NewsNotes - Spring 2016 by cdfdiabetes

CHILDREN’S DIABETES FOUNDATION — SPRING 2016 1.

THE 36TH ANNUAL BRASS RING LUNCHEON

he 36th Annual Brass Ring Luncheon was held on November 13, 2015 at the Denver Marriott City Center. Over 800 guests enjoyed an extensive live and silent auction before honoring Barbara Davis Center patients and watching a stunning fashion show presented by BCBGMAXAZRIA. Continued on page 3 1. Ed Greene, Madeline van Orman 2. The Brass Ring Luncheon Ballroom All Brass Ring Luncheon Photos: © Broxton Art

The Brass Ring Luncheon 2

1. BDC patients discuss life with diabetes 2. Ed Greene, Master of Ceremonies 3. Cooper Keglovits, Dianne Santa Maria 4. Shane Hendryson and Dana Davis 5. Sammie and Parker Durand 6. Lori and Christina Finch

Ed Greene from CBS4 hosted the show as the Master of Ceremonies throughout the morning. Shelley Lucas (The Guild President) and Eva Schoonmaker (Brass Ring Luncheon Chair) thanked everyone for their continuous support. They both have a personal connection to diabetes and are thrilled to be involved with The Guild of the Children’s Diabetes Foundation. The real stars of the afternoon were the children from the Barbara Davis Center who represent the hundreds of thousands of children living with diabetes around the world. They walked the runway and received a heartwarming standing ovation from the crowd for their courage to take diabetes head on. Several children discussed their lives with diabetes, including Ellie White who described her complications living with both Wolfram Syndrome and type 1 diabetes. She asked guests to “reach deep in their pocket books” and give whatever they could. Madeline van Orman, a Barbara Davis Center patient, then captured the audience with the prayer before lunch. The live auction was a treat for everyone in attendance. It featured a 4-night stay at The Grand Wailea in Maui; an United Airlines Flight Simulator experience with dinner for two; 2-Night Westin stays; a 7 night Adventure Safari in South Africa; 4 Stadium Series Tickets; and a choice between two bulldog puppies. Two young

patients, Violet and Keaton stole the show by auctioning off a dozen cupcakes that they each handmade. Keaton shared his secret ingredient- LOVE! A huge thank you to all who donated to the appeal, which raised an astounding $78,000 and will provide an incredible amount of supplies and support research for Barbara Davis Center patients. The silent auction featured numerous packages including spa days, an evening on the town, and trips to wonderful destinations. The auction also included Corks For A Cause, where you could choose a mystery bottle of wine for a small donation, and Dine ‘N Dash, where people bought restaurant gift cards at cost and the proceeds went to CDF. A big thanks to Barbara Feeney for doing an outstanding job as the Auction Chair for the Luncheon. Runway models presented sophisticated fashion designs from BCBGMAXAZRIA that included casual city-looks to gorgeous gowns for a star-studded event. Many thanks to BCBGMAXAZRIA

for their outstanding runway presentation. The proceeds of this event benefit the programs of The Guild of the Children’s Diabetes Foundation, including Helping Hand (assisting families in need), the Charlotte Tucker Scholarship Award, the diabetes awareness and education program, and clinic and research programs at the Barbara Davis Center. We are so thankful for our generous sponsors, including BCBGMAXAZRIA, Reign Media, Marriott Denver City Center, The Denver Post, SAP, WILMAC Foundation & The Crazy Merchant, Allan and Margot Frank, Meagher Energy Advisors, NexGen Resources, and Lisa & Tom Corley. Thank you to all who attended the 2015 Brass Ring Luncheon and made the event a tremendous success. Your support means the world to us!

The Brass Ring Luncheon

The Children’s Diabetes Foundation’s Executive Director, Dana Davis, thanked all attendees for coming to the Brass Ring Luncheon and for supporting the children and adults living with diabetes.

1. Trendy work wear from BCBGMAXAZRIA 2. The Vazquez Family

The Brass Ring Luncheon 4

1. Violet Keglovits, Zetana Behymer, Keaton Isakson, Dillon Hunter 2. Cheryl and Trey Lebsock, Joan Drawer, Jordon Lebsock 3. In the silent auction room 4. Suzy Sparling and Deidre Hunter 5. Andrea, Hannah, and Emma Fey 6. Shelley and Steven Lucas

1. 2. 3. 4. 5. 6.

In the Luncheonâ&#x20AC;&#x2122;s lobby Elegant BCBGMAXAZRIA gown Gina Abou-Jaoude, Eva Schoonmaker Susan Squyer, Chair for Jewels For Hope Ashley, Tracy, Madeline, and Cameron van Orman Aspasia Vazquez, Ellie and Ryan White, and Kayley Carson

The Brass Ring Luncheon

Barbara Davis Center

THE FLEXIBLE LIFESTYLE EMPOWERING CHANGE STUDY

Improving Diabetes Care for High-Risk Patients at the Barbara Davis Center

very doctor has those adolescent patients who aren’t interested in caring for their diabetes. This ranges from not getting enough blood sugar checks a day to blatantly ignoring the disease altogether. This leads to high blood sugars, an outrageous A1c, and increased chances of long-term complications. These high-risk patients are what encouraged Dr. David Maahs of the Barbara Davis Center, along with Dr. Elizabeth Mayer-Davis and Michael Seid, PhD to develop the Flexible Lifestyle Empowering Change (FL3X) study, a research study with a motivational interviewing and intervention style appointment. The plans started in 2008 and the study came to life in April of 2014 with 250 study subjects to be enrolled. The appointments focus on developing problem-solving and communication skills as opposed to simply educating. This is the difference between saying, “you should get at least four blood sugar checks a day” and “if it’s

Photo: ©Janssen Photography

By Mattie Peck

Photo: ©Janssen Photography

important to you to do more blood sugar checks, how can we work together to make that happen?” It’s a slight difference, but has created some amazing results. The patients in this study are 13-16 years old with an A1c over 8%. This age group often sees difficulties because they are focused on their peers and don’t want to be the “special case.” They want to fit in with their group of friends and not be judged for being different. Each patient is in the study for a year and a half and during that time, has a monthly appointment that starts with a questionnaire to determine what is difficult

for the patient right NOW. Individual issues are constantly changing so the study is able to stay dynamic along with the individual’s case. Another common issue is the patients’ communication with their parents. The study works with teens and a parent to improve communication for more effective care. This allows teens to ask for more or less reminders, make weekly or daily meetings with their parents, etc. Parents are invited into the session at the end of the appointment to discuss what changes need to be made in order to improve daily diabetes care and issues in communication. They are taught to trust their teens and support them by using a communication style that best fits the teen. Patients become more empowered when they have developed these problem-solving skills and are able to create a better outlook and diabetes care routine. Tonya Jenkins, RD, CDE, who is a coach for this study, runs these intervention style appointments and says “it’s very rewarding to see families turn things around from shaming and

Eventually, this study will be a model for high-risk patient care. Other diabetes clinics will be able to implement this same approach to improve quality of life, A1c results, and parent/child interaction and communication. If the results continue to be this positive, these motivational interviewing and problems solving techniques may eventually be implemented as a standard of care. Dr. David Maahs continues to dive head first into diabetes research. In clinics, he gets to watch kids grow up and is able to help them through this disease. This FL3X study, along with his other research, will make an incredible difference for his patients and the diabetes world. One of the most exciting studies at the Barbara Davis Center is the Artificial Pancreas. There are currently 3 multi-center clinical studies, funded by the NIDDK, testing prototypes of the Artificial Pancreas from the University of Virginia, Cambridge, and Boston University. The Barbara Davis Center is excited to be one of only two research centers to test all 3 systems. These human trials will provide data that will determine FDA approval to have the systems commercially available in future.

DR. H. PETER CHASE

fter 48 years of caring for children with diabetes (50 years including fellowship), Dr. Peter Chase is no longer seeing clinical patients as of December 31, 2015. Dr. Chase was appointed the first Director of the University of Colorado Pediatric Diabetes Clinic in 1976, four years prior to the opening of the Barbara Davis Center (BDC). He was the only full-time physician in the BDC from 1980-1983. He has been the Executive, Clinical and Pediatric Clinic Director of the BDC. His research interests have

included prevention of type 1 diabetes and development of the Closed Loop (or Bionic) Pancreas. His work has resulted in over 300 peerreviewed publications and 76 book chapters. He is the author of five diabetes educational books for families with type 1 diabetes (see page 17 to order). The books have reached over two million families in the past 38 years (with the First Book for Understanding Diabetes being available in English, Spanish, Arabic and Chinese) and have been a major fundraiser for the Children’s Diabetes Foundation. Dr. Chase will continue to work part-time in research and teaching.

Barbara Davis Center

blaming to strategies that work for each individual teenager and their parents.” Because the patients are seen monthly, the coaches really get to know and understand their patients and the obstacles they need to overcome.

You can support these research studies by donating to the Children’s Diabetes Foundation here: www. ChildrensDiabetesFoundation. org/fl3x/ Photo: ©Kent Meireis

Barbara Davis Center

DIABETIC EYE DISEASE: THERE ARE VERY FEW VISUAL SYMPTOMS

veryone with diabetes should know that diabetic eye disease can cause vision loss. In fact, diabetic eye disease has been the leading cause of preventable vision loss in developed countries such as the United States for decades. A common misconception is if a person has any degree of diabetic eye disease, they should be able to notice some type of visual change. In reality, the vast majority of people with eye disease from diabetes cannot tell they have it because it is a very “quiet” condition with few symptoms. Patients who have progressed to the treatment stage are likely to have 20/20 vision and be totally unaware of what is going on inside of the eye. For patients and family members, it is important to understand how this is possible and requires a short anatomy lesson using the diagram below. This is a photograph of the retina, which is the back inner lining of the eye. When light enters the eye, it lands on the retina. The job of the retina is to

By Dr. Brian Bucca

capture this light and then create a very complex electrical signal. This signal is sent through the optic nerve to the brain for processing. The retina can be separated into two separate regions; a very small region for central vision (fovea) covering 5% of the retinal surface area and a region for peripheral vision, which encompasses the other 95% of the retina. Most things in diabetic eye disease happen in the peripheral regions where we do not see very sharply. If diabetes occurs in this region, it will not produce anything noticeable to the patient. In contrast, if certain

things happen in the central vision region, it will disrupt the clarity of our central vision and therefore produce a disturbance that we are more able to notice. This is why we want to protect the central vision region at all costs. The fact that this visionthreatening process is able to occur in the eye without someone’s knowledge is the main reason for recommending annual examinations for patients with diabetes. The aim of these annual exams is to identify the following: if diabetic eye disease is present, establish its severity, and identify any visionthreatening processes that the person may not be aware of. To schedule your eye appointment at the Barbara Davis Center, call 303-724-2323.

— H. Peter Chase, MD

Dr. Chase: What have you enjoyed most about the Barbara Davis Center (BDC) and the 50 years of seeing your patients?

Wow, this would take an entire NewsNotes if I were to give a complete answer. I’ll try to outline a few favorites: First, the changes in management of type 1 diabetes have been enormous. When I began, patients were either on one shot a day of Lente insulin or two shots of NPH insulin. Now, 58% of our patients are on insulin pumps, and the rest on intensive diabetes management with injections.

We used to see people with eye or kidney complications in every clinic. Now we rarely see complications. I tried to show changes in management through the years in the seven chapters of the Center’s History Book (dealing with Billy).

member with diabetes. Their loving and devoted care has always been a stimulous for me.

I have enjoyed watching every youth grow – often starting with little ones, conquering their fears, teens learning to manage their own diabetes, young adults leaving home for college, work, marriage, or whatever. It was impossible not to get emotionally attached. I have attended many weddings, bar mitzvahs and bat mitzvahs, and am looking forward to another wedding in June (for a young man I followed for 18 years). As I said goodbye to many a family, I had tears on my cheeks.

Families’ willingness to participate in research has always amazed me. It has resulted in improvements in care, culminating in an Artificial (Bionic) Pancreas, likely to become available in 2017. Even though we are not yet there, we have learned so much in getting closer to preventing diabetes. I was honored to be one of the physicians who set up the initial NIH Diabetes Prevention program (DPT-1) and to be the program director at our Center for the first decade. A cure, other than by pancreas transplant, is still a hoped-for possibility. I will continue to help in research for a period, so I will still be seeing research patients.

The staff at the Center has always been so dedicated. One year, I did a survey and half of the clinical staff either had type 1 diabetes or a close family

The support for the BDC through the years has been amazing. The Davis family donated the original building and Barbara set up the Children’s

Questions and Answers

QUESTIONS AND ANSWERS

Questions and Answers 10

Photo: ©Kent Meireis

Diabetes Foundation and The Guild. Our Center would not have survived without the financial help from the Foundation. The Guild gives college scholarships to many of our youth, provides tens of thousands of dollars each year for the Helping Hand fund to help families with supplies, and provides Christmas gifts and other needs to these families. The Community support for the BDC has also been important, be it through contributions, attending the Foundation’s Carousel Ball, golf tournaments, etc. or The Guild’s Brass Ring Luncheon and family functions. Watching the growth of the Center through the years has also been amazing. We started with a Pediatric Clinic and eventually expanded to have Eye and Adult Clinics. The Adult Clinic was very important as there were not good alternatives for affordable adult care in the 1980s. As the Pediatric Clinic

follows each youth for about 10 years, and the Adult Clinic then follows them for about 50 years, the Adult Clinic will eventually be larger than the Pediatric Clinic. Since 1980, the BDC has grown from having one full-time physician to having 18 full-time physicians, and was named the #1 Center in the world for type 1 diabetes in 2014. Education has been an enjoyable part of my career. In 1976, when the first edition of Understanding Diabetes was written, there were not good educational materials. The synopsis First Book for Understanding Diabetes reaches about 14,000 newly-diagnosed children every year. The First Book is available in English, Spanish, Arabic, and Chinese. It is currently estimated that over 2 million families in the U.S. have received at least one of our 4 educational books.

Most exciting, without question, are the wonderful youth I have had the honor to meet and follow through the years. All have become wonderful young adults. Many have chosen the field of medicine – and patients I followed are currently in: a heart-surgery residency at Brown University, nursing school at University of Colorado, medical school (one in Chicago [Fall, 2015 NewsNotes], and one at Columbia) as well as many other schools and professions. I recently counted 34 people who had worked for me who went on to medical or nursing schools. It would take a book to tell about all the great youth we have had the opportunity to know and follow in the 35 years the BDC has been open. I feel I have been both fortunate and honored to have been here at the Barbara Davis Center. It is me who must say, THANK YOU.

he Guild of the Children’s Diabetes Foundation held its 38th Annual Meeting and Installation of Officers on January 12 at the Cherry Hills Country Club. The group was able to celebrate an exciting year of record-setting events to help families of the Barbara Davis Center. Judy McNeil chaired the event and Shelley Lucas, the 2015 Guild President, thanked everyone for a wonderful year of hard work that raised unprecedented amounts for the BDC’s Acorn Project (the Junior Research Program), pediatric clinic, and more. Susan Squyer, Chair of Jewels For Hope, shared a year of incredible success. The program is starting its 12th year and has contributed an astounding $350,000 to CDF in that time. Gladys Villa, a Barbara Davis Center Social Worker, shared inspiring stories of the Helping Hand program assisting families who cannot afford the high cost of supplies or need incentives to improve blood sugar control. Jill Nystul was the guest speaker for the morning. She is the creative force behind the blog, “One Good Thing by Jillee” and the author of “One Good Life.” She inspired everyone by sharing how she turned her life around after a difficult battle with alcoholism and her son’s diagnosis of type 1 diabetes.

Lisa Corley, Chris Petre, Lotte Bowman, Tangy Buchanan, Christy Alberts, Barb Oberfeld, Shelley Lucas

“Give without remembering and receive without forgetting”

Guild Guide

THE GUILD ANNUAL MEETING

–Tangy Buchanan, the 2016 Guild President

The Children’s Diabetes Foundation is honored to have this wonderful group of volunteers who put an unbelievable amount of effort and heart into our cause. Their constant advocacy is greatly appreciated and we are excited for another year of success!

The Guild’s 2016 Slate of Officers: Tangy Buchanan, President Christy Alberts, PresidentElect Chris Petre, Treasurer Lisa Corley, Treasurer-Elect Lotte Bowman, Corresponding Secretary Barb Oberfeld, Recording Secretary

GUILD MEMBERSHIP TEA The Guild had a wonderful morning at the Madden Museum of Art for the Membership Tea. Nine crafty women decorated whimsical tables that reflected the Valentine’s Day spirit and Guild members invited friends and family who were interested in becoming a new member. Thank you to all who decorated and attended!

Winners’ Circle

ISAAC EPP’S HALLOWEEN FUNDRAISER

saac Epp, a 10 year old with diabetes, presented a check to The Guild of the Children’s Diabetes Foundation from his online fundraiser. Instead of trick-or-treating on Halloween, Isaac decided he wanted to raise money to help families affected by diabetes. He wrote a letter on his fundraising page asking for $100. It wasn’t long before Isaac raised over $2,000! To donate to Isaac’s cause, you can go to www. gofundme.com/4y7qh3ss.

DIAMONDS FOR DIABETES

¿HABLA ESPAÑOL GRANT?

roy and Joy Thollot presented a check to The Guild’s Helping Hand program from their fundraiser, Diamonds for Diabetes, at Thollot Diamonds and Fine Jewelry. For a $25 donation to CDF, Thollot customers could choose a box off a Christmas tree for a gift of precious stones, a tennis bracelet, or even diamond earrings. Thank you Troy and Joy for your generous, annual fundraiser! 12

rant Carmain is a senior in high school and is a patient at the Center who hails from Houston, Texas. He made it his mission to support education for Spanish-speaking families/communities in the Gulf-Coast of Texas. He translated type 1 diabetes fact cards into Spanish and acquired copies of the Pink Panther First Book in Spanish to distribute at a diabetes walk in Houston as well as to medical practices and physicians. ¡Muy Bien Hecho, Grant!

ARE YOU INTERESTED... ...in fundraising for the Children’s Diabetes Foundation or sharing your impact on the diabetes community? Contact Mattie Peck at Mattie@childrensdiabetesfoundation.org or 303-863-1200.

Fun for Kids

Unscramble the letters to create a diabetes related word

mnokete cstik _________________ silunni ______________________ tealcn _______________________ stte sprist ___________________ grinsye ______________________ bardaystroche________________ troiomn _____________________ ietprono _____________________ eledne ______________________

Another word for low blood sugar is ________________________. The organ responsible for creating insulin is the _____________________. When my blood sugar is high, there might be _____________________ in my urine.

I have Type ___ Diabetes. Right now, my blood sugar is _____.

For a slice of pizza, I dose ____ units of insulin. For an apple, I dose ____ units of insulin. My favorite food is ____________________________. I dose ______ units of insulin for it. When my blood sugar is 300, I _______________________________________________________. I test my blood sugar _______ times a day. My favorite low blood sugar snack is ______________________________. My favorite exercise is _______________________________.

Fill in the Blank answers: hypoglycemia, pancreas, ketones

_____________________________________________________.

Unscramble answers: ketone stick, insulin, lancet, test strips, syringe, carbohydrates, monitor, protein, needle

How do you feel about diabetes today?

Upcoming Events

JUNE 11

JULY 14-17

OCTOBER 27-28

Reel ‘Em In Fishing Trip for BDC Kids, 8 AM – 3 PM Buchanan Rec Center Ponds

Practical Ways to Achieve Targets in Diabetes Care Keystone Resort and Conference Center

Tied to a Cure Las Vegas Golf Flyaway Tournament

Kids ages 6-16 learn the basics of fly fishing by working with fun, local experts.

Join us in beautiful Keystone, Colorado for this annual medical education meeting designed for healthcare providers caring for adolescents and adults with diabetes.

JUNE 25

OCTOBER 8

Run for the Ring 5K and Kids’ Fun Run Barbara Davis Center for Diabetes

The Carousel of Hope The Beverly Hilton Hotel, Beverly Hills, CA

Photo: ©Jensen Sutta

Enjoy an overnight excursion to Las Vegas for a game on the exquisite Shadow Creek Golf Course.

NOVEMBER Diabetes Awareness Month

Run through the exciting courses on the Anschutz Medical Campus- perfect for any age!

There’s no better time to spread awareness and education for diabetes. Check our social media to share our messages! Photo: ©Berliner Studio

JULY 11 Tied to a Cure Denver Golf Tournament Pinehurst Country Club is the perfect place to enjoy a day on the course and support CDF.

This star-studded gala is an incredible evening of entertainment that raises awareness and funds for the Children’s Diabetes Foundation.

NOVEMBER 14 World Diabetes Day A day to recognize the strength and courage of those living with diabetes around the world.

OCTOBER 23 JULY 18 High Hopes Golf Tournament Meridian Golf Club Spend the day at the Meridian Golf Club to support The Guild of the Children’s Diabetes Foundation.

Boo Bash Colorado School of Mines

NOVEMBER 18

A spooky party for BDC patients (ages 12 and under) and their families.

Denver’s premiere fashion event, complete with silent and live auctions and a delicious lunch.

Brass Ring Luncheon Marriott City Center

TO LEARN MORE ABOUT CDF EVENTS, VISIT WWW.CHILDRENSDIABETESFOUNDATION.ORG/OUR-CALENDAR 14

he Children’s Diabetes Foundation (CDF) will be supporting Girls on the Run, which is a team of girls ages 7-13 who have type 1 diabetes and their friends/siblings. These girls spend 10 weeks training together, while also focusing on building character and confidence. Exercising with type 1 diabetes can be difficult because it causes large variations between high and low blood sugars. By creating a diabetescentric team that is coordinated by administrators at the Barbara Davis Center (BDC), these girls can run and train, knowing their peers understand the difficulties and that someone can step in if an emergency arises. These efforts and more are why the Children’s Diabetes Foundation is happy to

support this team by sponsoring their training registration, t-shirts, snacks, etc. The Children’s Diabetes Foundation will be a partner of the Colfax Marathon, which consists of a 5K at City Park on Saturday, May 14th, and then a half and full marathon (including a relay) on Sunday, May 15th. In addition, all Colfax Marathon runners can choose to be a charity partner and win money for CDF if the team/ individual wins a category.

You can raise funds for the BDC chapter of Girls on the Run by visiting our Crowdrise page for the Colfax Marathon: www.crowdrise.com/ColfaxRun-RunforCDFandtheBDC For more information about sposoring Girls on the Run or fundraising for the Colfax Marathon, please contact Mattie Peck, Communications Coordinator at Mattie@childrensdiabetesfoundation.org or 303-628-5106.

THERE IS STILL TIME TO REGISTER! PRACTICAL WAYS TO ACHIEVE TARGETS IN DIABETES CARE July 14-17, 2016 Join us in beautiful Keystone, Colorado for this annual, continuing medical education meeting designed for healthcare providers caring for adolescents and adults with diabetes.

Upcoming Events

CDF SPONSORS GIRLS ON THE RUN TEAM

Target Audience: certified diabetes educators, internists, pediatricians, family physicians, physician assistants, nurse practitioners, nurses, dietitians and all healthcare providers interested in receiving the most up-to-date type 1 and type 2 diabetes information from worldrenowned diabetes experts.

REGISTRATION DETAILS: View program details and registration information at http://www.regonline.com/atdc

Nutrition News

IS MY CHILD EATING RIGHT?

Parents and caregivers often wonder if their child is getting everything needed to optimize growth and development. Children may seem like they are “not eating anything,” “eating only junk food,” and “eating the same things every day.” Although children are resilient and are probably eating better than it appears, it can make caring

for your child less stressful if you know what to look for in determining if your child is eating a healthy diet. Your child’s pediatrician has a list of markers that are used during visits. Growth charts are used to assess nutritional status, weight, and development. Besides weight and height, pediatricians look at biochemical markers and lab values, and

gather dietary information to interpret nutritional status. A determination of overweight or underweight and understanding your child’s growth curves may shed light into your child’s dietary intake. You should share any concerns about your child’s diet with your pediatrician or endocrinologist and expect them to discuss any problems pertaining to your child’s growth that are affected by nutrition.

Knowing what signs and symptoms display malnutrition may help alleviate some of the stress in wondering if your child is eating well. Here are some examples of what a well-nourished child looks like: Hair: Shiny, not falling out, or appearing brittle or dry Eyes: Bright and clear; pink or red under the eyelids Skin: Smooth, firm, and of good color (skin of undernourished children looks off in color, scaly, flaky, or cracked) Lips: Smooth with good color (lips of malnourished children sometimes are red or swollen, with cracking in the corners of the mouth) Fingernails: Firm and pink (not spoon-shaped, brittle, or ridged) Posture: Healthy with good muscle tone and long straight bones (undernourished children may have a wasted appearance of muscles, swollen bumps on the skull or ends of bones, bowed legs or knock-knees, and may appear overweight or obese) A healthful diet for children includes: •

A variety of foods

•

Meals and snacks every 3 to 4 hours while awake

•

Fruits and vegetables that are colorful

•

Protein-rich foods, such as eggs, meat, fish, beans, chicken, or tofu

•

Calcium-rich foods, such as milk, yogurt, broccoli, and almonds

•

Water in place of sugary juices and sodas

•

Foods rich in iron, such as meats, beans, and leafy green vegetables

•

Enriched and whole grain breads, grains, and cereals

Child refuses meat: •

Offer small servings of meat, poultry, or fish

•

Incorporate small amounts of these foods in casseroles, pizzas, and soups

•

Choose beans, eggs, and cheese as alternatives

Child drinks too little milk: •

Offer cheese and yogurt

•

Add milk to soups, hot cereals, and puddings

•

Use powdered milk for baking

Child drinks too much milk: •

Offer water between meals and if your child is thirsty

•

Serve milk at the end of the meal and limit it to two times a day

Child refuses fruits and vegetables: •

Offer more of the preferred fruits and vegetables

•

Serve vegetables raw, with a healthy dip

•

Slice fruits to make them easy to eat

•

Try dried fruits

•

Put vegetables in soups and meals, so they are difficult to pick out

•

Continue to offer fruits and vegetables at every meal and snack

Nutrition News

Your child should not use food to deal with emotions. The following are common concerns and suggested solutions to feeding concerns:

Child eats too many sweets:

Photo: ©Kent Meireis

•

Do not keep sweets or treats in the house

•

Do not use sweets as a reward or bribe

•

Make sure all caregivers are on the same page regarding sweets

PUBLICATIONS ORDER FORM All our publications may be ordered by using this form or by calling the Children’s Diabetes Foundation at 303-863-1200 or by visiting our website at www.ChildrensDiabetesFoundation.org. Children’s Diabetes Foundation • 4380 South Syracuse Street, Suite 430 • Denver, CO 80237

Children’s Diabetes Foundation 4380 South Syracuse Street, Suite 430 Denver, CO 80237 Phone: 303-863-1200 • Fax: 303-863-1122 www.ChildrensDiabetesFoundation.org

A handbook for people who are living with diabetes — Jeff Hitchcock, Children with Diabetes www.childrenwithdiabetes.com

“The Understanding Diabetes” – ‘Pink Panther™’ book ... is an incredible handbook for the child with type 1 diabetes and his family ... Adjustments are complicated for the type 1 diabetic and traumatic for the whole family ... Having ‘The Pink Panther™’ telling the story adds a bit of whimsy to a tremendously serious subject, making the book extraordinarily ‘user friendly’.” — Lee Ducat, Founder of the Juvenile Diabetes Research Foundation

For additional copies of the publication contact:

Children’s Diabetes Foundation 4380 South Syracuse Street, Suite 430 Denver, CO 80237 Phone: 303-863-1200 Fax: 303-863-1122 www.ChildrensDiabetesFoundation.org

H. Peter Chase, MD and David M. Maahs, MD, PhD

H. Peter Chase, MD Satish K. Garg, MD

Quantity

Copias adicionales de “Un primer libro para entender la Diabetes”

Children’s Diabetes Foundation 4380 South Syracuse Street, Suite 430 Denver, CO 80237 Phone: 303-863-1200 Fax: 303-863-1122 www.ChildrensDiabetesFoundation.org

UN LIBRO DE COMPAñÍA COMPAñ A PARA “ENTENDER LA DIABETES”

H. Peter For additional copies of this publication contact:Chase,

Children’s Diabetes Foundation y

777 Grant Street, Suite 302 David M. Maahs, MD, PhD Denver, CO 80203 Phone: 303-863-1200 or 800-695-2873 Fax: 303-863-1122 Traducido y Editado por www.ChildrensDiabetesFoundation.org

Andrea Gerard González, MD

Chase, MD and David M. Maahs, MD, PhD

by H. Peter Chase, MD & Laurel Messer, RN, MPH, CDE

•

2nd Edition

13th Edition

— Jay Skyler, MD, MACP, past President of the American Diabetes Association

“If you only have one book about diabetes, Understanding Diabetes should be it. There are more technical books, but none better to help you understand how to live successfully with type 1 diabetes. Representing the clinical practice methods of the Barbara Davis Center for Diabetes, the book is both complete and easy to read ...”

2nd Edition

12:43

For additional copies of the publication contact:

“The Understanding Diabetes” – ‘Pink Panther™’ series has emerged as the gold standard for education for youth with type 1 diabetes. Drs. Chase and Maahs are always updating the material so that it is contemporary, readable, fun and on target. The series is indeed a most valuable contribution.”

UNDERSTANDING INSULIN PUMPS AND CONTINUOUS GLUCOSE MONITORS

For purchasing information call: 303-863-1200 www.BarbaraDavisCenter.org

UN PRIMER LIBRO PARA ENTENDER LA

13th Edition

UN PRIMER LIBRO PARA ENTENDER LA DIABETES

ARBARA DAVIS CENTER FOR DIABETES

MANAGEMENT OF DIABETES IN ADULTS

13o Edición

13th Edition

What the experts are saying about the “Understanding Diabetes” – ‘Pink Panther™’ books:

A FIRST BOOK FOR UNDERSTANDING DIABETES

for the challenge of our child’s diabetes, but this book paved the way for the acceptance and handling of this change in our lives.❞

understanding diabetes

MANAGEMENT OF DIABETES IN ADULTS

❝Nothing could totally prepare us

Item

Price

Understanding Diabetes – “The Pink Panther Book,” 13th Edition

$25.00*

Understanding Diabetes – “The Pink Panther Book,” 12th Edition Discounted while supplies last!

$10.00*

A First Book for Understanding Diabetes, 13th Edition Presents the essentials from Understanding Diabetes

$13.00*

Un Primer Libro Para Entender La Diabetes, 13th Edition

$13.00*

Understanding Insulin Pumps and Continuous Glucose Monitors, 2nd Edition

$10.00*

Management of Diabetes in Adults, 1st Edition

$15.00*

DIABETES: A History of a Center and a Patient

$15.00*

SHIPPING AND HANDLING: $5.00 per book for orders of 1-9 books $2.00 per book for orders of 10 books and over

Shipping and Handling

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TOTAL * Prices subject to change Name: ___________________________________________________________________________________________________ Address: _________________________________________________________________________________________________ City, State, Zip: ___________________________________________________________________________________________ Phone:_____________________________________ Email: ______________________________________________________ ❏ Check enclosed payable to: Children’s Diabetes Foundation ❏ VISA ❏ MasterCard

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Expiration Date _____________________________________ Security Code _______________________________________ ❏ Please include me on the Children’s Diabetes Foundation mailing list All orders must be paid in full before delivery. Books are mailed USPS or Ground UPS. Allow one to three weeks for delivery. International Purchasing: Please include sufficient funds for books and shipping to equal U.S. currency exchange rates. THE PINK PANTHER™ & © 1964-2016 Metro-Goldwyn-Mayer Studios Inc. All Rights Reserved.

EXECUTIVE BOARD: Mrs. Barbara Davis, Chairman Dana Davis, Executive Director EXECUTIVE EXECUTIVE BOARD: BOARD: Mrs.Mrs. Barbara Barbara Davis, Davis, Chairman Chairman Richard S. Abrams, M.D. Richard Richard S.M.D. Abrams, S. Abrams, M.D.M.D. Jules Amer, Honorary Lifetime Member JulesJules Amer, Amer, M.D.M.D. Honorary Honorary Lifetime Lifetime Member Member Mr. Peter Culshaw Mr. Peter Mr. Peter Culshaw Culshaw Stephen Daniels, M.D., Ph.D. Stephen Stephen Daniels, Daniels, M.D., M.D., Ph.D. Chairman of Pediatrics, ThePh.D. Children’s Hospital, Denver Chairman Chairman of Pediatrics, of Pediatrics, The The Children’s Children’s Hospital, Hospital, Denver Denver Mrs. Nancy Davis Rickel Ms. Ms. DanaDana Davis Davis Steven Farber, Esq. Mrs.Mrs. Nancy Nancy Davis Davis Rickel Rickel Daniel Feiten, M.D. Steven Steven Farber, Farber, Esq.Esq. Mr. Shane Hendryson Daniel Daniel Feiten, Feiten, M.D.M.D. Mrs.Mr. Arlene Hirschfeld Shane Mr. Shane Hendryson Hendryson

Mrs.Mrs. Deidre Hunter Mrs. Arlene Arlene Hirschfeld Hirschfeld Mr. Mrs. Shawn Hunter Mrs. Deidre Deidre Hunter Hunter

Brian Kotzin, M.D. Vice President, Global Clinical Development, Amgen, Inc. Thousand Oaks, California Brian Brian Kotzin, Kotzin, M.D.M.D. Aké Lernmark, M.D., Ph.D. Vice Vice President, President, Global Global Clinical Clinical Development, Development, Amgen, Amgen, Inc. Inc. Thousand Oaks, Oaks, California California AliThousand Naji, M.D., Ph.D. J. Aké William White Professor Aké Lernmark, Lernmark, M.D., M.D., Ph.D. Ph.D.of Surgery,

ofM.D., University AliHospital Naji, Ali Naji, M.D., Ph.D. Ph.D. of Pennsylvania, Philadelphia J. William J.Nepom, William White White Professor Professor of Surgery, of Surgery, Gerald M.D., Ph.D. Hospital Hospital ofDirector University of University of Director Pennsylvania, of Pennsylvania, Philadelphia Philadelphia Scientific and of Immunology and Diabetes Research Programs, Virginia Gerald Gerald Nepom, Nepom, M.D., M.D., Ph.D. Ph.D. Mason Research Center, Seattle Scientific Scientific Director Director and M.D. and Director Director of Immunology of Immunology and and Diabetes Diabetes William V. Tamborlane, Research Research Programs, Programs, Virginia Virginia Mason Research Research Center, Seattle Seattle Professor of Pediatrics, YaleMason University School ofCenter, Medicine, New Haven, Connecticut William William V. Tamborlane, V. Tamborlane, M.D.M.D. Professor of Pediatrics, of Pediatrics, YaleYale University University School School of Medicine, of Medicine, J.Professor William White NewNew Haven, Haven, Connecticut Connecticut

Professor of Surgery, Hospital of University of Pennsylvania,

J. Philadelphia William J. William White White Professor Professor of Surgery, of Surgery, Hospital Hospital of University of University of Pennsylvania, of Pennsylvania, Robert H. William Philadelphia Philadelphia

Professor, Department of Medicine, University of Washington

Robert Robert H. of William H. William Seattle School Medicine, Professor, Professor, Department Department of Medicine, of Medicine, University University of Washington of Washington ADVISORY BOARD: School School of Medicine, of Medicine, Seattle Seattle

M. Douglas Jones, Jr., M.D. Mr. Shawn Mr. Shawn Hunter Hunter Mrs.M.Tracy van Jones, Orman Douglas M. Douglas Jones, Jr., M.D. Jr., M.D.

Sir Michael Caine ADVISORY ADVISORY BOARD: BOARD:

Mr. Mr. Cameron van Orman Ken Mr. Ken Rickel Rickel J. Reilly, J. Reilly, Jr., M.D. Jr., M.D. Mr. John KenJohn Rickel ViceVice Chancellor Chancellor for Health for Health Affairs Affairs & Dean, & Dean, School School of Medicine, of Medicine, John J. Reilly, Jr., M.D. University University of Colorado of Colorado Denver Denver Vice Chancellor for Health Affairs & Dean, School of Medicine, Mrs.Mrs. Stacy Stacy Mendelson Robinson Robinson University ofMendelson Colorado Denver Marian Rewers, Rewers, M.D., M.D., Ph.D. Ph.D. Mrs.Marian Stacy Mendelson Robinson Executive Executive Director Director of the of Barbara the Barbara Davis Davis Center Center for Childhood for Childhood Marian Rewers, M.D., Ph.D. Diabetes, Diabetes, University University of Colorado of Colorado School School of Medicine of Medicine Executive Director of the Barbara Davis Center for Childhood SCIENTIFIC SCIENTIFIC ADVISORY ADVISORY BOARD: BOARD: Diabetes, University of Colorado School of Medicine Richard Richard S. Abrams, S. Abrams, M.D.M.D. SCIENTIFIC ADVISORY BOARD: Associate Associate Clinical Clinical Professor Professor of Medicine; of Medicine; RoseRose Medical Medical Center, Center, Denver Richard S.Denver Abrams, M.D. Associate Clinical Professor of Medicine; Rose Medical Center, JulesJules Amer, Amer, M.D.M.D. Denver M. Douglas M. Douglas Jones, Jones, Jr., M.D. Jr., M.D. Jules Professor, Amer, M.D. Professor, Department Department of Pediatrics, of Pediatrics, University University of Colorado of Colorado School School of Medicine; of Medicine; Section Section of Neonatology, of Neonatology, The The Children’s Children’s M. Douglas Jones, Jr., M.D. Hospital, Hospital, Denver Denverof Pediatrics, University of Colorado Professor, Department School of Medicine; Section of Neonatology, The Children’s Hospital, Denver

Mr.Michael andMichael Mrs. Robert Sir Sir Caine Caine A. Daly The Ms. Honorable Diana DeGette, Ms. Natalie Natalie ColeCole U.S. of Representatives, Mr. and Mr.House and Mrs.Mrs. Robert Robert A. Daly A. Daly Colorado Mr. The Neil Diamond The Honorable Honorable Diana Diana DeGette, DeGette, Mr. Placido Domingo U.S. U.S. House House of Representatives, of Representatives, Colorado Colorado JohnNeil Elway Mr. Neil Mr. Diamond Diamond David Foster Mr. Placido Mr. Placido Domingo Domingo Mr. John Mr. John Elway Kenny G Elway Mr. David Mr. David Foster Foster David Geffen Mr. Mr. Kenny GJohnson G Mr. Kenny Magic Mr. David Mr. David Geffen Geffen Mr. Quincy Jones Mr. Mr. Magic Johnson Johnson Ms. Magic Sherry Lansing Mr. Mr. Jones Jones Mr. Quincy Jay Quincy Leno Ms. Sherry Lansing Lansing Mr. Ms. PaulSherry Marciano Mr. Jay Mr. Leno Jay Leno Mr. Mo Ostin Mr. Paul Mr. Paul Marciano Marciano Sir Sidney Poitier Mr. Mo Mr. Ostin Mo Ostin Mrs. Ronald Reagan Sir Sidney Sir Sidney Poitier Poitier Mr. Lionel Richie Mrs.Mrs. Ronald Ronald Reagan Reagan Mrs.Mr. Adrienne Ruston Fitzgibbons Mr. Lionel Lionel Richie Richie

Mr. George Schlatter Ms. Maria Shriver Steven Spielberg and Ms. Kate Capshaw Mrs.Mr. Mrs. Adrienne Adrienne Ruston Ruston Fitzgibbons Fitzgibbons Brenda Richie Mr. Ms. George Mr. George Schlatter Schlatter Barbera Thornhill Ms. Ms. Ms. Maria Maria Shriver Shriver Joan van Ark Mr. Miss Steven Mr. Steven Spielberg Spielberg and and Ms. Ms. KateKate Capshaw Capshaw Gary L. Richie Wilson Ms. Mr. Ms. Brenda Brenda Richie Stevie Wonder Ms. Mr. Ms. Barbera Barbera Thornhill Thornhill MissMiss JoanJoan van Ark van Ark THE GUILD PRESIDENTS: Mr. Gary Mr. Gary L. Wilson L. Wilson President, Mr. Founding Stevie Mr. Stevie Wonder Wonder Amy Davis Mrs. Gina Abou-Jaoude THETHE GUILD GUILD PRESIDENTS: PRESIDENTS: Mrs. Jamie Angelich Founding Founding President, President, AmyAmy Davis Davis Mrs. Karen Aylsworth Mrs.Mrs. Mrs. GinaLinda Gina Abou-Jaoude Abou-Jaoude Broughton Mrs.Mrs. Mrs. Jamie Jamie Angelich Angelich Joy Burns Mrs.Mrs. Karen Karen Aylsworth Aylsworth Dr. Bonita Carson Mrs.Mrs. Linda Linda Broughton Broughton Mrs. Nancy Cowee Mrs.Mrs. Joy Burns Joy Burns Mrs. Dalyla Creaghe Dr. Bonita Dr. Bonita Carson Carson Mrs. Margy Epke Mrs.Mrs. Nancy Nancy Cowee Cowee Mrs. Chris Foster Dalyla Dalyla Creaghe Creaghe Helenn Franzgrote Mrs.Mrs. Mrs. Margy Margy EpkeEpke Sally Frerichs Mrs.Mrs. Mrs. Chris Chris Foster Foster Debbie Gradishar Mrs.Mrs. Mrs. Helenn Helenn Franzgrote Franzgrote Hanks Mrs.Mrs. Mrs. SallyHelen Sally Frerichs Frerichs Marty Jensen Mrs.Mrs. Mrs. Debbie Debbie Gradishar Gradishar Gail Johnson Mrs.Mrs. Mrs. Helen Helen Hanks Hanks Sharon Kamen Mrs.Mrs. Mrs. Marty Marty Jensen Jensen Mrs.Mrs. Mrs. GailJanet Gail Johnson Johnson Knisely Mrs.Mrs. Mrs. Sharon Sharon Kamen Kamen Shelley Lucas Mrs.Mrs. Mrs. Janet Janet Knisely Knisely Suzy Love Mrs.Mrs. Mrs. Shelley Shelley Lucas Lucas Judy McNeil Mrs.Mrs. Mrs. SuzySally Suzy LoveLove Newcomb Mrs.Mrs. Mrs. JudyGretchen Judy McNeil McNeil Pope Mrs.Mrs. Mrs. SallyCarol Sally Newcomb Newcomb Roger Mrs.Mrs. Gretchen Gretchen PopePope Mrs. Kay Stewart Mrs.Mrs. Carol Carol Roger Roger Mrs. Diane Sweat Mrs.Mrs. Kay Kay Stewart Stewart Mrs. Loretta Tucker Mrs.Mrs. Diane Diane Sweat Sweat Mrs. Jane Weingarten Mrs.Mrs. Loretta Loretta Tucker Tucker Mrs.Mrs. JaneJane Weingarten Weingarten

eeeeeeeeeeee eeeeeeeeeeee NewsNotes will be NEWSNOTES NEWSNOTES will will bepublished be published published quarterly by by Children’s quarterly quarterly thethe Children’s Children’s Diabetes Diabetes Foundation. Foundation. We Diabetes Foundation. WeWe welcome welcome your comments. comments. welcome your comments.

you If you would would like to to submit an IfIf you would likelike to submit submit anan article article or a aorletter letter a letter to to Newsnotes article or to Newsnotes NewsNotes send send information information to: mattie@ mattie@ send information to:to: Mattie@ childrensdiabetesfoundation.org childrensdiabetesfoundation.org childrensdiabetesfoundation.org Cindy Cindy Kalkofen Kalkofen Zachary Reece Graphic Graphic Designer Designer Graphic Designer Mattie Mattie Peck Peck Mattie Peck Dana Dana Davis Davis Dana Davis Editors Editors Editors Know Know thethe symptoms symptoms of of Know the symptoms of Childhood Childhood Diabetes: Diabetes: childhood diabetes: • Extreme thirst • Extreme thirst •• Extreme thirst Frequent urination • Frequent urination •• Frequent urination Weight Loss • Weight Loss •• Weight loss Excessive irritability • Excessive irritability Bedwetting • Bedwetting •• Excessive irritability (previously (previously controlled) controlled) • Bedwetting (previously controlled) Printed Printed on recycled on recycled paper paper

Printed on recycled paper

The The Brass Brass Ring Fund Fund Ring

A child A child reaching reaching forfor thethe brass brass ring ring on on a carousel a carousel is symbolic is symbolic of of thethe most most important important goal goal of of thethe Children’s Children’s Diabetes Diabetes Foundation Foundation —— The The Cure. Cure. Your Your contribution contribution on on behalf behalf of aofloved a loved oneone willwill make make a difference. a difference. It will It will support support treatment treatment programs programs to assist to assist children children with with diabetes diabetes in in Remember a loved a loved one one –––– leading leading healthier healthier lives lives andand it will it will fund fund Remember research research to help to help CDF CDF “Catch “Catch thethe Brass Brass Help Help CDF CDF “Catch “Catch the the Brass Brass Ring” Ring” Ring” Ring” by by finding finding a cure. a cure. Enclosed Enclosed is my is my contribution contribution of $of______________________ $ ______________________ In memory In memory of of ______________________________________ ______________________________________ Mark Mark an an anniversary, anniversary, birthday birthday or or honor honor of of ________________________________________ ________________________________________ special special occasion. occasion. Express Express appreciation appreciationIn In Occasion __________________________________________ __________________________________________ or or make make a memorial a memorial tribute tribute in honor in honor Occasion of someone of someone special special with with a contribution a contribution Please Please send send acknowledgements acknowledgements to: to: —— forfor anyany amount amount —— to the to the Children’s Children’s (Amount (Amount of gift of gift willwill notnot be mentioned) be mentioned) Diabetes Diabetes Foundation. Foundation. WeWe now now accept accept Name Name _____________________________________________ _____________________________________________ gifts gifts online online at at Address Address ___________________________________________ ___________________________________________ www.ChildrensDiabetesFoundation.org. www.ChildrensDiabetesFoundation.org. CityCity ____________________ ____________________ State State ________ ________ ZipZip ___________ ___________ Donations Donations areare taxtax deductible. deductible. TaxTax ID ID #84-0745008 #84-0745008

This This giftgift is from: is from: Name Name _____________________________________________ _____________________________________________ Address Address ___________________________________________ ___________________________________________ CityCity ____________________ ____________________ State State ________ ________ ZipZip ___________ ___________

CC hildren’s hildren’sDD iabetes iabetes Foundation Foundation 4380 4380 South South Syracuse Syracuse Street, Street, Suite Suite 430, 430, Denver, Denver, COCO 80237 80237 Phone: Phone: 303-863-1200 303-863-1200 • www.ChildrensDiabetesFoundation.org • www.ChildrensDiabetesFoundation.org 2323

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CDF SPONSORS A BDC CHAPTER OF GIRLS ON THE RUN Girls on the Run is a team made up of girls ages 7-13 with type 1 diabetes and their siblings/friends. They spend 10 weeks training together, while also focusing on building character and confidence. Read more on page 15.

GET INVOLVED IN THE DIABETES ONLINE COMMUNITY! Facebook: ChildrensDiabetesFoundation

THE FLEXIBLE LIFESTYLE EMPOWERING CHANGE STUDY (FL3X) STUDY Barbara Davis Center doctors are creating a new style of appointment to help high-risk, adolescent patients improve their control and communication through problem-solving skills. Read more about this exciting study on page 6.

Twitter: Chldrnsdiabetes

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KNOW THE SYMPTOMS OF TYPE 1 DIABETES Extreme Thirst • Frequent Urination Lethargy • Irritability • Weight Loss • Vision Changes