Editor
Dr Steven Cox Chief ExecutiveEmma Hartnett Publications Manager
Oliver Sparrow Communications Assistant
As Deputy Editors of the CRY Update it is our responsibility to put together this newsletter, and our ambition that you find all the CRY news, events and fundraising in these pages to be of interest.
We try to endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to contact CRY if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.
If you would like to contact us about the magazine please do so via updatemag@c-r-y.org.uk or on 01737 363222. Thank you for your help.
Alison Cox MBE Founder
Professor Mary Sheppard Consultant Cardiac Pathologist
To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
Meet Our Representatives
News from the Chief Executive
CRY Online
CRY Screening Report
CRY Centre for Cardiac Pathology (CRY CCP) Report
Bereavement Support
Research News
Great North Run 2023
CRY Medical Conference 2023
CRY Heart of Durham Walk 2023
MSP Support for CRY
Raising Awareness Week 2023
MS Support for CRY
Our Fundraisers
CRY Tribute - Alan Cousins
Fundraising Events
Raising
Head Office: Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD
Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.
Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.
If you can supply a writeup or photos for any fundraising activities you have taken part in, please email update@c-r-y.org.uk
For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:
1. CRY Supporters after completing the Heart of Durham Walk 2023. Page 24.
2. CRY staff during the CRY Great Cake Bake 2023. Page 29.
3. CRY Supporters by Durham Cathedral at the Heart of Durham Walk 2023. Page 24.
5. Dr Basu with Heather Reid and Professor Michael Papadakis. Page 16
6. CRY Supporters walking 30 miles around Cumbria Mountains in memory of Osahon Osawe. Page 58.
7. CRY Supporter completed the Brighton Marathon in memory of Freya Cox. Page 38.
8. CRY Supporters after completing the National 3 Peak Challenge in memory of Adam Dearnley. Page 40.
9. Dr Steven Cox and Joel James MS at the MS Support for CRY event at the Senedd. Page 30.
10. MSP’s gather at ‘parliamentary pledge’ launch in memory of David Hill. Page 26.
11. Young CRY Supporters held a stall at a children’s business fair in memory of Damien EwingBrand. Page 43.
12. The message wall at the CRY Heart of Durham Walk 2023. Page 24.
13. Professor Michael Papadakis at the CRY Medical Conference 2023. Page 22.
When in November 2001 our son James collapsed and died outside the family home, we were devastated. How could a seemingly fit and active twenty one year old die without warning?
At the time of James’ death Sandra was recovering from a broken leg and our GP made a house call. He thought James may have died from a cardiac arrhythmia. His thoughts proved to be invaluable.
When researching after James’ death we found CRY and they, along with close friends and relatives, were amazing. CRY introduced us to Professor Sanjay Sharma, and he thought James had died from Long QT. The family were all tested but nothing conclusive was found.
The original Inquest came and went but we remember little about it. James death was recorded as “Unascertained” with “Natural Causes”, but as time passed we become more and more unhappy with the verdict.
We understood DNA testing was not available on the NHS at this time, but a friend arranged to have it undertaken in Denmark. It took more than two years to get the results back, but they showed conclusively that James had died of Long QT. This vindicated Sanjay’s original diagnosis, and there followed DNA testing for the family. All tests all came back negative, and it was a massive relief that our daughter Abi was clear.
We then turned back to James’ death certificate, and after several unsuccessful starts, had a successful outcome in the High Court ordering a fresh Inquest. After this was undertaken, James’ death was then correctly recorded as Cardiac Arrhythmia Long QT. Throughout this long process we had really good support from our Coroner, Coroner’s Officer and Alison Cox at CRY.
We had maintained close contact with CRY, receiving great support from the Bereavement Support programme, and we thought it was now time to give something back. In 2014 we offered to become CRY Representatives, with an aim to support other families with their own Inquests.
We have been able to do that; helping some families with difficult inquests, and also worked with CRY staff in producing a booklet and online information about the
pathway most coroners investigations will take.
We also wished to raise awareness and routinely visit local schools, normally to talk to 6th formers, about the work CRY does and the implications for young people. We are encouraged that schools invite us back on an annual basis to talk to their new 6th formers, and one school has said we have been visiting them for the last ten years.
We know many students have gone on to attend CRY screening events, and we feel this makes our school visits so worthwhile. At one screening event a young man was picked up as having acute problems, and we met him again a year later. He showed us the scar on his chest where his ICD is fitted, and said that if had had not attended the screening event, he would probably been one of the 12 young people that pass away every week.
After attending several excellent Bereavement Support sessions with CRY, we decided we wanted to maintain social contact with other bereaved families, and so started “Walk and Talk”. We meet up on periodic Sundays, go for a walk, and end up having lunch.
We were delighted in the autumn of 2014 CRY offered to endorse and help with the advertising. We now have three other groups, one run by Linda & Geoff Goodwin in Gloucestershire, another by Dave & Sue Hughes in Stoke on Trent, and most recently with Jenny Thomas in Devon.
If you are interested in joining one of the groups, please get in touch via the details below.
Sandra & Jeff Markham
Please turn to page 13 for more information on the Walk & Talk groups, as well as how you can join a group and a full list of the areas currently active.
For a full list of CRY Representatives and their stories, please visit: www.c-r-y.org.uk/about-us/cry-representatives/
Dr Steven Cox CRY Chief Executive
@Drstevenjcox
drstevenjcox
Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from September to December, as well as information about some of CRY’s events in this period.
Congratulations and a massive thank you to the 43 runners who took part in the Great North Run for CRY on Sunday 10th September 2023. The 43 CRY runners were under difficult conditions, with weather switching from very hot to torrential rain, but it was a great day for all involved.
Read the full write up on page 20.
CRY supporter, Kulbir Nagra gave an interview to his local ITV news reporters, following his nomination for the Pride
of Britain awards. Kulbir was nominated for the ‘Regional Fundraiser’ award, which recognises the lengths individuals go to raise vital funds in their communities.
In November Kulbir joined Shabnam Sahi on Sunrise Radio as part of CRY’s annual ‘Raising Awareness Week’ to talk about his nomination and the importance of CRY’s screening programme and his work, alongside his family, to raise awareness of YSCD. The Nagra family have enabled 1,125 young people to have their hearts screened in memory of Pardeep Nagra.
The important awareness raised by CRY Supporters, like Kulbir, means that more young people in the UK will have the choice to have their hearts screened.
On the 1st of October more than 200 of our supporters joined us to take part in the CRY Heart of Durham Walk.
We are extremely appreciative of every person that made the effort to join us on such an important day,
a day where families can come together to reflect and remember those who tragically died due to Young Sudden Cardiac Death, and to support those who have been diagnosed with an inherited cardiac condition.
Read the full write up on page 24.
October saw the welcome return of CRY’s Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture Theatre at the heart of St George’s University, fittingly the home of CRY’s internationally acclaimed research programme and the CRY Centre of Cardiac Pathology (CCCP).
The event was expertly organised by CRY cardiologist Professor Michael Papadakis and featured twelve presentations from an expert panel of speakers covering a range of research topics, all with the potential to inform and challenge the way young sudden cardiac death (YSCD) is approached and understood across a global research community.
Read all about the conference and view videos from the day on page 22.
CRY’s campaign to establish a National Strategy for the Prevention of Young Sudden Cardiac Deaths was first launched with MPs in England to highlight that much more needs to be done to prevent young sudden deaths. CRY Supporters Sharon Duncan and Rodger Hill championed the launch of CRY’s MSP Pledge in Scottish Parliament, in memory of their son David Hill.
By launching this campaign in Scottish Parliament MSPs are being given an opportunity to show their support and recognition that more needs to be done to save young lives. Many families have fought hard to raise awareness of young sudden cardiac death and bring heart screening to communities throughout Scotland, testing thousands of young people.
The story was picked up by ITV Borders, with a long and very poignant feature broadcast on the early evening news bulletin and the late night politics show. A clip of this interview can be found here: bit.ly/3UQDaxn. Read all about the launch on page 26.
Soon after the launch, Sharon Duncan started a petition calling on the Scottish Parliament to commission research to establish how many people aged 14-35 are affected by conditions that cause Young Sudden Cardiac Death; clarify the number of people who die annually in Scotland from these conditions; and set up a pilot study to establish if voluntary screening can reduce deaths.
It is essential that policy to prevent young sudden cardiac deaths is informed by a true understanding of the incidence of YSCD and impact on family, friends and communities. Once acknowledged, much more will be done to prevent so many tragedies.
https://petitions.parliament.scot/petitions/PE2067
November 12
CRY campaigner Hilary Nicholls was interviewed by Cathy
Newman for Channel 4 News where she spoke about the death of her 21-year-old daughter, Clarissa.
Hilary spoke about the importance of young people having the choice to have their hearts screened, raising awareness of #TestMyHeart and CRY’s work to make screenings available to all young people.
The feature also included an interview with Professor Mary Sheppard, filmed at the CRY Centre for Cardiac Pathology.
The Association of Inherited Cardiac Conditions (AICC) is a national organisation which brings together a network of expertise from all over the UK, who work together with patient representatives, healthcare professionals and voluntary organisations to support improvements in the diagnosis, treatment and outcomes of people with inherited cardiac conditions.
Our team attended the AICC conference in November, watching amongst others, talks from former CRY research fellow Dr Joyee Basu on the risks and benefits of exercise in patients with HCM. It was brilliant to see so many supporting these essential services.
It is so important families are referred to cardiology specialists following a young sudden cardiac death and it is fantastic there is now a framework throughout the UK identifying the regional centres as well as other cardiologists which have taken an interest in supporting families with inherited cardiac conditions. This is a resource which can help families when approaching their GP when requesting a referral to a specialist https:// www.theaicc.org/play-of-map-and-directory-of-icc-serv
It was inspiring to see so many supporters take part in CRY’s Raising Awareness Week once again.
Now into its third year, 150 supporters took part in the 12 A Week Challenge - walking, running, horse riding, swimming, hiking, cycling and jogging 12 miles over the week. Each of the 12 miles/ activities completed represented the 12 young sudden cardiac deaths that happen every week in the UK.
44 Supporters took part in the CRY Great Cake Bake, which was another successful day with people arranging cake bake at their homes, schools and workplaces.
Alongside these two staple events, it was inspiring to see so many supporters helping out on social media, sharing, liking and boosting our posts to raise awareness of CRY’s important work.
Turn to page 28 to read the full write up of both events.
The inaugural ‘drop in’ session for Members of the Senedd as part of the new #MSsupport4CRY campaign took place in November. The session was championed by Cllr. Jane Gebbie in memory of her grandson Justin who died suddenly and tragically from a heart condition in 2019, aged just 19.
The event hosted a panel of speakers, including CRY
supporter Dan Mason, Cllr. Jane and myself, who talked guests through the work that CRY carries out across the UK to help prevent young sudden cardiac death (YSCD) as well as the importance of its cardiac screening programme.
Once politicians begin to take young sudden cardiac death seriously, we will move towards a time when every young person will have the opportunity to have their heart tested. A national strategy is required to prevent young sudden cardiac deaths and it’s wonderful to see that there is already so much political support in Wales, with eight members signing up on the day.
Read a full write up of the day on page 30.
In December The Times published a two-page article, including a first person account from CRY Supporter Andrew Osborne. Andrew spoke of his astonishing 3,000-mile row in memory of his daughter, Amy at the beginning of 2023. Andrew says in the article:
“It was helpful to the grieving process to try and make some good of losing her. If all the testing, screening, raising awareness and analysis that we’re doing stops this from happening to one other family, then it doesn’t make Amy’s death worthwhile, but it makes us feel better.”
As well as raising vital funds, Andrew has continued to raise awareness of CRY and the importance of screening with articles like this one. This truly incredible acheivement is a powerful example of of how bereaved families channel their grief to prevent others from suffering a similar loss.
To read the full article please visit: www.thetimes.co.uk/ article/when-my-daughter-died-at-only-24-i-decided-i-had-todo-something-8zgvlt5fk (Times subscription required).
To mark the end of the year, we put together a page on our website that highlighted what our supporters, volunteers, research fellows, doctors and trustees have been doing in 2023.
It’s always incredibly moving to see what our supporters and families are doing throughout the year to support CRY, and this was no exception. Thank you to each and every one of you for continuing to support CRY.
Visit: www.c-r-y.org.uk/looking-back-at-2023/
Please turn to page 76 for links to more online, press, television and radio coverage related to CRY or visit: www.c-r-y.org.uk/inthemedia
Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.
During this four-month period CRY’s Facebook page had increased engagement with over 2,000,000 impressions and 95,000 engagements, with over 280,000 on Twitter/X, and over 260,000 on Instagram. This is a fantastic show of the impact CRY social media has in raising awareness of YSCD and CRY’s vital work.
A Facebook post that received over 17,000 engagements and 3,375 reactions was an online article from The Sun about the tragic death of Jonathan Stead.
Dave and Karen, Jonathan’s parents, alongside his sister, Becky have been raising awareness alongside fundraising to hold screenings in Jonathan’s memory. Dave said, “as a family we have pledged to continue his drive and enthusiasm for life by raising money to hold screening events for 14-to-35-year-olds in the local Driffield area”.
Another popular post on Facebook, was our regular campaign ‘Meet Our Supporters’, featuring the stories of CRY families. In September the campaign covered the story of young CRY fundraiser, Harry Steel.
“Harry was always determined that something positive had to come out of the loss we experienced when his beloved Uncle – & godfather - David, died suddenly from a heart condition in 2015. From the age of 9, Harry threw himself into fundraising as he just wanted to do all he could to prevent other families from going through the same grief as we did.”
These are the words of Lisa Steel, spoken so proudly about her son, Harry (now 17) from Wallsend, Tyne & Wear who has spent much of the past 8 years, raising funds for CRY in memory of his Uncle (Lisa’s brother) David White.
This campaign followed on from the ‘Why Do I Support CRY?’ campaign, launched in early 2023. Harry’s story received some of the highest engagement on Facebook (with over 16,000 engagements and 3,348 reactions) and Instagram in September, as the campaign as a whole continues to do. The response on social media shows the importance of telling families stories.
CRY supporter Hilary Nicholls appeared in a Channel 4 news interview with Cathy Newman in November, talking about the tragic sudden death of her daughter, Clarissa Nicholls. Hilary’s powerful story was viewed over 350k times on Channel 4 news’ X account, and 47k times after Cathy Newman kindly shared the story.
Our key messages and statistics were interacted with and shared the most throughout Raising Awareness Week on X, with over 200 engagements.
Over on our Instagram page
CRY’s Raising Awareness Week was popular among supporters. Whether taking part in the 12 A Week Challenge and the CRY Great Cake Bake or sharing posts
and stories across social media, it was great to see the impact this important week in the CRY calendar had.
Posts with the most engagement included a good luck message to our Great Cake Bake participants; a post about our myheart group; a carousel of our key statistics; and a post linking to the CRY Christmas Grief booklet. Seeing all areas of CRY’s work being shared across social media like this is powerful and such an important way to raise awareness.
Thank you to everyone who tagged us in their stories too, it was wonderful to see all the cakes baked, the miles travelled, and the incredible effort our supporters go to, to raise awareness in memory of those who have died from young sudden cardiac death.
Throughout this period our #FundraisingFriday posts have consistantly been shared by supporters who have sent in their photos and details of fundraising they’ve done in their local communities.
Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings and photos from fellow supporters.
Every share of a post helps spread awareness about CRY a little further. So if you’d like to follow along, here’s where you can find us:
Between September and December 2023, CRY screened over 6,769 people
2,812 young people were screened at family screening events in memory of: Andrew Macleod; Daniel Hughes; Bethany Mycroft; Freya Rose Dalrymple; Adam Rowbottom; Craig’s Heartstrong Foundation; Christopher and Steven Philips; Lewis Marsh; Scott Cowan; Richard Brember: Olly King; Jamie Loncaster; Anthony Fitzgerald; Aaron Dixon; Sara Pilkington; Andrew Oliver; Paul Sheridan; and Harry Faulkner.
2,667 young people were screened at school screening events at; Nicolson Institute School; Ravensmead Primary School; Royal Grammar School; Chislehurst and Sidcup Grammar School; North Chadderton School; Holyrood Secondary School; Old Swinford Hospital School; Allestree Woodlands School; Sedbergh School; Leeds Grammar School; Culford School; Sutton Vallance; Garstang Community Academy; Sidmouth College; Wellsway School; King Edwards VII School; Bodmin College; Milfield School; Langley Park School for Boys; and Hayfield Primary School.
720 athletes were screened at sports screening events: Arsenal FC Academy; Welsh Rugby Union Women’s Squad;
RFU Sports Academy; the INEOS Grenadiers; Royal Ballet School; London City Lionesses; Bridlington Rugby Club; British Olympic Athletics Olympic Squad; British Athletics Paralympic Squad; Henley Rugby Club; Cambridge Rugby Club; and the Sale Sharks Premiership Rugby Club.
339 young people were screened at screening events held at the CRY Head Offices in Leatherhead.
231 young people were screened thanks to the Northern Ireland memorial Fund.
166 young people were screened thanks to the Young Windy Screening Fund.
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.
Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram will often be taken on the same day. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.
The screening programme is under the aegis of Professor Sanjay Sharma and Professor Michael Papadakis.
Professor Mary Sheppard, Consultant Cardiac Pathologist
Emelia Zullo, Laboratory Technician
Khari Edwards, Laboratory Technician
2023 was another busy year at the CRY Cardiovascular Pathology Laboratory. We have had an increased number of referrals, with a total number of 571 cases referred since the start of 2023. The number of spleens referred has substantially increased,with 365 referred in 2023.
•Professor Sheppard had 20 papers published in 2023. These papers focus on aspects of sport, gender, age, ethnicity and pathological diagnosis of sudden cardiac death in the young, and are a direct result of our CRY funded database.
•We are also heavily involved in the National Sudden Death NHS genetic and family follow up programme as Pathology Lead, giving guidelines to other pathologists in 7 regional centres with coordinators who are essential in arranging the genetic testing and family screening for cardiac conditions.
•The 7th Cardiovascular Clinical Academic Group Seminar was held on the 29th of September. Professor Jeffrey E Saffitz gave a talk on “The role of inflammation in the pathogenesis of arrythmogenic cardiomyopathy”. Some of our staff members attended the lecture, and Professor Saffitz visited our lab on the day and was shown some ACM cases from our museum.
•In October, our unit was featured in a Channel 4 news segment about the case of Clarissa Nicholls, a young girl who died from ACM. The news crew came to the lab to film, and Professor Sheppard spoke about the increased numbers of SCD cases we
175 heart cases were referred to our unit during this quarter, coming from various regions throughout the UK and Europe. Both Professor Sheppard and Dr Joe Westaby reported on these cases.
are seeing come into the unit.
•In late November we had the pleasure of hosting three forensic pathologists who travelled from Denmark to be trained by Professor Sheppard and Dr. Westaby. Birgitte Astrup, Maiken Kudahl Larsen and Trine Skov Nielsen trained with us for 2 weeks between November 20th to the 1st of December.
The pathologists gained insight into the macroscopic and microscopic examination of hearts received into our unit, and were introduced to our database, which they were very impressed by, and stated it would be useful in the development of similar systems in their country.
During their stay, they reviewed myocarditis cases from or database, with the purpose of evaluating new proposed guidelines for the diagnosis of myocarditis.
•In early December, three of our staff members had the opportunity to present their research posters at St George’s University Research Day, showcasing some of the research undertaken here at CRY pathology. Clementine’s poster was shortlisted for the Chrissie Fenske award.
CRY’s annual walks in London and Durham give families the opportunity to come together to remember young people who have died suddenly.
International opera star Kathryn Harries first had the idea for a walk in 2006, the year she became a CRY Patron. Then, on 7th July 2007, she completed a 32mile walk along the Thames path, heading across all of the bridges from Hampton Court to Tower Bridge on her way.
A week later on July 15th, Kathryn was joined by over 400 CRY supporters from all over the UK for another walk. This time, they walked for eight kilometres across eight bridges from Westminster to Tower Bridge. The eight bridges on the route signified the eight apparently fit and healthy young people dying every week from undiagnosed heart conditions, which was believed to be the figure at the time. (Now, of course, as CRY research has shown that this weekly figure is 12, the routes for the walk have expanded.)
This 2007 event became the first annual CRY Heart of London Bridges Walk. Without Kathryn’s initial idea, passion and involvement, it might not have begun – we will always be grateful for her support with this event.
In the years since, this has become CRY’s flagship event and the main occasion on our calendar each year. The
number of walkers we’ve had attending has continued to increase, and as a result the event has continued to develop at new venues, with new routes, and new parts of the day including the CRY Family Picnic.
The time after the walk has become a chance to gather, eat, take part in activities and listen to music; alongside this we still have space for quieter moments of reflection, talking to our support team and a message wall for thoughts and memories.
“When you first walk in and see all the pictures of young adults on the big screen with messages from their families, you could feel the emotion. I realised that I’m not on my own. Everyone was so friendly. It made me realise how many families have also gone through the same thing and how important it is to create awareness”
Andrea Joyce in memory of Kieran Joyce.
“The first time is the hardest, but you will be strengthened in the company of others who understand how you feel. While none of us ever wanted to join the CRY community we are so grateful that they are there for us.”
Diana Hunt in memory of Matthew Hadfield.
“Really worth doing if you have recently lost a loved one to an undiagnosed heart condition… walking in solidarity with other families and realising you’re not the only one to go through such a loss, taken part twice and it helped me and my daughter a lot.”
Andrew & Caitlin Quew in memory of Gemma Quew.
The following is a re-print from CRY Founder Alison Cox MBE. Alison’s previous columns for the Update can be found here: www.c-r-y.org.uk/alisons-columns/
“It is significant that CRY’s Heart of London Bridges Walk has become such a massive feature in the CRY calendar that we start preparing for it immediately after the previous one has finished.
“The power of our families coming together for what has always been our most important and well attended event cannot be exaggerated. Knowing that they will have the opportunity of walking and talking with others similarly affected provides a secure blanket of relief that their catastrophic grief will be understood.
“A place where the vaccum of loss needs no explanation. Where tears will be commonplace. Being able to share the repercussions of the ‘new you’ that they have become allows an outpouring of the person they were. Now are.
“Being able to write a personal message on the massive CRY bereavement board and read the stories of others suffering like themselves, can relieve the pain.
“Coming to terms with the young sudden cardiac death of an apparently fit and healthy child, sibling, partner or friend can be catastrophic and impossible to understand. There is no logic or science of reasoning that can be applied. Death is instant, without warning.
“The brutality of the loss is best spoken of, and none better than to another with a similar situation to come to terms with, it needs no interpretation and the warmth of understanding each other can hugely help them to understand themselves.”
In addition to CRY’s flagship walks each year, some of CRY’s Representatives have set up their own Walk & Talk groups in London, Gloucestershire, Staffordshire and South Cheshire and most recently, Devon.
Walk & Talk is a small voluntary group, established by CRY Representatives Jeff and Sandra Markham, who meet once every two months. The walks are not for fundraising, or raising awareness, but just a social gathering for CRY families and CRY individuals to give the opportunity to meet with others who have been affected by a young sudden cardiac death.
The London Walk & Talk group is run by Sandra and Jeff Markham, with walks based around the London parks.
The Gloucestershire Walk & Talk group is run by CRY Representatives Linda and Geoff Goodwin, which are often based around the Severn River and canals.
The North Staffordshire and South Cheshire Walk & Talk group is run by CRY Representatives Dave and Sue Hughes.
The Devon Walk & Talk group is run by by CRY Representative Jenny Thomas.
If you would be interested in receiving further information about Walk & Talk, please email Lily at the CRY office at lily@c-r-y.org.uk, who will put you in touch with the Walk Leaders. The Walk Leaders would keep you in touch with any upcoming walks in case you would like to join them.
If you would be interested in joining us this year on June 23rd for the CRY Heart of London Bridges Walk, to register please visit: www.c-r-y.org.uk/heart-of-london-bridges-walk/
Whenever a donation is made to CRY’s core funding, approximately 25p in every pound will go towards CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death.
In 2023, between September and December we have received further contributions from the following memorial funds:
•Joe Parkinson
•Oliver Hewitt
•Natalie Stewart
• Fraser Vaughan
• Scott Cowan
• Lydia Bird
• Suanu Saro-Wiwa
• Barry Nivett
• William Lane
• Rebecca Phillips
• Adam Rowbottom
• Julian Wort
• Rosie Mitchell
For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.
CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers and key decision makers and presenting findings at UK and international conferences.
The issue around the impact of exercise and physical activity on young people living with a heart condition is something that is much debated amongst physicians themselves on the ‘conference circuit’ and often comes up at CRY’s myheart meetings, too. Indeed, CRY’s cardiology experts are commonly asked, ‘is it safe for me to exercise?’ or ‘should I even break into a sweat’.’
We’re therefore delighted to be profiling the work, research and academic achievements of former CRY Research Fellow, Dr Joyee Basu, who has now returned to Oxford University Hospitals NHS Foundation Trust where she is working as a final year cardiology registrar and continues to advocate for the benefits of cardiac screening and cardiac
rehabilitation to help people with a heart condition get back to regular exercise.
In fact, the issue of ‘safe levels of exercise’ for patients living with a condition called hypertrophic cardiomyopathy (HCM) came under the media spotlight recently as C4 Newsreader, Krishnan Guru-Murthy spoke openly about his own diagnosis with HCM and the additional consideration he needed whilst taking part in the 2023 Strictly Come Dancing competition.
With due care, advice and monitoring by his cardiologist, Krishnan didn’t let his HCM hold him back and after months of rigorous training he successfully made it to the 7th week of the gruelling (although glamourous!) show.
In a full page feature in the February 2024 edition of Runner’s World magazine, CRY supporter Tim Ward (an HCM patient, with an implantable cardioverter defibrillator (ICD) fitted – and who took part in Dr Basu’s key research trial at St George’s, University of London) was quoted as saying;
“The trial showed I could exercise below my theoretical maximum threshold without being at risk and it was fantastic to find those answers about myself whilst also helping others living with heart conditions. Running continues to be the way I can destress, spend time outdoors and en-
joy the social benefits of Park Run. When I was diagnosed, I thought my life would never be the same again; in some ways it’s not but in others it’s a case of carrying on doing what I love – including running.”
So, here, we chat to Dr Basu to find out more about her fascinating research projects, the proposed practical application of her findings and the difference it could bring to people diagnosed with HCM.
Dr Basu also talks about the lessons she learnt from being part of CRY’s pioneering cardiac screening programme, thanking the Alex Reid Memorial Fund which supported her research and how she’s helping to spread the word about CRY’s work.
Firstly, congratulations on the recognition and interest around your very well-received presentation at the European Society of Cardiology (ESC) Conference last summer (August 2023).
Can you talk through the focus and objectives of this piece of research [“Mechanisms of adaptation to high intensity exercise in HCM”] and explain how this project evolved from your original CRY-funded trial back in 2019/20? [“Safety and outcomes of a structured exercise programme in young patients with HCM”: The SAFEHCM trial].
“It was a real honour to present at the ESC last year where I shared the findings from an important sub-study of my CRY-funded research project.
‘’In the original SAFE-HCM study we placed 40 individuals with HCM into a high intensity exercise programme and 40 individuals into a ‘usual care’ group (i.e. they carried on with life as usual).’
“It was so encouraging to see a real improvement in the exercise capacity of those who exercised in the ‘high intensity’ group when compared to those in the ‘usual care’ group.
“We then went on to explore how these improvements in
exercise capacity might have occurred. I was particularly excited about investigating this because we knew there hadn’t been any previous studies into the mechanisms of adaptation to high intensity exercise in HCM.
“Many individuals with HCM demonstrate exercise limitation, whether that’s due to their underlying cardio-respiratory fitness, their body mechanics or body habitus (physical build), which can affect the general population too, or the way their heart pumps blood around the body (central factors), and/or how efficiently they are able to extract oxygen from the blood (peripheral factors). So, I was particularly keen to understand whether improvements in these central/peripheral factors might be responsible for the observed positive adaptation to exercise.
“We found that the cardiac output – i.e. the amount of blood your heart pumps around the body in a minute (driven by the amount of blood pumped per heartbeat) increased, which led us to conclude that there was a favourable, central adaptation to exercise and that the heart was pumping more efficiently as a result of the training during the exercise programme.
“I realise this is a complex idea to ‘get your head around’ for non-medics (which I hope I’ve simplified here!) but the fact that there may be beneficial effects of exercise in those with cardiomyopathies is a positive message for fellow clinicians and our wider CRY community to hear.’’
Can you tell us a bit more about your motivations behind this research?
“The drive behind my research into patients with HCM (who make up a significant proportion of my patients, being the most common type of cardiomyopathy) came from my own experiences and what I had read about attitudes towards exercise in these individuals. A large proportion of individuals are/or have been told to significantly limit their exercise. That’s historically because HCM patients were believed to be at a greater risk of cardiac arrest and, potentially death, during exercise. In the past the ESC and other medical bodies reached a consensus that these individuals should be restricted to engagement in very low intensity exercise.
“As such, this led to a generation of HCM patients becoming incredibly sedentary, with around 55% of those who’d been diagnosed with the condition reportedly not even doing the ‘bare minimum’ of physical activity –something which can in turn lead to obesity and increase the risk of cardiovascular disease, not to mention the huge psychological impact. Just imagine you’re someone who had previously enjoyed sport and regularly exercised – to be suddenly told you must immediately stop.
“I started by exploring more of the emerging, contemporary evidence which was increasingly suggesting that this might not be the entire story
“I was aware there’d been some more investigations into the benefits (and potential risks) of moderate exercise, although these studies had only been carried out in middle-aged to older patients. But encouragingly, even these studies had shown an improvement in the participants’ exercise capacity, without any signal for an increase in adverse effects.
“There’d also been some general population studies (although again only really looking at older people, engaging in moderate intensity activity) and these had reflected a reduction in mortality risk. We also conducted a study into the effects of exercise on heart structure and function as well as outcomes in athletes with HCM and found that there was no increase in serious adverse events. More recently, a project called the LIVE:HCM study has also looked at individuals who self-reported their levels of activity, and the authors found there was no difference in outcomes between those who engaged in vigorous exercise and those who engaged in moderate/low intensity exercise.
“But a lot of these were small studies lacking long term follow-up and nobody had looked into a randomised, controlled trial (RCT), specifically investigating high intensity exercise which is where our SAFE:HCM trial came in. That’s why I was so delighted when it was agreed that CRY’s Research programme would fund the pioneering study – more of that later…!
“In essence, we randomised individuals with HCM to high intensity exercise which had never been done before (vs. ‘usual’ care) and interestingly we observed beneficial effects in the following areas:
•Risk factor profile (reduction in blood pressure and weight loss)
•Exercise capacity
•Psychological impact (including factors such as depression and anxiety)
•There was also no increase in heart rhythm abnormalities.
“Importantly, we showed it was feasible and could be ‘safe’ to carry out this type of study with this specific group of patients – which again, was a really positive step and paves the way for future studies.
‘’I do have to caveat at this point though that the study was small, the participants were also relatively low risk and in good health. So, moving forward, I would definitely want to see larger, multi-centre randomised trials with longer follow up to help really progress our understanding.
“For now, we still have to be careful and take a very personalised and individual approach to safe “exercise prescriptions” but we can begin to feel confident about not having to limit and restrict all patients with HCM in their levels and intensity of exercise. It’s all about risk-stratifying individuals into the appropriate groups for the type of physical activity they would like to participate in.”
How do these findings translate to clinical setting and the decisions that physicians might have to be making on a regular basis?
“I do understand that at first glance my findings might go against the guidelines and advice we’ve historically followed. However, the way we’re looking at this now is that individuals should be risk stratified and they should be part of a shared decision-making process with their cardiologist, to help them understand their limits and to ensure they are kept well-informed of any activities which might be considered potentially dangerous. It’s not a doctor’s role to say ‘no’ without explanation and to adopt an overly prescriptive approach but to talk through the possible risks and to decide together. Of course, if we ever felt a patient might want to do something particularly risky, then there might be occasions when we say we would strongly advise against something.
“However, as doctors, we should ensure that we thoroughly investigate our patients, looking out for red flags. These may include previous cardiac arrest, exercise induced fainting, evidence of heart rhythm disturbances, abnormal blood pressure or heart rate responses during exercise tests, genes that might predispose to worse outcome and scar within the heart etc. Armed with a full medical background, we will increasingly be able to take a personalised approach with our advice.
“I have first-hand experience of managing individuals with HCM who have elite athletic sporting backgrounds, and this really takes our insight and experience to a new level. We have to carefully consider how we mitigate risk through thorough assessments and regular surveillance to ensure we’re doing all we can to prevent a cardiac event.
“Through CRY-funded research we have shown that in athletes where we have adopted this approach, there is no signal for adverse events or worsening of their underlying HCM but ultimately it always comes down to tailoring the exercise prescription to the person you have in front of you.”
So, in summary, what are the main findings of this research and how might your conclusions positively impact people living with a diagnosis of hypertrophic cardiomyopathy?
“The results of this initial trial show that in the “right
patient with the right risk factor profile” we should now be able to ‘allow’ them to do more exercise than they once thought possible.
“That’s of course not to say that everyone with a diagnosis of HCM could, and should, be doing high intensity exercise – but we really hope the findings of my research are laying the foundations for clinicians having more confidence in advising a proportion of our patients that it is safe to do so. I’m hopeful that in the future, larger studies with a longer-term follow-up will provide more evidence to further cement these results.
“On a personal level, I’m so passionate about making sure that everyone can safely exercise at some level, as the benefits on overall physical and mental health are indisputable.”
How would you like to see the knowledge gained from you research/patient trials, rolled out in a ‘practical and accessible’ way?
“I am now really committed to developing an ‘exercise prescription’ document for clinicians so that they can guide their patients through their options for exercise. Such resources could serve as a useful reference point for cardiologists as well as other physicians, who might want to update their knowledge on the latest guidelines and patient advice, as well as learning more about inherited cardiac conditions and the benefits of exercise rehabilitation.
“There is a lot of generic advice that is not routinely passed on such as appropriate warm-ups and cool downs, modifications in use of weights, encouraging consistent rather than stop start activities etc which could also be packaged into such an exercise document. My hope is that once the relevant baseline test results, and risk assessments are performed for each individual with HCM, physicians will become more confident about prescribing low, moderate or high intensity exercise.
‘’ I am also working on creating a cardiac rehabilitation programme for patients with HCM, something that the NHS is currently lacking, to help individuals to “get into” exercise (particularly those who might have previously been told it was unsafe to take part) with advice and guidance on low to moderate intensity exercise)’’. I am hoping that this could be paired with a patient resource (whether on printed, downloaded ‘sheets’ or filmed and uploaded to an easily accessible YouTube channel, perhaps hosted by an organisation such as CRY).
“Ultimately I hope that patients will feel more empowered and challenge their physician about any previous advice they may have been given about avoiding exercise!
“I have to admit that before I joined CRY’s Research Fellow Programme and had the privilege of working alongside Professors Sanjay Sharma and Michael Papadakis, I simply didn’t know enough about ‘exercise prescription’. It’s therefore amazing to think that I - and all the other Research Fellows trained by CRY –can move on into future clinical roles, in different hospitals across the country and spread the word about the education we’ve had. I believe that’s part of our duty as a CRY Research Fellow!”
Following your research fellowship with CRY, you returned to a clinical role – but can you tell us how important it is for you to stay involved with research projects, presenting at major research conferences etc.
“So, as you might imagine, working as a cardiology registrar is a pretty full-on role. But I did miss the acute medicine side of my job whilst I was fully immersed in research so yes, it’s good being back treating patients.
“Since my three years with CRY, I have by no means lost my passion for inherited heart conditions and now am very much involved with the inherited heart conditions service in Oxford where I continue to do clinics and attend MDT [multi-disciplinary teams] meetings. Due to my experience with CRY and subsequent reputation as a researcher, I am often asked specific questions about exercise rehabilitation by colleagues and safe levels of exercise.
It’s always nice to know that I am bringing useful information and insight to my new hospital from my time at St George’s.
“I also regularly help to recruit patients for trials that are ongoing in Oxford, including at the moment for studies into novel therapies for HCM; but my main motivation is a commitment to innovation within the NHS, which is really where my idea for a cardiac rehabilitation programme for patients with HCM first stemmed from, using my research background to do something really practical and accessible ‘on the ground’ which will ultimately benefit our patients.
“I hope that by presenting my research and speaking at
conferences, I’ll be playing a part in keeping our wonderful CRY families – who contribute so generously to the research programme – up to date with the tangible outcomes of our work and demonstrating the positive impact on individuals who’ve been diagnosed with a heart condition (very possibly picked up through CRY’s screening programme).”
So, looking back…why did you first decide to apply for a CRY Research Fellowship?
“Well, as a trainee cardiologist, you really don’t get to learn too much about inherited heart conditions and sports cardiology (as that’s considered a sub-speciality) but I kept hearing about all the amazing research coming out of St George’s, University of London – mainly via Dr (now Prof!) Aneil Malhotra who’d been my Registrar at the hospital we were working together at in Oxford and who’d secured a coveted place on the 3-year CRY Research Fellow programme.
“So, I looked into the application process and became fascinated by the work being led by Professors Sharma and Papadakis – as well as reading up on CRY’s pioneering screening programme which feeds into the research centre at St George’s, and which at the time was a concept I knew very little about.
“I applied and despite it being a highly competitive process, I was lucky enough to be awarded a Fellowship. I started in October 2016 and the rest, as they say, is history!”
What were your main highlights during this time – both in terms of research outcomes / awards / professional recognition, as well as your experience of working with CRY’s screening team around the country?
“There are too many highlights to mention them all – but I think I absolutely have to start with CRY’s ‘families’. During my time working with CRY’s screening programme up and down the country, it was always so incredible and inspiring to see human resolve in action.
“And, I would like to take the opportunity to give a particular thank you to Heather and John Reid, whose 16 year old daughter, Alex, so sadly passed away in 2012. They really were the reason that I was able to get all this ‘done’ as they generously funded my research project through Alex’s Memorial Fund with CRY.’
“The way that humans can somehow turn tragedy into a positive is something that I learnt so keenly from my time with CRY – and is 100% something which I took away with me from my training as a CRY Research Fellow.
“Screening was sometimes tough – being out and about, all over the country, often after a busy week at work – but the minute you met the family who’d funded the screening session that were attending and helping to manage for the weekend, all of that dissolved. You always realised the importance of what you were doing and the impact of screening.
“I presided over the screening of thousands of young people across the course of 3 years and not only did that give me huge professional experience in terms of looking at so many ECG tracings and gaining such a thorough understanding of what’s ‘abnormal’; but I also really appreciated the ‘on the ground’ effect of what we were doing as CRY Research Fellows.
“I will never forget one particular example, which I think will stay with me forever. I was at a screening (quite early on in my Fellowship) when a young man came along who had booked a screening appointment and told he was due to run the London Marathon.
“I looked at his ECG and immediately thought ‘this looks abnormal’ so I requested an echocardiogram and pretty much on that same day I confirmed the diagnosis because it was so obvious that he had a condition called ARVC (arrhythmogenic right ventricular cardiomyopathy).
“In my opinion, CRY’s screening programme (it’s not just down to me, it’s a true team effort!) may have saved that
young man’s life because if he’d have run a marathon (as we know intense training actually worsens this type of condition) we can’t be sure of the consequences.
“Because of CRY’s screening programme, we were able to refer him for further investigations and lifestyle advice, ensuring he received the treatment he needed and that he was regularly monitored.
“This is one case when we certainly advised, ‘do NOT undertake something as strenuous as training for a marathon.’
“I’d also like to mention here the amazing camaraderie I saw within the CRY screening team – whether physiologists, admin staff, drivers, doctors or family volunteers, all of whom were often giving up their weekends to facilitate the events and ensure they ran smoothly. We visited every corner of the UK and you got to know everyone so well. I felt really lucky to have all those incredible people around me.
“Another highlight, as I briefly alluded to earlier, was the exposure to elite athletes. I got to screen the 2019 Rugby World Cup squad just before the tournament which was certainly a professional and personal highlight (!) as well as screening sportsmen and women within bodies such as Sky Cycling, RFL, the EIS (English Institute of Sport) and the LTA (Lawn Tennis Association). The experience I gained in having to navigate conversations with athletes on the rare occasions we identified abnormalities, was invaluable.
“As I mentioned, it’s not as simple as just saying “you can never exercise again.” This is someone’s livelihood – they may have a large sponsorship deal with huge amounts of money riding on it and nothing to fall back on. These are the kinds of conversations that you need to learn how to manage, and it must always be a carefully navigated, joint decision-making process.”
Any further thoughts and insight you’d like to share with CRY’s ‘community’ about the positive impact of a CRY Research Fellowship on you as a clinician with a specialism in heart conditions that can affect young people?
“Oh, where to start! Again, the positive and humbling impact from my time as a CRY Research Fellow comes from the families I met who were just so incredibly warm, generous and welcoming.
They looked after the screening team so well, often laying on the most wonderful refreshments etc. It sounds silly but sometimes you felt like a celebrity when you arrived!
The families always told us how grateful they were, although we always told them we were just doing our job.
It was the families that absolutely galvanised us to keep screening and to keep getting better.
Looking back, it was an absolute honour to part of the CRY Research Fellowship and CRY screening programme and I learnt so much – which hopefully I will be able to give back to my patients as I progress in my career as a cardiologist. And, my geography of the UK is now amazing too thanks to the CRY screening programme!”
Finally, in addition to the research you presented at the European Society of Cardiology (ESC) 2023, can you tell us about some of your other key academic achievements since becoming a CRY Research Fellow?
“I have been fortunate to have been involved with a number of research projects since 2016, led by myself and as collaborative efforts with my many of my peers at St. George’s. In addition to presenting at over 20 national and international conferences, my key academic awards include:
•British Cardiovascular Society Best of the Best Abstract Prize Winner: Safety and outcomes of a high intensity exercise programme in young patients with hypertrophic cardiomyopathy: the SAFE-HCM study, Jun 2021
•British Cardiovascular Society Young Investigator Award (YIA) runner up: Six-month outcomes of a high intensity exercise programme in young patients with hypertrophic cardiomyopathy: the SAFE-HCM study, Jun 2021
•European Association of Preventative Cardiology YIA runner up: Safety and outcomes of a high intensity exercise programme in young patients with hypertrophic cardiomyopathy: the SAFE-HCM study, Apr 2021
•St George’s, University of London Research Day PhD/MD Finalist: The SAFE-HCM trial, Dec 2020
•British Cardiovascular Society Best of the Best Abstract Prize Winner: The effect of ethnicity on LV adaptation to exercise, Jun 2018
“I have contributed to numerous editorials, peer-reviewed publications and research group papers. And, during my postgraduate tenure I directed a cardiovascular screening module and taught on the cardiac rehabilitation module within the MSc in Sports Cardiology at St George’s University, alongside supervising BSc and MSc students.
“I also enjoy contributing to the annual CRY International Conference (including the most recent event which took place at St George’s, University of London in October 2023.”
For a full list of research papers which Dr Joyee Basu has contributed to go to: www.c-r-y.org.uk/crys-contribution-to-research/
A huge thank you and congratulations to the 43 runners who took part on Sunday 10th September
Congratulations and a massive thank you to the 43 runners who took part in the Great North Run for CRY on Sunday 10th September 2023!
It was a brilliant day, though with a mixture of running conditions. Firstly the weather was sunny and hot, quickly turning into torrential rain, with runners and supporters alike seeking cover in the charity village. Though neither of these are ideal conditions for running, the team did amazingly well to all get round the course safely.
It was lovely to meet and congratulate the twenty-seven CRY runners who came to visit us at the charity marquee and hand them a CRY medal along with some much needed refreshments.
We would like to thank all of the CRY runners’ friends and families for coming along and cheering on the CRY team.
Once again, thank you to each and every one of our runners for their fantastic efforts in completing this event and fundraising so generously for CRY. They should all be extremely proud of their wonderful achievement.
This year the CRY team consisted of: Jody Barford (in memory of Linda Barford), Tony Billingham, Steve Carr, Dan Charlton, Jasmine Courie, Heather Darby (in memory of Neil Darby), Lydia Donaldson, Niall Drievers (in memory of Emily Dunn), Steve Flintoft (in memory of Mike Scott), Ryan Franklin (in memory of Chris Williamson), Graham Gardner, Cameron Grant (in memory of Camilla Irvine), Ryan Grimshaw (in memory of Neil Darby), Katie Harbord (in memory of Ivy Taylor), Martin Harrison (in memory of Graham Harrison), Alexander Hart, Rhys Herman (in memory of Michael Land), Craig Hewitt, Jack Hickman (in memory of James Campbell), Michael Hughes, George Irvine (in memory of Camilla Irvine), Vicky Jackson (in memory of Mia Jennings), Ronaldo Joshari (in memory of Umayr Ali), Myah Kenth (in memory of Umayr Ali), Luke Kong (in memory of Umayr Ali), Seb Luker (in memory of Emily Dunn), James Manhire (in memory of Marie Manhire-Clark) David Mason, Simon McMahon (in memory of Emily Dunn), Ursula McNicol, Rachel Mealing (in memory of Alan Preedy), Linda Millership (in memory of Madeline Siddall), Louise Mills, Jonathan Muir (in memory of Stephen Rogers), Hazel Murray, Owen Nicks (in memory of Robert Nugent), Kate Pawlitta (in memory of Madeline Siddall), Madelaine Pitchford, Ashley Spencer (in memory of Thomas Hardman), Jack Talbot (in memory of Mia Jennings), Carol Whitworth, Kelly Wilson (in memory of Kay Wilson), Jessica Wooley (in memory of Catherine Roberts) Megan Wynne (in memory of Emily Dunn).
If you would like to run for CRY in the 2024 Great North Run on Sunday 8th September, please email your interest to events@c-r-y.org.uk.
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young
Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture Theatre at the heart of St George’s, University of London, fittingly the home of CRY’s internationally acclaimed research programme and the CRY Centre for Cardiac Pathology (CCCP).
Spearheaded and expertly organised by renowned cardiologist, Professor Michael Papadakis (who has worked closely and committedly with CRY for well over a decade and is currently also President of the European Association of Preventive Cardiology), the programme included 12 presentations from specially selected speakers on a range of subject areas, profiling exciting and thought-provoking research findings, all with the potential to inform and challenge the way young sudden cardiac death (YSCD) is approached and understood across the global research community.
Indeed, following introductions from Professor Michael Papadakis and guest chair, Professor Bernard Prendergast (representing the conference sponsors, Cleveland Clinic, London), the programme appropriately
began with an opening talk by Professor Mary Sheppard, updating delegates with news and progress from the CRY CCP, reflecting ongoing and improved understanding of the causes of sudden cardiac death in young people.
The day was divided into four sessions with the first two (Update on Cardiac Screening; and Distinguishing physiology from pathology and managing athletes with disease) comprising a packed agenda of back-to-back presentations, delivered by a truly impressive line up of leading consultant cardiologists, researchers, registrars and pathologists.
Throughout the morning, subject areas included issues as diverse as ‘safe levels of exercise for people diagnosed with HCM’, to ‘new frontiers in cardiac pathology’ and ‘understanding when medics should be concerned about athletes with ventricular arrhythmias’.
The afternoon was then split into two interactive Case Sessions, both delving deep into the arena of Sports Cardiology, specifically exploring “Catch 22s in Cardiomyopathies and Structural Disease”. Delivered by an esteemed panel of chairs (Professors Sanjay Sharma, Eljah Behr, Michael Papadakis, Aneil Malhotra and Maite Tome; and Dr Gherardo Finoccharrio), the debate and ensuing Q&As were interesting and intense, acknowledging the fact that the very best of the best had all come together at CRY’s annual conference to share knowledge and learn from their peers.
Notably, also joining this panel of experts was Professor Domenico Corrado (a revered and familiar face at the event), who is currently Director of Inherited Arrhythmogenic Cardiomyopathies and Sports Cardiology at the University of Padua Medical School, Italy. It was a welcome return to CRY’s Medical Conference and, as in all previous years, Professor Corrado used his platform and
captive audience to reiterate the widely referenced “Italian data” showing that since mandatory cardiac screening was introduced for all those involved in organised sport, the death rates have fallen by a staggering 89%. Earlier in the day, as part of his own presenting segment, Professor Corrado had talked through this data as part of a discussion exploring the key question of whether ‘one off cardiac screening is ever enough?’.
So, whilst the conference provided an opportunity to revisit some seminal and well established research, the event was also a chance to tease new and potentially ground-breaking papers. For example, a study led by former Research Fellow Dr Raghav Bhatia, investigating the importance of accurate representation of the incidence and underlying causes of YSCD, focusing on a specific 9-year period, within an incredible 20-year cohort of unique, CRY data.
The presentation, entitled, “Sudden cardiac death in the young; what does the ONS say?” was a huge talking point (both during the conference and over lunch!) with an undisputed level of anticipation among delegates for the publication of this paper, due out early next year.
Speaking after the conference, CRY’s CEO, Dr Steven Cox, said; “It was so good to be back where it all started and we’re hugely grateful to all our friends and colleagues at St George’s, University of London, for their help in making this happen.”
“It was a brilliant turn out, from both the 100 or so delegates who attended in person and all those who joined us online, and I felt really proud that we were able to gather such a phenomenal panel of experts, bringing
Thank you to our speakers:
•Dr Veronika Azidou
•Dr Joyee Basu
•Professor Elijah Behr
•Dr Raghav Bhatia
•Dr Mihnea Casian
•Professor Domenico Corrado
together decades of experience from the forefront of research, all with a common goal of improving the prevention of young sudden cardiac death.
“In just one day, we were able to cover a wealth of important issues from cardiac screening, progress in pathology, improved understanding of safe levels of activity for those with a diagnosed condition and important implications and considerations for athletes.
“The conference also underlined why research will always be at the core of CRY’s work and of our ongoing mission to reduce sudden deaths from cardiac conditions in young people. It also reminds us how important it is to keep our ‘CRY families’, supporters and stakeholders updated with our research outcomes.
“I’d therefore like to thank each and every one of our speakers who ensured that our programme was original, current, engaging and informative. I’d particularly like to thank the Cleveland Clinic for its generous sponsorship, without which, none of this would have been possible, as well as loaning us its Chair of Cardiology, Professor Bernard Prendergast, who did an excellent job of chairing the first session of the day.
“What today has shown us is that CRY is continuing to sow the seeds of the next generation of specially-trained cardiologists, through its Research Fellow programme. The fact that so many previous Fellows were here, back at St George’s, presenting their incredible research findings (having taken up clinical roles in hospitals across the UK) is testament to the success of this important initiative.”
If you would like to watch the playlist of videos from the day, please visit: www.youtube.com/cardiacriskintheyoung
•Dr Harshil Dhutia
•Dr Gherardo Finocchiaro
•Professor Aneil Malhotra
•Dr Sarandeep Marwaha
•Professor Michael Papadakis
•Professor Bernard Prendergast
•Professor Hanne Kruuse Rasmusen
•Professor Sanjay Sharma
•Professor Mary Sheppard
•Professor Maite Tome
On the 1st of October 2023, 202 of our supporters joined us to take part in the CRY Heart of Durham Walk.
We are extremely appreciative of every person that made the effort to join us on such an important day, a day where families can come together to reflect and remember those who were tragically taken due to Young Sudden Cardiac Death, and to support those who have been diagnosed with an inherited cardiac condition.
We were lucky enough to have beautiful weather for our supporters to walk the cobbled streets and riversides of the historical city of Durham.
Some of our CRY staff attended and helped set up the event including Lily Burke, Hiddy Denizer, Francesca Levett, Cara MacMillan and Ben Robinson. As always, it was a real team effort. Thanks to the staff at Durham Amateur Rowing Club, we were able to set up the morning of the walk so that everything was ready for our first walkers bright and early.
Walkers started arriving eagerly from 9:30am at the Durham Amateur Rowing Club to get checked in, aided by CRY volunteer, Marie. We are so glad to say that we had 39 supporters register on the day!
Once everyone had arrived, a beautiful speech was given by Jeff Morland, who worked with CRY to organise the first CRY Durham Walk 14 years ago, in memory of his son, Levon. Jeff spoke about the importance and significance of the
day, the suffering that follows losing a loved one so young, and the importance of raising awareness to prevent such tragedies from occuring.
Jeff then introduced Steve Percival who also spoke about the importance of the day and how all the walkers should take in the wonderful views of Durham when reflecting and walking.
Steve then read the names of every young person our supports were walking in memory of, he gave them a chance to clap and cheer to celebrate their loved one’s life or have
a moment of silence for them. Participants set off from the rowing club at 11am and walked alongside the river, toward Durham City Centre, aided by CRY volunteers Jeff, Jim, Joe and David throughout. The streets were soon filled with CRY T-shirts for the public to see.
All walkers were met with the astonishing site of Durham Cathedral, which supporters were welcome to visit and light a candle if they so wished. After the walkers joined back together, they continued travelling through the City of Durham and met back at the finish line at the Rowing Club.
Once the walk was completed by all our fantastic supporters, they were welcomed back by CRY volunteers, Pat and Dorothy, who handed out the walkers well-earned medals! Everyone then had a chance to relax, grab a drink and have a chat with their family or other supporters.
Supporters had already started writing message cards for the message wall before they set off so by the end of the day the wall was filled with heartwarming and thoughtful messages.
Doug Moody, as always, captured beautiful photos of the event throughout the day. He followed the walkers through Durham to capture the families (and dogs of course!) on a very special day.
We are so grateful to everyone that joined us that day. This year’s participants were walking and volunteering in memory of:
Jack Balfour, Seb Body, Ian Bowen, Steffani Broughton, Andrew Callender, Joseph Clark, Charlie Craig, Tom Day, Adam Dearnley, Sean Farrell, Ashley Goodwin, Dean Henderson, Damien Jewell, Ian Johnson, Eleanor Keeler, Jake Lister, Alan Lumley, Pat McLaughlan, Stephanie McLean, Levon Morland, Thomas Padmore, Kevin Paterson, Owen Raine, Charlotte Richardson, Stephen Rogers, Mike Scott, Robert Daniel Smith, Hannah Stanton, Jono Stead, David Wallace, David White and Ruth Whyte.
26th October 2023 saw the launch of the #MSPSupport4CRY campaign in the Scottish Parliament, championed by the friends and family of former political aide, David Hill, who tragically died from a previously undiagnosed heart condition in March 2022.
David collapsed whilst playing a cross-party rugby match for Holyrood against Dail and Seanad XV at the Donnybrook Stadium in Dublin as part of the Parliamentary Six Nations. He was aged just 30.
Huge awareness has been harnessed in the months since David’s sudden death – as well as over £36,000 raised in his memory – but this latest initiative is taking campaigning to a new level with 56 MSPs and leaders of the main opposition parties already agreeing to support the parliamentary pledge which was established by the charity, Cardiac Risk in the Young (CRY).
Chief Executive of CRY, Dr Steven Cox said; “Every week in the UK 12 fit and healthy young people aged 35 and under are dying suddenly from undiagnosed cardiac conditions. This campaign to establish a National Strategy for the Prevention of Young Sudden Cardiac Deaths was first
launched with MPs to highlight that much more needs to be done to prevent young sudden deaths.
“We’ve had tremendous cross-party support which is an acknowledgement of the incredible efforts of all the people raising awareness of what has happened to their family and what could have been done to prevent their loss.
“By launching this campaign in Scottish Parliament MSPs are being given an opportunity to show their support and recognition that more needs to be done to save young lives. Many families have fought hard to raise awareness of young sudden cardiac death and bring heart screening to communities throughout Scotland, testing thousands of young people.
“Since David’s death, his family, friends and former colleagues have gone to great lengths to raise awareness within the Scottish Parliament and it is fantastic that such an impressive number of MSPs agreed to support the campaign.
The support they were able to garner in such a relatively
short session in Holyrood is testament to the powerful impact they made that day, as well as the legacy David left and the high,regard in which he was clearly held by his colleagues.”
The event was spearheaded by David’s friend and colleague, Oliver Mundell MSP for Dumfriesshire, who arranged for a small group of David’s family to take up a prime position at the foot of the main staircase of the Garden Lobby.
David’s parents, Sharon Duncan, who’d worked articularly closely with Oliver to make this event possible, and Rodger Hill held up large signs bearing the words “MSPSupport4CRY: I pledge to help save young lives”, providing passing MSPs with the opportunity to listen and learn more about the campaign.
Oliver had rallied much support prior to the event amongst MSPs and staffers who’d known and loved David during his time at Holyrood – but the strategic location in a main thoroughfare meant that others who perhaps weren’t already aware of CRY’s work didn’t miss out on the chance to stop to chat and to pledge their support.
Oliver said; “I have tremendous respect for Sharon, Rodger and the whole family for their ability to build on David’s legacy by campaigning for political action to ensure other young people don’t die needlessly.
“It was an honour to host them at Holyrood and I am delighted they have managed to sign up nearly half of all MSPs to a new CRY Pledge in a single day. I look forward now to working with them to see a new strategy put in place to deliver change and help save young lives.”
In a joint statement on behalf of David’s family, Sharon and Rodger added; “We are all so delighted and encouraged by the level of support we saw at our official launch of the MSPSupport4CRY campaign but really believe that this is just the beginning.
“We’re confident that after such a positive start, interest from across all political parties will continue to grow and that we’ll be able to make real headway in developing a strategy for the prevention of young sudden cardiac death, not least in influencing the decision-making process around our mission of securing a national cardiac screening programme.
“We were blown away by the number of MSPs who signed up to the pledge last week and we’re now focused on hitting the 100 mark – and, ideally, we’re aiming for the day when all 129 MSPs will have backed our campaign with CRY.”
Earlier in 2023 the inaugural David Hil Memorial Quaich
fixture (part of the David Hill Memorial Fund) took place at Peffermill in Edinburgh, with Members of Parliament from both respective nations playing.
Originally from Dumfriesshire, David worked for several MSPs during his time at Holyrood and at the time of his death he had been working for Jamie Greene MSP. David’s popularity and hardworking reputation led to him being posthumously named Parliamentary Staffer of the Year in September 2022 at the Holyrood Magazine Awards.
Dr Cox concludes; “Once politicians start to take young sudden cardiac death seriously we will start to move towards a time when every young person will have the opportunity to have their heart tested. The whole of the UK needs a comprehensive approach to stop these deaths.
“We need a national strategy to prevent young sudden cardiac deaths and it’s wonderful to see that there is already so much political support in Scotland.”
CRY is urging all MSPs to sign the pledge to support a National Strategy for the Prevention of Young Sudden Cardiac Death to help save young lives.
See if your local MSP has signed the pledge, if they have not, find out the best way to contact them and get them involved with the campaign here: www.c-r-y.org.uk/about-my-pledge-msp/
If your local MSP has already signed the Pledge we would still urge you to contact them about this issue to tell them your story and the impact a young sudden cardiac death has had on your family, friends and community. Continuing to engage with MSPs will help demonstrate the true impact of a young sudden cardiac death
Thank you to the 150 supporters who covered over 2,000 miles in the CRY
On Saturday 25 November 2023, 150 participants started to clock up the miles by walking, running, horse riding, swimming, hiking, cycling and jogging.
The 12 A Week Challenge took place during Raising Awareness Week which ran from 25 November to 3 December 2023. Each of the 12 miles/activities completed represented the 12 young sudden cardiac deaths that happen every week in the UK.
As the week went on, participants shared photos and updates of their challenge on Facebook and Instagram. Participants congratulated each other and shared their stories and reasons for taking part.
For many, taking on the event was a mix of emotions as the miles were completed, remembering those who have died from young sudden cardiac death.
We heard stories from participants who challenged themselves even more by walking 12 miles a day, 12-mile daily bike rides, 12-hour back-to-back exercise, 12-mile horse rides and many more.
In total, over 2,000 miles were covered and a variety of activities were completed – which is a fantastic amount!
Congratulations and well done to everyone who completed the challenge. Your efforts have been amazing and we are pleased to announce that a fantastic total of £16,750 has been raised to date by 150 participants.
We are so grateful to each and every one of you who took part and to your friends and families who supported you through this challenge, as raising awareness for CRY is vital.
Thank
you to the 44 supporters who baked for the CRY Great Cake Bake 2023
On December 1 2023 the CRY Great Cake Bake was held as part of Raising Awareness Week. We really do appreciate all our wonderful supporters who participated and baked for CRY, whether it was in your home or at your office.
An amazing total of £9,662.89 was raised in by 44 supporters who baked for the event. We are so grateful for everyone who took part and contributed to this impressive total.
It has been wonderful to see people’s homes and offices decorated with the CRY logo and tables laid with cakes and skilled creations! It is clear how much effort and hard work went into the designs. All the cakes looked very delicious!
Thank you to the Avenue Cookery School, the Cookery School at Little Portland Street and Oppo for providing prizes for our winners. And thank you to Sugar & Crumbs, Baking with Granny, Errens Kitchen and Easy Peasy Foodie for kindly donating their creative recipes.
A big well done to our three competition winners: David Stead, Marie Lipman and Charley Madgwick. We hope you enjoy your prizes!
Wednesday 29 November 2023 saw the inaugural ‘drop in’ session for Members of the Senedd as part of the new #MSSupport4CRY campaign, championed by Cllr. Jane Gebbie (Deputy Leader of Bridgend Borough Council) in memory of her grandson Justin who died suddenly and tragically from a heart condition in 2019, aged just 19.
The event – which was sponsored by Hannah Blythyn MS – included an inspiring and poignant panel of speakers, who talked guests through the work that CRY carries out across the UK to help prevent young sudden cardiac death (YSCD) as well as the importance of its cardiac screening programme, which currently provides testing for around 2530,000 people aged between 14-35 every year.
And, since 2004, CRY has carried out almost 100 days of heart
screening across Wales, testing around 10,000 young people to date.
Joining Cllr. Gebbie - who opened the speeches with a very powerful and personal talk about the impact of a young sudden death on her own family and the wider, local community - was the charity’s Chief Executive, Dr Steven Cox and CRY supporter, Dan Mason (from Narbeth, South Wales). Dan first started campaigning and fundraising for CRY following the sudden death of his 26 year-old brother Dean from a previously undiagnosed heart condition, in 2010.
On the day, 10 MSs agreed to support CRY’s parliamentary pledge and it’s hoped that many more will show their support by signing up to the campaign as it continues to generate further awareness across Wales.
Dr Steven Cox; commented; “Every week in the UK 12 fit and healthy young people aged 35 and under are dying suddenly from undiagnosed cardiac conditions. This campaign to establish a National Strategy for the Prevention of Young Sudden Cardiac Deaths was first launched with MPs to highlight how much more needs to be done to prevent young sudden deaths.
“We’ve had tremendous cross-party support which is an acknowledgement of the incredible efforts of all those raising awareness of what has happened to their family and what could have been done to prevent their loss.
“By launching this campaign in the Welsh Parliament, MSs are now being given an opportunity to show their support and recognition of the need for change, in order to save young lives.
“Many bereaved family members – such as Dan Mason, who joined us at this important launch event – have fought hard to raise awareness of young sudden cardiac death and brought heart screening to communities throughout Wales, testing thousands of young people.
“It was fantastic to have the opportunity to meet with so many MSs who all wanted to know more about our
campaign and the impact CRY has already made in Wales. We were all in agreement that there’s still so much more to be done to raise greater awareness and to develop strategic policies to help prevent the tragedy of sudden cardiac deaths in young people.”
Cllr. Jane Gebbie and Dr Cox stood alongside MSs who attended the meeting, holding up the sign bearing the words “I pledge to help save young lives / Rwy’n addo i helpu I achub bywydau ifanc”.
Speaking after the event, Cllr Gebbie said, “It was such an honour to host this event at the Senedd in partnership with CRY and I was delighted by the response we received from many of my political colleagues. I really do feel encouraged by the support shown so far and I look forward to working with MSs from across all parties, to see a new strategy put in place to deliver change and help save young lives, not least in calling for the roll out of national screening across Wales.”
Dan Mason added; “Since the untimely death of my brother Dean, CRY has been a big part of my family’s lives. To lose someone extremely close to you in a way you didn’t realise possible – with them being apparently fit and healthy and having no symptoms – is just unthinkable until it happens to you.
“We as a family have supported CRY in the fantastic work they do, helping families through these circumstances, researching cardiac conditions, and running screening programmes to prevent this from happening in the first place.
“We have screened over 2,000 people as a family, and I have seen first-hand from the screening events we have held within schools, colleges and universities how many lives have been saved by undiagnosed conditions being found and individuals having issues highlighted before it’s too late. In a lot of cases a simple treatment or regular monitoring is all that needs to be put in place to prevent a tragedy.
“Screening is invaluable and any national strategy we can develop would have a huge impact on preventing devastating events like we as a family have been through and continue to live with.
“The hard reality is that had my brother been screened, he would have stood a chance to watch his children grow up and remain a part of our lives. That’s why this recent awareness raising event held at the Senedd was so important. I was honoured to have been asked to attend and share my story, highlighting just how vital CRY’s work is.
“I am extremely proud to be associated with CRY and will continue to champion their cause in preventing sudden cardiac death in young people”.
Dr Cox concludes; “Once politicians begin to take young sudden cardiac death seriously we will move towards a time when every young person will have the opportunity to have their heart tested.
“The whole of the UK needs a comprehensive approach to stop these deaths. A national strategy is required to prevent young sudden cardiac deaths and it’s wonderful to see that there is already so much political support in Wales. We’re off to a great start.”
CRY is urging all MSs to sign the pledge to support a National Strategy for the Prevention of Young Sudden Cardiac Death to help save young lives.
See if your local MS has signed the pledge, or the best way to contact them and get them involved with the campaign here: www.c-r-y.org.uk/about-my-pledge-ms/
If your local MS has already signed the pledge we would still urge you to contact them about this issue to tell them your story and the impact a young sudden cardiac death has had on your family, friends and community. Continuing to engage with MSs will help demonstrate the true impact of a young sudden cardiac death.
Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from September to December 2023.
Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors,
InMemoryof Marc Abbs
• James Bashford completed the TCS London Marathon 2022 raising £2,421.
InMemoryof Meghan Adams
• Gareth Bailey and Ben Lilley completed the Great North Run 2022 raising £780.
InMemoryof Robert Allan
• Jane Allan and Meg Thomas raised £200 through a coffee morning at Dorking United Reformed Church.
InMemoryof Gary Anderson
• Jessica Ringrose and the SKY CNS Team completed the Tough Mudder Yorkshire raising £411.88.
• Danny Flemming and the SKY CNS Team completed the Tough Mudder Yorkshire raising £260.
• Geoffrey Maxwell and the SKY CNS Team Completed the Tough Mudder Yorkshire and raised £175.32.
InMemoryof Peter Baddoo
• Nancy Baddoo donated £520.
but we apologise if you have ever been affected in some way by this.
If you see a mistake in the Update or you have any questions, please do not hesitate to contact CRY via UpdateMag@c-r-y.org.uk
InMemoryof Andrew Baker
• Andy Hall sent a donation of £2,363 raised through the Bakerfest music festival and a annual golf day.
Bob Baldwin
• Christine Baldwin sent a donation of £172 raised through a raffle and darts tournament for the Bob Baldwin Memorial Cup.
InMemoryof Jack Balfour
• Gareth Collingwood donated £200.
InMemoryof Johnny Barker
• Michael Kavanagh donated £250.
InMemoryof Mick Barker
• Debra Eardley sent £207 representing donations received in lieu of floral tributes’, in memory of her father, Mick.
InMemoryof Cecilia Barriga
• Russ Khroma donated £100.
InMemoryof Matt Beadle
• Charlotte Lympany completed the TCS London Marathon 2023 raising £2,319.
• Chris Southgate completed the TCS London Marathon 2022 raising £1,261.
InMemoryof Carol Beattie
• Heather Owen completed the Glasgow Kiltwalk raising £915.85.
InMemoryof Douglas Bell
• HSBC Bank Plc-Matching sent a Match Giving donation of £500.
InMemoryof Graeme (Tinka) Bell
• Gemma Cannell sent £541 representing donations received in lieu of floral tributes’, in memory of her uncle, Keith Ternent.
InMemoryof Henry Charles Best
• Tom Steadman completed the TCS London Marathon 2022 and raised £3,250.
InMemoryof Daniel Joshua Blackman
• Hazel Blackman donated £200.76 from her eBay sales.
• Hazel Blackman donated £113.64 from her ebay sales.
InMemoryof Tuqiri M Blackwell
• Denis McKewon sent £200, raised by Tim Savage and the Whitehaven boxing club at a charity comedy night at the Greenbank Pensioners Club.
InMemoryof Steven Blair
• Hunter and Susan Blair donated £1,544 raised through their Annual Fun Night.
InMemoryof Nathan Blake
• Cecil Blake sent a donation of £207 on behalf of the clients and staff at H D Studios Hair Definition in Urmston.
• Cecil Blake sent a donation of £675 raised by Angela, Tricia and Mag, walking 20 miles from Roscrea to Moneygall and back.
• Helen Blake sent a donation of £1,920, representing sponsorship for Marcus Blake and friends Ullswater Way Walk fundraising.
• Lucy Robinson sent donations totalling £1,968.59, raised through a quiz and The Ullswater Walk.
• Helen Blake sent donations totalling £2,150, raised through her sponsored Ullswater Way Walk with Cecil and Dominic Blake.
InMemoryof Graeme Blenkinsop
• Matthew Bowler completed the TCS London Marathon 2023 raising £773.
• Ruth Williams completed the TCS London Marathon 2023 raising £4,446.
• Peter Bond sent a donation of £100 representing Saunton Golf Club’s Captain’s Charity fundraising.
• Lauren Moore completed the Belfast Marathon raising £1,748.85.
• Invest NI raised £100 through a Premier League score predictor competition.
• Ita Booth forwarded donations totalling £120 raised by members of Invest NI through a Premier League score prediction competition.
• The Saltford Golf Ladies Section raised £292 through a Fashion Show.
• Barrie Lake donated £100.
• Saltford Sports Club donated £405 raised through an auction at the club’s sports day.
• David Boulton sent £342 raised by Saltford Golf Club through the Jack Boulton Memorial Trophy competition, from entrance fees and personal donations.
“Thank you to all the players and supporters for making the Jack Boulton Memorial Trophy another special day.
“We raised £342 for Cardiac Risk in the Young (CRY), which was a combination of entry money, personal donations and a sponsor amount gratefully received from Daxa Building Solutions.”
• James Bovington donated £400.
• Claire Bowen completed Ride London Essex 100 2023 raising £2,048.
• The Trafalgar Pub raised £135 through a charity day.
• Pension Insurance Corporation plc sent a Match Giving donation of £1,000.
• Stoke Fruit Farm Shop donated £1,141.17.
• Hayley Brember completed CRY Heart of London Bridges Walk 2023 raising £425.
• Elizabeth Brember completed CRY Heart of London Bridges Walk 2023 raising £400.
• Helen Clemmow completed the TCS London Marathon 2022 raising £3,187.
• Olivia Cooke completed the TCS London
Marathon 2023 raising £2,202.
• Orla Cooke completed the TCS London Marathon 2023 raising £1,950.
• Ellie Conroy completed the TCS London Marathon 2023 raising £2,110.
• Chris Broster and his daughter completed the Liverpool Half Marathon raisning £447.
• Daniel Hill completed the Wolves 10K raising £150.
• Adam Birchall completed the MPM Triathlon raising £110.
• Eliza Cantello completed a 15,000ft tandem Skydive and raised £947.78.
• Sally Cantello completed the TCS London Marathon 2022 raising £7,830.
• TJ Cantello completed the TCS London Marathon 2022 and raised £2,012.
• Natalie White completed CRY Heart of London Bridges Walk 2023 raising £185.
• Zoe Ashbridge donated £120.
• Lucy Buck completed the TCS London Marathon 2022 raising £3,553.
• The Ballands Bowmen Archery Club donated £580, raised through Archery Shoot days.
• Bill and Hillary sent a donation of £475 raised from the Chaffcombe village lunch.
• Bill and Hillary Durrant sent a donation of £865, from the members of the Somerset Smallholders Association following their closing down.
• Bill and Hillary Durrant sent a donation of £2,250 raised through a final Pole Lathe Show at the Oak Fair.
• Gemma Thomas completed the TCS London Marathon 2023 raising £1,581.
• Freudenberg Sealing Technologies Ltd sent £800 raised from their tuck shop sales.
• Karen Green, Liam Stanley, Lisa Taylor, Robyn Bury, Jessica Elvidge, and Elyse Rossand completed the 2 castles run and other runs/walks and raised £1,419.50.
• Angela Butler sent donations totalling £6,789.78 raised through the Nathan Butler Memorial Cricket Tournament.
• Kaylum O’Kane donated £350.
• Alan Clarke sent £300 representing an auction donation at the Nathan Butler Memorial Cricket Tournament.
• Rosie Northcott completed the Hackney Half Marathon and raised £1,390.74.
• Rebecca Kelly donated £355 raised through a Halloween Cupcake and Bracelet sale.
• Karen Campbell sent a donation of £100 in memory of James’ 26th birthday.
“Year 6 pupils, Poppy and Annabelle, worked hard to organise a Halloween Cupcake and Bracelet sale to raise awareness for CRY. Leaflets and posters were delivered to neighbours in the community and an amazing £285 was raised in memory of James William Campbell.
“Poppy and Annabelle said: “we love baking and making bracelets and wanted to do this to help the charity”. The cupcake / bracelet sale was held in the front garden and the children were overwhelmed with the support and the amount raised. They would like to thank everyone for supporting the fundraiser and for raising awareness for CRY.”
• Grace Stevenson completed the TCS London Marathon 2023 raising £3,106.
• Sean Carley completed the TCS London Marathon 2023 and raised £2,216.
• Alexander Carruthers completed the London Landmarks Half Marathon 2023 and raised £1,818.
• Susan Carter sent a donation of £500 raised from the Netley Marsh Steam Engine Rally.
• Robert Case raised 265.50 through his English Cathedrals Cycle Challenge.
• Johny Pickup completed the Great North Run 2022 and raised £1,075.
• Kim Ray sent a donation of £1,640.80 raised through a Line Dancing event.
• Sandra Courtney donated £486 from the Ealing Half Marathon and the runners and volunteers at the memorial mile, in memory of Andrew Carter.
• Alex Gerlis donated £100.
• Helen Barnes donated to CRY Heart of London Bridges Walk 2023 and raised £100.
“Paul and Ellen would like to offer a huge ‘thank you’ to the hundreds of people who have supported Tom and Claire’s Memorial Fund via our Justgiving page. Over the years, more than £95,000 has been raised, a magnificent achievement that has sponsored many heart screenings. We’ve decided to close the page because donations can now be made via the CRY site”.
• Elizabeth Zita donated £150.
• Sabeha Syed donated £100.
• Tim Carpenter donated £100.
• Claire Turner completed the TCS London Marathon 2023 and raised £2,323.64.
• The Lodge Hopetoun St John No. 1232 raised £862.
InMemoryof Ben Coleman
• Nicky Trangmar completed CRY Heart of London Bridges Walk 2023 and raised £180.
• LesleyAnne Roddy completed the TCS London Marathon 2022 and raised £2,317.
• Michelle Beard completed the TCS London Marathon 2023 raising £1,125.
• Joy Cooper-Crippin sent a donation of £153 raised from herself and Natalie’s birthday fundraising efforts.
• Newell Mellor and Sue Naylor sent £650 representing donations received in lieu of floral tributes’, in memory of their mother, Joyce Mary Mellor.
• Sue Naylor donated £650 raised through plant sales and a yard sale.
• Brian and Barb Trevitt donated £100.
• Jackie Cousins sent donations totalling £556.38
• Jackie Cousins sent a donation of £100 on behalf of Chris Williamson from Liberty Steel Group Community Union.
• Christine Cowan sent £103 raised from donations at a screening event.
• Illuminate Financial donated £437.60.
• Beth and Oli Thurairajah took part in a 10 mile Tough Mudder Run and raised £340.
• Karen Wilcox completed the London Landmarks Half Marathon 2023 and raised £500.
• Beth Sadler completed the TCS London Marathon 2023 and raised £3,634.
• Kirstie Young completed the Brighton Marathon and raised £1750.53.
“I ran my first marathon on 2nd April this year – it was a beautiful day and the support we received from the crowd, family and dear friends was amazing. It was an honour to run for Freya and to raise funds for CRY. Blimey it was tough though!!”
• Joe Barnes completed the TCS London Marathon 2023 and raised £3,491.
• Alistair Porter completed the TCS London Marathon 2022 and raised £11,050.56.
• Georgia Cragg completed the TCS London Marathon 2022 and raised £10,416.
• Mick and Carolyn donated £200.
• New Mills Golf Club donated £500.
• Lorna Young sent a donation of £761 raised through a charity golf day.
• Victoria Cross sent donations totalling £220 raised from Aunty Anne’s party.
• Ben Turner sent a donation of £1,125 raised through the Sam Cross Charity Match.
• Holly Bunning completed CRY Heart of London Bridges Walk 2023 raising £877.
• Mark White donated £810.
• Steve McMahon donated £250.
• Eamon Lynam sent a donation of £4,000.
• Thomas McHugh donated £100.
• Debbie Cummins and Kieran O’Connor donated £600.
• Tim Clifford sent donation’s totalling £160.
• Clifford Devlin Ltd donated £750.
• Martin Reilly donated £1,300.
• Mark Finnerty donated £100.
• Gerard Holden donated £200.
• Martin Dilke-Wing donated £200.
• Rob Obrien donated £500.
• Eamon Lynam chose CRY as the charity to benefit in respect of his Golf day raising £1,000.
• The Robertson Trust / Edrington Group (Highland Park Distillery) sent a matched donation of £6,900, in support of the Walk for Freya 2023.
• Ingrid Dalrymple sent £410 from donations at a screening event.
• Nicholas Orr sent a donation of £150 from the Young Leaders in Cricket.
• Emma Baker sent a donation of £500 from her team at INEOS from their fitness challenge award winnings.
• Heather Darby sent donations totalling £4,200 raised from a Golf Day.
• Robert Wood donated £504.
• Heathfield Community School sent £2,708 raised through the Stuart House Charity Week.
• Taunton Masonic Hall Co Ltd donated £100.
• The Western Provident Association donated £8,519.58.
“Heathfield Charity Cup was won by Stuart House. House Captain William Davidson was called upon to collect the cup, he was the most successful fundraiser – independently raising £287 for CRY from his wristbands, collection pots & cake sales. Stuart House raised a total of £886 for Freya’s Memorial Fund.”
• Hayden Bailey completed the TCS London Marathon 2023 raising £2,575.
• Alex Oakes completed the Great North Run 2022 raising £449.
• The London Stock Exchange Group Foundation sent a Match Giving donation of £2,000, in support of Jordan, Luke and Tom’s National 3 Peak Challenge fundraising efforts.
• Tricia Dearnley donated £100 raised through the sale of knitted toys.
“In February last year, friends Jordan Phillips, Luke Sills and Tom Ward were devastated by the loss of their friend Adam Dearnley. Aged just 26, Adam lost his life to SADS (Sudden arrhythmic death syndrome) without any prior cardiac issues. C.R.Y supported the family and trio of friends following the bereavement, and this year, the friends decided to take on a challenge to raise funds in Adam’s memory.
“The National Three Peaks Challenge is one of the toughest challenges going. It involves climbing the highest peaks in Scotland, England, and Wales all
within 24 hours, the catch being that the driving time is included in the total time too. The challenge consists of over 10,000ft of ascent, 23 miles of walking and over 450 miles of driving – no mean feat. Jordan and Luke trained for 6 months to be ready for the physicality of the challenge, aptly supported by Tom who handled all the driving.
“The challenge started in Scotland with Ben Nevis, the tallest of the three mountains, at 1345m. They started at midday and had a target time of just 5 hours to complete the hike, a tall-ask when the average time to tackle the mountain is between 7 and 8 hours. They managed it in 5 hours 15 minutes in really challenging heat conditions, but despite that, there was still some snow on the summit.
“The team then hot-footed it down to the Lake District for an overnight ascent of Scafell Pike, the highest mountain in England at 978m. Beginning at 11pm the pair began their ascent with a target time of 4 hours. It was a cloudless sky, so much so that they didn’t use their headtorches and instead navigated by moonlight, completing the mountain dead on 4 hours.
“The final mountain was Snowdon in Wales, standing at 1085m. There was a 5-hour target time, but by now they were starting to struggle with the fatigue of their knees and calves. The pair stormed to the top, summiting in 2 hours 15 minutes, but the descent was slow and painful. In the end, they crossed the line after 23 hours 40 minutes, leaving just 20 minutes to spare.
“Jordan, Luke, and Tom celebrated with some fizz at the finish line and the obligatory giant cheque photo. On completing the challenge, Jordan said “That was the most physically challenging thing I’ve ever done, I knew it was going to be tough, but I didn’t think it would be that tough!”. Luke agreed, adding “The 3 peaks challenge lived up to its name – it was a challenge. However, knowing that we had already raised so much money was the motivation we needed to keep pushing to the finish line. The money will go towards helping so many people’s lives which makes every one of the 60,000 steps worth it!”. Tom didn’t get away lightly either, saying “I thought the driving was supposed to be the easy part, but I was very wrong. I ended up getting just two hours sleep while they climbed Scafell Pike, so I relied heavily on copious amounts of coffee!” In total, the friends have raised over £5,000 for C.R.Y in Adam’s name.”
• Kerry Preece sent a donation of £300.
• Samantha Matthews completed the TCS London Marathon 2023 and raised £3,134.
• James Butler donated £100.
• The RL Charity Team donated £675 in memory of Ronnie Jones.
• Jemma Howard donated £200.
• Gary Dixon sent a donation of £535 raised through a Fashion Show with Follies of Tarporley.
• Mrs J Mather sent £1,215.15 representing donations received in lieu of floral tributes’, in memory of her husband, David Mather.
• Tarporley Parish Council donated £250.
• Michael Sayers-Martin donated £100.
• Glen Thompson completed the TCS London Marathon 2023 raising £2,598.
InMemoryof Ronald Dobson
• Vanessa Fleming sent £1,903.40 representing donations received in lieu of floral tributes’, in memory of her husband, Ronald.
InMemoryof Paul William Ralph Dodd
• Wendy Graham completed the TCS London Marathon 2022 and raised £3,473.
InMemoryof Adam Donnelly
• Gabrielle Clark completed the TCS London Marathon 2022 raising £2,046.
• David Williams completed a Marathon Row raising £1,590.
InMemoryof Tim Douglas
• Joanna Lewis completed the Great North Run 2022 raising £580.
InMemoryof Cameron Dowling
• Helen Matharu donated £200.
• Sarah Drawbridge donated £200 in memory of Adam’s 40th birthday.
• Sharon Kettle sent a donation of £5,000 from The Eric Kay Charitable Trust.
• Sharon Kettle sent a donation of £2,507.28 raised through a Charity Christmas Shopping Event.
• Esther Farrington sent a donation of £525 raised from the Hearts for Harry Fashion Show.
• Nathan Farrington sent a donation of £1,000, in support of the Hearts for Harry Fashion Show.
• Deborah Dubois sent a donation of £1,340, raised from the Hearts for Harry Fashion Show.
• Short Form Film donated £200.
• Mick Metcalfe donated £767.21 raised through a cycle ride through the Pyrenees.
• Alex Ewing and Betty Glover completed the TCS London Marathon 2023 and raised £2,532.
• Sam Cook completed the TCS London Marathon 2023 raising £1,356.
• A 4 person team from Compass Minerals UK raised £379 through their participation in a Swimathon.
• Sebastian Luker completed the Great North Run 2022 raising £1,359.
• Helen and John donated £100.
• Michael Donnachie donated £100.
• Barbara Kraly donated £100.
• David Mason completed the TCS London Marathon 2022 and the Great North Run 2022 raising £1,960.
• Hilary Edwards donated £140.
• Holly Cook hosted a coffee morning and raffle and raised £388.
• Hannah Marie Rowland completed the Chase the Sun South Cycle ride and raised £452.
“Our son in law Anth Rowland completed a gruelling 204 mile Chase the Sun cycle race on 24th June in extremely hot weather. The race ended on the pier in Weston super Mare. Anth completed the race in an amazing 12 hours, raising approximately £500 for CRY in memory of his brother-in-law Gary Edwards. Gary died on 12th July 2015. Monies raised will fund heart screening for young people in the Taunton area.”
• Ackworth Cricket Club raised £300 through their annual Beer Fest.
• Barbara Smith organised a pamper party evening, held at Hemsworth Christian Fellowship which raised £216.24.
• Jonathan Brown sent a donation of £1,600 raised through the 10th Annual Sebastian English Memorial Golf Day.
• Luke Simmons completed the London Landmarks Half Marathon 2023 and raised £1,605.
• Beth Bradbury completed the Great North Run 2022 raising £288.
• Jane Anderson chose CRY as the charity to benefit in sponsorship of her ‘brave head shave’ and raised £1,075.
• Skye Portwin raised £116.70 from a Christmas stall.
“My daughter Skye (11) and her friend Ayah (10) held a Christmas stall at the children’s business fair in Camberley. Their business name ‘Christmas creations by Skyah”.
“The day was a huge success!
“The girls raised £116.70 for CRY selling homemade Christmas baubles and raising awareness.
“In loving memory of Skye’s uncle and my brother, Damien Ewing-Brand.”
InMemoryof Olukayode Famoriyo
• Max Corbridge completed the TCS London Marathon 2022 and raised £2,215.
• Harrison Morley Completed the TCS London Marathon 2022 and raised £2,266.
• Ben Daghorn chose CRY as the charity to benefit from taking part in Jersey White Collar Boxing raising £2,350.
InMemoryof Sean Michael Farrell
• Jamie Sullivan completed the Great North Run 2022 and raised £1,265.
• Julian Craxton sent a donation of £220 raised through the Radlett Junior Squash Club Tournament.
• Bridget Manton donated £100.
• Harry Sambrook completed the London Landmarks Half Marathon 2023 and raised £623.
• Julian Craxton sent a donation of £240 raised through the Radlett Junior Squash Club Tournament.
• Maria Feeney completed CRY Heart of London Bridges Walk 2023 and raised £390.09.
InMemoryof Therese Field
• Tara Challenor sent £375.50 raised through a Charity Show.
• Kallum Findley completed the Great North Run 2022 raising £1,980.
• Simon and Karen sent a donation of £100 raised from the sale of a Guitar and dinky toys.
InMemoryof Marcus Fisher
• Alasdair Glen completed the TCS London Marathon 2023 raising £3,000.
• Old Colfeians Masonic Lodge donated £700.
• Matthew Brown forwarded a donation totalling £376.69 raised by Year 9 pupils at Blackfen School For Girls through their PPE Enterprise Events.
• Hannah Fitzherbert-Brockholes sent a donation of £3,425 raised through a Memorial Shoot.
• Sarah and the team at Balfours LLP competed the Lake Vyrnwy Half Marathon and raised £2,123.77.
• Charlotte Galvin completed the TCS London Marathon 2023 and raised £2,670.
• Sean Fitzpatrick completed the TCS London Marathon 2023 and raised £3,010.
• Carly Patient completed the TCS London Marathon 2022 and raised £1,646.
• The Tesco Supply Chain Team walked a half marathon around Welwyn Garden City as part of their Walkathon 2023 raising £2,941.
• Margaret Forsyth sent £170 from donations made at her screening weekend in Musselburgh.
• Stuart Briggs chose CRY as the charity to benefit in lieu of gifts on his birthday and raised £342.
• Dillon Plahe and Finnegan’s wake chose CRY as the charity to benefit from the ‘Finnegan’s Wake charity raffle and Fundraiser.’ and raised £873.89.
• Hannah Ball completed the Cotswold Way Ultra Challenge raising £3761.12.
“On the 25th June 2023 Rhian’s friend Hannah Budd took on the Cotswold Way Ultra Challenge walking 100km over two days. Hannah wanted to do something in Rhian’s memory in the year in which she would have been celebrating her 40th birthday with us. Hannah raised a total of £3,761.12. It was a very hot weekend and sadly Hannah sustained an injury at 73k and hobbled to her retirement at 78k. Like Rhian, Hannah likes a challenge and intends to return to complete it in a future year.”
• David Davies donated £100.
• David Smith completed the TCS London Marathon 2022 raising £2,366.
• Phil Garvey sent £317.50 representing donations received in lieu of floral tributes’, in memory of his mother, Emmie.
• Univeristy of Reading chose CRY as chairty to benefit in repsect of sponsorship totalling £1,202 from taking part in the ‘Rockwell Gayaka Memorial Game’.
• The Chancery Golf Society donated £1,000.
• Jamie Gibbons donated £100.
• Bernard Nelligan donated £100.
• Anne Davies donated £100.
• Cormac Slevin donated £100.
• Sally Richards donated £100.
• Luce and Alex donated £100.
• Barbara Baugh donated £200.
• Ernie Huggett donated £100.
• Mertxe and Tony donated £100.
• Rosamund Wood donated £100.
• Paul and Deirdre Geoghegan donated £250.
• Teresa Power completed CRY Heart of London Bridges Walk 2023 and raised £275.
• Natasha Gillings completed the TCS London Marathon 2023 and raised £1,140.
• Anne Godridge sent £695 representing donations received in lieu of floral tirbutes’, in memory of her son, Thomas.
• David Bell donated £100.
• Richard Jones donated £100.
• Linda Goodwin donated £146.80 raised from car boot sales.
• Linda Goodwin sent donations totalling £127.48 raised as follows; £28.67 from collection box at Cafe au Chocolat Tewkesbury and £98.81 from car boot sales.
• Ashley Memorial Hall donated £250 raised from their 70th Birthday Disco evening.
• Tom Green sent donations totalling £180 raised as
follows; £100 from the Sunday Tickle Fitness Group and £80 from mug sales and donations.
• The Peel Arms raised £1,010 from a quiz and bingo nights.
• Alison Green completed the TCSLondon Marathon 2022 and raised £2,130.
• Taylor Inman completed the TCS London Marathon 2022 and raised £8,244.67.
• Owen Griffin completed the TCS London Marathon 2022 and raised £2,130.
• Maldon Golf Club women’s section raised £1,500.
• Mehmet Ahmetoglu completed Ride London Essex 100 2023 raising £745.
• William Arkell completed the TCS London Marathon 2023 and raised £5,322.
• Bright Funds Inc sent £1,315.36, representing donations for Marc Hadfield and his colleagues at VMware, in support of their sponsored walk.
• Diana Hunt completed CRY Heart of London Bridges Walk 2023 and raised £4,020.12.
• Christine Kinsey completed the Adidas Manchester Marathon and raised £822.20.
• Paul Buchanan completed the TCS London Marathon 2023 raising £4,084.
• Matt Hadwin completed the TCS London Marathon 2022 and raised £2,335.
• Phil Sweatman completed the TCS London Marathon 2023 and raised £2,476.
• Carrie Tree and Jo walked 21 miles for Ben in June and raised £185.
• Stephen Hammond sent a donation of £10,000.
• Ian and Debbie Hancock sent £1,000, raised from collection pot donations in the village and Kyle’s Great Uncle’s book sales.
• Sally Ollerenshaw sent a donation of £1,200 raised from a Tractor Run in memory of her husband Malcolm Ollerenshaw.
• Brendan Handling sent a donation of £1,080, raised at the Tam Handling Memorial Trophy Raffle at Sandhead Bowling and Community Club.
• Gbpartnerships Group donated £250 through their ‘12 days of Christmas giving’ fundraising.
• Thomas David Wilson completed the Great North Run 2022 and raised £560.
• Jen Freer Completed the London Landmarks Half Marathon 2023 and raised £884.
• Emillia Freer completed the London Landmarks Half Marathon 2023 and raised £475.
• Aofe McMahon completed a 25,000 metre swim and raised £1,126.84.
• Dave Greenway donated £100.
• Paul and Gill Robinson donated £100.
• Alicia James completed the London Landmarks Half Marathon 2023 raising £655.
• Nicki Holmyard sent a donation of £250 in appreciation of Fluff Preston’s kind efforts.
• Peter Hayward completed the Norwich 10k and raised £2,120.
• Joe Howlett Completed the Amsterdam Marathon and raised £1,561.
• Patricia McAllister completed CRY Heart of London Bridges Walk 2023 and raised £2,042.
• Sarah Heritage completed the London Landmarks Half Marathon 2023 raising £595.
• Carolyn Hersey chose CRY as the charity to benefit from her fundraising and raised £295.
• Paula Hesmondhalgh sent a donation of £200 from Ms M E Young in appreciation of her help.
• The Chinese Brush Painters Society Yorkshire Group sent £100, representing a donation from the sale of Brenda Manson’s Chinese Brush painting materials.
• Paula Hesmondhalgh sent donations totalling £1,077.85 raised as follows; £640 from a pop-upshop; £313.20 from donation’s at the Garstang Screening; £99.65 from a table top sale and £25 from Churchtown in Bloom.
• Nathan’s Wastesavers donated £592.
• Paula Hesmondhalgh sent donations totalling £882.72 raised as follows; pre-loved toys sales from Kendal Nursery School £53.72; a stall for CRY on the
Garstang Jumble Trail by Ina and Chris £64.30; Jane Mary Wilcox and the communities of Preesall & Knott E.
• Sharon Gardner Owen donated £165 in memory of Shaun Cross.
• Becca Green completed the TCS London Marathon 2023 and raised £2,549.
• Sharon Duncan sent £480 representing donations received in lieu of floral tributes’, in memory of her father, Lt Col David Johnstone.
• Chris Logue raised £220 from the Dumfries half marathon.
• Victoria Ramsey completed the TCS London Marathon 2023 and raised £3,296.
• Jack Fountain completed CRY Heart of London Bridges Walk 2023 and raised £573.
• Lee Hills comepleted the London Landmarks Half Marathon 2023 and raised £11,920.
• Samantha Macmillan and Natalie Smith completed the London Landmarks Half Marathon 2023 and raised £1035.
• Julie Bartlett completed the London Landmarks Half Marathon 2023 raising £270.
• White Court School raised £5,203 through their Colour Run.
• Nikki Smith-Pryor completed the Brentford Half Marathon in memory of Iain Hodges and for the Isabelle Tudisca Memorial fund and raised £200.
• Andrew Dearsley completed the Great North Run 2022 and raised £310.
• Andrew Dearsley completed Great North Run 2022 and raised £310.
• David Vick sent a donation of £234 raised through a Coffee Morning at Croxton Village Social Club.
• Charlene Ward-Greef completed the London Landmarks Half Marathon 2023 raising £725.
• Sean Billington completed a walk from Lands End to John O Groats and raised £18,831.
“On the 8th March 2023, Sean started his epic journey walking from Lands End to John O Groats to raise peoples awareness of C-R-Y and in memory of my son and his very good friend since school days, Mark Hudson.
“This took him 86 days of which 70 days were walking, the longest being 25.9 miles. During this time, he covered 1,161 miles and took 2.3 million steps !
“He also took on another challenge which was to consume a different chocolate bar on each day of walking which he also achieved with great success.
“On 1st April, his overnight stop was in Stratford upon Avon which was the closest to where we could all meet with him. So about 20 of us gathered outside of Stratford to walk the last 8
km with him arriving at the RSC theatre in the afternoon where more friends and family were waiting. We spent a wonderful few hours during which time the local news photographer came and resulted in an article about Sean’s walk being in the Stratford paper.
“Despite 19th and 20th May being rest days, another school friend joined him and together they climbed Ben Nevis !
“Sean finally reached John O Groats on June 1st to be welcomed by his wife Gillian, his parents, myself, Colin my husband and a bottle of champagne to celebrate such an incredible achievement !
“Due to the generosity of Sean with his time and months of training and planning and also to so many other people who donated and sponsored him, the final sum raised was an incredible £18,831 which has enabled us to be holding the first heart screening in Marks memory in August.”
• The Rotary Club of Long Eaton sent a donation of £400 following David Hughes presentation.
• Ravensmead CP School sent £230.88 respresenting donations received at a sports day.
• David Hughes sent a donation of £1,000.
• John Shenton sent a donation of £615 from Stone and District Cricket League.
• David Hughes sent a donation of £5,000.
• Sammi Clewlow sent £1,308 raised through a charity netball tournament.
• Miranda Cooke sent donations totalling £1,325.68 raised through a CRY Charity Netball Tournament.
• David Hughes sent a donation of £2,100.
• Andrew Pointon completed the Rome Marathon and the London Landmarks Half Marathon 2023 and raised £465.
“On Saturday September 16th, a charity netball tournament was held to help raise money for Dan Hughes memorial fund with CRY.
“The tournament was held at Keele University and 14 teams competed on the day. We’re delighted to announce that team Oakland were crowned the winners of the tournament. Well done Oakland.
“The total raised was £2,572. This was a combinations of team entries, raffle and donations.
“To all the organisers/players/spectators/umpires/ donators/sponsors/venue contacts, we would like to express our sincere thanks to everyone for making this event a huge success.”
• Thelma Jackson sent £275 representing donations received in lieu of floral tributes’, in memory of her husband, John Jackson.
• Tariq Jahangir completed the TCS London Marathon 2023 raising £12,242.
• Rouge and Tariq chose CRY as the charity to benefit from their general fundrasing and raised £41,360.89.
• Paul Taylor competed various triathlons and a Half Ironman raising £627.15.
• David Martin donated £100.
• Jacob and Olivia Robinson completed the Adidas Manchester Marathon raising £3,884.97.
• Penny Rainford completed the Adidas Manchester Marathon raising £1,009.65.
• Ellie Lavelle sent a donation of £12,923 raised through a Charity Gala Dinner in memory of Ben Peter’s.
• Novuna Consumer Finance sent a Match Giving donation of £650 in respect of the Kick for CRY fundraising event.
• Slaughter and May sent a Match Giving donation of £650, in support of Tom Hurleston’s Kick for CRY fundraising efforts.
• Fiona Tucker completed CRY Heart of London Bridges Walk 2023 raising £305.
• Heather Dick chose CRY as the charity to benefit from the ‘90 Christmas Fayre’ and raised £781.
• Ian Heslop completed the TCS London Marathon 2023 raising £1,624.67.
• Maighan Mclean completed a skydive raising £3,250.
• Bev Coghlan sent a donation of £236.92.
• Sandy Fletcher donated £100.
• Debbie Christopherson sent a donation of £920 raised by Everybody Health and Leisure, through a quiz, raffle and auction event.
• Sharon Heath sent a donation of £683 raised
through a raffle at the Annual Everybody Awards.
• Harp Nurseries donated £1,030.
• Astra Zeneca UK Ltd donated £6,000.
• The Astra Super6 group donated £350.
• Debbie Christopherson sent a donation of £400 raised by Everybody Health and Leisure, through the sale of quiz tickets.
• Macclesfield Rugby Club donated £150 raised through a Lunch.
• Debbie Christopherson sent a donation of £400 raised by Everybody Health and Leisure, through a quiz, raffle and auction event.
• New Mills School donated £229.41 raised through a collection from students and staff.
• James Jennings sent a donation of £129 raised through a raffle.
• Emma Crabtree sent a donation of £120 in memory of Stuart Crabtree.
• James Jennings sent a donation of £100 raised through a private function held by Maria from Macclesfield.
• James Jennings sent donations totalling £100.
• Everybody Health and Fitness Leisure Centre donated £140 raised from a tombola stall and fun day at work.
• Charlotte Warren completed the Stoke Half Marathon and raised £2,000.09.
• Macclesfield Rugby Club and supporters donated £193.96.
• David Jewell completed his fourth CRY Seaside Walk raising £1,345.25.
• Laura Johns completed a sponsored walk raising £1,690.
• Mair Jones completed CRY Heart of London Bridges Walk 2023 and raised £1,070.
• JIan and Ann Macaulay sent £469 representing donations made in lieu of wedding gifts.
• Cedric Chacon and Quentin Sulmont completed the Schneider Electric Paris Marathon raising £1,094.67.
• Ruchi Soni donated £100.
• Iain Park donated £100 on behalf of LOL 114 Alloa.
• Lorraine Joyce sent £550 raised by Morag Brember after her 100 mile cycle, with £100 donated by Pauline and Brian Thomson.
• O-I Glass Limited donated £3,000.
• Pauline Thomson donated £100.
• Jim Kerr donated £100.
InMemoryof Kieran Joyce
• Andrea Joyce sent £180 representing donations made at a screening day.
• Abbie and Sasha Williams completed a Tandem Skydive raising £1,510.
InMemoryof Nana Jumah
• Charlotte Wright chose CRY as the chairty to benefit from the sale of her Christmas Cards raising £154.
InMemoryof Eleanor Keeler
• Suzanne Keeler-MacDonald completed the London Landmarks Half Marathon 2023 and raised £738.
InMemoryof Dr Kelly Lee
• Shaun, Fran, Maddie and Stuart completed the Great North Swim and raised £469.
InMemoryof Andy Key
• The Rotary Club of Longridge and North Preston raised £1,162 through a comedy evening.
InMemoryof Danny Kidner & Farley Kidner
• Donna Brown completed the TCS London Marathon 2023 raising £1,647.
InMemoryof Graeme Kilpatrick
• Danielle McKay donated £1,200.
InMemoryof Olly King
• David Quick completed the TCS London Marathon 2023 raising £3,222.
• Ksenia Joyner donated £100.
InMemoryof Sophie Konderak
• Fay Willett completed the TCS London Marathon 2023 and raised £2,836.50.
InMemoryof Adam Kowalski
• Marta Kowalska chose CRY as the charity to benefit from her ‘Parting gift’ work donations and raised £419.73.
InMemoryof Mark Laker
• Connie Ffitch completed the TCS London Marathon 2023 and raised £2,581.
InMemoryof Jannik Lam
• Birte Harlev-Lam completed CRY Heart of London Bridges Walk 2023 raising £749.38
InMemoryof Michael Land
• Ruth Cain sent £114.60 raised as follows; £18.60 a collection pot at the conservative club, £22 a collection pot at the Football Factory, £24 a collection pot at The Robin Hood Pub, £40 from Hazel Crabtree from the sale of handmade Christmas card.
InMemoryof Anthony Lane
• Charles Hodgson completed the Birmingham Half Marathon raising £3,221.52.
• Holly Fairbrother chose CRY as the charity to benefit in repsect of the Anthony Lane Memorial Cup and raised £4,641.85.
• Henny, Henry, Kamil, Matt, Ollie, & completed the Adidas Manchester Marathon and Penny, Charlie, Henny, Matt, & Nathan completed the Birmingham Half Marathon. Suki and Ted the Dogs did the 8.5mile sutton fun run with Paul and Richard raising £14,023.70.
InMemoryof William Lane & Ariana Jahangir
• Maria Gabriel completed the TCS London Marathon 2023 raising £2,271.
InMemoryof Carli Lansley
• Megan Williams sent a donation of £800, raised through ‘A Cuppa For Carli’ afternoon tea fundraiser.
• Lloyds Bank Foundation sent a Matched Giving donation of £500 in support of Megan Williams Afternoon Tea fundraising.
• Brad Smith donated £100.
InMemoryof Jasmine Latham
• Angela Dakin completed the TCS London Marathon 2023 and raised £2,090.
InMemoryof George Lavery
• UK Power Networks raised £325.66 through their office tuck shop.
• Sanctuary Personnel & Innovate Services donated £187.
InMemoryof Mark Leach
• Kelly Blanchard completed the Leeds Inflatable Run and raised £125.
• Lawrence Maddison completed the Leeds Inflatable Run and raised £100.
• Julie Leaves and Naomi Sinclair sent a donation of £200 raised from their memorial cycle ride.
• Jenny Perry donated £100.
InMemoryof Miriam Lee
• Nicola Lee completed Ride London Essex 100 2023 raising £458.
• Tracey Wheawall sent a donation of £240 raised through craft sales.
InMemoryof Jake Kane Lister
• Saera Ahmad completed CRY Heart of London Bridges Walk 2023 and raised £468.
• Adam Ahmad completed CRY Heart of London Bridges Walk 2023 and raised £1,505.
• Susan Ahmad completed CRY Heart of London Bridges Walk 2023 and raised £570.
• Oliver Steels completed the TCS London Marathon 2022 raising £3,004.
• The community of St Giles’ Church, Acton Beauchamp raised £335 through their Afternoon Tea fundraiser.
• Rae Livesey donated £110 in lieu of sending Christmas cards.
• HSBC Bank Plc sent a Match Giving donation of £500.
• Graham Loncaster sent £515 representing donations received in lieu of floral tributes’, in memory of Ian Loncaster.
• Ella Allpass sent a donation of £100 in memory of Ian Loncaster.
• Graham Loncaster sent £101 representing donations made at a screening weekend.
• Adrian Lockyer and the Swanland Ducks cycle club completed the Swanland Ducks Coast to Coast cycle ride raising £795.
• Ian Suddaby and the Swanland Ducks cycle club completed the Swanland Ducks Coast to Coast cycle ride and raised £550.
• Karen Scott completed the TCS london Marathon 2022 and the Great North Run 2022 raising £435.
• David Fletcher and the Swanland Ducks Cycle Club completed the Seascale to Whitby Cycle ride raising £841.
• Brad Wilson and the Swanland Ducks Cycle Club completed the Seascale to Whitby Cycle ride raising £240.
• Mark Loveday donated £500.
• Rachel Johnson completed CRY Heart of London Bridges Walk 2023 and raised £550.
• Cliodhna Ni Riain completed the TCS London Marathon 2022 and raised £2,052.
• Lodge of Candour L7663 donated £1,000.
• Emma Macsween donated £100.
• Sunny Manku completed CRY Heart of London Bridges Walk 2023 and raised £1,616.37.
• Harbinder Mann donated £100 to CRY Heart of London Bridges Walk 2023.
InMemoryof Leon Ashley Manners
• Dean Hatton completed the Great North Run 2022 and raised £490.
InMemoryof Alun Mardon
• Bethan Mardon sent a donation of £750 raised through a Memorial Rugby Match.
InMemoryof Ollie Marsden
• Joe Marsden completed the TCS London Marathon 2022 and raised £2,357.24.
InMemoryof Lewis Marsh
• Simon Darvall donated £150.
• Gareth Woods donated £130.
InMemoryof Dean Mason
• Emma Jade Mason completed the TCS London Marathon 2022 and raised £5,440.
• Haycastle Horticultural Committee donated £800.
InMemoryof Richard Mason
• Val and Roger Mason donated £100.
InMemoryof Thomas May
• Marisa May completed Ride London Essex 100 2023 and raised £1,100.
InMemoryof Pete (#4Pete) McAvoy
• Anne McAvoy donated £300.
InMemoryof Gina McCan
• Sarah Mullarkey completed the Liverpool Half Marathon and raised £2,866.10.
• Rachel Johnson donated £155.
InMemoryof Caitlin McCart
• Beth Coghlan completed the TCS London Marathon 2022 and raised £3,099.
InMemoryof John (JR) McCarthy
• Jacci McCarthy sent £352.10 representing donations received in lieu of floral tributes’, in memory of John.
InMemoryof Jonathan McGrath
• Patrick Doyle completed the TCS London Marathon 2023 and raised £2,654.
InMemoryof Stephanie McLean
• Lesley McLean donated £150.
InMemoryof Euan McNamara
• St Mary’s College raised £250 through a Bake Sale.
InMemoryof Peadar McQuillan
• Alex Hopkins-McQuillan donated £663.
InMemoryof Liam Meadows
• Julie and Abby Meadows completed CRY Heart of London Bridges Walk 2023 and raised £200.
• Helen White chose CRY as the charity to benefit from her fundraising from ‘Guess the name of Baby White #3’ and raised £207.43.
InMemoryof Josh Merrick
• Sean and Niall Reece raised £250 through their bike ride.
• Karen Merrick sent a donation’s totalling £3395.31, raised through the ‘Time for Tea at the Pumpkin Patch’ Charity afternoon tea fundraiser.
InMemoryof John Millar
• Kirsty Millar sent donations totalling £1,407 from her Halloween fundraiser.
• Sheila Millar donated £295.
InMemoryof James Moorfoot
• Hornsea School and Language College donated £322.25.
InMemoryof Owen Morris
• Peter Mason completed the TCS London Marathon 2023 and raised £275.
• Llanrumney Medical Centre sent a donation of £100.
• Jake Morris completed a cycle ride and a Pen-y-Fan climb and raised £3,459.05.
• Kathryn O’Connell sent donations totalling £270, raised by staff from non uniform days and a charity walk up Pen Y Fan.
InMemoryof Luke Moss
• Jed Moss and MensHub completed MensHub HubRox and raised £1,735.
InMemoryof Laura Moss
• Emma Aldworth completed Ride London Essex 100 2023 and raised £1,494.
InMemoryof Kate Mottram-Clarke & Daniel Hughes
• Rob Mottram completed the Adidas Manchester Marathon raising £1,415.
InMemoryof Isobel Moulding
• Isabella, Georgia and Alexandra Crane all completed the London Landmarks Half Marathon 2023 and raised £2,555.
InMemoryof Claire Mounsey
• Helen Richards donated £250.
InMemoryof Guy Mountford
• Jill Mountford sent donations totalling £520, £270 was from Guy’s Porter colleagues and £250 from his
Emergency Department colleagues.
InMemoryof Paul Mulford
• Colin Mulford completed CRY Heart of London Bridges Walk 2023 and raised £200.
InMemoryof Andrew Murch
• Breadalbane Academy donated £152.
• Richard Pearson sent a donation of £525 raised from the Aberfeldy Multi Sport Festival event.
InMemoryof James Murgatroyd
• John Hooley and Joe Dorris completed the Peak District Challenge and raised £1571.77.
InMemoryof Nicky Musgrave
• Jackie Musgrave chose CRY as the chairty to benefit from donations in lieu of gifts for her birthday totalling £1,510.
InMemoryof Pardeep Nagra
• Heath Park School donated £3,000.
InMemoryof Sidharth Nanu
• Narendra Dhariwal completed the TCS London Marathon 2023 raising £4,463.
InMemoryof Anthony Newhall
• Lydia Newhall completed the Chester Half Marathon and raised £2,645.
InMemoryof Daniel Newman
• Belmont Farm Nursery School raised £500.
InMemoryof Dominic Newton
• Alice Surgy completed the Great North Run 2022 and raised £233.
InMemoryof James Nicholas
• Debra Grant donated £100.
• Sophie Allan donated £100.
InMemoryof Clarissa Nicholls
• Dominic Robertson donated £500.
• Tavistock Athletic Club donated £300 from their monthly 5K.
InMemoryof Barry Nivett
• Sara House sent a donation of £612 raised through a Quiz Night.
InMemoryof Robert Nugent
• Owen Nicks completed Great North Run 2022 and raised £570.
InMemoryof Alfie Nunn
• Samantha Lenoir completed CRY Heart of London Bridges Walk 2023 and raised £470.
• Leigh and Michael Avery completed the TCS London Marathon 2022 raising £4,299.
InMemoryof Sean O’Brien
• Aileen Hankin sent a donation of £130 raised through a World Cup rugby sweepstake.
InMemoryof Ben O’Connell
• Sonney and Frankie Bentley Climbed Snowdon and raised £3,450.54.
• Debbie Ross completed the TCS London Marathon 2023 and raised £1,493.
InMemoryof Andrew Oliver
• Judith Oliver sent £263.08 representing screening day donations.
• Judith Oliver donated £367.70 raised from the sale of her hand knit Christmas decorations.
• Judith and Chris Oliver sent a donation of £316.83 raised from a Christmas Craft Stall and Tombola held at Elm Ridge Church Christmas Fayre.
• Judith Oliver sent a donation of £140 raised from the sale of hand knit Christmas decorations.
InMemoryof Clayton Olson
• Shawn Cole sent a donation of £8,787.82.
• Barry Polley donated £100.
• Rene Riefer donated £500.
InMemoryof Charlotte Ellen Orwin
• Suzie Roberts and Jo completed the Cotswold Way Challenge raising £1,194.39.
Osahon Osawe
• Nicola Anne Howell completed the London Landmarks Half Marathon 2023 and raised £1,160.
InMemoryof Osahon Osawe & Simon Bird
• Jason Stowell chose CRY as the charity to benefit in respect of Abraham’s Tea Round AKA George Fisher Tea Round raising £1,361.54.
“Over 30 miles around Cumbria Mountains and between 11-12000 ft of climbing which Ian “Nosey” Parker and myself completed on 21/06/23 with Jamie “Just Retired” Osborne completing over half as support and Phil “Bandana Inspiration” Caswell meeting us at various points with refreshments etc.
“The challenge took us 14 Hours 13 Minutes and 40 seconds (moving time 12 hours 54 minutes) and the finish was so very emotional with me holding up a T-Shirt with a picture of “Os” on it, in memory of the man who inspired me to complete this challenge. He died age 31 last year in Syston Leicestershire playing football leaving my 29 year old niece Charlotte and their then 1 year old
son Tobias behind.
“For “Os” and for Charlotte and Toby, and last but not least to raise funds and awareness for CRY”.
• Karen Padmore completed CRY Heart of London Bridges Walk 2023 and raised £975.
• Robert Page completed Ride London Essex 100 2023 and raised £1,891.
• Richard Gill completed the TCS London Marathon 2023 and raised £2,000.
• Nichola Parris sent a donation of £5,101.
• Matthew Parris chose CRY as the charity to benefit in respect of sponsorship from his Golf Day totalling £592.
“We did it
InMemoryof Daniel Parry
• Edward Parry completed the Windermere Rowing Challenge and raised £2,210.14.
“In memory of Danny Parry Forever 27, we completed the Windermere 21 Mile Rowing challenge despite having to row against a 4 to 6 knot wind in torrential rain. We finished the challenge in 7 hours and 15 minutes and I
would like to thank:
“The team: Eddie Parry, Sandy Parry, Gary Horstman, Graham Knowles, Joe Parry, Chris Parry, Dave Moreno, Nick McCormack, Tom Culshaw and Tom Unsworth.
“Thank you to Mark Masons for funding the Technical side of the challenge.
“Thank you to the C-R-Y Charity for their fantastic life saving work too.
“Thank you to all who have donated on the Just Giving Page and the total to date is £1,652 however, the Just Giving page will be open until the end of August 2023.
“You are all heroes and on behalf of the Parry family, we would like to thank all involved in raising money to save lives though testing and research in memory of Danny Parry Forever27… x”.
• Jai Wood, Craig and Rita completed the Cheltenahm Half Marathon and raised £2,173.16.
• Pauline Gaut sent £150 representing donations received in lieu of floral tributes’, in memory of John Gaut.
David Paul & Jenni Paul
• Graeme Cadger chose CRY as the charity to benefit from the Paul Hanlon Darts Day totalling £245.
• Mrs Pawson sent £1,127 representing donations received in lieu of floral tributes’, in memory of her husband, Bill.
• Miss Fitzsimmons sent £364.32 representing donations received in lieu of floral tributes’.
• Jennifer Cox completed the TCS London Marathon 2022 and raised £1,478.
• Elliot Milburn completed the Great North Run 2022 raising £535.
• Brian Petley sent £140 representing donations received in lieu of floral tributes’, in memory of his mother, Marion Petley.
• Penguin Random House raised £500 through a staff book sale.
• Helen Petley sent a donation of £435 raised from the Raymond Crystal Quiz night at Thorpe social club.
• Helen Petley sent a donation of £100 from Tom’s grandparents.
• Danny Ayling and the Tendering DC Beach Patrol completed a sponsored walk, ‘Walk for Tom’ and raised £1087.
• Matt Ladkin completed the TCS London Marathon 2023 and raised £5,410.
• Andy Cobb ran Little Ben to Big Ben on Marathon Day raising £165.
• Helen Petley sent a donation of £2,640 from her ‘Party for Tom’ fundraiser event.
• James Hamilton Architects sent a donation of £1,000.
• Andrew Roberts completed the TCS London Marathon 2022 raising £3,379.
• Plumb Mate Ltd raised £2,180 through their Golf Day.
• EnQuest donated £1,000.
• Lerwick Fire Station raised £2,500 through a open day.
• Haileybury College completed the ‘Albans Skipathon’ and raised £650.
• Rita Ponting sent £1,325 raised through a Coffee Morning and a further donation of £59.97 from Jolie Fleur’s collection pot at her flower shop.
• Rita Ponting sent £265 raised through car boot sales and donations.
InMemoryof Christian E Popp
• Clare Ensenat donated £300 in memory of Ann Marietta and Christian Popp.
• Alastair Erskine donated £100.
InMemoryof Craig Daniel Powell
• Daniel McLaughlin completed the TCS London Marathon 2022 raising £2,081.
InMemoryof Alden Price
• Steve Price completed the TCS London Marathon 2023 and raised £2,777.
InMemoryof Bobby Puri
• Susan Pal completed CRY Heart of London Bridges Walk 2023 and raised £1,934.54.
InMemoryof Ben Ramsay
• Edward Ramsay donated £100 in memory of Janet and Colin.
• Nick Bean sent a donation of £100 in memory of Janet and Colin.
InMemoryof Alex Reid
• Roger Sharp sent a donation of £440, raised by the Bury Walking Group through their walk in memory of Alex.
• Rebecca Podlaski sent £669 raised from a charity netball match at Sheffield High School for Girls.
• Matthew Moroney completed the London Landmarks
Half Marathon 2023 raising £410.
InMemoryof Miles Reid
• Charlie Elmer completed the TCS London Marathon 2022 and raised £2,280.
InMemoryof Thomas Reid
• Phil Makepeace sent a donation of £260 raised through an NFL predictions league.
InMemoryof Dylan Rich
• Simon Bedford completed the TCS London Marathon 2023 raising £2,992.
InMemoryof Edward Ridgway
• Frankie Cooke completed the TCS London Marathon 2023 raising £1,848.
InMemoryof Jack Lewis Riding
• Luke Hemmings completed the National 3 Peaks raising £855.
InMemoryof Amber Robinson
• Clare Viney completed the TCS London Marathon 2023 raising £2,844.
InMemoryof Killian Roche
• Aisling Roche completed the TCS London Marathon 2023 and raised £2,748.
InMemoryof Sian Roger
• Patrick Griffin completed CRY Heart of London Bridges Walk 2023 and raised £250.
InMemoryof Jamie-Leigh Rose
• Ellen Ridley completed CRY Heart of London Bridges Walk 2023 and raised £670.
InMemoryof Hamish Ross
• Chris Thain completed the Edinburgh Marathon raising £1,210.01.
InMemoryof Robert Rowan
• The Fife Wanderers Walking Football Club raised £170 through a golf day, in memory of John Cunningham.
• Colin Robertson sent £360 representing donations received in lieu of floral tributes’, in memory of his wife Rita Robertson.
• Jacqueline Hyland sent a donation of £100 in memory of Robert’s birthday.
• Thornton Golf Club raised £5,218.03 through a Charity day.
• Peter Stubbings completed the London Landmarks Half Marathon 2023 raising £1,506.
• Josh Stefanini completed the TCS London Marathon 2023 and raised £2,044.
• Rebecca Hyland completed the TCS London Marathon 2023 raising £2,301.
• Matt Bramhall completed the TCS London Marathon 2023 and raised £6,791.
• Brentford FC chose CRY as the charity to benefit from their fundraising totalling £10,998.33.
InMemoryof Adam Rowbottom
• Debbie Thompson donated £100.
InMemoryof Danielle Rowe
• Allscott Senior bowls team donated £120.
• Tony Riley sent £485.14 raised from his sponsored WCF Boxing Fights.
InMemoryof Fiona Russell
• Dan Wilson completed the Great North Run 2022 and raised £270.
InMemoryof Craig Salmon
• Briggs Equipment UK Ltd donated £250.
InMemoryof Ben Sandison
• James Lyons completed CRY Heart of London Bridges Walk 2023 and raised £1,908.
InMemoryof Luke Sandoe
• Leah Sandoe and the Trinity Runners completed the Exeter Great West Run raising £596.
• Leah Sandoe completed the Exeter Great West Run and raised £1,223.
InMemoryof Suanu Saro-Wiwa
• Ben Yonge sent a donation of £1,095.
• Olivia Saro-Wiwa chose CRY as the charity to benefit from her someone special just giving page and raised £18,786.67.
• Ben Yonge, Alfie Shankland, Meurig Shotton, Darius Rubin and Hugo Flower aka TheVoibs completed ‘20,000 Leagues across Eurasia’ driving from London to Lake Baikal, Siberia and back. Along the way they climbed the world’s tallest man made climbing wall raising £10,831.20.
InMemoryof Neil (Kymatic) Schuyleman
• Helen Davies donated £100 to CRY Heart of London Bridges Walk 2023.
InMemoryof Mike Scott
• Marje Scott sent a donation of £110.
InMemoryof Matthew Seymour
• Bishopton Rugby Club donated £7,500.
InMemoryof Adam (Tizz) Shaw
• Brunning and Price completed the Snowdon 6 Challenge raising £6,780.
• Gabrielle Shaw completed the TCS London Marathon 2023 raising £11,465.
InMemoryof Andrew Shaw
• Risley Cricket Club raised £1,000.
InMemoryof Margaret Shaw
• Matthew Robinson donated £100 in memory of Margaret Shaw and her son Steven.
InMemoryof Olivia Shaw
• Isabel Shaw completed the TCS London Marathon 2023 raising £6,100.
InMemoryof James Sheppard
• George Musson completed the TCS London Marathon 2023 and raised £943.
InMemoryof Paul Sheridan
• Joanne Johnson donated £150.
InMemoryof Madeline Siddall
• The Chesterfield Canal Trust’s tripboat crew donated £500.
InMemoryof Carole & Nick Simpson
• Shannon Simpson completed CRY Heart of London Bridges Walk 2023 and raised £339.
InMemoryof Sukhwinder Singh-Digpal
• Surinder Singh completed the London Landmarks Half Marathon 2023 and raised £541.
InMemoryof Paul Sykes
• Patricia Berry completed CRY Heart of London Bridges Walk 2023 and raised £523.
InMemoryof David Smiley
• Peter Smiley completed the TCS London Marathon 2023 and raised £911.
InMemoryof Benjamin M Smith
• Heidi Penrose completed the Medoc Marathon and raised £1,421.97.
• Pam Bourne donated £120.
• Laura Self donated £120.
InMemoryof Benjamin Smith & Timothy & Elizabeth Rattray
• Penny Rattray completed the 50K Big Way Round and raised £600.
InMemoryof Phil Standing
• Sue Fisher sent a donation of £150 raised at Romsey Charity Fair, with the support of Mountbatten school staff and students.
• Susan Fisher donated £100 to CRY Heart of London Bridges Walk 2023.
• Sue Fisher donated £100.
InMemoryof Jono Stead
• Stuart McDougall donated £125.
• David Stead sent £100 donated by some of the customers of Luciens Bar.
• June Oxtoby donated £200.
• Pat Stead donated £1,000 in memory of her grandson.
• The Old Bridlingtonian Lodge donated £200.
InMemoryof Lewis Stewart
• Graeme Stewart sent a donation of £1,708.
• Graeme Stewart completed the London-WalesLondon and Paris-Brest-Paris Cycle Ride and raised £5,210.
• Karen Reep donated £700 raised through the sale of her designed Christmas cards.
“I have donated the money £700 from the purchases of christmas cards designed by myself in memory of my Nephews Andrew’s girlfriend Julia who died suddenly in June 2023. I hope the money helps someone else going through this trauma and keeps this wonderful charity helping those in need.”
Karen Reep
InMemoryof Craig Sykes
• Chris James completed the Great North Run 2022 and raised £1,190.
InMemoryof Michael Taylor
• Rhianna Taylor-Birch donated £100.
InMemoryof Suzanne Taylor
• Beryl Ewing sent a donation of £150.
InMemoryof Zoe Teale
• Sarah Robinson sent £284.24 raised through the OSH Interact Fundraiser Day.
• Peter Teale completed the TCS London Marathon 2022 and raised £3,195.
InMemoryof Dale Tennent-Butler
• Lee Tennent-Butler completed the TCS London Marathon 2023 and raised £2,539.
InMemoryof Evan Thomas
• Nadine Heseltine donated £157.80.
InMemoryof Jack Thomas
• June Thomas sent a donation of £3,000.
InMemoryof Kellum Thomas
• Mike Garde completed CRY Heart of London Bridges Walk 2023 and raised £1,125.
InMemoryof Nicholas Thomas
• Scott Smith completed the Great North Run 2022 and raised £764.
InMemoryof Corina Marie Thompson
• Lyndsey Sorrenson, Nicole Thompson and Mia Mayo raised £4,530.55 through a group skydive.
InMemoryof Scott & Mike Thurlow
• Cathryn Thurlow chose CRY as the charity to benefit in respect of sponsorship totalling £1,546.33 from her Lent Challenge.
InMemoryof Ryan Tilley
• Joe Tilley completed CRY Heart of London Bridges Walk 2023 and raised £728.35.
• Dave Tilley sent a donation of £320 raised through clothing sales at the Royal Oak Christmas Market Day, with remaining items sold by the Main Street Post Office girls.
• Cropston Cricket Club donated £120 following their dinner presentation night.
InMemoryof Ashley Trigg
• Megan Trigg completed CRY Heart of London Bridges Walk 2023 and raised £1,490.
• Lesley Haylett chose CRY as the charity to benefit from ‘Peter’s Christmas Gingerbread house big Light switch on’ and rasised £1,311.75.
• James Quartly completed the TCS London Marathon 2022 and raised £5,286.
• Paul Mills completed the Isle of Wight Challenge and raised £460.
• Lucy Turberville completed the Great Bristol Run and raised £1,963.
“Joanna Vallans chose CRY as the charity to benefit in respect of a charity football match totalling £2,070.
“We decided to hold a football match this year in Toms memory for the anniversary of us losing him. All proceeds raised have been sent to CRY who try to help young people with heart conditions. We have asked various people to play based on them knowing Tom. This was held at Heanor Miners Welfare on Saturday 22nd July. From 1.00 pm with 1.30. donations were greatly received including a signed Man U shirt and a signed worn Alan Shearer Newcastle shirt.
“The weather was awful! It rained all day and we were amazed and grateful to all who came to support us, thank you so much. The game was very close with the
winning team making the final score 5-4! The lads played incredibly well and are already signed up for next year! Thank you to all who played, ran the line, donated prizes and gave up their time to help us on the day! We couldn’t have done it without all your help!
“We are hoping to make this an annual event.
“Thanks so much we do appreciate any support you can give.
“We want to keep Tom alive in our hearts”
• Jessica Mildwaters donated £100 in lieu of a wedding present for Sophie and Matt Christian.
• David Clark-Wilson donated £100.
• Jonathan Kinrade sent a donation of £142 raised through The Fraser Vaughan Memorial Festival.
• Holly Waddell and Rebecca completed the Tower to Castle Ultra Run and raised £1,435.
• Thrapston Sports Association raised £2,000 through their annual fun day 2023.
• Daniel Gambrell completed the GP Oulton Park Marathon and raised £430.
• Kathryn Walker sent a donation of £860 raised through the 7th Annual Garth Walker Memorial Bowls Competition.
• Elaine Ward sent donations totalling £335 raised as follows; £250 from The Dore Rose Croix Masons and £85 from a talk at Drone Roses WI.
• The Rotary Club of Bakewell donated £250.
• Elaine Ward sent a donation of £200 following a talk at the Rotary Club of Rotherham.
• Elaine Ward sent a donation of £520 from the Crosspool Challenge Fun Run.
• Robert Watley completed the TCS London Marathon 2023 and raised £6,081.
• Carmen Pitzettu sent £150 representing donations received in lieu of floral tributes’, in memory of her father, Gerald Keith Woodhouse.
• Scott Graham, Richard McGrath, Mark Hughes, Nick Child, Dave Waters, Jack Harrild, Lee Griffiths, Terry Lineker, Tom Ross, Mike Edey, Andy Norrington, Oli Blackburn, Dave Young, Tom Burchell, Josh Allinson and Tom Cowell completed the is ‘100 Holes challenge and raised £10,189.90.
• William Riches and the Asparagus Boys completed the LEJOG 2023 Cycle Ride and raised £3,464.91.
• Joseph Dyke donated £100.
• Sian Davis donated £100 raised through face painting.
• Angela Hayward completed the TCS London Marathon 2022 and raised £2,224.
• Simon Wells completed CRY Heart of London Bridges Walk 2023 and raised £320.
• Lauren Nardo sent £100 representing donations received in lieu of floral tributes’, in memory of Brian.
• Andrew Wilson sent £341 representing donations made in lieu of floral tributes’, in memory of his father, Stuart Wilson.
• Callanda Housley completed the TCS London Marathon 2023 and raised £1,950.
• Paula Morrell completed the TCS London Marathon 2023 and raised £1,867.
• Gail Harmon-Child donated £700 raised through a Raffle and Tombola at work.
• Harold and Esther White donated £220.
• North Tyneside Police Cadets raised £520.50 through taking part in a assualt course.
• Lisa Steel sent a donation of £212.95 raised through a Twilight walk.
• Kate Relph chose CRY as the charity to benefit in respect of the Relph Birthday Celebrations and raised £850.
• Ben Brook completed the TCS London Marathon 2023 and raised £1,600.
• Tyrrells Wood Golf Club raised £9,241.
• Putney Cricket Club and Exeter University Old Boys raised £451.78.
• Christine Abram sent a donation of £175 raised through the sale of Christine Gow’s regifted raffle prize.
• The New Temple Lodge of Freemasons donated £300.
• Ann Coles sent a donation of £570 raised from a Charity evening and raffle.
• Ann Coles sent £342 raised from a Switch Lite package raffle, that was donated by Frank Belshaw Surveyors.
• Ann Coles sent a donation of £85 raised at a Christmas Fair, with the help of her granddaughter Emily.
• Barbara Maddock raised £220 in memory of her grandson Michael James Lees - Maddock.
• Ann Coles sent a donation of £255 raised from the RAFA Club Leyland’s Musical Night.
• Ann Coles sent £115 raised from donated goods at a car boot sale.
• Longton Bowling Club donated £108.07.
• Bryant Kettle sent donations totalling £10,600 fundraised by Sunbury Golf Club during her year of captaincy.
• Claire Williams donated £100.
• Phoebe Connolly completed the TCS London Marathon 2022 and raised £1,950.
• Mrs Williams sent donations totalling £185 raised from an annual golf tournament organised by Stephen’s friends.
• Melanie Ball raised completed CRY Heart of London Bridges Walk 2023 and raised £313.
• PGS Theatre Productions donated £100.
• Dae School raised £1,000 through their production.
• Harry James sent a donation of £165 from a fundraising tournament at Broxbourne Sports Club.
• Dane Moore completed the TCS London Marathon 2022 and raised £1,950.
• Rosie Leech completed the TCS London Marathon 2023 and raised £2,480.
• Anna Worboys completed the TCS London Marathon 2023 and raised £5,654.
• Felicity Towler completed the TCS London Marathon 2023 and raised £3,030.
• Ellie Harbinson completed the TCS London Marathon 2023 and raised £2,296
• Nick White sent a donation of £1,200 raised at the Barton Family Festival 2023.
• Lorraine McAndrew sent a donation of £1,000.
• The St Nicholas Players sent £1,000 raised from their production of ‘Dick Whittington and His Cat’.
• Tracy and David Yendall sent a donation of £350 raised from their charity walk.
• David Yendall and others completed the Ingleby Bar Walk and raised £630.
• Breadalbane Academy donated £104.65.
• David and Jennifer Clarke chose CRY as the charity to benefit in lieu of gifts on their wedding day raising £905.
• Joshua Bullard chose CRY as the charity to benefit in respect of sponsorship from ‘The Girls in 12 cross fit Challenge’ raising £575.50.
• Chris Stoppard completed a Lands End to John O’Groates cycle ride raising £1584.52.
• InHealth Group chose CRY as their charity of the year 2018/19 donating £523.11.
• Anthony Tierney chose CRY as the chairty to benefit in respect of his Hathersage New Year’s Eve Fundraiser 2018 donating £885.
• James Topping chose CRY as the charity to benefit in respect of sponsorship from ‘Fight for a Cause III’ donating £945.
• Sarah Williams completed the ‘Miles for Miracles Samworth Brothers Charity Challenge’ donating £800.
• Steve Mandaluff completed a Couch to 10,000k Cycle Ride around Great Britain donating £255.
• Chris Barton chose CRY as the charity to benefit from the ‘Irregular Beats’ Birthday fundraiser donating £2,180.
• John Sheehan completed the Tube Challenge raising £685.
• A team of AXA and its partners Litica and AlescoDA completed a March Step’s Challenge raising £170.
• Stuart Clark completed the Edinburgh Half Marathon raising £300.
• Lorna Dane chose CRY as the charity to benefit in lieu of gifts on her Birthday donating £782.92.
• Cara Brookes completed the London Landmarks Half Marathon 2023 raising £890.
• Lydia Reynolds completed the London Landmarks Half Marathon 2023 raising £970.
• Diana Lowth completed the London Landmarks Half Marathon 2023 raising £535.
• Benjamin Conolly completed the London Landmarks Half Marathon 2023 raising £1,183.
• Jasmine Christy Completed the TCS London Marathon 2022 raising £2,215.88
• Lydia Hayward completed the TCS London Marathon 2022 raising £2,272.
• Michael Lee completed the TCS London Marathon 2022 raising £2,761.
• Jessica Diges completed the TCS London Marathon 2022 raising £2,356.
• Nick Dover completed the TCS London Marathon 2022 raising £2,682.
• Declan Drewett completed the TCS London Marathon 2022 raising £2,273.
• Tom Parker completed the TCS London Marathon 2022 raising £4,430.
• Rebecca Parsons completed the TCS London Marathon 2022 raising £1,510.
• Graham Kidd completed the TCS London Marathon 2022 raising £525.
• Emma Henderson completed the TCS London Marathon 2022 raising £1,085.
• Matthew Cole completed the Great North Run 2022 raising £607.
• Nicola Bairstow completed the Great North Run 2022 raising £608.
• Robyn Ferguson completed the Great North Run 2022 raising £555.
• Maggie Fearby completed the Great North Run 2022 raising £200.
• Phillip Nathan completed the Great North Run 2022 raising £642.
• Vu Vo completed the TCS London Marathon 2023 raising £2,597.
• Hannah Henshaw completed the TCS London Marathon 2023 raising £12,023.
• Samuel White completed the TCS London Marathon 2023 raising £1,968.
• Neil Cole completed the TCS London Marathon 2023 raising £6,981.
• Abbas Zaidi completed the TCS London Marathon 2023 raising £3,102.
• Laurence Bolton completed the TCS London Marathon 2023 raising £2,330.
• Hannah Richmond completed the TCS London Marathon 2023 raising £2,240.
• Tom Bird completed the TCS London Marathon 2023 raising £3,117.
• Cameron Spencer completed the TCS London Marathon 2023 raising £2,587.
• David Gandee completed the TCS London Marathon 2023 raising £2,723.
• Caroline Hodgson completed the TCS London Marathon 2023 raising £2,015.
• Cameron Ward completed the TCS London Marathon 2023 raising £2,060.
• Cameron Mackinnon completed the TCS London Marathon 2023 and the Manchester Marathon raising £1,504.
• Faye Pickles completed the TCS London Marathon 2023 raising £500.
• Ella Barnes completed the TCS London Marathon 2023 raising £1,055.
• Chris Ward completed the TCS London Marathon 2023 raising £1,160.
• Angelo Tomasso completed the TCS London Marathon 2023 raising £550.
• Carol Murphy completed the TCS London Marathon 2023 raising £685.
• Raymond Randall completed the TCS London Marathon 2023 raising £300.
• Crad Lowe completed Ride London Essex 100 2022 raising £600.
• Peter O’Donnell completed Ride London Essex 100 2022 raising £1,528.
• Mike Leaf completed Ride London Essex 100 2022 raising £665.
• Paul Hollinghurst completed Ride London Essex 100 2022 raising £825.
• Stuart Kemp completed Ride London Essex 100 2023 raising £3,951.
• Nick Young completed Ride London Essex 100 2023 raising £878.
• Jack Ellis completed Ride London Essex 100 2023 raising £1,595.
• James Hughes completed Ride London Essex 100 2023 raising £705.
• David Michael Andrews completed Ride London Essex 100 2023 raising £2,738.
• Phillip Nathan completed Great North Run 2022 raising £642.
• Sandra Perrin completed CRY Heart of London Bridges Walk 2023 raising £100.
• Carrie Hughes completed CRY Heart of London Bridges Walk 2023 raising £179.
• Nunhead Community Choir donated to CRY Heart of London Bridges Walk 2023 raising £100.
• Street Food Markets donated £150 to CRY Heart of London Bridges Walk 2023.
• Medica Group chose CRY as the chairty to benefit from ‘Medica’s International day of Radiology_CRY’ donating £199.32.
• Chris Markey completed the Corsham 10k raising £175.
• David Simms completed the Belfast Marathon raising £720.
• Amy Dillon and Daniel Humphrys completed the Paris Marathon raising £636.20.
• B Niblock, K Carey, J Kerr, V Ashe, D McEvoy, N McAllister, M O’Brien, M McAnallen, at St Mary’s
on the Hill Primary school completed the Belfast Marathon relay raising £1,695.
• Yvonne Wills completed the Shires and Spires Marathon raising £340.
• Richard Fearnley chose CRY as the charity to benefit from the Breedon charity football match raising £425.
• Gary Evans completed the Jurrasic Coast Ultra Challenge £136.52.
• Jo and Maddi Connor completed an Inflatable 5K Run - St Albans raising £184.
• Jake Brown completed a 90 mile walk Lossiemouth to Cruden Bay raising £1,019.68
• Project One Consulting completed the Great Manchester 10k Run raising £635.
• Dan Frammingham chose CRY as the charity to benefit in respect of sponsorship from taking part in Liftin’ Alive Deadlift Competition donating £1,229.58.
• York House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £299.24.
• Tees House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £460.
• Northumberland House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £565.90.
• Marwood House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £190.
• Longfield House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’. donating £620.
• Durham House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £170.
• Dale House of Barnard Castle School chose CRY as the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ donating £320.
• Bowes House of Barnard Castle School chose CRY as
the charity to benefit in respect of sponsorship from ‘‘Barney Bash for CRY’ and raised £140.
• Barnard Castle School chose CRY as the charity to benefit in respect of sponorship from ‘Jacko’s FINAL Bash’ and raised £1,291.
• Bolton School Boys’ Division sent a donation of £200, raised through Matthew Molyneux’s sponsored Chorley 4 Peaks Walk.
• St Wilfrid’s Church, Northeneden donated £175.
• Enterprise Holdings Foundation donated £1,000.
• Brooks Mcdonald Asset Management International donated £200 from a staff collection.
• Ian Hillman sent donations totalling £8,799.50 raised during his year as Captain at Woburn Golf Club.
• 5 Year 6 pupils from King’s School Macclesfield held a cake sale which raised £256.
• Ryan Love donated £164.59.
• Staffordshire Cricket donated £798 raised from their Annual Awards Evening.
• Lloyds Bank Foundation sent a Matched Giving donation of £1,640, in support of Kim Povey, Nagina Ali, Jane Pennington and Usman Khan’s Charity Fashion Show fundraising.
• Hannah Zander donated £100.
• The Knights of St Columba Council 401 Chingford donated £300.
• Anthea Martin donated £100.
• Nicholas Orr sent a donation of £100 from the Young Leaders in Cricket.
• Hilary Maw donated £150 raised from the sale of her sewn and knitted pumkins.
• Alison MCGrath sent a donation of £189.72 raised through a Manchester Hub Abseil.
• NatWest Bank Plc donated £430.
• PA Advocacy Ltd sent £100 on behalf of Finlay Carson MSP representing a survey fee donation.
• The University of Strathclyde Glasgow HR team
raised £252.50 through their bake sale.
• Informa sent a Match Giving donation of £220 in repsect of the Walk The World fundraiser.
• The Fighting Cocks Bar and Venue raised £551.
• Lloyds Bank Foundation sent a Matched Giving donation of £500 in support of Sarah Bentley’s cricket club fundraising.
• The Old Union Chapter donated £425.
• Purley Downs Golf Club donated £420.
• Mark Greene donated £100.
• Deborah Prophet donated £100.
• Sat Mistry sent a donation of £1,001 raised by the Shree Prajapati Association, Wellingborough, through their Bollywood Kings & Queens night at their annual charity fundraiser.
“On Saturday 4 November, Shree Prajapati Association UK, Wellingborough branch, had a fabulous Bollywood Kings & Queens night at their annual charity fundraiser at Silk Club in Wellingborough.
“Tony and Joan Hillier, the Northamptonshire reps for CRY, received a cheque for £1,001 and made a wonderful acceptance speech explaining the aims and work of the charity. Following that, there was a dinner, dance and raffle with 120 in attendance.
“SPA UK is a community association with aims of promoting Hindu cultural activities and supporting worthy causes. This was Wellingborough branch’s 13th fundraiser and they’ve now raised over £45,000 in that time.”
• The Mandalay Club donated £250.
• Royston Horse and Pony Club donated £570 from their remaining funds after closure, nominated by Mary and Kevin Fox.
• Houston Primary School donated £400.
• Gryffe High School donated £291.
• Lancaster and District National Farmers’ Union donated £700 from their closing social fund.
• Dream Car Giveaways donated £1,776 raised through a Charity Competition.
• Parisima Shamsavary donated £200.
• Heather Bell sent a donation of £115 from her fundraising event.
• Sevenoaks & District Football League donated £250 raised from the proceeds of their Charity Cup Finals.
• Ellie Stretch sent a donation of £2,400 raised through a team Coniston 2 Barrow 21 mile walk.
• The Holy Trinity Academy raised £237.50 from a Mufti Day.
• Busy Hands Craft Group raised £900 from a Coffee Morning and Craft Stalls.
• Tristan Puri sent a donation of £525 raised through a Charity Concert.
• Kim Povey sent a donation of £1,055 raised through a Fashion Show and Raffle.
• Emily Wardrope raised £385 through having her first haircut, in memory of her cousin.
• Woodhouse College students raised £175.70 through a Bake Sale.
• Stephen Newbould sent a donation of £100 on behalf of Epsom Cricket Club’s Young Leaders fundraiser.
• Fiona Wildgoose donated £150.
• Martha Back donated £100.
• Ailis O’Connell donated £198.50.
• The Lodge of Success L5486 donated £250.
• Paul Raine donated £174.90.
• Zurich Community Trust sent a Match Giving donation of £500 in support of Jake Brown’s 90 Mile Walk.
• Cameron Parham sent £120 from wedding donations.
• Vygon UK Ltd donated £393 raised through their Charity day for World Heart Day.
• Jacqueline Crawford donated £100.
• Telford Junior Football League donated £500.
• Barlaston Cricket Club sent a donation of £1,850 from their Summer Fundraiser.
• Alan Greenberg donated £150.
• Ian Wynn chose CRY as his Charity of the Year, during his captaincy £830 was raised by The Drifter’s Golf Society.
• Elaine Park donated £160.
• Barry Bowman sent a donation of £3,781, representing the total amount raised during his year as President at Potters Bar Bowls Club.
• Ewell Castle School Charity Committee donated £100.40.
• The Compliance Register Ltd sent £150 at the request of Khepri, representing a prize from the Incognito Singer Contest at The Compliance Register Platinum Awards.
• The staff at Budget Waste Management sent a donation of £103 raised from their non-uniform Fridays’.
• Nicholas Hiney donated £327.
• The Rotary Club of Sunderland donated £200.
• Kathy Kielty donated £250.
• The Goyt Valley Striders running club donated £1,000.
• Abi Edwards sent a donation of £305 raised through a pub quiz night.
• Muna Nahab donated £100.
• The Wolverhampton Wheelers Cycling Club raised £280 from their charity bike ride.
• The Corn Mill Pub donated £275.
• The Restaurant Group plc donated £6,780.
• AFC Chellaston sent a donation of £855.55 raised through their annual CRY Cup event.
• Teresa Ward donated £500.
• Morgan and Megan Andrews completed the Yorkshire 3 Peaks Challenge in memory of Amelia raising £1475.
• Oliver, Marina, Alex, Angus, Gwyn and Joan took part in the Jaguar Land Rover Challenge 2023 raising £590.
• Anthony Tudball chose CRY as the charity to benefit in respect of sponsorship fro his ‘Goatee Growth’ raising £110.
• Caroline Thorpe completed the Great North Run 10k 2023 raising £867.51.
• Kit Lam completed the TCS London Marathon 2022 raising £2,723.
• St George’s Hill Golf Club donated £79,443.85, raised through Nick and Carina’s year as Captain’s at the club.
• Phoebe Brind chose CRY as the charity to benefit from the NCS ‘Be positive fun day and more!’ raising £301.08.
• Karen Nethersole completed the TCS London Marathon 2023 and raised £2,840.
• Anna Warchol completed the Chachani Challenge in memory of Peter and Gabriele and raised £2,095.74.
• Lisa McCullough donated £160.
• Elaine Armstrong donated £100.
• Peter Doherty sent £128 from a Golf Day fundraiser in memory of Aaron Lundy.
• Jonathan Muir sent a donation of £1,600.
• Donna Aldred sent a donation of £2,000.
• Donna Aldred completed a 24/7 static bike ride and other volunteers completed various events during the cricket season and raised £20,886.32.
Alan Cousins was a CRY supporter and Representative since the death of his son, Bruce Cousins in 2009. Alan and his wife, Jackie have raised incredible awareness of CRY’s work and funds for the screening programme in memory of Bruce, as well as representing the charity in South Yorkshire. We are thankful to Jackie Cousins for writing a tribute to Alan.
I remember the first time I heard of CRY - shortly after the sudden death of our son in 2009 I saw the advertisment in the mail. This was the first time I realised we weren’t alone in experiencing the devastating effect of such a death on a family.
I emailed CRY who responded immediately and we were invited to a bereavement support day where we met people who were trying to cope and understand the trauma of such a sudden unexpected loss. I will never forget the atmosphere in the room, how could we come to terms with what had happened to our young love one. CRY are keen to help with bereavement when they can, in fact, Alison prioritised it and called me on a number of occassions in the months after Bruce’s death. And so began our association with CRY, firstly supporting core funding, and then feeling able to ring-fence funds for our screening events in our local area.
We are proud to participate in sharing CRY’s aims and message “up north” and I am pleased to say our area is
now well represented.
Alan and I enjoyed the Volunteers Day held annually in Sutton, where we are able to put faces to names, especially Alison, Steve, and other members of the team we had spoken with.
I mentioned in Alan’s eulogy, as a family, indeed as a community, we are proud of our acheivements in trying to reduce the number of young deaths each week. After all the ‘friend of Bruce Cousins Memorial Fund’ is Bruce’s legacy.
Alan and I are proud of the way CRY weathered the storm of the pandemic - no easy task. Thank you to CRY for helping us and only being one small phone call away. Alan wore his wrist band to the end of his life - perhaps he saw it as a connection to his son.
I cannot end without mentioning our connection to Sheffield United Football Club where Bruce’s ashes are as close to his season ticket seat as we could get them. We recently helped the Community Manager with his own family tragedy, and I gave a talk about CRY for their foundation. Alan enjoyed his visits to Bramall Lane and I now am particularly pleased he was about to be part of it.
I will continue to raise funds until I am no longer able, and I look back with pride and affection for this charity and the work we have done.
Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/upcoming-cry-events-places/
All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).
June 23 2024
The Bridges Walk each year hopes to give supporters the opportunity to connect with others, and remember those who have died from Young Sudden Cardiac Death (YSCD). 2024 will mark the 18th annual CRY Heart of London Bridges Walk. We hope that you will be able to join us in Southwark Park.
Through summer 2024
Lake District Challenge, Cotswolds Way Challenge, Peak District Challenge, North Downs 50 Challenge, South West Coast 50 Challenge, South Coast Ultra and many more to choose from
August 24 2024
25 km looped route heads through Charlton, along the Thames Path around the Greenwich Peninsula – past the O2, Old Royal Naval College & the fabulous Cutty Sark. A route steeped in history with iconic sights, and capped with a BBQ & bar at the finish
September 8 2024
The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-class athletes
October 6 2024
This important date in the CRY calendar each year hopes to give supporters the opportunity to connect with others, remember those who have died from Young Sudden Cardiac Death (YSCD) and support those living with a heart condition. Walk to raise awareness, reflect and remember.
Royal Parks Half Marathon
October 13 2024
Runners pass through four of London’s royal parks- Hyde Park, The Green Park, St James’s Park and Kensington Gardens, as well as other iconic sights and landmarks in central London, all on closed roads..
Halloween Walk
October 26 2024
Why not treat yourself to a hair-raising hike around some of the City’s scary streets and historic haunts? Choose your distance, gather your bravest guys & ghouls to make up a team – or go it alone if you dare and meet up with other chilling challengers. With a fun & spooky atmosphere, great support and free food & drinks, it’s frightfully good!
November 2024
Support CRY during Raising Awareness Week by organising your own fundraising event, displaying/distributing posters and leaflets, or sharing our posts on social media or joining one of our challenge events.
Throughout 2024
Form your own #TeamCRY with friends and family and tackle a teamwork-inspired, mud-filled obstacle course. With 5K, 10K, or 15K options all over England and Scotland!
Throughout 2024
Spurred on by pumping music and cheering supporters, bounce your way along a 5K inflatable course while raising awareness and funds for CRY. Providing a fun-filled and accessible alternative to a typical run, the inflatable 5K hosts events all over Scotland and England.
Between September and December CRY featured in 112 print, national, online and magazine articles.
‘Man died from rare heart problem after being discharged from hospital’
The Telegraph
Ben Peters, 25, suffered fatal haemorrhage after being sent home from Manchester Royal Infirmary.
Published 21 October 2023
‘Silent killer ‘strikes down 12 healthy young people each week’ with sudden cardiac death’
Sunday Mirror
Medics realised Clarissa Nicholls had a heart condition two weeks after she collapsed and died on a hike in France - and experts say the condition is a regular silent killer
Published 13 November 2023
‘Family call for heart screening after death of son’
BBC
The parents of a man who died of an undiagnosed heart condition are raising money to provide more cardiac screening after losing their son Jono in 2022.
Published 30 November 2023
‘Henley rugby player urges others to learn CPR after girlfriend saved his life’
ITV News
A rugby player from Oxfordshire who says he’s lucky to be alive after suffering a cardiac arrest, is on a mission to get more young people learning CPR.
Published 22 December 2023
‘Scots dad’s touching tribute to son, 15, who collapsed and died from undiagnosed condition’
Daily Record (13 September 2023)
Christpher Cowe sadly passed away shortly before his 16th birthday in January 2021, leaving his parents, Ross and Shiva, devastated. The family, from Balerno near Edinburgh, are determined to raise awareness of their late son’s condition.
Read a https://www.dailyrecord.co.uk/news/scottish-news/scots-dads-touching-tribute-son-30924777
‘Tributes paid to teen who died after collapsing in Liverpool ONE’ Liverpool Echo (23 October 2023)
The 15-year-old died after collapsing in Liverpool ONE’s Browns restaurant on Saturday, October 22, 2022. Read at https://www.liverpoolecho.co.uk/news/liverpool-news/tributes-paid-teen-who-died-27963274
For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia
By fundraising for CRY you will be helping to:
• subsidise CRY’s national cardiac screening programme
• fund CRY’s bereavement support programme to provide counselling and support to affected families
• support research into young sudden cardiac death (YSCD)
• develop the myheart Network to support young people living with cardiac conditions
• provide all CRY literature and information free of charge
• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology
The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.
Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.
If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.
Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.
The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons
Current Patrons of CRY:
Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Michael Hoey
• John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob
Key
• Gary Longwell
MBE • Lee Mears
MBE
• Pixie Lott • Emily Maitlis
• Bill Neely
• Graeme McDowell
• Lawrence Okoye
• Phil Packer
There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.
For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate
All your help is greatly appreciated.
1. CRY Update magazine
Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.
2. CRY enewsletter
Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.
If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:
• Complete the online form; www.c-r-y.org.uk/subscribe
• Call the CRY office; 01737 363222
• Sir Steve Redgrave CBE • Vincent Regan
• Joe Root
• Roger Taylor MBE • Professor Gaetano Thiene • Gregor
• Andy Scott
Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble
• Email the CRY office; cry@c-r-y.org.uk
• David Walliams • Alison Waters
• Matt Wells
• Sir Clive Woodward OBE
When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).
Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD.
We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.
In 80% of cases of young sudden cardiac death there are no prior symptoms of a heart defect.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. CRY is grateful for
Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson
