UPFRONT

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Ponies and pirouettes for Holly

Little phighter Hollie

Beattie has been busy with horse riding and ballet lessons, showing that PH won’t hold her back from what she enjoys. Sharing a video from a riding lesson on Instagram, her mum Marion said: “Hollie has had to face things recently with her health that most adults would find hard, and that no kid should ever have to. Tonight I watched her ride better than she’s ever ridden, with absolute determination. I’m so proud of this little warrior.”

Marion also sent us this photo (right), telling us: “In September 2021, Hollie started ballet. She took her grade one exam in May 2022 and was awarded a higher merit. She’s in the picture with her Dad Gary and brother Ethan.”

We love to celebrate the achievements of the little phighters in our community. If you want to let us know how your little one is inspiring you, email details and a photo to media@phauk.org You could see them in the next issue of this magazine, or on our social media channels!

What does a year of PH look like for you?

We’re planning an exciting new research project, to understand what can change during a year of having pulmonary hypertension.

PH365 will follow a cross-section of patients and their loved ones for 365 days, measuring clinical fluctuations, quality of life, disease changes and more. This project will help medical professionals - and others - to truly understand what life is like for people with PH outside of the clinic.

Research will begin at the start of 2024 and there will be many different ways to take part, with varying levels of involvement. We will be looking for individuals with PH and loved ones / carers too who are willing to complete questionnaires, engage in telephone interviews, complete video diaries, or share their thoughts over the course of the year. Other methods of involvement will be developed, and we plan to include children with PH in this study too.

To register your interest, please scan this code with your mobile phone or head to www.bit.ly/PH_365 to complete the form and we will contact you with more information.

Save the date for PH Day UK

Our annual awareness campaign PH Day UK will take place this year on Friday 3rd November. Pop the date in your diary and keep an eye out for all the ways you can get involved!