CHILDREN’S DIABETES FOUNDATION SUMMER 2022
CHARLOTTE TUCKER SCHOLARSHIP RECIPIENTS PAGE 6
SPRING BRASS RING RECAP! PAGE 12
NEWSNOTES FEATURES
Children’s Diabetes Foundation Board Members EXECUTIVE BOARD: Mrs. Barbara Davis, Chairman Ms. Dana Davis, Executive Director
4 THE FUTURE OF DIABETES TECHNOLOGIES
Mrs. Arlene Hirschfeld, Emeritus Mr. Cameron van Orman, Vice Chairman Richard S. Abrams, M.D., Treasurer Mr. Shane Hendryson, Secretary
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Mrs. Lisa Corley Stephen Daniels, M.D., Ph.D. Chairman of Pediatrics The Children’s Hospital, Denver Mrs. Nancy Davis Rickel
TRAVELING WITH DIABETES
Daniel Feiten, M.D. Mr. Wayne Forman
10 SEEDS - INCREASING SUCCESSFUL DEVICE USE 12 14
THE FEITEN FAMILY ENDOWMENT
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BALANCING DIABETES AND RUNNING A BUSINESS EPIC CONFERENCE 2022 TUSCON TO PTOWN - A 3,000 MILE BIKE RIDE FOR T1D
Mark Atkinson, Ph.D. Professor of Pathology & Pediatrics, Director, University of Florida Diabetes Institute Ezio Bonifacio, Ph.D. Professor for Preclinical Approaches to Stem Cell Therapy, Center for Regenerative Therapies, Dresden, Germany Robert Eckel, MD Professor of Medicine, Physiology and Biophysics, University of Colorado School of Medicine
Mr. Robert Garelick Mrs. Deidre Hunter Mr. Shawn Hunter Mr. Steve Lucas Mrs. Marcela de la Mar
SPRING BRASS RING 2022
SCIENTIFIC ADVISORY BOARD: Richard S. Abrams, M.D. Director, Colorado Preventive Medicine, Rose Medical Center; Clinical Professor of Medicine UCD
John J. Reilly, Jr., M.D. Vice Chancellor for Health Affairs & Dean, School of Medicine, University of Colorado Denver Mr. Ken Rickel Mrs. Stacy Mendelson Robinson Marian Rewers, M.D., Ph.D. Ex-Officio Member Mr. Joseph Smolen Mrs. Tracy van Orman Mrs. Cindy Wells
Matthias Hebrok, Ph.D. Professor in Residence and Director, Diabetes Center, University of California, San Francisco Steven Kahn, MB, Ch.B. Professor of Medicine, Director of the Diabetes Research Center, University of Washington Rudolph Leibel, MD Professor of Pediatrics and Medicine, Co-Director, Naomi Berrie Diabetes Center, Columbia University Alvin Powers, MD Professor of Medicine, Molecular Physiology/Biophysics, Division Director, Vanderbilt University William Tamborlane, MD Professor of Pediatrics, Yale University School of Medicine
NewsNotes is published quarterly by the Children’s Diabetes Foundation. If you would like to submit an article or a letter to NewsNotes, send information to cdfcares@childrensdiabetesfoundation.org. Kenna Black, Editor Zachary Reece, Graphic Designer
Facebook.com/ ChildrensDiabetesFoundation
@CDFdiabetes
@CDFdiabetes
WWW.CHILDRENSDIABETESFOUNDATION.ORG CDFcares@ChildrensDiabetesFoundation.org • 303-863-1200
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MAIL CHECK PAYMENTS AND DONATIONS TO: Children’s Diabetes Foundation Dept #880505, PO Box 29650, Phoenix, AZ 85038-9650
PHYSICAL ADDRESS: 3025 South Parker Road, Suite 110 Aurora, CO 80014
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DIABETES NEWS
THE FUTURE OF DIABETES TECHNOLOGIES Diabetes technologies move forward so quickly that we have started to witness a new product FDA approval every quarter. We discussed upcoming diabetes technologies with Halis Kaan Akturk MD, Assistant Professor of Medicine and Pediatrics at the Barbara Davis Center for Diabetes, Adult Clinic at the University of Colorado. Dr. Akturk also serves as the Communications Director of American Diabetes Association; Diabetes Technology Interest Group and he was the speaker for diabetes technologies at the recent EPIC Diabetes conference supported by CDF and the BDC. We took a deep dive into the new diabetes technologies that are highly anticipated in 2022 with Dr. Akturk and are ready to give you the breakdown.
CONTINUOUS GLUCOSE MONITORS (CGM) CGM use has been shown to improve glycemic control, decrease severe hypoglycemia and decrease long term diabetic complications. With recent developments in the CGM field, CGMs have been more accurate, easy to use, and integrated with hybrid closed-loop insulin pumps. Therefore, CGM use has significantly increased among people with type 1 diabetes. Currently we have the following FDA approved CGMs: Freestyle Libre 2, Dexcom G6, Medtronic Guardian Gen 3 and Senseonics Eversense. Let’s have a look at recently FDA approved and highly anticipated approvals in 2022. Freestyle Libre 3 was FDA approved May 31, 2022, and it will continuously glucose monitor as opposed to the previous generation, Freestyle Libre 2, which was intermittently glucose monitoring. Libre 3 will be the smallest CGM ever made, about the size of 2 pennies stacked together, factory calibrated (which means no fingerstick required), it has optional alarms, and it can be used with a smartphone app only. This CGM will be used for 14-days and will be available for children and adults. Eversense E3 was just FDA approved a few months ago and it is the only implantable long term CGM in the market. It is placed on the upper arm with a small in-clinic surgical procedure without any stitch, and it remains underneath of the skin for 6-months. Every 6-months the sensor is removed, and another sensor is placed in the other arm. There is a small transmitter worn on the skin that transmits CGM data to your smart phone. This transmitter needs to be charged daily for 10-15 minutes. It has optional alarms with smartphone and vibration alarms with the transmitter and is currently only available for adults. This CGM requires one daily calibration per day, and two calibrations per day in the first 3 weeks of use. Dexcom G7, not-FDA approved yet, but highly anticipated FDA approval in summer 2022, will have no calibration, is 60% smaller than current G6, and will have capacity to communicate with hybrid closed-loop pumps such as Omnipod 5 and Tandem Control IQ. With the integration of sensor and transmitter, it will be one piece unlike G6 which has two components; sensor and transmitter. It will be approved for children and adults and expected an FDA approval to be used on arm and abdomen. There will be a 12-hour grace period to replace the finished sensors for a more seamless transition between the two. Warm up duration will be 30 mins, which will be the fastest in the market. Medtronic Guardian Gen 4 is anticipated to receive FDA approval in 2022. It will be an improved sensor compared to the Gen 3 which will communicate with the Medtronic 780G hybrid closed-loop (which is not FDA approved yet). It is expected to have either no calibration or one calibration per day with US approval. In Europe it was approved with no calibration. Sensor duration will be the same as Gen 3 – 7 days. Medtronic will have a completely new CGM, called Synergy, which will be one of the smallest CGMs in the market. This new generation CGM will be similar to the Dexcom G7 and the Libre 3 and will not require over-taping like other Medtronic CGMs. It also will not need to calibrate and is expected to be approved for children and adults.
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With the advancement in hybrid closed-loops, people with type 1 diabetes can achieve better glycemic targets and using suspension systems, they can avoid hypoglycemia. Currently available hybrid closed-loop systems are Medtronic 670G and 770G, Tandem Control IQ and recently approved Omnipod 5.
Omnipod 5 was recently FDA approved and is the only tubeless hybrid closed-loop system. It works with Dexcom G6 and is approved for children and adults. Omnipod 5 has SmartAdjust technology that automatically adjusts insulin delivery based on CGM data. It is the only hybrid closed-loop system that has a built-in-bolus system that automatically incorporates the CGM data and trend. It has an activity feature which can prevent hypoglycemia and targets can be adjusted between 110 to 150 mg/dl. Omnopid 5 can be controlled fully with a smart phone app.
Tandem Control IQ is another popular hybrid closed-loop system that works with Dexcom G6 and is approved for children and adults. It has a sleep mode feature which is a basal management system for a better sleeping blood sugar and exercise mode feature which increases the target so hypoglycemia can be prevented. With integrated auto boluses for high blood glucose, this pump not only increases basal insulin but can also give additional auto boluses based on the CGM data. New models of Tandem are expected with smaller tubing and half the size of the current pump. Eventually a tubeless option will be available with smart phone control.
DIABETES NEWS
HYBRID CLOSED-LOOP PUMPS
Medtronic 780G is different than currently available 670/770G models, 780G will use improved Gen 4 Medtronic CGM with less calibration/no calibration and will give additional auto boluses as a response to high glucose. In 780G, target can also be changed from 100 to 120 mg/dl. It will have an exercise mode feature to help prevent hypoglycemia. It will be approved to be used in children and adults.
Ilet will be the first hybrid closed-loop pump that will no longer require carb counting. The system will learn over time with the user notifying the pump with usual, more, or less-than-usual meal announcements. The system will start with the user’s weight and there will be no basal insulin adjustments. It is expected to be approved in 2022 for children and adults. In new generations of this system, a dual hormone pump using glucagon and insulin will be used. In the current model it is only insulin.
It is a very exciting time for those with type 1 diabetes as more and more technologies are coming to the market. With many of these companies competing with each other, new technology is getting approved every quarter that could make type 1 diabetes easier to manage. To learn more about the new diabetes technology coming to the market, please contact your doctor.
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THE GUILD
2022 CHARLOT TE TUCKER SCHOLARSHIP The Guild of the Children’s Diabetes Foundation proudly awarded $4,000 scholarships to 20 well-deserving patients of the Barbara Davis Center who are pursuing their passion through higher education. The recipients are headed into a variety of fields, all with big dreams and an inspiring drive. We are thrilled to honor these special students as they forge forward to a brighter future. On June 2nd 2022 a reception was held in honor of the Charlotte Tucker Scholarship recipients. The reception was held at the beautiful Cherry Creek Country Club. The Guild President, Lori Finch, welcomed recipients, families, and guests. Guest speaker, Christina Finch, spoke about handling diabetes in college, and how to thrive with the many changes that come with college. Carole Kaiser, Scholarship Selection Chair, introduced the recipients and spoke a few words about each. Lori Finch then presented each with a certificate of recognition. The recipients were invited to say a few words and each gave thanks to the Children’s Diabetes Foundation and the Guild. Many shared inspirational stories, and a few shared some funny anecdotes. These students have overcome so much over these past few difficult years and they each are incredibly inspirational. A special thanks to our Charlotte Tucker Scholarship Chair, Carole Kaiser, for her years of service to the CTS committee. Thank you to our Charlotte Tucker Scholarship Committee, Lori Finch, Paul Buchholz, Katie Grassby, Elizabeth Hamer, Cheryl Lebsock, Lynnie Lucas, Chris Petre, and Brenda Neyman. We had an outstanding group that met to review the 29 applicants for the 2022-2023 school year. The process is never an easy one as all the students are truly amazing and it is very challenging to narrow down the recipients.
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Keva Browner Chapman University
Sarah Connors University of Colorado, Colorado Springs
Ian Fleming University of Colorado Boulder
Francis Ntumy University of Northern Colorado
Trinity Peltier Northwest Community College
David Prado Colorado State University
Regina Razo Colorado State University Pueblo
Annika Reeder University of Pennsylvania
Ethan Schieck Metropolitan State University
DJ (Dennis Joseph) Smith University of the Cumberlands
Ethan Smith Metropolitan State University of Denver
Alli Stromberger University of Wyoming
Brody Swenson Colorado School of Mines
Avery Waters University of Colorado, Colorado Springs
Jonah Watts St. John’s University
Sofia Wendell Northeastern University
Alexandra Wentland University of Minnesota at Crookston
Ellie White Community College of Aurora
Nathan Wright Colorado School of Mines
THE GUILD
Brennan Rundio University of Colorado, Colorado Springs
SCHOLARSHIP OPPORTUNITIES FOR 2023-2024 The Guild is always proud to award scholarships to high school seniors and college students who are current patients at the BDC. Applications for the 2023-24 school year will be available at ChildrenDiabetesFoundation.org. Patients who are college or trade school bound will be notified regarding applications. If you do not receive information or have questions, please contact Sydney Rickert at 303-628-5115 or email Sydney@ChildrensDiabetesFoundation.org.
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FOR DIABETES EDUCATION & DIGITAL RESOURCES Julie Feiten and her husband, Dr
CDF NEWS
THE FEITEN FAMILY ENDOWMENT
Dan Feiten, know firsthand how technology has provided lifechanging benefits for children with Type 1 diabetes. More than 25 years ago, their three sons were each diagnosed with this condition before they were two years of age. The challenges were enormous. There were no insulin pumps, no CGM’s and no glucometers that had memory to record blood sugars. Every blood sugar result and thousands of insulin shots were recorded in three color-coded binders. “We referred to the Pink Panther Book a lot and we relied on the excellent staff at the Barbara Davis Center to help us know what to do when our boys were ill, or their blood sugars were out of control” said Julie Feiten. “A simple stomach virus running through our family could be a nightmare for us.” The Feitens have graciously given back to our foundation by creating the Feiten Family Endowment for Diabetes Education & Digital Resources. It is their intention to bring experts together to help create digital online resources and applications to educate families and other caregivers and help them manage the nuances of Type 1 diabetes. While the work of the endowment is still in its infancy, some of the practical solutions might be: • Create an online knowledge base of videos and clinical content that new families can refer to after their initial diagnosis. Track outcomes and revise accordingly. • Digitize current paper resources so that diabetes management is accessible to all. • Create Self-Assessment Tools that help patients and families manage their diabetes. • Publish knowledge snippets from the Barbara Davis Center to make content more accessible nationally and to highlight experts at the Center. Dr. Dan has been recognized for his expertise in digital health over the past 20 years. A pediatrician at Greenwood Pediatrics in south metro Denver, he collaborated with Dr. Bart Schmitt at Children’s Hospital Colorado to put a pediatric symptom checker on the websites of thousands of pediatricians around the country. He brought together a team of industry experts to create mobile and desktop applications to help pediatricians and parents communicate with each other. Today, thousands of pediatricians and millions of parents have benefitted from those digital online resources and mobile applications. After 35 years, Dr. Dan is leaving his pediatric practice and has accepted a position to be the Medical Director of Office Practicum, the largest pediatric EHR provider in the country. With that transition, he will have the time and additional resources to create digital solutions that benefit all families who have children with Type 1 diabetes.
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TRAVELING WITH DIABE TES HOW TO BE PREPARED THIS SUMMER BY BETSY OT TEN AND EMILY BORANIAN
Traveling with diabetes can be intimidating if this is the first time after diagnosis, if you don’t do it often or if you’ve had a bad experience in the past. The best thing that we can do to mitigate risk of issues and to make the process as smooth as possible is to make sure you are well prepared. Regardless of what you use to manage your diabetes, be it meter and insulin, a CGM or insulin pump or only medications, being prepared for the worst means you’ll be less likely to experience it. Below are some tips provided to patients at the BDC.
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RECOMMENDATIONS FOR FLYING WITH TYPE 1 DIABETES General Recommendations • Bring a travel letter and wear medical ID • If traveling out of the country, find out the equivalent of 911 prior to the trip.
• Pack all diabetes supplies in your carry-on bag. Check with your • • • • •
airline about "medical bag" allowances in addition to regular carry-on/personal items. Bring 3 times the amount of supplies you think you will need. Remember to bring supplies you do not use every day (i.e. Ketone strips, Glucagon). Traveling could affect blood sugars differently than a normal day. Monitor BGs throughout the travel day. Long airplane or car trips may mean you need more insulin. Allow extra time when going through security. If you do not go through x-ray equipment or full body scanners, TSA may require a pat down. Ice packs for medical reasons (i.e. Keeping insulin cool) are allowed regardless of physical state of matter (i.e. Melted/slushy), but you will need to notify the TSA officer at the checkpoint for inspection. Or you can use products like Frio packs or CaseMD products to keep insulin cool while traveling.
If you use an insulin pump... • Bring a hard copy of your current pump settings/insulin dosing. • Check with your pump manufacturer to see if they offer a loaner • •
• • • •
pump program in order to carry a backup pump in case of failure while traveling. Bring supplies to give insulin via injection. Especially long-acting insulin to replace basal in case of pump failure. We recommend that insulin pumps not be exposed to magnetic fields or x-ray equipment, including full body scanners. If you have further questions or concerns check with your pump/CGM manufacturer about recommendations for taking devices through security. Disconnect the pump during takeoff as the pressure can cause a small bolus to be delivered. If you are unable to disconnect pump (i.e. Omnipod) be aware this could happen and monitor BGs. After landing disconnect the pump and prime the tubing as needed to clear air bubbles. Large pressure changes (i.e. If oxygen masks are required) could trigger a larger bolus (up to 8u) Monitor BGs closely if this happens. Change the time/date on your insulin pump when you arrive at your destination and then when you return home.
If you are on injections... • If you are crossing multiple time zones, create a plan with your provider about how to give your long-acting insulin.
For blood glucose meters and/or a CGM... • Update the date/time as needed when you arrive at your destination and when you return home. A smart device (i.e. Cellphone) receiver should update automatically, but other receivers/meters will not.
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BARBARA DAVIS CENTER
SEEDS A NEW PATHWAY TO INCREASE SUCCESSFUL DEVICE USE IN PEOPLE WITH DIABETES BY ANGEL A J. KARAMI Each year, new diabetes technologies come to the market and bring new hope to people with diabetes and their families. Diabetes devices, such as continuous glucose monitoring systems, connected insulin pens, insulin pumps, and hybrid closed-loop systems, can improve outcomes in people with diabetes. Unfortunately, these technologies are underused by healthcare professionals that prescribe them. This is particularly true within primary care practices, which provide care for most people with diabetes. Primary care providers often report lack of confidence in prescribing these devices and too many resources available to successfully learn about them. Difficulties starting devices exist among all providers that care for people with diabetes, with too many resources, lack of support, and too little time cited as common reasons. The Helmsley Charitable Trust has awarded a 2.7 million dollar grant to work towards resolving these issues in a new project, Shared Empowerment for Early Device Success (SEEDS). SEEDS is led by Dr. Laurel Messer and her research team at the Barbara Davis Center and University of Colorado Department of Family Medicine. SEEDS has one main goal: to develop an online platform to aid providers with the confidence they need to start patients with diabetes on devices that will help them. Messer states, “This is an exciting opportunity to help other healthcare professionals get comfortable with diabetes devices that we use all the time at Barbara Davis Center. Everyone with diabetes should have opportunities to try new devices to make their diabetes easier to manage.” The project is joined by medical software company DreaMed Diabetes in creating the digital platform. The company has previously developed an automated system for diabetes device insulin dosing recommendations, which will be built upon for the SEEDS project. Automated insulin delivery recommendation support for new insulin pump technologies will be combined with SEEDS components developed by investigators at the university that will support healthcare providers and people with diabetes through the process of starting new devices. The aims of the project are to find what makes starting devices easier and difficult in a sustainable way through the SEEDS pathway, test the pathway in healthcare settings that care for people with diabetes, and demonstrate practicability of incorporating the model into current healthcare workflow. The SEEDS pathway will be assessed in a series of five parts, outlined below:
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The SEEDS project will plan to enroll fifteen healthcare providers once the online platform has been developed, with five providers from each primary care, adult endocrinology, and pediatric endocrinology. Each of these providers will then recruit five of their own patients with diabetes to test the practical use of SEEDS. The project is planned to take place over three years with a long-term goal in creating a new care model that will benefit people with diabetes and their providers to start them on diabetes technologies. Stay on the lookout for updates on this project. For additional information, contact project coordinator Angela Karami, at Angela.Karami@cuanschutz.edu, or the project director Dr. Laurel Messer, at Laurel.Messer@cuanschutz.edu.
BARBARA DAVIS CENTER
The first part will consist of a start-up workshop between diabetes device experts at the Barbara Davis Center and providers recruited for the SEEDS project to give practical knowledge before starting the model in their practice. Providers enrolled in the project will recruit patients with diabetes from their clinic and will use tools in the platform to select the best device for their patient. Healthcare providers will receive support in device ordering, prescribing, and information on how the patient will get the device. The goal of SEEDS is to support the provider and their patients as much as possible during this process, supplying detailed instructions and resources where they may be needed. Once the patient receives their new device, patients will receive training and follow-up visits to support their success with the device. For insulin pumps, including hybrid closed-loop systems, providers will be supported with DreaMed’s software to begin insulin dosing recommendations and adjustments during follow-up visits. The software suggestions will be combined with behavioral and shared discussion recommendations that will be developed by Messer and physicians at the Barbara Davis Center and CU Department of Family Medicine. Educational resources will be available to patients on the SEEDS platform in an educational library.
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SPRING BRASS RING
SPRING BRASS RING RAISING $430,000 FOR TYPE 1 DIABETES
On April 12 the Guild of the Children’s Diabetes Foundation put on the showstopping 44th Annual Spring Brass Ring luncheon and fashion show, the Guild’s largest and signature annual fundraiser. The fabulous event showcased glamorous fashion, adorable T1D heroes, and a unique silent and live auction to raise funds for the Children’s Diabetes Foundation. CBS4’s Dominic Garcia, the Master of Ceremonies, led the event with presentations from Guild President, Lori Finch; Event Chairperson, Gina Abou-Jaoude; and featured designer, Lourdes Chavez, who showcased over 50 looks during the fashion show. BDC type 1 heroes were celebrated with a standing ovation, including Keller Sears, who opened the event with a prayer. Every year, the highlight of this event is seeing some of the heroes fighting type 1 diabetes. This year, kids walked the runway to a standing ovation with a thunderous applause. Each hero on stage has been a wonderful advocate for this disease and has been involved with the Children’s Diabetes Foundation and the Barbara Davis Center for many years. It’s unbelievable to see the bravery, strength, and courage these kids have. Attendees enjoyed lunch while auctioneer, Halie Behr, kicked off the live auction with a set of unique packages that raised over $35,000 alone. Items included an extravagant Denver date night; a week-long stay for 12 in Watercolor, Florida; diamond and white gold earrings from Trice Jewelers; and lunch and wine for 12 from celebrity chef, Troy Guard and Napa's VGS Château Potelle.
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Following the energetic live auction was an emotional video of Annie Williams and her family as they shared their story and their struggle with type 1 diabetes. The emotional moment was followed by Halie Behr as she presented the paddle raiser. During the special appeal, attendees raised their paddles to make donations ranging from $500 to $50,000. At each donation level, Behr explained specific opportunities that could be funded, such as producing beta cells for researching a cure, providing a closed-loop system to someone in need, depression screenings, continuous glucose monitors and supplies, insulin, and travel costs for clinic visits for those who live out of town. Because of these generous donors the event far exceeded its original fundraising goal!
SPRING BRASS RING
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BALANCING DIABE TES AND RUNNING A BUSINESS T1D TURNED ENTREPRENEUR
BY: JAZMINE SIMON, FOUNDER OF JAZMINE BEAUTY The day my life unknowingly changed forever was July 13, 2017. I was 15 years old when I was diagnosed with type 1 diabetes and told that I would have to live with it for the rest of my life because there is no cure for it. As I sat in the hospital bed, thinking about the months prior, I was numb. I thought about the excessive thirst, shortness of breath, and the 20-pound weight loss that caused my mom and I to fight all the time because she thought I was not eating. The doctors and nutritionists taught me what my new lifestyle would be like in a span of 2 days, and then they sent me home for my family and I to figure out ourselves. The doctors told me from the very beginning that if I took care of my diabetes, I would never have complications from it, and that’s exactly what I have been doing since day one. A few months after my diagnosis, when I went for my first checkup, the doctors were astonished by my blood sugar readings. They almost did not believe they were my blood levels. When I asked them why they reacted in the way they did, they simply told me that most people do not take care of their diabetes, and that shocked me. From the moment I heard of the long-term consequences of not taking care of your diabetes, I didn’t need to hear anything else. I don’t take care of it just for me, but for the people who love and care about me. This brings me to mentioning why I started my beauty line, Jazmine Beauty. Jazmine Beauty is a clean, vegan, and cruelty-free beauty line. My mom has been in the beauty industry for over 30 years and started her own beauty packaging company known as Seacliff Beauty in 1999, so I have been around the industry my entire life. When I found out that there was no cure for diabetes, and that a lot of people did not know how to manage their diabetes, I knew there was something I wanted to do to raise money towards this because that was so personal to me, and beauty was the perfect way to do this since I have a true passion for it. With every sale my beauty line makes, through our partnership with the University of California, Irvine, proceeds from that sale will go towards research to help find a cure and support groups for diabetes patients. Now, fast forward unto today, almost 5 years later, I am 20 years old, I used to attend Concordia University in Irvine, California, but I took the semester off while I decide which school I would like to attend next. I balance college, diabetes, and running a business by taking life slow and not stressing myself out. I don’t wait last minute to do things, I always keep my blood sugar in check, exercise at least 4 times a week, and I always make sure I am doing everything I can to help my business to grow. Diabetes will never stop me from accomplishing anything!
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UPCOMING FUNDRAISERS
Don’t Sugar Coat It 5K
Fun run/walk with food, drink, and raffles all to benefit people affected by type 1 diabetes. CDF receives 50% of the proceeds. Register at raceroster.com/events/2022/59654/dont-sugar-coat-it-2022-5k
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With so many facets for diabetes care, it’s impossible to learn everything
you need to know in quarterly appointments, even after many years of living with the disease. The Children’s Diabetes Foundation and the Barbara Davis Center partnered together to bring back the virtual EPIC Diabetes Conference to give patients, families, caregivers, and healthcare providers an in-depth look on Diabetes in the Future. The Fifth Annual EPIC Diabetes Conference focused on connectivity and offered two different tracks for attendees to tailor their experience: pediatric and adult. Sessions covered a variety of topics including Adult & Pediatric Diabetes Technologies, The Future of Non-Insulin Therpeutics for Pediatrics, Anticipating Needs in a Changing Environment, and Weight Management. The event provided attendees the opportunity to improve their individual care, embrace the diabetes community, and reinforce the fact that they are not alone with this disease. This year’s conference, virtual for the second consecutive year brought together hundreds of people from 19 states and 5 different conuntries. Workshops included a 15-minute presentation by each speaker, followed by 45 minutes for questions from attendees. The format allowed attendees the opportunity to connect directly with Colorado's top endocrinologists and diabetes specialists in real time, even though they weren’t in the same room. Keynote speaker Lori Sussel, PhD, provided an in-depth presentation, Working Towards a Cure, discussing the recent progress and challenges in developing new treatments for type 1 diabetes, including the generation of alternative sources of insulinproducing cells and novel transplantation approaches. Lori Sussel is the Research Director of the Barbara Davis Diabetes Center (BDC) and Director of the NIDDK-funded University of Colorado Diabetes Research Center. She received her graduate degree from Columbia University Medical School and pursued a postdoctoral fellowship at the University of California, San Francisco. Other presenters and moderators were Halis Akturk, MD, David Saxon, MD, Greg Forlenza, MD, Brigitte Frohnert, MD, PhD, Elizabeth Buschur, MD, Holly O’Donnell, PhD, Dan Bessesen, MD, Jennifer Tilden, LCSW, Kalie Tommerdahl, MD, and Sarit Polsky, MD, MPH. Did you miss the conference? Don’t worry, we’ve got you covered! Visit epicconferences.org/2022-presentations to view slides from the virtual event.
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A 3,000 BIKE RIDE IN SUPPORT OF TYPE 1 DIABETES Children's Diabetes Foundation supporter, Gene, is riding his bike from
Tucson, AZ to Provincetown, MA to help raise money for CDF and two other charities beginning in June! "It is roughly 3000 miles across our country mostly along the byways of the USA. I’m thinking it’s about sixty days on the road sleeping here and there and probably getting a little crusty as time passes. Won’t be the first time, getting a little crusty, that is. I have a good solid bicycle, good rubber, a good headlight that works, not much gear (enough though), and a strong sense of direction, I don’t get lost much. I do have a phone and am told there are maps on the phone. I have a pretty good idea of the way. My team and I have a website. From there you will have access to progress and how the donations are going." The inspiration for the ride to Ptown came from a friend’s daughter, Anna, who is type 1. Anna tells her story like this, “When I was 5 years old, I was diagnosed with Type 1 Diabetes. For a few weeks I was constantly exhausted, drinking a ton of water, and overall feeling very sick. I didn’t know what was happening to me so my response to my concerned mom was, “I’m fine”. Soon after, we realized I wasn’t, and rushed me to the hospital where I spent 3 days in the ICU. Ever since those few days in the hospital, I have lived the past 13 years dealing with a new challenge every day. I slept in the same room as my parents until I was about 13 years old out of fear that my blood sugar would drop in the middle of the night and I wouldn’t be able to tell. I was given insulin injections multiple times a day for the first 6 months of my diagnosis, until I was fortunate enough to be put on an insulin pump, which meant only one 1 injection every few days. I have woken up to paramedics at my house in the middle of the night because my blood sugar dropped so low that my parents couldn’t wake me up. Every day is different than the day before, and every day is a new challenge. No matter what I am doing, or where I am, it is always my top priority. It is exhausting, stressful, and terrifying at times. Many children are diagnosed and are unable to access the treatment and care they need. This is a huge problem that needs to be addressed. Children with diabetes need to be able to access insulin and all of the supplies they need to live the life they deserve.” The ride from Tuscon to Ptown is about kids and adults with diabetes. To follow Gene's ride visit his website at tucson2ptown.org.
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CDF NEWS
TUSCON TO P TOWN
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Children’s Diabetes Advisory Board Members and Guild Presidents
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THE GUILD PRESIDENTS:
ADVISORY BOARD:
Founding President, Amy Davis Mrs. Gina Abou-Jaoude Mrs. Christy Alberts Mrs. Jamie Angelich Mrs. Karen Aylsworth Mrs. Linda Broughton Mrs. Tangy Buchanan Mrs. Joy Burns Dr. Bonita Carson Mrs. Lisa Corley Mrs. Nancy Cowee Mrs. Dalyla Creaghe Mrs. Norma D’Amico Ms. Donna Douglas Mrs. Margy Epke Mrs. Lori Finch Mrs. Chris Foster Mrs. Helenn Franzgrote Mrs. Sally Frerichs Mrs. Debbie Gradishar Mrs. Helen Hanks Mrs. Georgia Imhoff Mrs. Marty Jensen Mrs. Gail Johnson Mrs. Sharon Kamen Mrs. Janet Knisely Mrs. Cheryl Lebsock Mrs. Shelley Lucas Mrs. Suzy Love Mrs. Judy McNeil Mrs. Sally Newcomb Mrs. Barb Oberfeld Mrs. Gretchen Pope Mrs. Carol Roger Mrs. Kay Stewart Mrs. Diane Sweat Ms. Charlotte Tucker Mrs. Loretta Tucker Mrs. Melissa Tucker Mrs. Jane Weingarten
Sir Michael Caine Mrs. Lisa Corley Mr. and Mrs. Robert A. Daly The Honorable Diana DeGette, U.S. House of Representatives, Colorado Mr. Neil Diamond Mr. Placido Domingo Mr. John Elway Mr. David Foster Mr. Kenny G Mr. David Geffen Mr. Magic Johnson Mr. Quincy Jones Ms. Sherry Lansing Mr. Jay Leno Mr. Mo Ostin Mr. Lionel Richie Mrs. Adrienne Ruston Fitzgibbons Mr. George Schlatter Ms. Maria Shriver Ms. Brenda Richie Ms. Barbera Thornhill Miss Joan van Ark Mrs. Cindy Wells Mr. Gary L. Wilson Mr. Stevie Wonder See complete list at ChildrensDiabetesFoundation. org
new donation mailing address AS OF JANUARY 21, 2022 PLEASE MAIL CHECK PAYMENTS AND DONATIONS TO: CHILDREN’S DIABETES FOUNDATION DEPT #880505 PO BOX 29650 PHOENIX, AZ 85038-9650
Children’s Diabetes Foundation 3025 South Parker Road, Suite 110 Aurora, CO 80014 www.ChildrensDiabetesFoundation.org 23
