NewsNotes - Fall 2019 by cdfdiabetes

NEWSNOTES CHILDREN’S DIABETES FOUNDATION - FALL 2019

#DIABETESAWARENESSMONTH PAGE 3

OLIVIA’S GARDEN AT BDC PAGE 14

NEWSNOTES FEATURES

Children’s Diabetes Foundation Board Members

RUN FOR THE RING 5K & FUN RUN

CHARLOTTE TUCKER SCHOLARSHIP RECIPIENTS

BONE HEALTH IN TYPE 1 DIABETES

EXECUTIVE BOARD:

SCIENTIFIC ADVISORY BOARD:

Mrs. Barbara Davis, Chairman Dana Davis, Executive Director

Richard S. Abrams, M.D. Director, Colorado Preventive Medicine, Rose Medical Center; Clinical Professor of Medicine UCD

Mr. Cameron van Orman, Vice Chairman Richard S. Abrams, M.D. Stephen Daniels, M.D., Ph.D. Chairman of Pediatrics The Children’s Hospital, Denver Mrs. Nancy Davis Rickel Steven Farber, Esq.

OLIVIA’S GARDEN AT BDC

Daniel Feiten, M.D. Mr. Shane Hendryson

UPCOMING EVENTS

Mrs. Deidre Hunter Mr. Shawn Hunter

Mr. Ken Rickel

Matthias Hebrok, Ph.D. Professor in Residence and Director, Diabetes Center, University of California, San Francisco

John J. Reilly, Jr., M.D. Vice Chancellor for Health Affairs & Dean, School of Medicine, University of Colorado Denver

Steven Kahn, MB, Ch.B. Professor of Medicine, Director of the Diabetes Research Center, University of Washington

Mrs. Stacy Mendelson Robinson

Rudolph Leibel, MD Professor of Pediatrics and Medicine, Co-Director, Naomi Berrie Diabetes Center, Columbia University

Mr. Steve Lucas

20 21

1 SWEET CRUISE 2019 CAROUSEL BALL

Ezio Bonifacio, Ph.D. Professor for Preclinical Approaches to Stem Cell Therapy, Center for Regenerative Therapies, Dresden, Germany Robert Eckel, MD Professor of Medicine, Physiology and Biophysics, University of Colorado School of Medicine

Mrs. Arlene Hirschfeld

Mark Atkinson, Ph.D. Professor of Pathology & Pediatrics, Director, University of Florida Diabetes Institute

Mrs. Tracy van Orman

Marian Rewers, M.D., Ph.D. Ex-Officio Member

Alvin Powers, MD Professor of Medicine, Molecular Physiology/Biophysics, Division Director, Vanderbilt University William Tamborlane, MD Professor of Pediatrics, Yale University School of Medicine

NewsNotes is published quarterly by the Children’s Diabetes Foundation. If you would like to submit an article or a letter to NewsNotes, send information to Brent@ChildrensDiabetesFoundation.org.

Photo: © www.JensenSutta.com

Facebook.com/ ChildrensDiabetesFoundation

Zachary Reece, Graphic Designer Brent McDaniel & Dana Davis, Editors

@CDFdiabetes

CDFcares@ChildrensDiabetesFoundation.org 303-863-1200 • 4380 S. Syracuse St., Ste. 430 Denver, CO 80237

NOVEMBER IS #DIABETESAWARENESSMONTH #DiabetesAwarenessMonth is the perfect time to start a conversation with someone about your type 1 diabetes. Talk to a family member, friend, or coworker about type 1 diabetes – you never know what questions they might have, even if they’ve known you since your diagnosis. Share your daily management routine or explain the differences between type 1 and 2. When you take the time to share about type 1, we all become better allies in the search for the cure. All during November, wear blue – the color for diabetes awareness – to show your support. Don’t forget to use #DiabetesAwarenessMonth and tag CDF in your photos, stories, and posts this November.

#DIABETESAWARENESSMONTH

Facebook.com/ ChildrensDiabetesFoundation

@CDFdiabetes

And what better way to cap off #DiabetesAwarenessMonth than to schedule your donation to Children’s Diabetes Foundation for Colorado Gives Day! Starting November 1st, visit ColoradoGives.org/CDF to schedule your gift for the big day, December 10, 2019.

5TH ANNUAL

RUN FOR THE RING

On Saturday, August 3rd the 5th Annual Run for the Ring 5K

and Kids Fun Run presented by Empower Retirement was held at the Barbara Davis Center for Diabetes on the beautiful University of Colorado Anschutz Medical Campus. More than 360 runners, walkers, strollers, and participants of all ages came together in support of reaching the brass ring - the cure for type 1 diabetes. Fun Run has their own track, splash zones, bounce house, balloon twisting, face painting, and a foam party that will not be forgotten! Teams were a huge hit this year with 21 race groups that created their own shirts, wore costumes, and enjoyed the Team Village. Congratulations to Dr. Lori Sussel’s Team, The Barbara Davis Center Research Division, for winning the largest team with 36 members! First place finishers for our 7 divisions were given medals at the awards ceremony presented by Dexcom. Sarah Johannes was our largest individual fundraiser with more than $2,385 in donations honoring her daughter who was diagnosed 7 months ago. Special thanks to Runner’s Roost for donating a $100 gift card for each of the overall male and female winners, Bladium Sports & Fitness for donating the 2-hour team building prize package, and Elvis Cinemas for providing family movie passes for the top fundraiser. Thank you to our generous sponsors 106.7 The Bull, iHeart Media, Transcend, Dexcom, Denver Kids Out and About, Eldorado Springs, Caribou Coffee, Einstein’s Bagels, and META MVMT for your participation. Run for the Ring is made possible by our incredible volunteers and community: Chairman Katie Grassby, DJ Chelsea Thomas, Emcee Buzz Sweat, Wheat Ridge Poms, Thunder Ridge Poms and Lacrosse teams, Paige Trumble, and Aurora Fire Rescue. A special thanks to our committee: Christy Alberts, Analisa Clealand, Lori Finch, Kate Frost, Cheryl Lebsock, Lyn Schaffer, Juli Smolen, and Christy Vasey. We truly couldn’t do it without you!

Photos: © Jared Wilson Photography

AND WHAT IT MEANS FOR PEOPLE WITH DIABETES BY R. PAUL WADWA, MD

On July 24, 2019, the FDA approved intranasal glucagon

(Baqsimi, pronounced “back-see-mee”) for patients with diabetes mellitus ages 4 years and over. This is big news, but it raises many questions at this time. We will try to cover some of these here and hopefully answers to others will become more clear very soon.

First, what is glucagon?

Who can use it?

The product is approved by the FDA for people with diabetes mellitus ages 4 years and over. At this time, it is not approved for use in Europe or Canada, but authorities are reviewing the new formulation. In the United States, the product is being released to pharmacies in early to midAugust 2019.

Glucagon is a hormone made by the body which normally acts as a counter balance to insulin. A synthetic version of glucagon has been available for several decades in an emergency injection kit for the treatment of severe hypoglycemia. Because this form of glucagon is not stable in liquid form, the kit contained a powder that had to be mixed with a diluent and then drawn up into a syringe before given as a subcutaneous or intramuscular injection. Injection of the synthetic glucagon causes glycogen from the liver to be broken down and glucose is released into the blood stream to raise the blood sugar.

When should it be used?

What is Baqsimi?

What is the cost?

Baqsimi is a new form of glucagon from Eli Lilly and Company. It is the first glucagon that does not require an injection and it can be administered in the nose. It will come as a fine powder within in a single-use device to administer the drug in the nostril where it will be absorbed in the nasal lining.

Baqsimi should be used to treat severe hypoglycemia. The device is single use and is just available in one strength (3 mg), so only one full dose is given with the device. The dose may not be decreased. It should be used in cases of low blood sugar with loss of consciousness or seizure. It is not intended for “low dose” use or for self-treatment. The side effects seen with nasal glucagon include the same side effects seen with injectable glucagon (nausea, vomiting, headache) and also symptoms of nasal irritation or discomfort and irritated or watery eyes.

DIABETES NEWS

FDA APPROVAL OF NASAL GLUCAGON

This is difficult to answer right now. Eli Lilly is still working with insurance carriers to get nasal glucagon on formularies. They are also offering discount cards but these have some restrictions such as a requirement for private insurance. That means patients with Medicaid, Medicare and Tricare insurance would not be eligible for the discount cards. Paying out of pocket will be expensive. The cost is about the same as the injectable glucagon, which is around $300 for a kit (depending on the pharmacy). For more information about discount cards see www.Baqsimi.com.

No inhalation is required.

A person administering glucagon inserts the tip of the device into the nostril of the person in need of glucagon and pushes a button on the bottom of the device. The spring loaded mechanism will release the powder and the drug will be absorbed in the nasal lining with no inhalation required. Research studies documenting the effectiveness of the new formulation include two studies in adults with diabetes and one pediatric study. Two of these three studies included the Barbara Davis Center as one of the sites conducting the trials.

In summary, this new formulation of glucagon will be easier to administer than the current injectable glucagon emergency kits in the case of a severe hypoglycemic event. This should translate to improved administration and could be life-saving for people with diabetes requiring urgent treatment for severe low blood sugars. Disclosures: Dr. Wadwa serves on an advisory board for Eli Lilly and receives research support for a clinical trial initiated by Eli Lilly and unrelated to nasal glucagon.

WINNER'S CIRCLE

CYCLING FOR A CURE BY SARAH SCOTT

This July, my mom, Mary Scott, and I rode our bikes from Buffalo to

Syracuse, New York. I have been riding more and more over the past few years and have shared my adventures, challenges, and learning with mom. Mom decided that riding the Erie Canal would be the perfect first multi-day ride and we rode with my parent’s friends, Nicole and Bill Cooper and Cindy O’Connor. My dad, Keith, drove support for our group so we had someone to watch over us on our journey. Riding together with friends and family was a fantastic mother-daughter opportunity for us and helped bring awareness to CDF and type 1 diabetes. The Erie Canal is an engineering and historic wonder in New York state. As riders, we followed the towpath that was historically used by mules towing barges along the canal. It was beautiful riding on a mostly gravel path past farms, canal locks, and small upstate New York towns. The length of each day was very manageable as we rode between 40 and 60 miles a day. This allowed us time to stop and explore the locks, history, and towns along the canal. We loved meeting my dad at different stops along the way to explore and learn with him. I was diagnosed with type 1 diabetes in 1995 at 25 years-old and as for many with T1D, it was a complete shock. As I taught outdoor education in Wyoming, I recognized that physical fitness would always need to be an important part of my life – and an important and challenging part of my diabetes management. I was fortunate to become a patient of Dr. Garg’s at the Adult Clinic at The Barbara Davis Center in 1999 and about 5 years ago, I transitioned to the Medtronic 670G pump. As we embarked upon our adventure this summer, it became clear that riding the Erie Canal as a family and raising money to support finding a cure for T1D was a great match. Our goal was to raise $5,000 primarily for research and as of today, we have raised almost $7,000 for the Children’s Diabetes Foundation.

ELLIE’S ENTOURAGE

In May, 7-year-old Barbara

Davis Center patient Ellie Hampton from Viola, IL participated in her local JDRF chapter’s One Walk. From Ellie’s t-shirt fundraiser, she raised $650 for the Barbara Davis Center to go towards pediatric research. She presented her check to Greg Forlenza, MD at her appointment in June. Ellie hopes the money raised will help get us closer to finding a cure because “having diabetes is really hard.”

ON HER RETIREMENT

Carolyn Banion BS, MSN, PNP, CDE retired from the

Carolyn loved her clinical work. It was her passion to help children, teens, and families learn how integrate diabetes and diabetes care into a healthy, active life while keeping diabetes in balance. She considered it her duty to come to know her patients and their families so that she could use these insights, combined with her excellent instincts, to determine the best course of management for each patient. She gently pushed children and families to use new knowledge and technology to improve care. Carolyn celebrated each child’s success in school, sports, diabetes care, and other important personal and family events.

Carolyn is known nationally for her clinical and research work. Professional recognition includes Sigma Theta Tau Excellence in Research Award, Who’s Who in American Women, and Who’s Who in American Nursing. She has trained almost every nurse, NP, PA, resident, and fellow who has come to the Davis Center, teaching the practical aspects of family diabetes education and serving as a model for the importance of personal connections with patients and families to best help improve their care and their lives.

We will greatly miss Carolyn’s quiet, unassuming, yet powerful influence in the Pediatric Division, and wish her real joy in spending more time with family and in her other pursuits.

Barbara Davis Center at the end of August 2019. She was a graduate of the University of Kansas and spent the first part of her career working in Kansas City Children’s Mercy Hospital. She and her family moved to Colorado and she began work at the Children’s Hospital Denver in 1982 in the Division of Endocrinology and Diabetes. In 1987, she became a certified diabetes educator. She joined the BDC in 1994 when Children’s Hospital and the Barbara Davis Center combined their diabetes programs and she became a Pediatric Nurse Practitioner in 1996.

WINNER'S CIRCLE

CONGRATULATIONS TO CAROLYN BANION

THE GUILD

2019 CHARLOTTE TUCKER SCHOLARSHIP The Guild of the Children’s Diabetes Foundation

proudly awarded $4,000 scholarships to 23 welldeserving Barbara Davis Center patients pursuing their passion through higher education. The recipients are headed into a variety of fields, all with big dreams and an inspiring drive. Guild President, Cheryl Lebsock, welcomed recipients, families and guests. Guest speaker Stephanie Riggs spoke about overcoming over challenges and making them our strengths. Lori Finch, Scholarship Selection Chair, introduced the recipients and Cheryl Lebsock presented each with a certificate of recognition. The recipients were invited to say a few words and many gave thanks to the Children’s Diabetes Foundation and the selection committee, and a few shared some clever jokes and anecdotes with the audience.

A special thank you to Christy Alberts, who served as Scholarship Reception Chair and to the Selection Committee – Lori Finch, Lisa Corley, Jen Findlow, Helen Hanks, Warren Hanks, Carole Kaiser, Cheryl Lebsock, and Jan Livingston. The scholarship program was established in memory of past Guild President, Charlotte Tucker, who encouraged young people to pursue higher education.

Zetana Behymer Colorado State University

Cade Bender University of Wyoming

Renee Choksey Colorado State University

Madeline Courville Oregon State University

Sarah Fenton North Seattle College

Victoria Fino University of Colorado

Skylar Gallegos University of Colorado at Colorado Springs

Trystan Henderson Colorado Mesa University

Byron Long Chadron State College

Kerry McCawley Metropolitan State University of Denver

Samantha Nab Colorado State University

Francis Ntumy University of Northern Colorado

Gina Razzo Colorado State University

Emily Rogers Colorado State University

Lauren Ross Laramie County Community College

Olivia Sponsler-Sanchez University of Northern Colorado

Brody Swenson Colorado School of Mines

Abel Tesfa University of Colorado

Talia Trujillo University of Northern Colorado

THE GUILD

Matthew Linn Colorado State University

SCHOLARSHIP OPPORTUNITIES FOR 2020-2021

Benjamin Wester Pikes Peak Community College

Irene White Community College of Aurora

Cameron Williams Colorado Mesa University

The Guild is always proud to award scholarships to high school seniors and college students who are current patients at the BDC. Applications for the 2020-21 school year will be available in February 2020. Patients who are college or trade school bound will be notified regarding applications. If you do not receive information or have questions, please contact Miriam Andolini at 303-628-5115 or email Miriam@ ChildrensDiabetesFoundation.org.

FOUNDATION NEWS 10

SWING AWAY FOR CHILDHOOD DIABETES Swing Away Charities began as an idea:

â&#x20AC;&#x153;How do we give back to our community and have fun doing it?â&#x20AC;? This thought sparked Ryan Willis into action and led to their inaugural charity golf tournament in 2015. Since then, they have raised over $50,000 for different charities. This summer marked the first annual Swing Away for Childhood Diabetes Golf Tournament, benefiting Children's Diabetes Foundation. In addition to learning more about type 1 diabetes and enjoying a beautiful day at Saddlerock Golf Course, participants raised more than $5,300 to support CDF and the Barbara Davis Center for Diabetes. Special thanks to all the golfers who spent the day with us and our organizers, Jeremy, Ryan, and Joe at Swing Away Charities.

Patients from the Barbara Davis Center (BDC) attended the annual “Beyond High School Workshop” at the Nighthorse

Campbell Native Health Building, located at the Anschutz Medical Campus on June 10th. This workshop was an interactive program that prepares young adults with diabetes for several life changes during their transition from high school to college, to work, and living away from parents. Those who attended were young adults who have type 1 diabetes, who graduated from high school or who will be living on their own. There was also a two-hour session in the afternoon for parents to attend a question and answer session with a member from the BDC clinical team. The workshop was hosted by the BDC clinical staff, as well as college students who attended the program in 2018. An email will be sent to Barbara Davis Center patients in March 2020 regarding details for the Summer session of the Beyond High School Workshop, which is presented once a year. Please be sure your high school senior has an updated email address in the BDC database to ensure they receive the notification. This program is also open to high school seniors who are not patients of the BDC. For additional information, please email regina.reece@cuanschutz.edu.

BARBARA DAVIS CENTER

BEYOND HIGH SCHOOL WORKSHOP

The Barbara Davis Center & Children’s Diabetes Foundation Present:

EPIC Diabetes Conference SAVE THE DATE!

Join us for our one-day educational, interactive conference for type 1 and type 2 diabetes. April 25, 2020 | 9 am to 3:30 pm | Sheraton Denver Downtown Type 1 and Type 2 Diabetes | Pediatric, Adult, & Advanced Tracks

BARBARA DAVIS CENTER

BONE HEALTH IN TYPE 1 DIABETES BY VIRAL SHAH, M.D.

Fragility fracture and type 1 diabetes Bone tissue is hard but flexible and serves many functions such as supporting other organs and being a major store of calcium and phosphorus for the body. Bone is very active organ and it is estimated that the entire skeleton replaces itself over 10 years. Formation of new bone and removal of old bone (resorption) is a process regulated by your body. When there is an increase in bone resorption compared to how quickly your body can form new bones, your bones become more porous, known as osteoporosis. When you fracture a bone by falling from less than standing height, it is called a fragility fracture. Normally, bone should be able to handle the stress from a short fall without fracture. We reviewed studies involving 27,300 adults with type 1 diabetes and 4 million people without diabetes. We found that adults with type 1 diabetes are three- to four-fold higher risk for fracture than age and gender adjusted adults without diabetes. In addition, studies have shown a higher risk for fragility fractures at any given age when compared with people without diabetes. Not only that, fracture risk in adults with type 1 diabetes is higher even compared to people with type 2 diabetes.

How does diabetes effect bone? Little is known about how diabetes effects bone. It is believed that high blood sugar, for long periods of time, and impairment of collagen tissue quality from diabetes causes reduction in bone density and quality, which increases the fracture risk. In addition, the rate of bone formation is also slower in people with type 1 diabetes and therefore takes more time to heal fractures.

What are the risk factors for fragility fracture in type 1 diabetes? The following are factors which help determine the risk of fracture in people with type 1 diabetes: age, female sex, menopause, family history of fracture, history of fracture as a child, diagnosis of type 1 diabetes before 20 years of age, HbA1c >7.5%, duration of diabetes longer than 20 years, recurrent severe hypoglycemia, diabetic complications affecting normal vision and peripheral sensations.

What should you do to prevent fractures? The saying â&#x20AC;&#x153;prevention is better than cureâ&#x20AC;? is true with fractures too. Optimizing calcium and vitamin D intake, regular exercise, and bone density screenings are key to fracture prevention.

We recommend that females with type 1 diabetes should begin osteoporosis screening (DXA bone density scan) from age 45-50 (or as soon as they enter menopause). Males with type 1 diabetes should start osteoporosis screening from age 60. DXA bone density should be measured every two years, especially in those with low bone density or who have a higher fracture risk.

Title: Bone structural and tissue material properties in Type 1 Diabetes Purpose: This research study is investigating the effects of type 1 diabetes on postmenopausal women’s bone structure, mechanical quality and strength Main procedures: Blood draw and urine sample collection Bone density scan, CT scans Bone biopsy (optional) Duration of study: 1-2 visits (depending on an optional procedure) You might qualify if you are:

• a postmenopausal woman and at least 45 years old • are either a healthy woman with recent HbA1C <5.7 or have Type 1 diabetes for at least 10 years(diagnosed before age 30 years) • do not have any history of malabsorption syndrome, rheumatologic disease, parathyroid disease, cancer other than skin cancer, have not used immunosuppressant in the past 2 years or used any oral or injectable steroid for >3months • not being treated by your doctor for osteoporosis

Compensation provided. If you are interested, please contact Prakriti Joshee at Prakriti.joshee@cuanschutz.edu or 303-724-9925.

BARBARA DAVIS CENTER

Research at BDC

BARBARA DAVIS CENTER

OLIVIA'S GARDEN

The Children’s Playroom at the Barbara Davis Center has been under renovation for the better part of 2019 and we are thrilled to announce the opening of the new playroom! The entire playroom was remodeled by our generous donors Tamra Call and Dan Corcoran in honor of their great niece, Olivia Corcoran. Olivia was diagnosed with type 1 diabetes when she was 14 months old and visits the BDC from Texas to receive her care. The playroom serves as a sanctuary for children while visiting for their appointments and often sparks joy and happiness in what can be a stressful visit for many. Olivia’s Garden was designed to be welcoming, comforting, and engaging for all ages. It features two televisions for movies, three gaming stations, and a play area with mini kitchen and young builder’s work bench. The focal point of the room is the 46-foot mountain garden themed mural painted by Mickey Shilling of Mickey and Sons. Mickey has a type 1 son who is a patient at the BDC and really understands the importance of the playroom for the kids. He painted happy faces on the animals that are hidden in the grasses, trees, and in the lake of the scenery.

We are so grateful to all of our donors: Tamra Call and Dan Corcoran for the interior design and furnishings, Mickey Shilling for the mural, Lowe’s Store 2780 of east Aurora for the beautiful flooring, and our original playroom donor Sandy Wolf of The Melvin & Elaine Wolf Foundation. Be sure to visit next time you are at the BDC!

The doctors, nurses, and support staff at the Barbara Davis Center for Diabetes are amazing people, but with everything going on during your visit, you might not have had a chance to really get to know them personally. So, we sat down with Dr. Gregory Forlenza to learn a little bit more.

Thanks for taking a minute to chat with us, Dr. Forlenza. How long have you been at the BDC? I have been at Barbara Davis Center for over 4 years. I started in July of 2015. CDF raises funds to support patient care and research at the BDC. How have we had an impact for you and your patients? CDF has been very involved in helping support technology research at Barbara Davis Center. They worked very closely with us to execute the first ever type 1 diabetes artificial pancreas ski camp study. The results from this study helped advance the T:slim artificial pancreas system to home use. They have also supported several of our other hotel studies of artificial pancreas systems and our observations of the real-world use of artificial pancreas technology outside of research studies. Now for the fun stuff! What do you like best about living in Colorado? Honestly, I moved here to work at the Barbara Davis Center, so for me, the BDC is the best thing about Colorado. Beyond that, I enjoy the diversity of entertainment and recreational activities in Denver. There is so much to do and see.

BARBARA DAVIS CENTER

BDC STAFF SPOTLIGHT

Dr. Robert Slover, Olivia, and Dr. Gregory Forlenza

What is your favorite place to eat in Denver? I have 3 daughters, all under five years old, so my favorite place to eat is at home where it is easier to keep the chaos contained. Coloradans love to get outside. What is your favorite outdoor activity? I like taking my daughters to the park to run around and play games on the park equipment. What is your favorite ice cream flavor? Definitely birthday cake ice cream from Cold Stone. You have been involved with diabetes camps for a long time. Do you have a favorite memory from volunteering? I love diabetes camp and have been volunteering at camps for over 15 years. My second year at camp, I had to take one of our 9-year-old boys to the infirmary at 2 AM due to a pump site failure with ketosis. As we were sleepily shuffling back across the camp to our cabin with the whole world feeling like it was asleep around us, he said to me, “Diabetes really stinks doesn’t it?” “It does,” I replied. “But you guys are working to make it better, aren’t you?” he asked me with hopeful tone in his voice. “We are,” I reassured him. “Thanks,” he said as we got back to the cabin to try to get a little more sleep before water sports the next day. That was the night when I became sure that I was going to spend my career making diabetes better for kids everywhere.

H. Peter Chase, MD

Q: A: Q: A:

I have been reading about the ketogenic (“Keto”) diet being used for diabetes. Can you tell me what it is?

Q: A:

The ketogenic diet involves limiting almost all carbohydrates and excess protein, and instead consuming high levels of fat (generally at least 70 percent of calories). Its use has been mainly for people with type 2 diabetes or for people who are trying to lose large amounts of weight.

Can the ketogenic diet be used for people with type 1 diabetes?

I would not advise it for several reasons:

First, it results in mild ketosis (ketone production). People with type 1 diabetes who get sick, or who do not receive adequate insulin, are at danger for large ketone production, or diabetic ketoacidosis (DKA). Although the research has not been done, it is possible people with mild ketosis (from the ketogenic diet) would then move more easily toward large ketone production (DKA). Secondly, many of the foods being eliminated, such as whole grains, fruits, vegetables, legumes, etc. are the healthy foods we need to eat. Thirdly, the diet has not been adequately researched and there are definite risks.

What are the long-term risks of the keto diet? There is very little long-term data. The ketogenic diet has been used in the treatment of pediatric epilepsy and has been found to cause a keto-“flulike” syndrome. There are other documented rare side effects, including growth restriction, gastrointestinal upset and kidney stones. We do know that populations who have been studied because of long lifespans, generally consume more than 50 percent of calories from carbohydrates (not fat). Is the keto diet better for weight loss than other diets? No. The reason any diet works for weight loss is due to fewer calories being consumed. Success with the keto diet may be because some people restrict the times they can eat when using the ketogenic diet, so total calories are reduced. This could obviously be done with any diet. Also, because there are not many foods that can be eaten with the ketogenic diet, people tend to eat less. In addition, some people eat fewer calories because high-fat foods are generally not as appetizing as are high carbohydrate foods. In general, any diet works for weight loss as long as the person sticks to it. About 50 percent of people trying the keto diet drop out within a year. Remember that exercise is also an important component for any weight loss program.

Do you have questions you would like to submit to the Q & A? Contact Brent McDaniel at Brent@ChildrensDiabetesFoundation.org

DONâ&#x20AC;&#x2122;T

SUGAR

COAT IT! 5K Run/Walk

On July 28th, 2019, CDF and our

Advocates volunteered at the third annual Don't Sugar Coat It 5K in Highlands Ranch, CO! The event was a huge success and we look forward to attending next year! Thank you to Nick Salas for having us and donating the proceeds to the Children's Diabetes Foundation!

e a S the

Date SPRING BRASS RING MAY 6, 2020

FOUNDATION NEWS

TIED TO A CURE DENVER GOLF TOURNAMENT Over 100 golfers gathered on July 8th at Pinehurst Country Club

to support the Childrenâ&#x20AC;&#x2122;s Diabetes Foundation at the Tied to a Cure Denver Golf Tournament, presented by McDonald Automotive. The morning started off with the event chairmen, Michael McDonald, Dan Fuller, and Todd Schieck, sharing their personal connection with type 1 diabetes. Laurel Messer RN, MPH, CDE of the Barbara Davis Center (BDC) thanked the players for their contributions to the tournament as it supports groundbreaking research and much-needed care initiatives at the BDC to help thousands of families. Laurel has specialized in the care of children, adolescents, and young adults with type 1 for over 14 years. She currently manages the Pediatric Artificial Pancreas Research program at the Barbara Davis Center, conducting numerous clinical research studies per year related to diabetes technology and innovation. The golfers enjoyed a beautiful day on the course and got to enjoy a long drive, an opportunity to win a vacation or car, and delicious food and drinks. They also visited the Pay It Forward Tent, where CDF Advocate, Keller Sears, and his family Walker, Lindsay and Reilly, showed the players their medical devices and shared what life with type 1 diabetes is like. Keller was just a few days away from having type 1 for a full year. After meeting the Sears family and hearing their story, almost 100% of the players donated additional money to the cause. The Childrenâ&#x20AC;&#x2122;s Diabetes Foundation is so thankful to all the players, sponsors, volunteers, and participants who made this day fun and educational. If you would like to participate in the 2020 Tied to a Cure Denver Golf Tournament, you can contact Amanda Miller at Amanda@ChildrensDiabetesFoundation.org.

Tied to a Cure Golfers and Sears Family

Keller Sears

Mike McDonald, Dan Fuller, and Todd Schieck

The Carousel Ball Hyatt Regency Denver at Colorado Convention Center An elegant gala featuring a performance by Reba McEntire, celebrity emcee Mario Lopez, and honoring Lisa & Tom Corley and Richard Abrams, M.D.

OCTOBER 24-25

Tied to a Cure Las Vegas Golf Flyaway Shadow Creek Golf Course and Aria Hotel in Las Vegas, NV Private chartered flight, one of Vegas’ top golf courses, and modern hotel rooms – all for a good cause.

OCTOBER 27

Boo Bash Colorado School of Mines A spooky party for kids with type 1 diabetes and their families.

DECEMBER 10

Colorado Gives Day A one-day online fundraiser for nonprofits in Colorado. Schedule your donation at www.ColoradoGives.org/CDF.

JANUARY 11-12, 2020

T1-Ski Weekend Sunlight Mountain Resort, Glenwood Springs, CO Join CDF at Sunlight Mountain Resort for a fun-filled ski weekend for type 1 families.

MAY 6, 2020

Spring Brass Ring Luncheon Save the date for next year’s Spring Brass Ring Luncheon!

UPCOMING EVENTS

OCTOBER 19

JUNE 19-26, 2020

1 Sweet Cruise An Alaskan cruise specifically for type 1 families – the perfect combination of diabetes camp and family vacation!

NOVEMBER

Diabetes Awareness Month Join the Children’s Diabetes Foundation in turning the world blue in support of those with diabetes. Diamonds for Diabetes Mid-November to December 31st at Thollot’s Jewelers Pick an ornament from the tree for $25 (to be donated to CDF) to win a precious gem or piece of jewelry.

NOVEMBER 14

World Diabetes Day A day to honor everyone living with diabetes around the world.

NOVEMBER 21

Kendra Scott Gives Back Party Kendra Scott in Park Meadows Mall Get the perfect gift for a loved one or treat yourself to stunning Kendra Scott jewelry with 20% of your purchase benefiting CDF.

SUPPORT GROUPS

There are support groups going on all year! If you want to get together with others affected by type 1 diabetes, you can sign up for CDF Support Groups in the Denver, Colorado Springs, Fort Collins, Cheyenne, Sterling, or Central Rockies areas. Sign up at ChildrensDiabetesFoundation.org/support-groups. CHECK OUT OUR WEBSITE OR FOLLOW US ON SOCIAL MEDIA TO GET EVENT UPDATES AT ANY TIME! WWW.CHILDRENSDIABETESFOUNDATION.ORG

The Children’s Diabetes Foundation hosted an

elegant cocktail party at the home of Brenda King and James McAndrews on Wednesday, June 19th to kickoff this year’s Carousel Ball. It was an exciting evening to gather in support of the upcoming event and to hear from Barbara Davis Center doctors, Dr. Lori Sussel and Dr. Rachel Friedman on the latest research advancements for type 1 diabetes. Attendees also heard from CBS4’s own Dominic Garcia about the exciting entertainment planned for this year’s event, Country Music Hall of Fame member Reba McEntire, and got a glimpse into the life of type 1 diabetes from The Lee Family. For more information about The Carousel Ball on October 19th, visit www.ChildrensDiabetesFoundation.org.

FOUNDATION NEWS

THE CAROUSEL BALL KICKOFF PARTY

The Carousel Ball

October 19, 2019 Denver, CO An evening to benefit the Childrenâ&#x20AC;&#x2122;s Diabetes Foundation and the Barbara Davis Center for Diabetes Featured Performer: Reba McEntire High Hopes Tribute Award Honorees: Lisa & Tom Corley Founders Award: Richard Abrams, M.D. Event Chair: Dana Davis Honorary Event Chair: Barbara Davis

Tickets available at www.ChildrensDiabetesFoundation.org Thank you to our sponsors! Underwriting Sponsor: Dexcom Official Media Sponsor: 5280 Magazine Major Sponsors: Dexcom, Tina & Rick J. Caruso, CBS4, Colorado Homes & Lifestyles

The 2019 event will mark the 33rd annual Carousel Ball. Guests enjoy cocktails, silent and live auctions, dinner, exciting entertainment, and musical performances. All proceeds from the event benefit the Children’s Diabetes Foundation, the fundraising arm of the Barbara Davis Center focused on patient support, awareness, and research.

Lisa & Tom Corley will be presented with the High Hopes Tribute Award at The Carousel Ball in honor of their 20 years of service and support of the Children’s Diabetes Foundation and for their unending support of the Colorado community. Richard Abrams, M.D. will be presented with the Founders Award in honor of the instrumental role he has played in advancing diabetes care over the past four decades.

Children’s Diabetes Advisory Board Members and Guild Presidents ADVISORY BOARD:

THE GUILD PRESIDENTS:

Sir Michael Caine Mr. and Mrs. Robert A. Daly The Honorable Diana DeGette, U.S. House of Representatives, Colorado Mr. Neil Diamond Mr. Placido Domingo Mr. John Elway Mr. David Foster Mr. Kenny G Mr. David Geffen Mr. Magic Johnson Mr. Quincy Jones Ms. Sherry Lansing Mr. Jay Leno Mr. Paul Marciano Mr. Mo Ostin Sir Sidney Poitier Mr. Lionel Richie Mrs. Adrienne Ruston Fitzgibbons Mr. George Schlatter Ms. Maria Shriver Mr. Steven Spielberg and Ms. Kate Capshaw Ms. Brenda Richie Ms. Barbera Thornhill Miss Joan van Ark Mr. Gary L. Wilson Mr. Stevie Wonder

Founding President, Amy Davis Mrs. Gina Abou-Jaoude Mrs. Christy Alberts Mrs. Jamie Angelich Mrs. Karen Aylsworth Mrs. Linda Broughton Mrs. Tangy Buchanan Mrs. Joy Burns Dr. Bonita Carson Mrs. Nancy Cowee Mrs. Dalyla Creaghe Mrs. Margy Epke Mrs. Chris Foster Mrs. Helenn Franzgrote Mrs. Sally Frerichs Mrs. Debbie Gradishar Mrs. Helen Hanks Mrs. Marty Jensen Mrs. Gail Johnson Mrs. Sharon Kamen Mrs. Janet Knisely Mrs. Cheryl Lebsock Mrs. Shelley Lucas Mrs. Suzy Love Mrs. Judy McNeil Mrs. Sally Newcomb Mrs. Barb Oberfeld Mrs. Gretchen Pope Mrs. Carol Roger Mrs. Kay Stewart Mrs. Diane Sweat Mrs. Loretta Tucker Mrs. Jane Weingarten

See complete list at ChildrensDiabetesFoundation.org

Nonprofit Org. U.S. POSTAGE

PAID Denver, CO Permit No. 1752

Childrenâ&#x20AC;&#x2122;s Diabetes Foundation 4380 South Syracuse Street Suite 430 Denver, CO 80237

Change Service Requested

2019 Holiday Assistance Every holiday season, The Guild of the Childrenâ&#x20AC;&#x2122;s Diabetes Foundation provides meal and gift assistance for families in need who are affected by type 1 diabetes. Join us in sponsoring presents for type 1 children as part of the Holiday Assistance Program.

Spread the cheer! Families receive a $50 gift card for each Thanksgiving and Christmas dinner. Type 1 children, and their siblings, each receive a $40 gift card to spend on something they will love! Donate Now at www.ChildrensDiabetesFoundation.org