis (AFO) system for children with Hereditary Spastic Paraplegia.
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The LUNA Modular AFO, adapts to the growing users modularly, increasing the product life and comfort for the user. The device is the 2021 the James Dyson National Design Award winner.
can be interchanged and formfitted using 3Dscanning. It adapts and conforms to growing users extending the life of the product to several years rather than six to eight months.
Nguyen grew up with two relatives with HSP and aware of the problems caused by current orthoses provided to users. “The rigid thermoplastic forms used to create current AFOs are intentionally tight fitting to give optimal support. However, with growing users, especially children, it often leads to bruising, blistering and cuts, due to systematic flaws in the fabrication process,” he said. The LUNA Modular AFO consists of two components and as the child grows, the LUNA surface
“I am researching market viability and demand, to determine the next step,” he told Link. “On whether to collaborate or integrate or start up our own service. Engineers and designers should bear the burden of figuring out how to make everyday life more sustainable, and the end user shouldn’t have to compromise for a more sustainable option.” For more information: https://www.lunaafo.com/
The EVOMobility Genny 2.0 self-balancing wheelchair.
MOBILITY
The Genny wheelchair is a medical support device that allows people with disability to move safely in spaces previously inaccessible to them. It is self-balancing and has been adapted to the needs of the user with disabilities caused by conditions such as spinal injuries, amputation and multiple sclerosis. The Active Power wheelchair seating allows the activation of the muscular residual system without making use of the upper limbs. It allows people with disabilities to move safely without needing to operate control levers like accelerators or brakes. It is a valuable training tool in the process of rehabilitation and recovery of lost functions, assisting patients with spinal injuries and compromised postural stability of the trunk. Psychological Benefits: • Both hands can be free and need not be used or get dirty.
• Easily traverses slippery and rough ground, small steps and slopes • User is able to hold a partner’s hand, dog lead or umbrella • It can be used around the home, garden, footpaths/roadways, malls and in leisure situations such as sports, beach and bushwalking, and horse training over normal and rough terrain • Specifically designed for on and off-road use, in soft sand, snow, bush and all variable terrains. Australian and New Zealand distributors, EVOMobility offer trials and training for interested users and their OTs. Funding through disability and accident insurers has been provided to participants requiring assistive technology.
Available Exclusively At
Go Anywhere with Genny™ The Genny™ wheelchair is a self-balancing medical support device that allows people with disabilities to move safely in spaces previously inaccessible to them. EVOMobility offers trials and training for interested users and their Occupational Therapists.
www.ele ctricvehiclesoceania.com.auor call 02 8897 5374 to Visit www.electricvehiclesoceania.com.au book a trial.
Genny Urban
www.electricvehiclesoceania.com.au ElectricVehiclesOceania.com.au linkonline.com.au
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Link to...Travel & Leisure
The Ghan - The Journey Beyond Disability Expectations Today, people with disability, especially NDIS participants, are experiencing more stability and certainty in their support plans and budgets, and increasingly starting to exercise choice and control over who provides their services. manual wheelchair as the corridors were too narrow. However, to my surprise, I was situated in the perfect position 'Gold Class'! My cabin was directly next to the next carriage where there was a bar and restaurant,” he said. The restaurant was the only place onboard where he needed to transfer to a small wheelchair that would fit down the aisle next to the restaurant tables. Some of the highlights were: • Watching the sunrise in Marla • Riverboat cruise on the Katherine Gorge • Reptile and Aboriginal Conservation Park in Alice Springs • Spending the day in Darwin at Crocosaurus Cove.
As Robert De Pasquale recently discovered as an NDIS support coordinator with Be Able Australia you can have a trip of a lifetime like he had onboard The Ghan. The trip was funded through his NDIS plan under STA, otherwise known as Short Term Accommodation.
All his transportation needs were looked after by Journey Beyond and he was given Cabcharge vouchers to and from each excursion.
“I am an avid cruiser, but because of Covid-19, have not been on a cruise for almost two years. Still, when one door closes, another one opens. To say I was converted from sea to land is an understatement, but I will be going back on a cruise again when we can,” he told Link. “If you are a wheelchair user or have a disability, The Ghan is the best way to see Australia's famous Red Centre, one of the most celebrated wildernesses in the world. This all-inclusive twonight, three-day journey took me to the centre of this incredible country, from Adelaide to Darwin, passing through Alice Springs on the way. “I was a bit sceptical before boarding because I was advised that I wouldn't be able to use my 50
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To find out more about how you can utilise STA and get on a trip of a lifetime onboard Journey Beyond's four luxurious trains (The Ghan, Indian Pacific, The Overland, and Great Southern), contact support@BeAbleAustralia.com.au.
Travel stress-free with Leisure Options
TRAVEL & LEISURE
Leisure Options, a supported travel specialist, firmly believes that planning for your holiday should be a seamless and stress free process. Leisure Options ensure you depart for your holiday with peace of mind that all your mobility requirements have been specifically and suitably catered for and that your focus can, importantly, be solely on enjoying your holiday. More tourism providers now understand the importance of providing suitable facilities and accessible experiences for travellers of all abilities. Travellers are increasingly finding that destinations or activities that they were once deterred from experiencing are now a viable option, regardless of their accessible requirements. The team at Leisure Options have a very clear mission, to help travellers succeed in
achieving their travel dreams. The team are very experienced in sourcing quality, accessible holiday options for their ‘travelling family’. If you are looking for a quick supported getaway, or an assisted bucket list adventure but unsure how to make this happen, contact one of their friendly travel specialists to discuss your options.
Leisure Options can be reached on: 03 9646 066 or 1300 363 713. Email enquiries can be addressed to: mail@leisureoptions.com.au
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Rotorua – the ideal place to immerse yourself in New Zealand If you are looking for the ideal place to immerse yourself in the New Zealand experience, without days of road travel, then Rotorua is one of a number of great location options. By Marina Hanger
Here, with the expertise of accessible travel specialists Ability Adventures, the whole package can be wrapped up and ready for you to enjoy, whatever your requirements may be.
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Fly into Auckland’s international airport and either catch a short connecting flight or take the scenic 3-hour drive to what many consider the beating heart of the North Island. Rotorua is geared up for visitors, with the very best examples of cultural experiences, adventure activities, scenic tours and local attractions all set in an active geothermal landscape. Accessibility is a key factor in any holiday destination, and Rotorua will not disappoint, with wide sealed pathways and boardwalks to take you right into the managed geothermal areas, complete with brightly coloured mineral pools
TRAVEL & LEISURE
and steaming waterfalls, boiling mud and active geysers. There are guided cruises on Rotorua’s lakes, heli-tours and scenic flights, and the popular Skyline gondola, each showcasing the lush landscapes and sparkling lakes.
a tandem bike or possibly even take a kayaking tour. There are wildlife attractions that bring you up close with an array of birds, fish and animals too. There are many disability-friendly visitor experiences and service options available.
Rotorua has a thriving Māori culture, one that you can experience up close through the immersive cultural tours available. There is a living historic village populated by the locals, where you will hear the stories of a major volcanic eruption, told by the descendants of those who lived through it.
For relaxation, soak in restorative natural thermal mineral springs, take a luxury spa or enjoy a beauty treatment.
For a taste of the outdoors at ground level, try an easy access lakeside or forest walkway, rent
Whatever makes your holiday wish list, Rotorua has plenty for you to choose, and Ability Adventures has the expertise to bring it all together, tailoring a holiday that makes the most of your time and the opportunities available.
www.abilityadventures.co.nz linkonline.com.au
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Link to...Accommodation & Home Support
Simply Helping You to Explore Your Community If you don’t live with disability, you may not have given much thought to the physical and emotional impacts of not being able to do something seemingly simple. Adopting a step-by-step approach, now after a couple of months, he is thriving and looking forward to many social outings, in particular surfing. We are thrilled to see him achieve these goals, one at a time, and become more independent each day."
For instance, imagine trying to negotiate steps to enter a building if you’re in a wheelchair. Or find a bathroom to accommodate your needs. These are common scenarios encountered by many people with disability and can be frustrating and demoralising. If you or a loved one live with disability, facing these challenges on a regular basis may feel as though an easier option would be to isolate, but it’s important not to. It’s important to find the motivation to stay connected to others and the community. So just how important is it for people with disability to stay connected to their community? Director and founder of home care provider Simply Helping, Angela Feery-Richards said we all need to participate in society, all of us, whether we’re younger, older, or live with disability. “Social connections keep us healthy, both physically and mentally. For people living with disability, social stimulation can improve mood, attitude and sometimes behaviour,” she said. Simply Helping had the privilege of supporting an autistic teenager. “When we first met him, he had behavioural concerns as well as severe separation anxiety. We carefully developed a strategy so he would feel comfortable enough to leave his parents for a few hours and venture outside his home with a support worker. 54
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Mobility and transport can play a key role in helping people achieve a goal. As a leading home care provider, Simply Helping provides more than just a transport service and understand that getting to and from your destination is only one step of the journey. Their support workers can help you get ready for your outing and make sure you have all the things you need. They also provide support at your destination, this may be in the form of social support, help with the shopping, or help navigating your way through a big hospital for a specialist appointment. And importantly, help you settle in safely once you return home. Support also means looking at long-term outcomes such as self-efficacy. And a great way to encourage self-efficacy is to achieve a small goal first. Feery-Richards said. “Providing the right mix of support and encouragement cultivates confidence. Our support workers are trained professionals who also promote a supportive environment. They encourage people to believe in themselves. Verbal support is just as important as physical support. Once a person has experienced mastering a small goal, the sense of accomplishment is often enough to empower them to achieve more.” Simply Helping has locations in Victoria, New South Wales, Perth, and Gold Coast.
visit: simplyhelping.com.au to discover how Simply Helping can help you achieve your independence goals.
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au
m. .co Registered NDISProvider TAC/WorkCover Preferred Provider
Link to...Accommodation & Home Support
Three simple hacks to stay focused Do you struggle to keep track of time when you’re home all day? Recent lockdowns haven’t made life easy but there are some simple ways to stay productive inside your home. Here are some occupational therapist approved ways to keep structure in your day and make the most while the sun shines! Stick to your schedule: Consider breaking your day down into segments. Choose the top tasks you feel you must get through. Anything else is a bonus! Use reminders: Low-cost AT is your best friend. Try using a calendar and reminder clock like the Dawn
Clock to help you meet your deadlines and tick off that list. Fresh Air: Open the window and watch the sunrise. Amongst the many benefits of fresh air, its proven to give you energy, improve concentration and bring your mind back to what matters. Implementing these simple tricks into your day can help you connect time to every moment. But remember, every day will be different so if all else fails head to bed early as tomorrow is a new day!
ww w.d awn -clo cks. com .au “We seriously love the Dawn Clock. It’s quite amazing that a clock has completely changed her level of independence!” ~ Jen, Mother of Emily J Prior - ABC Me Star & Neurodiversity Advocate
NDIS APPROVED AUSTRALIA-WIDE
Every day counts
Visit www.dawn-clocks.com.au
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AUSTRALIAN OWNED
MEMBER
Community Support home care services to help live Your Life, Your Way
ACCOMMODATION & HOME SUPPORT
Community Support Inc has been providing care and support for people living with a disability, mental health or aged care related need for over 30 years. It offers professional flexible services for people of all ages requiring home or community-based supports in metropolitan and regional South Australia. “At Community Support we focus on putting the client’s goals and aspirations at the centre of everything we do. We are constantly looking for ways to improve our service delivery and supports, ensuring we attract the best support workers to deliver services”, CEO Dr Angela Littleford said. “Community Support services are designed to achieve positive outcomes, independence, personal wellbeing and community involvement for our clients,” she said. Services include domestic assistance, personal care, transport, social development, training and living skills, support with mental health needs, NDIS planning, psychosocial recovery coaching and support coordination (general and specialist).
“We will introduce new services in the coming 12 months”, Littleford said. “We have partnered with Chemist King to provide medication management and delivery services for clients who need it.” Community Support has rolled out a new Client Relationship Management System that integrates its scheduling, payroll and billing systems. Staff are connected to the support office, in real time, and have all the information they need to provide safe, connected, personalised and professional care to clients.
To find out more call: 08 8429 1200 or visit the website: csisa.org.au or email: hello@csisa.org.au
Providing you with personalised and professional services to help you live Your Life, Your Way. Community Support Inc deliver in-home and community support to hundreds of people every day across South Australia. We provide tailored supports to people living with a disability, mental illness and complex health conditions. We can provide services to help you at home or in the community. Wherever you need us, we’re there to help you live Your Life, Your Way.
wwcsisa.org.au w.csisa.org.au
To find out more contact us today! Telephone 08 8429 1200 Email hello@csisa.org.au Or via our website csisa.org.au www.csisa.org.au
linkonline.com.au
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Link to...Accommodation & Home Support
Support when you need it most Throne toilet systems, designed by occupational therapists, are modern looking, secure and safe to use. For those wanting assistance using a toilet then this Australian company, established in 1998, could be the answer.
them with better stability in doing so, in this position both grab rails are in a standard vertical position.
Throne products are designed simply to aid in getting up and down from the toilet, specifically for those undergoing rehabilitation or who have a physical disability or impairment. The products make a valuable difference to the lives of the user, as well as their family and carers.
Splayed: In this position the grab rails are much the same as the standard position only now offering a wider option for users who prefer a wider grip from the grab rails.
“It is a category which is not considered as much as it should be, especially in aged care,” Throne MD, James Ross told Link. “Throne toilet support rail systems are the only rail on the market that, as its point of differentiation, attaches directly to the toilet through the same means that the toilet seat is attached,” he said. “Throne rail systems are an alternative to most toilet aids giving improved access and safety during toileting. The rails are considered safer than free standing toilet frames that do not provide stable support. Also, other users can access the toilet without having to remove the rail.” Key benefits include: • Reduces falls as no frame system • Fits in small bathrooms or where space is restricted • Secure as fits directly onto toilet, it can be used in circumstances where standard toilet frames cannot be fitted • It can be removed and taken with the client if the client moves house. The Throne 3-in-1 toilet support rail provides the necessary support for those who need assistance transferring on and off the toilet and is available in three positions: standard, splayed and fold down. Standard: Helps support the user to lower and raise themselves to and from the toilet providing
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Fold Down: The fold down position is there to offer the option of side access to the toilet in situations where side access is needed, the fold down option is also a useful choice for users in wheelchairs and for situations where space is limited, by folding down one of the grab rails this can reduce the space being taken up. It has a maximum user loading of 130kg. Throne also markets a heavy-duty rail in stainless steel which has legs grounded to the floor on either side of the toilet, with a maximum user load of 250kg. A versatile addition to the range is the Throne Spacer, a toilet seat raiser that adds height to the standard toilet seat without changing its appearance, integrating with bathroom décor. There is also a toilet rail for children, which suits a very small child and can include a step. According to James Ross, schools and kindergartens purchase the child rail which is designed for smaller toilets, which are often installed in infant schools. “It is becoming more common for the adult rail to be used if the child is growing normally and is using adult toilets,” he said. Throne products are available through the NDIS, DVA and selected distributors. Throne exhibits at the Occupational Therapists of Australia conferences which held virtual events due to Covid. For more information visit: www.throne.com.au or call us on 02 6280 6851.
Contact: www.throne.com.au or 02 6280 6851
DIGNITY, INDEPENDENCE AND CONFIDENCE FOR EVERYONE
3-in-1 Rail
THRONE SPACER
• Standard • Splayed • Fold-Down
THE ULTIMATE AND MOST VERSATILE TOILET SEAT RAISER The Throne Spacer has been developed to add height without changing the appearance of a standard toilet and toilet seat, and offers comfort and safety.
Two sizes! 50mm & 80mm heights The best option OT’s could hope for! Use with or without Throne Rails The functions of the ‘Standard’, ‘Splayed’ and ‘Fold Down’ rails have been incorporated into the ‘3-in-1’, making it the most convenient toilet support system on the market. The benefits of the Throne Accessories ‘3-in-1’ Rail System include: This rail replaces the previous three models Simplified ordering... etc The new Throne Accessories ‘3-in-1’ Rail System will be of great advantage for: Equipment loan departments in hospitals, schools, respite care and hospice facilities Nursing homes and retirement villages Hotels, motels, hostels, residential and other accommodation outlets
The Throne Spacer fits under the toilet seat Unobtrusively integrates with the bathroom decor Raises the height of toilet seats and electronic bidets Easily installed and conveniently transportable Spacers and rails are available from reputable healthcare suppliers
BARIATRIC TOILET SUPPORT RAIL
This particular Bariatric Rail model meets the needs of the larger built person. The handgrips are supported by adjustable legs that are firmly positioned to the side of the toilet by rubber-capped feet to prevent tripping. The Bariatric model comes in polished stainless steel.
Link to...Accommodation & Home Support
New OT facility opens in Adelaide The OTFC Group (OTFC) has launched a state-of-the art occupational therapy facility in Parkside, South Australia making them one of the biggest private service providers in the country. One of these collaborations includes working with published author, teacher, counsellor and public speaker, Mark Le Messurier who is a mentor to children and adolescents and a coach to parents. “Some schools and leadership teams are ahead of the curve when it comes to supporting kids who cannot self-regulate their emotions independently, but overall, we have a long way to go in our education system,” Le Messurier said. He also commented on their ‘best practise’ approach to working with the whole family. “Usually if a child is in need, the whole family are in need. This is where OTFC excel as a group, as they empower parents to move forward with new skills, a revitalised mindset and hope.”
The facility will help reduce wait times and see more children and young people assessed and engaged in therapeutic programs in clinics, schools and the community. Group clinical director, Dino Mennillo said the need for OT services is higher than ever, with more than 41,000 active NDIS participants in South Australia and approximately 2000 providers trying to service them. “We have created and invested in globally recognised certified programs, research, and our customised therapy equipment and spaces,” he said. OTFC have an open-door policy to parents, other OTs around the globe, medical and allied health professionals, educators and anyone else wanting to thrive in this industry. “We collaborate with schools and other allied health professionals and welcome them to spend a day at our practices to understand our therapeutic approach and the outcomes we are working towards,” he said. 60
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OTFC use Ayres Sensory Integration Therapy method, a treatment that has an emphasis on ‘child led’ therapy and is researched worldwide in treating children with various complex developmental conditions including autism spectrum disorder. The new site will generate 10 new jobs and student placements will increase to 12 a year.
Aruma, helping you find your home sweet home Everybody wants to find a place to call home. A home is more than just bricks-and-mortar. It can also mean independence and finding confidence. And that’s where Aruma comes in. The disability service provider has a range of options to help people with a disability find their ideal living arrangement. One of these is Individualised Living Options (ILO). It’s a NDIS support, which launched in July 2020, and it’s opened new possibilities. ILO helps people with a disability live in a home of their choice with support, and the option to live with others of their choosing. It doesn’t provide the house or dwelling but a flexible package of supports in their home of choice, tailored for their needs. ILO, along with Supported Independent Living (SIL), sometimes called shared accommodation, and Specialist Disability Accommodation (SDA), which are properties designed specifically for people with very high needs, means there’s more opportunities than ever to find a home. Just ask Stuart and Grant, who moved into Aruma’s Toowoomba SIL home earlier this year. “Stuart and Grant are gaining new skills and becoming more independent,” an Aruma support manager, Tanya Vellacott said. “Their transition to a SIL is just the tip of the iceberg!” Who is Aruma? Aruma is one of Australia’s leading NDIS service providers. A trusted partner and mentor to over 5000 adults and children with a disability, it all comes down to a clear promise, they will always put you first.
Find out more at: www.aruma.com.au
disability services putting first Aruma is the disability service provider who puts you first. You know how to live your best life, and we’re here to help you to do just that. Call us on 1300 538 746 or visit us at aruma.com.au
Link to...Employment
FOA - A celebration on film starring people with disability The Focus on Ability Short Film Festival (FOA) has just celebrated the 13th annual instalment, showcasing 264 finalists from 22 countries. and we see hundreds of film makers hold out a positive message of hope.” Wren said the festival reinforces key messages: “It encourages us to reflect on our beliefs and values. I never watch the films without being reminded of how fortunate we are to live in Australia and how proud we can be of the contribution made be people living with disability”. Each year the films are showcased on the FOA website and audiences come from around the world to view and vote for their favourites. This years’ online voting brought record numbers with over 70,000 registered voters with the films bringing in more than 300,000 viewers.
Nova Film Chrisford Chayera This festival invited film makers to Focus on the Ability of people with a disability and tell a story on film for the world to view. FOA was started in 2009 by NOVA Employment CEO Martin Wren. Despite the challenges Covid19 has thrown up, the festival has continued to thrive. “Focus delivers an upbeat positive message that celebrates the diversity that exists in the Australian community and invites us to consider how disability is viewed around the world,” he told Link. “Covid is scary and participation in the festival provides us with a reminder that we aren't alone, 62
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The festival continues to grow but its key principals remain. According to Wren: "Focus on Ability has grown beyond any imagining. I wanted to get high school students to look at how their fellow students living with disability were treated and hopefully reduce bullying. The idea was simple: How do you change attitudes? Tell stories? Storytelling touches hearts and it’s only by touching hearts, reaching people at an emotional level that's it's possible to adjust attitudes. The participation of tens of thousands of people as filmmakers, actors, viewers or voters demonstrate we have a winning formula,” he said. With over $100,000 in cash and prizes up for grabs the announcement of the winners is highly anticipated. Winners will be announced and celebrated via an online award event in October. Head to: www.focusonability.com.au for all the details and to view these wonderful films.
www.novaemployment.com.au
Link to...Employment
Qualifications count for disability employment When Sheena Wilson joined the team at Electronics Recycling Australia in March 2020, she came without any experience working with people with disability. “The course was challenging in the beginning, but as you get into it and your knowledge base grows it becomes clearer.” Due to Covid-19, Sheena completed a lot of the coursework via Zoom which was a challenge. However, she was able to have face-to-face contact with SA Group Enterprises REPACK production supervisor Andrew Bradley who was also completing the course and is based at Ottoway. Bradley is also responsible for training and development at the wine packaging company. “Knowing we were planning to take on more employees with disability I wanted to be prepared and ready for the transition,” he said. “The course teaches you how to interact and help people with learning new tasks and different parts of the job in different ways.”
Now, with the support of SA Group Enterprises, Sheena has successfully completed the CHC33015 Certificate III Individual Support (Disability) that provides her with a greater understanding of client’s needs at the SA Group Enterprises Ottoway site. “When offered the job of training and support coordinator I didn’t have any background in disability so it was my opportunity to boost my qualifications for the position,” Sheena said.
REPACK and ERA at Ottoway in South Australia already has two other team members studying for their Cert III qualifications. Many others across SA Group Enterprises are set to follow in qualifications that include Cert IV in Disability. “SA Group Enterprises are always looking for great people to lead our teams, and we are willing to support the right people undertaking the qualifications they need to be successful,” SA Group Enterprises executive manager, Andrew Wallace said.
To find out more refer to the website: www.sage.org.au
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sagroup
enterprises
creative
REPACK customised packaging services
Discovering my options, working with purpose. Common traits of people working in the disability sector; Kind, caring, compassionate. Is this you? If your career in disability services is important to you, choose to work at SA Group Enterprises. Contact us today to find out how you can join our team. P. (08) 7231 4999 E. recruitment@sage.org.au W. sage.org.au
Link to...News
New program to make libraries more inclusive I interviewed Chelsey Barnes-Shipley from not-for-profit organisation, Plumtree, that provides support for young children with developmental delays or disabilities, and their families. By Caitlin Maynard and occupational therapists to assist, as it is important to have experts from both fields to advise on how best to help these children. At the start of the program, Plumtree sent out a survey to parents of children with disabilities or developmental delays, asking about their past experiences when visiting their local library. Most parents admitted to not being comfortable going to their library. Some experienced challenges accessing programs, whilst others were made to feel uncomfortable about their child’s behaviour by other families or library staff. Their goal is to create a society where these children and their families can have enough assistance to have a full life in the community. Plumtree has set up Libraries as Community Connectors with the aim of raising the number of families with children with disabilities or developmental delays, access to programs at these libraries. Storytime and Rhymetime are just two of the programs Plumtree is developing to make libraries more accessible and inclusive. Other resources include a children’s picture book, written and illustrated by Donna Rawlins that will be distributed to every library in Australia. This book shows a diverse and inclusive communityfocused library vision, much like the one Plumtree hopes to create. Libraries that opt into the program will complete five self-paced online education modules. Part of these will be surveys that help to shape areas where the Libraries as Community Connectors team can enhance efforts to support families. Plumtree’s professional team includes speech
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Librarians and library staff were surveyed and shared that they wanted all families to feel welcome. However, many said they have not received formal inclusion training and did not feel confident in facilitating programs to children with a disability. “I have seen that this is often a problem that comes up in the disability community, as people don’t intend to exclude people with disability, they just don’t know how to safely and effectively include them,” Barnes-Shipley said. The program will take place in libraries throughout New South Wales and eventually be rolled out nationally. Some libraries are already making space for inclusivity while others are entirely new to facilitating children with disabilities. The aim of Plumtree is to gauge where each library is at and deliver training, resources and access to professionals necessary to increase their understanding, awareness and capabilities in welcoming all families. According to Barnes-Shipley “the program is just one way we are trying to make a positive change for these families”.
NEWS
Making theatre accessible with audio description
Across Australia, Vision Australia’s audio description team is making attending the theatre, opera or ballet more accessible to people who are blind or have low vision. Audio description provides people with information about the visual aspects of what’s happening on stage or screen through an additional audio track delivered by Vision Australia staff and volunteers. For theatre and other stage productions this includes descriptions of actions, scenery and costumes, all succinctly delivered during gaps in the dialogue. For audience members like Janene, who is blind, VA audio describers make attending and experiencing plays a richer and more immersive experience. “The first show I attended was Phantom of the Opera at Her Majesty’s Theatre,” Janene said. “I had never experienced audio description before. If there’s a lot of verbal communication, it’s nearly as enjoyable, but
you don’t get everything people are doing on stage. With audio description we get a similar experience to people who are sighted.” Volunteers like Jill, provide pre-show notes which includes the performance title, where it’s held, the writer, the cast, set and costume descriptions. “We include clippings of past performance reviews, so clients have the opportunity to make a decision about whether they want to see it.” Jill sees a play three times before describing it for the audience..
To see what events are taking place near you, visit our events calendar: https://www. visionaustralia.org/community/events
www.varadio.org linkonline.com.au
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Australia’s foremost assistive technology event
BRISBANE
MORE THAN 120 EXHIBITORS
11-12 MAY 2022
ROYAL INTERNATIONAL CONVENTION CENTRE RNA Showgrounds, Brisbane
SYDNEY
25-26 MAY 2022 SYDNEY SHOWGROUND Sydney Olympic Park Halls 5 & 6
SAVE THE DATE FREE Entry, Seminar Program & Coffee Voucher
www.atsaind
1300 789 845
ependentlivin www.atsaindependentlivingexpo.com.au gexpo.com.a u Organised by
Media Partners
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WHAT'S ON
What's on October/November/December OCTOBER 1st - 31st: Dogtober www.assistancedogs.org.au 4th - 16th: Down Syndrome Awareness Week https://www.downsyndrome.org.au 9th - 24th: Sculptures in the Garden Mudgee www.sculpturesinthegarden.com.au 15th - 16th: Brisbane Disability Expo https://brisbanedisabilityexpo.com.au/ 21st: Loud Shirt Day www.loudshirtday.com.au
NOVEMBER 15th: White Cane Day www.whitecaneday.com.au 24th - 25th: ATSA Independent Living Expo Canberra https://www.atsaindependentlivingexpo.com.au 19th - 20th: Melbourne Disability Expo https://melbournedisabilityexpo.com.au/ 25th: Australian Disability Service Conference & Awards https://adsca.com.au/ 20th - 26th: Assistance Dogs Awareness Week www.assistancedogs.org.au 27th: Ability Fest https://abilityfest.com.au/
DECEMBER 3rd - 4th: Nepean Disability Expo https://www.disabilityexpo.org.au All events were correct at time of print. Refer to websites for updates.
Book Giveaways Natalie Scott’s book Wobbly Truths & Other Stories is a collection of gems, each one a reminder that not only is ‘different’ normal but should be embraced with courage. The book takes you into the lives of many characters in 11 short stories. Not to be read all at once but revisited over time. Published by Bouley Bay Books E: MLC444@gmail.com Or order: www.ingramspark.com
Workplace Culture & The NDIS is a guide for leaders and people working in the Australian disability sector looking for tools to support their teams through change and build a values-driven workplace. Author Fran Connelly is a communications specialist with 20-years’ experience in the NFP sector. Her book is available from Amazon, Booktopia or from: www.cultureandcommunications.com.au
TO ENTER tell us in 20 words or less why you would like to win one of these books. Send to: kymberly@intermedia.com.au
linkonline.com.au
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Frontline workers being pampered Able Foods have been officially in personal protective equipment for 18 months, so the NFP called out to brands across the country to create ‘pamper packs’ for its 700 workers. More than $30,000 worth of product were donated including hand creams, face mists and lip tints that were delivered to their disability homes.
Take the Ready,Set, Move Challenge This annual event throughout November challenges all children and adults living with disability to walk, run, wheel, cycle, skate, swim, golf, complete push-ups or squats. Choose your own challenge to suit your fitness levels. Raise $100 and receive a Ready, Set, Move t-shirt. Join ambassador Evan in this fundraiser. Go to: https://www.readysetmove.org.au
Sunshine Butterflies hosts triathlon
Business Disability Awards a sell-out
It’s all happening in Queensland! The Sunshine Coast disability charity, Sunshine Butterflies hosted its second triathlon, with a twist, at their Cooroibah property recently. People of all abilities took part in three inclusive events that included a run, a wheelchair ride and water splash relay.
The Goods Shed in Toowoomba, on the Queensland Darling Downs was the place to be with a gala awards dinner that recognised people and businesses creating a more inclusive workplace for people with all abilities.
It was supported by The Block 2020 winners Jimmy and Tam, Good Shepherd Lutheran College Year 9 students, Sunshine Beach Education Unit, Emu Hire, Coles Noosa and charity partner Cerge-Your Digital Concierge. The event was sponsored by the June Canavan Foundation.
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The top gong, the Judy Antonio Memorial Award, was awarded to Desmond Orr, who has spent the past 40 years to support people with disability. The Social Inclusion Award went to St Vincent’s Private Hospital and the Innovation & Access Award was presented to Inclusion Access. MC for the evening was former Paralympian and disability advocate Karni Liddell and the 345 guests were entertained by the Wilsonton State School choir and keynote speaker, Paul Hockey, the first man with a disability to climb Mt Everest from the North Side. He spoke about how he lives by the motto: ‘never give up, never give in’.
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So everyone can thrive
We want to help every Australian build a connected future, including those who have difficulty using a standard home phone.
Visit telstra.com/disability, or call our Hotline 1800 068 424 (Voice), 133 677 (TTY).
ilit ab
Telstra’s Disability Equipment Program offers a range of solutions to support customers who are older or have a disability.
y
www.ndsp .com.au