An online conference from JKP 22-27 March 2021
Contents Welcome
Schedule
Our Sponsor
Our Contributors
Nura Aabe Tony Attwood Lauren Brukner Michael Chissick Barb Cook Jennifer Cook Raelene Dundon Glòria Durà-Vilà Judy Eaton Debby Elley Arianne Garcia Michelle Garnett Kathy Hoopmann Tori Houghton Sue Larkey
09 10 11 12 13 14 15 16 17 17 18 19 20 21 22
Wenn Lawson Vicky Martin Haley Moss Privthi Perepa Yenn Purkis Kate Ross Suzy Rowland Joel Shaul Maxfield Sparrow Robyn Steward Harry Thompson Pete Wharmby Sarah Wild Rebecca Wood
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4
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Welcome
W
elcome to Connected by Autism, JKP’s first ever virtual autism conference. We’re really glad you’re joining us! Being connected is so important in these challenging and isolating times. We have tried to make this a truly accessible event that connects people wherever they are in the world through their connection to autism, for learning, understanding and celebration. We have some incredible presentations and conversations to share with you over the next six days. With each day based around a theme important to the community today such as receiving a diagnosis, mental health and wellbeing, or intersectionality, we’re offering unprecedented access to the lived experience and expertise of some of our best-loved authors. A big thank you to our sponsor, Axia-ASD, for supporting this event, and to all of the contributors who have given their time and shared their expertise and experiences so generously. We are always interested in new ideas for our autism and neurodiversity publishing. If you have an idea for a book you might like to publish with us, we would love to hear from you. We look forward to welcoming you on 22-27 March! Lisa Clark Editorial Director Lisa.Clark@jkp.com Aine Ryan Senior Marketing Executive Aine.Ryan@jkp.com
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Schedule MONDAY 22ND MARCH AUTISTIC WELLBEING LIVE
Top Techniques for Sensory Wellbeing
Sue La
Exploring Depression and Beating the Blues
Tony A
How to Integrate Self-Regulation Strategies into Daily Life
Lauren
Supporting Autistic Children in Times of Uncertainty
Raelen
Self-Care for Adults on the Spectrum
Barb C
TUESDAY 23RD MARCH DIAGNOSIS AND BEYOND Explaining a Child’s Autism Diagnosis in a Positive and Empowering Way
Glòria
Masking, Camouflaging and Late Diagnosis
Barb C
The Ice-Cream Sundae Guide to Autism
Debby
PDA in Children
Raelen
Autism Misdiagnosis and Mental Health
Judy E
WEDNESDAY 24TH MARCH AWESOMELY AUTISTIC LIVE
The Magic of Intense Interests
Pete W
An Insider’s Perspective on the PDA Profile: Advice for Parents and Teachers
Harry
‘M’ and the Power of Realistic Representation of Autism
Vicky
Neurodiversity in the Workplace
Haley
Talking About Periods
Robyn
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DURATION/TIME
arkey Sue Larkey
10 am GMT (6 am EST)
Attwood and Michelle Garnett
30 mins
n Brukner
30 mins
ne Dundon
40 mins
Cook
40 mins
a Durà-Vilà
50 mins
Cook and Kate Ross
50 mins
y Elley and Tori Houghton
15 mins
ne Dundon
40 mins
Eaton
25 mins
Wharmby
1 pm GMT (9 am EST)
Thompson
30 mins
Martin and Sarah Wild
30 mins
y Moss
25 mins
n Steward
15 mins
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Schedule THURSDAY 25TH MARCH INTERSECTIONALITY Culture, Ethnicity and Autism
Privth
Intersectionality and Perceptions of Autism
Ariann
Gender and Autism
Yenn P
FRIDAY 26TH MARCH SCHOOL AND WORK LIVE
Mastering Social Situations at School
Joel S
Autism-Friendly Self-Employment
Robyn
Teaching Yoga to Autistic Children in a Mainstream Setting
Micha
School Avoidance
Suzy R
Educational Inclusion: What Can We Learn from Autistic Teachers?
Rebec
SATURDAY 27TH MARCH KIDS’ AND PARENTS’ DAY The (Secret) Social Rules
Jennif
Reading of All Cats are on the Autism Spectrum
Kathy
Having Fun with Feelings
Tony A
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hi Perepa and Nura Aabe
DURATION/TIME
45 mins
ne Garcia
30 mins
Purkis, Wenn Lawson and Maxfield Sparrow
50mins
Shaul
7.30 pm GMT (3.30pm EST)
n Steward
20 mins
ael Chissick
15 mins
Rowland
30 mins
cca Wood
15 mins
fer Cook
30 mins
y Hoopmann
Attwood and Michelle Garnett
15 mins 30 mins
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Our Sponsors Axia ASD Ltd Axia is founded and directed by Dr Linda Buchan, a Consultant Clinical Psychologist with a forty-year experience in the field of Autism and neurodiversity. Axia has a vastly experienced Multidisciplinary Team of diagnosticians including Clinical Psychology, Speech and Language Therapy, Mental Health Nursing, Occupational Therapy, Teachers and prestigious trainers, authors and researchers in the field of Autism. Our full team can be viewed on the ‘Meet the Team’ section of our website. Axia’s model of working is informed by the Partnership Model developed by Professor Hilton Davis and Dr Linda Buchan in the 1980s. This means that parents are viewed as the experts on their children and individuals as experts on themselves. Our task is to share the mutual expertise that is in the room in the spirit of openness, honesty and genuineness. We do not adopt a deficit model in relation to neurodevelopmental difference but rather focus on the strengths that come with neurodiversity as well as some of the challenges. Axia’s team has a varied pool of interests, and we are able to use this to engage and connect with those who visit our clinic, for example, our Anime Amigos. Axia has a neurodiverse team and we passionately believe in valuing individual’s interest.
FIND OUT MORE
w ww.axia-asd.co.uk www.facebook.com/AxiaASDLtdChester
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Our Contributors Nura Aabe Nura Aabe has built on her personal experience of having a child with autism to founding and helping to run the community organisation called Autism Independence. The organisation supports marginalised families affected with autism. She has been pioneering raising awareness of autism in the Somali community. Nura is currently a PhD student at the University of Bristol and a TEDx speaker. She is also currently writing 2 different chapters for autism related books. At the Conference:
Culture, Ethnicity and Autism (with Dr Privthi Perepa)
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Our Contributors Professor Tony Attwood Professor Tony Attwood PhD is an internationally recognised clinical psychologist, educator, and author. Recently featured on ABC’s Australian Story, Tony is one of the world’s foremost authorities on autism. His book Asperger’s Syndrome: A Guide for Parents and Professionals is an international bestseller and seminal in the field.
JKP Books: At the Conference:
Exploring Depression and Beating the Blues; Having Fun with Feelings (with Dr Michelle Garnett)
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Our Contributors Lauren Brukner
At the Conference:
How to Integrate Self-Regulation Strategies into Daily Life
Lauren Brukner is a Senior Occupational Therapist and published author of six books with Jessica Kingsley Publishers who lives in New Jersey with her husband and three children. She currently works as a Senior Occupational Therapist and evaluator for the NYC Department of Education. She appeared as a guest on The Autism Show, The Manhattan Neighborhood Network’s School-Home Connection, and The Matt Townsend Show. Her books have been endorsed by Dr Temple Grandin and listed as resources on websites such as Real Simple Magazine, Inc. Magazine, Psych Central, Everyday Health, AOL’s Health and Wellness, MSN Health, and Friendship Circle, among other websites/ libraries/ community/ academic/ parenting sources.
JKP Books:
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Our Contributors Michael Chissick Michael Chissick has been teaching yoga to children in primary mainstream and special needs schools as part of the curriculum since 1999. He is a leading specialist in teaching yoga to children with Autistic Spectrum Disorders and continues to train and mentor students who want to teach yoga to children.
FIND OUT MORE
www.yogaatschool.org.uk
At the Conference:
Teaching Yoga to Autistic Children in a Mainstream Setting
JKP Books:
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Our Contributors Barb Cook Barb is Director of NeuroEmploy Pty Ltd, is a registered Developmental Educator, Autism and Neurodiversity Employment Consultant and Life Coach for neurodivergent adults (ADHD, autism and dyslexia). Barb holds a Master of Autism (education) degree with focus on employment from the University of Wollongong, where she is also a researcher and co-project lead in the area of self-determination and self-advocacy for adults on the autism spectrum.
At the Conference:
Masking, Camouflaging and Late Diagnosis (with Kate Ross); Self-Care for Adults on the Spectrum
Barb has extensive experience in working with people on the autism spectrum, ADHD and dyslexia, especially with adults in creating pathways in attaining life goals in the areas of education, employment, health and interpersonal relationships. Barb identifies as neurodivergent, being diagnosed mid-life with ADHD, autism and dyslexia in 2009, and promotes a strength-based and person-centred approach in her work and life. Barb is founder of Spectrum Women Magazine and editor and co-author of the internationally acclaimed book, Spectrum Women: Walking to the Beat of Autism. Barb is a prolific writer on neurodivergence and employment and is twice published in academic research. Barb is a passionate motorcyclist, and enjoys riding the love of her life, Ron Strom Burgundy, a Suzuki VStrom DL1000, who assists her with good self-care and an effective anxiety reducing and depression busting practice.
JKP Books:
FIND OUT MORE
n euroemploy.com www.spectrumwomen.com
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Our Contributors Jennifer Cook
At the Conference:
The (Secret) Social Rules
Jennifer Cook was identified as being on the spectrum in 2011, just after her three children. She is now the author of seven bestselling books --the Asperkids collection, Sisterhood of the Spectrum, and Autism in Heels -- which include a Wall Street Journal Bestseller, a Publishers Weekly “Best Book” title winner, and three of BookAuthority’s “Best-Selling” and “Top Autism Books of All Time.” Jennifer is the bestselling female author of any single book in the genre, a multi-award-winning international speaker, and the founder of a brand-new venture called Belong, a virtual wonderland of enrichment and community, empowering neurodiverse individuals, couples and families worldwide.
JKP Books:
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Our Contributors Raelene Dundon Raelene Dundon is the Director of Okey Dokey Childhood Psychology in Melbourne, Australia. Raelene is a mother of three children, two of whom have autism, and has extensive experience working with children with developmental disabilities and their families, as well as typically developing children, providing educational, social, emotional and behavioural support.
JKP Books: At the Conference:
Supporting Autistic Children in Times of Uncertainty; PDA in Children
FIND OUT MORE
www.okeydokey.com.au/
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Our Contributors Dr Glòria Durà-Vilà Glòria is a consultant child and adolescent psychiatrist with a main clinical interest in autism. She is experienced in assessing, diagnosing and treating children and young people with ASD, and works closely with parents and educational and social services. She is passionate about the importance of communicating the ASD diagnosis to parents and to the child in the best possible way.
JKP Books: At the Conference:
Explaining a Child’s Autism Diagnosis in a Positive and Empowering Way
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Our Contributors Dr Judy Eaton Judy is Consultant Clinical Psychologist and Clinical Director at Help for Psychology and Research Associate at Kings College London. She has twenty years’ experience working as a clinical psychologist in the field of Autism. Judy’s books include A Guide to Mental Health Issues in Girls and Young Women on the Autism Spectrum and Autism and Misdiagnosis (forthcoming). At the Conference:
Autism Misdiagnosis and Mental Health
JKP Books:
Debby Elley Debby Elley is mum to teenage twins who are both on the autism spectrum. She is cofounder and coeditor of award-winning AuKids magazine, a positive parenting magazine for children on the autistic spectrum.
JKP Books:
At the Conference:
The Ice-Cream Sundae Guide to Autism (with Tori Houghton)
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Our Contributors Arianne Garcia Arianne Garcia is an autistic writer and Editorial Board Member at StairwaytoSTEM, an online resource for autistic students transferring to college for STEM careers. She was diagnosed at 25 with ADHD and autism. Arianne’s scholarly research focuses on the intersection of disability and race, specifically regarding Autism Spectrum Disorder in the Latinx community.
FIND OUT MORE At the Conference:
w ww.arianneswork.com www.twitter.com/arianneswork
Intersectionality and Perceptions of Autism
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Our Contributors Dr Michelle Garnett Dr Michelle Garnett PhD is a clinical psychologist who has specialised in autism within her own private practice for over 27 years. Her peer reviewed research has informed understanding of early detection, the female profile and the importance of good mental health for autistic individuals. She has co-authored six highly regarded books on autism, five with Prof Tony Attwood. Her 2018 book with Barb Cook is a seminal work on the female presentation, Spectrum Women: Walking to the Beat of Autism. She regularly provides training to four Australian Universities. At the Conference:
Exploring Depression and Beating the Blues; Having Fun with Feelings (with Dr Tony Attwood)
JKP Books:
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Our Contributors Tori Houghton Tori Houghton is the co-editor of AuKids magazine and a speech and language therapist with 25 years’ experience working in the field of autism. She is also the founder of Time Specialist Support based in Manchester, an organisation providing bespoke support for young people with autism and their families.
JKP Books: At the Conference:
The Ice-Cream Sundae Guide to Autism (with Debby Elley)
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Our Contributors Kathy Hoopmann
At the Conference:
A reading of All Cats are on the Autism Spectrum
Kathy Hoopmann has written over twenty books with translations into nineteen languages. Her work sells widely in Australia, the UK, the US and the Middle East. She has won, and been shortlisted for many literary awards, including the Children’s Book Council of Australia Award, the ALCS Educational Award (UK), the Living Now Award (US) and has four times been awarded a Nautilus Award (US) which is granted to ‘books that change the world’. Kathy is best known for her writing on autism spectrum disorders and mental illness, in fiction and non-fiction. The simplicity, charm and insight of Kathy’s books have made them must-haves for children and adults worldwide.
JKP Books:
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Our Contributors Sue Larkey
At the Conference:
LIVE WEBINAR Top Techniques for Sensory Wellbeing
Sue Larkey is unashamedly passionate about her mission – to inspire parents and educators and teach them how to make it a success. Sue Larkey is uniquely positioned within the education system having taught both as a primary school teacher and a special education teacher. She is a highly qualified educator who has taught students with autism spectrum disorder in the mainstream and special schools. She combines practical experience with extensive research having completed a Masters in Special Education and currently undertaking a Doctorate in Education. Winner of Naturally Autistic 2013 International Award for Community Contribution. Sue has authored many books on autism spectrum disorders. She believes that armed with the tools of understanding and confidence, much can be achieved.
JKP Books:
FIND OUT MORE
suelarkey.com.au
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Our Contributors Wenn Lawson Wenn Lawson is an autistic trans man, psychologist and researcher, who has published prolifically with JKP. He writes and speaks on the topic of gender identity, autism and neurodiversity. He currently co-Chairs the Australian Autism Research Council and is on the Editorial Board for the Autism in Adults journal.
JKP Books: At the Conference:
Gender and Autism (with Yenn Purkis and Maxfield Sparrow)
Vicky Martin Vicky Martin is a creative writing tutor who worked with the students of Limpsfield Grange, a residential school for girls with communication and interaction difficulties including Autism Spectrum Disorder, to write two fiction books about a character, ‘M’, who is autistic. Vicky has previously worked on creative writing projects for the Royal Opera House’s Education Department, and many theatres, art centres and charities in the UK.
At the Conference:
JKP Books:
‘M’ and the Power of Realistic Representation of Autism (with Sarah Wild)
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Our Contributors Haley Moss Haley Moss is a South Florida native who was diagnosed with autism at age three. Upon receiving her autism diagnosis, her family was told that she would be fortunate to make a friend, graduate high school, or obtain her driver’s license. Haley has defied the expectations set forth within her initial diagnosis. Today, she is an attorney, author, artist, and autism advocate who writes and speaks publicly about her journey and gives hope for other autistic people and their families and friends. Haley’s new book, The Young Autistic Adult’s Independence Survival Guide, publishes in November 2021. At the Conference:
Neurodiversity in the Workplace
JKP Books:
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Our Contributors Privthi Perepa Dr Prithvi Perepa started his career as a special needs teacher and worked with children on the autism spectrum across the age range in India and UK. Later he worked as a disability advisor at the London South Bank University. In addition to educational settings, he has experience of working in adult care, both in supported living and independent living settings. He has worked with various national and regional charities where he developed parent support groups, established family support teams, and managed play schemes. At the Conference:
Culture, Ethnicity and Autism (with Nura Aabe)
JKP Books:
Yenn Purkis Yenn Purkis is autistic and non-binary and has published a range of books with JKP since 2006. They actively speak at autism conferences and have increasingly spoken and written on autism and LGBTQ+ identities and received the ACT Volunteer of the Year award for work in Autism advocacy.
JKP Books: At the Conference:
Gender and Autism (with Wenn Lawson and Maxfield Sparrow)
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Our Contributors Kate Ross
At the Conference:
Masking, Camouflaging and Late Diagnosis (with Barb Cook)
Kate graduated Magna Cum Laude with a Bachelor of Arts in Psychology & Social Sciences and earned her Master of Social Work degree from the State University of New York at Buffalo. Originally from Buffalo, New York, she relocated to England in mid-2008. She changed careers in 2013 from social work to special educational needs, where she quickly developed a personal interest in autism and Asperger’s Syndrome. After being recommended Rudy Simone’s book Aspergirls in July 2015, her perception and understanding of herself changed and “everything suddenly made sense.” Kate received a diagnosis of autism spectrum condition in August 2016 and was subsequently diagnosed with ADD (ADHD inattentive type) in May 2020. Kate is a contributor to Spectrum Women Magazine and to the book Spectrum Women: Walking to the Beat of Autism; she also maintains a blog at IAmMyOwnExperience.com and a public Facebook page under the name Cherry Blossom Tree - My Autism & ADD Experience. She lives in Gloucestershire with her husband Kevin and their cat Blossom. She enjoys reading, knitting & crocheting, collecting enamel pins, anything to do with Twin Peaks, and going to concerts of her favourite bands (with earplugs, of course!)
FIND OUT MORE
I AmMyOwnExperience.com Facebook.com/IAmMyOwnExperience/
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Our Contributors Suzy Rowland
At the Conference:
School avoidance
Suzy Rowland is an author, Autism & ADHD Specialist Trainer, Cognitive Behaviour Therapist & poet. Suzy’s son was diagnosed with Asperger’s and ADHD aged nine after many exclusions and unhappy experiences at primary school. Determined to share her experience and expertise, Suzy set up the #happyinschool project, to build deeper understanding of autism and ADHD behaviours across education settings. Her passion is to raise the bar for wellbeing for children in schools, particularly for autistic and ADHD children, using mindfulness, CBT, group work, storytelling and listening as her key tools. Suzy works with a wide variety of schools, councils, charities, businesses and parent/carer groups to deliver her unique brand of influence and empowerment.
FIND OUT MORE
happyinschoolproject.com
Joel Shaul Joel Shaul is a Licensed Clinical Social Worker who specializes in ASDs. Through his organization, Autism Teaching Strategies, he provides workshops on social skills teaching and mental health treatment methods. He is the author of six children’s books published by JKP.
JKP Books: At the Conference:
LIVE WEBINAR Mastering Social Situations at School
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Our Contributors Maxfield Sparrow Maxfield Sparrow is a trans masculine author and speaker on the autism spectrum. They have previously published No You Don’t: Essays from an Unstrange Mind and The ABCs of Autism Acceptance (Autonomous Press) and run a popular blog called ‘Unstrange Mind’. They have published a number of articles on the overlap of autism and trans identity and run training and workshops.
JKP Books: At the Conference:
Gender and Autism (with Wenn Lawson and Yenn Purkis)
Robyn Steward Robyn Steward is an autistic woman with experience of mentoring others on the spectrum, and author of The Independent Woman’s Handbook for Super Safe Living on the Autistic Spectrum (2013) and The Autism-Friendly Guide to Periods (2019). Robyn is successfully self-employed and is an NAS ambassador and regularly appears in TV and radio as a talking head. She is also co-host of the BBC Sounds podcast 1800 second on Autism. Her new book, Autism-Friendly Self-Employment, published in July 2021. At the Conference:
Autism-Friendly Self-Employment; Talking About Periods
JKP Books:
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Our Contributors Harry Thompson An avid reader & researcher, Harry speaks publicly and is heavily involved in projects & research on all topics around neurodiversity and autism, especially Pathological Demand Avoidance, a behaviour profile within the Autism Spectrum. He launched his YouTube channel in 2017 which has since amassed a strong following. Harry was recently elected to a Fellowship of the Royal Society of Arts in recognition of his work in the field of PDA, and also in recognition of the publication of his book, The PDA Paradox, which has been deemed an outstanding contribution to our knowledge about PDA. At the Conference:
An Insider’s Perspective on the PDA Profile: Advice for Parents and Teachers
JKP Books:
FIND OUT MORE
harryjackthompson.com/
Pete Wharmby
At the Conference:
LIVE WEBINAR The Magic of Intense Interests
Pete is a secondary English teacher who was diagnosed with Asperger’s in 2017 at the age of 34. Since this time he has become very active online, writing a blog about his experiences as an autistic adult and regular threads and videos on Twitter (@commaficionado) that add some insight into the autistic experience. He has written on a large variety of topics, including autistic burnout, autistic identity and masking, autism and parenthood, autistic humour and autistic interests. He is a keen writer and illustrator, though Lego is perhaps his biggest obsession. Pete is writing a new book for JKP, What I Want to Talk About: Life, autism and the magic of special interests, which will publish next year.
FIND OUT MORE
p etewharmby.blogspot.com www.patreon.com/pwharmbyautism
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Our Contributors Sarah Wild Sarah is the Headteacher of Limpsfield Grange an outstanding school for girls aged 11 - 16 with communication and interaction difficulties including autism.
At the Conference:
‘M’ and the Power of Realistic Representation of Autism (with Vicky Martin)
Over the past 8 years alongside members of the Limpsfield Grange team Sarah has dedicated time to raising awareness of female autism nationally. Limpsfield Grange School was the subject of the ITV documentary “Girls with Autism” and students of the school have written two novels M in the Middle and M is for Autism with the author Vicky Martin. Sarah was also a contributor to the publications Girls and Autism and Education and Girls on the Autism Spectrum. Limpsfield Grange School has been featured by Channel 4 news and the Sunday Times Magazine. Students from Limpsfield Grange speak nationally about female autism, and have addressed politicians in the House of Lords regarding female autism and the need to improve services for autistic women and girls. Sarah is a founding member of the Autism and Girls Forum.
JKP Books:
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Our Contributors Dr Rebecca Wood Dr Rebecca Wood is a former teacher and autism education practitioner. She is a Senior Lecturer in Special Education at the University of East London and a visiting Research Fellow at King’s College London and at the University of Birmingham. She completed her PhD at the University of Birmingham and was project manager of the Transform Autism Education project, a tri-national teacher training scheme funded by the European Commission. This was followed by an ESRC-funded postdoctoral Fellowship at KCL. At the Conference:
Educational Inclusion: What Can We Learn from Autistic Teachers?
Rebecca’s work is drawn from her extensive experience in research and practice into the educational inclusion of autistic children and young people, and is reflected in her book ‘Inclusive Education for Autistic Children: Helping Children and Young People to Learn and Flourish in the Classroom.’ She has now shifted her focus now onto autistic educators, and has secured funding from the John and Lorna Wing Foundation as the Principal Investigator of the Autistic School Staff Project (ASSP) and is currently editing a book for JKP (publishing 2022) that comes out of this project.
FIND OUT MORE
A SSP: www.autisticschoolstaffproject.com twitter.com/autschoolstaff Follow Rebecca: twitter.com/thewoodbug https://woodbug.blog
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