FOCUS A Guide to
AIDS
Research and Counseling
Volume 12 Number 12 November 1997
Helping Clients with HIV Disease Navigate Managed Care Perry N. Halkitis, PhD and Tracy Mayne, PhD The move towards managed care raises concerns not only for those who have HIV disease, but also for the health and mental health practitioners who work with them. At the heart of the movement is the desire to contain costs. Critics argue that costcutting results in more limited access to appropriate health care; supporters claim that enrollees in well-run managed care plans benefit from increased efficiency and lower costs in primary care. At the federal level, programs such as Medicaid are rapidly making the transition from fee-for-service to managed care. As of 1994, 42 states had implemented programs covering approximately 24 percent of all Medicaid beneficiaries nationwide.1 While most states have focused on relatively healthy low-income families, recent efforts have targeted Medicaid beneficiaries with disabilities, including people with AIDS. The change to managed care is not restricted to government programs. More than half of all mid-sized companies in both the public and private sectors are offering only managed care plans to their employees; the proportion of Americans in private managed care plans has grown from 55 percent in 1992 to 74 percent by the end of 1996.1
Client Satisfaction Survey Some evidence suggests that older patients and patients with chronic conditions fare much worse in managed care plans than their counterparts in traditional plans.2 This is especially true for those with HIV disease. The basis for such arguments is that most managed care practitioners are not experienced in providing
services to people with HIV disease.3 In a 1997 study, conducted by the Gay Men’s Health Crisis in New York, researchers compared client satisfaction for participants enrolled in managed care, government funded, and private indemnity plans.1 Of the of 29 HIV seropositive individuals, 50 percent were African-American or Latino and approximately 90 percent were male. Half of those interviewed were enrolled in managed care plans, and threequarters of these reported that their plans permitted members to see doctors outside the health maintenance organization (HMO) network. The majority of participants (81 percent) had their medications covered through the New York State AIDS Drug Assistance Program (ADAP). The vast majority of the participants acknowledged both strengths and weaknesses in their managed care plans, and opinions were often based on reactions to specific experiences, rather than on global assessments of the plans themselves. Satisfaction was most strongly correlated with perception of the plan’s convenience, relationship with a person’s primary care physician, and limits on out-of-pocket expenses. Dissatisfaction, on the other hand, was associated with inefficient service, limits on choice of provider, and limits on the ability to receive state-of-the-art care. Some participants believed managed care to be unsuitable because the complexity of HIV disease exceeded their primary-care physicians’ HIV-related knowledge. They also reported prejudice and a lack of compassion toward people with HIV disease. For example, one participant said choosing a doctor from an HMO network is a game of chance: “You cross your fingers each time you pick . . . because you don’t know who the doctors are. And you better hope that this doctor is compassionate towards people with AIDS, has dealt with the AIDS com-