PARKINSON'S DISEASE FOUNDATION
Biennial Report 2012-2013
Table of Contents 2
Letter from Leadership
4
People Advancing Science
10
Science Informing People
14
Our Donors
32
Our Researchers
38
Financial Reports
40
Our People
The essence of PDF’s work over this period may be encapsulated into the following theme: People Advancing Science/ Science Informing People. In these phrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with the necessary tasks of today.
Dear Friend of the Parkinson’s Disease Foundation: With pleasure and pride, we send you Impact, the biennial report for the Parkinson’s Disease Foundation (PDF) for fiscal years 2012 and 2013. The essence of PDF’s work over this period may be encapsulated into the following theme: People Advancing Science/ Science Informing People. In these phrases rests the heart of PDF’s strategy: linking our dreams for tomorrow with the necessary tasks of today. Let us explain. People Advancing Science. In this dimension of our work, PDF harnesses the energies of committed doctors, gifted scientists and generous donors to push the science forward in the quest for new Parkinson’s treatments and — ultimately — a cure for the disease. This commitment has been at the core of PDF’s research strategy since the organization was created more than a half-century ago. This research — investigator-initiated and rigorously reviewed by peers and people with Parkinson’s — takes many forms. One could be the individual scientist in her laboratory, studying potential disease-modifying treatments for Parkinson’s. A second could be the work of a diverse panel of experts exploring the debilitating impulse control disorders that affect so many people with Parkinson’s. A third could be the long-term collaborations of a university-based research team exploring the role of genetics in Parkinson’s disease. In addition to the communities of doctors, scientists and donors who have traditionally led this work, PDF includes a fourth community: lay advocates in the scientific process, trained and deployed by PDF though in-person trainings and an online course. Through this program, known as Parkinson’s Advocates in Research (PAIR), people touched by Parkinson’s can join our network of more than 230 Research Advocates from 42 states who are working to bring about better treatments at a faster pace. These individuals are taking on a variety of challenges, including recruiting individuals for drug trials, providing advice to industry and federal regulatory agencies, and educating support groups.
3 | Letter from Leadership
Letter from Leadership Science Informing People. As much a philosophical precept as it is a program strategy, placing information and education on the firm basis of science is a core principle at PDF. Whatever the medium — our publications and newsletters, our popular website, our online educational seminars, or our online programs of professional education for nurses and physical therapists — PDF serves as an entrepot of relevant, timely and authoritative knowledge and information on Parkinson’s. Our goal is simple: to identify the questions that are uppermost on people’s minds and then to give them answers they can rely on, based on the best science available. Many of you who read this report will be the people who already support PDF’s work financially. It is your generosity that powers our work — on the one hand, advancing, through research of the highest quality, our understanding of Parkinson’s disease, and on the other, through science-based education, improving the lives of people who are touched by the disease. To these people, we offer our heartfelt thanks for all that they have done to date to advance our work, and we hope that they will continue to ride with us on this journey. We invite you to read this report carefully and to contact us at any time if you have questions about our work or about Parkinson’s in general. In the meantime, we wish you good health and happiness during the balance of the year. Sincerely yours,
Robin Anthony Elliott
Howard DeWitt Morgan
President
Chair, Board of Directors
Impact: Biennial Report 2012-2013 | 4
Supporting promising, crowd-sourced, peer and patientreviewed scientific ideas that advance the knowledge of Parkinson’s. Our comprehensive strategy is focused on three results: solving the mystery of its causes, developing new treatments for those who live with the disease and ending Parkinson’s disease forever.
5 | People Advancing Science
People Advancing Science David Sulzer, Ph.D.: Finding Potential Targets for Preventing or Treating Parkinson’s Although the vast majority of cases of Parkinson’s disease (PD) have no known genetic cause, among those that do run in families, the most common mutations occur in the LRRK2 gene (leucinerich repeat kinase-2). Now, researchers led by Ana Maria Cuervo, M.D., Ph.D., at Albert Einstein College of Medicine and David Sulzer, Ph.D., at PDF’s Research Center at Columbia University Medical Center, funded in part by PDF, have shown for the first time, why the faulty LRRK2 protein is harmful, and how it can block the normal cell recycling process. This research was published in the March 3, 2013, online edition of Nature Neuroscience and builds upon earlier work also funded by PDF. Normal cells, including those in the brain, use a recycling and waste disposal system to stay healthy. The process — known as chaperone-mediated autophagy — begins when molecules called chaperones patrol for damaged proteins and then
transport them to a recycling center (the lysosome). After arriving there, the damaged proteins travel to the interior region of the lysosome, where they are broken down into components that can be reused. Drs. Cuervo and Sulzer showed that chaperone-mediated autophagy was capable of recycling healthy LRRK2 proteins, but it was not as successful in breaking down those LRRK2 proteins that had the mutation found in people with Parkinson’s disease. In addition, these faulty LRRK2 proteins then prevented other proteins, such as alpha-synuclein (a protein that causes PD), from getting broken down and recycled. The studies of Drs. Cuervo and Sulzer over the years have spotlighted the need for developing therapies that can help restart or speed up cellular recycling — therapies that could potentially benefit people whose PD has no known genetic cause as well as those who have LRRK2 mutations.
Daniel Segal, Ph.D.: Learning from Other Diseases to Find New Treatments In Parkinson’s disease, the protein that clumps together and causes the disease is called alphasynuclein. If scientists could stop alpha-synuclein from clumping in the brain, this could potentially provide a new treatment for the disease. With funding from PDF, Daniel Segal, Ph.D., of Tel Aviv University, has developed a new molecule, based on quinone, a compound that has been shown to inhibit certain cellular pathways, that may be able to do this. His molecule is small enough to fit into the brain, and is similar to another molecule shown to stop clumping in the protein that causes Alzheimer’s disease. Dr. Segal found that in a petri dish, this molecule was able to effectively prevent alpha-synuclein from clumping together, and that higher doses were more effective than lower doses. Now he is testing the molecule in animal models. His early tests in
fruit flies found that treatment with this molecule resulted in improved motility (measured by climbing behavior) in PD fly models containing excess alphasynuclein in their brains. He now will extend his testing to PD mice models. If he finds this molecule to be successful, this could mean a promising new therapy for Parkinson’s disease. Of course, clinical testing would have to be done in humans to ensure that the molecule is safe and works the same way in humans as it does in flies and mice.
Impact: Biennial Report 2012-2013 | 6
People Advancing Science Sheng-Han Kuo, M.D.: Using Genetics to Find New Treatments Genes, in ways still unknown, contribute significantly to the risk of Parkinson’s disease. Understanding the genetics of those who live with Parkinson’s disease may hold the key to finding a cure. To further our understanding of genetics, PDF established in 2012 the Lucien Côté Early Investigator Award in Clinical Genetics, which supports postdoctoral researchers and junior faculty in the New York City metropolitan area who are studying the genetics of Parkinson’s. One of the first recipients of this award was Sheng-Han Kuo, M.D., of Columbia University Medical Center, who is using induced pluripotent stem cells (iPS cells) to study how changes, or mutations, to certain genes may cause PD. iPS cells are skin cells from people with Parkinson’s disease that have been chemically induced to develop into dopamine neurons, which are the cells that are lost in the brains of people with PD. Dr. Kuo is studying dopamine neurons derived from skin cells that have a specific change to a gene called GBA (the full name is glucocerebrosidase). He wants to determine how changes to this gene affect normal function in the brain, especially how they affect the clumping of alphasynuclein (a protein that causes PD). Past studies in rats have shown that changes to the GBA gene do cause clumping of alpha-synuclein in the brain. Now the goal is to see if this clumping also occurs in human brain cells containing the GBA mutation, and the mechanisms by which this happens. This knowledge may potentially lead to the development of new PD treatments.
Since 2000, PDF has provided over $69 million to more than 400 scientists as part of a comprehensive and multifaceted approach that supports both research and training.
7 | People Advancing Science
“THE PARKINSON’S DISEASE FOUNDATION HAS PROVIDED ME WITH CRITICAL SUPPORT TO CONTINUE MY PARKINSON’S
RESEARCH
EARLY
PHASE
IN THE OF
MY
”
CAREER DEVELOPMENT.
Sheng-Han Kuo, M.D. Columbia University Medical Center
Antonio Strafella, M.D., Ph.D., and Mark Stacy, M.D.: Understanding Impulse Control Disorders in Parkinson’s Disease The PDF Conference Award program was launched in 2012 to support gatherings of experts in the field to address emerging clinical or basic science questions about Parkinson’s. Two of the initial recipients were Antonio Strafella, M.D., Ph.D., of Toronto Western Hospital and Mark Stacy, M.D., of Duke University. Together, they used the PDF award in conjunction with other funding to gather clinical and preclinical experts from various research backgrounds to develop a strategic plan for studying the debilitating impulse control disorders (ICDs) that affect so many people who have Parkinson’s. ICDs can be a side effect of dopamine agonist therapy and include binge eating, compulsive gambling or shopping and increased sexual behavior. The conference, “Impulse Control Disorders in Parkinson’s Disease,” was held in October 2012 and featured experts from fields including neurology, psychiatry, neurobiology, pharmacology, addiction, neurologic imaging and epidemiology. This multidisciplinary meeting addressed the spectrum of symptoms associated with ICDs, and generated new ideas for clinical, experimental and translational approaches to better understand ICDs. It also facilitated interaction and collaboration among experts from diverse fields, and developed a network of interested scientists and clinicians to further study the disorder. The proceedings of the conference will be published in Movement Disorders.
Impact: Biennial Report 2012-2013 | 8
People Advancing Science Benjamin George: Measuring the Benefit of “Virtual” Office Visits Could we be returning to the tradition of seeing our doctors at home? This is the concept of telehealth. But how does it compare to conventional in-person medical care? Investigators led by E. Ray Dorsey, M.D., M.B.A., at Johns Hopkins Medicine, and including PDF Summer Fellow Benjamin George, recently found that people with Parkinson’s may benefit from a consultation with a specialist via online video conferencing from home, providing an alternative to traveling to an in-person appointment. These findings appeared in a study published on March 11, 2013, in JAMA Neurology. This study is one of the first to investigate whether telehealth appointments are feasible and beneficial to people with Parkinson’s disease. Researchers measured the participants’ quality of life and PD symptoms, and found the same results for individuals, regardless of whether they saw a doctor in-person or via video conference. In addition, compared with in-person visits, each "virtual" visit saved participants, on average, 100 miles of travel and three hours of time. Although the number of participants in this study was small, the results provide encouragement that video conferencing with a specialist can provide similar benefits to people with PD as in-person visits, while reducing the time and expense of seeing the doctor. However, before virtual visits become a reality, researchers must conduct studies with larger numbers of participants, and with participants of more varied socioeconomic backgrounds. In addition, issues surrounding technology and insurance reimbursement and rules in the United States that require doctors and the person being treated to be in the same state, will need to be resolved.
9 | People Advancing Science
“THANK YOU FOR PROVIDING THE FUNDING TO ALLOW ME TO CONTINUE TO CONDUCT RESEARCH TO FURTHER UNDERSTAND AND IMPROVE ACCESS
TO
DIVIDUALS
CARE WITH
FOR
IN-
PARKIN-
”
SON’S DISEASE.
Benjamin George Johns Hopkins Medicine
PDF Research Advocates: PAIRing Up to Advance Parkinson’s Research PDF believes that better treatments can be found at a faster pace when people with Parkinson’s are primary partners in research alongside scientists, industry and government. Since its founding in 2008, PDF’s Parkinson’s Advocates in Research (PAIR) program is making this partnership a reality. Here are some of the ways in which these 230 volunteer advocates from 42 states are actively changing how research is done: • Rich Hoffman, Pharm.D.: Speeding Drug Development "As a Consumer Representative with the US Food and Drug Administration, I represent the urgency of people with Parkinson’s, while helping to ensure that potential new drugs are effective and safe." • Steve DeWitte: Increasing Trial Participation "When I ask people with Parkinson’s why they are not involved in research studies, many reply, ‘Because I have no transportation.’ My solution was launching the Clinical Trial Transportation Program (CTTP). By partnering with Beth Israel Deaconess Medical Center in Boston, MA, and Columbia University Medical Center in New York, NY, CTTP has helped 37 volunteers to participate in studies by driving them to these two medical centers.” • Jane Denmark: Informing the PD Community “This is a hard disease. The only way we are going to speed up the pace of drug development is by getting involved in research. As PDF Research Advocates, my husband Al and I bring this critical message to support groups, health care professionals and students in our community."
“AS A
A DOCTOR AND
RESEARCHER,
I
BELIEVE THAT WHEN WE PARTNER WITH THESE INFORMED RESEARCH ADVOCATES, THAT IS WHEN WE WILL
SEE
TRUE
CHANGE IN PARKINSON'S RESEARCH.” Joohi JimenezShahed, M.D. Baylor College of Medicine, PAIR faculty and steering committee member
Impact: Biennial Report 2012-2013 | 10
Developing science-based educational programs that respond to the expressed needs of people with Parkinson’s and health care professionals and collaborating with patient and professional organizations throughout the community.
11 | Science Informing People
Science Informing People Using Online Programs to Reach New Communities Recognizing the need to provide people with Parkinson’s and health care professionals with research updates and strategies for living well with the disease, PDF continued in 2012 and 2013 its popular PD ExpertBriefings series. Subjects for the one hour online seminars are selected based on surveys of people with Parkinson’s, and the faculty are experts from around the US. More than 15,000 individuals from 43 countries participated in at least one PD ExpertBriefing. Topics covered included: • Driving and Parkinson's: Balancing Independence and Safety (Margaret O’Connor, Ph.D., A.B.P.P., and Lissa Robins Kapust, L.I.C.S.W., Beth Israel Deaconess Medical Center) • A Closer Look at Anxiety and Depression in Parkinson's (Laura Marsh, M.D., Michael E. DeBakey Veterans Affairs Medical Center and Baylor College of Medicine) • Parkinson's Medications: Today and Tomorrow (Cynthia L. Comella, M.D., F.A.A.N., Rush University Medical Center) • Understanding the Progression of Parkinson's (Ronald F. Pfeiffer, M.D., University of Tennessee Health Science Center) • What is New in Genetics and Parkinson’s Disease? (Matt Farrer, Ph.D., University of British Columbia) • Coping Skills for Parkinson’s Care Partners (Julie H. Carter, R.N., M.S., A.N.P., Oregon Health & Science University and Parkinson Center of Oregon) • Gait, Balance, Falls and Parkinson’s (Terry Ellis, P.T., Ph.D., N.C.S., Boston University College of Health and Rehabilitation Sciences: Sargent College) • Under-recognized Nonmotor Symptoms of PD (K. Ray Chaudhuri, D.Sc., M.D., F.R.C.P., NPF International Centre of Excellence, Kings College London) • Medical Therapies: What's in the Parkinson's Pipeline? (Kapil Sethi, M.D., F.R.C.P., Georgia Health Sciences University) • Improving Communication in Parkinson’s Disease: One Voice, Many Listeners (Angela Roberts-South, C.C.C.-S.L.P., Ph.D. Candidate, Western University)
As of September 2012, continuing education credits have been offered to health care professionals — social workers, occupational therapists and others — who participate in these seminars. Although these professionals work with people with Parkinson’s, they often receive very little training on the disease. CEUs are managed through PDF's sponsorship of the American Society on Aging.
“THE
INFORMATION
PRO-
VIDED IN THESE PD EXPERT-
BRIEFINGS
HAS
HELPED
OUR FAMILY AS WE MAKE THE PARKINSON'S JOURNEY TOGETHER.
WE NOW FEEL
PREPARED TO DEAL WITH THE CHALLENGES THAT WE
”
KNOW WE WILL FACE.
Elise C., Ramsey, NJ
Impact: Biennial Report 2012-2013 | 12
Science Informing People Improving Resources for NonEnglish Speaking Communities As the number of non-English speaking individuals increases in the United States, the need for resources for these communities continues to grow. In fact, by 2050, the Hispanic share of the elderly population is expected to almost triple to 17 percent from six percent in 2005. Since age remains the biggest risk factor for Parkinson’s, the prevalence of the disease in this community is expected to increase. PDF is committed to ensuring that all people — regardless of who they are, where they live, what language they speak or how much money they have — receive needed Parkinson’s information and resources. In 2012, PDF expanded our HelpLine to include interpreters who are available to speak with callers in Spanish and more than 200 other languages. Our HelpLine is staffed by a team of information specialists who can answer questions about Parkinson’s treatment and care, identify legal and financial resources and provide referrals to doctors and support groups where available. PDF also expanded our line of educational materials available in Spanish to include fact sheets on topics such as deep brain stimulation (DBS) as a treatment of Parkinson’s, care partner concerns, the role of hospice in Parkinson’s care, managing Parkinson’s medications and understanding pain in Parkinson’s. In 2012 and 2013, more than 5,000 individuals requested information in Spanish. Since 2007, PDF's HelpLine has responded to inquiries from almost 50,000 individuals around the world as part of its commitment to ensuring that everyone has access to Parkinson's information and resources.
13 | Science Informing People
“I
AM EVER SO APPRECIA-
TIVE OF YOUR THOROUGH RESPONSE. OUR FAMILY BELIEVES IN THE POWER OF TEAMWORK, RESEARCH AND ACTION. UNDERSTANDING A DISEASE HELPS US ALL FEEL EMPOWERED TO HELP ONE
”
ANOTHER.
Sylvia G., Yuma, WA
Educating Physical Therapists About Parkinson’s While no treatment can prevent or reverse Parkinson's, research suggests that physical therapy can help improve strength, fitness level, walking speed and balance, leading to reduced disability and greater independence. Unfortunately, there is a lack of trained physical therapists to care for the growing Parkinson’s community. To address this need, PDF launched in April 2012 a free online course, “Parkinson’s Disease: A Practical Approach to Evaluation and Treatment for the Physical Therapist.” The course was designed by expert physical therapists in the field of Parkinson’s to help other physical therapists provide better care to people with the disease. PDF led the development of this course in collaboration with the American Parkinson Disease Association (APDA), the American Physical Therapy Association (APTA) and the Visiting Nurse Service of New York (VNSNY). The course includes ten educational sessions and two interactive panel discussions. Since its launch, more than 6,000 physical therapists have participated in this program. This program was made possible with the support of Kenneth M. and Susan Granat Weil in memory of John and Joan Haine; the Edmond J. Safra Philanthropic Foundation and the American Physical Therapy Association. It also received kind support from Rusk Rehabilitation at NYU Langone Medical Center. Additional promotion was provided through our media partners, which include the Houston Area Parkinson Society, National Parkinson Foundation, Northwest Parkinson's Foundation and Parkinson Association of the Carolinas.
“THIS COURSE PUTS THE
LATEST
EVI-
DENCE-BASED FINDINGS IN THE HANDS OF
PRACTITIONERS
AROUND THE COUNTRY TO HELP THEM PROVIDE THE BEST CARE POSSIBLE.” Terry Ellis, P.T., Ph.D., N.C.S. Clinical Associate Professor at Boston University’s College of Health and Rehabilitation Sciences
Impact: Biennial Report 2012-2013 | 14
Thanks to the generous support of nearly 36,000 donors, the Parkinson’s Disease Foundation (PDF) funded almost $10 million in research throughout the world and over $3 million in national education and advocacy programs in fiscal years 2012 and 2013. PDF gratefully acknowledges the following donors who helped us make an impact.
15 | Our Donors
Our Donors The following individuals, families, foundations and corporations have made cumulative gifts of $500 or more to PDF between July 1, 2011 and June 30, 2013.
Individuals Colman and Nancy Abbe
John Ayer
Robert and Georgean Abels
Kenneth Ayer
Andrew Abramson
Charles Babcock and Nancy Hamilton
Mark G. Ackerman Stephen and Marsha Ackerman Peter Adams Steve and Rebecca Adams Todd Adams Brigitte Addimando Allison Adkins David Adler Meeta Advani Dr. Avadesh and Uma Agarwal Roger E. Ailes John and Susan Akers
Robert and Toni Bader Sara Badler John and Susan Baer J. Edmonds Bafford Patricia P. Bailey Gerson and Barbara Bakar William and Sharon Baker Alex Balanevsky
PDF Champion Sean Wright and family at the 2012 Marine Corps Marathon
Inga Balke Buck and Leslie Balkind Byrd and Alice Ball
Herschel and Rita Bloom
Florence Barad
Deborah Berman and Bruce Greenberg
Benny Barak
Bernard Berner
Drs. David and Jane Bloomgarden
Katie Barrow
Arnie Bernstein
Theodore and Flora Blumenthal
Eric and Melba Anderson
Kathy Barthlama
Josh Bernstein
James Bobo
Joe Andronaco
Doris Bato
Richard A. Bernstein
Ernest and Rita Bogen
Nicole Angell
Peter M. Bauer
Neil and Marilyn Bersch
Richard Bohlen
Anonymous (8)
Millie Bayne
Danny Bone
Gene Anspach
Lawrence and Sandra Beal
Mr. and Mrs. David M. Berwind, Sr.
Mr. and Mrs. Thomas S. Alexander George and Jodie Allen
Richard Anthony
Michael and Marcia Beck
Toni Arai
Bruce and Carol Bell
Britta Arendt
Mr. and Mrs. Frank M. Bell, Jr.
Salvatore and Ruth Armenio
Janet and Lawrence Bell
Daniel Armstrong
Don and Carol Bender
Jeffrey and Shari Aronson
Tom and Anne Benedict
Dr. Marian Ashraf
Alison Benge
Simon Asselin
Robert L. Benjamin
Edgar Astrove
Elizabeth S. Bennett
John and Anne Atherton
Robert Benton
Allan Atmore
Ron Bergamo
Evan Avidane
James and Suzanne Bergoffen
Michael Axelrod
Fred Bering
Norman and Alison Axelrod
Donald Berkowitz
David and Jo Anne Bescherer
Roger Bonga
Beth Besen
Robert Book and Marcy Helfand
Caryn Biancosino
Dr. Doyle Booker and Linda Booker
Claudette Bidgood Louis and Anne Krementz David Binder Simran Bindra Jules and Helen Bingham Kyle Blackmon James and Shirley Blackorby David H. and Mary B. Blair Lawrence Blaskopf Richard Bleikamp Sean and Rosanne Bloodwell
Edward C. Booth Mr. and Mrs. Lee Boothby Patrick and Martha Boudewyns Dierdra Bowditch David Bradford Kyle Bradstreet Norman and Linda Braverman Andrea Cervantes Brennan Michael and Tracess Brenner Irving G. Brilliant Karen Brimberg
Impact: Biennial Report 2012-2013 | 16
Individuals Toby Brimberg
Andrew Callan
Carol C. Clark, Ph.D.
Sally Cross
Jayne Brindle
Pete Campbell
Elizabeth Clark
Jennifer Csorba
John and Patty Brissenden
Scott Campbell
Aaron and Wendy Clayton
Gene and Judi Curry
Jill and Ken Brodkowitz
Joaquin and Angela Campo
Michael Cloonen
Edna Curtis
Mr. and Mrs. Jed Brody
Jose and Lourdes Campon
Mark Coatney
Joseph D'Amadeo
Dr. William Coggshall
Stephen D'Amato
Robert and Joni Cohan
Guido D'Elia
Dayl Cohen
Burke Dambly
Suzanne Cohen
Cynthia Danel-Frankovitch
Alan and Betsy Cohn
Mr. and Mrs. Phillip A. Daniel
Gerard Cole, Jr.
John Danstrom
Ray and Claudia Cole
Ernest Dampf
Brenda Collins
William Darnton
Susan Comparato
Ted and Gerald Davenport
Dr. Valerie Cooke
Diana H. Davis
Mr. and Mrs. Thomas A. Cooper
Mr. and Mrs. Monty Davis
Katharine T. Cornelius
Richard Davis
Robert and Rhea Corrion
Elizabeth de Lima
Robert Cortelyou
Edwin Lee Solot and Marie De Lucia
Robin Elliott (left) with Isobel Konecky and Family at the 2012 Bal du Printemps
Jay Cossentine David and Angela Brown
Mr. and Mrs. William Canata
Dr. and Mrs. Lucien C么t茅
Doug and Julie Brown
Dr. Jeff and Dieta Cao
Mr. and Mrs. Michael Cotton
James S. Brown
Robert and Mary Capaldi
Norman and Helen Coulson
Rachael Brown
Ray Capitanini
Dr. C.W. and Deborah Cowles
Drs. Russell and Susanna Brown
Sharon Cardinal
Gabrielle Crandall
Steven Bruck
Peter and Nadia Cardozo
William and Clare Cribbin
Vivienne Bruckman
Mr. and Mrs. Raymond W. Carlin
Cary Cridlin
Christian Bruner
John K. Castle
James Cronin
Bunyan Bryant
John and Margo Catsimatidis
Lee Buchheit
Joseph Curci and Lisa Centone
Mary Anne Buchheit
Michael Cerussi
Don Buchholz
Mr. and Mrs. Bernard D. Chalfin
Mr. and Mrs. Mark Budd
Alfred and Nancy Chandler
Lieselott Buettner
Gary and Beth Ann Chard
Michael and Joan Burke
Carol Chase
Dr. Robert Burke and Dr. Sharon Wardlaw Julie Burma John and Barbara Burns Peter and Barbara Bye Julie Byrne Diane Calder Denis Callaghan
17 | Our Donors
Dennis De Pietro Michael DeGeorge Patricia DeGeorges Dr. Maria De Leon James Dellinger Cindy DeLuz David Dennis Anthony DePaolo Charles and Virginia Detoy
Mr. and Mrs. Adam Chasnow Fu Tzu Chen Terry and Brooke Cheng Thomas Cherner The Chiaro Family Anthony and Patricia Cilluffo Wayne Citrin and Deborah Arhelger
Guests enjoy CARNAVAL 2013
Our Donors Vincent and Jeanine Fatato
Alan and Marion Garfield
John Fatteross
Diane Garrett
Mark Faught
Gary Garrison
Burt and Noelle Faure
Thomas Garrison
Gian Favalli
David and Gail Gasser
Leonard and Gloria Fazio
Gary and Ellen Johnson
Andrew and Michelle Feinberg
Debra Gaynor
Dr. Daniel Feinberg
Willie and Christina Geist
Steven Feldman
Vic and Joan Gelb
Julia Ferguson
Seth Gelblum
Eda Ferman
Venita Georgieff
Richard and Schuyler Field
Adeline Gersen
Philip Fierro
Gerald Z. Gibian
Debbie Finkel
Joel Gibson
Roger C. Dunn
Eric and Keryn Fishman
Nora Gibson
Michael Deutsch
John Dwyer
Scott Fitcher
Dr. George and Anisia Gifford
Mr. and Mrs. Chris J. Dicharry
Brian and Karen Eckhart
Thomas and Barbara Fleming
Robert M. Gilhooley
Mark Dickinson
Hollis and Sharon Eddins
Anthony and Patricia Forgione
Eric Gillert
Ervin and Karen Dieckhoff
Mark D. Edie
Mr. and Mrs. Alan J. Forman
Christopher Gillock
Abbie Edwards
Andrew and Jean Fornato
Robert and Gail Ginsberg
Willie and Christina Geist at the 2013 Bal du Printemps Alvin Deutsch
Neal Dimick Albert Diringer
G. Pennington Egbert III
Cathy Forsberg
Don Ginsburg
Aida S. Dishman
Adele Eger
Dr. and Mrs. Brian Forst
Catherine Giordano
Drs. David and Jane Eger
Jack Fortinsky
Gerald and Deanne Gitner
Michael and Barbara Ditzian
Ronald A. Eger
Dr. Craig and Blake Foster
Jeffrey Gittleman
Kathleen and Eamonn Dolan
Roberta Ehre
Mr. and Mrs. Thomas D. Fowler
Seymour and Rita Glanzer
Jorge and Mary Dominguez
Frances Ehrlich
Dave and Jill Fox
Jerry Glennie
Juan Dominguez, Esq.
Joanne Eickhoff
Patrick Franc
Roger and Sandra Goetti
Charlotte Einstein
Jonathan Franzen
Morton and Claire Goetz
Anthony DiVito
Edward Dondzila Mr. and Mrs. Francis Donnantuono Michael Donnantuono Julie Donovan Neil Doppelt and Audrey Adams Vicky Dorn-Fontana Krista Douglas Ezra and Elizabeth Doverman Richard and Sarah Draut Craig and Monica Drill Jennifer Drinan Chris and Jill Drury Ryan Duffy Richard and Jane Dunbar
Ronald and Nanette Elenbaas
Mr. and Mrs. Stuart Fraser
Capt. Lewis and Ada Goldbek
Stafford Elias
Dr. Jay Freed
Allan Goldberg
Diane Elliott
Gary and Carol Freidman
Stephanie Goldman-Pittel
Robin A. Elliott and Dr. Sheila Gordon
Rick and Shelley Friedland
Amy Goldman
John Ellis Samuel and Maryann Ellsworth Stephen Ellis Kim and Lizabeth Erickson Arnold and Shirley Erickson Mr. and Mrs. Jeffery Ettinger Dr. Stanley and Charlotte Fahn Fernando U. Fajardo Steven Farber
Dr. and Mrs. Lawrence Friedman David Goldman William C. Friend
James and Sarah Goldman
Elizabeth B. Friou
Molly Goldstein
Meyer and Florence Frucher
Joseph and Mary Golemme
Dr. Paul Fuchs
Mr. and Mrs. Benjamin Gomez
Mark Funderburk
Dr. Robert R. Goodman
F. Daniel and Bunny Gabel
Scott Goodman
John and Cynthia Gallagher
James and Ann Gordon
Ronald and Kroupa Galowich
John Gordon
Sarah Belk Gambrell
Patrice Gordon
R.T. Farmer
Impact: Biennial Report 2012-2013 | 18
Individuals Dr. Simone Gordon
Stuart Gross
Nancy Harold
Timothy and Tracy Hilbert
James T. Gottwald
Henry Strater and Lillian Grossman-Strater
Dr. Steven G. Harper
Richard L. Hildbold
Janet Harris-Ahl
Roger Hildeen
Charles Harris
Lane and Laura Hill
Mark Harrison
Sara Hill
Randy Hartshorn
Mallory Hiltz
Lauren Hauser
Jerry and Joyce Hirsch
Jeffrey Havsy
Robert Hirsch
Gregory and Sharon Hawkins
Olga Hirshhorn
Dr. and Mrs. Joseph Hawkins
James Hirst
Mr. and Mrs. Richard Hay
Ian Hodgson
George Hebard
Monty Hoeflein
Peter John Goulandris and Dr. Karen E. Burke Mr. and Mrs. Peter Grad
Bill and Rhea Grous Leonard and Jennifer Gruenberg
PDF Champion Margaux Minutolo (left) and friend modeling Mind Over Matter T-Shirts
Susan Heidenberg
Elizabeth and Marvin Hoekstra
Dr. John and Peggy Heilman
Mr. and Mrs. F. William Hoffman
Dr. Sydney and Roslyn Helfen
Mr. and Mrs. Joseph Hoffman
Mr. and Mrs. Lewis Helfstein
Mr. and Mrs. Neil Hoffman
Michael Hencel
Philip and Mary Hogan
Richard and Rose Henneberger
Stephen and Margot Holland
Patrick Henry
Joseph and Jean Holman
Troy D. Henry
Alexander Holtzman
Stephen L. Graessle
G. Guist and Robin Guist
Margaret S. Herold
Joan Hornig
Joan Graham
Geoffrey and Sarah Gund
Tino and Rosie Herran
Mr. and Mrs. Hornstein
Sharyn L. Gunderson
Mr. and Mrs. Stuart A. Hersch
David Horwitz
Rachel Granger
Arlen R. Gunner
Dr. Daniel and Natalie Hertz
Rev. and Mrs. Alanson Houghton
Dr. Michael and Dena Granhof
Chris Gunner
Mr. and Mrs. Steven Herzog
Thomas and Anne Hubbard
Richard and Marcia Grand
Christine Grant
Jon and Stevi Gurkoff
Steve and Toby Hess
Patricia Huggard
Clair Grant
Andrew Gustin
Steven and Sherry C. Hibshman
Craig and Lane Huggins
Mr. and Mrs. James Graves
Mark Guzzi
William and Mary Hicks
Risto Huovinen
Kent Gray
Lois Gwinn
Michael Gray
Eleanor Hagan
Joshua Greenberg
Scott Hahn
B.J. and Howard Greenberger
Barry and Jane Haimes
Robert W. Greene
Alyce C. Halchak
Sherwin Greenwald
Dr. William and Katherine Hale
Nicholas and Marjorie Greville
John Haley
H. Duane and Sandra Griffin
Jennifer Hallenbeck
Mr. and Mrs. John Scott Griffin
Christina Halpern
Lisa Griffin
Jeffrey Hamer
Richard Griffith
Norma Hammond
Scott and Susan Grodnick
Sulabha Hardikar
Lexi Gross
J. Alan and Karen Harding
Pete and Emily Gross
Gilbert Haroche
19 | Our Donors
Stephanie Goldman-Pittel (left), Jerry and Arlene Levine (center) and Robin Elliott at the 2013 Bal du Printemps
Our Donors Christopher Keber
Kenneth and Cheryl Kuliga
Judithann C. Keefe
Howard and Gail Kunreuther
Dr. David L. Keller
Barbara Kyse
Douglas Keller
James Lacroix
Denise Kellogg
Patrick Lagrange
Edward and Kathleen Kelly
Rutherford C. Lake, III
Dolores Kennedy
Louise Lallier
John Kiernan and Catherine Ruvolo
Elina Lam
Mary and Franklin Kilgore David and Hyun-Min Kim
Genna Farber, Stevi Gurkoff, Jon Gurkoff, Gene Gurkoff (front row left to right) and David Farber, Kate Drury and Jack Drury (back row left to right) at the 2102 Bal du Printemps Francis Hyman Andy and Margo Illobre Mark Indelicato Gary Irwin Howard Isermann Clifford Ishmael John Isley Nancy Isserlis Ralph and Barbara Italie William and Judith Jackson Alan and Barbara Jacobs Randi S. Jacobs Selwyn and Marjorie Jacobs Ben and Martha Jacoby Peter and Karen Jakes Molly and Marshall Janes Allan Janoff April Jansen Raymond Jasen Judi Jecmen William Jeffery Charles Jenkins and Jeni Forshier-Jenkins
Kevin P. Johnson and Laurel E. Johnson-Smith Larry Johnson Mary Johnson
Thomas Kimbis Dr. and Mrs. William King Stubbs
Dr. Lenny LaManna Scott and Ann Landes Steve and Keala Landry Mark Lane Robert and Susan Larson
Kevin and Sarah King
Robert O. Laven
Donald and Bonnie Kinzer
Pauline M. Lecomte
Lori Kirsch
Bennie and Donna Lee
Kevin Kissell
Mr. and Mrs. Gregory Lee
Dr. and Mrs. Francis l. Kittredge
So Young Lee
Andy Klein
Brian Leffler
Jayne Klein
Mark and Gaby R. Lehrer
Gary M. Kleingartner
Thomas A. Lehrer
Dr. David L. Klionsky and Eva Youshock
Jill Leinbach
Thad and Suzanne Johnson Wes Johnson
James Knowles
Walter F. Leinhardt
David and Carolyn Jones
Suzanne Knowles
Herbert and Barbara Lembcke
Lauren Jones
Edgar and Eileen Koerner
Sally W. Leung
Nathaniel and Judith Jones
A. Kohn and Barbara Kohn
Drs. Ilan and Barbara Levi
Eleanor N. Jordan
Shiro Koike
Dina L. Levin
Reynold and Margaret Jordan
Patricia Kolb
Jerome and Arlene Levine
Colleen Joyce
Isobel R. Konecky
Dr. Irwin and Francine Levine
Dr. Daniel Judd
John and Cheryl Korth
Burt and Mary Ann Lewis
Andrew Kampf
Marcia and Walter Kortschak
Kevin Lewis
Vikram Kanda
Kay Kowitt
Melanie Lewis
Daniel and Susan Kane
David and Susan Kraus
Wesley and Diann Lewis
Robert and Jane Kantor
Myer and Phyllis Kravetz
Dr. Stanley and Anita Liebowitz
Gary M. Karlitz
James Kress
Mr. and Mrs. William Lifland
Dr. George Karnoutsos
Mark B. Kristof and Beth V. Ward
Paula Lightfoot
Gloria Kronenberg
John and Catherine Liguori
Mr. and Dr. Rhett Krulla
Richard Linhart
Charles Krusen
Joan Lipkowitz
Mr. and Mrs. John Kuelbs
Joseph Liss
Robert Kuhbach
Dr. Nan and Doug Little
Michael Johnson R.A. Johnson Rhona Johnson Ronald Johnson
Lynn and Sue Jenkins
Richard and Jane Karp
Maurice and Linda Jennings
Arnold A. Katz
Beverly Jensen
George Kaufman
Mr. and Mrs. Arthur P. Jentoft
James Kaufman
Charles and Linda Johnson
Arlan and Lori Kay
Donald and Marian Johnson
Paul Kebabian
Laurie Leiner and Morton Katz
Impact: Biennial Report 2012-2013 | 20
Individuals David Littleton and Susan Stevenson Robert LoBue William Lockeretz Arnold and Pamela Loeb Marshall Loeb James Long Robert A. and Joan H. Long Robert Lonier
George and Priscilla Matouk
Catherine Mock
George Newmark
Ray Matra
Gina Modica
Joan Nicolais
Diane Matusiak
Eric Moede
Sally Nightingale
William and Natalie Mauskopf
Donna Mondani
Agnes E. Nixon
Robert M. Maxwell
David Moody and Eileen Guilfoyl
Marla E. Nock
Michael and Jessica Mayerson Theodore Maynard Alexander and Marianna McAfee
Mr. and Mrs. Robert E. Moore Miriam Moran Howard and Ginger Morgan
Edward J. Noha Maryellen Noreika Robert S. Northington Sabato Noto
Evelyn Lord
Mr. and Mrs. Kevin McCabe
James and Laura Morgan
Mary Love
Alexandra McCagg
John and Debbie Morken
Dr. Jack and Lenore Lowenthal
Dr. Wesley McCain
Deborah Morrow
Dina Lowy
Randall T. McCallum
Pam Moshe
Harry Luebbe
Maureen McCarthy
Erin Montameni
Terrance O'Bar
Joseph Luetje
Robert and Marsha McCleary
Patrick and Debra Mucci
George and Barbara O'Connor
Walter Lyczkowski
Mr. and Mrs. Todd McClutchy
Sheila Muldoon
Patricia O'Donnell
William and Louise Lydic
Michael and Cynthia McConnell
George and Ellie Munroe
Daniel O'Neill
Kenneth Musen
Carol Okane
Jean Myers
Aksel and Kamma Olesen
John Myers
Marie Oliver
Catherine Nabulsi
John and Marnie Olson
Dorotea Nathan
Walter and Gloria Olson
Michael Mackey Darin Magedanz
Erin McGarry Cubero John and Helen McGrath
George R. and Linda L. Mahoney
W. McMillin
Mr. and Mrs. Burton C. Mallory
Iris McQuistion
Larry and Janis J. Malone
Paul and Kay Meister
Terence Malone
David P. Melillo
Reid and Jeanne Mandel
Dr. Vincent Memoli
Virginia Mankin
Andrew and Gigi Menard
Vincent Marano
Dr. Robert Mencher
Adam Margolis
Gerardo Mendez and Melissa Roth Mendez
Sidney and Phyllis Margolis Linda Markeloff Leon Markoff James Markowski Lizzy Markus
Anna Merker
Carol Noymer Mr. and Mrs. Lawrence C. Nussdorf
Paul and Marcy Nathan
Mr. and Mrs. Timothy Onders
Sunil Nayar
Lila Ontiveros
Douglas and Jean Nelson
Timothy and Nicole Oprisu
Harold Nelson
Richard Orechovsky
Alfred Netter
Dr. Salvatore Orsini
Dr. George Neuman
Aura Oslapas
John New
Marc and Neil Ozanich-McNinch
Dr. Karim Mezran Thomas Milana Dr. David Miller
Kay Marmorek
Elizabeth Miller and James Dinan
Stephen Marotta
Jim Miller
John Marozzi
Jody Miller
John Marquiss
Richard and Lois Miller
Sharon Marr
Walter and Marion Minton
Adolfo Marrero
Thomas and Marilyn Mints
Christine Martino
Zareen Mirza
David J. Marx
Lawrence and Ruth Misrok
Yvonne L. Mason
Lucile Missimer
Tom and Bev Mathis
William Mitchell
21 | Our Donors
Allan Novak
Peter Dorn (center) and friends at CARNAVAL 2013
Our Donors Stephen and Judith Pagano
Nicholas and Carol Paumgarten
John Pepples
Donna Pickett
Jeanne Payne
Sura Peter
Nina Platt
Sandy Payne
Amanda Peterson
William Platt
David and Mary Peachin
Mr. and Mrs. Frank A. Petitti
Carol Pogash
Melba Pearlstein, Esq.
George Petras
Drs. John and Susan Pollack
Elaine Z. Peck
Michael and Nancy Peters
Martin and Ruth Pollack
Hugh Patterson
Dr. Timothy Pedley and Dr. Barbara Koppel
Monica Phifer
Mr. and Mrs. Henry A. Pope, Jr.
James Patterson
Deborah Pelle
Richard and Eleanor Phillips
James and Sandra Porter
Mr. and Mrs. Robert Paglia and Family Lisa Painter Thomas and Jeanette Palizzi Tony Pallagrosi Kathy Patrick
Irving G. Brilliant $100,000 Research Challenge and Light of Day Foundation $100,000 Challenge Supporters The following individuals, companies, foundations and organizations contributed $500 or more to help PDF meet the Irving G. Brilliant $100,000 Research Challenge and/or the Light of Day Foundation $100,000 Challenge in fiscal years 2012 and 2013. Dr. Jack and Lenore Lowenthal
Ezra and Nilofer Reese
Todd Adams
Ferguson Family Trusts
Thelma R. Balbes
Ronald H. Galowich
James and Suzanne Bergoffen
Stanley F. Goldfein
Lower Shore Parkinson's Support Group
Preston Goodrich
Burton Mallory
Rose-Marie H. Boller
The Jack Webster Grigsby Foundation
Ellen H. Manian
Christopher Rohwetter
D. R. Booker
Wilma P. Hawk
Andrew Menard
St. Jude Medical
Brown Charitable Foundation
Majorie and William Hill
Bikini Offroad
Henry Richmond Steve and Teresa Riffle Sherie Ritzler
MetLife Alico
Stan M. Sandberg
Joseph W. Metz
Arnold and Marie Schwartz Fund
Mr. and Mrs. Mark Budd
Selwyn and Marjorie Jacobs
Marion Minton
Denis Callaghan
Eleanor N. Jordan
Andrea Moletteri
Dr. and Mrs. Thomas Shiftan
Robert Chartoff
Colleen Joyce
Sunil Nayar
James Cronin
Dr. and Mrs. Francis l. Kittredge
Robert Northington
Mr. and Mrs. Clyde W. Smith, Jr.
William Cunningham Vincente T. Dipatre, Jr. The DuBose Family Foundation Bob Duncan Joanne Eickhoff Paul Ellis Epstein, Becker & Green, P.C.
Barbara Kyse
Dorothy S. Oda
John W. & Laura S. Stewart Foundation
Rick Oddo
Rebecca C. Swan
John and Marnie Olson
Martin Typer
Mark D. Litt
Michael Opalak
U.M.R. Foundation
Dr. Nan and Doug Little
Peaceful Meadows Farms Ice Cream
The Light of Day Foundation, Inc.
Arnold and Pamela Loeb Lovinger Family Foundation
Dana C. Puddy Monica Reed
Mark Viviano Nancy C. Wheeler Dr. Fred and Mary Woodlief
Stephen Reed
Impact: Biennial Report 2012-2013 | 22
Individuals Margaret Posthumus
Llewelyn and Billie Rentel
Mark Rosen
Ruth Ann Potts
Ian Spencer Rice
Charles Rosenbaum
John Pougiales
Harold and Jane Richard
Jean Rosenberg
Arjun Prabhu
Paul and Takako Richards
Jeffrey and Sarah Pribyl
Alan and April Richstein
Mr. and Mrs. Edward Rosenblum
Elizabeth Scanlon
Martin and Carol Rosenblum
Donald Schaefer
Melvin S. Rosenthal
Mr. and Mrs. Robert A. Schaefer, Jr.
Roxanne Rosoman Dr. Harley and Sara Rotbart Mr. and Mrs. Steven Rourke Robert Rouse Dr. and Mrs. Lewis P. Rowland Lewis and Gail Rubin Milton and Adele Rubinfeld
Laurence and Marjorie Quaife Winifred Quinn Dejesus Ashley Quinn Judith Rader W. Matt and Amelia Ralls John Raphael Joshua Raskin Tim Rath Leonard and Ruth Rau
Dr. Gregory and Patricia Schlegel
Antonio Ruiz
Dr. Herbert Schlesinger
Frank Rumuro Danny and Melesia Rutland
Sanford Schlesinger and Lianne Lazetera
Jamie Saccardo
Bob Schmitz
Olga Salazar
Jay and Suzette Schochet
Saul M. Salka
Dr. Thomas and Jean Schreiber
Steve and Teresa Riffle
Leslie Samuels
Michael and Janice Shrimmer
Sandra L. Rigopoulos
Stan Sanberg and Stacey Mayesh
Shelley and Blair Schrum
David Sands
Brian and Kathy Schultz
Hellyn L. Sarek and Barbara Davis
Howard and Phyllis Schwartz
William F. Ringier Frank and Nora Joan Ritchey Sherie Ritzler Lawrence and Carol Rizzolo
David M. Schuld
Marie D. Schwartz
Mr. and Mrs. Jeffrey D. Roberts Matthew Roberts Thomas and Brenda Roberts Eric Robertson Sally Robinson Robert Southern and Karin Rodgers
Mary Rauhe
Clint Rogers
Edwin and Nancy Redkey
Michael Romano
Michael and Kristin Reed
Robert and Heddie Romanoff
Jonathan Reeves
The Romero Family
Allan Reine
Gregory and Barbara Romero
Kurt Reinsberg Ralph and Barbara Reis
Robert Roriston and Sarah Bird
Samuel Rensin
Mr. and Mrs. Jonathan Rosen
23 | Our Donors
Susan Schindler Steven Schirripa
Jane Safer
Mr. and Mrs. Michael A. Riddick
Roland Quade
Joseph and Bonnie Schinagle
Mr. and Mrs. Scott Schneider
Warner Price
Bhaskar Pulikal
Gregg Schenker Michael and Melissa Schilling
Mr. and Mrs. Thomas Schneider
April Rickey
Dana C. Puddy
Anand and Padma Savur
Mr. and Mrs. Albert Safer
Mr. and Mrs. Michael Price Dr. Serge Przedborski
Scott Sassa
Matthew and Frances Schaeffer
Dr. Stephen Ross
Gregory and Barbara Romero at the 2012 Celebrate Spring
Lawton Sargent and Audrey Meyer Sargent
PDF Champion Anna Rinaldo and friends at the 2013 Vintage Tea Party Event
Our Donors Mr. and Mrs. Marcellus Snow
Mr. and Mrs. Abbott Stillman
Drs. Paul and Terri Silverman
B. Robert and Mary A. Snyder
Rev. F. Barry and Colette Stipp
Mr. and Mrs. Mark K. Silverstein
Glenn Snyder
Keith Stoltz
Stephen Simko
Mr. and Mrs. Paul W. Snyder, Jr.
Scott Strickland
David and Joy Simon
Perry and Elaine Snyderman
Richard Strobel
J. Robert and Linda Sims
Kenneth and Joanne Sold
Richard and Marcia Sinclair
Amy Sole
Christianna L. Strohbeck and Dr. Ramaswamy Murari
Nicholas Singer
Phyllis Sonnega
Phillip S. Sirianni, Jr.
Douglas and Ann Spaniol
Samuel J. Sirota
Sue Sperger
Benjamin Slate
David Stagg
Jerome and Susan Slate
Mr. and Mrs. Doug Standley
Mr. Thomas Sutton and Dr. Marilyn Sutton
Martin Schwartz
Fred Silton
Max and Nancy Schwartz Frederick and Ruth Schwarzmann Rosanna Scotto Julie Seibert Edmund and Dorothy Seyfried Leslie Shapiro Ronald and Evelyn Shapiro Missy Egbert Sheehan and William B. Sheehan Mr. and Mrs. Sidney J. Sheinberg
Sharon Sturges Fred Sullivan Dr. and Mrs. Ira Sutton Dr. Lois Sutton
Diane Shenberger
Andrew Slepoy
Mr. and Mrs. Steven Starker
John Sheridan
Rebecca C. Swan
Dr. Bernard and Sheila Small
Kenneth and Alice Starr
Jack and Paula Sherman
Daniel Swanson
Annalise Smith
Athena Starry
Dr. and Mrs. Thomas Shiftan
Edward and Nancy Sweeney
Clyde and Bonnie Smith
Dr. Philip and Bonnie Stein
Ellen Shiro
Edward Swenson
Courtney Smith
Stephen and Gail Steining
Mr. and Mrs. Edward L. Shugrue III
Diane Swonk
Ethel and Leonard Smith
Scott Steinman
William and Christine Syers
Ann Shult
James Smith
Gail Stelter
Douglas and Hope Syverson
Rose L. Shure
Kathryn H. Smith
Douglas and Lisa Stern
James and Mary Talmage
David and Carol Sidman
Leon and Elaine Smith
Jonathan and Sydney Stern
Carol and Melvin Taub
Allen and Claudine Siegel
Steven and Georgiann Smith
Sandra and Evan Stern
Mary Elizabeth Taylor
Dr. Sandra and Arthur Siler
Wade Smith
John Stewart
Nathan and May Teitelman
Albert and Martha Sneed
Todd Stewart
James Parkinson Legacy Society
We thank the following members of the James Parkinson Legacy Society who have included PDF in their estate plans or who have established a charitable gift annuity with us.
Gertrude S. Bell Roger M. Bowman Ann Cavalli Aila G. Dawe Jean Dewdney Guy Estes Elizabeth A. Geiser Matilda Goodman Annette Korn Viola B. Marshall
Lisa Painter Edith Perman-Allen Marie D. Schwartz Stephanie and Bernard Schwartz Mr. and Mrs. Robert W. Smith Charles L. Thomas Lucy Venable M. R. Weingardt James B. Wittrock
If you have made estate plans which include PDF or wish to establish a charitable gift annuity which provides you with income for life, please contact PDF at (800) 457-6676.
Impact: Biennial Report 2012-2013 | 24
Individuals Rocky and Cynthia Terrel
Lloyd Vaughan
James M. Weichert
Ray Wirta
Jeff and Rachel Theilacker
Richard N. Vaughan
Mr. George Weiksner
Charles and Meryl Witmer
Josh and Ellen Thomas
Judith Velho Baker
Susan G. Weil
Joel Wojnilower
Ann Thompson
Darla Jean Verdin
Jeffery L. Weiner
Rae Ann Thompson
Dorothy Vetrano
Jon and Jill Weiner
Bill Wolf and Meredith Bluhm-Wolf
Andrew Weinrich
Ann Wolfe
Albert Weinstein Mr. and Mrs. Bernard W. Weiser
Kyle Blackmon (left) and Evan and Sandra Stern at the 2012 Bal du Printemps U.T. and Judy Thompson David and Mary Tidwell Melvin and Charlotte Timm Mr. and Mrs. David Timony John and Patricia Toebe Maureen Tokar Mr. and Mrs. David Tolli Robert and Phyllis Topchik Mark Topp Alison Torres Mr. and Mrs. Dennis Trifletti Martin and Margaret Tuchman
Andrew McLaughlin and Anna Vietor Edward M. Vietor Catherine Villeminot Mary Violette Joseph and Patricia Vitelli Paul Volcker Matthew and Sonja Vorwald Jules and Florine Wachter
Dr. Fred and Mary Woodlief
Marvin Weitz
Dave and Alice Wopat
Don and Evelyn Wells
Gregg Wysocki
Diane Wetterlin
Beverly Yoder
Madelin Wexler
Kathy York
Bruce and Pamela Wexler
Lt. Cmdr. Cassin Young
Nancy Wheeler
Jeanne Young
Robert and Jennifer Wheelock
Pat Younts
William White
James D. Zankel
Robert and Shirley Whiteford
Michael and Rose Zaretsky
Mary Wiebke
Judy Zendell
Sara Wilford
Louis G. Zimmerman
John Wilkins
Cynthia Zirinsky
Kenneth and Kimberly Williams
Donald and Lynn Zucker
Wendy Williams John and Karen Winkel
Susan Zwick Mr. and Ms. Jeff Zygler
Dorothy Winkey Nicole Winslow Rich Winter
John Wadsworth
Elliot and Johanna Utrecht
Philip Walker
Louis Vaccaro III
Michael and Gail Walsh Audrey Warfield Sandi Wasch Toshi Watanabe
Gregory and Lucienne Van Schaack
Elsa Watson
Craig Varrelman
Ralph and Jennifer Watts
Yvonne Vasicek
Larry and Anne Wayne
Marshall Vass
Brad Weddle
25 | Our Donors
Eve Wolff
Dr. James Weiss
Doris C. Wages Mr. and Mrs. Alan S. Waldenberg
Mr. and Mrs. Peter Van Nice
Philip Wolfe
Richard and Cheryl Wade
Darla Turlington
Mr. and Mrs. Alexander Valvezan
Adam and Kim Wolfberg
PDF Champion Brian DeFord and family at the 2012 Death Valley Hike-A-Thon Event
Our Donors Estate Gifts
Trust Gifts
Ethel S. Allen
Nurine Hoke
The Balz Trust
Julius Alpert
Bernice H. Jacobsen
Hilda M. Anderson
Ruby Jefferson
Stanley August
Lars and Lena Johansson
Carmen Becker
Bonnie Kaltenborn
Arlene M. Bevilacqua Revocable Gordon McLean Trust Trust Richard P. Rost Trust Adele Blank Charitable Lead Esther Ruddick Trust Trust Lester W. Stevenson, Jr. Trust Dorothy M. Booth Charitable Trust Bernice M. Stiers Trust
Marjorie Maiden Trust
BettyLou Burton Trust Ruth D'Atri Trust
Thomas F. Tipi Revocable Living Trust
Rita Muriel Dougherty Trust
Dorothy G. Verhoff Trust
Trust of Edith Eisler
Harold W. Verhoff Trust
Lida Ferguson Testamentary Trust
Audrey F. Wee Revocable Trust
Gladys Field Charitable Lead Annuity Trust Mildred Goldstein Trust
The William White Revocable Trust Esther Wright Trust Edward Wsolak Trust
Annette Goodrich Revocable Trust Hudson Charitable Trust Gladys T. Hyman Trust
Bob Benjamin (second from left) and Light of Day Foundation Board Members at the 2013 Bal du Printemps Jack M. Berghuis
Natalie B. King
Margery B. Brodsky
Dolly Koler
Gloria Broward
George Kozam
Charles Irwin Trust Rose A. Kalns Trust Mary M. Kneibler Living Trust Trust of Virginia Ladensohn Hortley G. Leblang Charitable Trust
Margery D. Bruno
Mary Lee
Leprince Grantors Trust
Dawn C. Bulle
Leila S. Lenagh
Martha Carle
Irene M. Matto
Toni Lieberman Family Charitable Trust
J. Stuart Cassilly
Appolonia Mayer
Margaret D. Lienemann Charitable Trust
Lois A. Chazen
Paul Edwin Melcher
Trust of Quirino Lomini
Alvin Colt
Lena Meyers
Carol Crimi
Velma R. Nagel
J. B. Daiches
Doris Helen Plopper
Helen Dalenberg
Frances K. Porter
Catherine T. Davitt
Raymond Radish
Nelson C. Doland, Jr.
John J. Robinson
Lillian Dursht
Angela M. Salatti
Jane C. Fink
Adele Selldorff
Earline Foiles
Rochelle G. Semel
Dinah Friedman
Albina D. Silveri
Charles B. Green
Naomi L. Smith
Sylvia B. Greenberg
Carol A. Spengler
Theodore R. Grimes
Invin L. Steinbach
Howard M. Halpern
John H. Winans
Beatrice S. Harrison
James B. Wozniak
John and Margo Catsimatidis and Rosanna Scotto at the 2012 Bal du Printemps
Frederick G. Heimberger
Impact: Biennial Report 2012-2013 | 26
We thank our PDF Champions whose efforts from July 1, 2011 to June 30, 2013 helped us fund promising research and also raised awareness in communities around the US. Max Adelman Taking the Plunge Against Parkinson's Stephanie Adler
Stacey Catapano Brooklyn Makeup Studio Grand Opening and Fundraiser to Benefit Parkinson's Gary and Beth Ann Chard Gary's 60th Birthday Party
Carolyn Anderson Kathleen Andruschat Pamela Aultman Alethea Bancale Niagara Falls International Marathon 2011
Elizabeth Claps Marine Corps Marathon 2012 Deirdre M. Cruz Pennies for Parkinson's
Herbert Dolaway Theresa Donahoe David J. Eger, Ph.D. Music for Parkinson's Research, 2011 & 2012; Manhattan Comes to Mamaroneck Emily Alice Jewelry Jewelry Sale for Parkinson’s John V. Faggione Lady Warriors vs. Lady Raiders Softball Game Sam Falk Jeni Forshier-Jenkins Shuffle 'n' Shake Parkinson's Awareness Celebration 2012; Cookie Bake Sale 2013
PDF Champion Jessie Gunter at the 2012 Marine Corps Marathon
Diane Banks Sycamore Hills Golf Fundraiser David Blomquist Canoeing for Parkinson's Laura Blum Zumba-thon for PD
David Davis Ride for Parkinson's Jason Davis Bill Lowery Memorial Fund Brian DeFord DeFord Mountain Hike, Death Valley Hike-a-Thon
Roger Bonga Roger's Run Across Michigan to Fight Parkinson's
Maria L. De Leon, M.D. Third Annual Parkinson’s Disease Foundation Fundraiser
Natasha Brown In Honor of Dani Rotholz
Cindy DeLuz
Tomee Brown In Honor of Mike Puzzi
Deana DeModena In Honor of Grazia Guarino
David and Audra Byer
Jeana DeNardo Nike Women's Marathon
Don Caruana In Memory of Donna Caruana
27 | Our Donors
Kate DeWitte Senior Project on Parkinson's
Michael Hornung Splash for a Cause Raymond Hull Kingswood Golf Tournament for Parkinson's Integrated Care Communities, Inc. Walk-a-Thon and BBQ Rachel H. Isenberg Mt. Kilimanjaro Climb 2011; Pittsburgh to Philly Bike 2012; Mt. Whitney Climb for Parkinson's 2013 Randi S. Jacobs Becky Jarnagin In Honor of Mom Jesus, John, Scott & Michael Poker for Jesus
Sarah K. Free Potholders for Parkinson's
Heidi Johnson Pars Fore Parkinson’s Golf Tournament
Caley Frunzi
Elizabeth Keshish
Ashley Garrett Rock 'n' Roll San Diego Marathon
June Keszeg In Honor of Tommy McEaddy
Antoinette and Ken Geraci In Memory of Maria Paratore Renee Gillpatrick Linda Giorgilli Rice Joseph and Mary Golemme John Gollisz
James Knowles New York City Marathon Tammy Kozumplik Cut-a-Thon for Parkinson’s Ivory Latta 1st Annual Ivory Latta Celebrities for Parkinson's Bowling Tournament
Alexandria Gorski
Cody Ledsworth Kayak for Parkinson's
Jessie Gunter Marine Corps Marathon 2012
Adrienne Lee In Memory of Fae Hong Lee
Hillary Hackett Senior Project, Barry's Fight for Parkinson's
Kevin Lewis Bass Fishing PD Tournament of Champions
Eleanor Hagan Body in Balance First Annual Move to Cure Parkinson's
Melanie Lewis National Technical Honor Society Beckfield Tri-County Campus 5k Race for Parkinson's
Noah Hartsock Cones for Parkinson's Linda Heise
Rachel V. Loeser Bat Mitzvah
Blair Hoffman
The Meadows of Glen Ellyn
Our Donors
Michael Roush Parkinson's Walk for a Cure/In Memory of Lloyd Roush
Danielle Surace Vincent Fillingeri Memorial
Frank Rumoro 1st Annual "Stepping Out" Fundraising Walk
Cynthia Taylor In Memory of George Higgins
Hailey and Taylor Salha Lemonade Sale Wendy A. Schreiber In Memory of Fern Hoover S. Jane Schrick Marine Corps Marathon 2012 Carol S. Schulte
PDF Champions Ambassador Ivory Latta and her father, Charles Latta
Peggy Sensabaugh Josh Faircloth Memorial 5k Run
Carol Tahsuda
Tekk Fusion Golf for Parkinson's Bryce Van Dusen Doris Vasquez In Honor of Segundo Vazquez Sierra Verdin Pasta for Parkinson's Jacob Wagner Waldwick High School Global Empathy Project by Students
Lisa Micarelli In Memory of Frank Micarelli
Jim Patterson Pints for Parkinsons
Michael Showstead 70th Birthday Party
Parkinson's Support Group of the Mid-Hudson Valley Mid-Hudson Valley Walk Over the Hudson 2012 and 2013
Rita Peters Oklahoma City Marathon 2012
Scott Shtofman
Ellen Warren Helping Hand Cuffs
Angela Sipes
Alicia Wasson
Annalise Smith Big Sur International Marathon
Matt Welch Whidbey Island Marathon
Thomas Milana Margaux Minutolo Karma for a Cure Blake Morgan Blake Morgan Concert John Morris Bicycle from Montauk Point to Niagara Falls
Kimberly Phillippe Pancakes for Parkinson's Natalie Piccin Wedding Donations for Parkinson's Pillinger Miller Tarallo, LLP Debra Pinon In Honor of Gloria Ruth DiOrio Tanya Puckett Albany, Georgia Marathon 2012
Megan Smith Quidditch for Parkinson's Linda Spence Ernie's Favorites Sports Physical Therapy of New York St. Luke’s Center for Neuroscience Movement Disorder Center Polka for Parkinson’s
Evelyn P. Wells Hands for Heroes Brittany West Gillian Woods Second Annual Stepping Up the Pace 5k; Third Annual Stepping Up the Pace 5k
Alexander Ranieri and Kristin Mazzone Long Island Half Marathon
Patricia S. Stearns
Sean Wright Marine Corps Marathon 2012; Marine Corps Marathon 10k 2013
Maria Nelson
Joe Rich
AJ Stelacio
Yacso - Meyer
Thomas Nguyen Norfeldt Elementary School
Molly K. Riddick Pancakes for Parkinson's
Rob Stevenson
Eric Young 5-Mile Swim for Parkinson's
Thomas Palizzi Jon Paparsenos
Teresa Riffle Circleville, OH Walk for a Cure 2012
Marina Parrish In Honor of Papaw Clyde Hardin
Roy Roden PD Challenge Ride Across America
Jennifer Neathery St. Jude Country Music Marathon 2011; Nashville Marathon 2012
Mel Stewart The Cape Epic Mountain Bike Race Pamela Strom Stand up to Parkinson’s
ZogSports ZogSports — Play for a Cause Zwick Pro Am 2011 & 2012
Tracy Stuckey
Impact: Biennial Report 2012-2013 | 28
Foundations/Corporations/Organizations A&M Label
Biotechnology Industry Organization
The Betsy and Alan Cohn Foundation
Community Health Charities of New England
Bisgeier Family Foundation
Cole Family Fund
BlackRock Kelso Capital
Cole-Crone Family Foundation
Community Health Charities of New Mexico
ADM Information Services
The David H. and Mary B. Blair Charitable Fund
Simon and Eve Colin Foundation
Agarwal Family Foundation
Blaskopf Family Fund
Kenneth Aidekman Family Foundation
Blue Cross Blue Shield of Kansas City
The George and Jodie Allen Charitable Fund
Bonner Family Private Foundation The Color Fund Columbia University Booz | Allen | Hamilton Neurological Institue Arnold Bortman Family The Community Foundation Foundation of Western North Carolina Boucher Charitable Foundation Community Health Charities The John and Patty Brissenden of Alabama Fund Community Health Charities Brooklyn Mechanical Corporation of Arizona
Community Health Charities of South Carolina
Brown Charitable Foundation
Community Health Charities of California
Consumer Electronics Association
Community Health Charities of Colorado
Cox Communications
Community Health Charities of Florida
Cumberland Community Foundation
Community Health Charities of Georgia
Edna Williams Curl and Myron R. Curl Endowment for Parkinson's
Abbott Laboratories Academy 4 Lil' Angels, LLC Adams and Maland Fund
Allen-Toebe Foundation Alliance Bernstein Allstate Giving Campaign The Allyn Foundation Altronix America's Charities American Physical Therapy Association
BTIG, LLC
American Society of Appraisers
Bucy Family Fund
AMG Charitable Gift Foundation Burson-Marsteller Amicus Therapeutics The Calder-Belsley Family Foundation Antz Foundation
Community Health Charities of New Jersey
Colliers Bennett & Kahnweiler, Inc. Community Health Charities of New York
Colligas Family Markets, LP The Colomby Group
Community Health Charities of Oklahoma
Community Health Charities of Texas Community Health Charities of Virginia Community Health Charities of Washington & Idaho Consumer Cellular
CSX Corporation
Archer & Greiner, P.C.
California Community Foundation
The Arena Energy Foundation
Community Health Charities of Illinois
Cushman & Wakefield
Canata Family Foundation
AT&T United Way
CANTEX, Inc.
The Atmos Foundation
Community Health Charities of Louisiana and Mississippi
The Dana Foundation
Cantor Fitzgerald Securities
Community Health Charities of Michigan
Danem Foundation
Community Health Charities of Minnesota
Deloitte & Touche
Avenue Capital Management
The Carefree Foundation
BAE Systems Employee Community Fund, Inc.
Castle Harlan, Inc.
BAE Systems
Cemex Materials, LLC
The Bane Foundation
Center United Methodist Church
Mitchell and Roslyn Barash Foundation
Central Texas Ob/Gyn Associates
Barish Family Foundation
Cuzson Associates, LLC
The Darrow Company, Inc. Diamantine Family Foundation
Linda and Bernard Chalfin Charitable Fund
Bart & Associates, Inc.
Terry Cheng Gift Fund
Alvin H. Baum Family Fund
Chernega Family Fund
Robert and Lois Baylis Charitable The Cimino Group, Inc. Gift Fund Citizens Bank Beck & Masten Buick-GMC, Inc. Clarus Therapeutics Patricia and Gardner Bemis Fund
Clayton Family Charitable Gift Fund
The Bendheim Foundation
Louis and Virginia Clemente Foundation
Berdon, LLP The Berner Charitable and Scholarship Foundation Berwind Corporation
29 | Our Donors
Cochran Family Foundation Scott M. Cohen Memorial Foundation
PDF Champions Port Jervis Softball Team at the 2013 Lady Warriors vs. Lady Raiders Softball Game
Our Donors Gemtron Corporation General Electric Company The Gerald and Deanne Gitner Charitable Fund Give with Liberty Ruth and Jack Glantz Family Foundation
The Dinan Family Foundation Direct Marketing Solutions
Essex Plaza Management Associates Evergreen Management
Barbara and Michael Ditzian Charitable Fund
ExxonMobil Foundation
Eamonn and Kathleen Dolan Charitable Fund
Fairchild Martindale Foundation
Don Ayres Honda
Farrell Fritz, P.C.
Arthur and Eve Fastenberg The Dopkin-Singer-Dannenberg Philanthropic Fund Foundation First Baptist Church of Ellenwood Anne and Gerald Down First Fruit Charity Trust Fund Charitable Fund FirstGiving Dreiseszun Family Foundation
Drug Information Association
The Floors For Cures Foundation
DuBose Family Foundation
Forest Family Foundation
Eagel Sports Promotions, Inc.
Fr. Maurice J. Wolfe Council, Knights of Columbus
Leona M. and Harry B. Helmsley Foundation Helping Hand Foundation The Heming Foundation Herndon Foundation
GlaxoSmithKline Foundation
HighVista Strategies, LLC
Glickenhaus Foundation
Philip M. Hogan Family Fund
The GMK Family Fund
Margot and Stephen Holland Charitable Fund
Ron and Judy Gold Family Fund
Missy Egbert Sheehan and G. Pennington Egbert III with their mother, Mrs. George P. Egbert, Jr. (center) at the 2012 Celebrate Spring
Hawaii Permanente Medical Group, Inc.
Joseph H. Goldberg Family Foundation
Homestead Foundation The Huggins Family Charitable Foundation
Edward and Marjorie Goldberger Foundation Sheila and Milton Hyman Foundation The Sarah and James Goldman Charitable Fund Inserra Supermarkets, Inc. Sol Goldman Charitable Trust
IPACT, Inc.
Goldman Sonnenfeldt Foundation
Isermann Family Foundation
Jerome and Molly Goldstein Philanthropic Fund Google
Jaclyn, Inc. The Anna and Alexander Jacobs Charitable Fund
Gorlitz Foundation, LTD
Alan L. and Barbara S. Jacobs Philanthropic Fund
Gottwald Foundation
Jacoby Family Fund
Grand Council Cryptic Masons
J&K Ingredients, Inc.
Grand Lodge Benevolent, Patriotic Order of Does
Jerome Haims Realty, Inc.
Eugene and Emily Grant Foundation Greco Traficante Schulz & Brick Alan C. Greenberg Philanthropic Fund
Jewish Community Endowment Fund JMC Search, LLC Johnson & Johnson Family of Companies
Early, Lucarelli, Sweeney & Strauss
The Connie Frank Foundation
Easter Foundation
Frankfurt Kurnit Klein & Selz, P.C. Greenberger Family Fund
The Echlin Foundation
Daniel and Harriett Freed Foundation
The Jack Webster Grigsby Foundation
The Freidman Family Fund
Gristedes
The Fremont Foundation
Gulf Parkinson's Source
Dr. Rudolph and Mildred Joseph Foundation
El Paso Corporation Eli Lilly and Company Foundation
Thad and Suzanne Johnson Charitable Fund Mary F. Johnson Fund The Jordan Family Foundation
Elias Charitable Foundation
Friedman, LLP
Gutterman Foundation
Joseph Rosen Foundation
Elma Eagle Riders
The Gabel Foundation
JP Maguire Associates
Emily Alice Jewellery
Gabelli & Company, Inc.
The Gwendolyn HalseyAlbertson Foundation
Empire Blue Cross Blue Shield
Gallagher-Kaiser Corporation
Encana Oil & Gas (USA), Inc.
The Cynthia F. and John F. Gallagher, III Charitable Fund
EP Energy Epic Systems Corporation Ernst Foundation
The Gambrell Family Foundation Gap, Inc. GE Foundation
Hang It Up Corporation Harrah's North Kansas City, LLC Harriet Ford Dickenson Foundation
Just Give The Kandell Fund Jerome A. Kaplan and Deena L. Kaplan Family Foundation
George W. Harris Foundation
The Marcia and Ned Kaplin Foundation
The Harte Auto Group
Robert and Florence Kaufman Foundation
Impact: Biennial Report 2012-2013 | 30
Foundations/Corporations/Organizations Henry and Elaine Kaufman Foundation Kelly Family Foundation
M&A Rubinfeld Family Fund MAERSK, Inc.
Northwoods League Foundation
The Mahoney Donor Fund
NYC Human Resources Administration
Kesselhaut Family Foundation
The Jamie and Paige Malone Foundation
Thomas P. and Patricia A. O'Donnell Foundation
Kidderbrook Foundation
Mana Products, Inc.
The Richard E. and Marianne B. Kipper Foundation
Management Planning, Inc.
The Calvin and Flavia Oak Foundation
Sam W. Klein Charitable Foundation
Kohl's
Office Automation System Massimo Zanetti Beverage USA, Ogden Cap Properties, LLC Inc. OH Local The Noreene Storrie and Wesley G. McCain Family Fund On The Ave
The Kortschak Family Foundation
John L. and Helen B. McGrath Fund
The Kosher Nosh KTR Capital Partners, LP Howard and Gail Kunreuther Charitable Fund
Kelly Refrigeration & Freezer, Inc.
Worth Knight and Kimberly Knight Charitable Fund
Mar-Ber Development Corporation
The Portmann Family Charitable Fund Premiere Paddle Surf The David C. and Jeannie Price Fund Prince Charitable Trusts Propeller Club Sport Organization Prudential Financial
The McGraw-Hill Companies
P. E. C. United Charities, Inc.
Puddy Family Fund
McIrvin Brothers, Inc.
P. M. Lecomte Fund
PY vs. PD Foundation
McKesson Foundation
Regina Pargament Trust Fund
Qualcomm
Parkinson's Unity Walk
R & R Endowment Fund
Hyman and Bessie Passman Family Charitable Foundation
R. C. Bigelow, Inc.
Microsoft Giving Campaign
Leesfield Family Foundation Legatus Foundation
The Millison Foundation Mirken Foundation
PATCO Construction Patton Holdings, Inc. Peaceful Meadows Farms Ice Cream Pearson Education
Redding Golf Shop Kristin and Michael Reed Family Foundation
Amy and Joe Perella Charitable Fund
The Kurt Reinsberg Philanthropic Fund Ralph Reis Family Fund
The Ilan M. and Barbara G. Levi Fund
Nanell Foundation
Lewis, Rice & Fingersh, L.C.
Pfizer, Inc. - Neuroscience Research Unit
National Notary Foundation
The Phillies
Anita and Stanley Liebowitz Fund NCREIF
Red Apple Group
The Donald Reich Family Charitable Fund
Lettuce Entertain You
Morton Capital Management
Ralph J. Duffie, Inc.
Pella Windows and Doors
Howard and Virginia Morgan Fund
William and Nancy Lifland Fund
James and Sandra Porter Charitable Fund
Public Financial Management Group
Midstate Radiology Associates, LLC
The Eileen and Peter Lehrer Family Foundation
Port Jervis Public Schools
Richard and Harriet Orkand Charitable Fund
Medtronic, Inc. Seryl and Charles Kushner Family The Elena Melius Foundation Foundation Merck Partnership For Giving Law Office of Howard F. Angione Lawrence Livermore National Laboratory
The Oak Hill Charitable Fund
Pillinger Miller Tarallo, LLP
Richard and Gail Ullman Charitable Fund
The Netter Foundation
Light of Day Foundation
Network Consulting, Inc. Linhart Family Philanthropic Fund New Dramatists Linsone, Inc. New York Life Insurance Company The Lisette Model Foundation Litterman Family Foundation
New York Yankees Foundation
The Little Family Fund
Newport News Ship Building
Loeb & Loeb, LLP
Robert and Kate Niehaus Foundation
Jane P. Long Fund of NY Community Trust
Sally Nightingale Charitable Fund
Loureiro Engineering Associates, Northern Trust Company Inc. Northrop Grumman Lovinger Family Foundation Corporation Lower Shore Parkinson's Support Group
31 | Our Donors
PDF Champion Jennifer Neathery and husband at the 2013 Ran Grand Canyon Rim to Rim Event
Our Donors Southwest Contractors
United Refining Company
SPA Products Import & Distribution Co., LLC
United Technologies
The Spurlino Foundation St. Irene's Philoptochos Society St. Luke’s University Hospital and Health Network Fred and Mary Stahmann Family Fund of the SFACF Frank and Domna Stanton Foundation James and Janice Stanton Foundation
PDF Champion Stacey Catapano at the 2012 Brooklyn Make Up Studio Event The Richard Foundation Rios of Mercedes Toby and Nataly Ritter Family Foundation Eli and Mae Rosen Foundation Joseph Rosen Foundation
United Way of Rhode Island United Way Of The Greater Lehigh Valley United Way The V & L Marx Foundation The Van Nice Foundation Vanguard Charitable Endowment Program
The Starr Foundation
The Vermont Community Foundation
Starrett City, Inc.
Veson Nautical Corporation
The Dorothy Strelsin Foundation Victory Park Securities Visa Givingstation Sullivan Solar Power
Schwab Charitable Fund Arnold and Marie Schwartz Fund Suplove, Inc. The Sutton Family Charitable Phyllis and Howard Schwartz Fund Philanthropic Fund Scievelbein Family Foundation Trust
United Way of Central Indiana
Visiting Nurse Service of New York The Walt Disney Company Foundation
SVM Foundation
The Wasily Family Foundation
Syde Hurdus Foundation
Waste Management South Atlantic Area
Secure Real Estate Management, Alexandra and Martin Symonds Rosie's Charitable Fund L.P. Foundation The Irene Herbert Ross and Semmes Henry and Marilyn Taub Harper Grant Ross Foundation Foundation The Shafir Family Fund The Ross-Kolmerten Fund Judy and Warren Tenney The Ron Shapiro Charitable Foundation The Miriam and Samuel Rotrosen Foundation Charitable Fund The David Tepper Charitable Shapiro Family Foundation Foundation Royal Neighbors of America Shepaug Valley Regional High Teva Neuroscience, Inc. Lawrence Ruben Foundation School Theresa Fatato Foundation The Martha and Max Rubinstein The Shubert Organization, Inc. Family Foundation Ellen and Josh Thomas Fund Fred Siegel Foundation RZR Realty Management Thomas Neal Foundation Company, LLC Siegel, O'Connor, O'Donnell & Beck, P. C. Three Swallows Foundation S & D Contractors, Inc. The Oscar and Edith Simon Timber Creek Capital S & S Roofing Foundation Management, LLC SAD Foundation Singers for Enjoyment TJM Investments, LLC The Safer-Fearer Fund Samuel and Beverly Sirota Family TLR Fund Philanthropic Fund Edmond J. Safra Foundation The Trukenbrod Family Skadden, Arps, Slate, Meagher Foundation Sanford C. Bernstein & & Flom, LLP Company, LLC The Tuchman Foundation The Herbert and Arline Slepoy Sanky Communications, Inc. Charitable Fund Turnaround Management Association Charles and Mildred Smith Barney (Citi) Global Schnurmacher Foundation Impact Funding Trust, Inc. Tyco Electronics The Jean and Thomas Schreiber The Lee and Perry Smith Fund U.M.R. Foundation Philanthropic Fund Smith Haven Ministries, Inc. UCB, Inc. The Schrum Family Fund of Triangle Community The Solomon Organization UHY Advisors NY, Inc. Foundation
Wechsler Foundation J. Weinstein Foundation Wellpoint Associate Giving Campaign Wells Fargo Bank, N.A. Wells Fargo Community Support Campaign West Fuels, Inc. WESTAT The Kirk and Elizabeth Wheeler Fund The Windbrook Fund Yorkshire Food Sales Corporation Peggy and Adam Young Charitable Foundation Ziff Brothers Investments, LLC Mary and George Herbert Zimmerman Foundation Zoe's Best Friend, Inc.
Impact: Biennial Report 2012-2013 | 32
In 2012 and 2013, PDF awarded almost $10 million for Parkinson’s research. These 80 awards were chosen by members of our Scientific Advisory Board, joined by PDF Research Advocates. We thank the following grant recipients for their commitment to improving the lives and futures of people touched by Parkinson’s.
Research Centers | $5.34 Million Allow talented scientists the flexibility and long-term support to collaborate on basic, translational and clinical research. Columbia University Medical Center Un Jung Kang, M.D., Principal Investigator Roy N. Alcalay, M.D., M.Sc. Robert E. Burke, M.D. Lorraine N. Clark, Ph.D. Stanley Fahn, M.D. Blair Ford, M.D. Jill S. Goldman, M.S., M.Phil.
Lloyd A. Greene, Ph.D. Paul E. Greene, M.D. Sheng-Han Kuo, M.D., Ph.D. Elan D. Louis, M.D., M.Sc. Karen Marder, M.D., M.P.H. Pietro Mazzoni, M.D., Ph.D. Eugene Mosharov, Ph.D. Serge Przedborski, M.D., Ph.D.
Rush University Medical Center Christopher G. Goetz, M.D., Principal Investigator Brandon R. Barton, M.D., M.S. Bryan A. Bernard, Ph.D. Cynthia L. Comella, M.D. Jennifer G. Goldman, M.D., M.S. Deborah A. Hall, M.D., Ph.D.
Seth L. Pullman, M.D., F.R.C.P.C. Yaakov Stern, Ph.D. David Sulzer, Ph.D. Jean Paul G. Vonsattel, M.D. Cheryl H. Waters, M.D., F.R.C.P.C. Ai Yamamoto, Ph.D.
Weill Cornell Medical Center Katie Kompoliti, M.D. Jeffrey H. Kordower, Ph.D. Leo Verhagen-Metman, M.D., Ph.D. T. Celeste Napier, Ph.D. Kalipada Pahan, Ph.D. Kathleen M. Shannon, M.D. Glenn T. Stebbins, Ph.D.
M. Flint Beal, M.D., Co-Principal Investigator Claire Henchcliffe, M.D., D.Phil., Co-Principal Investigator Chaorui Huang M.D., Ph.D. Alexander Shtilbans, M.D., Ph.D.
International Research Grants | $1.48 Million Promote innovative research projects that have high potential to significantly advance the knowledge of Parkinson’s. Epigenetic Dysregulation in Levodopa-Induced Dyskinesia David Anderson, Ph.D., and Jay Schneider, Ph.D., Thomas Jefferson University
Stability of Tetrameric Alpha-synuclein as a Biomarker in Parkinson’s Disease* Tim Bartels, M.Sc., Ph.D., and Dennis J. Selkoe, M.D., Harvard Medical School and Brigham and Women’s Hospital
Evaluating the Role of Mitochondrial Dynamics in Parkinson's Disease in an in Vivo Vertebrate Model: Real-Time Live Imaging of Mitochondrial Dynamics in Dopamine Neurons in Whole Zebrafish* Sarah B. Berman, Ph.D., M.D., and Edward Burton M.D., D.Phil., F.R.C.P., University of Pittsburgh *Denotes second year of funding
33 | Our Researchers
Our Researchers Impact of Low- and High-Frequency Electrical Stimulation on the Inputs, Integrative Properties and Output of the Subthalamic Nucleus* Mark D. Bevan, Ph.D., Northwestern University
Interaction of LRRK2 and Tau in Mediating Neurodegeneration in Mouse Models of Parkinson's Disease Darren Moore, Ph.D., Swiss Federal Institute of Technology in Lausanne (EPFL), Switzerland
Elucidation of the Role of Cholinergic Interneurons in Levo-dopa-Induced Dyskinesias Tomas Björklund, Ph.D., Lund University, Sweden
Identifying Connectivity Changes with Deep Brain Stimulation in Parkinson’s Disease Matthias Schröeter, M.D., Ph.D., and Karsten Müller, Ph.D., Max Planck Institute for Human Cognitive and Brain Sciences, Germany
Dissecting the Different Properties of Human Alphasynuclein Between Dopamine and Non-Dopamine Neurons in Vivo* Linan Chen, M.D., Ph.D., and Xiaoxi Zhuang, Ph.D., University of Chicago Cellular Mechanisms of Semaphorin 3E-Plexin-D1 Signaling in Basal Ganglia Circuitry Formation and Neurodegenerative Diseases* Chenghua Gu, D.V.M., Ph.D., Harvard Medical School Identification and Characterization of a Novel Gene for Parkinsonism* Paul Lockhart, Ph.D., and Gabrielle Wilson, Ph.D., Bruce Lefroy Centre, Murdoch Childrens Research Institute, Royal Children's Hospital, Australia
Small Aromatic Molecules as Novel Inhibitors of Alphasynuclein Aggregation* Daniel Segal, Ph.D., Tel Aviv University, Israel Imaging Impulsive Control Disorders in Parkinson’s Antonio Strafella, M.D., Ph.D., Toronto Western Hospital, Canada Cyclic GMP Signaling and Experimental Parkinsonism* Anthony R. West, Ph.D., and Kuei-Yuan Tseng, M.D., Ph.D., Rosalind Franklin University Identification of Genes for Parkinson's in an Isolated Greek Community and a Greek Population Cohort* Georgia Xiromerisiou, Ph.D., M.D., University of Thessaly, Greece, and Henry Houlden, M.D., M.R.C.P., Ph.D., University College, London, England
Fellowship and Career Development Awards | $2.23 Million Prepare leaders in Parkinson’s research and clinical practice. Research Fellowship Projects | $380,000 Regulation of Alpha-synuclein mRNA Translation in SNCA Expressing Neurons Ianai Fishbein, Ph.D., Institute for Human Genetics, University of California, San Francisco
Role of Parkin in the Clearance of Defective Mitochondria with Deleted mtDNA: A New Mouse Model of Parkinson's Disease Milena Pinto, Ph.D., University of Miami
Optogenetic Characterization of the Pallidostriatal Synapse in Parkinsonian Mice Kelly Glajch, Ph.D., Northwestern University
Clearing Defective Mitochondria: How is Parkin Recruited and Activated? Evgeny Shlevkov, Ph.D., Children's Hospital Boston
Characterization of a Novel Component That Functions Upstream of PINK1 Linking Mitochondrial Unfolded Protein Stress to Mitophagy Yi-Fan Lin, Ph.D., Sloan-Kettering Institute
The Role of Parkin in Regulating Mitochondrial Dynamics and Homeostasis in Cortical and Dopaminergic Neurons* Victor Van Laar, Ph.D., University of Pittsburgh
Dopaminergic Neuron Subtype Differences in OXPHOS Capacity and Mitophagy in Response to mtDNA Damage Alicia Pickrell, Ph.D., Division of Intramural Research, National Institute of Neurological Disorders and Stroke (NINDS)
Locus Coeruleus as a Substrate for Parkinsonian Cognitive Inflexibility* Elena Vazey, Ph.D., Medical University of South Carolina
Impact: Biennial Report 2012-2013 | 34
Fellowship and Career Development Awards (Cont’d.) Clinical Training Fellowships | $1.54 million Columbia University Medical Center David Arkadir, M.D., Ph.D. Christopher W. Hess, M.D. Meir Kestenbaum, M.D. Ruben Martinez, M.D.
Daphne Robakis, M.D. David Rydz, M.D. Hiral Shah, M.D. Madeline Sharp, M.D.
Sirinan Tazen, M.D. Tuhin Virmani, M.D., Ph.D. Brenton Wright, M.D.
Rush University Medical Center Sheila Eichenscer, M.D. Houman Homayoun, M.D. Gian Dev Pal, M.D. Padmaja Vittal, M.D.
Summer Student Fellowship Projects | $105,000 LRRK2-dependent Olfactory Deficits in Mice Rachel Bailey, mentor Jada Lewis, Ph.D., University of Florida Towards Elucidating the Structural Details of Alpha-synuclein in Parkinson’s Disease: Development and Application of Double-Labeled Alpha-synuclein Solongo Batjargal, mentor E. James Petersson, Ph.D., University of Pennsylvania Small Molecule Modulation of the Unfolded Protein Response as a Novel Therapeutic Avenue in the Treatment of Parkinson's Disease Joel Credle, mentor Anita Sidhu, Ph.D., Georgetown University Mechanistic Investigation of Alpha-synuclein- Mediated Microglial Activation in PD Connor Davenport, mentor Kathleen Maguire-Zeiss, Ph.D., Georgetown University Effects of Training on Learning and Retention of Tool-Related Skilled Action in Parkinson's Disease Holly Fernandes, mentor Norman Park, Ph.D., York University, Canada CD200/CD200R-mediated Neuroinflammation in Parkinsonism Collin Flanagan, mentor J. Timothy Greenamyre, M.D., Ph.D., University of Pittsburgh School of Medicine
35 | Our Researchers
A Novel Evaluation of Daytime Vigilance in Individuals with Parkinson's Disease Using a Virtual Reality Street Crossing Task Kristin Ford, mentor Amy Amara, M.D., Ph.D., University of Alabama at Birmingham Comparative Effectiveness Study to Evaluate In-Home Telemedicine as a Means to Increase Access to Sub-specialty Care for Individuals with Parkinson's Disease Benjamin George, mentor E. Ray Dorsey, M.D., M.B.A., Johns Hopkins University Investigating the Role of Enzyme-Mediated Neuronal Protection in Parkinson's Disease William Johnson, mentor Amy Wilson-Delfosse, Ph.D., Case Western Reserve University Effect of p11 Inhibition on D1 and D2 Dopamine Receptors Activity Darya Khazanova, mentor Michael G. Kaplitt, Ph.D., M.D., Weill Cornell Medical College Dopamine Receptor Expression and Function in the External Globus Pallidus David Klein, mentor C. Savio Chan, Ph.D., Northwestern University Evaluation of Splice and C-terminal Truncation Variants of Alpha-synuclein in Yeast Models Natalie Kukulka, mentor Shubhik DebBurman, Ph.D., Lake Forest College
Our Researchers Study of the Roles and Mechanisms of PINK1 and Parkin in Mitophagy Paul Lebot, mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center
Dissecting the Role of c-Abl in Parkinson's Andi Shahu, mentor Ted Dawson, M.D., Ph.D., Johns Hopkins University School of Medicine Neuropsychological Predictors of Disease
The Molecular Interaction of Non-catechol Drugs with Dopamine D1 Receptors: Towards Improved Therapy for Parkinson’s Disease Sang Min Lee, mentor Richard Mailman, Ph.D., The Pennsylvania State University College of Medicine
Progression in Early Onset Parkinson’s Disease Megha Subramanian, mentor Paul J. Eslinger, Ph.D., The Pennsylvania State University College of Medicine
Effects of Alpha-synuclein Immunotherapy in a Mouse Model of Parkinson's Disease Eric Lin, mentor Virginia M.-Y. Lee, Ph.D., Perelman School of Medicine at the University of Pennsylvania
The Effect of Unilateral vs. Bilateral Deep Brain Stimulation of the Subthalamic Nucleus on Memory-Guided Sequential Pointing Ruth Tangonan, mentor Daniel Corcos, Ph.D., University of Illinois at Chicago
Using Drosophila to Investigate the Synaptic Effects of Ziram, a Parkinson’s Disease-Linked Pesticide Ciara Martin, mentor David Krantz, M.D., Ph.D., University of California, Los Angeles
Comparison of a Bimanual and Unimanual Finger Tapping Test for Detection of Upper-Limb Movement Variability and Freezing Episodes in Parkinson's Megan Trager, mentor Helen Bronte-Stewart, M.D., M.S.E., Stanford University
Interactions Between Tyrosine Hydroxylase and 14-3-3 Protein Ewa Nowara, mentor S. Colette Daubner, Ph.D., University of Texas Health Science Center at San Antonio
The Characterization of Autophagy in MPP+-induced Dopaminergic Cells Eric Tsai, mentor Karen O'Malley, Ph.D., Washington University School of Medicine in St. Louis
Rescue of Tyrosine Hydroxylase by Soluble GFR Alpha-1 in 6-OHDA Parkinson’s Model Catherine Owens, mentor Michael Salvatore, Ph.D., Louisiana State University Health Sciences Center Shreveport
Molecular Mechanisms by Which Excess Synuclein Impairs Synapse Function: Implications for Parkinson’s Alexandra van Brummen, mentor Jennifer Morgan, Ph.D., The University of Texas at Austin
Mild Cognitive Impairment and Health-Related Quality of Life in Non-demented Parkinson's Disease Patients William Reginold, mentor Connie Marras, M.D., Ph.D., Toronto Western Hospital Comparing Diagnostic Criteria of Mild Cognitive Impairment over Three Year Follow-up in People with Parkinson’s Disease without Dementia William Reginold, mentor Connie Marras, M.D., Ph.D., Toronto Western Hospital The Utilization of Mobile Technology for the Optimization of Deep Brain Stimulation Parameters for the Treatment of Postural Stability Sarah Richardson, mentor Jay Alberts, Ph.D., Cleveland Clinic
Phenotype-Specific Cell Loss in the Human Olfactory Bulb Associated with Parkinson’s Disease Ava Weibman, mentor John Cave, Ph.D., Burke Medical Research Institute Protection of Dissociated Rat Substantia Nigra Cultures from MPP+ Toxicity by a Combination of Neurotrophic Factors Stephanie Wyrostek, mentor Michael J. Zigmond, Ph.D., University of Pittsburgh Evaluation of Peripheral Olfactory Adaptation as a Potential Biomarker for Parkinson’s Disease Wendy Yoder, mentor David Smith, Ph.D., University of Florida
Impact: Biennial Report 2012-2013 | 36
Fellowship and Career Development Awards (Cont’d.) Collaborative Fellowships | $205,000 PDF-ABF Clinician-Scientist Development Award | $105,000 (Co-sponsored by American Brain Foundation) Mechanisms of Cell Type-Specific Vulnerability in Synucleinopathy: A Yeast Stem Cell Dual Discovery Platform* Vikram Khurana, M.D., Ph.D., Massachusetts General Hospital
PDF-PSG Mentored Clinical Research Award | $100,000 (Funded by a grant from PDF to the Parkinson Study Group) Neurophysiology Adaptations to Tango Dancing in Individuals with Parkinson's Disease Kristen Pickett, Ph.D., mentors Gammon M. Earhart, P.T., Ph.D., and Joel Perlmutter, M.D., Washington University School of Medicine in St. Louis Behavioral Treatment for Anxiety in PD Jessica Caileo, Ph. D., mentors Laura Marsh, M.D., and Melissa Shanley, Ph.D.
Advancing Parkinson's Treatments Grants | $376,500 Facilitate the movement of treatments from bench to bedside. Innovations Awards | $300,000 Training of New Parkinson’s Clinical Research Investigators through the PSG Annual Meeting Parkinson Study Group
Datamining to Better Understand Parkinson’s Disease Progression, Treatment Response, Complications and Outcomes Parkinson Study Group
Conference Awards | $76,500 West Coast Conference: Determining Factors in PD Progression Rate Marie-Françoise Chesselet, M.D., Ph.D., University of California, Los Angeles International Symposium on Falls in PD Leland Dibble, P.T., Ph.D., University of Utah, Gammon M. Earhart, P.T., Ph.D., Washington University School of Medicine, Colleen Canning, Ph.D., University of Sydney, Theresa Ellis, P.T., Ph.D., Boston University
Cognitive Assessment for Parkinson's Disease in MultiCultural/ Linguistic Populations Ignacio F. Mata, Ph.D., James. B. Leverenz, M.D., G. Stennis Watson, Ph.D., and Cyrus P. Zabetian, M.D., M.S., University of Washington Evaluating the Effectiveness of a Novel Patient Workshop/ Symposium in Parkinson’s Disease Lisa M. Shulman, M.D., University of Maryland School of Medicine Impulse Control Disorders in Parkinson’s Antonio Strafella, M.D., Ph.D., F.R.C.P.C., University of Toronto, and Mark A. Stacy, M.D., Duke University
37 | Our Researchers
Our Researchers Côté Clinical Genetics Initiative | $440,000 Identify and understand the role of genetic markers in Parkinson’s. Parkinson Disease in a Minority Inner City Population: Clinical Phenotypes and Genetic Etiologies, Focus on AfroCaribbean Populations Jose C. Cabassa, M.D., mentor Rachel Saunders-Pullman, M.D., M.P.H., SUNY Downstate Medical Center and Beth Israel Medical Center, Einstein College of Medicine Implications of Antigen Presentation by Dopaminergic Neurons in an AAV2-synuclein Mouse Model of Parkinson's Disease Carolina Cebrián, Ph.D., mentor David Sulzer, Ph.D., Columbia University Medical Center Amperometric Measurement of Quantal Dopamine Release from Primary Mouse Neurons and Human Induced Pluripotent Stem Cells (iPSCs) Se Joon Choi, Ph.D., mentor Eugene Mosharov, Ph.D., Columbia University Medical Center
Mutant Glucocerebrosidase Causes Dysfunctional Chaperone-mediated Autophagy and Alpha-synuclein Accumulation in Patient Fibroblast-derived Dopaminergic Neurons Sheng-Han Kuo, M.D., Ph.D., mentor David Sulzer, Ph.D., Columbia University Medical Center Molecular Characterization of MAPT Haplotypes in Parkinson’s Disease Oren Levy, M.D., Ph.D., mentor Lloyd A. Greene, Ph.D., Columbia University Medical Center Identifying Genetic Causes Underlying Early-onset Parkinson’s Disease Coro Paisán-Ruiz, Ph.D., mentor Joseph D. Buxbaum, Ph.D., Mount Sinai School of Medicine
Localization of Alpha-synuclein in Mitochondrial-associated ER Membranes (MAM): A New Insight into the Pathogenesis of PD (competively renewed in 2013) Cristina Guardia-Laguarta, Ph.D., mentor Serge Przedborski, M.D., Ph.D., Columbia University Medical Center
Impact: Biennial Report 2012-2013 | 38
In fiscal years 2012 and 2013, PDF was awarded both a four-star rating from Charity Navigator (the highest) and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).
Balance Sheet
June 30 2013
2012
2011
Cash and cash equivalents
$933,498
$385,179
$779,578
Contributions and other receivables
1,630,844
393,774
550,651
90,094
87,006
74,161
8,862,184
10,468,207
12,446,070
Fixed assets, net of accumulated depreciation
99,119
157,516
235,521
Other noncurrent assets
56,540
56,540
56,540
186,371
189,676
210,723
$11,858,650
$11,737,898
$14,353,244
Accounts payable and accrued expenses
$558,129
$663,943
$766,321
Grants payable
1,721,567
1,602,592
1,327,440
186,371
189,676
210,723
2,466,067
2,456,211
2,304,483
Unrestricted
6,033,208
5,886,973
8,608,353
Restricted
3,359,375
3,394,714
3,440,408
Total net assets
9,392,583
9,281,687
12,048,761
$11,858,650
$11,737,898
$14,353,244
Assets
Other current assets Investments, at fair value
Investments — restricted as to use Total assets Liabilities and net assets
Deferred compensation plan Total liabilities Net assets
Total liabilities and net assets
39 | Financial Reports
Financial Reports Statement of Activities
Unrestricted Restricted
Year ended June 30, 2011
Year ended June 30, 2012
Year ended June 30, 2013
Unrestricted
Total
Restricted
Total
Unrestricted
Restricted
Total
Operating support and revenue: Contributions Bequests Special events revenue, net Investment income In-Kind donation Net assets released from restrictions Total operating support and revenue Operating expenses: Program services: Research Public information/patient information and referral services Total program services Supporting services: Management and general Fundraising Total supporting services Total operating expenses Change in net assets Net assets, beginning of year Net assets, end of year
$4,299,967
-
$4,299,967
$4,752,851
-
$4,752,851
$4,022,882
$172,277
$4,195,159
4,538,625
14,661
4,553,286
2,150,721
4,306
2,155,027
2,398,320
2,366,462
4,764,782
298,105
-
298,105
238,541
-
238,541
348,050
-
348,050
723,742
-
723,742
(15,926)
-
(15,926)
976,398
-
976,398
226,548
-
226,548
154,234
-
154,234
-
-
-
50,000
(50,000)
-
50,000
(50,000)
-
833,314
(833,314)
-
10,136,987
(35,339)
10,101,648
7,330,421
(45,694)
7,284,727
8,578,964
1,705,425
10,284,389
5,934,056
-
5,934,056
6,084,574
-
6,084,574
5,671,135
-
5,671,135
1,997,921
-
1,997,921
2,045,879
-
2,045,879
1,990,591
-
1,990,591
7,931,977
8,130,453
8,130,453
7,661,726
7,931,977
7,661,726
598,136
-
598,136
570,880
-
570,880
586,536
-
586,536
1,460,640
-
1,460,640
1,350,467
-
1,350,467
1,269,557
-
1,269,557
2,058,776
-
2,058,776
1,921,347
-
1,921,347
1,856,093
-
1,856,093
9,990,753
-
9,990,753
10,051,800
-
10,051,800
9,517,819
-
9,517,819
146,234
(35,339)
110,895
(2,721,379)
(45,694)
(2,767,073)
(938,855)
1,705,425
766,570
5,886,974
3,394,714
9,281,688
8,608,353
3,440,408
12,048,761
9,547,208
1,734,983
11,282,191
$6,033,208
$3,359,375
$9,392,583
$5,886,974
$3,394,714
$9,281,688
$8,608,353
$3,440,408
$12,048,761
Advocacy
5%
Education 15% Administration & Fundraising 20%
Research 60%
2013 Impact: Biennial Report 2012-2013 | 40
Our People Board of Directors
Scientific Advisory Board
Officers
Stanley Fahn, M.D., Chair Constance W. Atwell, Ph.D. M. Flint Beal, M.D. Robert Burke, M.D. Cynthia L. Comella, M.D. David Eidelberg, M.D. Christopher Goetz, M.D. Lloyd Greene, Ph.D. J. Timothy Greenamyre, M.D., Ph.D. Danna Jennings, M.D. Katie Kompoliti, M.D. Jeffrey H. Kordower, Ph.D. J. William Langston, M.D. Karen Marder, M.D., M.P.H Serge Przedborski, M.D., Ph.D. Kathleen Shannon, M.D. Yaakov Stern, Ph.D. David Sulzer, Ph.D. G. Frederick Wooten, M.D. Anne B. Young, M.D., Ph.D.
Howard D. Morgan Chair Constance W. Atwell, Ph.D. Vice Chair Stephen Ackerman Treasurer Isobel Robins Konecky Secretary Stanley Fahn, M.D. Scientific Director
Directors Karen Elizabeth Burke, M.D., Ph.D. Margo Catsimatidis Peter Dorn George Pennington Egbert III Richard D. Field Sarah Belk Gambrell Stephanie Goldman-Pittel Arlene Levine Marshall Loeb Thomas A. Palizzi Timothy A. Pedley, M.D. Gregory Romero Lewis P. Rowland, M.D., President Emeritus Marie D. Schwartz Domna Stanton, Ph.D. Melvin S. Taub Martin Tuchman
Founding Chairs William Black Page Morton Black
President Robin Anthony Elliott
41 | Our People
People with Parkinson's Advisory Council Thomas A. Palizzi, Chair Fred Woodlief, D.D.S., Vice Chair Claire Berman Christine Col贸n, M.S. Diane Cook Maria De Leon, M.D. Steve DeWitte Hao Dong, Ph.D. Eric Hellinger Nan Little, Ph.D. Linda M. Morgan, M.B.A., R.Ph. Marc Sherman, J.D. Karen Smith Peggy Willocks
Page Morton Black: 1916-2013 In 2013, the Parkinson's Disease Foundation (PDF) lost a great, muchloved, deeply admired ambassador for all those who live with Parkinson’s disease — our Chairman Emeritus Page Morton Black. It was William Black, Mrs. Black’s late husband and founder of the Chock full o’Nuts coffee and restaurant chain, who created PDF in 1957. Mrs. Black served as Secretary of PDF until assuming the role of Chairman after her husband’s death in 1983. She resigned from the Board in 2012, serving as Chairman Emeritus until her death. In 2005, PDF presented Mrs. Black with its Lifetime Achievement Award.
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©2014 Parkinson’s Disease Foundation
Janet Charles Courtesy of Dr. Sheng-Han Kuo Courtesy of Dr. E. Ray Dorsey Luigi D’Astolfo Janet Charles Michael Blanchard Janet Charles (top)/ Patrick McMullan (bottom) Patrick McMullan Janet Charles (bottom) Janet Charles Patrick McMullan Janet Charles Patrick McMullan (top) Janet Charles (top) Patrick McMullan (top)/ Janet Charles (bottom) Patrick McMullan
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