Update Magazine 93

CRY Update 93 January - April 2024

Editor

Dr Steven Cox Chief Executive

Deputy Editors

Emma Hartnett Publications Manager

Oliver Sparrow Communications Assistant

As Deputy Editors of the CRY Update it is our responsibility to put together this newsletter, and our ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

We try to endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to contact CRY if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

If you would like to contact us about the magazine please do so via updatemag@c-r-y.org.uk or on 01737 363222. Thank you for your help.

Contributors

Alison Cox MBE Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Inside Update 93

Meet Our Representatives

News from the Chief Executive

CRY Online

CRY Screening Report

CRY Centre for Cardiac Pathology (CRY CCP) Report

CRY Support

Research News

Heart Month 2024

HMS Agincourt

Head Office: Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email update@c-r-y.org.uk

For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:

1. HMS Agincourt crew and Dr Steven Cox at the CRY head offices in Leatherhead. Page 24

2. CRY screening. team at a screening in memory of Harry Faulkner. Page 12

3. CRY supporter running the London Marathon. Page 28 4.

35

13

12.

at the London Landmarks Half Marathon. Page 26

13. CRY campaigner Hilary Nicolls speaking at ‘One Voice, Many Hearts’ Westminster. Page 25

4 Trigs Challenge in memory of Jonathan Hayman. Page 49

5. CRY supporters running the Barcelona Marathon. Page 35. 6. CRY supporter running the Wothing 10k in memory of Ben Coleman. Page

7. CRY supporter taking part in the 12 A Week Challenge in memory of Toby Hayward. Page 50 8. Channel 5 filming with the CRY team at the CCP. Page

9. CRY Representative Tom Ledgard. Page 3 10. Tractor Run in memory of Mia Jennings. Page 54. 11. Dr Harshill Dhutia. Page 16.

CRY supporter

Tom Ledgard Representative in Buckinghamshire

My brother Kris Ledgard died in October 2012 at home in Milton Keynes having gone to bed one evening, he never woke up. At the time he was a strength and conditioning coach with Leicester Riders, an elite level British basketball team. As a young, healthy and active person, his passing was a shock to our family and friends that has left a huge hole in our lives.

Kris was a talented individual; kind and considerate, with the ability to get along with everyone he met. He was prepared to have a go at anything and everything, always willing to help whatever, with time for everyone and he always had a smile on his face.

Kris had many pastimes and interests, but sport was top of that list as he loved to watch and attend any sport he could,

Meet Our Representative

from Formula One to speedway; and he would play anything, from snooker to board games. The summer of 2012 and the London Olympic Games saw Kris in his element, with so much sport to watch and the opportunity to go to see so many top sports stars live in action, he was inspired.

CRY has given me a focus since my brother died and allowed me to remember him by supporting others in his memory. With family and friends, we have raised funds to support screening efforts, holding several events in communities and locations where Kris was known to many.

As a CRY representative my aim is to support others with their fundraising and raising awareness activities, promoting key messages and encouraging more young adults to get their heart tested.

CRY’s Representatives help to raise awareness in communities around the UK by attending events in an official capacity on behalf of CRY.

We receive many different requests for a CRY Representative, but this could include, attending another supporter’s fundraising event for a cheque presentation or speaking about CRY’s work at a rotary club.

Whether it is giving talks, answering questions, or being a face of the charity - representatives support families and

members of their local communities after the death of a young person.

Our representatives will attend events to do some of the following activities:

▪Talks / speeches to clubs / schools / businesses ▪Cheque presentations ▪Host information stand ▪Run a stall

All CRY Representatives are listed on the CRY website alongside the stories of how they got involved with CRY, and their work as a representative. To read more please visit: www.c-r-y.org.uk/about-us/cry-representatives/

If you are interested in having a CRY Representative attend your event, please email cry@c-r-y.org.uk

All of CRY’s Representatives have been long-term volunteers for CRY. If you would be interested in volunteering for CRY, please visit www.c-r-y.org.uk/cry-volunteers

Kris Ledgard

News from the Chief Executive

Dr Steven Cox CRY Chief Executive

@Drstevenjcox

drstevenjcox

Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from January to April, as well as information about some of CRY’s events in this period.

January

ITV News filmed feature at the CRY National Screening Centre in Leatherhead

January 22

ITV News recorded a feature at a screening event in memory of Daniel Hughes at the CRY National Screening Centre in Leatherhead. The piece was about the prevalence of heart conditions in young people and the importance of screening.

The ITV crew filmed the process of a CRY screening, talking with a young gymnast, who was screened on the day, about his experience, and included an interview with CRY Doctor Dr Chris Miles.

ITV North interviews CRY

Supporter Gill Ayling

January 23

CRY campaigner and fundraiser, Gill Ayling was interviewed twice for ITV North’s nightly news programme ‘Calendar’, profiling her visit to Westminster. The visit took place on February 6, when Gill met with her local MP and Public Health Minister, Andrea Leadsom.

The first of the two broadcasts included an interview with myself and a young woman, Georgia Guy, who was about to undergo a procedure for a condition picked up at a screening funded in memory of Gill’s son, Nathan. The second broadcast took place a few weeks later as a follow up to Gill’s Westminster meeting.

Gill’s campaigning, alongside the ITV broadcasts is fantastic awareness raised of CRY’s screening programme.

Filming with CRY Patron

Simon Halliday

January 24

I attended a filming session with CRY Patron, Simon

News from the Chief Executive

Halliday, at Esher Rugby Club. The filming is part of a new campaign with adverts in the Financial Times to raise awareness of CRY and increase support for our mission to prevent young sudden cardiac deaths through screening and research.

The campaign is anchored by the personal story of CRY Patron Simon Halliday, in memory of Howard and Sebastian English. Simon’s story and his unwavering commitment to CRY, highlight the impact of our work and the importance of early detection and intervention.

Watch the video and find more information on the campagin here: www.c-r-y.org.uk/ft/

Global Cardiovascular Magnetic Resonance (CMR)

Conference

January 25-27

I was invited to speak at the Global Cardiovascular Magnetic Resonance (CMR) Conference in January. The two-day event saw speakers from around the world give talks and lectures.

As well as being able to talk about CRY’s aims and achievements, I was pleased to be given the opportunity to convey the importance of CMR (MRI) - both now and in the future - from the perspective of a patient advocacy organisation.

CMR has played a crucial role in many of CRY’s research studies and I highlighted a number of the key studies published in leading medical journals, and the role CMR played in those studies.

I also highlighted how collaborating with those who have a passion for CMR is essential; from identifying those at risk through to the risk stratification of patients and their ongoing monitoring.

CRY’s focus will always be on improving the lives of those most affected, and it was great to discuss how the support and collaboration from the CMR community can help an organisation like CRY to save young lives.

CRY Campaigner Hilary Nicholls pens tribute to her

daughter, Clarissa in the Telegraph

January 29

In January The Telegraph published an article written by CRY supporter Hilary Nicholls. Hilary spoke of her daughter Clarissa, and the campaigning work she is doing in Clarissa’s memory.

“That’s the most tragic thing about a young person dying from a cardiac arrest – it affects hundreds of people by association. The best thing we can do in her memory is bring about real change, and for us that means all young people aged 14-35 to have access to screening.”

Hilary has continued to raise vital awareness of CRY and the importance of screening with articles like this one, as well as interviews and campaigning in memory of Clarissa.

Read the full article: www.pressreader.com/uk/ features/20240129/281603835346962

February

Heart Month 2024

Throughout February

During Heart Month 2023, CRY launched ‘Why do I support CRY?’ - the

News from the Chief Executive

campaign aimed to personify and tell the stories behind CRY. We asked our supporters again in 2024 to send in their reasons for supporting CRY so we could share across our social media what CRY means to so many.

The campaign was met with hundreds of responses, many sharing deeply personal stories of the impact of young sudden cardiac death and our cardiac screening programme. The responses had such a positive impact on social media.

Read more on page 22.

HMS Agincourt Charity Partnership

with CRY

February 13

The Royal Navy’s HMS Agincourt has named CRY as a partner charity. In February, some of the crew travelled down to meet with myself and CRY staff at the CRY head office in Leatherhead.

During the visit, the team led by Senior Naval Officer Lt Cdr Andy Rodgers, was given a tour of the office, meeting staff from key departments including screening, fundraising, communications and bereavement support; which helped to provide a thorough insight into the vital work carried out by CRY as well as an opportunity to discuss and understand the scale and impact of young sudden cardiac death.

CRY was introduced to the team of HMS Agincourt through CRY Representative Dave Hughes. BBC Radio Cumbria interviewed Dave about his connection to the charity and the HMS Agincourt crew, in memory of his son Daniel, raising important awareness of the partnership.

Read more on page 24.

BBC Three Counties Radio interview

February 20

I was invited to speak with BBC Three Counties’ Andy Collins about the importance of screening young people.

This was following a new interview with former Luton FC Captain Tom Lockyer on Radio 5 Live, talking about his recollections of his cardiac arrest and his ‘new life’ with an ICD.

March

BBC Radio Lancashire and Cumbria features longstanding CRY Supporters to mark 10 years of screening

March 2

Long-standing CRY Supporters Paula and Barry Hesmondhalgh were part of in-depth coverage on BBC Lancashire and Cumbria to mark ten years of screening in memory of their son Matthew. The family have raised over £200,000 for CRY’s Screening and Research programmes, and have screened more than 2,000 young people in the Lancashire area.

I want to extend my sincere thanks to Paula and Barry for their commitment and years of fundraising on behalf of CRY, in memory of Matthew. We simply wouldn’t be able to provide our vital services and pioneering

Dr Steven Cox, Lt Cdr Andy Rodgers and some of the HMS Agincourt crew

News from the Chief Executive

screening programme without the support of people like the Hesmondhalgh family – which is underpinned by incredible support in their local community.

Read more on the CRY website here: www.c-r-y.org.uk/10-years-of-screening-at-garstang-10incredible-years/

ITV Border interviews CRY

Representatives Rodger and Lesley Hill

March 12

CRY Representatives Rodger and Lesley Hill cycled an astonishing 320 miles from Murrayfield Stadium, Edinburgh to Donnybrook Stadium, Dublin in memory of David Hill. The cycling team visited secondary schools across Dumfries and Galloway to raise awareness of Young Sudden Cardiac Death and CRY. ITV Border interviewed Rodger and Lesley on the evening news during their cycle, and several national press articles were also published.

This is a truly epic and inspirational challenge and as a charity, we’re hugely grateful for the efforts of the Cycle4David team, raising further awareness amongst both the public and parliamentarians. The incredible campaigning work being carried out in memory of David – notably the launch of the MSPSupport4CRY at Holyrood last October – led to 78 MSPs signing up to CRY’s pledge for the prevention of young sudden cardiac death.

‘The importance of early cardiac screening for

young people’

article on openaccessgovernment.org

March 25

In March I contributed to openaccessgovernment.org with an article explaining why the UK Government must re-think its approach to specialist cardiac screening to reduce mortality among young people with conditions that can cause sudden cardiac death.

Research shows that one in every 300 young people that CRY tests will be identified with a potentially lifethreatening condition. To put that into context, since CRY’s screening programme was first launched, more than 900 asymptomatic young people have been identified with potentially life-threatening conditions – going on to be treated with strategies ranging from lifestyle changes, corrective surgery, medications or ICDs.

CRY believes all young people should have the choice to have their heart screened.

Read the full article here: www.openaccessgovernment. org/the-importance-of-early-cardiac-screening-for-youngpeople/175285/

ITV News Central Report with CRY Supporters Penny and Paul Lane

March 26

CRY Supporters Penny and Paul Lane were interviewed as part of an ITV News Central Report in the lead-up to the first screening in memory of their son, Anthony. The screening was organised in part with the help of

News from the Chief Executive

Midlands Rotary Club and Mercedes, who Anthony worked for.

By speaking so publicly, the Lane family are helping to raise awareness amongst young people who may not be aware of the steps that can be taken to protect themselves. The impact national articles and television broadcasts is immense.

April

In conversation with Gabby Logan and CRY supporter Hilary Nicholls

April 3

Together with CRY supporter Hilary Nicholls, I joined Gabby Logan In a powerful conversation about the impact of young sudden cardiac death.

Hilary’s daughter Clarissa tragically died from a previously undiagnosed heart condition in 2023. Hilary is now actively championing CRY’s campaign for increased access to cardiac screening for all young people, aged 14-35. Clarissa was an accomplished athlete, so Hilary also spoke with Gabby about her wish for screening to be introduced across all grass roots sports.

Hilary and Gabby reflected on their own experience of suddenly losing a loved one. Gabby explained that more than 30 years after the sudden death of her younger brother Daniel, grief can still take a “side-swipe”.

The conversation ended in collective agreement that screening saves lives and the campaign must go on.

London Landmarks Half

Marathon

April 7

35 CRY runners took part in 2024, alongside the 18,500 runners taking to the streets of London, the buzzing atmosphere along the route really made the day special. The enthusiastic CRY cheering team spurred on our CRY London Landmarks team through a fantastic day.

Read the full write up on page 26.

‘One Voice, Many Hearts’ Round Table Discussion

April 23

On Tuesday 23 April, the “One Voice, Many Hearts” Round Table was held in Westminster. The event was driven by CRY supporter and bereaved mother, Hilary Nicholls, with Carolyn Harris MP chairing a panel of experts discussing ongoing policies around the prevention of young sudden cardiac death. The event was conceived and developed to reignite vital campaigning energy and re-energise a cross-party debate about the need for a new national strategy.

News from the Chief Executive

The event also brought together over 50 families and individuals who’d all been affected by the devastating impact of a young sudden cardiac death. All attendees were united in their commitment to preventing further tragedies through the provision of screening, awareness, the placement of AED (defibrillators) in the community and public places, and wider access to CPR training.

Held in a time of pre-election uncertainty, the One Voice, Many Hearts Round Table was a timely opportunity to consolidate ideas and potential action plans on how to engage with a new wave of MPs in the latter part of 2024. Many who attended have fed-back that they felt inspired, focused and ready to support fresh calls for a National Strategy for the Prevention of Young Sudden Cardiac Death.

Read more on page 25.

TCS London Marathon April 21

A huge thank you and congratulations from all at CRY to our amazing runners who took part in the 2024 TCS London Marathon!

On Sunday 21st April 2024 #TeamCRY got to complete the iconic 26.2 miles through London. We were delighted to have 118 runners take part on behalf of CRY, raising both vital funds and awareness.

Read the full write up on page 28.

Communicating the impact of CRY’s Research

CRY’s research continues to transform the way we understand the causes and prevention of young sudden cardiac death. Whilst often research takes many years before it sarts to impact medical practice, CRY’s research has always focused on the present, improving the way we screen young people, improving our understanding of the causes of young sudden cardiac death (YSCD), helping young people have the best quality of life while living with these conditions.

In this Update we have included a recent interview with past Research Fellow Dr Harshil Dhutia about some of the most recent work he has published.

Dr Harshil Dhutia was appointed as a CRY-funded Research Fellow from 2013-2016 and now, as a consultant cardiologist, has gone on to head up a new Inherited Cardiac Conditions (ICC) Centre at the University Hospitals Leicester, taking the specialist training and expertise he acquired whilst working with Professor Sanjay Sharma in London onto this important and leading cardiac unit in the Midlands (underpinning the regional ethos of CRY’s Research Fellow programme).

As well as championing the campaign (and acknowledging current challenges) for wider access to screenings for both athletes and the general population, in this article he also raises some concerns about the lack of formal training for cardiology trainees in the identification and management of arrhythmias in young people, thanking CRY for the way it helps to fill this gap through its research fellowship programme.

Read our full interview with Dr Dhutia on page 16.

Professor Michael Papadakis, CRY Director of Screening Azra LoncarevicSrmic, Professor Sanjay Sharma, Dr Steven Cox, Professor David Oxborough and Dr Harshil Dhutia.

Dr Steven Cox speaking at the One Voice, Many Hearts event

CRY Online

Social media

Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

During this four month period CRY’s Facebook page had over 600,000 impressions, with over 68,000 on X and 105,000 on Instragram.

Over on X it was great to see posts annoucing screening numbers in February and April were well engaged with. Sharing posts like this are a great way to raise awareness of CRY’s screening programme and aim to allow every young person the choice to have their hearts screened.

Since contacting CRY in 2019

Robert Rowan’s family and friends have been raising money to bring CRY’s heart screening programme to the Brentford area in his memory. 1,000 young people in Brentford and Scotland have now been tested in Rob’s memory, with more planned thanks to the Heart of West London Partnership. This post featuring clips from a longer video created by Brentford FC

got nearly 5,000 views on X.

Our interview with CRY Research Fellow Dr Joyee Basu was viewed nearly 6,000 times on X raising fantastic awareness of CRY’s Research programme and the work that our Research Fellows take part in.

CRY Supporter Hilary Nicholls, CRY CEO Dr Steven Cox, Jo Hudson from Trinity PR sat down for a conversation with Gabby Logan in March. Hilary and Gabby reflected on their own experience of suddenly losing a loved one. Gabby explained that more than 30 years after the sudden death of her younger brother Daniel, grief can still take a “side-swipe”. The video was viewed over 5,000 time on X.

Proving popular amoung our followers and supporters every year, our posts around the London Marathon raised fantastic awareness in April across our social media platforms. Engagement and story posts on Instagram being amoung the most viewed in April with over 2,000 engagements, and over on Facebook reaching over 3,000.

During Heart Month, as well as inspiring support for the ‘Why Do I Support CRY?’ campaign, supporters also shared and interacted with our keys stats and messaging

sharing in stories, commenting and raising important awareness of CRY’s vital work.

Ellen Clabburn sent in a video response to the ‘Why Do I Support CRY’ campaign in memory of her brother, Tom. “That’s why I support CRY, in the hopes of helping others in memory of my brilliant brother and lovely mum”.

When we shared it on the CRY Instagram account it was viewed over 700 times, raising important awareness of the campaign.

Throughout the month posts showing our key statistics and important information about screening were popular across social media, but specifically on Facebook, with engagement up 45% from the same period last year.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screening and photos from fellow supporters.

Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

No matter what is shared by our supporters during Heart Month, its always fantastic to see support and engagement in this way.

CRY Screening Report

Between January and April 2024, CRY screened 9,492 people

5278 young people were screened at family screening events in memory of; Aaron Dixon, Duncan Phillips, Callum Staple-Hughes, Ashley Greenwood, Dean Mason, Matthew Dewhirst, Daniel Hughes, Owen Morris, Jordan Burndred, Harry Dubois, Carli Lansley, Harry Faulkner, Charlotte Adams, Alden Price, Robert Rowan, Adam Lewis, Miriam Lee, Martyn Luckett, Nathan Butler, Ben Hammond, Jamie Loncaster, Andrew Key, Dylan Howells, Stuart Cutler, Michael Land, Ben Forsyth and Ryan Tilley.

3326 young people were screened at school screening events at; Allestree Woodland School, Nottingham High School, Chailey School, Shiplake College, Canford College, University of Gloucester, Aylesbury Grammar School, Pembrokeshire College, Beths Grammar School, Hongwood Sherborne School, Garstang Academy, Rye College, Malvern College, Sir Henry Floyd Grammar School, Queen Elizabeth Grammar School, Prince William School, Surbiton High School, Tonbridge School, Lostock Hall Academy, Ashlyns

School, Eton College, Cheadle Hulme School and Hope Valley College.

43 atheletes were screened at sports screening events with Trailfinders Sports Club, Caldy RFC, London City Lionesses, British Rowing Under 19’s and Pontefract Rugby Club.

325 young people were sceened at screening events held at the CRY Head Office in Leatherhead.

520 young people were screened thanks to the Northern Ireland Memorial Fund.

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram will often be taken on the same day. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma and Professor Michael Papadakis.

Screening at South Hunsley School in memory of Jamie Loncaster

Screening at Ashlyns School in memory of Harry Faulkner

Screening at Bideford College in memory of Martyn Luckett

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Emelia Zullo, Laboratory Technician

Khari Edwards, Laboratory Technician

2024 began as another busy year at the CRY Cardiovascular Pathology Laboratory. We have had a high number of whole heart referrals in the first quarter of the year (204), and the number of spleens referred has substantially increased, with 165 referred already.

243 heart cases were referred to our unit during this quarter, coming from various regions throughout the UK, Europe and beyond (see map). Both Professor Sheppard and Dr Joe Westaby reported on these cases and the cause of death (COD) was determined, with Sudden Adult Death Syndrome (SADS) and Cardiomyopathy making up the majority.

Departmental News

• Professor Sheppard continued to work on and publish many research projects, with three papers published so far in 2024. These papers focus on aspects of sport, gender, age, ethnicity and pathological diagnosis of sudden cardiac death in the young, and are a direct result of our CRY-funded database.

▪ At the beginning of the new year, we had a medical student visiting from Bahrain. Fajer studied with us from the end of December to the end of January.

▪ In late January our staff members also had the chance to attend the Image Resource Facility Symposium held in the university on the 24th January.

▪ At the start of February, we had forensic pathologist Dr. Samadhi Dandeniya join us for 6 months. She was trained by Dr. Westaby and Prof. Sheppard in cardiac dissection. Later in the month, our technicians attended the Human Tissue Authority (HTA) training course, which clarified the importance of HTA regulations in labs handling human tissue samples.

▪ In April, we had a busy lab with many visitors. Another group of Danish forensic pathologists came to train with us. Dr. Pernille Heimdal Holm trained with us for 3 weeks, and Dr. Kristine Jacobsen trained

with us for 2 weeks; and one of our CRY fellows, Dr Daniel Abioye, visited the lab.

▪ Channel 5 came to the lab to film a segment for another episode of the ‘Cause of Death’ programme which the unit had been featured on previously.

▪ Towards the end of April, registration opened for our Adult Cardiovascular Pathology Course 2024. The event is always well attended by Pathologists, coroner’s officers, ICC nurses and medical trainees.

Professor Mary Sheppard & Pernille Heimdal Holm

The team with CRY research fellow, Dr Daniel Abioye

Filming with Channel 5 in the CCP lab

CRY Support

Alison Cox MBE founded the charity Cardiac Risk in the Young (CRY) in 1995. As an experienced counsellor, Alison developed a national bereavement support programme for families who have been affected by a young sudden cardiac death. Alison’s columns have been written based on her personal experience of talking to thousands of bereaved family members since she founded CRY.

CRY have created a web archive of Alison’s Update columns. We will be continually adding to this collection with historical columns in the hope that they might help now or in the future.

“I founded CRY in 1995 to help support families after a young sudden cardiac death and to try to save young lives through greater awareness, screening and research. Over the next 25 years I talked on the phone with more than 2,000 bereaved mothers, fathers, partners, siblings, grandparents as well as friends and relatives of so many young people who died so suddenly, so tragically, without any warning.

During this period of supporting families, I have written many articles on different aspects of grief, sharing my

‘Christmas following a young sudden cardiac death’ is a booklet to guide parents, partners and siblings through the agony of Christmas following the sudden loss of a young person.

The bereavement support team at CRY developed this latest booklet in the charity’s ‘grief series’, knowing that bereaved families often find most solace, support and guidance from others who have been through a similar experience.

experience with the hope it will in some way help you. This page includes many of the articles I have written as well as links to other support resources which we hope will help you now or at some time in the future.”

Read more at www.c-r-y.org.uk/alisons-columns

Alison Cox says; “Preparing for…Christmas is a prospect that haunts every family having to cope with the tragedy of a sudden cardiac death of a fit and healthy young person. Finding ways to confront and deal with this massive public event requires enormous courage. Finding the motivation to survive it is a huge challenge for most of our bereaved families. Whether father, mother, sibling, partner or loving friend, it produces a maelstrom of emotions that can dominate the last quarter of every year – and for the rest of their lives.”

The booklet features 14 short chapters (written as a series of quotes) from men and women talking through their personal experience of facing the “festive season”

If you would like to order or download your copy of the booklet please visit:

www.c-r-y.org.uk/christmas-following-a-young-suddencardiac-death/

CRY Support

CRY Heart of Durham Walk

Alongside our individual bereavement support, CRY offers group support for family and friends following a young sudden cardiac death.

Our annual walks in London and Durham give families the opportunity to come together to remember young people who have died suddenly; both events are incredibly important dates in our calendars each year.

The CRY Heart of Durham Walk has become an important autumn event in the city, with over a hundred friends and family affected by the sudden cardiac death of a young person taking part every year.

In the autumn of 2007, The Durham Riverside Walk (as it was originally known) was pioneered by bereaved dad and loyal supporter, Jeff Morland – whose son, Levon, had died in 2002, aged just 22. Jeff was encouraged and assisted by his good friend, Steve Percival, who fast became a key organiser of the event, not only attending on the day and helping to recruit and rally volunteers but also writing and recording a CD that would be sold to help raise further funds. He is still an integral part of the team, to this day.

The Durham Walk soon became a regular date in the CRY events calendar, with members of the fundraising and bereavement support teams coming up to this beautiful city every year to meet and mingle with the families affiliated with the event.

For 2024 we are heading up to Durham on Sunday 6th October. This important date in the CRY calendar each year hopes to give supporters the opportunity to connect with others, remember those who have died from Young Sudden Cardiac Death (YSCD) and support those living with a heart condition. Walk to raise awareness, reflect and remember.

Join us on Sunday 6th October by registering on the CRY website: www.c-r-y.org.uk/heart-of-durham-walk

Facebook Support Groups

So many people who contact CRY want to talk to others who have experienced a similar loss. CRY has Facebook groups where people (aged 18 and over) can connect and share experiences with other people who have been affected by a young sudden cardiac death.

We have groups which are specifically for bereaved mums, bereaved dads, bereaved siblings and bereaved partners, and we also have a ‘Family and Friends’ group which can be joined by anyone who has lost a young person to a sudden cardiac death.

The groups are private communities for people who are in touch with CRY to connect, share their feelings and experiences with others who have experienced the loss of a young person, and be part a network of support for one another. A place where we hope you will feel safe in the knowledge that you are not alone in how you feel.

The groups are private and can only be joined by invitation from CRY. The discussions within the group can only be seen by members, whilst CRY has access to the group as a group administrator, the group is not actively moderated by CRY.

If you would like to join a CRY Facebook Group, please complete this form to request to join your chosen group/s: www.c-r-y.org.uk/facebook-bereavement-support/

If you would like to speak about bereavement support or would like advice about expert pathology or cardiology, please contact CRY’s support team on 01737 363222 or email cry@c-r-y.org.uk.

Research News

Whenever a donation is made to CRY’s core funding, approximately 25p in every pound will go towards CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death.

In 2024, between January and April we have received further contributions from the following memorial funds:

• Natalie Stewart

• Fraser Vaughan

• Suanu Saro-Wiwa

• William Lane

• Julian Wort

• Chris Haw

• Alan Lumley

• Bruce Cousins

For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.

How research can lead to review and potential reform for UK screening

policy

CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the findings they present at UK and international conferences.

And, with the prospect of further reviews by the National Screening Committee (NSC) on the horizon – coupled with a renewed energy behind CRY’s campaigning and public affairs activity across all the Home Nations – the importance of sharing and profiling research into the accuracy, outcomes and cost-efficiencies of CRY’s cardiac screening programme has never been more important and topical.

It therefore feels very timely this month to be shining a light on the research highlights of Dr Harshil Dhutia, whose work has been submitted as important evidence to decision-making panels in the past – and is likely to be considered as part of an updated round of reviews.

As well as championing

the campaign (and acknowledging current challenges) for wider access to screenings (for both athletes and the general population), in this article he also raises some concerns about the lack of formal training for cardiology trainees in the identification and management of arrhythmias in young people, thanking CRY for the way it helps to fill this gap through its research fellowship programme.

Dr Dhutia was appointed as a CRY-funded Research Fellow from 2013-2016 and now, as a Consultant Cardiologist, has gone on to head up a new Inherited Cardiac Conditions (ICC) Centre at the University Hospitals Leicester, taking the specialist training and expertise he acquired whilst working with Professor Sanjay Sharma in London onto this important and leading cardiac unit in the Midlands (underpinning the regional ethos of CRY’s Research Fellow programme).

So, here, we chat to Dr Dhutia to find out more about his pivotal projects and the potential impact and practical application of these findings on the ongoing development and refinement of CRY’s cardiac screening programme.

Finally, Dr Dhutia (who also explains his ongoing involvement with complex cases under discussion in the Multi-Disciplinary Team at St George’s Hospital, London) shares with us some of the lessons he learnt from being part of CRY’s pioneering cardiac screening programme

Dr Harshil Dhutia

and how he’s using his experience to support a local Leicestershire charity which is also committed to the prevention of young sudden cardiac death (YSCD).

Firstly Dr Dhutia, this feels like a very timely opportunity to look back and review the research highlights which were a direct result of your 3-year Fellowship with Cardiac Risk in the Young (CRY)

Can we start by talking through the focus and objectives of a specific piece of published research which you led on during your time as a Research Fellow [Diagnostic yield and financial implications of a nationwide electrocardiographic screening programme to detect cardiac disease in the young] and explain why you chose to focus on ‘general population screening’?

“So, basically, most of the research – and indeed the practice of pre-participation screening – at the time had focussed exclusively on competitive sport, particularly in those participating at the highest echelons. However, it is recognised that the conditions that cause YSCD are often genetic, and therefore do not have a unique predilection for competitive sport.

“As such, there was a clear ethical issue developing around access and equitable care with regards to screening.

“There was also limited information on the role of screening with electrocardiography (ECG) in identifying cardiac diseases associated with sudden cardiac death (SCD) in a non-select group of adolescents and young adults in the general population. But of course, CRY had a well-established nationwide screening programme outside competitive sport, so were able to use this valuable and unique data to:

a. Establish the prevalence of conditions associated with YSCD detected through a nationwide cardiac screening programme.

b. Consider the most effective method to identify individuals with conditions associated with YSCD (essentially compare ECG screening vs. the current standard of care including symptoms and a family history driven investigation).

c. Investigate the impact of a diagnosis (made through screening) on condition management and the treatments delivered.

d. Report the cost implications of a nationwide cardiovascular screening programme – which until this time had never been investigated previously.

So, what were the main findings of this research and how do you think your conclusions might positively impact CRY’s pioneering screening programme?

Research News

“This was the first study to report the results of an electrocardiogram (ECG) based cardiovascular screening programme in the young general population at a nationwide level and provided compelling evidence about the efficacy and cost-efficiencies of proactive cardiac testing which should be used to inform health policy to help safeguard young lives.”

The key findings included:

•The prevalence of cardiovascular disease associated with young sudden cardiac death in the general population is 0.3%.

•The cost of electrocardiogram-based cardiovascular screening in 2018 was €97 (£86) per person screened, €17 834 (£15,752) per cardiovascular disease detected and €29 588 (£26,184) per cardiovascular disease associated with sudden cardiac death detected.

•81% of individuals identified with cardiovascular disease associated with SCD were asymptomatic with a normal family history and were identified solely on the basis of an abnormal ECG.

Inclusion of an electrocardiogram (ECG) to the current, standard practice of symptom and family history driven evaluation increases the diagnostic yield for serious cardiac disease by five-fold and is associated with a 36% reduction in cost per disease detected.

•Most young individuals identified with serious cardiac disease (including those who are asymptomatic and have no worrying family history) received disease modifying therapy within 2 years of having been diagnosed through screening.

This impact and follow up had never been studied and evaluated before which, in my opinion, works as a potential rebuttal to screening critics who in the past have suggested that the true impact (both physically and psychologically) of screening and identifying young people is not known or published – which is simply not true.

And, how would you like to see the knowledge gained from this research rolled out?

“Although the NHS / National Service Framework (NSF) Chapter 8 in the UK acknowledges the importance of identifying all young individuals at risk of SCD, cardiovascular evaluation is reserved for the minority with symptoms or a family history of cardiovascular disease or even the sudden cardiac death of a relative. Our findings in this large general population study of young individuals demonstrated that such a health-care policy is counter-intuitive for disease detection and is actually more expensive.

“So, if the identification of all young individuals at risk of

Research News

SCD is an important public health concern (as would be expected by development of an NSF), then routine inclusion of the ECG in evaluations appears to be the most effective way to identify associated conditions.

Furthermore, early detection results in implementation of prognostic medical intervention in the majority of cases i.e. the opportunity to treat people prior to developing symptoms or suffering a cardiac arrest.

“That said (and particularly right now with the financial pressures faced by the NHS) the cost implications of screening at nationwide level would need to be considered and may be prohibitive in its current state, considering the huge number of young people who are eligible for screening.

“But this does not mean we shouldn’t be looking at alternative ways to try to mitigate some of these costs. For example;

•centralising screening in regional hubs to help reduce expenditure;

•ensuring all those who are carrying out screening are highly trained in the interpretation of ECGs;

•developing a more streamlined and structured follow up programme post-screening

•and, as technology moves apace, using Artificial Intelligence (AI) to accurately and rapidly read ECGs, would significantly cut costs and increase capacity.

“There hasn’t been a mass ECG study into AI capability as yet, but I do believe – that in time and with refinement to sort out the current flaws – this is the future to being able to potentially roll out population wide cardiac screening. It could be a real game changer.”

Importantly, in your opinion, how could this research potentially influence the next screening review due to be carried out by the National Screening Committee?

“I’m very proud that my research formed part of the evidence submitted to the last National Screening Committee review in 2019, where we concluded that the ECG is a valid and reliable screening test that significantly improves the detection rate of hidden heart conditions in young people, in the general population.

“So, I’m really hopeful that my most recent studies will help to further inform the next round of reviews by the NSC. We do need to see more published research on the rate of so-called false negatives – but again, I’m confident that we will see this data (based on analysis of intelligence from the ONS) published soon.

“In my opinion, this could really help to influence key decision makers, coupled with our important findings of

how we treat, follow-up and positively monitor those identified with a condition through screening.

“And, again in my opinion, I don’t believe the 2019 NSC panel took into consideration the vital role of proactive screening in identifying more than one person with a condition.

“By this I mean, if you diagnose an asymptomatic young person with a potentially inherited condition, there’s a high chance (up to 50%) of other relatives (parents, young siblings or cousins) also being at risk of SCD from the same condition. There’s no doubt that this is a hugely significant (and not to be ignored) benefit of a national screening programme for apparently healthy young people.”

Another of your previous studies [Inter-Rater Reliability and Downstream Financial Implications of Electrocardiography Screening in Young Athletes] talked about the importance of physicians being appropriately trained in the interpretation of ECGs, which is something CRY is currently campaigning about and plans to bring to the attention of the NSC / DHSC.

Are you able to summarise the key findings from that piece of research?

“It’s well established that the addition of the ECG (particularly in athletes) to a health questionnaire and physical examination within the screening protocol improves sensitivity to detect serious cardiac disease. That has consistently been shown in many studies.

“However, a concern around the ECG as a screening tool relates to the potential for variation in interpretation especially in less experienced hands. So, in this study we looked at the interpretation ‘skills’ and ensuing results when doctors were asked to comment anonymously on ECG tracings of a cohort of athletes, and interestingly we found that:

•there is only moderate inter-observer reliability for ECG interpretation even among cardiologists with experience in the cardiovascular evaluation of young athletes.

•however, modification of ECG interpretation criteria (including the model developed through CRY-funded research) improves reliability especially among non-sports cardiologists.

•the decision to propose secondary investigations after ECG interpretation varies among sports and non-sports cardiologists respectively, with significant downstream financial implications.

•the take-home message from the findings of this study highlights that formal training and development of standardised diagnostic pathways are essential to support cardiologists involved in cardiac screening of

young athletes (such as the highly acclaimed Sports Cardiology MSc course now being run at St George’s, University of London,)).

“In conclusion, this was the largest study of its type to investigate variation in ECG interpretations in young athletes and as such, it certainly flagged up areas where the screening process could improve and, importantly, what needs to improve for this to become standard of care. More than 6 years on from the initial publication of the research, I believe these findings have been widely accepted, although clearly there’s still a need for more formal training in order to achieve standardised diagnostic pathways.”

Following your research fellowship with CRY, you returned to a clinical role – but how important it is for you to stay involved with research projects, presenting at major research conferences:

“The focus of my current role is predominantly clinical, education and management based, and I’m really committed to developing and growing our service – but it’s vital I stay up to date with latest, contemporary research and best practice to ensure I can always offer and advise on the best care for my patients.

“However, looking back at the skills and disciplines I acquired whilst spending three years in a research environment, I believe there are four, clear areas where I continue to apply everything I learnt to my current clinical position (and of course, attendance at CRY’s annual ‘International Research Conference’ is always a key date in my diary!):

Clinical:

“Under the guidance of Professor Sharma, I had opportunity to be trained in an Inherited Cardiac Conditions clinic and engage in regular local and regional multidisciplinary team (MDT) meetings. These experiences have allowed me to develop competencies as a consultant in managing complex cardiomyopathies, channelopathies and the appraisal of family members following sudden cardiac death as well as caring for athletes with cardiovascular disease. I have also taken on board a best practice model from the CRY Centre of Sports Cardiology and ICC as I helped to establish a de-novo regional service in East Midlands for patients with ICC and their families (more of that later!)

“Education and training/research in genetics as a Research Fellow has also permitted me to facilitate mainstreaming of genetic testing within the ICC clinic in Leicester.”

Management/Leadership:

“Leading multicentre studies as a CRY Research Fellow

Research News

(often with managing large datasets) has helped me to develop the management and leadership skills needed to lead the ICC services (such as networking, building partnerships, MDTs, managing staff)”.

Academic:

•I continue to deliver inclusive teaching at national and regional level on ICC/sports cardiology related topics (this includes my role as visiting lecturer in Sports Cardiology MSc courses)

•Royal College of Physicians (RCP) tutor to inspire junior doctors to achieve their competencies and goals.

•Local ICC/sports cardiology teaching for SpRs (specialist registrars / junior doctors)

•Consolidate on the networks made through time at CRY to collaborate in multicentre research.

Personal:

•Public and Patient engagement – through my time with CRY, I recognised the importance of this skills in service development which also equipped me to take on my role as the Medical Lead for local charity, the Joe Humphries Memorial Trust

•Media training – developing the tools / techniques required to speak effectively to the media, communicating important messages about awareness and research.

•Writing and presentation skills gained through my research work have significantly improved my confidence in delivering talks and seminars at conferences or in a teaching environment, contributing to the development of new guidelines etc.

•First hand supervision skills from true ‘leaders in the field’ improved my own skillset to become a mentor for others as a clinical and education supervisor in my own practice.

We understand you’ve set-up a one stop shop for inherited cardiac conditions (ICC) – congratulations, that’s a huge achievement! What does this vital service deliver to patients and their families?

“So, yes, I was appointed as the Consultant for the ICC centre in 2020 and for the past couple of years, I’ve been the clinical lead for the service.

CRY Research Fellows past and present with Professor Sanjay Sharma and Professor Mary Sheppard at the 2017 CRY Parliamentary Reception

Research News

“It’s important to mention here that this type of service was simply not available in Leicestershire and the East Midlands (even at a major tertiary cardiac centre, serving a large population) before my appointment. And now that we’ve successfully demonstrated that it can be done, it would be great to see this model rolled out to other parts of the UK.

Professor Michael Papadakis, CRY Director of Screening Azra LoncarevicSrmic, Professor Sanjay Sharma, Dr Steven Cox, Professor David Oxborough and Dr Harshil Dhutia.

“In all honesty, I do think that the training I received through my research fellowship with CRY has been transformative for my NHS Trust and the entire region, our local patients and families. We’re continuing to expand, and the feedback has been so encouraging. So, I really pledge to pass my skill set learnt through my CRY Research Fellowship down to further generations of trainee cardiologists.”

Recent highlights include:

•Over the past 6 months, we’ve been able to offer a ‘one stop shop clinic’ for patients/family members with ICC (very similar to the ICC service at St George’s) providing access to multi-disciplinary care and specialist nursing, as well as genetic counselling and expert physiology, all within one visit.

•We’ve developed formal transition of care pathway from paediatrics to adult cardiology.

•Facilitating genetic testing within my clinic – for patients right across the Midlands (including young people who might have been referred to us having been identified by CRY screening)

•Our unit is now AICC registered (Association of Inherited Cardiac Conditions).

•Actively involved with the development of best practice by working collaboratively with other centres, organisations and nationwide pilot studies.

•Public and Patient support, endorsement and funding. Direct pathway referral from GP.

•And, our future aim is to one day be in a position to

provide formal ICC training/fellowships.

So, looking back…why did you first decide to apply for a CRY Research Fellowship?

“I always had a real interest in sport, as a recreational sportsman (although not a vey good one!) – as well as in the arrhythmia management of young patients. But unfortunately, there just isn’t the formal training in these conditions in most Medical Deaneries so I felt the CRY fellowship would provide me with the ideal scientific acumen in the field of YSCD prevention and which one day would make me a better physician and clinician.

“Overall, the skills I acquired in research, writing and presenting gave me a lifelong training in this vital field of cardiology. I was also very aware of the impact and importance of the research carried out by CRY Fellows who came before me (some of whom became my mentors during my own fellowship) – this was real guidelinechanging stuff! It was a very tough interview process, and I was so thrilled when I was offered a prestigious post in 2013.

“Looking back, what has become clear – which is underlined from feedback from current trainees I now work with – there is a significant gap in knowledge and teaching around inherited heart conditions and YSCD (although this can vary geographically).

“So again, I recognise how fortunate I am to have had the opportunity to train with CRY and to become an expert in this field – in my own right – a skill set which I’ve been able to bring back to the Midlands (for families, patients, nurses, athletes, trainee cardiologists and sports scientists). One day, I’d love to have Research Fellow working with me here in Leicestershire – a real legacy of CRY’s Research Fellowship programme.

“In essence, CRY’s Research Fellowship provides an excellent platform to perform research that can change clinical practice and make a significant impact on the prevention of YSCD.

“I’ve a real sense of achievement having worked as both a lead author and a key research collaborator on several papers published in journals such as the Journal of the American College of Cardiology Journal (JACC), Circulation, British Journal of Sports Medicine (BJSM) as well as presenting the results of CRY-funded research at prestigious international conferences including the American Heart Association (AHA) and European Society of Cardiology (ESC).

“I was particularly proud of my paper that was published in JACC in the summer of 2016 and showed unequivocally that a modified and refined ECG cardiac screening

protocol could reduce the cost of testing young athletes by more than 20% and perhaps even more significantly reduce the incidence of false positives [Cost Implications of Using Different ECG Criteria for Screening Young Athletes in the UK]. Again, an example of CRYfunded research being a real game changer in the effective roll out of cardiac screening (in this case, bringing real benefit and cost efficiencies to clubs, sporting bodies and associations and importantly, young athletes).

“I was still a Registrar when I began work on setting up the ICC service in 2018 as there was just no provision in the East Midlands – something I’ve continued to build on since becoming a Consultant Cardiologist. It’s been such a positive and exciting journey – something I never could have imagined but I just feel so fortunate to be where we are now and moving forward.

Finally, what did you learn from CRY’s screening programme – and CRY’s families?

“So, on a more personal level, my time out on the road with CRY’s screening team really did highlight to me the significant and tragic impact that a young sudden death has on a community. I also realised the regional differences in awareness of these conditions as well as access to specialist services across the UK. But on a positive note, I really did appreciate the impact of the work that CRY was doing and funding, in terms of education, family support and delivering screening and of course, the incredible myheart group.

“And, having seen the difference that CRY was making, I felt encouraged to become involved with a local Leicestershire charity committed to the prevention of YSCD, the Joe Humphries Memorial Trust so I could give back and share my experience and learnings from my time with CRY.

“I also enjoyed the camaraderie and social side of working with the entire CRY screening team – so many fantastic memories were made alongside a first-hand experience of seeing grass roots prevention strategies. I recognise now that so many hospital-based and hospital-trained doctors just don’t have this opportunity.

“As a CRY Screening Doctor, you hear such terribly sad stories of tragic – yet often preventable – deaths and this was obviously a difficult part of the job. However, it was also inspiring when you saw how bereaved families were turning these tragedies into opportunities to prevent other deaths in young people, bringing family members and wider communities together in the process. It was touching and humbling and I will always hold so much respect for CRY’s families.

“The research that I was involved with – and the impact this had on the future development of refining of CRY’s screening programme – was hugely important to both me and the wider scientific community.

“However, with this opportunity to reflect on the unique legacy of a CRY Research Fellowship, I really do now believe that my three years of additional training and learning played a huge role in me becoming a leading Consultant in this specialist area of cardiology, taking on high profile patient and public engagement roles and ultimately setting up a regional centre for Inherited Cardiac Conditions, serving thousands of patients and their families across the Midlands.

“So yes, in conclusion my CRY Research Fellowship – from published papers, professional development to the people I met – was a truly wonderful experience.”

CRY Research Fellows

What do CRY Research Fellows do?

Within their role at cardiac screening events they:

▪ Carry out consultations with every person CRY tests

▪ Manage all abnormal screening results

Within their role at CRY hospitals they work with Professor Sharma at the CRY Inherited Cardiovascular Conditions clinics St George’s Hospital, London and at Lewisham University Hospital. At these fast track clinics families can be seen within a few weeks of referral after the sudden death of a young family member.

Within their role as an academic they:

▪Publish sbstracts and posters of CRY’s research

▪Publish articles in peer-review journals

▪Present their research at international conferences

For more about the work of CRY Research Fellows, please visit: www.c-r-y.org.uk/research/research-fellows/

Watch the video below to see Dr Sabiha Gati explain what

Heart Month

During Heart Month we encourage our supporters to help raise awareness and vital funds for CRY

“CRY runs an amazing screening programme for the young. Our granddaughter has a heart condition we didn’t know about that was diagnosed at one of their screening sessions. She’s now being treated at Alder Hey. CRY do an amazing job and I was Happy to help with a small fundraiser last year” - Janet Flowers

As part of Heart Month in Febuary 2023 CRY launched ‘Why Do I Support CRY?’. The campaign aimed to personify and tell the stories beind CRY. With the great success of the campaign, and the incredible awareness raised across social media, we re-launched the campaign for Heart Month in 2024.

We asked supporters to send in their reasons for supporting CRY and we were met with hundreds of resopnses, many sharing deeply personal stories of the impact of young sudden cardiac death and the CRY screening programme.

Thank you to everyone who sent in their responses; sharing your stories had such a positive impact on social media.

Featured are a selection of of the powerful responses received during Heart Month. If you would like to read all of them, please visit: www.c-r-y.org.uk/whydoisupportcry

“My beautiful son, Ben Coleman, passed away in September 2021 of sudden cardiac arrest. Since then, we have had wonderful support through the CRY mums Facebook group, useful brochures, telephone support and heart screenings for myself, my ex-husband, and my younger son through St. George’s Hospital.

Heart Month

“We’ve done the Heart of London Bridges Walk two years running, which allows his friends and mine to come together to remember, honour Ben, and help raise money for this charity. Helping raise money brings comfort that we can help other young people and their families with raising awarness of screenings, support, and research for the future” - Nicky Trangmar

“I support CRY because they offered me advice and a community through myheart when i was diagnosed with Wolff Parkinson White Syndrome” - Zenia Duell

“My beautiful and intelligent 18 year old older sister, Aashi, passed away in May 2013 from sudden cardiac death. The charity, CRY, made me more aware about sudden cardiac deaths in young people. At the time of her death, I was comforted by the resources provided by the charity and also to know that there is funding going towards screening to help prevent this happening to others.

“We hold annual bake sales for CRY - which are organised with the abundant love we have for her and the support we have for each other. I am grateful to the charity for allowing us to bring together the community in a truly special way for her, and for a great cause” - Shruti Sinha

take becoming critically unwell for it to have been diagnosed.

“I support CRY because at 18 years old, I could have become one of the 12. I had an undiagnosed heart condition, Wolff-Parkinson-White syndrome. I was in my first term of university away from family, and I ended up in HDU (high dependency unit) critically unwell. It shouldn’t

“In my teenage years, I had gone to my GP about shortness of breath and chest pain; I was dismissed each time as unfit. But I was very active at that time in my life. If they had taken the time to do one ECG, it would have been picked up. CRY gives screenings to young people for free and has saved lives by doing so, keeping families together and preventing lifelong grief. This is an amazing thing that needs to keep going. So, thank you” - Zanna Orange

“Our eldest son and brother, Lee, passed away in his sleep from Sudden Adult Death at just 19 years old. We had no warning and no knowledge of any heart problem. We set up a Memorial Fund through CRY, and use that money to do ECG screenings at his old school. We feel that by doing this his death was not in vain and we can help save lives” - Carole, Steve, Wayne and Sam Wilson

“I support CRY after attending a charity screening day where an abnormality was detected. CRY helped me get further testing and I soon discovered that I had been born with a heart defect, and had other issues with my heart’s function that I didn’t know about. Thanks to detecting this on my ECG, I ended up receiving life saving open heart surgery at age 23. Without the CRY screening day, I don’t think I would be here now. I truly believe it saved my life”Jessica Lamb

HMS Agincourt

HMS Agincourt announces new charity partnership with CRY

The Royal Navy’s HMS Agincourt – the last of the Astute class submarines currently being built at the BAE Systems shipyard in Barrow – has named CRY as a partner charity. And, to celebrate the news, on Tuesday February 13th some of her crew travelled down to meet with CEO, Dr Steven Cox and to learn more about CRY’s mission to prevent young sudden cardiac death through screening, awareness, and research.

Dr Cox was presented with a memorial shield from HMS Agincourt which will proudly hang on the wall at CRY’s Head Office and a bespoke ‘Bond of Friendship’ document, to formalise the charity association.

As part of the visit the team, led by Senior Naval Officer Lt Cdr Andy Rodgers, was given a tour of CRY’s Head Office, meeting staff from key departments including screening, fundraising, communications and bereavement support, which helped to provide a thorough insight into the vital work carried out by CRY as well as an opportunity to discuss and understand the scale and impact of young sudden cardiac death.

Lt Cdr Rodgers – who’s been instrumental in securing the charity partnership – and his colleagues went on to deliver a fascinating presentation to CRY staff, followed by an engaging Q&A session, helping to shed some light on the underwater world of a submariner and the challenges often faced by this very specific branch of the British military services. They also explained the importance and value of becoming involved with – and giving back to – charitable organisations and how proud the crew felt about this new partnership with CRY.

CRY was introduced to the team of HMS Agincourt through a very loyal supporter, fundraiser and campaigner, Dave Hughes, who works as a Rolls-Royce project engineer on the Astute programme based in the BAE Systems shipyard in Barrow in Furness. Dave and his wife Sue, who live in

Stoke on Trent, became involved with CRY following the sudden and devastating death of their son, Dan, in 2015. He was aged just 28.

Since then over £550,000 has been raised in Dan’s memory to fund heart screening, which includes a 5 year programme for Rolls-Royce submarines eligible employees and for young people across the Derbyshire and Cumbria regions. This fundraising has also supporting the purchase of key items of medical equipment and an incredible donation of over £25,000 to buy a new van to add to CRY’s fleet of mobile screening units, will facilitate the testing of around 50,000 young people during its time of service with CRY.

Speaking before the recent visit, Lt Cdr Andy Rodgers said; “Thank you [Dave] for sharing your story with me, which is so powerful. Just listening to you has been a very thoughtprovoking experience. I am therefore absolutely delighted to announce CRY as HMS Agincourt’s associated charity.”

“Over the service life of the vessel - which will span many decades – associations, such as ours with CRY, can be very mutually beneficial, providing charities with often much needed exposure and presenting important fundraising opportunities. We’re delighted to be working with CRY and look forward to doing our bit to help make a real difference.”

One of the first fundraising events taking place as part of the collaboration will see a team from the HMS Agincourt crew taking part in the annual Keswick to Barrow 40-mile Walk.

Prior to this, two days of cardiac screening, brought to Barrow by the Dan Hughes Memorial Fund, took place in February – which presented an ideal opportunity for those involved with HMS Agincourt to see CRY’s screening team in action.

Dr Steven Cox, Lt Cdr Andy Rodgers and the HMS Agincourt crew

Dr Steven Cox being presented with a memorial sheild

‘One Voice, Many Hearts’ Round Table Discussion

Round Table discussion about the prevention of Young Sudden Cardiac Death brings vital campaigning energy back to Westminster

“We must use this event to move the dial on engagement with government and key stakeholders to avert tragedies like mine – and all others we will hear about today. We know we are all in this together - but we also need to be fighting this hidden killer, together”.

Just some of the powerful words shared by CRY campaigner and bereaved mother, Hilary Nicholls as she opened the ‘One Voice, Many Hearts’ Round Table, held in Westminster on Tuesday 23 April.

The event brought together over 50 families and individuals who’d all been affected by the devastating impact of a young sudden cardiac death – and who were all united in their commitment to preventing further tragedies through the provision of screening, awareness, the placement of AED (“defibs”) in the community and public places and wider access to CPR training.

Chaired by Carolyn Harris MP (Swansea East), the expert panel comprised Dr Steven Cox, Chief Executive of Cardiac Risk in the Young (CRY); Professor Michael Papadakis (Professor of Cardiology at St George’s, University of London & Clinical academic in Sports Cardiology, Inherited Heart

Conditions, Preventive Cardiology) and Professor Lisa Hodgson (Elite athlete screening consultant for CRY). Other speakers included; Alex Bailess (Former FA Women’s National League Footballer who retired from the game in 2020 due to a diagnosis of cardiomyopathy, the same heart condition that led to the sudden death of her cousin, Jack); myheart member and CRY supporter, Tim Butt (who survived a cardiac arrest in 2013, aged just 23) and Sam Richards (Founder of TOBE Heartsafe).

A number of cross-party MPs also attended in support of their constituents who had been invited to the contribute to the debate.

Following a series of engaging presentations, guests were invited to put questions to the panel as well as sharing their own personal experiences of the impact of a young sudden cardiac death. The invited delegates challenged the line-up of experts on how best to harness their collective voice to help inform policy influence the decision making of current advisory bodies such the National Screening Committee (NSC).

Held in a time of pre-election uncertainty, the One Voice, Many Hearts Round Table was a timely opportunity to regroup and consolidate ideas and potential action plans on how to engage with a new wave of MPs in the latter part of 2024. Many of those who attended have fed-back that they felt inspired, focused and ready to support fresh calls for a National Strategy for the Prevention of Young Sudden Cardiac Death.

CRY would like to thank Hilary Nicholls for her work and the incredible efforts that went into organising the Round Table – and to everyone who gave up their time to attend the event, travelling from all corners of the UK (from Edinburgh to Cornwall, Kent to Cumbria – and many towns and cities in-between) demonstrating an inspiring and unwavering commitment to preventing young sudden cardiac death from the wider CRY community.

Hilary Nicholls, Professor Michael Papadakis and Dr Steven Cox and Professor Lisa Hodgson speaking at Westminster

Hilary Nicolls

Carolyn Harris MP

Alex Bailess

London Landmarks Half Marathon

Thank you and congratulations to the 35 CRY runners who took part in the London Landmarks Half Marathon on Sunday 7th April 2024!

With 18,500 runners taking to the streets of London, the buzzing atmosphere along the route really made the day special. The enthusiastic CRY cheering team spurred on our CRY London Landmarks team with noisy whistles and cowbells! We saw some fantastic costumes and fancy dress including a few well-known buildings, an elephant, a moose and much more.

CRY staff Cara MacMillan, Megan Alford, Phil Houlton and Francesca Levett were there on the day along with our amazing volunteers, Julie Essex (in memory of Ben Hammond), Caroline Gard and Peter Gard (in memory of Andrew Gard), Denise Levett and Robin Levett (in memory of Liam Levett), Anabelle Moody (in memory of Clarissa Nicholls), Suzanne Rowan (in memory of Robert Rowan), Emma Slade, Rebecca Urry and Henry Sweetman. We were so glad that we were able to see so many CRY runners! Everyone seemed to be in great spirits.

London Landmarks Half Marathon

The CRY Team were:

Lara Nugent (in memory of Natasha Kay); Marie Field (in memory of Eleanor Field); Maisy Presley (in memory of Matthew Cragg); David Shooter (in memory of Matthew Peace); Ella Bellotti (in memory of Lee Robert Moses); Glen Thompson (in memory of Christopher Dixon); Sam Ashdown (in memory of Anthony Fitzgerald); Daniel Thompson (in memory of Christopher Dixon); Jennifer Freer (in memory of David Harrop); Francesca Turner; Alexander Burns (in memory of Jamie Loncaster); Ian Storey (in memory of Aaron Dixon); Chloe Walker (in memory of Balinder Mann); Jade Buckle (in memory of Laura Wright); Olivia Jones (in memory of Alexander Hampshire); Andrew Champney (in memory of Guy Champney); George Wicker; Harrison Freer (in memory of David Harrop); Rahul Sheemar; Oliver Muir (in memory of Matthew Cragg); Miles Blake Harris (in memory of Matthew Cragg); Harry Cragg (in memory of Matthew Cragg); Aaron Dodd (in memory of Phillip Dodd); Lucas Dodd (in memory of Phillip Dodd); Sarah Dodd (in memory of Phillip Dodd); Tom Field; Isabella Cain (in memory of Darrin Hiscock); Paul Manning (in memory of George Watson); Seren Atkinson (in memory of Benjamin Daniels); Daniel Lee (in memory of Benjamin Daniels); Frances Daniels (in memory of Benjamin Daniels); Aidan Norman (in memory of Benjamin Daniels); Andrew Freer (in memory of David Harrop); Emilia Freer (in memory David Harrop); Nathan Thompson (in memory of Christopher Dixon).

London Marathon

A huge thank you and congratulations from all at CRY to our amazing runners who took part in the 2024 TCS London Marathon!

On Sunday 21st April 2024 #TeamCRY got to tackle the iconic 26.2 miles through London. We were delighted to have 118 runners take part on behalf of CRY, raising both vital funds and awareness.

CRY volunteers and staff were based out on the route at miles 12 and 23 to spur our charity heroes on. The weather on the day was dry, but a little on the cold side. Most would say a vast improvement on the conditions from last year!

As runners gradually arrived at the post-race venue, they were welcomed back by CRY staff and volunteers with applause, cheers, and a few cowbells! They were offered a CRY medal, photographed by CRY staff, and offered plenty of refreshments. This was followed by a massage from a therapist with the aim of easing some of the discomfort they might be experiencing, and finally a well-deserved warm shower after their outstanding efforts on the day.

This was the second year that CRY had been based at the Institute for Government and we have received plenty of good feedback from runners, supporters and volunteers about the venue, especially its proximity to the finish line.

We were so pleased to welcome 51 of our runners, along with their families and friends, back to see us after they had finished. It was a pleasure for CRY staff to meet everyone in person and thank them for their incredible efforts and dedication to the charity.

Finally, we would like to thank the CRY runners for their fantastic efforts and valued support. We really appreciate you taking part on behalf of CRY. Congratulations and thank you to you all!

Thank you so much to the runners and supporters who were able to come and meet us; and a huge thank you to all our wonderful volunteers who were:

Joe Adams; Bekim and Ornela Arifaj; Jenny Boag (in memory of Barry Nivett); Heather Darby (in memory of Neil Darby); Caroline and Steven Davidson; Phil and Wendy Harrington (in memory of Barry Nivett); Sheila Hawley; Jo, Nick and Charlie Hudson; David and Jan Hughes; William Knight; Kathy Linford; Annabelle Moody (in memory of Clarissa Nicholls); Emma Rogers; Suzanne Rowan (in memory of Robert Rowan); Jos Sizer; David and Deborah Steed; Alison Stevens; Mike Tointon; Rebecca Urry and Henry Sweetman; Hannah and Aaron Walker; Paul Ward; Maani Way and Julia Wright (in memory of Sam Ashcroft).

The Team CRY runners were:

Joe Acton (in memory of Eleanor Keeler); Charlie Anderson (in memory of Peter McAvoy); Emma Astbury (in memory of Megan Dicken); Sam Barnes (in memory of Alex Hubbard); Phil Barrett (in memory of Robert Rowan); Melanie Barber; Michelle Beard (in memory of Jasper Bryan Cook); Colin Bent; Sanjay Bhate (in memory of Aashi Sinha); Jenny Bramley; Fleur Buck (in memory of Nina Buck); John Byford; Joshua Caffrey (in memory of Danielle Hampson); Ben Caldera (in memory of Yasmin Caldera); Andrew Champney (in memory of Guy Champney); Tom Clover; Charlotte Coates; William Collier (in memory of Matt Cragg); Sam Cook (in memory Harry Dubois); Daniel Wilkinson and Jonny Brown; Tanya Corrigan; Maisie Cox (in memory of Madison Beau Campbell); Isabella Crane (in memory of Izzy Moulding); Laura Crew (in memory of Lewis Smith); Harrison Davis; Victoria Dewin (in memory of Isabella Tudisca); Scott Duxbury (in memory of Rebecca Duxbury); Rob Dymond; Theo Dyson; Isabella Elwes (in memory of Clarissa Nicholls); Michael Fairclough (in memory of Danielle Hampson); Joe Foley (in memory of Jake Thomas Carney); Archie Forbes (in memory of Freddy Forbes); Paul Frostick; Alfie George; Marcus Golby (in memory of Toby Golby); Sarah Grady (in memory of Mia Jennings); Ian Green (in memory of Katrina Eaves); Ben Gregory; Owen Griffin (in memory of Oliver Griffin); Eimear Griffin (in memory of Clarissa Nicholls); Chris Griffiths (in memory of Dan Moore); Sam Griffiths; Imogen Hall (in memory of Rosie Mitchell); Keira Hammond; Alison Hancock; Dan Hawkins (in memory of Oliver Newman); Oliver Haxton (in memory of Jason Haxton); Andrew Heasley (in memory of Harry Dubois); Chris Hedley (in memory of Harry Dubois); Lewis Hodges (in memory of Toby Hayward-Seers); Katherine Hogan (in memory of Harry Dubois); Steve Horn (in memory of Jude Harvey); Isobel Horsfield in (memory of Clarissa Nicholls); Phil Hughes in (memory of Harry Dubois); Tom Hurleston (in memory of Ben Peters); Hugh Impey; Madeline Jackson; Dominic James (in memory of Danielle Hampson); Louise Jennings (in memory of Mia Jennings); Memoona Khalid (in memory of Zaid Aziz); Jane Kinghorn (in memory of Tom

London Marathon

Clabburn and Claire Prosser); Stella Kubale; Jane Land (in memory of Lynn Ruthven); Luella Law (in memory of Neil Darby); Holly Lay; Deborah Lewis (in memory of Martin Lewis); Sam Lomas (in memory of Josh Lomas); Mantej Mann (in memory of Harry Dubois); Tom Marsh; Stephanie Marshall (in memory of Tom Clabburn, Claire Prosser and Jason Goode); Olivia McPhee (in memory of Joseph Merritt); Scott Merrilees (in memory of Eleanor Field); Peter Michael (in memory of Harry Dubois); Zoe Moore (in memory of Alex Townsend); Dave Moore (in memory of Alex Townsend); Hugo Nicholls (in memory of Clarissa Nicholls); Oliver Nicholls (in memory of Clarissa Nicholls); Chris Oak; George Pangborn (in memory of Simon Pangborn); Phoebe Pangborn (in memory of Simon Pangborn); Mia Papier-Bantick (in memory of Miles Papier-Bantick); Praful Pasarkar (in memory Satish Patre); Rob Peacock; Olivia Pearce (in memory of Anthony Evans); Amanda Peel (in memory of Scarlett Sewell); Harley Pell; Andrew Pointon (in memory of Daniel Hughes); Jody Powell (in memory of Olivia Shaw); Liza Rance (in memory of Clarissa Nicholls); David Rickett (in memory of Aaron Dixon and Ben Smith); Gary Rose; Jacqualyn Rumsey (in memory of Harry Faulkner); Emma Ruthven (in memory of Lynn Ruthven); James Rutley (in memory of Ella Keeler); Lewis Sandoe (in memory of Luke Sandoe); Hannah Scott (in memory of Darren); Janine Shaw (in memory of Ben Shea); Isabel Shaw (in memory of Olivia Shaw); Will Shaw (in memory of Olivia Shaw); Rachel Shaw (in memory of Harry Dubois); Sarah Smith (in memory of Ben Peters); Oliver Smith; Cameron Spurling (in memory of Rupert Spurling); Freya Spurling (in memory Rupert Spurling); Annabelle Stoney (in memory of Katie Benson); Joshua Sullivan (in memory of Rachel Jones); Phil Sweatman (in memory of Ben Hammond): Carys Thomas (in memory of Mary Thomas); Sam Thompson (in memory of Sebastian English); Emma Tilley (in memory of Natasha Kay); Amy Toolis; Emma Ward; Charlotte Whistlecroft (in memory of Harry Dubois); Molly Whitfield (in memory of Shaun Whitfield); Carol Whitworth; Ben Whybrow (in memory of Harry Dubois): Nick Wilby (in memory of Mark Duncan); Douglas Worboys (in memory of Robert Worboys).

Regular Donors

Regular Donors

The regular donors section appears in the Update magazine once a year to acknowledge those who have set up regular donations to CRY, often in memory of a loved one. These donations come to us from many places including JustGiving, Much Loved, payroll giving schemes and direct debits.

For more information about way you can donate to CRY, please visit: www.c-r-y.org.uk/ways-to-donate

InMemoryof Jane Allen

Frances Allen donated in memory of Jane.

InMemoryof Jack Atkinson

Clare Ling donated in memory of Jack.

InMemoryof Paul Baker

Clare Ellis-Brown donated in memory of Paul.

InMemoryof Brett Beasey-Webb

Offley Parish Council donated in memory of Brett.

InMemoryof Ewan Bellamy

Geoff Street donated in memory of Ewan.

InMemoryof Richard Belton

Clare Ball donated in memory of Richard.

Clare Stacey donated in memory of Richard.

InMemoryof Sarah Booth

Christine donated in memory of Sarah.

InMemoryof Alex Bowen-Smith

Geoff E Smith donated in memory of Alex.

InMemoryof Alexander & Derek BrinckJohnsen

Jacqueline Norma BrinckJohnsen donated in memory of Alexander & Derek.

InMemoryof Emma Broad

Jemma K Burgess donated in memory of Emma.

InMemoryof Claire Beer

Margaret Howroyd donated in memory of Claire.

InMemoryof Ella Bury

Claire Jones donated in memory of Ella.

InMemoryof Nathan Butler

Mrs K Hemmings donated in memory of Nathan.

InMemoryof Graham Button

Alison Button donated in memory of Graham.

InMemoryof Kenneth Byrne & Nigel Edgar

Amanda Barker donated in memory of Kenneth & Nigel.

InMemoryof Kenneth Byrne

Karen Byrne donated in memory of Kenneth.

InMemoryof Isobel Cannon

David Cannon donated in memory of Isobel.

InMemoryof Tom Clabburn & Claire Prosser

Sabeha Syed donated in memory of Tom & Claire.

InMemoryof Ben Coleman

Carol Coney donated in memory of Ben.

Regular Donors

InMemoryof Stephen Connor

Patricia Connor donated in memory of Stephen.

InMemoryof Jenny Conway

David Kenyon donated in memory of Jenny.

InMemoryof Jasper Cook

Claire Ayres donated in memory of Jasper.

InMemoryof Eleanor E Cottrill

Linda Cottrill donated in memory of Eleanor.

InMemoryof Christopher Cowe

Gracie Laurieston donated in memory of Christopher.

InMemoryof Andrew Dale

Joyce Dale donated in memory of Andrew.

InMemoryof Freya Dalrymple

Rebecca Kitney donated in memory of Freya.

InMemoryof Katy Daniel

Mrs S A Rintoul donated in memory of Katy.

Regular Donors

InMemoryof Andrew Dawson

Ann Bath donated in memory of Andrew.

InMemoryof Conor Delany

Angela Delany donated in memory of Conor.

InMemoryof James Devlin

Lisa Powler donated in memory of James.

InMemoryof Matthew Dewhirst

Cathy Gray-Upton donated in memory of Matthew.

InMemoryof Aaron Dixon

Angela Kinder donated in memory of Aaron.

InMemoryof Harry Dubois

Rebecca Fields donated in memory of Harry.

InMemoryof Rachel English

Christoper English donated in memory of Rachel.

InMemoryof Sebastian English

Ann Estridge donated in memory of Sebastian.

Mark Davies donated in memory of Sebastian.

Phil Austin donated in memory of Sebastian.

InMemoryof Olukayode Famoriyo

Malvika Savur donated in memory of Olukayode.

InMemoryof Harry Faulkner

Barry Gilbey donated in memory of Harry.

InMemoryof Anthony Fitzgerald

Steven Murphy donated in memory of Anthony.

InMemoryof Jon Fletcher

Wendy Fletcher donated in memory of Jon.

InMemoryof Sophia Forrester

Katy Godwin donated in memory of Sophia.

InMemoryof Ben Forsyth

John MacLeod donated in memory of Ben.

InMemoryof Brandon Francis

Tom Francis donated in memory of Brandon.

InMemoryof Rachel Gabbitas

Sarah Gabbitas donated in memory of Rachel.

InMemoryof Andrew Gard

William Barnett donated in memory of Andrew.

InMemoryof Susan Gomez

Gerry Gomez donated in memory of Susan.

InMemoryof Jerem Green

Carole Green donated in memory of Jerem.

InMemoryof Stephen Gregory

Patricia Nelson donated in memory of Stephen.

InMemoryof Matthew Hadfield

Dan Watts-Read donated in memory of Matthew.

InMemoryof Matt Hales

Richard Hales donated in memory of Matt.

InMemoryof David Hill

Sharon Duncan donated in memory of David.

Regular Donors

InMemoryof John Hodgetts

Patricia Tayler-Jones donated in memory of John.

InMemoryof Lauren Holly

Lynn McBrearty donated in memory of Lauren.

InMemoryof Rhea Hourigan

Joanne Hourigan donated in memory of Rhea.

InMemoryof Stewart Howard

Julie Williams donated in memory of Stewart.

InMemoryof David Howorth

Philip Howorth donated in memory of David.

InMemoryof Alex Hubbard

Jessica May donated in memory of Alex.

InMemoryof Daniel Hughes

Mark Bartlam donated in memory of Daniel.

InMemoryof Charlie Ibrahimi

Fatema Ibrahimi donated in memory of Charlie.

Regular Donors

InMemoryof Michael Ince

Phoebe Comish donated in memory of Michael.

InMemoryof Camilla Irvine

Rosella Souter donated in memory of Camilla.

InMemoryof Ariana Jahangir

J Vaughey donated in memory of Ariana.

InMemoryof Stevie Jivani

Max Lazarevic donated in memory of Stevie.

InMemoryof Judith Krish

Jonathan Krish donated in memory of Judith.

InMemoryof Jannik Lam

Birte Harlev-Lam donated in memory of Jannik.

InMemoryof Anthony Lane

Arun Rajkumar donated in memory of Anthony.

InMemoryof William Lane

Lucy Berridge donated in memory of William.

InMemoryof Finlay Macdonald

Callum Macdonald donated in memory of Finlay.

InMemoryof Paul Marrs

Phyllis Marrs donated in memory of Paul.

InMemoryof Simon McNamara

Katherine McNamara donated in memory of Simon.

InMemoryof Josh Merrick

Deborah Farghaly donated in memory of Josh.

InMemoryof Adam Middleton

Donna Meredith donated in memory of Adam.

InMemoryof Lewis Millington

Nigel & Dawn Millington donated in memory of Lewis.

InMemoryof Pardeep Nagra

Dalbag Nagra donated in memory of Pardeep.

InMemoryof Andrew Ninham

Stephen Ninham donated in memory of Andrew.

Regular Donors

InMemoryof Ben O’Connell

H L O’Connell donated in memory of Ben.

InMemoryof Christopher Martin Parr

Lucy Turner donated in memory of Christopher.

InMemoryof James P Patterson

Catherine Patterson donated in memory of James.

InMemoryof Andrew Patterson

Nicola Brackenridge donated in memory of Andrew.

InMemoryof Timothy Perry

James Perry donated in memory of Timothy.

InMemoryof Jack Phillips

Patrick Mullens donated in memory of Jack.

InMemoryof Alessandro Pomfret

Nadia Pomfret donated in memory of Alessandro.

InMemoryof Gary Pope

John Aitken donated in memory of Gary.

InMemoryof Robert Poysor

Edward Beddows donated in memory of Robert.

InMemoryof Tanja Price

Mike Bonstow donated in memory of Tanja.

InMemoryof Alexandra Reid

Rejia Ullah donated in memory of Alexandra.

InMemoryof Ben Rendall

Ben Hawkins donated in memory of Ben.

InMemoryof Benjamin Russell

Daniel Barrett donated in memory of Benjamin.

InMemoryof Tom Russell

Toby Butterworth donated in memory of Tom.

InMemoryof Neil ‘Kymatic’ Schuyleman

Helen Davies donated in memory of Neil.

Regular Donors

InMemoryof Paul Senior

Meera Senior donated in memory of Paul.

InMemoryof Kevin Sheehan

Poppy Izzard donated in memory of Kevin.

Tansy Izzard donated in memory of Kevin.

InMemoryof Carl Shenton

Pamela Shenton donated in memory of Carl.

InMemoryof Ben Simpson

Robin Simpson donated in memory of Ben.

InMemoryof Paul Simpson

Chris Simpson donated in memory of Paul.

InMemoryof Joanne Sindrey

Geoff Sindrey donated in memory of Joanne.

InMemoryof Dominic Smythe

Peter Dykes donated in memory of Dominic.

InMemoryof Kieran Sparrow

Philip Sparrow donated in memory of Kieran.

InMemoryof Rupert Spurling

Sue Spurling donated in memory of Rupert.

Daphne Spurling donated in memory of Rupert.

InMemoryof Natalie Stewart

Clifford Stewart donated in memory of Natalie.

InMemoryof David Stiller

Bryan Stiller donated in memory of David.

InMemoryof Claire Taylor

Glenis Taylor donated in memory of Claire.

InMemoryof Oliver Thompson

Sue Davidson donated in memory of Oliver.

InMemoryof Nicholas Thorne

Eunice Thorne donated in memory of Nicholas.

InMemoryof Hannah Turberville

Christopher Turberville donated in memory of Hannah.

InMemoryof Neil Walden

Ben Herson donated in memory of Neil.

InMemoryof Melissa Watts

Richard Watts donated in memory of Melissa.

InMemoryof Nicole Whitbread

Teresa Whitbread donated in memory of Nicole.

InMemoryof Katherine Wilcock

Maureen Richardson donated in memory of Katherine.

InMemoryof Matthew Wilkin

Hayley Pizzey donated in memory of Matthew.

Michael Wilkin donated in memory of Matthew.

Rebecca Wilkin donated in memory of Matthew.

InMemoryof Charlotte Winters

June Jacob donated in memory of Charlotte.

Regular Donors

CRY also recieved donations from the following supporters in 2023:

Aisling Arthur | Lorna Anderson | Anna Brewer | Brendan Barrow | Carl Barnes | Daniel Betts | Jade Bygrave | Michelangelo Buter | Richard Bolton | Susanne Booth | Anthony Charlwood | Dean Craven | E Clarke | Herbie Curran | Jenny Clarke | Jonathan Cook | Josed Czerpak | Matthew Collins | Nancy Covill | Nicola Crawley | Oliver Clive | Richard Clark | Sam Caldera | Stewart Clark | Andree Dunn | Jonathan Duell | Rachael Davies | Toby Daeche | Vishaant Deuchande | Harry Eaton | Jackie Edwards | Chris Forrester | John Fell | Tara Frawley | Thomas Frank | Alina Gregory | Barrpal Gill | E Green | Janice Gunn | Meoldy Grossman | Sarah Galvin | Sean Gubbins | Stephen Goold | Angela Hughes | Annie Hartley | Kathryn Hellewell | Maria Herdman | Mr C Holden | Nick Hutchings | Alex Isaacs | Trina Ingledew | Deborah Jones | James Jenkin | Louise Anne Johnson | Oliver Joy | Peter A James | Sam Johansen | Sophie Johnson | Jason Kirk | Mrs S Kay | Sukbir Kaur | David Lawrence | Gerard Lilley | Ryan Love | Tim Lincoln | Angela Meyers | Gemma Maries | Gus Mcgilligan | Hannah Morrison | Helen Mestchian | James Matthews | Jean Massey | Joseph Murphy | Mr A Miller | Mr P Mckelvey | Nicholas Mounfield | P Murphy | Stewart Morris | Vanessa MacLeod | Vicki Mcgee | Linda New | Mr P N Jarvis | Philip Nathan | Richard Newstead | Andy Owen | Daniel Ogilvie | Edwyn Oliver-Evans | Mulika Ojikutu-Harnett | Josephine Pwajok | Robert Pickering | Tom Pavitt | William Thomas Perring | Alistair Robinson | Jessica Randall | Mia Rogers | Stephen Ross | Susan Rutherford | Zoe Rye | Zubin Randeria | Arielle Stealey | Brenda Soiza | Heather Statham | James P Stead | Joseph Smith | Katie Sutton | Lewis Steele | Luke Sunerton | Mark Shukru | Matthew Steeples | Robert Standen | Jay Turner | Oliver Taylor | Mike Van Giesen | Brian Weeks | Dean Wheeler | Ed Wheatley | Edward Wood | Elizabeth Wright | Hannah Waddington | Michael Walker | Mrs R Wheeler | Ms J Wenham | Paul Walton | Simon Whitaker | Christopher Young

Our Fundraisers

Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2024.

Our Fundraisers

The Our Fundraisers section appears in the Update magazine to acknowledge those who have held or taken part in a fundraising event for CRY, often in memory of a loved one. Thank you to everyone who has kindly donated to CRY in this period - your donations are vital to

InMemoryof Umayr Ali

• The Newcastle Medical Society donated £1,268.55 raised from a raffle.

• Luke Kong took part in the Great North Run 2023 and raised £812.

• Myah Kenth took part in the Great North Run 2023 and raised £1,354.

• Ronaldo Joshari took part in the Great North Run 2023 and raised £486.

InMemoryof Gary Anderson

• Tony Hasnip and the Sky Newcastle team completed the Tough Mudder Yorkshire raising £165.

InMemoryof Jack Atkinson

• Richard Baker sent a donation of £725 raised from an Annual Easter Egg Raffle at The Brace of Pistols Pub.

InMemoryof Peter Baddoo

• Jonathan Price donated £100.

• Steel Construction Istitute donated £500.

CRY and our aim to prevent young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact CRY via UpdateMag@c-r-y.org.uk.

InMemoryof Linda Barford

• Jody Bradford took part in the Great North Run 2023 and raised £475.

InMemoryof David Barlow

• Anna Birk chose CRY as the charity to benefit in respect of ‘Blakemans Fun Day’ donating £2,617.27.

“The Blakeman family decided that their 70th anniversary in business was the ideal opportunity to bring back their annual family fun for the first time since 2019.

“Organised by the Blakemans Improvement Group (BIG), the day was open to all Blakemans staff, their friends and families and aimed to raise money for CRY (Cardiac Risk in the Young) in memory of Dave Barlow, a colleague and friend who sadly passed away at just 30 years of age.

“The day consisted of bouncy castles, face painting, balloon modelling, live music, wellie wanging, a bakeoff competition and an art competition for the kids. The highlight of the day was the team challenge, which saw contestants competing in sumo wrestling, a bungee run,

a sack race, cup stacking, a sausage and spoon race and culminating in a very eventful relay race.

“Anna Birks, Marketing Manager and Chair of BIG said:

“I can’t believe how well it went, even the weather behaved for us. It was fab to see all of the staff and their families having fun together and the money we managed to raise was amazing. I’d like to say a huge thank you to everyone who helped to make the day a success, with special mentions to our incredible suppliers for their generosity and to Dave’s family who stayed all day and helped out so much”

InMemoryof Nicholas Barnes

• Phillip and Frances Barnes choose CRY as the charity to benefit £600 in lieu of gifts on your 50th Wedding Anniversary.

InMemoryof Cecilia Barriga

• Mike Fleet sent a donation of £175 raised from book sales by Eric Campbell.

InMemoryof Richard Belton

• Richard Stacey-Chapman sent a donation of £150, his grandad, Dave Chapman asked anyone reading his life story book to make a donation to CRY, with friends and family contributing to this.

InMemoryof Vickers Bennetts

• Julie Millar completed the 12 a Week Challenge 2023 raising £111.

InMemoryof Toby Berlevy

• Susan Judd donated £150.

Our Fundraisers

InMemoryof Alex Bews

• Cameron Donald and Callum Christie completed the Stockholm Marathon and raised £2,786.84.

InMemoryof Daniel Joshua Blackman

• Richard and Hazel Blackman donated £100.

• Richard Blackman donated £350.

• Hazel Blackman participated in the CRY Great Cake Bake 2023 raising £284.

• Kate Blackman sent a donation of £550 from the sale of Dan’s Kawasaki Zephyr from Phil and Sarah Boxell.

• Hazel Blackman sent donations totalling £266.84 raised from her eBay sales.

InMemoryof Steven Blair

• Susan Blair sent a donation of £190 raised from Millport collection pots.

• Hunter and Susan Blair sent a donation of £265 raised from collection pots and quiz donations.

InMemoryof Nathan Blake

• Andy and Cath donated £100.

• Sybina McLoughlin donated £150.

• Lorna Robinson sent a donation of £415 from the Pavillion Project and Robinson family.

InMemoryof Graeme Blenkinsop

• Shirley Heywood donated £150.

Our Fundraisers

InMemoryof Sarah Booth

Invest Northern Ireland sent £100 from funds raised by a weekly Premier League predictor competition.

InMemoryof Russell Bond

• Elaine Bond sent £200 representing donations received in lieu of floral tributes’, in memory of her husband, Russell.

InMemoryof George Bosompem-Twum (Smith)

• Andrea Burford completed the 12 a Week Challenge 2023 raising £100.

InMemoryof Jack Boulton

• June Boulton sent a donation of £4,569.83.

• Marcus Lynes donated £500 from his shift allowances.

InMemoryof Sam Bradley

• Thomas Bradley completed the Cardiff Half Marathon raising £799.15.

InMemoryof Mark Britton

• Stephen Hardacre donated £150.

InMemoryof Emma Broad

• Surbiton Hockey Club donated £1,500.

• Gareth Masterman donated £200.

• Philip Broad sent donations totalling £200.

InMemoryof Connor Brown

• Pauline and Gary Brown donated £100.

InMemoryof

Oliver H Brown

• Tom Cantello donated £250.

• Sally and John Harte donated £100 in support of Eliza’s sky dive in memory of Oliver.

InMemoryof Leanne Brownhill

• Lynne Brownhill sent a donation of £270 from money collected from a prize draw.

• Shane Adshead sent a donation of £1,000 from Harbour Energy, The Loman Oil Rig and Maria McCormack.

• Guy Turpin donated £350.

InMemoryof Jennifer Bucknell

• Bill and Hillary Durrant sent donations totalling £120, from the sale of preserves £100 and from Penny Goater £20.

• Bill and Hillary Durrant donated £200 in remembrance of the 13th anniversary of Jenny’s death.

InMemoryof Ella Bury

• Cadent Gas donated £190.

• David Turner donated £200.

• Citywire donated £500.

• Kevin Courtney donated £100.

• Chris Green sent a donation of £500 raised from raffle ticket sales.

• Planning Potential Ltd donated £500.

InMemoryof Grant John Butler

• Lorraine Ayres sent donations totalling £539.20 from the Somerset Road Club Tri.

InMemoryof Nathan Butler

• Alex Whelan donated £300.

• Newcastle-under-Lyme Borough Council sent a doantion of £14,000 via the Institute of Cemetery and Cremation Management.

• Angela Butler sent a donation of £240 raised at an annual football quiz, organised by Phil Butler and Alan Woolley.

• Stephanie Cartledge sent a donation of £250 raised from her ladies karaoke evening.

• Lee Tretheway donated £100.

• Angela Butler sent £270 representing donations received from a screening weekend.

Our Fundraisers

InMemoryof Graham Button

• Lauren Button chose CRY as the charity to benefit from £1,401.88 in respect of sponsorship from her Skydive.

“So proud of our daughter Lauren Button who did a Skydive and has raised £1401.87 for CRY in memory of her Dad, Graham Button, who died on the 14th October 2006. Lauren also wanted to raise awareness of Cardiac Risk in the Young (CRY) as our family have been grateful for all their support over the years and would encourage all young people to have screenings to check for any undiagnosed heart conditions as it could save their lives.”

InMemoryof Alistair Calvert

• Alice and Trevor Wheaton sent donations totalling £350, including donations from Pauline and Janet.

InMemoryof James W Campbell

• Gillian Nimer sent a donation of £100 raised from the Young Gerry’s Jam Night at the Dormans Club.

• Karen Campbell sent a donation of £536.21 raised from a Christmas carol sing-a-long and raffle.

• Nick Matthews donated £100.

• Philip Kilgour donated £150.

• John and Carole sent £200 representing donations received in lieu of floral tributes’, in memory of Judith Tinkler.

Our Fundraisers

InMemoryof Madison B Campbell

• Elizabeth Dyson donated £100.

• Leonie Bradford sent a donation of £100 in respect of Theo’s London Marathon Run.

InMemoryof Andrew Carter

• Mary Tomsett sent a donation of £470 raised from the sale of handmade and upcycled Christmas decorations and cards.

InMemoryof Ryan W Carter

• Jamie Jewell donated £150.

InMemoryof Andrew J Case

• Robert Case completed the English Cathedrals Cycle Challenge raising £4394.66.

“This year I turned as old as there are Church of England Cathedrals (in England), accordingly it seemed like a good idea to try to cycle between them all.

“I have lost two brothers now to heart issues, and also my best friend. Knowing the impact that a loss of life from a heart condition places on surviving family members shows the importance of a charity like CRY and the support they provide not only to bereaved families, but also with vitally important screening and research. I have been fortunate to have been the recipient of heart screening recently and I felt that I wanted to give something back to help others in the future, accordingly I took on this challenge to raise funds for CRY.

“Breaking the challenge down into seven separate legs (which started in May from Gloucester Cathedral before) following the designated route between the Cathedrals which makes up the official Cathedrals Cycle Route. I have slowly but surely been ticking each Cathedral off the list, getting stamps in my Pilgrim Passport to provide a keepsake for years to come.

“In total I have covered 1,934 miles in 23 days of cycling and I have climbed over 27,000 meters (over three times the height of Everest)! Some journeys were tougher than others, there always seemed to be a headwind and when you have fixed your dates in the calendar you have no choice with the weather. I have cycled through a heatwave and a summer storm! It would not have been possible without the support of friends and family who helped with each leg. I finally finished at Gloucester Cathedral to the sound of the bells ringing out with 12 cycling friends and a crowd to welcome me of family, family friends and colleagues.

“It has been a fantastic experience, a massive physical and mental challenge and most importantly I have raised over £4000 + gift aid for such a great charity.”

InMemoryof Paul Caudery

• Stephanie Allen completed the Marathon des Sables and raised £9,100.

InMemoryof Tom Clabburn & Claire Prosser

• Tim Carpenter donated £100.

InMemoryof Lee Clements

• Blackstone Chambers donated £100.

• Julia Simpson donated £100.

• Alex and Rhian donated £100.

• Christian Richmond donated £100.

• Mario Orphanou donated £100.

• Robert Brophy donated £100.

• Nick Puttock donated £100.

InMemoryof Nathalie Cocks

• Sian, Kate and Rianna Oakley compleyed the London Winter Walk 2019 and raised £397.50.

InMemoryof Ben Coleman

• Karen Rea completed the Worthing 10k raising £100.

“Since my dear friend, Nicky, lost her beloved eldest son, Ben, 3 years ago I have run Worthing 10k annually to raise funds and awareness for CRY.

“This year was a tough run and VERY hot but I did it in just over an hour.

“I am honored to do this run every year in Ben’s memory.”

InMemoryof Christopher D Connor

• Ann Marie Connor donated £100.

InMemoryof Stephen Connor

• Paul Evans donated £300.

InMemoryof Jasper B Cook

• Chris Cowley sent a donation of £500 from the team at Lantern Fire.

Our Fundraisers

InMemoryof Adam Cooper

• Rachel Aitken sent £700 representing donations received in lieu of floral tributes’, in memory of Betty Mercer.

• Mark, Natalie and Doc completed the Barcelona Half Marathon and raised £425.

“We finally got around to sorting out the photos of the Barcelona Half Marathon that took place in back in February (10/02/2019). Where David ran with our daughter Natalie and her partner Marc in memory of Adam Cooper.

“We set up a just giving page and that has raised £425 and we have collected a further £250 in cash, which has been paid in on CRY’s donation page.

“I have attached some photos of the end of the race crossing the line but unfortunately we did not take any before the race.

“Our close friend (also pictured) ran with us but he chose to sponsor us and took part in the event for a personal challenge.”

InMemoryof Christopher Cowe

• Jane Barks completed the Edinburgh Kiltwalk and raised £170.

InMemoryof Matthew Cragg

• Charter Tax Consultancy donated £2,000.

Our Fundraisers

InMemoryof Charlie Craig

• Rebekah Watt donated £100.

• The team at Chimp Management sent a donation of £1,575.50 from their 2023 egg sales.

• Sue Robinson and Gill Shaw sent a donation of £729.54 raised from a cake and coffee morning held at Hayfield Cricket Club.

• Warren Drew donated £150.

• Jonathan Young donated £100.

InMemoryof Charlie Craig & Gijis Verdick

• Sara Bell completed the 12 a Week Challenge 2023 and raised £179.

InMemoryof Richard Credland

• Sandy Credland donated £100.

InMemoryof Samuel Cross

• Bright Funds Inc sent a Match Giving donation of £1,716.43.

InMemoryof Kiam Cummins

• Adam Creber sent a donation of £2,734.05 raised from a 22km walk.

• Adam Creber sent a donation of £564.12.

InMemoryof Adam Dabell

• John Dabell sent a donation of £200.

• Maggie Burrows donated £300.

InMemoryof Christopher Dale

• Kathryn Broadbent donated £100.

InMemoryof Freya Dalrymple

• The Kirkwall Airport Security Staff donated £287.

• Walk for Freya 2023’ Around 90 people took part in a walk around Kirkwall past places that were significant to Freya raising £2,320.

• Inga Mcdonagh completed the 12 a Week Challenge 2023 and raised £115.

InMemoryof Ben Daniels

• Farringtons School chose CRY as the charity to benefit in respect of sponsorship from their Fun Run and raised £235.

• Ravenswood School Parents, Staff and Friends Association donated £850 which was raised from Christmas packing at Waitrose in Bromley.

• Ravens Wood School raised £70.10.

InMemoryof Neil Darby

• Heather Darby took part in the Great North Run 2023 raising £375.

• Ryan Grimshaw took part in the Great North Run 2023 and raised £595.

InMemoryof Freya Davidson

• Stuart House chose CRY as the charity to benefit from their charity week raising £886.41.

InMemoryof Paul Davies

• Benita Davies sent a donation of £1,000 on the anniversary of his 42nd birthday, kindly left by her aunt Audrey Collett.

InMemoryof Thomas A Day

• James Foo sent £595 representing donations received in lieu of wedding presents.

• The Grammar School at Leeds donated £2,750.

InMemoryof Adam Dearnley

• Tricia Dearnley sent a donation of £1,051.70, raised at The West Bridgford Methodist Church from a community coffee morning and the sale of knitted toys.

InMemoryof Matthew Dewhirst

• Chris and Sue Dewhirst sent £130 from donations received at screening days.

• The Rotary Club of Wadebridge donated £600.

InMemoryof Aaron J Dixon

• RBF Cargocare donated £500.

Our Fundraisers

• Agecroft Rowing Club donated £880 from their Charity Fundraiser.

• Sarah Temperton donated £100.

• The Sandiway Pantomine Group donated £200.

• The Winder Lodge No 3984 donated £200.

• Aqueous Digital donated £6,500.

• The JD Foundation raised £12,899 from a raffle.

• Buddy, the mascot of Lostock Hall Juniors Football Club completed the Epsom Downs Annual Mascot Race for CRY raising £350.

• Ashley Wood completed the London to Paris bike ride raising £2,551.

• Ian Storey completed the Cheshire Half Marathon £1,550.

• Auto Trader chose cry as the charity to benefit from their fundraiser raising £6,168.

InMemoryof Adam Donnelly

• Trevor Wheeler sent a donation of £275 raised from the Our Lady Rosary Charity Race Night.

InMemoryof Niamh Donohue

• Charles Charlton donated £605.

InMemoryof Adam Drawbridge

• Elsie Drawbridge donated £400.

• Shirley Blackman donated £200.

Our Fundraisers

InMemoryof Harry Dubois

• Deborah Dubois sent a Christmas donation of £100.

• John Owen sent a donation of £1,700.

InMemoryof Emily Rose Dunn

• Megan Wynne took part in the Great North Run 2023 and raised £419.50.

• Simon McMahon took part in the Great North Run 2023 and raised £669.50.

InMemoryof Gary Edwards

• Hilary Edwards chose CRY as the charity to benefit from her raffle fundraiser raising £185.

InMemoryof Rory James Embling

• Angela Coupland sent £1,150 representing donations received in lieu of floral tributes’, in memory of her husband, Andrew (Andy) Coupland.

InMemoryof Sebastian English

• James Robottom sent a donation of £800.

InMemoryof Harry Faulkner

• Michael Andrews sent £150 representing donations received in lieu of wedding favours.

• Julian Craxton sent a donation of £250 raised through the Radlett Junior Squash Club Tournament.

• Julian Craxton sent a donation of £340 raised through the Radlett Junior Squash Club Tournament.

InMemoryof Therese Field

• The Borno Foundation sent a donation of £1,127.90.

• Tara Field participated in the CRY Great Cake Bake 2023 and raised £512.

InMemoryof Jenny Finney

• We have received donations totalling £492.60, representing donations received in lieu of floral tributes’, in memory of Beryl Patricia Finney.

InMemoryof Anthony Fitzgerald

• Bill Griffiths donated £100.

• Blackheath Football Club donated £2,500.

• Noel Fitzgerald sent a donation of £1,200 raised from a Christmas memorial rugby game.

InMemoryof Charlie Fitzherbert-Brockholes

• John Fitzherbert-Brockholes sent a donation of £800.

InMemoryof Katie Fleet

• Janice Fleet sent a donation of £1,180 raised from the making and selling of wreaths.

Our Fundraisers

InMemoryof Andy Forbes

• On Thursday 13th June, over 100 members of the Tesco Supply Chain team took part in their Walkathon event, walking 11 miles round the Hertfordshire countryside and raising over £4,000 for CRY. This has become an annual event for the team, raising both fun in aid of and awareness of cardiac health in memory of their colleague and friend, who collapsed and died whilst playing football with the team 15 years ago due to an undiagnosed heart complaint.

InMemoryof Ben Forsyth

• Margaret Strang donated £150.

• Margaret Forsyth sent £240 representing donations collected at the screening weekend in Musselburgh.

• Finnegan’s Wake Pub raised £223.80 from Charity nights and donation box collections.

InMemoryof Joanne Fotheringham

• Made in Ullapool donated £1,000.

InMemoryof Dominic F Geoghegan

• Deirdre Geoghegan donated £150.

InMemoryof Emily Giles

• Francine Fost completed the 12 a Week Challenge 2023 and raised £310.

InMemoryof Steven Gilmour

• Lorraine Gilmour sent £342.50 raised from a Christmas Hamper donation.

InMemoryof Alexander Goodman

• Rosemary Goodman sent donations totalling £1,000, raised through an annual open house day, including handmade Christmas card, cake and raffle sales.

InMemoryof Ashley Goodwin

• Michael Aggleton donated £200.

• Martin Parkinson donated £200.

• Linda Goodwin sent donations totalling £301.36 raised in the following ways; £233.90 from car boot sales, £42.46 from a collection pot in Cafe au Chocolate Tewkesbury and £25 from screening donation’s from the University of Gloucester.

InMemoryof Matthew Gore

• Gary Reeves sent a donation of £1,500 raised from the Cosby Charity Duck Race.

• Natasha Skeffington sent a donation of £2,749.

• Anne Freer donated £100.

• Charley Freeman donated £239.

• Colin Checksfield donated £500.

InMemoryof Robert Gourley

• Margaret Gourley completed the 12 a Week Challenge 2023 and raised £1,182.

Our Fundraisers

InMemoryof Jordan Grant

• Mark Tipping chose CRY as the charity to benefit in respect of his 2023 ‘Tippings Christmas Lights Fundraiser.’ raising £6,507.50.

InMemoryof Adam Green

• Simon Heywood donated £100.

• Janet Bourne sent a donation of £152.18 raised by the Loggerheads Guides, Ashley Brownies and Ashley Rainbows.

• The Sunday Tickle group donated £100.

• Tom Green participated in the CRY Great Cake Bake 2023 and raised £4,896.

InMemoryof Kayleigh R Griffiths

• Haus Restaurant sent a donation of £1,040 raised at a Gala Evening.

InMemoryof Dafydd Gwyn

• Julie Pritchard sent £325 representing donations received from family and friends.

InMemoryof Matthew Hadfield

• Bright Funds Inc sent £988.10, representing donations for Marc Hadfield and his colleagues at VMware, in support of their sponsored walk.

• Diana Hunt sent £126 representing donations received in lieu of floral tributes’, in memory of her father Squadron Leader Garry (Abraham) Garretts.

InMemoryof Ben G Hammond

• The Weald of Kent Ploughing Match Association sent a donation of £500 raised through their annual Ploughing Match.

InMemoryof Danielle Hampson

• Dan, Jake and Imogen Summer completed the Inflatable 15k assault course raising £700.

InMemoryof Kyle Hancock

• Kevin Hodgson sent a donation of £100 from all at Milvill, in memory of Bob Tann.

• Suzie Oldridge donated £100 in memory of Bob Tann.

• Ian and Debbie Hancock sent £1,854.57 from the Hope Valley Young Farmers raised through their Harvest Festival Auction and at an annual Farmhouse Breakfast.

• Ian and Debbie Hancock sent £363 representing donations received in lieu of floral tributes’, in memory of Kyle’s grandmother Jacqueline Mary Alcock.

• The Hathersage Association for the Prosecution of Felons donated £100.

InMemoryof Mark Hancock

• Anne Barber raised £350 from the making and selling of crafts.

InMemoryof Phillippa Harbour

• Jennifer Walker completed the Bath Half Marathon and raised £1,080.

InMemoryof Thomas Hardman

• Margaret Hardman sent donations totalling £2,620 raised from 2 annual cricketing events 2023, held at Heywood Cricket Club.

• Gemma O’Connor chose CRY as the charity to benefit in respect of sponsorship from running the TH96 £345.

• Ashley Spencer took part in the Great North Run 2023 and raised £880.

InMemoryof Jordan Hardwick

• Daniel Flett completed the 12 a Week Challenge 2023 and raised £389.82.

• Daniel Flett sent donations totalling £532 raised from Jordan’s Birthday Event.

InMemoryof Jodie Louise Harries

• Leanne Bond completed the 12 a Week Challenge 2023 and raised £918.87.

• Santander sent through a donation of £836.87.

InMemoryof Jude Harvey

• Trive Financial Services Ltd donated £6,150.78.

• Gary Harvey sent donations totalling £9,640 raised through a Charity Ball.

Our Fundraisers

InMemoryof Richard James Harwood

• Kathleen Dickinson donated £200.

InMemoryof Sarah Hayes

• Eyam Book Barn donated £1,145.

InMemoryof Jonathan Hayman

• The Sid Valley Cycling Club raised £230 through a Christmas raffle.

• Marguerite and Pete Grant raised £100 from the sale of produce on stalls.

• Marion Hayman sent a donation of £350 raised by Stephanie and Fluff Preston along with Gill Crick on stalls.

• Marion Hayman sent donations totalling £2,198.50 raised at the Sidmouth 4 Trigs Challenge.

“This year we were honoured to have Olympian, Jo Pavey MBE starting the 4 Trigs Challenge. Jo counted down, to start the race, and set 104 runners off on the course. This is the second time that Jo has started the event. She is always keen to learn more about the CRY charity and give her support.

The weather was ideal, with mild temperatures, no rain and little wind. 104 competitors set off from Sidmouth’s esplanade at 9.30am on Sunday 4th February. In repetition of the last two years, Samuel Kelly, of Exmouth Harriers, was the first male home in 2:10:46. Ellie Keast, from Sidmouth, was the first woman home, in 2:55:18.

Our Fundraisers

This ‘low-key’ off-road running event covers approximately 28km with an obscene amount of climb involved. Underfoot is mixed terrain, mainly dirt trails, but with some grass and gravel, not to mention steps, tree roots and some drainage gutters on the route, as well as some steep sections of climb and fast descents.

The aim is to visit each of the four Triangulation Pillars around the Sid Valley, with runners choosing their own routes, but they must visit each Trig Point in order (Higher Peak was first this year), taking in the 5 Check points to help taper the route.

Local businesses added their support to the event. Kate Truman of Phyzz Soft Tissue Therapy, kindly provided a post-race massage, for any runners in need, in return for donations to CRY.

A big thank you, must go to the sponsors of the event, Nigel Winchester, of Ian Winchesters and Sons, and Richard King of Kings Garden and Leisure. Also, to the Marshals out on the course, on the finish line, and to the team at the clubhouse providing refreshments.

A special mention must also go to our 11-year-old granddaughter Chloe Frisby, who was there from 7.30am. She helped at registration, then in the kitchen preparing food, waited on tables and cleared up. When we got home after a very long day, she counted the money in the CRY collection boxes. It was so lovely to have her involved in the CRY family and my fundraising event for the second year running.

was raised from entry fees and donations at the event. The 4 Trigs Challenge has now raised a total of £16,806 for the Cardiac Risk in The Young. Thank you to everyone for your generosity.

InMemoryof Toby Hayward-Seers

• Peter Hayward completed the 12 a Week Challenge 2023 and raised £215.

We are delighted with how the event went. £2,203.50

“My 12 A Week Challenge in November 2023 involved three runs: Sloughbottom Parkrun in Norwich, a distance run training session at the University of East Anglia athletics track with my running club Norfolk Gazelles, and an inspirational run across the beach and sand dunes at beautiful Caistor-on-Sea on the Norfolk East Coast, this being the third race in the East Anglia Cross Country League series. I raised £215 for CRY’s wonderful work in memory of my son Toby who died last year as a result of the sudden cardiac arrest he suffered in the closing stages of the 2023 Barcelona Marathon. My congratulations to everyone who took part in this fundraising challenge and a big thank you to all my generous supporters.”

InMemoryof Dean Henderson

• Nichola Dixon-Boak completed Durham Walk 2023 and raised £240.

InMemoryof Matthew Hesmondhalgh

• Carol Allan donated £250.

• The staff at Maelstrom Kitchens & Bedrooms donated £150.

• Paula Hesmondhalgh sent donations totalling £144.40 raised as follows; £84.40 from the sale of crafts at the Garstang Art Centre Christmas Craft Fair and £60 from Julie Richardson through the sale of crocheted hats.

• Paula Hesmondhalgh sent donations totalling £1147.28 raised as follows; £161.50 from a Zumba group through a coffee and cake event, £404.58 raised at a Christmas pop-up shop, £40 from the sale of signed books donated by Dawn Oliver, £70 from Natalie Laver.

• Longridge Golf Club sent donations totalling £3,867.81 from the Gentleman and Lady Captains’ Charity Year fundraising 2023.

• Rebecca Hodges sent a donation of £180 raised from raffle ticket sales for the Tropic Hamper.

• Paula Hesmondhalgh sent £227.50 representing donations received in lieu of floral tributes’, in memory of Audrey Henderson and David Quinney.

• The Garstang Ukulele Group donated £200.

• Each Spring Garstang Running Club hold the Garstang Gallop, a 7 mile run along country roads that Matt often travelled on his bike with friends or when out training for one of his rides. Each year the funds raised go to charity and and this year we were delighted to be nominated & chosen, & so honoured to be invited to give out the richly deserved medals & shields. Team Matt gave a helping hand with the marshalling & saw first hand the effort that goes into both organising & taking on this rather undulating run and raised £905.02.

“Each Spring Garstang Running Club hold the Garstang Gallop, a 7 mile run along country roads that Matt often travelled on his bike with friends or when out training for one of his rides. Each year the funds raised go to charity and this year we were delighted to be nominated & chosen, & so honoured to be invited to give out the richly deserved medals & shields. Team Matt gave a helping hand with the marshalling & saw first hand the effort that goes into both organising & taking on this rather undulating run.

Serendipitous luck scheduled the event on St Patrick’s day, one of Matthew’s favourite days of the year and the event raised an incredible £905.02, he’d raise a celebratory Guinness to that for sure! Huge thanks go to the running club, the runners & the volunteers for raising such an incredible amount & also for a splendid & thoroughly enjoyable event.”

InMemoryof James Hick

• Aiden Hick and his fellow students at The Mirfield Free Grammar School raised £734.44.

InMemoryof Colin Higginson

• Stephen Higginson donated £100.

InMemoryof David Hill

• Mr and Mrs Barrie donated £500.

• Vivisol Gatwick raised £145 from a bake-off event and virtual Christmas card.

• West Galloway u3a donated £240 following a talk from Rodger Hill.

• The Rotary Club of Thornhill and District donated £200 in support of Cycle4David.

• Fiona Harris sent a donation of £100 in respect of a sponsored Charity cycle ride for Cycle4David.

• John Hughes sent a donation of £1,398.53 on behalf

Our Fundraisers

of the Scotland rugby supporters Facebook group ‘Road to France’.

• Dalbeattie High School donated £3,000 in support of Cycle4David, raised by their Charity Committee.

• Stewart Lee sent a donation of £290, representing sponsorship from members and friends of Thornhill and District Rotary Club, to cycle part of the Edinburgh to Dublin with the Cycle4David team.

• The Castle Douglas High School donated £250.

• Dalbeattie and District Rotary donated £500.

• Mark Jardine sent a donation of £1,000.

• Rodger and Lesley Hill sent donations totalling £1,151 in respect of the Cycle4David fundraiser.

“To mark the second anniversary of David Hill’s tragic death, members of David’s family and friends cycled the match ball from Edinburgh to Dublin, for the second playing of the David Hill Memorial Quaich, which took place at Donnybrook Stadium, Dublin on 16th March 2024, between the Dail and Seanad and the Scottish Parliament rugby teams.

“The Cycle4David Team were cheered out of British Gas Murrayfield, following the presentation by Chris Paterson of Scottish Rugby of the match ball to David’s father, Rodger.

“The Cycle4David team then cycled through Edinburgh accompanied by The Rt Hon. Alison Johnstone MSP, Presiding Officer of the Scottish Parliament. They called at the Scottish Parliament where they were greeted by Jamie Greene MSP and many other families who have lost loved ones to Sudden Cardiac Death. Ms Johnstone addressed the group and took time to speak with many of the families individually.

“The Cycle4David Team travelled down through the Borders, through Dumfries and Galloway then across and down through Ireland arriving in Dublin on Friday 15th March. Whilst cycling through Dumfries and Galloway, the Cycle4David team called at 11 secondary schools, to

raise awareness of Sudden Cardiac Death (SCD) and to raise funds and to promote upcoming cardiac screening events in Dumfries. They were joined by local MSP’s Oliver Mundell, Colin Smyth and Finlay Carson at various schools. The team were accompanied with up to 60 young people and their teachers who cycled with them on the different legs through Dumfries and Galloway, at times in the most atrocious of weather.

“An emotional Rodger and Lesley Hill arrived in Dublin on Friday 15th March having completed 322 miles. They were met by delegates from Scottish and Irish Rugby, as well as the respective team captains, along with members of both teams plus friends and family.

“Rodger stated “The kindness and support we have received at every step of the way has been humbling, the reception at the schools was truly amazing. This has been made possible by the love and support we have been shown by so many people. This was a mammoth challenge; I hope David would have been proud of Lesley and I”.

“The teams featured members of Parliament from both respective nations. The game was fiercely contested and took place almost two years to the day that David died suddenly in the same fixture in 2022. The Irish team retained the David Hill Memorial Quaich, generously donated by David’s family, winning the match 17-12.

“To date, the David Hill Memorial Fund has now raised over £65,000 which has allowed David’s family to organise 600 free cardiac screenings in Dumfries on 18th/19th May 2024, 12th/13th April 2025 and 13th/14th September 2025, with more screenings to follow. Additionally, funds from the Cycle4David will be used to offer defibrillators to each secondary school in Dumfries and Galloway.”

Our Fundraisers

InMemoryof Laura Hillier

• Tony and Joan Hillier sent donations totalling £150, £100 from Michael Wreford from the annual pre-Christams sleigh ride and £50 from Carolyn Young following a talk to Shutlanger and Roade Flower Club.

• Tony and Joan Hillier sent donations totalling £330, a donation in lieu of christmas cards and presents £300 and a donation from Mrs P Hemsall £30.

InMemoryof Abby Hills

• White Court School raised £200 from their summer fete.

InMemoryof Joe Hindmarch

• Nicola Hindmarch and Claire Burn completed the 12 a Week Challenge 2023 and raised £180.

InMemoryof Paul Hindmarch

• Janine Patchcott sent £286.70 representing donations received in lieu of floral tributes’, in memory of her father, Richard Rutherford.

InMemoryof Charlie Holden

• Andrea Sweeney sent a donation of £510 from a Acoustic Gig Fundraiser.

“On Friday 29th December, a fundraising acoustic gig was held at The Lancashire Fold to raise funds for CRY in memory of Charlie Holden. The event raised over £1000 in cash donations plus some online donations.”

InMemoryof Shane Holland

• Aspreys donated £6,225.

InMemoryof Stewart Howard

• The Watton and Thetford Inner Wheel Club’s raised £119 in respect of their 100th anniversary.

• Jane Howard sent donations totalling £1,400, raised from the Thetford Christmas lights display and Tesco collection, including a £80 donation from Linda Carter.

• Paula Locke raised £400 from her ebay sales.

• Jane Howard sent a donation of £1,700 raised through a Easter Sunday car boot sale, at Tesco Thetford.

InMemoryof Mark Hudson

• Sean Billington chose CRY as the charity to benefit in respect of sponsorship from his Lands End to John O’Groats walk raising £18,827.28.

InMemoryof Daniel Hughes

• Susanne Avetoom donated £100.

• Simon Hall donated £100.

• David Hughes sent donations totalling £3,682.50.

• David Hughes sent a donation of £3,410 from the Audley Striders festive 5K.

• Christian Faires donated £100.

• Duncan Richardson donated £600 raised from the sales of the Around Audley Calendar.

• David Hughes sent a donation of £3,000 raised from the Terry Conroy and Mickey Thomas evening.

InMemoryof Jon Hughes

• Completed the 12 a Week Challenge 2023.

Our Fundraisers

InMemoryof Christopher Hynd

• Andrew Hynd sent £150 representing donations received in lieu of floral tributes in memory of his mother, Yvonne Brown.

InMemoryof Camilla Irvine

• George Irvine took part in the Great North Run 2023 raising £405.

• Cameron Grant took part in the Great North Run 2023 raising £385.

InMemoryof Ariana Jahangir

• Cerise Joy chose CRY as the charity to benefit in respect of £255 of sponsorship from her Hair Cut.

InMemoryof Gloria W Jeffries

• Beverley Barnes sent £100 representing donations receieved in lieu of floral tributes’, in memory of her mother, Gloria.

InMemoryof Mia A Jennings

• Sharon Heath sent a donation of £218 raised through a raffle at Everybody’s Staff Awards Evening.

• The Bulls Head sent a donation of £110 from a Hamper donation.

• Gawsworth School sent a donation of £500 raised from their Christmas Production.

• The Bulls Head raised £656.20 from their Christmas raffle.

• Matt Finnerty sent a donation of £100 from Shrigley Hall’s Golf Day.

• Tyler Timber Fencing and Contracting donated £100.

• Ashbrook donated £100.

• Café at Higher Farm donated £100 raised from their Tractor Run.

• Williams Auctions donated £500.

• Mandy Smith sent a donation of £102 raised from the Gawsworth Father Christmas Tractor Run.

• Paul Parkinson donated £100.

• Debbie Christopherson sent a donation of £101.

• Richard Downs donated £200.

• Pixel Thermographics Ltd donated £1,000.

• The Pack Horse sent £100 raised through a quiz and collection pot donations.

• Chris Murdock donated £130.

• Claire Hales sent a donation of £163 from the parents of Gawsworth Primary Class of 2014.

• Gareth Henshall sent a donation of £250 from the Prem Predictor Lads.

• Wayne Whylie donated £100.

• Juanita Jackson donated £100.

• Everybody Health & Leisure sent a donation of £13,000 in respect of screening.

• Scott Hulme sent a donation of £1,573 raised through the Bonkers Bingo event.

• Lauren Parker sent donations totalling £1,011.72 raised from her sponsored Skydive.

• Dave Woods sent donations totalling £281 raised from a quiz and bonus ball at the Pack Horse.

• Debbie Christopherson participated in the CRY Great Cake Bake 2023 raising £431.

• Tracy Poole participated in the CRY Great Cake Bake 2023 raising £315.

• Ian Parker participated in the CRY Great Cake Bake 2023 raising £100.

• Margaret Jennings completed the 12 a Week

Challenge 2023 raising £130.

• Edward and Georgina Palmer completed the 12 a Week Challenge 2023 raising £329.

• Vicky Jackson took part in the Great North Run 2023 raising £590.

• Jack Talbot took part in the Great North Run 2023 raising £675.

• Higherfarm Equine sent donations totalling £1,211 raised from the New Years Eve Tractor Run.

“In just one week, an amazing team from Higher Farm Equine and Ashbrook’s, organised by Kevin Woodward a tractor run. This saw nearly 50 vehicles from tractors, vintage vehicles to lorries leaving Higher Farm Byley through Holmeschapel, Macclesfield (Mia’s home town), Northwich and back to Higher Farm.

“Thanks to all involved in pulling off an amazing event that has raised over £2500 in Mia’s memory for CRY.”

InMemoryof Stevie Jivani

• Margaret Bailey donated £200.

InMemoryof Bryn Jones

• Mair Jones participated in the CRY Great Cake Bake 2023 raising £1,122.

• The Cottesloe School Sixth Form donated £111 from a Christmas Jumper Day.

Our Fundraisers

InMemoryof Ethan Jones

• Michael Wagstaff donated £250.

InMemoryof Aiden Joyce

• Stacey McFarlane donated £100.

• Jack Urquhart sent donations totalling £6,200 raised from the Alloa Half Marathon.

• The Forefront Stage School sent a donation of £1,000, raised from their Charity collection, during their Aladdin production 2024.

• Linda Walsh donated £150.

• Steven Anderson sent a donation of £3,380 from all of Aiden’s friends who raised money and ran the Alloa half marathon.

“We are so grateful to Ugym Tillicoultry, Aidens police colleagues at Police Scotland and his friends who have donated £10,135 from money raised running the Alloa Half Marathon.”

InMemoryof Kieran Joyce

• Weobley High School chose CRY as the charity to benefit in respect of sponsorship from their 7-11 Challenge and other fundraising raising £447.

• Andrea Joyce participated in the CRY Great Cake Bake 2023 raising £100.

Our Fundraisers

InMemoryof Natasha Hannah Kay

• Alexis Kay chose CRY as the charity to benefit in respect of £895 worth of sponsorship from her Skydive.

“My name is Alexis and on the 11th of August 2023, I turned 21. This birthday came with a lot of special meaning close to my heart for myself and my family. For some context, in 2016, my big sister Natasha passed away from a sudden cardiac arrest on July 6th. She was 20. At the time of her passing I was only 13 and this year I’ve reached the age of 21 that she never got to, so in her memory I wanted to spend this birthday making a special memory as she spent her short life filled creating with those she loved. Last year when I turned 20 I began fundraising towards a charity skydive for C-R-Y in her memory and this summer I got to complete my goal at 13,000ft in the sky after raising £895.00, a total that went above and beyond my expectations. This experience has left me with an incredible memory and a birthday I will never forget and am proud to have created for myself and Natasha.”

InMemoryof Jennifer Kerwood

• Anthony Parsons donated £100.

InMemoryof Andrew Key

• Ann-Marie Key donated £1,250 from the sale of home made mince pie’s.

• Ann-Marie Key sent donations totalling £936.50 from the family and friends of Peter Marsden in lieu of presents for his 60th birthday.

• Jo Stanley and family donated £150.

• Longridge Golf Club sent donations totalling £7,852.82 from the Gentleman and Lady Captains’ Charity Year fundraising 2023.

• Longridge High School raised £300 through their Christmas concert.

• Paul Crompton sent a donation of £160 from Andy’s work colleagues.

• Greg Key sent donations totalling £2,100 raised through an Afternoon Tea event at the local Civic Hall.

“A community came together to raise more than £2,000 in memory of a much-loved dad, son, fiancé and brother.

“Nearly 140 people attended a mouth-watering afternoon tea and their donations raised £2,100 for Andrew Key’s Cardiac Risk in the Young Memorial Fund.

“Tickets for the event, held in Longridge’s Civic Hall on 14th April, were snapped up quickly and attendees were treated to a selection of finger sandwiches, a couple of savoury bites and copious amounts of tea or coffee.

“These were followed by a range of delicious sweet treats, with cake stands adorned with mini strawberry meringues, chocolate brownies, lemon drizzle cake, vanilla slices, mini chocolate cookies, raspberry jellies and scones with jam and clotted cream.

“The guests were entertained during their meal by local pianist Peter Bennett.

“One of those in attendance was Judy Kitching, who came along with her daughter, daughter-in-law and three nieces.

“She said: “It’s been an absolutely wonderful afternoon. The food was delicious, the musician was excellent, the volunteers worked so hard and most importantly it’s raised a fantastic amount of money for such a worthy cause.”

“In addition to the ticket cost, guests dipped their hands into their pockets on the day and took part in guess the number competition and a raffle.

“Around 40 volunteers helped on the day, many of whom were family members and friends of Andrew, who died of Sudden Arrhythmic Death Syndrome in January 2021 at the age of just 31.

“Local suppliers also played their part, with generous donations from Rowles Butchers and Little Town Farm Shop.”

InMemoryof Rachel Kilbourne

• Helen Fleming sent a donation of £669 raised from a Christmas sing-a-long, through the sale of resfreshments and a raffle.

InMemoryof Olly J King

• Sue Amobi donated £200.

InMemoryof Ross Klein

• Stacey Klein sent £230.89 representing donations received in lieu of floral tributes’, in memory of her husband, Ross.

InMemoryof Judith Krish

• Jonathan Krish donated £250.

InMemoryof Rishi Kukar

• Parvin Kukar donated £250.

• Lazwanti Nagpal donated £100.

Our Fundraisers

InMemoryof Jannik Lam

• Elizabeth Talbot donated £150 in lieu of payment for providing personal training.

InMemoryof Michael Lane

• Ruth Cain sent donations totalling £155 from Peter, Marija, Johanne, Janet, Ken, Joyce and Sue.

• David Thorpe sent a donation of £625 raised through an Annual Gentleman’s Dinner and Auction.

InMemoryof William Lane

• Richard Berkley-Matthews donated £100.

InMemoryof Carli Lansley

• Karl Lansley sent 3 donations totalling £23,000.

• Maria Hadden donated £100 in memory of Ben Kirkham.

InMemoryof George Lavery

• UK Power Networks Service Delivery Centre raised £449.39 from a cake bake and tuck shop.

• Holly Greer participated in the CRY Great Cake Bake 2023 and raised £375.

• Ian Lipman participated in the CRY Great Cake Bake 2023 and raised £251.52.

• The staff at the Diocese of St Edmundsbury and Ipswich raised £279.10 from their Great Cake Bake.

“The Great Cake Bake was held on Friday 1st December 2023 at Ipswich Borough Council with an assortment of

Our Fundraisers

cakes and savouries. We had the Mayor of Ipswich, Lynne Mortimer, attend our cake sale to show her support for CRY. George’s mum Marie Lipman also attended our event. The sale of cakes raised a total of £400 including £25 online donations.”

InMemoryof Mark Leach

• Kirsty Leach completed the Inflatable 5K and Leeds 10K and raised £115.

InMemoryof Kelly Lee

• Joshua Petch donated £200.

InMemoryof Miriam Kate Lee

• Morrisons Supermarket sent a Match Giving donation of £671 in support of the Fashion Show fundraiser.

• Nicola Lee sent £166 from donations received at a screening day.

• Nicola Lee sent a donation of £200 raised through a Tombola at Morrisons, Kettering.

• Sam Tran donated £1,000.

• Nicola Lee sent a donation of £671 raised through a fashion show and bucket collection at Morrisons.

• Julia Welch donated £150.

• Rita Kellett sent a donation of £100 on behalf of L&W UK.

InMemoryof Thomas Lee-Lane

• Clifford Lane sent £300 representing donations received in lieu of floral tributes’, in memory of his son, Thomas.

InMemoryof Robert W Levett

• Lee Levett sent £1,160 representing donations received in lieu of floral tributes’, in memory of his father, Robert.

InMemoryof Adam Lewis

• Kim Lewis sent a donation of £10,000.

InMemoryof Jacob K Lister

• Susan Ahmad donated £100.

InMemoryof Samuel J Little

• Katherine Smith donated £100.

InMemoryof Myra J Locock

• Norman Locock sent a donation of £185 from the quiz at South Hill Village Hall, raised through entry fees and sundry donations.

InMemoryof Jamie Loncaster

• Rich Foster and the Swanland Ducks Cycling Club completed the Seascale to Whitby Coast to Coast Cycle ride and raised £621.

• Phillip Mackay and the Swanland Ducks Cycling Club

completed the Seascale to Whitby Coast to Coast Cycle ride raising £595.

• Swanland Parish Church donated £158.09.

• Peter and Susan Loncaster donated £250.

InMemoryof Martyn Luckett

• The Meshaw Young Farmers raised £4,000.

• Sandra Pickard donated £100.

• Brenda Luckett sent a donation of £13,000.

InMemoryof Matthew J Luke

• Carole Luke sent donations totalling £2,513.42 from Matty’s 30th birthday fundraisers,this included a rock choir concert and a party night with ticket sales, raffles and tombola stalls.

• James Luke sent a donation of £120 raised from Matty’s 30th birthday fundraisers,from ticket sales, raffles, tombola stalls and face painting.

InMemoryof Calum Mackintosh

• GAP Group Hire Solutions donated £1,000.

• Ann Mackintosh sent £1,412.08 representing donations received in lieu of floral tributes’, in memory of her son, Calum.

• Sorley Inall sent a donation of £276.76 on behalf of all the members and supporters of Glasgow University Shinty Club.

• Norma and all at the Cairn raised £200 from a bottle raffle.

• The pupils and staff at Grantown Grammar School raised £528.94.

Our Fundraisers

InMemoryof Connor J Mackness

• Simon Robinson donated £100.

• Pure Heating Solutions chose CRY in respect of sponsorship from their fundraiser raising £100.

InMemoryof Andrew Macleod

• Norma Maciver donated £100.

InMemoryof Jack Maddams

• Ruddington Village FC donated £784.87.

InMemoryof Marie Manhire-Clark

• James Manhire took part in the Great North Run 2023 and raised £1,789.

InMemoryof James Slim Markham

• The Northwood 41 Club donated £850 raised from their Santa Sleigh Collection 2022.

• The Northwood 41 Club donated £900 from their Santa Sleigh Collection 2023.

Our Fundraisers

InMemoryof John Marshall

• The Association of Electoral Administrators raised £3,000 through a raffle at their annual conference.

• Maureen Marshall sent £146.98 raised from Edge Hill collection boxes.

• The SKEM Athletic Football Competition raised £2,100.

InMemoryof Dean Mason

• Nigel and Wendy Towns donated £100 in respect of Catrin’s 60th Birthday.

• Ann and Richard Cole donated £100 in respect of Catrin’s 60th Birthday.

• Gwenfair Mason sent donations totalling £11,500.

• Matthew and Heather Jenkins sent a donation of £1,500 raised by Cwmrhydneuadd Golf Club during their year of fundraising.

InMemoryof John McCall

• Malcolm and Janette Pollard donated £200.

InMemoryof Paul McGlynn

• Patsy Gilthorpe sent donations totalling £305 from family and friends.

InMemoryof Pat McLaughlan

• Morrisons Foundation sent a Match Giving donation of £1,000 in respect of Michael McLaughlan’s fundraising.

InMemoryof Mary McMillan

• Carmel Tait sent £290.40 representing donations received in lieu of floral tributes’, in memory of her mother, Mary.

InMemoryof Owen D McMillan

• Elizabeth McMillan sent a donation of £260 raised from a Harry Potter display evening.

• Jolene McMillan completed the 12 a Week Challenge 2023 and raised £1,655.

InMemoryof Simon McNamara

• Jon McNamara completed the London to Brighton Bike Ride and raised £770.

InMemoryof Lauren Rose Mead

• Maria Mead participated in the CRY Great Cake Bake 2023 and raised £435.

InMemoryof Liam Meadows

• Julie Meadows sent £355 representing donations received in lieu of floral tributes’, in memory of her brother-inlaw, Bill Meadows.

InMemoryof Luke Meekings

• Sue Meekings sent donations totalling £3,210 raised through various events and donations.

Our Fundraisers

InMemoryof Richard Merriman

• Nicola Merriman sent a donation of £150 raised from calendar sales by Nicky’s Nordic group, with thanks to Jeanette who printed the calendar.

• Nicola Merriman sent a donation of £410 raised through a cake sale.

“Our 1st cake sale after the pandemic was a big success, it’s also our new home that we moved into over the pandemic, so was special to welcome all our new friends to see what we do for CRY in memory of our son Richard .

“We all had a great day. My family and friends were so kind and supportive, they donated cakes , and bought boxes of cakes and raffle tickets , and I baked all week such fun!! We raised an amazing £500 for CRY. Thank you to all who supported us.

“A big thank you to the Hinton Skydiving Center for buying the rest of my cakes, raising a further £63. And to Shaena, my Pilates teacher, who constantly advertised my cake sale and raised so much awareness. The support we received was amazing!!”

InMemoryof John Millar

• Kirsty Millar donated £115 raised from their Halloween fundraiser.

• Kirsty Millar donated £210.

InMemoryof Nelson Monhon

• Liam Burnell chose CRY as the charity to benefit in respect of sponsorship from completing dry January and the Big Half Marathon raising £385.

InMemoryof Ben Morgan

• Ravens Wood School raised £70.09.

InMemoryof Owen Morris

• Roger Morris sent a donation of £2,409.11 raised through a Charity Bike Ride.

• Judith Miller sent a donation of £684.05 raised from a cake sale.

• Llandybie Parish Church donated £340 from their music concert profits.

InMemoryof Paige Moth

• Liam Moth completed various running events. Rob and the team at The Onslow Arms in Lockwood helped him raise funds. £954.78

InMemoryof Harry Mullington

• Lisa Mullington completed the 12 a Week Challenge 2023 raising £3,993.

InMemoryof Andrew Murch

• Alastair Cruickshank donated £2,000.

• Bill Bracewell donated £140.

• Chris Laird donated £100.

InMemoryof James Murgatroyd

• Mickleover 95 FC raised £125 from their Charity Christmas raffle.

• Gary and Rose sent a donation of £3,000.

Our Fundraisers

InMemoryof Lizzie Nee

• Catherine Nee donated £200.

InMemoryof Andrew Neville

• Mike and Sue Neville sent £210 representing donations received in lieu of gifts on the occasion of their Diamond Wedding Celebration.

InMemoryof Jennifer Anne Newton

• Emma Gold completed the 12 a Week Challenge 2023 and raised £380.

InMemoryof Clarissa Nicholls

• The Trinity Hall Charity Committee nominated CRY for a donation of £500 in memory of Clarissa.

• Munich RE sent a Match Giving donation of £125 in support of the City Showtunes Orchestra Charity Concert.

• The City Showtunes Orchestra sent £849.50 raised through donations received at their Christmas concert.

• Helen Jansen sent a donation of £123 from St Mary’s School.

• Martin Muers donated £100.

• The C.A. Redfern Charitable Foundation donated £5,000.

InMemoryof Muriel Nicholson

• Carl Bates completed the Lakesman Half Ironman and raised £1,050.

InMemoryof Richard Northedge

• Pat and Derek Northedge donated £150.

InMemoryof Robert Nugent

• Owen Nicks took part in the Great North Run 2023 raising £610.

InMemoryof Alfie Nunn

• Nicky Reader donated £100.

InMemoryof Ben O’Connell

• The Wantage Rock Choir donated £144.22.

InMemoryof Andrew Oliver

• Kirk Elliot chose CRY as the charity to benefit in respect of sponsorship from his Charity Haircut raising £270.

• Christopher Schroeter chose CRY as the charity to benefit in respect of sponsorship from completing the Paras Ten Tab and Great North Run raising £745.

• Trish Brown and Rachel Hughes completed a 10,000 ft skydive at Peterlee Airfield raising £1,780.

InMemoryof Clayton Olson

• Sutton Valence School raised £247.93.

• Amber Rains donated £100.

• Caroline Morris completed the 12 a Week Challenge 2023 and raised £601.

InMemoryof Amelia M Osborne

• Cheviot Farming donated £1,000 following a talk by Andrew Osborne.

• The McKie family sent a donation of £500 following Andrew Osborne’s ‘Row for Amy’ talk.

• The Royal Yorkshire Yacht Club sent a donation of £450 following a talk from Andrew Osborne.

InMemoryof Gregory Palmer

• Janet Palmer sent £210 in commemoration of the 21st anniversary of Gregory’s death.

InMemoryof Sam Parkinson

• The friends of Sam and Betty donated £700.

InMemoryof Jay C Patel

• Usha Patel donated £100.

InMemoryof Kevin Paterson

• Patricia Toft sent a donation of £100 in lieu of posting Christmas cards and in memory of Kevin’s birthday.

• Patricia Toft completed Durham Walk 2023 and raised £150.

InMemoryof Andrew Patterson

• Alex Youngman donated £125.

Our Fundraisers

InMemoryof Jenni & David Paul

• Liberton Primary School donated £150.

InMemoryof William Pawson

• Sophie Gates sent a donation of £600 raised from calendar sales.

InMemoryof Matthew Peace

• Anne Peace sent £185 representing donations received in lieu of floral tributes’, in memory of her husband, Harry.

InMemoryof Ben J Peters

• Fulkers Bailey Russell sent a Match Giving donation of £5,000.

InMemoryof Tom Petley

• Penguin Random House raised £200.

InMemoryof Duncan Andrew Phillips

• Mumbles Rangers Ladies chose CRY as the charity to benefit from their Pure Football Ladies Cup fundraising £379.

InMemoryof Jake Anthony Pickford

• Gaye Pickford sent donations totalling £2,520.13 raised as follows; £2388.50 from Jakes Christmas Charity Night, £20 from Kim and Lisa in lieu of Christmas cards, £30 from Ann Davies and family in lieu of Christmas Cards, £10 donation from

Our Fundraisers

Terry (Rhymney), £25 from a raffle, £16.63 from a collection box and £30 representing a family donation.

InMemoryof James Pilfold

• SearchFlow Ltd chose CRY as the charity to benefit from their fundraising activities raising £2,552.

InMemoryof John Pirie

• Jodie McShane sent a donation of £250 from a monthly bonus ball fundraiser.

• Mhairi Glover sent £2,564.75 representing donations received in lieu of floral tributes’, in memory of her brother, Colin Angus.

• Scottish Sea Farms, Heart of the Community donated £500, with Kirsty Brown and Kimberley Izdebski nominating CRY.

• Siobhan Pirie sent donations totalling £12,314.71 raised through an online auction.

• EnQuest Sullom Voe Oil Terminal donated £2,950.

InMemoryof Alessandro Pomfret

• Stephen and Nadia Pomfret donated £250.

• Stephen Pomfret chose CRY as the charity to benefit in respect of sponsorship from completing ‘Sail for Ally’ raising £3,699.71.

InMemoryof Richard Ponting

• Rita Ponting sent a donation of £100 raised from a Christmas village party.

InMemoryof Gary Pope

• David and Leisa Simmons of The Thatched Inn, Hassocks sent a donation of £245, from the proceeds of their Christmas Raffle held on their Elvis Night.

“£240 was donated by David and Lisa Simmonds of the Thatched Inn, Hassocks, through holding raffles on behalf of CRY in memory of Gary at their two ‘Elvis nights’ just before Christmas. This has been an annual event there for several years, regularly fundraising for CRY.”

InMemoryof Alan Preedy

• Rachel Mealing took part in the Great North Run 2023 raising £447.

InMemoryof Rory Prettyjohns & Harrison Prettyjohns

• Rod and Sarah Prettyjohns sent £101.76 representing donations received in lieu of floral tributes’, in memory of Rory and his younger brother Harrison.

InMemoryof Alden Price

• Foundation Personnel climbed Mount Snowdon in support of CRY and raised £1,834.20.

InMemoryof Olivia Raby

• Tracey Raby-Barton sent £170 representing donations received in lieu of floral tributes’, in memory of Olivia’s grandad, Kevin.

InMemoryof Ben Ramsay

• Sarah Gilder donated £100.

InMemoryof Anthony James Rankin

• Sarah Gould sent a donation of £1,040 raised by Buddies4Fitness members, through hosting a Christmas disco and raffle.

InMemoryof Catherine Roberts

• Jessica Wooley took part in the Great North Run 2023 raising £513.

InMemoryof James Roberts

• Ann Doyle donated £100.

InMemoryof Evan Robertson

• Tom Stimson donated £100.

• Chloe Robertson donated £100 in memory of Evan’s birthday.

InMemoryof Amber Robinson

• ALTIGA Limited donated £300.

InMemoryof Stephen Rogers

• Deborah Rogers sent a donation of £200 raised from a Charity Boxing Match.

• Jonathan Muir took part in the Great North Run 2023 and raised £640.

Our Fundraisers

InMemoryof Jamie-Leigh Rose

• DNATA donated £265.81 from their Christmas raffle.

InMemoryof Hamish Ross

• Niamh Ross sent a donation of £550 raised from calendar sales.

• Tracey Sutherland donated £301.65.

• Alison and Tony Atkins donated £100.

InMemoryof Kevin Rowan

• Steve Wootten donated £100.

• Miles Scott donated £100.

• John Underwood donated £100.

• Keith Mitchell donated £100.

• Kathleen Cook donated £100.

InMemoryof Robert Rowan

• Robert Rutter donated £100.

• Suzanne Rowan participated in the CRY Great Cake Bake 2023 and raised £900.

InMemoryof Adam Rowbottom

• Debbie Thompson sent a donation of £500 in memory of Adam and his mum, Ulrike.

Our Fundraisers

InMemoryof Ben Sandison

• James Lyons completed the Heart of London Bridges Walk and Hackney Half Marathon and raised £1,908.

InMemoryof Kyle Say

• Tonia Say donated £100.

InMemoryof Mike Scott

• Marje Scott donated £100 in memory of Mike’s birthday.

• Marjorie and Allan Scott completed Durham Walk 2023 and raised £120.

InMemoryof Tracey Dawn Sendell

• Dee Ambler sent a donation of £763.07 from a Christmas fundraiser.

InMemoryof Paul Senior

• The Blue Grass Purple Cow nursery raised £400.

InMemoryof Edwin Shackleton

• Marcia Shackleton sent £120 representing donations received in lieu of floral tributes’, in memory of her husband, Edwin.

InMemoryof Adam Shaw

• Tasha Davies completed the 12 a Week Challenge 2023 and raised £1,235.

InMemoryof Carl D Shenton

• The Dovebank Primary School catering and lunchtime staff donated £100 in lieu of Christmas cards and a secret santa.

InMemoryof Wilson Shepherd

• Lesley Mease donated £3,500.

• Jane Keith donated £100.

• Tim Shepherd donated £3,500.

• Laura Lister completed the 12 a Week Challenge 2023 and raised £285.

• Isabella Wright completed the 12 a Week Challenge 2023 and raised £365.

• Angela Butterfield completed the 12 a Week Challenge 2023 raising £225.

InMemoryof Paul Sheridan

• Morag Sheridan sent £209.25 representing screening donations.

• Sara Sheridan completed ‘Pedal for Paul’ - 190 mile solo bike ride and raised £1334.

“It was my 5 year old nephew who inspired me to do pedal for Paul in May this year – a solo charity cycle ride 191 miles from Buxton in the Peak District to Richmond Surrey, in one weekend. In 2018 he, and his 11 friends from nursery cycled 12 miles to raise money for Cardiac Risk in the Young (CRY), in memory of my brother Paul, his Daddy. 2019 marks 5 years since Paul died, and what would have been his 40th birthday in November, so after seeing my nephew cycle all that way with his friends, I decided to take on my own Pedal for Paul challenge. Before that day, I had never cycled longer than 3 miles but taking the 191 mile

solo cycle route from my brother’s house in Buxton to his memorial tree in Richmond Park felt like the right way to commemorate and celebrate his 40th birthday.

“Paul died suddenly 5 years ago whilst cycling home from work from ARVC, a heart condition which I had never heard of before. He was a healthy young man, a new Dad and an awesome older brother. Sport had always been a really big passion in his life – he’d run 7 marathons from London to Berlin, Dublin and New York, and had cycled from London to Paris to raise money for The Wisdom Hospice in Kent . After he died, when we learnt more about sudden cardiac death, we wanted to raise money in his memory to make something positive about losing him so young. It was my brother’s wife who initiated fundraising for free heart screening days in Buxton, and since so many friends and family have contributed. I ran Brighton Marathon in 2015 and London Marathon in 2016. Both of them were incredibly hard (I’m not a natural runner), but neither of them prepared me for how hard 191 miles would be. Along the cycle route, I had a lot of time to think (about 8 hours a day!), and I couldn’t stop thinking about how crazy my brother was, to love long distance endurance running and cycling. We were very close as siblings, but also very different as people. A fair few swear words were exchanged on the road.

“My brother’s wife and son set me off from his house on Friday morning and soon I was on my way. At the end of each day my fiancé and 2 bulldogs would scoop me up to a local pub for dinner and sleep. And at the end, my whole family came to meet me at my brother’s memorial tree. Coupled with messages of encouragement on social media from friends, I was spurred on to just keep cycling, even when my body didn’t want to.

“After I’d finished, a lot of people would ask how it went, but it’s very difficult to describe. At times, the ride was really lovely, in the beautiful Buxton hills, at times it was emotional, when kind strangers would donate cash along the way after hearing my brother’s story, a lot of the time, it was exhausting, and at times it was a bit hairy –torrential rain in the Chiltern’s at the end of day two.

“It was a genuine challenge, I feel very proud to have done it, though I’m not sure I could do it again. Together we raised nearly £2,000 which will go towards a CRY

screening day in Buxton, run by my brother’s wife. That’s what it has all been about – raising money in my brother’s memory, in the hope that maybe, together we can stop this happening to another sister.

“The ride reminded me that you never move on from grief, but you learn to live with it. In doing this challenge, I felt like my brother was still with me, teaching me, pushing me on. And so to you Paul, happy 40th birthday big brother.”

InMemoryof Jack Sheriff

• Elizabeth Sheriff donated £200.

InMemoryof Evan J Shonfield

• Peter and Sharon Shonfield donated £200.

InMemoryof Madeline Siddall

• Kate Pawlitta took part in the Great North Run 2023 raising £550.

InMemoryof Nicholas Sketchley

• Scott Jones sent a donation of £1,700 raised from an Annual Memorial Golf Day.

InMemoryof Ben Smith

• Paul Jackson chose CRY as the charity to benefit in respect of sponsorship from the Ben Smith Rugby Memorial Match raising £3,248.

Our Fundraisers

InMemoryof Ben Smith

• Sally Woods donated £100.

• Ian Thorne donated £1,000.

• Orde Summers donated £1,500.

InMemoryof Bill Smith

• Guy Murphy and RUMS chose CRY as the charity to benefit in respect of a £305 sponsorship from ‘RUMS Rugby Bill Smith’s Cup’.

InMemoryof Hannah Smith

• Kevin Troy sent a donation of £100.

InMemoryof Jared Smith

• Jordan Addis donated £100.

• Dale Jones donated £100.

InMemoryof Michelle Smith

• Stella Owens sent £217.40 representing donations received in lieu of floral tributes’, in memory of her mother, Michelle.

InMemoryof Robert Daniel Smith

• Linda Smith sent £304.65 representing donations received in lieu of floral tributes’, in memory of Jeffery Scott.

• Linda Smith sent a donation of £251.96 raised from a collection pot from ECO shop, Langley Park.

• Linda Smith sent donations totalling £150 raised from a Tombola and Car Boot Sale.

InMemoryof Phillip Standing

• Sue Fisher sent donations totalling £2,100.

• The staff at Mountbatten School sent a donation of £330.91.

• Sue Fisher completed the 12 a Week Challenge 2023 and raised £160.

InMemoryof Callum Staple-Hughes

• The pupils at Wellacre Academy raised £219.91 through their Christmas Fundraiser.

• Louise Staple-Hughes sent £550 raised from the sale of reindeer food and donations from a screening day.

InMemoryof Harry Starrett

• Mr and Mrs Starrett donated £100 in memory of their grandson, Harry.

InMemoryof Jono Stead

• David Stead sent a donation of £150.

• Trevor Curtis donated £300.

• The Blue Bell, Nafferton donated £336 from the proceeds of their New Years Eve raffle.

• David Stead sent a donation of £13,925 from his fundraising event, made through ticket sales, an auction and a raffle.

• David Stead participated in the CRY Great Cake Bake 2023 and raised £377.72.

Our Fundraisers

InMemoryof Paul Stephen

• Laura Stephen and a big group of Paul’s friends chose CRY as the chairty to benefit in respect of sponsorship from their fundraising and their movember event raising £13,160.46.

InMemoryof Victoria Stockton

• Will Stockton chose CRY as the charity to benefit from his sponsored head shave raising £2,554.79.

InMemoryof David Styles

• Michael Styles donated £200.

InMemoryof Eileen M Sudall

• Rosemary Cornwell sent £120.28 representing donations received in lieu of floral tributes’, in memory of her mother, Eileen.

InMemoryof Kirsty Tait

• Dan Tait, Daniel Kiernan, Jamie Walker, Nathan Kiernan and Mike Kiernan completed the ‘Teachers 3 Peaks Challenge’ raising £985.46.

InMemoryof Ivy Taylor

• Katie Harbord took part in the Great North Run 2023 raising £868.

InMemoryof Zoe Teale

• The Old Swinford Hospital School raised

£1,401.56 at a CRY screening day.

InMemoryof Evan Thomas

• Debbie Riches donated £185 raised from her Charity abseil.

“I’ve recently qualified as a Nursing Associate at Norfolk and Norwich University hospital. I have worked with a clinical educator/ deputy sister who suddenly lost her son three years ago.

“I’m a big fan of abseiling so thought I’d put my passion to use by raising money for charity. I knew my work colleague has done fundraising for CRY in remembrance of her son and so I wanted to help the charity too.”

InMemoryof Jack Thomas

• June Thomas sent a donation of £289.70.

• Tracey Davies donated £100 in memory of Mair and Ronald Davies.

• The Caerphilly Ladies Choir donated £266 raised from their Christmas Concert.

InMemoryof Oliver Thompson

• Mr and Mrs Hodgson donated £300.

• Graham Thompson donated £100.

InMemoryof Michael Thoms

• Sandra Thoms donated £100.

InMemoryof Ryan Tilley

• Dave Tilley sent £415 representing donations received in lieu of floral

Our Fundraisers

tributes’, in memory of his wife, Suna.

• Charles Scholefield donated £500.

• Dave Tilley sent donations totalling £210.32, in respect of screening donations received £191.86 and a collection pot from the Groby Ex-Servicemen’s Club £18.46.

• Ian Allen completed the IronMan Challenge raising £5,782.66.

InMemoryof Daniel Torrance

• Ann Torrance donated £100.

InMemoryof Isabelle Tudisca

• Della and Leo Tudisca sent a donation of £5,000.

InMemoryof Hannah Turberville

• Aphra-Lily Middleton completed the Windsor Half Marathon raising £597.

• Holly Townson completed the Windsor Half Marathon raising £615.59.

InMemoryof Thomas Vallans

• Joanne Vallans completed the 12 a Week Challenge 2023 and raised £2,115.

InMemoryof Chloe Waddell

• Fiona Waddell sent £100 representing donations received in lieu of floral tributes’, in memory of Lilias Waddell.

• Altrincham Grammar School for Girls raised £394.50 through a Christmas Jumper Day.

InMemoryof Benjamin Walker

• The Woolpack Inn Islip donated £1,191 raised from their Support Local Christmas Raffle.

InMemoryof David James Wallace

• Fiona Wallace completed Durham Walk 2023 and raised £160.

InMemoryof Matthew Wallbank

• Lesley and Steven Wallbank sent donations totalling £100 from friends and family.

InMemoryof Neil Ward

• Elaine Ward sent donations totalling £269.80 raised as follows; £200 from the Chantry Masonic Lodge, £30 from Richard and Elizabeth Smith and £39.80 from the Derbyshire WI for recycling.

• Elaine Ward sent donations totalling £560 raised as follows; £200 from a coffee morning at Eckington Rotary, £50 from a talk at Abbeydale Rotary, £180 from Christmas Wreaths made by Kathryn Bullock, £50 from a Sweetie Tree workshop, £20 from Chimpmanageme.

• Elaine Ward sent donations totalling £1,571 raised in the following ways; £1,331 from a gig, £25 from the Alfreton Inner Wheel, £65 from Eckington WI, £100 from King Egbert Masonic Lodge and £50 from the Rotary Club of Bolsolver.

InMemoryof George Watson

• Heidi Donohue completed the Ramathon 2023 and raised £305.

• Callum Antrobus completed the Ramathon 2023 and

raised £1,195.

InMemoryof Lily Webster

• Graeme Train completed the Lands End to John O’Groates cycle ride £4,498.22.

InMemoryof Laura West

• Kathryn Straden sent a donation of £801 raised from an Advent Raffle hosted at Radial UK.

InMemoryof Jessica Whalley

• Manor House Stables chose CRY as the charity to benefit from their donation £1,290.

InMemoryof Kay Wilson

• Kelly Wilson took part in the Great North Run 2023 £725.

InMemoryof David White

• Stuart Cairns sent a donation of £304.63 from the Freemasons of Northumberland.

• Lisa Steel participated in the CRY Great Cake Bake 2023 and raised £103.30.

InMemoryof Joanne C White

• MediaLab selected CRY to receive a donation of £1,000 following a nomination, on behalf of a colleague, Ollie White.

Our Fundraisers

InMemoryof Stevie Wiggins

• The Heartfelt Group held a Tombola at Cottam Christmas Fair which raised £200.

• The Heartfelt Group sent a donation of £200 from the Silver Fox Bingo Club.

“I was recently contacted by the Silver Fox Bingo club in Leyland who had heard about Heartfelts quest to raise awareness and fundraise for screenings, I was invited to go along and tell them a little bit about our group and accept a cheque for £200. This is an amazing amount from a small group who have raised over £5000 in 2023 for charity. After receiving the cheque I was then given another donation of £20 by a lovely lady member.

“Our thanks to them all for this very generous donation.

• Fulwood Methodist Church donated £1,000.

• The Heartfelt Group received a donation of £500 from the Dunbia Group.

“CRY and the Heartfelt Group have been chosen by Dunbia Company in Preston to be supported as one of their charities of the year. After attending a meeting with Rachel Lawson and Shirley Hayes we were presented with a cheque for £500 to be added to our screening fund in the name of Stevie Wiggins. This is an exciting time for us and the team at Dunbia who are all wanting to

Our Fundraisers

get going and help raise awareness and funds for CRY we are extremely grateful for their time and efforts and look forward to a great years collaboration with them. This will enable us to possibly hold an extra screening event in the Preston area.”

• Barbara Maddock raised £103 in memory of her grandson Michael Lees-Maddock.

InMemoryof Chris Williamson

• Ryan Franklin took part in the Great North Run 2023 and raised £746.

InMemoryof Barrie Wilkinson

• Kate Hoy sent a donation of £100 in memory of Barrie and Jennie.

InMemoryof Jack Wilson

• The Nidderdale Community Orchestra donated £150 from their concert profits.

InMemoryof Nicola Jane Woodward

• Ben Woodward chose CRY as the charity to benefit in respect of sponsorship from completing the Thames Marathon and raising £2,517.51.

“In August 2023 I took part in the Thames Marathon, an endurance swimming marathon in the River Thames from Henley to Marlow, completing the distance in under 4 hours. The swim, which covers a beautiful 13km stretch of the River Thames has become one of open water swimming’s most prestigious marathon swims and is completed by around 500 swimmers each year.

“I was delighted to dedicate the swim to raising £2,518 for CRY and in memory of Nicola Woodward, my

mother, who passed away aged 29 from hypertrophic cardiomyopathy. As someone who has been grateful for regular cardiac screening since birth, I admire the work that CRY do to help with early detection of life threatening diseases and support for affected families.

“The swim starts at 7am, an amazing time to be in the water with the sun still rising and surrounded by wildlife, with 3 ‘feeding stations’ throughout and an opportunity for a quick pitstop with my family and friends who walked the distance alongside.”

InMemoryof Sam Wright

• Neil Sullivan donated £100.

• Kevin Wright donated £160.

InMemoryof Ron & Amy

• Burnsall Associates donated £2,000 in memory of Ron and Amy.

InMemoryof Rupert, James & Matthew

• Lucy O’Malley completed the 12 a Week Challenge 2023 raising £330.

General Fundraising

General Fundraising

• South Hunsley School raised £470.95.

• Year 6 pupils at St. Margaret’s School raised £300.

• Neil Colville sent a donation of £1,000 raised during his year as captain at Onneley Golf Club.

• Andrew Ohl donated £250.

• Centrica donated £6,000 following a nomination from their British Gas engineers.

• Repton School Staff sent a donation of £110 from their ‘Cardless Christmas Collection’.

• The Northeast Derbyshire RSCDS Brach and Chesterfield Caledonian Dance Class donated £132, in lieu of sending Christmas cards.

• Paolino Nola donated £100.

• Cannock Chase Council’s Housing Team donated £275 from their annual get-together, raised from a raffle and Christmas Jumper day.

• Edinburgh Students ESCA donated £1,254.41 from their Race 2 Paris fundraising.

• The staff at DP9 Ltd nominated CRY to receive a donation of £5,000, in lieu of Christmas cards sent to their clients.

• Hannah Dixon participated in the CRY Great Cake Bake 2023 and raised £134.60.

• LLoyds Bank sent a Match Giving donation of £500 in support of Gaynor Critchley’s Charity Fashion Show fundraising.

• Breedon Group Plc sent a donation of £100 raised from a Charity Christmas tree competition held by the Logistics department.

• Carl Rush sent a Christmas donation of £100 on behalf of a staff member.

• Pegasus Healthcare Solutions donated £1,000.

• The Hg Charity Committee sent a donation of £750, in support of Harry Toms’ 24-hour World Time Trial Championships fundraising.

• Sarah Craig participated in the CRY Great Cake Bake 2023 and raised £307.

• Laura Finch participated in the CRY Great Cake Bake 2023 and raised £280.

• Corten Capital donated £825.

• Ewell Castle School donated £222.

• Rosalind McKenzie sent donations totalling £850.

• The Sir Thomas Boughey Academy donated £209.15.

• The Health and Social Security Recreational Association sent a donation of £300 raised by club members.

• Linco Care Ltd donated £165.75.

• Emily Scarlett chose CRY as the Charity to benefit from Christmas Card donations totalling £200 on behalf of APC Cardiovascular.

• Susie O’riley chose CRY as the charity to benefit in respect of £103 worth of sponsorship from completing dry January.

• Tom Roberts completed the ‘Heart2Heart’s fundraiser (Boxing, Manchester 10km, 12 mile walk, golf day and more)’ and raised £1,446.

• Duncan Richardson completed the Potters Arf’ Marathon raising £257.

• Matthew Richardson completed 130 Miles (Liverpool to Leeds Run) raising £2,230.73.

• The Rotary Club of Aberfeldy donated £334 raised from their Christmas Concert.

• Christine Carr sent a donation of £105.

• Thomas and LeeAnne Morris completed the Lake District Challenge raising £1,821.32.

• Kathryn Johnston donated £100.

• Muntons PLC donated £100 following a nomination by employee, Samuel Clark.

• Thomas McIvor completed the Pan Celtic race raising £1,040.

• Staffordshire Cricket chose CRY as the charity to benefit from their fundraising totalling £202.

General Fundraising

• Copnor Methodist Church sent a donation of £250, representing remaining funds from the Wesley Rooms fundraising.

• Philip Young sent donations received in lieu of wedding gifts totalling £100.

• Tony Billingham took part in the Great North Run 2023 raising £2,940.

• Dan Charlton took part in the Great North Run 2023 raising £515.

• David Mason took part in the Great North Run 2023 raising £360.

• Alexander Hart took part in the Great North Run 2023 raising £592.

• Hazel Murray took part in the Great North Run 2023 raising £899.

• Jasmine Courie took part in the Great North Run 2023 raising £600.

• Azets donated £500 from their Twelve Days of Christmas initiative.

• Boscombe Lodge L2158 donated £100.

• The Discovery Academy sent a donation of £1,036.52 from a student collection.

• Selwyn College donated £625 following a Fellows’ Charity Committee Nomination.

• Copford C of E (VC) Primary School sent £311.36 representing parents donations after their school production.

• Peter Cummings donated £100.

• Fay Harrison chose CRY as the charity to benefit in respect of £145 worth of sponsorship for completing Dry January.

• Matthew Wigglesworth chose CRY as the charity to benefit from £586.90 raised by the Highfield Charity Football Day.

• Adam Burgess sent a donation of £500 from Citypress, on behalf of Cotgrave Service Station in Nottingham, representing a Coca-Cola Christmas Competition prize.

• Rachel Stanton donated £100.

• AheadMG Ltd donated £333 following a staff nomination.

• Dumfries Academy raised £114.94 through their Christmas Jumper Day.

• Laura Hartley climbed Mount Snowdon and chose CRY as the charity to benefit in repsect of sponsorship totalling £385.

• Harriet Nicholson completed the London to Brighton Cycle ride raising £275.

• Donald Smith sent a donation of £295.20.

• The Old Reigatian RFC sent a donation of £6,600.50 raised through a Firework’s Night and 6 Nations Dinner.

• Direct Line Group donated £250 from their Community Fund.

• Richard Hunt donated £150.

• Ursula McNicol took part in the Great North Run 2023 raising £485.

• Graham Gardner took part in the Great North Run 2023 raising £650.

• Louise Mills took part in the Great North Run 2023 raising £400.

• Steve Carr took part in the Great North Run 2023 raising £705.

• Seb Luker took part in the Great North Run 2023 raising £379.50.

• Niall Drievers took part in the Great North Run 2023 raising £379.50.

• Catherine Marsh donated £100.

• The All Saints and St Mark Churches raised £100 through a Coffee Morning.

• The Sandiway Pantomime Group donated £200.

• Moulina Ltd donated £460.

• John Winter donated £100.

• Reddiford School participated in the CRY Great Cake Bake 2023 raising £760.54.

• Meghan Gallacher participated in the CRY Great

Cake Bake 2023 raising £170.

• The Doncaster Retired Magistrates raised £126 from their Christmas lunch and raffle.

• Gordon Gray sent a donation of £1,600 raised from his Christmas Puzzle 2023.

• Tonbridge School sent a donation of £320 from the St Augustine’s Chapel Charity collection.

• David and Mary Crowhurst sent a donation of £642.50 raised from an annual quiz.

• Christine Connor sent £250 representing donations received in lieu of floral tributes’, in memory of her mother.

• Sarah Brearley donated £100.

• Matt McGaughey sent a donation of £1,000 representing the ‘Corporate Social Responsibility 2023’ annual donation campaign.

• Nicola Dean sent a donation of £150 from a coffee shop collection.

• Steelite International raised £565 from their Valentines raffle.

• Suzanne Lambert completed the 12 a Week Challenge 2023 raising £390.

• Jesscia Lambert completed the 12 a Week Challenge 2023 raising £325.

• Carol Challis completed the 12 a Week Challenge 2023 raising £210.

• Aideen Muldoon completed the 12 a Week Challenge 2023 raising £235.

• Elise Serrell completed the 12 a Week Challenge 2023 raising £130.

• James Close completed the 12 a Week Challenge 2023 raising £1,145.

• Colin Reuben completed the 12 a Week Challenge 2023 raising £245.

• Shilpa Chotai, Bhavisha Patel, Ria Chande, Anne Doyle, Kay Mason and Kirsty completed the 12 a Week Challenge 2023 raising £175.

• Next plc donated £5,000.

General Fundraising

• Bedford Prep School raised £1,882.65.

• Alexandra Vind donated £500.

• Christopher Wall donated £101.

• Natalie Overthrow chose CRY as the charity to benefit in respect of £150 worth of sponsorship from SCENT Photoshoots.

• The University of Warwick Conservative Association donated £110.50 raised at a society Charity football event.

• Julie Boyle chose CRY as the charity to benefit in respect of £195 worth of sponsorship from taking part in the Dundee Kiltwalk.

• Mark Fenlon donated £200.

• The Wiltshire Keep Fit Association raised £439.71 from their year of various fundraising events.

• Angela Lee took part in a walk. Walking Camino Portugal raising £361.19.

• Matt Smith completed the Great Scottish Run raising £796.43.

• Andrzej Sawko donated £550.

• The students and staff at Kesteven and Grantham Girls’ School raised £442.27.

• Reebus Medical donated £300.

• The Mandhata Youth & Community Association donated £121.

• St Catherine’s School sent a donation of £234.65 from their Pre Prep Spring Service.

• Northgate High School raised £633.80.

• Wharton and Cleggs Lane Church and Community Centre donated £250.

• Thelma Kumar donated £100.

• Scott Mandry raised £100.

• James Taylor donated £100.

• Mairead Rodgers donated £100.

• Rob Sharrock sent a donation of £279.55 from the Knypersley vics Scorpions FC.

General Fundraising

• James Fontaine sent a donation of £245.

• Dronfield Lodge L9570 donated £100.

• Lewis Comms Ltd donated £1,000.

• Joe and Isabel Gallagher chose CRY as the charity to benefit in respect £750 worth of donations recieved in lieu of their wedding gifts.

• Alex Gemmell and DMU Squash chose CRY as the charity to benefit £166.96 in respect of their Quiz Night Fundraiser.

• Ibstock Brick Ltd donated £250.

• Jones Lang Lasalle Ltd donated £250.

• Adam Bidwell donated £100.

• Simon Bessey sent a donation of £466.21 raised at the Jane Austen College, Norwich, pizza and quiz night fundraiser.

• Portsmouth Conservative Club chose CRY as their charity of the year 2023 and raised £568 through coffee mornings and donation jars at the club.

• Brian McLennan donated £100.

• Susan Kirby sent donations received totalling £310 from her’s and her partner’s joint birthday party in lieu of presents.

• Scottish Sea Farms donated £400.

• Serendipitous luck scheduled the event on St Patrick’s day, one of Matthew’s favourite days of the year and the event raised an incredible £905.02, he’d raise a celebratory Guinness to that for sure! Huge thanks go to the running club, the runners & the volunteers for raising such an incredible amount & also for a splendid & thoroughly enjoyable event.

• Lisa McCullough sent donations totalling £632.70 from the screening weekend in Mossley Mill.

• The Tír na nog gac club sent a donation of £2,600 raised from CRY clinics.

• The Financial Times sent a Match Giving donation of £300.

Our Fundraisers

By fundraising for CRY you will be helping to:

• subsidise CRY’s national cardiac screening programme

• fund CRY’s bereavement support programme to provide counselling and support to affected families

• support research into young sudden cardiac death (YSCD)

• develop the myheart Network to support young people living with cardiac conditions

• provide all CRY literature and information free of charge

• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.

Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

Visit www.c-r-y.org.uk/find-an-event/ for more information or contact the Fundraising team at events@c-r-y.org.uk for a fundraising pack or support with your event..

In memory of Andy Usher, who worked alongside CRY for 16 years, leading the charity’s two-year counselling skills and theory course between 2007-2023 for our volunteer Bereavement Supporters and many CRY staff.

Andy led each counselling course with great compassion and seemingly endless knowledge. He had the incredible ability to make a safe and trusted space for CRY’s volunteers as they learnt the skills to be able to help to support others.

We are so grateful to Andy for the significant support he gave to CRY for so many years and for the commitment and care which he showed to CRY’s Bereavement Supporters throughout their training. Through the volunteers that Andy has taught, hundreds of bereaved mothers, fathers, siblings, partners and grandparents have received support at a most devastating time.

Andy will be remembered by CRY staff and volunteers alike for his kindness, his vast knowledge, his humour and his empathy.

CRY Tribute

He will be greatly missed and on behalf of everyone at CRY we would like to extend our sincere condolences to all of Andy’s family and friends.

CRY’s Bereavement Support

CRY has a dedicated bereavement support programme to support families after the tragedy of a young sudden cardiac death of a person aged 35 or under.

So many people have contacted CRY wondering if there are others they could talk to who have suffered similarly. No matter how much professional support is offered (either medical or therapeutic), sometimes just speaking to someone who has been through a similar experience, or reading their personal stories, helps the most. CRY’s Founder, Alison Cox, developed the CRY Bereavement Support Programme with this in mind.

If you would like to speak about bereavement support or would like advice about expert pathology or cardiology, please contact CRY’s Support team on: 01737 363222 or email cry@c-r-y.org.uk.

Online Support

CRY has Facebook groups where people (aged 18 and over) can connect and share experiences with other people who have been affected by a young sudden cardiac death.

We have groups which are specifically for bereaved mums,

bereaved dads, bereaved siblings and bereaved partners, and we also have a ‘Family and Friends’ group which can be joined by anyone who has lost a young person to a sudden cardiac death.

The groups are private communities for people who are in touch with CRY to connect, share their feelings and experiences with others who have experienced the loss of a young person, and be part a network of support for one another. A place where we hope you will feel safe in the knowledge that you are not alone in how you feel.

If you would like to join a CRY Facebook Group, please visit: www.c-r-y.org.uk/facebook-bereavement-support/

Andy Usher

Raising Awareness in the Media Report

Between January and April CRY featured in 145 print, national, online and magazine articles.

A selection of headlines from January - April in the press

‘Family’s horror as ‘healthy’ young policeman ‘went to bed and never woke up’’

The Mirror

Aiden Joyce, 28, from Tillicoultry, was described as a ‘fit and healthy’ young man who was training for a half marathon before he suddenly died in his sleep one night, leaving his family heartbroken.

Published 3 January 2024

‘I lost my daughter to a cardiac arrest – she was only 20’

The Telegraph

A 52-year-old mother is fighting for more screening for young people after her sport-loving daughter died suddenly on a hiking trip.

Published 22 January 2024

‘Mum’s pledge to help other young people after son’s sudden death’

BBC

A mum who lost her 23-year-old son to an undiagnosed heart condition says it is “bittersweet” that her loss has helped save other people’s lives.

Published 4 March 2024

‘Parents of F1 engineer, 26, who died of cardiac arrest raise £40k to help testing for young people’

ITV News

His parents, with the help of Mercedes and the Rotary club of Wylde Green, have raised significant funds for more cardiac screenings in the Sutton Coldfield area.

Published 26 March 2024

‘Charity cycle ride in memory of Dumfries man who died playing rugby’ Daily Record (5 February 2024)

Political aide David Hill died from an undiagnosed heart condition after collapsing during a rugby match in Ireland.

Read at https://www.dailyrecord.co.uk/news/local-news/charity-cycle-ride-memory-dumfries-32011796

‘Thousands raised in memory of Longridge dad who died suddenly’

Lancashire Telegraph (21 April 2024)

Thousands of pounds have been raised in memory of a Longridge dad, who died suddenly due to a problem with his heart.

Read at https://www.lancashiretelegraph.co.uk/news/24265088.thousands-raised-memory-longridge-daddied-suddenly/

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia

CRY Update January - April 2024

Volunteer for CRY

We recognise the valuable contribution each individual makes, and without volunteers some of our services and events could not be offered.

Our aim is to make sure you have a rewarding experience volunteering with CRY and have the opportunity to meet new challenges, develop your skills, gain a great sense of achievement, and contribute towards CRY’s aim of saving young lives.

Ways to help:

▪Raise awareness - in your local community, at school or work with CRY posters and literature.

▪At events - marshalling, checking supporters in and looking after stalls.

▪Photography - at major fundraising events like the Bridges walk

If you would like to volunteer for CRY, please fill out a form here: www.c-r-y.org.uk/cry-volunteers/ or email events@c-r-y.org.uk for more information.

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Current Patrons of CRY:

Rob Andrew MBE

• John Barrowman MBE • Jeremy Bates

• Ben Brown

•

Our Mailings

1. CRY Update magazine

Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter

Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:

Clive Clarke • Jack Clifford

• James Cracknell OBE • Nick Easter

• Jonny Evans

• Baroness Ilora Finlay

• John Inverdale

• Tom James MBE

• Simon Halliday

• Michael Hoey

• Pat Jennings OBE KSG

• Rob

Key

• Gary Longwell

MBE

• Lee Mears

• Pixie Lott

• Bill Neely

• Emily Maitlis

• Graeme McDowell

• Lawrence Okoye

• Phil Packer

• Complete the online form; www.c-r-y.org.uk/subscribe

• Call the CRY office; 01737 363222

MBE

• Sir Steve Redgrave CBE

• Vincent Regan

• Joe Root

• Andy Scott

• Roger Taylor MBE

• Professor Gaetano Thiene

Townsend MBE • Andrew Triggs-Hodge MBE

• Andrew Trimble

• Gregor

• Email the CRY office; cry@c-r-y.org.uk

• Alison Waters

• Matt Wells

• Sir Clive Woodward OBE

• David Walliams

Our Mission

When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

CRY also works to guide and support families and close friends affected by YSCD.

We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.

In 80% of cases of young sudden cardiac death there are no prior

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: A & R Woolf Charitable