Parkinson's Disease Foundation Annual Report 2016

Annual Report

2016

Believe in BETTER

BETTER research

|

BETTER care

|

BETTER lives

|

BETTER together

About the Parkinson’s Foundation The Parkinson’s Foundation is working toward a world without Parkinson’s disease. Formed by the merger of the National Parkinson Foundation (NPF) and the Parkinson’s Disease Foundation (PDF) in August 2016, the mission of the Parkinson’s Foundation is to invest in promising scientific research that will end Parkinson’s disease and improve the lives of people living with Parkinson’s and their families through improved treatments, support and the best care.

Message from the CEO I am honored to introduce myself as the Chief Executive Officer (CEO) of the Parkinson’s Foundation, an organization with a rich history of serving the community.

In August 2016, two legacy organizations, the Parkinson’s Disease Foundation (PDF) and the National Parkinson Foundation (NPF) merged to form the Parkinson’s Foundation.

At the time of the merger, the PDF division was headed for more than 20 years by Robin Anthony Elliott. The NPF division was headed by Paul R. Blom, formerly the chair of its Chapter Advisory Council. Mr. Blom, after a brief hiatus, will join the Parkinson’s Foundation Board and Mr. Elliott, the emeritus chief executive officer of Parkinson’s Disease Foundation division, will retire at the end of June 2017.

We have a shared purpose — working toward a world without Parkinson’s disease: • B etter Research: We support promising scientific research by investing in individual and collaborative research, as well as an extensive network of research and medical centers in the United States and around the world.

• B etter Care: We continue to focus on the care and well-being of people living with Parkinson’s today.

• B etter Lives: We will expand our advocacy and community outreach efforts to ensure that the response to this disease matches the urgent need.

BETTER together

We know that this is a pivotal time, one in which the needs of the Parkinson’s community and the potential of science are greater than ever. That’s why we are committed to accelerating the science and care for Parkinson’s on behalf of the millions of people across the globe living with the disease.

We look forward to working with you to ensure that people with Parkinson’s and their families have the tools they need to live well with the disease today, and to ending the disease once and for all. We are stronger and better together.

Yours in the fight,

John L. Lehr Chief Executive Officer Parkinson’s Foundation

Please note: This report reflects the financials of the Parkinson’s Disease Foundation, a division of the Parkinson’s Foundation.

Annual Report

2016

2

The Foundation’s increased investment in early-career scientists is illustrated through the Stanley Fahn Junior Faculty Awards, named in honor of Ignacio Fernandez Mata, PDF’s longtime Ph.D., and members of the Scientific DirecLARGE-PD Consortium tor. The awards provide young scientists with $300,000 in support over three years for research focused on solving Parkinson’s.

Among the awardees is Ignacio Fernandez Mata, Ph.D., Acting Assistant Professor at the University of Washington and a researcher at the Geriatrics Research Education and Clinical Center (GRECC) at VA Puget Sound Health Care System, whose project, “Parkinson’s Genetic Risk Factors in Latino Populations,” will expand upon genetics research previously funded by the Foundation that has already provided many important clues about the disease.

In recent years, dozens of genetic mutations have been identified that either cause Parkinson’s

3

directly or increase a person’s susceptibility to developing the disease. All of these genes have been discovered in populations of European or Asian ancestry. Little is known about their role in Latinos, who carry a mixture of genes from indigenous Americans, Europeans and Africans.

In earlier studies, Dr. Mata and colleagues used seed funding provided by the Foundation to create the Latin American Research Consortium on the Genetics of Parkinson’s Disease (LARGEPD), which has identified 2,000 people with Parkinson’s in six South American countries and matched them with 2,000 healthy controls. They will now genetically screen blood samples from these individuals to identify new susceptibility genes in Latinos. In families with many members affected, they will also sequence all known genes that cause Parkinson’s in order to identify new genetic variants that cause the disease.

These data will be crucial in understanding the role of genetics in Latinos with Parkinson’s, and will allow Latinos to participate in clinical trials for potential treatments targeted toward individuals with specific genetic variants.

Learn more about our investment in research at www.pdf.org/results_funded.

BETTER research

“At the start of my career, the Foundation provided seed funding to create LARGE-PD. The Stanley Fahn Award allows my team to take the research further — to perform the first-ever large-scale genetic study of non-European populations, so we can understand if the same genetic risk factors apply to Latinos and identify new ones to help us better understand the disease for everyone.”

Ignacio Fernandez Mata, Ph.D.

Ingrid Pretzer-Aboff, Ph.D., R.N.

The Foundation’s increased investment in care is illustrated through its professional education initiatives, the cornerstone of which is the Edmond J. Safra Visiting Nurse Faculty Program.

Nurses are critical to Parkinson’s care. In light of a growing number of people with Parkinson’s and a shortage of neurologists specializing in the disease, it is even more pressing that nurses be prepared to fight Parkinson’s on the front lines.

The Edmond J. Safra Visiting Nurse Faculty Program is designed to fill this gap. The 40-hour program improves nursing care in Parkinson’s disease by training faculty leaders across the United States so they can, in turn, educate nursing students.

Since 2009, the program has trained nearly 190

5

nurses who in turn train 18,000 nursing students each year. This program is crucial in preparing the next generation of nurses to care for the growing population of people with Parkinson’s.

This is evidenced by the work of program Scholar Ingrid Pretzer-Aboff, Ph.D., R.N., of the University of Delaware, who leveraged her training to create the Parkinson’s Clinic at the University of Delaware Nurse Managed Primary Care Center. This center is staffed by nurse practitioners who — thanks to recommendations from Dr. Pretzer-Aboff — have all undergone training through the Edmond J. Safra Visiting Nurse Faculty Program.

The clinic not only provides specialty Parkinson’s care, but also offers the only telemedicine-supported nurse-led Parkinson’s disease clinic in the country. This means that Dr. Pretzer-Aboff and her team of nurses can provide outstanding Parkinson’s care to people who have no specialty clinic close to home.

Learn more about our investment in nursing educators at www.pdf.org/edmondjsafranursing.

BETTER care

“As nurses, we can make a significant impact on the lives of people with Parkinson’s, and The Edmond J. Safra Visiting Nurse Faculty Program is ensuring we are prepared to do so. It enhanced the knowledge and confidence of my team as we expanded our clinic and services for people with Parkinson’s disease.”

Ingrid Pretzer-Aboff, Ph.D., R.N.

The Foundation’s increased investment in improving lives is illustrated through its Women and Parkinson’s Initiative, the first national coordinated Robin Morgan effort to improve the health and well-being of women with Parkinson’s disease. It all started with an innocent question, insists Robin Morgan, a Research Advocate. She was attending one of the Foundation’s Parkinson’s Advocates in Research Learning Institutes when she asked, “How do we know that Parkinson’s is primarily a men’s disease?” That question and the divergent responses inspired Morgan and several other women at the session to work with the Foundation to launch the Women and PD Initiative.

As with many other chronic diseases, there is clear evidence that in Parkinson’s, women and men experience differences in disease presentation, symptom severity and medication response. For example, women are underrepresented in clinical research studies, and experience a longer duration of time than men between the onset of

7

Parkinson’s and the first time they see a neurologist specializing in movement disorders.

Women with Parkinson’s may be more prone to depression and have more difficulty than men with daily activities, such as walking and getting dressed. This is to say nothing of the societal norms that are challenged as women living with Parkinson’s struggle to fulfill traditional roles as partners, mothers and daughters of aging parents.

There has been little effort to understand these differences, despite the fact that doing so could benefit both women and men. This need became clear when the Foundation surveyed women with Parkinson’s and 72 percent reported that women have unique needs, but 91 percent said they have never received resources related to those needs.

In September 2016, more than 25 inspiring women joined the Foundation in launching the Women and PD Initiative, with a conference in New Jersey. These women, all living with Parkinson’s, learned from experts in the fields of neurology, psychology and physical therapy about the unmet needs of women in Parkinson’s.

These women are now organizing similar events for women in their local communities.

Learn more about the Women and PD Initiative at www.pdf.org/womenpd.

BETTER lives

“We have begun investigating ways to understand and end inequalities in research and treatment, and to better meet the needs of women. The Women and PD Initiative is a first step toward connecting the power of our vision, energy and resolve to change this situation.�

Robin Morgan

2015/16

In Numbers

$2.7 million supported early-career scientists who could change the way we treat Parkinson’s. $600,000 to solve debilitating symptoms like fatigue and dystonia that the community told us were important through the Community Choice Research Awards. $250,000 for the Parkinson’s Prevalence Project to understand how many people have Parkinson’s and who they are.

20,000 health professionals, including nurses, occupational and physical therapists, trained online to learn the latest in best practice care.

12,000 patients treated by movement disorder specialists trained through our fellowship programs.

11,000 nursing students reached by faculty trained through The Edmond J. Safra Visiting Nurse Faculty Program at PDF. 400 institutions and 100 researchers partnered with our patient advocates to accelerate new treatments.

275 people newly diagnosed with Parkinson’s trained to live better lives with the disease through PD SELF (SelfEfficacy Learning Forum).

12,000 people around the world joined an educational webinar.

1.1 million free educational materials distributed around the world.

9

2015/16

Our Donors The following individuals, families, foundations and corporations have made cumulative gifts of $500 or more to PDF between July 1, 2015 and June 30, 2016.

Individuals Colman and Nancy Abbe Robert and Georgean Abels Donald O. Ablin David Aboodi Emanuel M. Abrams Andrew Abramson Stephen and Marsha Ackerman Dominic Acquarulo Capt. and Mrs. John Adams Leo Addimando Shabbir Adib Frank and Dana Ahlbin Mark A. Ahlemann Richard B. Ahlvin Shirley F. Aikman Roger E. Ailes Andrew B. Albert Seta N. Albrecht Mr. and Mrs. Jim Alcock Mr. and Mrs. Thomas S. Alexander Patricia M. Allen Eloise Andersen Ray Andrejasich JoAnn Ard Ruth Armenio Daniel M. Armstrong Dr. Marian B. Ashraf Rehana Ashraf Shahid Atcha

John and Anne Atherton Douglas and Susan Atkinson

Dr. and Mrs. Gardner W. Bemis Don and Carol Bender

Rosanna Bogart

Romaine Broughton

Lacy Boggess

Merle J. Brown

Benjamin and Sue Boley

Susan Brown

Irene V. Bondy

Victoria Brown

Leigh Bonney

Joan R. Brownstein M. Peyton Bucy

Dr. Constance W. Atwell

Tom and Anne Benedict

Kenneth A. Ayer

Alison Benge

Robert and Toni Bader

Vanessa Benjamin

Anthony Baggett

James Bennett

Dr. and Mrs. Doyle Booker

Mr. and Mrs. Carle E. Baker

Janet L. Bennett

Jennifer Boone

Julia L. Benson

Charles A. Bordner

Claire and Noel Berman

Thomas P. Borger

Allen and Myra Bernstein

Mary Ann Boucher

Josh Bernstein

Patrick and Martha Boudewyns

Paul G. Bako Raymond Balbes James Baldin Jon Baldry Byrd and Alice Ball

Michael I. Bernstein

Kenneth Ballan

Richard A. and Amelia Bernstein

George and Patricia Bartusek

Mr. and Mrs. David M. Berwind, Sr.

Walter R. Bateman

David and Jo Anne Bescherer

Doris Bato Beatrice Batson Peter M. Bauer Richard Baxter Lawrence and Sandra Beal Michael and Marcia Beck Walter R. Becker Michael Beer Craig S. Belesi Bruce and Carol Bell Everett Bell Janet and Lawrence Bell Marvin L. Bellin Sherri Belsley

Edward C. Bessey Susan Bethanis Suzette A. Bettger Dr. Louis U. Bigliani Jules and Helen Bingham Donald L. Black Kyle Blackmon Lawrence Blaskopf Ronald Block Charles Blum William T. and Rebekah A. Bobell James and Suzy Bobo Andrew Bogaards

Dierdra E. Bowditch David E. Boyle Reginald K. Brack Kyle Bradstreet

Sara P. Buell Guy Bugbee Jane F. Burger Linda Burke Richard Burke John and Barbara Burns Robert L. and Ann W. Burrus Judith E. Burton Julie A. Byrne Laura D. Cade

Caroline F. Brady

Suzanne Cadgene

John N. Brady

Chris Calicchio

David A. Brask Norman and Linda Braverman Glenn W. Bredfeldt Fred Bredthauer

Janet I. Cameron Scott G. Campbell William R. Campbell Maria Camperlengo Lourdes E. Campon

Gale A. Brewer

Genevieve S. Cannon

Bob A. Brewster Elizabeth S. Brickman Eugenia Brin

John Cannon Dr. Jeff and Dieta Cao Robert and Mary Capaldi

John and Patty Brissenden Jed and Elena Brody Sam and Pauline Brookfield

Peter and Nadia Cardozo Mr. and Mrs. Raymond W. Carlin John C. Carlson

Janet Brooking

Annual Report

2016

10

Richard and Marian Davies

Bernadette M. Dymowski

Jeremy Davis

Peter H. Eaton

Patricia Davis

Cindy Eberspacher

Valerie Davis

Don Eddings

Kathleen C. Daw

Mark D. Edie

Drs. Arjun and Brooke Day

Loralee Edlund

Lai H. Dea Thomas G. Deconcilis

On May 11, 175 supporters gathered for PDF’s annual Bal du Printemps Gala at The Metropolitan Club in New York City. Led by Gala Co-Chairs Jill Taub Drury, Stephanie Goldman, Karen Burke Goulandris, M.D., Ph.D., Isobel Robins Konecky and Arlene Levine, the event raised $400,000. Willie Geist, Host of NBC’s “Sunday TODAY with Willie Geist,” Co-host, NBC’s “TODAY” and Co-host, MSNBC’s “Morning Joe,” served as Master of Ceremonies.

Diane Deemer Ann Degen Patricia DeGeorges Maria Del Pilar Ocasio-Douglas

G. Pennington Egbert III Missy Egbert Sheehan and William Sheehan Drs. David and Jane Eger Ronald and Gail Eger Toby Eisman Angela J. Eiting

Tara DelGado

Evelyn J. Eklof

Angela M. Delucia

Jon Ekse

Virginia Y. Detoy

Ronald A. Elenbaas

Charles F. Carr

Carol C. Clark, Ph.D.

Stephanie Corcoran

J. Hugh Devlin

Amy G. Elliott

William Carr

Aaron and Wendy Clayton

Lauren Crowley

Nathan and Lauren Diamond

Richard B. Elliott

Charles Carroll David F. Carson Kimberly Carter Elaine M. Casavant Maria E. Castillo Margaret A. Cataldo John and Margo Catsimatidis

Patricia M. Cleary William Cleary Mark Coatney Patricia Cockrell Lisa Coe Dayl Cohen Suzanne F. Cohen

Dennis H. Cavanaugh

Betsy Cohn

William J. Cecil, Jr.

James A. Cole

James C. Censky

Ward and Ann Cole

Tom and Barbara Chandler

Brenda D. Collins

Virginia W. Chapin Judith Chasanoff Susan A. Chatlos-Susor Haroon Chaudhry Sallie W. Chisholm

Jean Como Lynne W. Compo Patricia Cone Patrick J. Connell Diane G. Cook

David Chleck

Mr. and Mrs. Thomas A. Cooper

Byron Chong

Aaron Copeland

Frank A. Christopher

Deborah L. Copeland

Mr. and Mrs. Kai Chuang

John and Esther Copeland

Anthony and Patricia Cilluffo

11

William and Patricia Corbin

Robert and Rhea Corrion Susan Costa Megan Costello Elizabeth Cotton Gabrielle Crandall Susan L. Crippin Marvin Crone Dorothy Crooks Sally Cross Mary N. Culbertson Carolyn A. Cunningham Carole F. Curtis Jody Cutler Gary J. D’Agostino Stephen D’Amato David Dabrowski Robert Daidone Mr. and Mrs. Phillip A. Daniel John Danstrom Diane Darling Bruce Darringer Douglas Davidson

Mark Dickinson

Robin A. Elliott and Dr. Sheila Gordon

Darlene Dierkes

Ernest Ellison

Neal T. Dimick

Noah Elwood

Prudence T. Dings

Mr. and Mrs. James A. Emanuele

Vincent and Rosemarie DiPatre

Kenneth Emery

Daniel Dobison

Robert E. Enslein

Terry Dolan

Barbara Ensor

Adam Donner

Kim and Libbe Erickson

Joanne Dorenfeld

Mr. and Mrs. Jeffery Ettinger

Emily H. Dorr Donald L. Doty Robert Drbul Jonathan Dreyer Jill Taub Drury and Chris Drury Jane Duewiger Connie Meeks Duffey June M. Dunn Roger C. Dunn James E. Dunne Earl D. Duvall Cliff Dykes

Patrick Evans Robert Evans Dr. Stanley and Charlotte Fahn Marion and John Fahnestock Fernando U. Fajardo Chung and Catherine Fan Judy P. Farrell Kelly A. Fasone Kenneth H. Fast

Bertrand and Noelle Faure Dr. Daniel and Amelia Feinberg Marian and Rubin Ferziger

Diane Garrett

Patrick J. F. Gratton

Lucian A. Harvey

Jun Honma

Gary Garrison

Jocelynn J. Gray

Richard S. Havlicek

Rachael Hoppock

Carolyn R. Garwood

Arlene Greco

Shigeru Hosoyama

Mauricia Geissler

Mr. and Mrs. Harold Greenberg

Mr. and Mrs. Jeffrey R. Havsy

Michael Gelman

Richard and Schuyler Field

Michele Gentile

Richard L. Field

Adeline Gersen

Seth J. Finkel Linda and Ira Fish George Flanagan Sylvia Flescher John Foglesong Anne Foley Dr. David V. Forrest Mr. and Mrs. Thomas D. Fowler Carol Fox Dave and Jill Fox Oran Fox Jonathan Franzen William and Nancy Frederick Hilary Freedman Patricia L. Freedman Richard and Shelley Friedland Gloria Friedman Neil Friedman Tak Fujii

Venita Georgieff Michael Geschwer Al and Jan Ghelfi Edward E. Gibbs Gerald Z. Gibian Anne Giblin Robert H. Gibson Eric W. Gillert Christopher Gillock Anthony and Susan Gilroy Adam W. Ginsburg Gerald L. Gitner David Givler Jerry W. Glennie Roger Goettl Slavik Gofman Kent E. Goklen Homer Goldberg Dr. Lee Goldman James Goldman Stephanie Goldman

Caroline Greenblatt

Joseph Haynes

Howard Greene

Elizabeth G. Heard

Mr. and Mrs. Robert W. Greene, III

George Hebard

Stewart H. Greenfield Sherwin Greenwald Thomas D. Greider Nicholas and Marjorie Greville H. Duane Griffin Charlotte Griffith Richard Griffith Phillip W. Grimsley James and Janet Grinstead Pete and Emily Gross Lillian M. GrossmanStrater Leonard and Jennifer Gruenberg Geoffrey and Sarah Gund Sharyn L. Gunderson Arlen R. Gunner Richard Gunther Jon and Stevi Gurkoff

Thomas P. Fulchino

Amy Goldman Fowler

Mark and Nancy Funderburk

Lawrence J. Goldrich

Mark Guzzi

Russell Furtick

Dr. Thomas R. Goldsmith Mr. and Mrs. Benjamin Gomez

Lorilynn P. Hahn

Sarah S. Goodman

Thomas Haley Jerry Hall

F. Daniel and Bunny Gabel Phillip Gallacher Dan Gallagher Michael Gallahue Sarah Belk Gambrell David Garey Mark Garey Alan and Marion Garfield Philip Garoon and Family

John and Marilyn Gordon Peter John Goulandris and Dr. Karen E. Burke Joel E. Grace

Julia Hawkins

Mr. and Mrs. Andrew Gustin

Hannah M. Haller Elaine Halliday Jeffrey Hamer Marilyn R. Hankin

Bill and Holly Heer James K. Heidebrecht Dr. John and Peggy Heilman Deborah J. Heiman Michael R. Hencel Lewis Henkind Rose Henneberger Troy D. Henry

Thomas and Anne Hubbard Deborah and Alan Huber Harold and Pamela Huberfeld Terry Huffington Lane Huggins Kurt Huneke Phyllis Huston Donald Hutchings Barbara Inniss Dianne L. Isenberg Jeremy Isenberg John Isidor

Mindy Hepner Richard Herdegen Philip C. Herr, II Mr. and Mrs. Stuart A. Hersch Victor and Yvette Hershaft

Nancy L. Isserlis Jacqueline Jackson William and Judith Jackson Alan and Barbara Jacobs Selwyn and Marjorie Jacobs

Daniel N. Hertz Steven and Sherry C. Hibshman

Judith M. Jacobsen Ken and Debbie Jaffe

William and Mary Hicks

Marian R. Jaffe

Norvita G. Hildbold

Raymond James

Laura B. Hill

Mark and Diane Jankowski

Jean V. Hilton Dr. Katherine Hisert Joel and Marcia Hochberg

Roe Jasen Sue and Lynn Jenkins Joan C. Jentoft

Bryan Q. Hockman Bernice Hoffinger Philip and Mary Hogan William H. Hohenstein Marlene Holland Stephen and Margot Holland

Thomas G. Grace

Mary Harker

Dr. Michael and Dena Granof

Nancy C. Harold

Clair Grant

Judith S. Harris

Alexander and Eleanor Holtzman

Jack Harrison

Jerry Holzsweig

Joseph S. Holman

Annual Report

Charles and Linda Johnson Donald and Marian Johnson Harvey and Kay Johnson Kurt Johnson Larry Johnson Edward J. Jones Jeffrey Jones Richard H. Jones

2016

12

Bertram Lesser

Alan H. Maltenfort

Olof Lester

Virginia Malueg

Drs. Ilan and Barbara Levi

Ellen H. Manian

Dina L. Levin Brian Levine Jerome and Arlene Levine Michael and Carolyn Levine Ronald M. Levinson

On March 3, Co-Chairs Stephanie Goldman, Amy Sole and Doug Stern welcomed more than 100 guests to Martinis & Bellinis at Harvest Bistro & Bar in Closter, NJ, raising $35,000.

Reynold and Margaret Jordan Richard F. Jordan Robert and Sheryl Josephson Sherrie Kaiser Panos and Debi Kalaritis Michael Kamen Martin Kammermeier Daniel and Susan Kane In Hui Kang Dr. and Mrs. Un J. Kang Bernee Kapili Dr. George Karnoutsos Jane H. Karp Andrew A. Kassay Lawrence Katzman Karl K. Kawahara Lori and Arlan Kay Mark R. Kean Paul Kebabian Christopher Keber Edward and Kathleen Kelly Lisa Kelly John L. Kelsey Kent Kemeny George and Sara Kenan Allan A. Kennedy Thomas J. Kessler

13

Coyla Ketchy

Riccardo La Rosa

Mary K. Kilgore

Alix and Rudolf Laager

Eric C. Kim

Henry P. Lammers

Soohyung Kim

Steve and Keala Landry

Michael and Gita Kinney

Mark A. Lane

Clara Kirn

Justin and Cassandra Lanning

Barbara E. Kirwin Janice Kittrell Andy Klein Diane K. Klima James T. Knowles Edgar and Eileen Koerner Patricia Kolb Isobel R. Konecky David Koslofsky Bernard L. Kosnik Kay E. Kowitt Marjorie E. Kramka Robert Krantz David and Susan Kraus Florence Krinitt Sharon Krischer Lewis Kruger Mr. and Dr. Rhett Krulla Howard and Gail Kunreuther Diana L. Kunze Barbara Kyse

Martin H. Lapidus Vernon and Marilyn Lapps James Lauer Robert O. Laven Matt LaVoie Mr. and Mrs. William F. Law, Jr. Pauline M. Lecomte Jin Lee So Young Lee Michael Leebove James LeFevre Peter and Eileen Lehrer

Jeffrey Lewis Judith Lewis Stanley Liebowitz Ivan Likkel Cynthia Limbach Joseph and Julie Liss Dr. Nan and Doug Little D. Lobin William Lockeretz Mr. and Mrs. Arnold Loeb Marshall R. Loeb James B. Long June Lopen

Jennifer Manocchio Dr. Karen S. Marder Greg A. Margolis Sidney Margolis Dr. and Mrs. Paul Margulies Linda Markeloff Frank H. Markey Leon F. Markoff Lizzy Markus Michael Martin Pamela Martin M. M. Martino Jeanie and Albert Marx Yvonne L. Mason Bernard Mathey-Prevot George and Priscilla Matouk Nancy Mayer William and Dorotha Mayer

Mark Lopes

Michael and Jessica Mayerson

Jean Lovett

Frank Mazur

Dr. Jack A. Lowenthal and Lenore Abramowitz

William and Colleen McAleer

Chris P. Lucas

J.W. and Emily McAllister

Ellen K. Lucas

Dorothy McCagg

Karol Lynch

Noreene Storrie and Wesley G. McCain

Ryan MacDonald Thomas and Sarah MacIvor

Randall T. McCallum Marsha K. McCleary

Michael Mackey

Phyllis G. McDonald

Jill Leinbach

George and Linda Mahoney

Richard McGill

Walter F. Leinhardt

William B. Mahoney

Peter Leinroth

John B. Maier

Jeffrey and Penelope Leman

Lisa Goecke Malikow

Thomas A. Lehrer

Herbert J. Lembcke Johanna and Bernard Lemlech

Burton and Marcia Mallory

Thomas F. McGillicuddy Charles A. McMellon William D. McMillin Rodney and Kathy McMullen

Larry and Janis Malone

Mr. and Mrs. James K. McMurray

Terence Malone

Mary Ann McNamee

Michelle S. Meiches

Janice L. Nairn

Cheryl T. Phillip

Darlene A. Pulkinen

Andrew and Gigi Menard

Christopher Napoli

Jay and Marilyn Phillips

John G. Quast

Maris F. Nasatir

Scott Phillips

Tom Quinn

Paul and Marcy Nathan

Susan K. Pickford

Winifred Quinn DeJesus

Leela Nayak

Emil Pinter

William Rabbe

Sunil Nayar

Nina Platt

Genice A. Rabe

Douglas and Jean Nelson

Lois W. Poinier

W. Matt and Amelia Ralls

Sydney Polakoff

Shantanu Rana

Elliot Newman

Drs. John and Susan Pollack

Sam Randman

Jeffrey Newman

Thomas and Meri Pollak

Melodee C. Nigon

William and Nancy Polleys

Dr. Robert B. Mencher Kristin Mendenhall Robert J. Menifee Jeanette Y. Mihaly Dr. David Miller Elizabeth Miller and James G. Dinan Jody L. Miller Stuart Miller Wynn Miller Martin and Cynthia Mintz Lawrence and Ruth Misrok

Mike Nelson

Mr. and Mrs. James E. Nock

Harold Pollin

Shirley Norby

George Pomeroy

Martha W. Norget

Lori Porter

Sabato Noto

Rick Porter

Carol Noymer

Joseph Portman

Lyle Moe

Mr. and Mrs. Lawrence C. Nussdorf

Lawrence Portnoy

Eric Moede

Michele Nydegger

Kenneth L. Moen

Daniel J. O’Neill

David Moody

Herbert and Virginia Oedel

John H. Mitchell Matthew Mitchell Dr. Ena E. Mocega

Ray L. Mooers Merle B. Mooney Mr. and Mrs. Robert E. Moore

Esther Ohlsson John and Marnie Olson Pei Sue Ong

Edward A. Moos

Paula K. Oppenheim

Howard and Ginger Morgan

Richard A. Orechovsky

James and Laura Morgan Shizuko Morita Robert Morrissey Mr. and Mrs. Jay B. Morrow Stuart Morse Mary Jo Moses Rachel and Gregg Moskowitz Beatrice A. Murphy Kenneth N. Musen Frances F. Musser Jean Myers John B. Myers, Jr.

Arjun Prabhu Larry and Judy Pratt Judith Preston Steve Prestwood Robert Price Lynn and Elliot Prigozen William R. Prindle Edward and Ruth Proffitt Dana C. Puddy

Mr. and Mrs. Jeffrey D. Roberts John Roberts Joseph Roberts Thomas and Brenda Roberts Jesse A. Robinette Cynthia Robinson Roger Rolfe Robert A. and Heddie S. Romanoff

John Raphael Kathy Raseman Josh and Melissa Raskin Shanna E. Ratner Leonard and Ruth Rau Rachael D. Ray

Gregory and Barbara Romero Shirley L. Rose Mr. and Mrs. Jordan Rosen Steven Rosen

David Rebeske Michael and Kristin Reed Sam Register

Edward and Charis Rosenblum Melvin S. Rosenthal

Lorraine Reina

Alon Rosin

John Resch Yao-Chun Rickert Sandra L. Rigopoulos Eleanor M. Rinaldo Mr. and Mrs. Robert P. Rinehart Frank E. Ritchey Ronald R. Roberto

Edith C. Ross Samuel and Miriam Rotrosen Mr. and Mrs. Steven Rourke Dr. and Mrs. Lewis P. Rowland Mr. and Mrs. Vito Rutigliano

Aura Oslapas Mr. and Mrs. Robert Paglia and Family Arthur Palik Tony Pallagrosi Rosanne Pane Vasken Paragamian Ene Ki Park Joyce Parsons Craig Pastolove Hugh L. Patterson Edward G. Pell Eric Percher Penelope L. Person James P. Philbin

On April 7, PDF and the Young New Yorkers for the Fight Against Parkinson’s committee, led by Co-Chairs G. Pennington Egbert III, Gregory and Barbara Romero, Jonathan Romero, Missy Egbert Sheehan and William B. Sheehan, welcomed 200 supporters to the ninth annual Celebrate Spring New York at Marquee, raising over $80,000.

Annual Report

2016

14

Saul M. Salka

Gerald E. Simmons

Evelyn Sandground

Marilyn C. Simmons

Michael H. Sarvey

Mildred M. Simon

John and Deborah Scanlon

J. Robert and Linda Sims

Barbara A. Schaefer William H. Schertle Keith E. Schilder

John A. Sinker Phillip S. Sirianni, Jr. Dr. Beverly S. Sirota

Steven Schirripa

Stefan and Mary Ellen Skalina

Gregory P. Schlegel

Andrew Sklerov

Carole Schlessinger

Susan Sloan

Roslyn Schneider

R Douglas Slough

Sheri Schoonover

Dr. Bernard and Sheila Small

Dr. Thomas J. and Jean Schreiber

Alice U. Smith

Shelley and Blair Schrum

Brian W. Smith

Stephen Schuler

Elaine and Leon Smith

Gertrude Schwartz

Kevin Smith and Laurel Johnson-Smith

Martin Schwartz Nancy S. Schwartz Mr. R. Scott William J. Scrima Mary E. Scully Charles Sears Phil Shaffer Nancy Shanks Phillip Shankwitz Evelyn Shapiro Matthew and Victoria Shea Diane M. Shenberger Keith and Carole Sheppard John B. Sheridan Jack and Paula Sherman Wendeline Shoemaker Susan B. Show Betty R. Shults Stanley and Elsa Sidel David and Alice Siegel Sandra M. Siler Fred Silton Mr. and Mrs. Mark K. Silverstein

15

Tamara and Michael Stark Steven and Farrel Starker William Startup Kevin Stein Deborah Steinberg John H. Steinberg and Jill Pliskin Scott Steinman Jonathan and Sydney Stern Russell T. Stern Sy and Laurie Sternberg N.J. Stevens John Stewart Vanessa R. Stiver Agnes Stoertz Scott Strickland Richard A. Sullivan

Jay and Jill Twery

Mary Wiebke

Gail Ullman

Kathryn L. Wiener

Dolores Valles

Kevin and Elizabeth Wildes

Charles Van Winkle Lafayette P. Vance Marshall Vass Hazel Vernacchio Liz Versteeg Edward M. Vietor Gregory M. Vincent Patricia Vitelli Kenneth Volkmann Patricia Wahle Alan and Sadye Waldenberg Philip M. Walker and Cheryl A. Tritt

Jeffrey and Lise Wilks Wendy Williams Jean Willig Capt. Eric R. Wilson Herbert and Francine Wilson Mary T. Wilson Thomas W. Wilson John and Karen Winkel Dorothy D. Winkey Chester Winsor Stanley and Karla Woell Myra Woggon

Mark W. Waller

Patricia Wolf Scott Wolf

Mary Carol Smith

Min Sun

Jerome and Kerry Walsh Skelly

Natalie J. Smith

Rebecca C. Swan

Michael Walsh

Raymond J. Smith

Edward Swenson

Frances A. Ward

Robert and Melissa Smith

Linda G. Takaha

Mary F. Wardell

Mary E. Talmage

Sandi Wasch

Agnes K. Tam

Lori L. Wasserman

Lydia D. Taranko

Malcolm R. Wattman

Judy Taub Gold

Carolyn and Ron Weaver

Ronald M. Tausend

Geraldine Rene Webb

Mary Elizabeth Taylor

James M. Weichert

Glenn Snyder

Cathy Techtmann

Susan G. Weil

Mr. and Mrs. Paul W. Snyder, Jr.

Susan L. Tener

Jon and Jill Weiner

Sharon and Howard Socol

Mike Tenney

Andrew S. Weinrich

William G. Thom

Bennett Weinstock

Raymond L. and Louise Thompson

Robert and Marilyn Weintraub

Robert Thompson

M. Weissbuch

Judy Zendell

Mr. and Mrs. David Timony

Stephen and Grace Weitzer

Marilyn A. Zier

Drs. Jane and Charles Tollett

Julia Weksler

Steven R. Smith Tara Smith Mr. and Mrs. Marcellus Snow B. Robert and Mary A. Snyder

Andrew Solar Harry Sommer Janine Spafford Douglas and Anne Spaniol Scott R. Stabler Matt and Barbara Stanek Arthur Stanton James D. Stanton Harold and Barbara Star

David W. Tolli Robert Tree

Keith Wellman Charles Whitlock

Arlene Tuck

Mr. and Mrs. Charles H. Whitman

Terry Turgeon

Joel Wicks

Adam and Kim Wolfberg Darren and Michele Wolfberg Dr. Fred and Mary Woodlief Leroy Woods Eugenia Wray Paul Wurm Beverly T. Yoder Peter Youmans Lt. Cmdr. Cassin Young Gail Young Evan Zacharias Dr. Gerardo Zapata Karen M. Zarlengo Christine Zeisler

Hugh N. Zimmerman Louis G. Zimmerman Cynthia Zirinsky Harvey Zuckerman Jeffrey and Leah Zygler

Foundations, Organizations & Corporations 186 Advertising

Barish Family Foundation

Abbe Berman Foundation Trust

Bateman Family Fund

Abbott Laboratories Acadia Pharmaceuticals, Inc. Action Electric Sales, Inc. Adams & Maland Fund Adobe Agarwal Family Foundation AirTek Construction, Inc. Airtex Design Group, Inc. Allstate Giving Campaign The Allyn Foundation, Inc. Altronix

Alvin H. Baum Family Fund The Cheryl Chase & Stuart Bear Family Foundation Patricia & Gardner Bemis Fund Benevity Community Impact Fund The Berner Charitable & Scholarship Foundation The David H. Bescherer Family Charitable Fund Big Y Foods, Inc. R.C. Bigelow, Inc. Biogen Idec

Amazon

The Bisgeier Family Foundation, Inc.

American Physical Therapy Association

Frank & Margaret Bitar Foundation

Ameriprise Financial

The David H. & Mary B. Blair Charitable Fund

Anderson Fund Foundation

Blaskopf Family Fund

Andrejasich Blessing Fund

Duane & Dorothy Bluemke Foundation

Arko-Oslapas Family Fund

William T. Bobell

The Jeffrey H. & Shari L. Aronson Family Foundation Association of American Railroads ATS Consultants, Inc. Attorneys’ Title Guaranty Fund, Inc. Avenue Capital Management Alice H. Ball, Trustee Testamentary Trust A Bank of America Bank of America United Way Campaign The Mitchell and Roslyn Barash Family Fund

Employees Community Fund of the Boeing Company

The Elsie A. Brown Fund, Inc.

Community Health Charities

BTIG, LLC

Community Health Charities of NJ

Bucy Family Fund Cail Family Foundation California Community Foundation The Joan Carlin Fund CARS, Inc. (Charitable Adult Rides & Services, Inc.) Caterpillar, Inc. Charity Trust Account Cayuga Marketing, LLC CFO Synergy, LLC Chernow Fund, Inc. Clarfeld Financial Advisors, LLC Clayton Family Charitable Gift Fund Louis & Virginia Clemente Foundation, Inc. Coach, Inc. Cochran Family Foundation Cole-Crone Family Foundation

Education Credit Management Corporation The Egbert-Gilroy Fund

Community Health Charities of NY, Inc.

Elmwood Charity Fund, Inc.

Edna Williams Curl & Myron R. Curl Endowment for Parkinson’s

EMMES Asset Management Company, LLC

Cuzson Associates, LLC

Encana Oil & Gas (USA), Inc.

The Danem Foundation

Endurance

Daybreak Technologies, Inc.

Robert E. Enslein Foundation, Inc.

Marie G. Dennett Foundation, Inc.

Epic Systems Corporation

Diamantine Family Foundation, Inc.

Ernst Foundation, Inc.

The Dinan Family Foundation Don Ayres Honda Donovan LLP Davis Dukes & Marcia Golden Charitable Fund Easter Foundation, Inc. Portsmouth Chapter 424 - Eastern Star The Echlin Foundation

Ernst & Young ExxonMobil Foundation Fairchild Martindale Foundation Arthur & Eve Fastenberg Philanthropic Fund Feuerring Foundation Fidelity Charitable Gift Fund Gladys Field Charitable Lead Annuity Trust Financial Decisions, Inc.

The Color Fund

Booster Campaigns Arnold Bortman Family Foundation Boucher Charitable Foundation The Bresnick Charitable Fund The John & Patty Brissenden Fund Sarah K. Brokaw Fund Brown Charitable Foundation H. James & Cynthia Brown Charitable Fund

On April 29, PDF and a committee of young professionals led

by Co-Chairs Rehana Ashraf, Kate Evans and Anne Greene, welcomed over 180 guests to the fourth annual Celebrate Spring Boston at The Liberty Hotel, raising $50,000.

Annual Report

2016

16

The Foley Fund Foreman Family Foundation Forest Family Foundation Carol and Carter Fox Family Fund Carlyle Fraser Employees Benefit Fund Gabel Foundation The Gambrell Family Foundation Edward E. and Mary Woodfin Gibbs Family Trust Give With Liberty Ruth & Jack Glantz Family Foundation, Inc. The GMK Family Fund The Lillian Goldman Charitable Trust The Sarah & James Goldman Charitable Fund Sol Goldman Charitable Trust

The Geoffrey Gund Foundation Callaway Guzzi Charitable Fund Halsey Family Foundation, Inc. Hamilton Lane Advisors, LLC Milton & Miriam Handler Foundation Harken Foundation George & Ruth Harms Foundation George W. Harris Foundation Jeff & Judy Harris Fund Harte Infinity

IHS Foundation

Robert D. & Reine Hartley Charitable Foundation

Isermann Family Foundation

Elizabeth G. Heard Family Fund Hebron Presbyterian Church Kim & Susan Henry Fund

Tom & Marc Goldsmith Fund

Mary & George Herbert Zimmerman Foundation

The Samuel & Grace Gorlitz Foundation

HighVista Strategies, LLC

Caroline Greenblatt Revocable Trust Lee Gottlieb Fund, Inc. Goulston & Storrs, PC GPS Insight Grace Family Foundation Grainger Grand Council of Cryptic Masons Grand Lodge Benevolent, Patriotic Order of DOES Grayledge Fund The Stewart & Constance Greenfield Foundation The Jack Webster Grigsby Foundation Gristedes Foods Inc.

17

On October 24, the Light of Day Foundation announced its latest donation of $150,000 to support PDF research programs. Since Light of Day was founded in 2000 by Bob Benjamin, its annual concerts have raised more than $1 million to benefit the Foundation.

The Isidor-Kaltman Philanthropic Fund Alan L. and Barbara S. Jacobs Philanthropic Fund The Anna & Alexander Jacobs Charitable Fund The Frank and Marta Jager Foundation

The Donald M. & Helen H. Kidder Family Foundation Dace & William King Stubbs Fund Lewis A. Kingsley Foundation The Richard E. & Marianne B. Kipper Foundation Kragie-Woodall Family Fund

Lynn Jenkins

Howard & Gail Kunreuther Charitable Fund

Margot & Stephen Holland Charitable Fund

Donald Clark Johnson Trust

Lancaster Parkinson’s Support Group

Homestead Foundation, Inc.

Dr. Rudolph & Mildred Joseph Foundation

Larson Family Fund

Hope Pray Cure Association

Just Give

Hortley G. Leblang Charitable Trust

The Kandell Fund

P.M. Lecomte Fund

Jerome A. Kaplan & Deena L. Kaplan Family Foundation, Inc.

Legatus Foundation

Philip M. Hogan Family Fund

The Huggins Family Charitable Foundation Kurt and Sandy Huneke Advised Fund Syde Hurdus Foundation, Inc. Sheila & Milton Hyman Foundation IBM Employee Services Center IF Hummingbird Foundation, Inc.

JBORTHO, Inc.

Ronald M. Levinson Fund Light of Day Foundation, Inc. Linsone, Inc. Litterman Family Foundation Live, Laugh, Give Charities Livermore Trading Group Lockton Dunning Benefits Jane P. Long Fund Lovinger Family Foundation Lundbeck, LLC Dr. John T. MacDonald Foundation Trent MacLean Manangement Consulting DAF In Honor of Norma & Allen Mador

George Kaufman

The Eileen & Peter Lehrer Family Foundation, Inc.

Kebok Foundation

The Leman Family Fund

Magor Mold, LLC

Ben E. Keith Company

Bernard & Johanna K. Lemlech Philanthropic Fund

The Mahoney Donor Fund

Kelly Family Foundation Kelsey Family Foundation

The Ilan M. & Barbara G. Levi Fund Dr. Michael S. & Carolyn W. Levine Fund

Maersk, Inc.

The V & L Marx Foundation The Lester & Grace Maslow Foundation, Inc.

John & Maude Matouk Charitable Foundation

The Calvin and Flavia Oak Foundation, Inc.

The Noreene Storrie & Wesley G. McCain Family Fund

The Oak Hill Charitable Fund

John L. and Helen B. McGrath Fund Gordon McLean Trust Medtronic, Inc. Meier Family Foundation Kathleen & Robert Menifee Charitable Fund

Thomas P. & Patricia A. O’Donnell Foundation Bath Fitter & Rooterman - O’Gorman Brothers, Inc. Old Republic Surety Company Daniel J. O’Neill Fund Oppenheim Family Fund

Merck Foundation

Orbital ATK, Inc.

Louis Messer & Helen Messer Charitable Foundation

Regina Pargament Trust Fund

Gail Meyers C. Wayne & Patricia J. Miller Foundation Mission Fish - POLF Stella & Harvey’s Mitzvah Fund

Park 6 Foundation Parkinson’s Education & Support Group of Sussex Co. Parkinson’s Unity Walk, Inc. PATCO Construction

Monte Carlo Towers

PDR Advisors

E.A. Moos Foundation

Pfizer Foundation Matching Gifts Program

Morgan Stanley Motor Castings Foundation, Inc. Mountain West Medical, Inc. Nasonville Dairy, Inc. The Ladies of Netherwood Network For Good The New Crystal Restoration Enterprises, Inc. The New York Women’s Foundation New York Yankees Foundation Norget Family Fund North Star Foundation NorthStar Asset Management, Inc. Nuveen Investments Holdings

Sydney M. Polakoff Charitable Fund Lucile & Maurice Pollack Fund Pope Automotive Family Foundation, Inc. The Portmann Family Charitable Fund Project Spark Foundation Propp Foundation, Inc. Puddy Family Fund Rashid Realty Company Ratner Family Fund Kristin and Michael Reed Family Foundation, Inc. The Reflections Foundation Region Nine Housing Corporation Management Services Renaissance Charitable Foundation

RIVR Media, LLC Eli & Mae Rosen Foundation

The Herbert & Arline Slepoy Charitable Fund

United Way of Central Indiana

Smart Family Foundation

United Way of Greater Portland

Joseph Rosen Foundation, Inc.

Society of the Transfiguration

The Rosie’s Charitable Fund

Southwest Contractors

The Irene Herbert Ross & Harper Grant Ross Foundation The Miriam & Samuel Rotrosen Charitable Fund S. Rubenstein Family Foundation, Inc. The Martha & Max Rubinstein Family Foundation SAD Foundation Edmond J. Safra Foundation Schaefer Family Foundation Frederick B. Schelhorn Trust Schostak Family Support Foundation The Jean and Thomas Schreiber Philanthropic Fund Schroeder Family Living Trust The Schrum Family Fund SCI Solutions Shapiro Family Foundation Ronald Shapiro Trust Shell Oil Company Foundation Fred Siegel Foundation Silton Family Foundation The Simard Family Foundation, Inc. Samuel & Beverly Sirota Family Philanthropic Fund Stefan & Mary Ellen Skalina Charitable Fund

The Spurlino Foundation St. Anthony of The Woodlands K. of C. Council 12327 St. Francis Hospital Medical Staff Fund Frank & Domna Stanton Foundation The Dorothy Strelsin Foundation Alexandra & Martin Symonds Foundation Henry & Marilyn Taub Foundation The Judy Taub Gold Fund

United Way of Miami-Dade United Way of San Joaquin County US Navy Junior ROTC Colts Neck High School US Trust - Bank of America Private Wealth Management Voya Foundation Walker & Tritt Family Foundation Robert A. Waller Foundation Walmart The Wasily Family Foundation Wechsler Foundation

TD Ameritrade Clearing

J. Weinstein Foundation

Judy & Warren Tenney Foundation

West Park Christian Reformed Church

Tennis and Racquet Club

David & Rae Wiener Foundation, Inc.

Teva Pharmaceuticals USA Joan Tisch and Family TLR Fund TRUiST The Trukenbrod Family Foundation The Tuchman Foundation

The Francine and Herbert L. Wilson Fund Wonderful Giving World-Wide Holdings Corporation Peggy & Adam Young Charitable Foundation Zankel Charitable Lead Trust

UCB, Inc. UGI Energy Services

Zoe’s Best Friend, Inc.

Richard & Gail Ullman Charitable Fund U.M.R. Foundation, Inc. Union Pacific Railroad Company United Way The United Way Of Allegheny County

Annual Report

2016

18

We thank our PDF Champions whose efforts from July 1, 2015 to June 30, 2016, helped us to fund promising research and to raise awareness in communities around the US. Abington Senior High School Dress Down Day Academy 4 Lil’ Angels, LLC 10th Annual Golf Outing Alexandra Archuleta Oakland Running Festival Half Marathon Ken Babcock Car Show Bay View Middle School Bikini Offroad 4th Annual Shake, Rattle & Crawl Black & Veatch Corporation Employee Jeans Day Angela Bradshaw Country Music Concert for Parkinson’s BTIG LLC Catch the Cure - Paddle for Parkinson’s Margaret DeJesus Chicago Marathon & Marine Corps Marathon Dinhhuong Do Birthday Fundraiser David J. Eger, Ph.D. 13th Annual Music for Parkinson’s Research

19

JoMarie Fazio Gloria & Ron Friedman Ron’s 57th Birthday Celebration Gene Ginsberg 2nd Piano Recital for Parkinson’s Goulston & Storrs, PC Staff Jeans Day

Mark Macenas Tri for Parkinson’s, Wilmington Triathlon Michelle A. Martinez Cookie Sale Matthews Medical Books Dress Down Days Lauren Mattioni Arizona Rock ‘n’ Roll Half Marathon

Rutgers Craft to Cure Club Craft Tea Café Shikellamy Education Association Su Fu Du, Inc. Drumline Benefit Concert Team Global Office Fundraiser

Team Hamilton Discover Whitewater Half Parkinson’s Support Group Marathon of the Mid-Hudson Valley Rachel Isenberg Tolland Middle School Walk Over the Water San Juan Islands Kayak Casual for a Cure & Bike Expedition Penoach Winery Trustmark Insurance Philip Hufferd Memorial Lilly Jaeger Company Fun Run Birthday Fundraiser Annual Company Picnic & People with Parkinson’s Dunk Tank Kinesiology Student Advisory Council (PPAC) Association US Navy Junior ROTC To Support PDF’s PD Awareness Walk at Colts Neck High School Community Choice University of San Francisco Chase the Rainbow 5k Research Awards Color Run Kinston, NC Parkinson’s Pillinger Miller Tarallo, LLP Support Group Sarah Wetmore Crawling for a Cure Walk for a Cure Office Fundraiser Primrose School Liberty University Student A.C. Woolnough Dress Down Day Osteopathic Medical Shake, Rattle & Roll Golf Association Caitlin Prior Tournament 2nd Annual Pancakes Loveland Half Marathon ZogSports for Parkinson’s Teresa Riffle Zwick Pro Am Nicole Lopen 5th Annual Parkinson’s Philadelphia Marathon Walk for a Cure Innophos Employee Jeans Day

2015/16

Planned Giving Estate of Sharon H. Adams

Estate of Norma J. Miedwig

The Barron 1982 Trust

Estate of Florence Atkins

Estate of Doris M. Neiley

Estate of Leo Baer

Estate of Dorothy B. O’Connor

Robert D. Berg and Rosemary F. Berg Revocable Trust Bernard Mann Irrevocable Trust

Estate of Jack M. Berghuis

Estate of David J. Padalino

Estate of James M. Cantrell, Jr.

Estate of Anthony R. Pizzurro

The Estate of Harold Carpenter

Estate of Ritat Pototzky

Estate of Agnes Elizabeth Davis Estate of Bernice Rotberg Estate of Maria-Louisette Ganzel Estate of Judy M. Goldman Estate of Virginia D. Granat Estate of Lucie Grant Estate of Helen S. Greenwood

Margaret D. Lienemann Charitable Trust

Dorothy M. Booth Charitable Trust

Marcus Family Revocable Trust Irene M. Matto Trust

Clark W. Boyer, Sr. Trust

Howard and Doris Norain Trust

Louis Brooks Trust

Trust of Marie C. Ostermeier

Estate of Pauline Sedlak

The Dolores Childers Living Trust

Estate of Fritz Siegfried

Dingman Family Trust ‘A’

Estate of Carol A. Spengler

W. E. Gladow Trust

Steinmann & Grant Estates

Miriam Gordon Revocable Trust

Estate of Elva L. Stonebraker

Lucie M. Grant Charitable Remainder Unitrust

Estate of Jay Reed West

Joseph M. and Eva M. Perasso 2000 Trust The Donna Prendergast Trust

Estate of Thomas R. King Estate of Linda S. Kroenke

Mildred Barcus Trust

Estate of Mary Lee

Kathryn Barrett Woodhill Survivors Trust

Estate of Lily H. Liebman

Carol A. Jennings Charitable Remainder Trust

Michael Scott Revocable Trust Rose A. Sinkin Trust

Miriam Horvitz Revocable Trust Rear Admiral Paul K. Arthur, Ret. Hudson Charitable Trust & Joy L. Arthur Living Trust

Estate of Ann Hannon

Richard P. Rost Trust

Lester W. Stevenson, Jr. Trust The Wade Living Trust The Anna Yambor Trust

Ruth Judge Trust

James Parkinson Legacy Society We thank the following members of the James Parkinson Legacy Society who have included PDF in their estate plans or who have established a charitable gift annuity with us.

Ann Cavalli

Guy Estes

Lisa Painter

Irving Silverman

Aila G. Dawe

Annette Korn

Marie D. Schwartz

Inez Smith

Jean Dewdney

Barbara A. Miller

Stephanie and Bernard Schwartz

Lucy Venable

If you have included the Foundation in your estate plans or wish to establish a charitable gift annuity that provides you with income for life, please contact Amy Mauser, Planned Giving Officer at (305) 537-9928.

Annual Report

2016

20

2015/16

Financial Highlights

Research 5,276,923 | 51%

25% 51%

Patient & Professional Information and Advocacy 2,599,295 | 25%

Total Operating Expenses 10,319,686

Administration & Fundraising 2,443,468 | 24%

24%

Contributions 5,484,373 | 52%

52%

Total Revenue

1%

Bequests 3,431,857 | 33% In Kind donations 1,168,059 | 11%

10,504,610

11%

21

33%

Special Events 305,508 | 3%

3%

Net Investment Income 114,813 | 1%

2015/16

Leadership The Parkinson’s Disease Foundation, a division of the Parkinson’s Foundation, was privileged to have an outstanding and dedicated group of volunteers who generously donated their time and talents from July 1, 2015 to June 30, 2016. Without their selfless efforts, the work of the Foundation would not be possible.

Board of Directors Officers

Howard D. Morgan Chair Constance Woodruff Atwell, Ph.D. Vice Chair Stephen Ackerman Treasurer Isobel Robins Konecky Secretary Stanley Fahn, M.D. Scientific Director

Directors

Karen Elizabeth Burke, M.D., Ph.D. George Pennington Egbert III Richard D. Field Stephanie Goldman Arlene Levine Daniel Novak, Ph.D. Timothy A. Pedley, M.D. Gregory Romero Lewis P. Rowland, M.D. President Emeritus Melvin S. Taub

Scientific Advisory Board Stanley Fahn, M.D. Chair Constance Woodruff Atwell, Ph.D. M. Flint Beal, M.D. Robert E. Burke, M.D. Cynthia L. Comella, M.D., F.A.A.N. David Eidelberg, M.D. Christopher Goetz, M.D. Lloyd Greene, Ph.D. J. Timothy Greenamyre, M.D., Ph.D. Danna Jennings, M.D. Un Jung Kang, M.D. Katie Kompoliti, M.D. Jeffrey H. Kordower, Ph.D. J. William Langston, M.D. Matthew J. LaVoie, Ph.D. Karen Marder, M.D., M.P.H. Serge Przedborski, M.D., Ph.D. Margaret E. Rice, Ph.D. Kathleen M. Shannon, M.D. Yaakov Stern, Ph.D. David Sulzer, Ph.D. G. Frederick Wooten, M.D. Anne B. Young, M.D., Ph.D.

People with Parkinson’s Advisory Council Julio Angulo, Ph.D. Mary Bendelow, Ph.D. Elaine Casavant, R.N. Carol Fox Anthony Geraci, M.D. Andrèe Jannette Rebecca Miller, Ph.D. Girija Muralidhar, Ph.D. Daniel Novak, Ph.D. Chair Leslie Peters Jay Phillips Marilyn Phillips, P.T. Paul Rohrlich, Ph.D. Judi Sechter A.C. Woolnough Vice Chair Alan B. Zimmerman

Senior Professionals John L. Lehr

Chief Executive Officer Appointed January 2017 Robin Elliott* Chief Executive Officer, PDF division

James Beck, Ph.D. Vice President, Scientific Affairs Yasnahia Cortorreal Vice President, Administration Christiana Evers Vice President, Communications

Eli Pollard Vice President, Special Initiatives Ronnie Todaro Vice President, National Programs

* Mr. Elliott served as CEO of the PDF division until December 2016 when he assumed the title of CEO Emeritus, PDF division.

Photo Credits Page 1: Chris Jorda Photography, Page 3: Ignacio Fernandez Mata, Ph.D., Page 5: University of Delaware, College of Health Sciences, Page 8: Chris Jorda Photography, Page 11: HigginsPhotoNYC.Com, Page 14: Sylvain Gabrouy/Patrick McMullan Company, Page 16: Michael Blanchard Photography, Page 17: Sylvain Gabrouy/Patrick McMullan Company

©2017 Parkinson’s Disease Foundation

Annual Report

2016

22

Thank YOU!

1359 Broadway, Suite 1509 New York, NY 10018 | (800) 457-6676 | www.pdf.org