NewsNotes - Summer 2019 by cdfdiabetes

NEWSNOTES CHILDREN’S DIABETES FOUNDATION — SUMMER 2019

SPRING BRASS RING PAGE 3

EPIC CONFERENCE PAGE 14

Photo: © Jensen Sutta Photography

NEWSNOTES FEATURES 3

SPRING BRASS RING

PHARMACY TIPS

Children’s Diabetes Foundation Board Members EXECUTIVE BOARD:

SCIENTIFIC ADVISORY BOARD:

Mrs. Barbara Davis, Chairman Dana Davis, Executive Director

Richard S. Abrams, M.D. Director, Colorado Preventive Medicine, Rose Medical Center; Clinical Professor of Medicine UCD

Richard S. Abrams, M.D. Stephen Daniels, M.D., Ph.D. Chairman of Pediatrics The Children’s Hospital, Denver

ASK STUDY FINDINGS

Mrs. Nancy Davis Rickel Steven Farber, Esq.

2 1 13 14

KING SOOPERS COMMUNITY REWARDS PROGRAM

Daniel Feiten, M.D. Mr. Shane Hendryson Mrs. Arlene Hirschfeld Mrs. Deidre Hunter Mr. Shawn Hunter

UPCOMING EVENTS

Mr. Steve Lucas Mrs. Tracy van Orman

EPIC DIABETES CONFERENCE

20 BDC ADULT CLINIC RESEARCH STUDIES

Mr. Cameron van Orman Mr. Ken Rickel John J. Reilly, Jr., M.D. Vice Chancellor for Health Affairs & Dean, School of Medicine, University of Colorado Denver Mrs. Stacy Mendelson Robinson Marian Rewers, M.D., Ph.D. Ex-Officio Member

Mark Atkinson, Ph.D. Professor of Pathology & Pediatrics, Director, University of Florida Diabetes Institute Ezio Bonifacio, Ph.D. Professor for Preclinical Approaches to Stem Cell Therapy, Center for Regenerative Therapies, Dresden, Germany Robert Eckel, MD Professor of Medicine, Physiology and Biophysics, University of Colorado School of Medicine Matthias Hebrok, Ph.D. Professor in Residence and Director, Diabetes Center, University of California, San Francisco Steven Kahn, MB, Ch.B. Professor of Medicine, Director of the Diabetes Research Center, University of Washington Rudolph Leibel, MD Professor of Pediatrics and Medicine, Co-Director, Naomi Berrie Diabetes Center, Columbia University Alvin Powers, MD Professor of Medicine, Molecular Physiology/Biophysics, Division Director, Vanderbilt University William Tamborlane, MD Professor of Pediatrics, Yale University School of Medicine

NewsNotes is published quarterly by the Children’s Diabetes Foundation. If you would like to submit an article or a letter to NewsNotes, send information to Mattie@ChildrensDiabetesFoundation.org.

Photo: © www.JensenSutta.com

Facebook.com/ ChildrensDiabetesFoundation

@CDFdiabetes

Zachary Reece, Graphic Designer Mattie Peck & Dana Davis, Editors

@CDFdiabetes

CDFcares@ChildrensDiabetesFoundation.org 303-863-1200 • 4380 S. Syracuse St., Ste. 430 Denver, CO 80237

LUNCHEON & FASHION SHOW RAISED $348,000 FOR TYPE 1 DIABETES

Ben Higgins of ABC’s “The Bachelor,” New York fashion

designer Rebecca Minkoff, and Uchenna Nwosu of the NFL’s Los Angeles Chargers lent their talents at the 41st annual Spring Brass Ring Luncheon & Fashion Show held by The Guild of the Children’s Diabetes Foundation (CDF) on April 4th. The even bigger stars of the event were the 34 type 1 heroes who walked the runway and the donors who generously gave $348,000 toward helping families in need and finding a cure for type 1 diabetes. Ben Higgins, best known for his role on season 20 of “The Bachelor” who now uses his platforms to support causes he cares about, emceed the program. To remind attendees of the extreme need for helping those with type 1 diabetes, Higgins said, “It’s difficult. It’s upsetting. It can be life threatening. And it never goes away. Kids with type 1 diabetes are dealing with more physical, emotional, and social stress than we can imagine and yet, they continue to be brave and fight this disease.” Cheryl Lebsock, President of The Guild of the Children’s Diabetes Foundation, shared her father’s dark battle with type 1, which included an early death at age 62. When her son was diagnosed at age 4, it was a different story as his doctor assured the family, “We have a team of people who are going to help you give him a normal life.” Cheryl went on to say, “Every dollar raised today helps not only extend the life of a child with type 1 diabetes, but also helps to dramatically improve the lives of every child and family

Photo: © Broxton Art

Photo: © www.JensenSutta.com

touched with this disease. Thank you for giving us hope.” Higgins then introduced Alex Hess, who has been living with diabetes for 8 years. Alex said a prayer before lunch, praying for every child living with type 1 diabetes and hoping to someday celebrate the end of this disease. Every year, the highlight of this event is seeing some of the heroes fighting diabetes. This year, 34 kids walked the runway to a standing ovation with a thunderous applause. Each hero on stage has been a wonderful advocate for this disease and has been involved with the Children’s Diabetes Foundation for many years. It’s unbelievable to see the bravery, strength, and courage these kids have. That emotional moment was followed by energy and enthusiasm as auctioneer Halie Behr kicked off a live auction, which raised $57,000. Items included a family reunion at The Overlook in Grand Lake near Rocky Mountain National Park, passes to the 2019 U.S. Open Golf Championship, a 2019 Hyundai Accent, and a Jet Linx private jet trip for six people. Uchenna Nwosu, whose mother lives with type 1 diabetes, joined the auctioneer on stage to encourage bids for the last item, which included two tickets to an L.A. Chargers game, autographed cleats with the CDF logo, and a meet and greet with Nwosu. The silent auction, held prior to the program, raised $38,500 for The Guild. Jewels for Hope also held a table at the event, where they raised over $16,000 from donated pre-loved jewelry.

SPRING BRASS RING

THE SPRING BRASS RING

Photo: © www.JensenSutta.com

Photo: © Broxton Art

SPRING BRASS RING

A paddle raiser followed the live auction giving guests the opportunity to donate directly to CDF. At each donation level, Behr explained specific opportunities that could be funded, such as producing beta-like, insulin-producing cells, providing an insulin pump, providing an artificial pancreas, hours of research, and continuous glucose monitor supplies.

Photo: © www.JensenSutta.com

In total, the $348,000 raised at the event will benefit the Children’s Diabetes Foundation to fund research and care at the Barbara Davis Center, promote diabetes awareness and education, assist families in need, provide scholarships, and sponsor social activities for children affected by diabetes. This year’s event was a huge success between funds raised and the supportive, excited energy in the room. Many thanks go to this year’s event co-chairs: Steven & Shelley Lucas and Neil & Barb Oberfeld.

Photo: © www.JensenSutta.com

Photo: © Broxton Art

Photo: © www.JensenSutta.com

The event closed with the much-anticipated runway fashion show presented by worldrenowned designer, Rebecca Minkoff, who is dedicated to bringing women together to enact positive change. Her playful and subtly edgy handbags, accessories, footwear, and apparel delighted the guests as the models showcased the ready-to-wear looks on the runway.

Title sponsor for the 41st annual Spring Brass Ring was Marketo, an Adobe Company. Benefactor sponsor was Mike and Patty Starzer. Premier sponsors were The Crazy Merchant, Inc. and Greenberg Traurig, LLP. The Official Media Sponsor was Colorado Expression Magazine.

Photo: © www.JensenSutta.com

For up-to-date details about 2020’s Spring Brass Ring Luncheon & Fashion Show, follow the Children’s Diabetes Foundation on social media.

Photo: © www.JensenSutta.com

Photo: © Broxton Art

Photo: © www.JensenSutta.com

Photo: © Broxton Art

Photo: © Jordan Lebsock

SPRING BRASS RING

Photo: © Broxton Art

Photo: © www.JensenSutta.com

Photo: © Broxton Art

Photo: © www.JensenSutta.com

FOR T1D AND CELIAC DISEASE

WHY ASK?

• 92% of children diagnosed with type 1 diabetes (T1D) have no relatives with T1D • Many people are unaware of diabetic symptoms or of the diﬀerence between type 1 and type 2 diabetes. • 40% of those newly diagnosed are very sick due to diabetic ketoacidosis (DKA), that can be fatal or lead to poorer long term outcomes. • ASK screening, early diabetes education and monitoring can prevent DKA • Screening for and early diagnosis of celiac disease can improve growth and bone health • The incidence of T1D and celiac disease are increasing

ASK GOALS

1. Screen 50,000 Colorado children ages 1-17 to make a case for universal screening of T1D and celiac. 2. Find early signs of diabetes or celiac in children – before they get very sick. 3. Offer close monitoring, education, and early treatment, when needed. 4. Offer participation in studies of new interventions that might help stop or slow progression of disease. 5. Increase public awareness of T1D and celiac disease.

RECOGNIZE THESE SYMPTOMS? TYPE 1 DIABETES • Increased thirst • Increased urination • Weight loss • Low energy

CELIAC DISEASE • Stomach aches, being gassy or bloated • Chronic diarrhea, vomiting, constipation • Poor growth

Incidence per 100,000

BABARA DAVIS CENTER

FREE POPULATION SCREENING

ASK RESULTS

1. As of May 20, 2019 ASK has screened 18,186 children; of those, only 4.5% had a relative with T1D. 2. Of the children screened, 1.0% were at high risk for developing T1D and 2.6% were at high risk for having or developing celiac disease. 3. Twelve children developed diabetes after testing positive; only 2 developed DKA. 4. Pre-symptomatic T1D and celiac autoimmunity are 2-3 time more frequent in non-Hispanic white children than in Hispanics. 5. The screening is cost-effective and well-accepted by parents and providers.

Photo: © www.JensenSutta.com

For more information, please go to:

www.ASKhealth.org or call our ASK hotline at: 303.724.1275

TIPS & TRICKS

NEW PRESCRIPTIONS • Prescriptions can be written as a 30 day or 90 day supply • If your insurance prefers 90 day supplies, they may make you use their mail order • Barbara Davis Center policy is to only approve prescriptions for a 6 month period • We send prescriptions electronically, verbally, or give you hard copies (electronic is preferred) • We will attempt to choose your prescriptions based on what your insurance prefers Refill and Renewal of Prescriptions: • The best way for you to get refills is to have your pharmacy contact us directly • Refills can take up to 72 business hours to obtain • If we have not seen you in the last 6 months your refill request will be denied • Refills are only good for 6 months from your last office visit • You must wait at least 30/90 days between refills or insurance will not cover it PRIOR AUTHORIZATION: • Prior Authorizations can take up to 5 business days for a response back • Insurance companies have the right to make you try their preferred product first • We do not do prior authorizations for products that have a preferred equivalent available • If you need a prior authorization, please have your pharmacy fax us the information first • A prior authorization will not bring the cost of your medication to your lowest copay

BABARA DAVIS CENTER

PHARMACY

OTHER: • Always be sure to provide us with your most updated insurance and pharmacy information • Plan ahead, do not wait until the last minute for anything pharmacy related • Going on vacation or need an emergency refill? Plan ahead • Call your pharmacy insurance for an override • If you need price assistance, research the drug company’s website for discount cards • Call your insurance and verify your coverage, as well as your deductible and copays • If for any reason your family loses insurance coverage, do not hesitate to call the BDC so we can help you problem solve your insurance issues and get you and the diabetes care supplies you need. Contact Information/Questions: Bobby Owen 303-724-6793 or Robert.Owen@ucdenver.edu Photo: © www.JensenSutta.com

Jaimie Wolfelt 303-724-2537 or Jaimie.Wolfelt@ucdenver.edu

BABARA DAVIS CENTER

UCHENNA NWOSU

OF LOS ANGELES CHARGERS VISITS THE BARBARA DAVIS CENTER It’s not every day that kids get to play football with

an NFL star, but this April was a special experience for our type 1 heroes. On April 3rd, Uchenna Nwosu, linebacker for the Los Angeles Chargers, came to the Barbara Davis Center to meet, run drills, and play football with 26 Barbara Davis Center patients. “My mom, Amarachi, is affected by diabetes,” Nwosu explained. He says that when his mom told him the news last year, he wasn’t sure how to handle it. “I was very sad and confused and didn’t know too much about [the disease]. I didn’t know if she was going to be okay or what was wrong.” Nwosu says his mom means everything to him and is now doing well. Because of her battle with diabetes, it was an easy decision to offer his support to kids with diabetes and the Children’s Diabetes Foundation. Diabetes has impacted many people in Nwosu’s family and he hopes to educate and raise awareness for diabetes. Born and raised in Carson, California, Nwosu attended the University of Southern California where he played football and earned a degree in political science. He was drafted in 2018 by the Los Angeles Chargers and just finished his rookie year. As passionate off the field as he is on the field, Nwosu’s support for causes and volunteerism includes consistently volunteering at the Boys and Girls Club of Carson, and he has recently began coaching their flag football team. This will absolutely be an event to remember for every kid on the field. The Children’s Diabetes Foundation is thankful to partner with Uchenna Nwosu on awareness initiatives and appreciate the big smiles, epic catches, and lasting memories he has given to our heroes!

Congratulations to the 11 Charlotte Tucker Scholarship recipients who are graduating this May 8

For the 2019-2020 school year, 22 recipients have been chosen for the scholarship. Check back in for our 2019 Fall edition of NewsNotes to meet our recipients!

A CULTURAL AND EDUCATIONAL CELEBRATION The Children’s Diabetes Foundation held an educational booth at Dia del Nino (Day of the Child) at the Denver Museum of Nature & Science on April 28th. Dia del Nino is an annual celebration throughout Mexico and many countries and cultures around the world. It celebrates children, pays homage to their importance in society, and endorses their well-being. Over 12,000 people flooded the museum for this free day with extra educational and cultural games and activities. The CDF booth educated people about diabetes and through games, taught them that diabetes is not contagious, can be diagnosed at any age, is not caused by diet or lack of exercise, and can not be cured. After learning these facts, kids went over to our art board to add their “fingerprint for a fingerstick” to show their support of those with type 1 diabetes.

DIABETES NEWS

DIA DEL NINO

The Día del Niño event at the Denver Museum of Nature & Science is co-created in partnership with the Mexican Cultural Center. The Children’s Diabetes Foundation is proud to partner with the Mexican Cultural Center on this initiative.

DIABETES NEWS

MEET MADISYN WHEN ALL I SHOULD BE THINKING ABOUT IS COLLEGE By Madisyn Reiakvam

Being diagnosed with an incurable, life-

threatening disease could never happen at the right time, but it felt like my diagnosis came at the worst time possible. Senior year is the bridge to the unknown. It’s the last year before everyone's lives take a drastic leap of faith toward a future that’s intimidatingly hidden. Amongst the anxiety of trying to apply to college and deciding where to spend the next four years of your life, I had to overcome this newfound diagnosis as well.

SPOILER ALERT: I MADE IT, I GREW FROM IT, AND IT WILL NEVER HOLD ME BACK.

March 13, 2017 I am incredibly stressed. Maybe that’s why I’m always so tired? I have never been a napping type of person, but now that’s all I want to do. I guess this is what happens senior year. I feel like I have been sleeping so much lately, but I never felt rested. Is that just senioritis? Probably. March 21, 2017 Ugh, I hope that I'm not getting sick, that would be the worst! I have so much to do. We're in the middle of soccer season, I have exams to study for, work, and scholarship essays to write. I can NOT be getting sick.

March 30, 2017 I’ve always had 20/20 vision and now suddenly I have to get glasses. That’s okay, my whole family needs glasses so that makes sense. I'll get used to them. I finally got my acceptance letters. I’m so excited! It’s time to figure out where to spend the next 4 years of my life. I have 7 exams to study for. If I don’t pass these tests, I won't get the credit I have been working for all year. How am I supposed to do all this? I'm only 18. Time to work hard.

April 10, 2017 It’s review day in microeconomics and I got 100% on that test. This class has been a breeze, but now it’s actually kind of hard. Maybe it’s because I haven’t done it in a while. None of my notes make sense though. Okay okay, relax you got this. Just take this step by step. Why can't I remember what 12 multiplied by 4 is? Math has always been my best subject. April 12, 2017 I know we’ve had soccer practice for a few hours every day, but how could I have possibly lost 18 pounds? April 14, 2017 This can’t be happening. The pieces are starting to fall together, but there's no way this could be happening to me. I’ve learned about the signs of diabetes, but it has to be something else. I don’t want this. I’m so scared. April 15, 2017 I drove to my friend's house who has type 1 diabetes to check my blood sugar. It was supposed to calm my mind so I can realize I don’t have diabetes. I am over thinking it. That number can’t be right. Something is wrong with her meter. She said it's supposed to be under 170. What does 497 mean?

endocrinologist. Please just tell me what is wrong. Please just tell me that this is all just a mistake and I'll be better soon. I have to have another bag of saline? Why are you asking me all these questions? I just want some answers. The doctor said “we’ve never seen these blood sugars before in someone without diabetes.” …oh… Is my mom okay? Why do I feel so scared? It’s going to be okay. My family looks so worried. How do I make sure they know it’s okay? Maybe the more I say it the more we will all believe it. Why can’t you give me insulin to fix this? Do I just bring these numbers down with water? What do you mean don’t eat carbs until I can get into a doctor? The next available appointment is in two days. What is going on? You’re just going to send me home? April 16, 2017 Happy Easter to me…

DIABETES NEWS

April 4, 2017 Okay, something has to be wrong. How in the world can I not make it through a single class period without having to go to the bathroom? I’ve been noticing this more and more for months. I don’t understand. And why am I always so insanely thirsty? No matter how much I drink, I still feel dehydrated. Oh, that makes sense, I have to go to the bathroom so much because I am drinking so much water. I’m in the middle of soccer season, so drinking water is healthy. Okay, this is okay. I just wish I weren’t so thirsty all the time…

April 17, 2017 My mom got us an emergency appointment with my General Practitioner. Time for some real answers. He has diabetes. He’ll know the truth. He said he is almost sure I have diabetes, but he can’t diagnose me. He gave us the number for the Barbara Davis Center and they’re ready to see us today. The Barbara Davis Center doesn't look as terrifying as I thought it would, but then again I never thought I would be here. I don't want to know... I have to know… I have type 1 diabetes.

Continued on next page...

Why do her parents look so concerned? They’re talking to me like I have diabetes. I can't have diabetes. I drove home, telling my parents about everything that happened. My dad went to the store and bought me a meter for myself and said to check in an hour. This meter will be right. This meter will tell me everything is okay. 576… Do I have to go to the hospital? I don’t want to. I’m at the hospital. They will figure this out. I’ll finally get my answers. They set an IV for saline. They said it’s just procedure. I’ve been in this hospital bed for what feels like forever. No, I don't have diabetes. No, I don't have an

DIABETES NEWS 12

The very first thing my doctors tried to help me understand is that, although this does change my life, it does not end it. I will still be able to do everything I used to do. It is a hard thing to grasp initially, especially between all the books they give you and the hours of classes to learn about your “new life.” If there is anything I would want to tell myself back then, I would say that everything will be okay and that type 1 diabetes will not hold me back. Push through the hard times, cry, be angry, accept it, but always know that it will be okay. Type 1 diabetes does not define you, and it never will. I have always said that everything in life happens for a reason and my first instinct was to make sure this disease would never hold me back in my life. The day of my diagnosis, I played in my high school soccer game. A few weeks and an immense amount of studying later, I caught up in my classes, passed all of my AP Exams, spoke at my graduation, and earned my high school diploma. A few months later, I finished the hardest hike I’d ever done on the longest, steepest, and most beautiful mountain. Four months after my diagnosis, I drove out to Iowa to begin my college journey. Type 1 may have changed my life, but I have become stronger and wiser because of it. I am proud of what I have overcome and how much I have grown. Today I not only celebrate my story, vitality, and life; but the strength, love, and support of my family and friends as well.

Tied to a Cure Denver Golf Tournament Pinehurst Country Club A day on the green with family, friends, clients, and colleagues – all for a good cause

JULY 11-14

ATDC Keystone Conference Keystone Conference Center A 4-day conference for healthcare providers caring for patients with type 1 and type 2 diabetes

JULY 28

Don’t Sugar Coat It 5K Run/Walk Redstone Park in Highlands Ranch A fun, inspiring 5K run/walk to raise funds for type 1 diabetes research and patient care

AUGUST 3

Run for the Ring 5K & Kids Fun Run Barbara Davis Center for Diabetes The Guild of CDF’s 5K (a BolderBOULDER qualifying race), kids fun run, and kids zone. An event that’s fun for the whole family!

OCTOBER 19

The Carousel Ball Hyatt Regency Denver at Colorado Convention Center An elegant gala featuring a performance by Reba McEntire and honoring Lisa & Tom Corley and Richard Abrams, M.D.

OCTOBER 24-25

Tied to a Cure Las Vegas Golf Flyaway Shadow Creek Golf Course and Aria Hotel in Las Vegas, NV Private chartered flight, one of Vegas’s top golf courses, and modern hotel rooms – all for a good cause

OCTOBER 27

Boo Bash Colorado School of Mines A spooky party for kids with type 1 diabetes and their families

NOVEMBER

Diabetes Awareness Month Join the Children’s Diabetes Foundation in turning the world blue in support of those with diabetes

NOVEMBER 14

World Diabetes Day A day to honor everyone living with diabetes around the world

NOVEMBER 21

Kendra Scott Gives Back Party Kendra Scott in Park Meadows Mall Get the perfect gift for a loved one or treat yourself to stunning Kendra Scott jewelry with 20% of your purchase benefiting CDF

UPCOMING EVENTS

JULY 8

DECEMBER 3

Colorado Gives Day A one-day online fundraiser for nonprofits in Colorado

DECEMBER 21

Diamonds for Diabetes Mid-November to December 31st at Thollot’s Jewelers Pick an ornament from the tree for $25 (to be donated to CDF) to win a precious gem or piece of jewelry

JUNE 19-26, 2020

1 Sweet Cruise An Alaskan cruise specifically for type 1 families – the perfect combination of diabetes camp and family vacation!

SUPPORT GROUPS

There are support groups going on all year! If you want to get together with others affected by type 1 diabetes, you can sign up for CDF Support Groups in the Denver, Colorado Springs, Fort Collins, Cheyenne, Sterling, or Central Rockies areas. Sign up at ChildrensDiabetesFoundation.org/support-groups CHECK OUT OUR WEBSITE OR FOLLOW US ON SOCIAL MEDIA TO GET EVENT UPDATES AT ANY TIME! WWW.CHILDRENSDIABETESFOUNDATION.ORG

MAY 11, 2019 IN DENVER, CO, EDUCATING THOSE WITH TYPE 1 AND TYPE 2 DIABETES With so many facets for diabetes care, it’s impossible to learn everything you need to know in quarterly appointments, even after many years of living with the disease. The Children’s Diabetes Foundation and the Barbara Davis Center (BDC) partnered together to create the EPIC Diabetes Conference to give patients, families, caregivers, and healthcare providers an in-depth look on improving their diabetes care in an open, supportive environment. Attendees learn through workshops, panels, Q&As, a keynote presentation, and more with the nation’s top diabetes specialists. This year’s conference took place in downtown Denver on May 11th. Over 350 people attended and learned about topics such as advanced nutrition and exercise, men and women’s health, diabetes in school, technology, complications, camps, social stigmas, adolescence, and more. Dr. Desmond Schatz, former President of the American Diabetes Association, joined as the keynote speaker to discuss a cure for diabetes – the challenges, hold ups, what looks promising, innovative techniques, and more. This year’s conference featured 3 tracks: advanced, adult, and pediatric. Each workshop included a brief presentation followed by 45 minutes for attendees to ask experts their questions about improving their individual care. Patient panelists Kirra, Daisy (Kirra’s mom), Alice, and Nick (Alice’s dad) opened up about social stigmas and diabetes camps during a patient panel with moderator Gregory Forlenza, MD and patient providers Paul Wadwa, MD and Lisa Meyers, MSW, CDE. Thank you to our lead sponsor Dexcom and the conference exhibitors who greatly contributed to the event! This conference was a collaboration between the Children’s Diabetes Foundation and the Barbara Davis Center. Thank you to the EPIC Committee: Sarit Polsky, MD, Gregory Forlenza, MD, Dana Davis, Ben Deardorff, Amanda Garrett Miller, Mattie Peck, and Regina Reece.

“I liked how the information was very tailored to our needs as (people with diabetes), and how it allowed time for us to ask questions. The presenters were so down to earth and welcoming, it almost felt like we were having a conversation amongst friends.” “The conference always gives me life to continue going forward, it energizes me to keep taking care of me! You learn so much from the workshops!!” “My favorite part was knowing that there are other people who are dealing with the same issue and there are people working to help make things easier.”

SAVE THE DATE

APRIL 25, 2020 SHERATON DENVER DOWNTOWN HOTEL

“This was the first year my husband and I attended the conference. We were very impressed! We walked away with new information. Thank you!” “2019 surpassed my expectations! I loved it! I met some older women with type 1 and we are going to get together!” “This is the first year we have attended and it was amazing! I gained a lot of knowledge and will definitely attend next year. Thank you!” “Each speaker had very engaging information, did not talk "above our heads" and presented their info so very well.”

The 2020 EPIC Diabetes Conference will be held on April 25th, 2020 at the Sheraton Denver Downtown Hotel. To stay connected and receive conference updates, visit www.EPICconferences.org, the EPIC Diabetes Conference Facebook page, and Children’s Diabetes Foundation’s social media pages.

DON’T

SUGAR

COAT IT!

A CONTINUING MEDICAL EDUCATION CONFERENCE FOR DIABETES HEALTHCARE PROVIDERS

5K Run/Walk July 28, 2019

Redstone Park in Highlands Ranch

After living with type 1 diabetes for

several years, Nick Salas and his family decided they wanted a platform to raise funds and awareness for the disease. That’s why Nick started the “Don’t Sugar Coat It 5K” three years ago and at this year’s event, funds will partially benefit the Children’s Diabetes Foundation for patient care and research. Vendors, a raffle, food, and drinks will be available. Join us in Highlands Ranch this summer for this fun, family-oriented 5K run/ walk! 8:30 AM Registration begins 9 AM 5K run/walk begins Register at: raceroster.com/events/2019/23205/dont-sugar-coat-it-2019-5k

July 11-14, 2019 Rates Increase June 17, 2019

The Children's Diabetes Foundation is proud to partner with the

Barbara Davis Center for the ATDC Conference in Keystone, CO for healthcare providers caring for patients with diabetes. This year's conference will be held from July 11- 14 and will emphasize the challenges in day-to-day management of diabetes and practical ways to overcome those hurdles, specifically using new technologies. Program details and registration: www.ATDCconference.com Questions? Contact Lisa Steele at Lisa@ChildrensDiabetesFoundation.org or 303-628-5108

Follow Don’t Sugar Coat It on Facebook for event updates!

FOUNDATION NEWS 18

VOLLEY 4 CHARITY The Childrenâ&#x20AC;&#x2122;s Diabetes Foundation was the beneficiary of the Volley 4 Charity Annual Volleyball Tournament at The Island (Denver, CO) and Oasis Volleyball (Broomfield, CO) on February 15th and 16th. The event included 6 tournaments over 2 days with a silent auction and raised over $20,000 for CDF. Thank you to the participants and the Volley 4 Charity team!

BABARA DAVIS CENTER

ADULT CLINIC RESEARCH “Scientific research is one of the most exciting and rewarding of occupations” -Fredrick Sanger, Noble Prize winner for discovering insulin sequencing

This is what we believe at the Barbara Davis Center for Diabetes (BDC), which is one of the most renowned diabetes

clinical and research institutions in the world. The team at the BDC work toward this change. The team works constantly at understanding type 1 diabetes and its associations better, at improving the treatment options for type 1 diabetes, and in turn helping to improve the quality of life for people diagnosed with type 1 diabetes. All this is only possible through a medium: Research. The following are some of the ongoing research offered to adults with type 1 diabetes at the Barbara Davis Center for Diabetes Adult Clinic. In addition to the studies listed below, there are a number of studies about newer medications, newer insulin, and newer technologies being done at the BDC. If you are interested in research studies at the BDC, please contact Prakriti Joshee at 303-724-9925 or email Prakriti.Joshee@ucdenver.edu. INSULIN INTERCHANGEABILITY STUDY (WIRB #20183044) This is a clinical research study being conducted to compare an investigational insulin with an already approved insulin in patients with Type 1 Diabetes Mellitus. The study is open to Type 1 Diabetes Mellitus patients under a multiple-daily insulin regimen with a rapid acting insulin, in addition to basal insulin, for at least 3 months prior to starting the study. The duration of the study is approximately 16 weeks. IRB approved at the Protocol level Apr16, 2019 #24245962.0

Insulin is an antigen and most patients taking insulin develop antibodies against insulin to some degree. However, these antibodies do not interfere with insulin action and are clinically not relevant. With the availability of generic (aka: biosimilar or follow-on biologics) insulins, what happens if you are being switched back and forth between generic insulin and branded insulin? Would that result in greater production of anti-insulin antibodies? Would that change insulin action? This study is being done to answer these questions. We are looking for adults (over 18 years) with type 1 diabetes and on insulin glargine (Lantus or Basaglar) and Insulin Novolog for at least 3 months and HbA1c less than 10% for this study.

FAST-ACTING GENERIC INSULIN STUDY (WIRB #20182018)

BONE HEALTH IN TYPE 1 DIABETES (COMIRB #18-1397)

If you are an adult between ages 18 and 65 living with type 1 diabetes you may be eligible to take part in the GAZELE clinical research trial. This trial will look at an investigational fast-acting insulin to see if it works as effectively as an existing fast-acting insulin already being used to treat diabetes.

This research study is investigating the effects of type 1 diabetes on postmenopausal womenâ&#x20AC;&#x2122;s bone structure, mechanical quality and strength. There are one to two visits (depending on an optional procedure). Main procedures involved are: blood draw, urine sample collection, Bone density scan, CT scans, and bone biopsy (optional).

IRB approved at the Protocol level Oct 11, 2018 #22927001.0 Insulin cost is a major barrier for many patients to manage their diabetes. Therefore, the FDA is encouraging more companies to develop generic insulin. More generic insulin on the market may result in more competition and lower prices. In this study, we are comparing a generic insulin by Mylan GmbH with branded insulin by Novo Nordisk. We are looking for adults (over 18 years) with type 1 diabetes and on insulin Lantus and Insulin Humalog or Novolog for at least 3 months and HbA1c less than 10% for this study.

BABARA DAVIS CENTER

Photo: ÂŠ www.JensenSutta.com

IRB approved 22-Feb-2019

Hip fracture risk is six-times greater in postmenopausal females with type 1 diabetes compared to postmenopausal females without diabetes. A bone density scan (DXA) is generally recommended in postmenopausal females to screen for osteoporosis (low bone density). However, bone density does not estimate the fracture risk well in people with type 1 diabetes. Therefore, in this study, we are doing a specific type of CT scan on the hip and evaluating three-dimensional bone structure and bone strength by simulated computerized models. Also, we will be looking at bone collagen quality (collagen is an elastic structure that helps bone to be flexible) in a subgroup of patients. Post-menopausal women with type 1 diabetes for more than 10 years and currently not on any osteoporosis medications (such as Fosamax) are eligible for this study.

The Carousel Ball

October 19, 2019 Denver, CO An evening to benefit the Childrenâ&#x20AC;&#x2122;s Diabetes Foundation and the Barbara Davis Center for Diabetes Featured Performer: Reba McEntire High Hopes Tribute Award Honorees: Lisa & Tom Corley Founders Award: Richard Abrams, M.D. Event Chair: Dana Davis Honorary Event Chair: Barbara Davis

Tickets available at www.ChildrensDiabetesFoundation.org Thank you to our sponsors! Underwriting Sponsor: Dexcom Official Media Sponsor: 5280 Magazine Major Sponsors: Dexcom, Tina & Rick J. Caruso, CBS4, Colorado Homes & Lifestyles

The 2019 event will mark the 33rd annual Carousel Ball. Guests enjoy cocktails, silent and live auctions, dinner, exciting entertainment, and musical performances. All proceeds from the event benefit the Children’s Diabetes Foundation, the fundraising arm of the Barbara Davis Center focused on patient support, awareness, and research.

Children’s Diabetes Advisory Board Members and Guild Presidents Lisa & Tom Corley will be presented with the High Hopes Tribute Award at The Carousel Ball in honor of their 20 years of service and support of the Children’s Diabetes Foundation and for their unending support of the Colorado community. Richard Abrams, M.D. will be presented with the Founders Award in honor of the instrumental role he has played in advancing diabetes care over the past four decades.

ADVISORY BOARD:

THE GUILD PRESIDENTS:

Sir Michael Caine Mr. and Mrs. Robert A. Daly The Honorable Diana DeGette, U.S. House of Representatives, Colorado Mr. Neil Diamond Mr. Placido Domingo Mr. John Elway Mr. David Foster Mr. Kenny G Mr. David Geffen Mr. Magic Johnson Mr. Quincy Jones Ms. Sherry Lansing Mr. Jay Leno Mr. Paul Marciano Mr. Mo Ostin Sir Sidney Poitier Mr. Lionel Richie Mrs. Adrienne Ruston Fitzgibbons Mr. George Schlatter Ms. Maria Shriver Mr. Steven Spielberg and Ms. Kate Capshaw Ms. Brenda Richie Ms. Barbera Thornhill Miss Joan van Ark Mr. Gary L. Wilson Mr. Stevie Wonder

Founding President, Amy Davis Mrs. Gina Abou-Jaoude Mrs. Christy Alberts Mrs. Jamie Angelich Mrs. Karen Aylsworth Mrs. Linda Broughton Mrs. Tangy Buchanan Mrs. Joy Burns Dr. Bonita Carson Mrs. Nancy Cowee Mrs. Dalyla Creaghe Mrs. Margy Epke Mrs. Chris Foster Mrs. Helenn Franzgrote Mrs. Sally Frerichs Mrs. Debbie Gradishar Mrs. Helen Hanks Mrs. Marty Jensen Mrs. Gail Johnson Mrs. Sharon Kamen Mrs. Janet Knisely Mrs. Cheryl Lebsock Mrs. Shelley Lucas Mrs. Suzy Love Mrs. Judy McNeil Mrs. Sally Newcomb Mrs. Barb Oberfeld Mrs. Gretchen Pope Mrs. Carol Roger Mrs. Kay Stewart Mrs. Diane Sweat Mrs. Loretta Tucker Mrs. Jane Weingarten

Nonprofit Org. U.S. POSTAGE

PAID Childrenâ&#x20AC;&#x2122;s Diabetes Foundation 4380 South Syracuse Street Suite 430 Denver, CO 80237

Change Service Requested

Denver, CO Permit No. 1752