CURTIS FAMILY
PHOTO BY 21 VINES PHOTOGRAPHY
ISSUE PREVIEW
Pages 12-14 Featured Family: Meet the Curtis Family
Pages 16-17 Sponsor Spotlight: LifeCourseConnect
Page 18 What’s Happening at Janus, Inc.!?
We are full of Gratitude and Thankfulness
Pages 20-21 My Journey of Resilience and Advocacy
Pages 22-24 Nonprofit Spotlight: A Kid Again
Page 25 Save the Date: Uniquely You! Miles Ahead Fund Racing Event November 2
Pages 28-32 In Honor of National Adoption
Month: Firefly Children and Family Alliance
Pages 34-39 Indiana Medicaid Waivers: What You NEED to Know
Pages 42-43 The Adoption Journey
Pages 44-45 Pastor’s Corner: Raising Young Men of Faith
Sponsor Spotlight: LifeCourseConnect
Page 46 Sensory Blurb! Bed Wetting Device
Pages 48-51 Local Events
OWNER/ADVERTISING INQUIRIES Jamie Olson jamie.olson@n2co.com 248-882-8448
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Nonprofit Spotlight: A Kid Again
My Journey of Resilience and Advocacy
In Honor of National Adoption Month: Firefly Children and Family Alliance
Featured Family: Meet the Curtis Family
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JAMIE OLSON: Uniquely You! Magazine Area Director jamie.olson@n2co.com 248-882-8448
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Real Plans for Re Ch ge.
As
Create a vision for the life you want and build a plan to get started.
Watch stories to see what has worked for others, and share it with your key people.
Build your plan, keep it updated, and share a calendar to keep your trusted people informed. Focus on what is important to you!
As a waiver-supported service, get started creating and living YOUR plan.
(317) 626-4387 | LifeCourseConnect.com/Indiana
“[LifeCourseConnect]” really opens up possibilities for people with disabilities… People want my opinion about my life!” (Michelle)
Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law O ce of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana.
We ask "What If?" so you don't have to ask "What Now?"
We understand the unique needs of families with medically complex children. We offer a network of support, ensuring their caregiving journey is a bit lighter.
Call or text with questions 317-575-3983 comforcare.com/indiana/north-metro-indianapolis @comforcareindy @comforcare_northmetroindy ComForCare Home Care goes beyond just home care.
SCAN TO LEARN MORE
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
ABA & COMPREHENSIVE SERVICES
BehaviorWorks ABA (317) 731-7777
behaviorworksaba.com
K1ds Count Therapy (317) 520-4748
ABA / RESIDENTIAL & COMMUNITY SUPPORT
Tangram www.TheTangramWay.org
ABA SERVICES
The Umbrella Center (463) 701-0909
ABA SERVICES - IN HOME
B Above Services (317) 773-0500 www.baboveservices.org
Blue Balloon ABA (317) 650-1109 www.blueballoonaba.com
ABA/COMPREHENSIVE SERVICES
The Hope Source (317) 578-0410
ADULT INDEPENDENCE
Janus Developmental Services, Inc. (317) 773-8781 www.janus-inc.org/
ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING
Law Office of Elizabeth A. Homes LLC (317) 660-5004
Stinson Law Firm (317) 622-8181 www.stinsonlawfirm.com
BEHAVIOR MANAGEMENT
Supportive Behavior Services (765) 337-1895 www.supportivebehaviorservices.com
CASE MANAGEMENT
Connections Case Management (317) 440-0637
CLEANING: RESIDENTIAL & COMMERCIAL
The Dust Devils (317) 709-6120
COMMUNITY SUPPORT
Achieve Community Services (317) 918-0337 acssupports.com/
AID of Indiana (765) 273-3999 aidofindiana.com/
Carters Play Place (317) 836-5510 cartersplayplace.com
LEL Home Services (317) 387-1443 lelhomeservices.com
Muscular Dystrophy Family Foundation (317) 615-9140 www.mdff.org
Noble (317) 375-2700
Phoenix Community Services LLC (765) 622-7808 www.Phoenixcommser.com
The Arc of Hancock County (317) 462-3727 www.thearcofhancockcounty.com
EMPLOYMENT/ COMMUNITY SUPPORT
Hopewell Center (765) 642-0201 www.hopewellcenter.org
HOME CARE & TRANSPORTATION
ABC Community Services LLC (317) 516-1178 www.abccommunityservices.com
HOME HEALTH SERVICES
ComForCare Home Care (317) 575-3983 www.comforcare.com/indiana/ north-metro-indianapolis
Tendercare Home Health Services (317) 251-0700 www.tchhs.net/
HOME MODIFICATIONS / SPECIALTY EQUIPMENT
Specialized Home Care Services (888) 506-4182 www.specialized4u.com/
ICE CREAM
Howdy Homemade Ice Cream (317) 397-0008 www.howdyindy.com
INSURANCE
State Farm
John Cole (317) 430-1958
Thomas Insurance Agency (756) 561-5138
KID’S SENSORY GYM
Rock the Spectrum (317) 764-6607 werockthespectrumcarmel.com/
MEDICAL EQUIPMENT & PHARMACY
George’s Pharmacy & Medical Equipment (855) 600-6251 www.georgespharmacy.com
MUSIC THERAPY
Dynamic Music Therapy (317) 829-6654
NEUROFEEDBACK THERAPY
Indy Neurofeedback (317) 888-8500
SCHOOL
Dynamic Minds Academy (317) 578-0410
Midwest Academy (317) 843-9500
SUPPORT SERVICES
Joseph Maley Foundation (317) 432-6657 www.josephmaley.org
My Quillo (317) 626-4387 myquillo.com/
WAIVER PROVIDER & EMPLOYMENT
Putnam County
Comprehensive Services (765) 653-9763 www.pccsinc.org
Meet the Uniquely You! Team
STAFF WRITERS
PHOTOGRAPHERS
Isaac Roman Writer and Photographer
Katie Mendez Photography
Heather Gregg Photographer 21 Vines Photography
Jane Gailey
Dorie Zipperle
Charles Spray MS, LMHC
Tanya Sood
Paul Hathcoat
Lindsey Watson Susan Graham
Christina McGairk Editor and Writer
Dr. Darolyn “Lyn” Jones Content Coordinator and Writer
Angela Arlington Community Engagement Coordinator, Writer and Contributor
Maria Smietana Editor-in-Chief
Christia Woodord: Content Manager and Puplication Assistant
Jamie Olson Publisher and Area Director
Zachary Curtis Community Engagement
MEET
CURTIS CURTIS
BY LINDSEY WATSON
PHOTOS BY 21 VINES PHOTOGRAPHY
MEET THE CURTIS FAMILY, a mom and sons trio with a triple threat in faith, advocacy, and community involvement. Zenobia, a strong and loving mother, raised her now-grown boys, Zachary, 28 and Nicholas, 26, in Fishers after moving from Michigan in 2005 for their father’s job.
Zach was diagnosed with autism at age 2 when the family still lived in Michigan. He started to receive early intervention a few months after diagnosis and also began sensory integration and speech therapies. At that time, brother Nick was only 2 months old.
Zenobia was broken-hearted and terrified but knew she had to learn everything she could about the disorder and advocate for her son. She was told Zach would never talk. For a period of time, he was nonverbal but did end up speaking again. She relied heavily on her faith to get her through those hard moments.
When the family first moved here, Zenobia worked as an instructional
assistant for Hamilton Southeastern schools, where she said her experience was invaluable and which gave her an education in many disabilities and diagnoses. For the past 13 years, she has been a financial aid counselor for Indiana Wesleyan University. And prior to moving to Fishers, she spent 20 years working as a flight attendant.
During her sons’ childhood, the family enjoyed a special tradition they called “Pow Wows” where they would spread out a blanket on the floor and enjoy dinner, popcorn, and a movie. They spent holidays back in Michigan and went to church on Sundays. Zach still enjoys singing all the songs. Christianity has served as the core foundation for the whole family.
The Curtises, especially Zach, enjoyed watching NBC Nightly News. Zach became obsessed with news anchor Tom Brokaw. Zenobia shared that they had to be home to watch every evening. As summer approached, when news anchors take time off, she tried to prepare Zach for the possibility
of not seeing Brokaw on TV. Just as she had predicted, a fill-in appeared at the news desk one evening. Zach was crushed. Zenobia said, “He was very upset, lips quivering and all, and had a really tough time pulling himself together.” But to this day, Zach is a news enthusiast who knows all the newscasters by name.
Zenobia and her husband eventually went through a divorce, which was a very difficult transition for the family. This time period was spent helping her sons cope, but additionally Zenobia struggled with how to distribute attention between her boys, with Nick needing one-onone time and Zach needing help to understand the situation.
Zach earned his certificate of completion and graduated from Fishers High School. It was a huge accomplishment! Following graduation, though, he struggled as his peers moved on to go to college. He participated in a nine-month internship program called Project Search, where
he learned interview skills and shadowed different departments at St. Vincent Carmel Hospital.
At age 21, Zach began working as a day porter for First Internet Bank, a job he has held for the past 7 years. He still has plans to earn his GED one day. Zenobia said, “I can’t even begin to thank First Internet Bank and all that the people there have done for him. The patience and guidance they have extended to him is nothing short of amazing.”
Brother Nick, also a Fishers High School alum, graduated from MIT and then did some mission work abroad. Most recently, Nick was living in Austin, TX, where he was primarily doing film work. Zach and his mom enjoyed having Nick back home this summer, spending quality time together and looking forward to his wedding in July. Zach was in the wedding. Nick and his wife now live in Georgia. When the Curtises first learned about Zach’s autism, they were told he would never live independently. But in October 2021, Zach moved into his own apartment. His particular apartment complex has a percentage of units set aside for people with intellectual and developmental disabilities (IDD). Zenobia said the move was a big transition, especially for her. But Zach does come home to visit his mom on weekends.
The two enjoyed picking out furniture together, and Zach knew he wanted a theme of red, black and white.
He calls his apartment his “Man Cave” and really enjoys his independence. After moving into his own place, Zenobia shared with a chuckle, Zach proudly asked her, “I’m my own man, right mom?”
Zach’s main priority now is learning to drive, which has been a challenge since he can have trouble focusing and gets distracted easily. His ambition to succeed and grow himself is admirable and seems to be a rooted personality trait despite his challenges with autism. Many say that if Zach wants something, he doesn’t give up.
A strong-willed attitude allows Zach to advocate for himself to be included in the community. He may not have a driver’s license, but he is incredibly involved! In addition to working, he is a member of THRIVE Social Group (an 18+ social and networking program).
He speaks for the Joseph Maley Foundation, telling others about living with autism. He is a Special Olympics athlete and serves on the Special Olympics Athletic Leadership Council. Additionally, he serves as a Best Buddies Global Ambassador.
Best Buddies is an inclusive program that pairs persons with IDD with typical peers. Zach and his matched buddy, Madeline, were awarded “Buddy Pair of the Year” in 2012. Their friendship has persisted since their grade school days. When Madeline got married, Zach was even in the wedding. The two recently
attended their 10-year high school reunion together, and Madeline still takes Zach Christmas shopping every year. Their families agree that the two will always be close.
The Curtises attribute their strength and resilience in overcoming struggles and “bumps in the road,” as they call them, to their strong faith.
Zenobia said, “We are blessed to have very strong advocates for the IDD community in Fishers and all of Hamilton County. It truly does take a village, so having as many advocates and resources as possible makes all the difference now, and I believe will even more so in the future.”
To those in similar situations, Zenobia says to “surround yourself with supportive and understanding people. Get involved in organizations and advocate for your child’s community.” Zenobia works full time and is also on the Special Olympics County Management Team and the THRIVE planning committee. She highlighted the importance of parents taking care of themselves, too.
With an obvious love, the Curtis family will likely remain advocates for others with special needs, their strong faith weaving threads of strength throughout the community. Zenobia says, “I have seen the struggles parents have and the unbelievable resilience of not only the parents, but our beautiful children. I have learned so much from them.”
LifeCourseConnect A Place to
Learn, Plan, and Schedule with the Focus on You!
“It’s wonderful to have a community that speaks my language and has tools that keep us all on the same page!” - Lexi Westerfield.
Using LifeCourseConnect has opened many doors for Lexi Westerfield. As a blind and autistic selfadvocate who is also a wheelchair user, Lexi works with The Arc of Indiana, Self-Advocates of Indiana, and as a LifeCourse Ambassador with Charting the LifeCourse. Lexi has to not only manage these various roles but also her day-to-day interests, plans and goals. She found that LifeCourseConnect was just the program she needed to organize her schedule, plans, and ideas.
What is LifeCourseConnect?
Available to people on the FSW or CIH waivers as well as a Vocational Rehabilitation (VR) service in Indiana, LifeCourseConnect (LCC) is a person-centered planning program that puts YOU in the driver’s seat. LCC gives participants access to two new tools, LifeCourseOnline and Quillo Connect where members create a vision for the life they want and build a plan to get started. Both are available on a smartphone, tablet, and/or desktop. LifeCourseOnline (LCO) is a digital space to plan, connect, and take action on the goals you set for
yourself or your family. LCO helps users answer questions about what they want for their future, invite others to join, coordinate schedules, create and track goals, and more, all in a secure online space. Built around the Charting the LifeCourse framework, LCO users are able to:
• Map out their vision for a good life
• Think about what they want for their life - and what they don’t want
• Invite a support team to join them in their day-to-day as well as long-term planning
• Update and share a calendar with events linked to goals and support people, as needed
• Make their person-centered plan dynamic and able to be updated throughout the year
• and so much more!
For those moments in between, there is Quillo Connect, using short videos to share information, resources, ideas, connection, and inspiration with users.
Viewers can learn more about selfadvocacy, communication skills, tips for getting ready for a job interview, and more. Quillo users enjoy using the app to:
• Explore the Quillo video library, including nearly 2,000 one-minute videos featuring stories and experiences from self-advocates, family members, professionals, state leaders, and more
• Invite trusted people to join their private Circle of Support to share personalized videos
• Set their own Favorites Playlists to return to videos later
• and so much more!
Lexi has found that these tools have had a positive impact on how she is thinking about and planning for the future. Using the video-sharing features on Quillo Connect and the collaborative planning and scheduling tools on LCO, Lexi is also equipped to share her goals and plans with others.
“I feel like my approach to planning has really changed since I started using LifeCourseConnect. I feel like my ideas are just more thought out, and I can plan them a lot more efficiently and communicate them a lot more efficiently since I started using LifeCourseConnect.”
Getting support along the way:
“You Don’t Go it Alone”
Living in northwest Indiana with her mom and two cats, Lexi shared, “LifeCourseConnect helps me just organize things and have them all in one place, organized and easy to have laid out and mapped and planned.” She joined Indiana LifeCourseConnect through The Arc of Indiana’s Advocacy Leadership Network, and will continue to use the tools after that program ends.
In addition to access to Quillo Connect and LCO, users can make
the most of other program features, including personalized sessions with planning assistants and making connections through regular online community sessions. After signing up for Indiana LCC, you will receive one-on-one support to help set up your LCO and Quillo Connect accounts. Virtual one-on-one meetings with LCC staff and optional monthly drop-in sessions provide participants with the chance to ask questions, take the tools further, and connect with others in the program.
Lexi has loved taking advantage of these additional program supports. “My favorite part of LifeCourseConnect is that you don’t go it alone. You get one-on-one sessions at least a couple of times, depending on what program you’re in to help build your LifeCourseOnline portfolio, or get any other assistance you need, as well as the LifeCourseConnect Community Chats, which is a great way to meet your community of people who use LifeCourseConnect.”
At the end of the day, LifeCourseConnect helps tackle the tough questions, opens new opportunities, and builds a real plan with real choices.
It’s more than a checklist - it’s an ongoing conversation LifeCourseConnect is not about filling out a form that sits on a shelf to collect dust all year. The tools are an opportunity to picture a future you want and help prompt the important conversations that so often are missed in developing a good life. Together, LCO and Quillo Connect provide a way for users to think big without the risk of being overwhelmed. Update your goals in LCO throughout the year or when life changes occur. Share encouraging messages with others in your Quillo Connect Circle, and use the video library to inspire new goals and plans on your LCO.
Is LCC a good fit for me or my loved one?
Are you new to the waiver and not sure where to start? Are you feeling stuck or overwhelmed? LifeCourseConnect (LCC) is a great tool to help people get
started with a plan! While everybody is welcome and encouraged to try it, we’ve found that LCC is a great fit for:
• People who are new to their waiver services
• Folks who are waiting for a provider
• Individuals and their case managers who are searching for a provider. They can work together to help pinpoint the types of things someone might want, like, or need. This could help clarify or speed up the provider search!
If an individual on the waiver isn’t old enough to use apps or isn’t regularly using technology themselves, it’s a great resource for caregivers and family members to use on their behalf.
How do I sign up to get started?
If you would like to follow Lexi’s lead and join LCC, we are excited to help you get started. Indiana LCC is available through FCAR (Family Caregiver and Training) to people on the FSW and CIH waivers as well as through Vocational Rehabilitation (VR). Sign up through Indiana LifeCourseConnect www. LifeCourseConnect.com/Indiana, and the LCC team will help you work with your case manager to get this one-year subscription added to your FCAR budget. There is no out-of-pocket cost for participants.
If you would like to start exploring LifeCourseConnect, please reach out! Call us at (317) 626-4387, email Cynthia@LifeCourseConnect.com, or visit https://lifecourseconnect.com/ Indiana to get started. It all starts with one step.
Nate and Molly’s story
We are full of Gratitude and Thankfulness
BY JERRY D. JAMISON, DEVELOPMENT AND COMMUNICATIONS SENIOR DIRECTOR
Written by families of those with special needs providing hope, inspiration, education and more.
Packed with resources for all.
Printed & Digital versions that reach over 30k in the state monthly
Clickable ads in digital copies direct to your site or social media
Index listing in print copies feature you as trusted resource
High visibility in a niche resource that will be viewed and shared repeatedly
Event opportunities to connect with the community Tailor your messages & Share valuable information to impact the community monthly
Help us to CELEBRATE, CONNECT & IMPACT the Special Needs Community
Stories written by special needs
individuals, families Looking for businesses to support non-profit organizations that support the community
To get started or learn more. Contact or scan the code (248) 882-8448 or Jamie.Olson@n2co.com.
MY JOURNEY OF RESILIENCE AND ADVOCACY
BY MELINDA PRECIADO
I WAS BORN on January 13, 1980, at home in Oregon. A year later, my family’s journey took us to Northern California, where I spent the majority of my childhood. My father’s work in ministry led us to Washington for three years, but eventually, we returned to Oregon.
From a young age, the world of pageants, modeling, acting, and the arts captivated me. These weren’t just hobbies, they were passions that fueled my spirit. Dance, in particular, became a beautiful outlet for my deep artistic creativity. I was full of life and adventure, enjoying the beauty and wonder that the world had to offer.
I met Alfredo Preciado, a Mexican man, in Oregon. Even though I noticed several red flags, I still agreed when he asked my father for my hand. We were married in May of 1997.
Alfredo was a man of immense work ethic, never missing a day of work. But behind closed doors, he was a nightmare. His anger could be triggered by the smallest things, and I endured a life of control, fear, and pain. The abuse--physical, emotional, and psychological-was severe. My face would be smashed into the dashboard, and he nearly pushed me out of a moving car. I carry countless traumatic memories from those years.
Alfredo’s obsession with bodybuilding led him to use steroids, which only fueled his expectations of me. I was to be the perfect trophy wife; flawless in appearance, with a perfect body, and a home that was immaculate.
We welcomed our first child, Uriel, on November 10, 1999. When he was just eight months old, we moved to Alfredo’s hometown of Guadalajara, Mexico. We lived there for two years until Alfredo obtained permanent residency in the United States. On October 10, 2003, our second child, Devan, was born. Despite my high-risk pregnancies and multiple surgeries due to stage four endometriosis, including a full hysterectomy, Alfredo was indifferent. His demands for perfection never ceased.
Devan was born with epilepsy and later diagnosed with autism. The challenges only grew, but Alfredo’s verbal and emotional abuse continued. He controlled every aspect of our lives. We lived in a constant state of stress, without a voice.
The breaking point came when Alfredo began to physically harm our children. I knew then that I had to protect them and myself. With the help of the court, the sheriff’s office, and my family and friends, I devised a plan to escape. On July 29, 2010, with immense support, I finally left. I divorced Alfredo and had him deported back to Mexico. Though I have forgiven him for the hell he put us through, the scars of that trauma are still with me.
I found my calling in pursuing a career in healthcare. I became a medical assistant, phlebotomy technician, and state-licensed acute care nursing assistant (CNA2), specializing in emergency department care.
I enjoyed my career in healthcare, but the universe had more in store for me.
My knees had been a source of pain for years. I had been diagnosed with osteoarthritis and had left knee/ leg reconstruction in 2016. However, this surgery was botched, causing severe deformity and permanent damage from hip to toes. By 2020, both knees were bone on bone with spurs and other damage. I was told I had the knees of an 80 year old.
I underwent a right knee replacement in 2021. Shortly after surgery, I experienced excruciating pain in my foot and ankle. There was no pulse in my right foot, and I lost all feeling and movement. Arterial damage during the surgery had caused acute limb ischemia. Despite multiple surgeries, including a bypass and angiography where veins were harvested from my left leg from ankle to groin, my condition worsened. I was diagnosed with heparin-induced thrombocytopenia with thrombosis, a rare life-threatening condition. I went into shock and respiratory distress. Within a few weeks, my right leg was completely dead and was
amputated above the knee. The pain was beyond anything I had ever experienced. I was intubated and placed on life support in the CCU as my family gathered by my bedside. I endured multiple blood transfusions, surgeries, and procedures, and had wound vacs attached to me. The doctors offered little hope for my survival, let alone saving my severely damaged left leg. I was hospitalized for a month and then transferred to a physical rehabilitation facility for another month. But I was determined to regain my independence and live life to the fullest again. Before this life-altering event, I was an active person who loved hiking, dancing, and outdoor adventures.
I remember very little from that first month or so after the first surgery in January of 2021. Most of what I know comes from what I’ve heard and read. As of today, I’ve undergone 14 surgical procedures just due to that initial surgery accident, and still have more to come.
I’m in 24/7 constant pain that can’t be controlled. Yet, through it all, I have found my “why.” I refuse to let the pain define me or stop me from living my life. I have a family to live for, a world to change, and a purpose that fuels my determination to keep moving forward, no matter the odds.
My 17 years in healthcare are behind me, and I am grateful for the opportunities and the amazing people I met along the way. I now dedicate my life to advocating for disability rights and educating America on the importance of accessibility and inclusivity. The ADA law, passed in 1990, was a monumental step, but we still have a long way to go in modifying what already exists to make life easier for everyone. Disability rights are civil rights, and civil rights are human rights.
I was honored as the fourth Ms. Wheelchair Oregon America 2022, the first-ever Ms. Wheelchair Oregon USA 2023, and Ms. Wheelchair Pacific Coast USA 2024.
I am committed to innovating the ADA and adapting America for all.
A Kid Again
Making memories
BY SUSAN GRAHAM
Serving over 1,000 Hoosier families, the Indiana chapter of A Kid Again provides free, year-round adventures for families who have a child with a life-threatening condition. Brooke Gee, the Program Coordinator, loves meeting new families and highlighted that “The entire family is part of A Kid Again. Siblings get to do the same things as the child who qualifies because they feel the effects of life-threatening conditions too. We want families to come and have fun together.” A Kid Again’s primary goal is to “give illness a time out.”
A Kid Again Indiana generally plans 4 adventures a year, such as Dream Night at the Fort Wayne Children’s Zoo, Pajama Night at The Children’s Museum of Indianapolis, a King’s Island Day, and a Holiday Adventure! They thoughtfully plan
each Adventure to be accessible and fun for all ages. Adventures generally include multiple activities ranging from woodworking to dance parties to snacks, or meeting special guests. One year, the guest of honor was a 7-foot python named Banana!
Raising a child with a lifethreatening illness can be expensive, which is why Adventures are designed to be relaxing and cost-
free. The King’s Island Day includes tickets for the entire family, food, drink vouchers, and a special A Kid Again-only access area with ice cream and Peanuts characters! This Adventure incorporates the Indiana, Ohio, and Kentucky chapters, connecting families around the Midwest. Parents swap tips and kids have spontaneous wheelchair races while they wait in line.
It’s such a popular event that this year, King’s Island offered a choice of two days to make sure everyone has a great time! The Saturday event will include all the regular park rides but will have extra thrilling hours for the older kids who enjoy Halloween spooks. Sunday will be for those who prefer to keep their thrills limited to amusement park rides.
Attending Adventures not only provides memories for families but also community. Kids with lifethreatening conditions are often one in a million, making it difficult to find other families who can relate. A Kid Again Adventures are a connection point for parents, kids, and siblings. Stephanie Greenwald, who participates in the Indiana chapter, observed “The Adventures organized by A Kid
Give illness a time out.
Again have been transformational for our family. Not only do we get to escape the daily grind of medical appointments and treatments, but we also get to meet other families who truly understand our journey. It’s like finding a second family that we never knew we needed.”
Children who use wheelchairs and attend traditional school don’t usually have other wheelchair-using peers to play with. A Kid Again Adventures provides space for them to play with similarly abled peers. Watching eight-year-olds connect over cool crutches or uniquely decorated wheelchairs is an amazing experience for both parents and volunteers. Last
Halloween
Christmas 2023
Heros
year, a group of elementary schoolage wheelchair users convinced volunteers to dismantle one of the balloon sculptures so they could play “keepy-uppy.” There were balloons and giggles everywhere.
The Holiday Adventure is another A Kid Again favorite. While the location changes yearly, families can always count on a memorable day. Last year, special guests Mr. and Mrs. Claus were joined by The Grinch and almost all of the Disney Princesses. While legendary guests are fun, the Holiday Adventure also includes activities, food, and
presents! Children who attend the event love the gift room where they get to pick out an early holiday present, just for them. Because of A Kid Again’s philosophy that illness affects the entire family, siblings are never left out and also get to pick out a special treat.
Each year, dozens of volunteers staff the Adventures so Indiana families can take pictures, laugh, and make memories. These volunteers are often connected to the sponsor. Sponsor employees dress up, plan games, and add their flare to the adventure. However, they aren’t the
Indiana so families don’t always have to drive long distances to participate and sign-ups happen a month in advance, giving plenty of time to plan.
Josie Richardson Kenny and Ella Comer
P U R P O S E D R I V E N F U N D R A C E !
On Saturday, November 2, experience your own purpose driven moment. Get behind the wheel of a state-ofthe-art, lithium-ion battery powered Top Kart racing kart and let it rip In this adrenaline-pumping, time trial race, compete against friends, family and co-workers for top honors. This exhilarating “fundracing” event will benefit the disability community, Uniquely You (With free copies monthly), Triada (Autism Support), by improving outcomes for autism and helping inform more Indianapolis area families about resources available to meet their unique needs.
Sign up to race yourself, race for another individual with a disability, cheer on your special individual as they race, come out and represent your organization and compete against others and share more about your purpose driven moment that helped you become who you are today.
Choose from one of four, hour and a half racing sessions throughout the day The race is open to both individuals and company sponsored teams. Drivers must be at least 16 years old with a drivers license. Follow results in real time on your smart phone, all day, to see where your time ranks against other racers.
So come on out to experience your own purpose driven moment CLICK HERE for more info or to register!
Presented by:
Saturday, November 2, 2024 9:00 am – 4:30 pm Indy Cycloplex 3649 Cold Spring Road Indianapolis, IN 46222
Conducted by:
Scan to learn more or to register
-RESOURCE FAIR-ORGANIC FOOD TASTING & CONNECT WIRH FARMERS-PRIZES FOR TOP RACERS AND TEAMS-RACE FOR YOUR CAUSE-COME CHEER ON YOUR RACER OR RACE FOR SOMEONE IN YOUR LIFE WITH A DISABILITY OR SPECIAL NEED!
Sharing photos of life’s milestones in Uniquely You! Magazine is a beautiful way to celebrate the essence of special moments and memories. Whether it’s a first step, graduation, vacation, or any cherished occasion, each photo tells a unique story of joy and achievement. It’s a chance to share these meaningful experiences with others who can appreciate and celebrate each journey.
We are also celebrating November, December and January Awareness Months, inviting you to share a photo that captures a special moment related to that month. Customize your caption to highlight the moment’s meaning to your family.
The pilar of our focus is providing the best possible care and supports for all persons served. This care is driven by Individual choice as the centerpiece for all services we provide. Additionally, we encourage and welcome parents, family members, and even friends of individuals served, to apply for positions as paid caregivers.
Uniquely You! A Picture is Worth a Thousand Words for October, November and December Awareness Months!
Uniquely You!Milestones and Favorite Memories
IN HONOR OF NATIONAL ADOPTION AWARENESS MONTH
Firefly Children and Family Alliance is a statewide initiative in Indiana to find loving, committed, safe, permanent families for children in foster care.
BY SHALESTA PETERSON AND ERIN CARTER, FIREFLY CHILDREN AND FAMILY ALLIANCE
Rocky, 14:
If you love “The Lion King,” you’ve got to meet Rocky! He loves the songs and will sing along to each one. He loves animals, especially dogs and dinosaurs. Always wanting to be helpful, Rocky does well with taking care of animals or helping around the house. Spiderman is Rocky’s favorite superhero because he helps others. If Rocky had one wish, it would be to have the same superpowers as Spiderman and be able to help others too! Rocky would do well in a single- or two-parent family with a supportive community who will ensure his social and emotional needs are met. He needs a family who will show him affection and love while maintaining a consistent routine. https://www.indianaadoptionprogram. org/profile/rocky-8605/
Miley, 16:
Miley is a creative young lady with aspirations of becoming a pop star! She’s a wonderful singer and loves showing off what she can do. Her favorite subject in school is definitely music, but she also enjoys art and English. Miley is a big fan of Asian culture: she loves everything anime, and her favorite foods are Japanese and Korean. Miley would do well in either a one- or two-parent home and would do best as an only child. Families need to be willing to take on any medical or therapeutic needs she may have in the future. She will thrive with patience and communication, and with parents who take an interest in her hobbies.
https://www.indianaadoptionprogram. org/profile/miley-8789/
Jace, 12:
Jace loves absolutely everyone and is a big-time hugger! He likes to be around others and has never met a stranger. If he can make you laugh with a silly face, he’s definitely going to try! Jace likes to help, so you’ll often catch him alongside you while you complete chores. Jace would do well in either a one- or two-parent home without other children. If there are other children, they should be older so Jace can receive plenty of attention. He does best with consistency and structure. Parents who can show patience and are willing to make education a priority are ideal. https://www.indianaadoptionprogram. org/profile/jace-9404/
Gracie, 12:
Gracie is a sweet girl with a huge heart! If you ask her what she’s proud of, she’ll quickly tell you “everything!” But what she’s really most proud of is that every Christmas she helps with charity drives to get presents to kids who wouldn’t otherwise have any. Her favorite pop artist is Taylor Swift; she could dance along to her songs all day!
Gracie is artistic and enjoys spending an afternoon drawing; it’s a great way to express how she feels. In school she loves when it’s time for reading class; “Clifford the Big Red Dog” is a perennial favorite. Gracie would do well in either a one- or two-parent home and would love brothers or sisters. She will thrive with parents who take an interest in her activities and are always there to support her. https://www.indianaadoptionprogram. org/profile/gracie-9378/
Enzo, 12:
Hands-on Enzo loves taking things apart and putting them back together! He’s great at following directions and doesn’t mind putting together something complicated as long as it looks cool in the end! He’s a great craftsman and enjoys making new, fun designs out of anything his imagination can come up with. He doesn’t mind helping out with chores and likes to feel useful around the house! Enzo would do well in either a one- or twoparent home and would love a forever family that came with older brothers or sisters he can look up to. He does best in a calm environment with parents who make communication a priority. Predictability is key to helping Enzo feel safe, so a family that can offer routine and structure is critical. https:// www.indianaadoptionprogram.org/ profile/enzo-9695/
Jordan, 12:
Jordan has a ton of energy and she’s always running around! She’ll race just about anybody and will usually leave you eating her dust! She loves the outdoors and could spend all day in the garden weeding or picking vegetables. She loves taking care of animals – when she’s around, they’re never lacking for attention! Jordan’s a tremendous athlete and excels at whatever she tries. Her favorite sports are basketball, volleyball, and soccer and she loves when people come out to her games to cheer her on! Jordan would do well in either a one- or two-parent home and would love brothers or sisters. She thrives with plenty of one-on-one time and parents who make sure she feels special and that her needs are met. https://www.indianaadoptionprogram. org/profile/jordan-9759/
Matthew, 16:
An adorable guy with a great smile and a big personality, Matthew likes to say hello by giving high fives! He’s at his happiest when he’s with people he cares about, especially if they are playing outside! Matthew will keep you on your toes! He likes to run, jump, and do cartwheels; once he’s worn out, he likes to wind down by coloring, playing with blocks or being read to. Matthew will thrive in a family with structure and supervision where praise and activity are abundant. He lights up whenever anyone praises him! Parents will need to make a lifelong commitment to Matthew.
https://www.indianaadoptionprogram. org/profile/matthew-9144/
Brooklyn loves to meet new people and visit new places! An explorer at heart, she’s outgoing and adventurous, and wants everyone to be included in her adventures! She’ll talk freely to anyone and is eager to tell others about happenings in her life. Brooklyn enjoys a good joke and playing friendly pranks; seeing others laughing and having fun makes her happy! She’d be delighted if you’d join her in activities like swimming, riding bikes, or completing puzzles. Loving and compassionate Brooklyn will thrive in a family where there is stability, structure, and routine. She would do well in a family where she is the youngest child and can receive one-on one attention.
https://www.indianaadoptionprogram. org/profile/brooklyn-8851/
Gabriel, 15:
Gabe is a creative young man who loves to have fun! He’ll find something fun to do no matter where he is, whether it’s playing a cool new app on his tablet, climbing trees, or jumping on the trampoline! He’s a huge sports fan (but can’t decide which one’s his favorite –he loves them all!). He prides himself on not being a picky eater and will try most foods – unless it comes from the ocean. He’s not trying that! Gabe would do best in a two-parent home without other children so he gets plenty of attention. He hopes for parents who are as active as he is and will want to do fun activities with him. https://www.indianaadoptionprogram. org/profile/gabe-8705a/
Zoey excels at sports, and works hard to improve her athletic skills every day. She’s hoping to join a softball team and can’t wait to meet a whole new group of friends! She also excels at volleyball and basketball and is always looking for new things to try. When it comes to learning, she prefers handson experiences where she really gets to work with something! Zoey would do well in either a one- or two-parent home and would appreciate at least one female figure to look up to and learn from. She would do well with brothers or sisters, as long as she gets plenty of one-on-one attention. Zoey hopes for parents who want to come to her sports events and cheer her on. https://www.indianaadoptionprogram. org/profile/zoey-9683/
Anthony, 16:
Anthony is an outgoing child who doesn’t know a stranger! He’s very curious about the world around him and loves reading books, particularly the “I Spy” series or science books. Take him to a bookstore and he’ll wander the aisles for hours in search of the right book! He’s also quite the gamer, especially “Subway Surfer.” Anthony loves being out in the community, so if there’s a farmer’s market or a festival going on, he’ll want to check it out! The ideal family for Anthony will be a two-parent household with no other children in the home. Parents will need to be patient, nurturing, loving, and affectionate. And of course, they’ll need to be engaged in their community and open to letting Anthony experience new activities and further develop his social skills. https://www.indianaadoptionprogram. org/profile/anthony-8763/
LaShawn, 9:
Silly and sweet LaShawn is so caring and loving to the people around him. You’ll never have to wonder if he likes you or not; he’ll make it very clear! He finds just about everything funny, so you’ll have no trouble making this guy laugh. He likes to spend an afternoon chilling out watching his favorite cartoons. His favorite color is red so it’s no surprise he loves fire trucks and hopes to be a fireman someday! His heritage is important to him, so LaShawn would do best in a twoparent, African-American home. He should be the only child in the home so he gets plenty of one-on-one time. Parents who make sure they take time out of their day to spend just with him would be ideal.
https://www.indianaadoptionprogram. org/profile/lashawn-9328/
Makayla, 16:
Makayla is one of those teens who wants to leave the world better than she found it. She works hard every day to make sure the people around her are loved and supported. She’s got tons of friends but is thrilled to make more wherever she goes! Makayla would do well in either a one or two-parent home. While she would do best as an only child, she wouldn’t mind older brothers or sisters to look up to. She does best in a consistent environment with parents who make communication a priority. Makayla likes to feel as though she has a voice in decisions that impact her.
https://www.indianaadoptionprogram. org/profile/makayla-9450/
Jayden, 15:
delighted to spend his time jumping on — he will try to swing as high as the clouds! He discovered he likes roller coasters – it feels like he’s flying! When he’s ready for something calming after all that, sensory activities and toys with sounds and flashing lights will do the trick. Joshua is an affectionate young man who loves getting and giving hugs; being read to us one of his favorite comforting activities – it helps him bond with his caregivers. Joshua will thrive in a two-parent home where there is plenty of supervision and support. He does well with other children and animals; if there are other children in the home, it would be best if they’re older, so Joshua can receive the attention and support he needs.
https://www.indianaadoptionprogram. org/profile/joshua-8513b/
Wherever the action is, that’s where you’ll find Jayden! If he’s playing video games, they’d better have lots of action – and zombies! But, it might be hard to get him to sit down and play a video game, because he’d much prefer to be out and about doing something! Jayden’s been perfecting his bowling skills, and he’s always up for a Nerf battle. He uses that sense of humor of his to get everyone around him laughing! Jayden would do well in either a one- or two-parent home and would appreciate having a strong male role model to look up to. He would do best as an only child so he gets plenty of attention. He will thrive in a calm, patient household with parents who demonstrate problem-solving with appropriate communication. https:// www.indianaadoptionprogram.org/ profile/jayden-9758/ Indy
Neurofeedback is Changing
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Neurofeedback is a non-drug, non-invasive solution to symptoms related to brainwave dysregulation. It's natural and offers a fix to the problem, not just a bandage that masks the symptoms.
~Maria S. (parent)
The Muscular Dystrophy Family Foundation uses its collective resources to help those with a neuromuscular disease live safer, more independent lives.
Some of what we help fund:
Adaptive Equipment
(e.g., ramps, lifts, wheelchairs, and wheelchair components)
Home Modifications
(e.g., bathroom modifications and bathroom equipment)
Transportation
(e.g., van conversion assistance, transfer seats, and vehicle lifts) (317) 615-9140 • mdff.org @MDFamilyFund • @MDFF_Indiana
INDIANA MEDICAID WAIVERS What You Need To Know
BY DR. DAROLYN “LYN” JONES WITH SALLY MORRIS, THE ARC OF INDIANA DIRECTOR OF COMMUNICATIONS
Many Hoosier families have been left confused by the many recent changes to Indiana’s Medicaid Waiver program. Other Hoosier families don’t know what the Indiana Medicaid Waiver program is or how to apply for those waivers. And sadly, there are too many Hoosier families who have applied for a waiver but are still on long waiting lists.
IN THIS ARTICLE, WE:
1. describe each of Indiana’s Medicaid Waivers, including recent major changes to the names, populations served, and administering agencies of some of the waiver programs; 2. provide some historical context on the origin of the Medicaid Waiver and its implementation in Indiana; 3. highlight the supports each waiver now provides to individuals with disabilities and their families; and 4. summarize how a major state budget shortfall and discontinuation of Covid-era protections has impacted implementation of the waiver changes and resulted in ongoing hardship for thousands of Hoosiers with disabilities and their families.
WHAT IS A MEDICAID WAIVER, AND WHAT IS THE HISTORY OF THE MEDICAID WAIVER PROGRAM?
The Medicaid Waiver allows Medicaid to fund supports and services for children and adults with disabilities in their homes or communities instead of institutions.
As Marci Wheeler, a former social work specialist with the
Indiana Institute on Disability and Community (IIDC) at Indiana University, wrote: “In the past, Medicaid only paid for long-term care services in an institutional setting, such as nursing facilities and group homes. The waiver program “waives” the necessity of admission into an institution in order for Medicaid to pay for needed home and communitybased services. Medicaid Waivers make Medicaid funds available as an alternative to institutional care if supporting the individual, in the home and/or a community setting is no more than the cost of care within an institutional setting.”
In 1981, then-President Ronald Reagan learned about the plight of Katie Beckett, a three-year-old ventilator-dependent child who could only receive Medicaid covered care in a hospital. He authorized the waiver of eligibility rules to allow Medicaid to cover services in her home. The story spurred national awareness and action, and by 1983, Congress had added section 1915(c) to the Social Security Act, giving states the option to create Medicaid Waivers
and make home and community based services (HCBS) possible for many who were then in institutional care.
Prior to the closure of Indiana’s state institutions, nearly 46,000 children and adults were institutionalized in these facilities. When the last one closed in 2007, the cost per year to house one individual was an astonishing $233,600.
The state began committing funds in 1983 to move people with intellectual and/or developmental disabilities (IDD) out of nursing facilities and into group homes licensed as small intermediate care facilities.
Landmark legislation was passed in 1991 that established Indiana’s Medicaid Waiver programs. The Intermediate Care Facility for Mentally Retarded (ICF/MR) Waiver was the first to be introduced. By 1998, the 317 Commission had published a comprehensive HCBS plan. The next year, $39.3 million was allocated in the state budget to implement the first phase of this plan. In 2001 and 2002, respectively, the ICF/MR Waiver was replaced with the Developmental Disabilities (DD) Waiver, and the state established the Support Services (SS) Waiver. Those waivers, along with the Autism Waiver, were superseded by the budget-capped Family Supports Waiver (FWS) in 2012. That same year, the Community Integration and Habilitation (CIH) Waiver was created for individuals needing emergency placement.
Current Medicaid Waivers
After significant changes were made to the Aged and Disabled Waiver program, effective July 1, 2024, Indiana now has five Medicaid Waivers:
Medical Model Waivers:
• PathWays for Aging Waiver, for individuals aged 60 and over (formerly the Aged and Disabled (A&D) Waiver)
• Health and Wellness Waiver (H&W) for individuals aged 59 and younger (formerly the A&D Waiver)
• Traumatic Brain Injury Waiver (TBI)
Developmental Disability Waivers:
• Family Supports Waiver (FSW)
• Community Integration and Habilitation (CIH) Waiver
The PathWays Waiver is administered by the Office of Medicaid and Planning (OMPP). The other four waivers are now administered by the Bureau of Disability Services (BDS). Learn more about BDS here: in.gov/fssa/ddrs/ developmental-disability-services/. It’s worth noting that Indiana Medicaid Waivers do have expiration dates and revisions are typically made every 3 to 5 years, or as directed by the Indiana General Assembly.
It is important to understand that many stakeholders are involved in advising the state about needed changes, including individuals and families, The Arc of Indiana, the Division of Disability and Rehabilitative Services Advisory Board, and of course, legislators. Some websites still use language reflecting former waiver names and administrating agencies. For the most accurate and up to date language and information, visit The Arc of Indiana website at arcind. org/medicaid-waiver-updates/.
WHICH INDIVIDUALS DOES EACH WAIVER TARGET?
WHAT SUPPORTS DOES EACH WAIVER PROVIDE?
Indiana Developmental Disabilities
Medicaid Waivers: FSW and CIH Individuals applying for the FSW and CIH Waivers must have an intellectual or developmental disability, or a related condition, that was diagnosed before age 22, is expected to continue indefinitely and meets the level of care that would otherwise be provided in an Intermediate Care Facility for Individuals with Intellectual and Developmental Disabilities (ICF/IIDD).
To meet level of care, an individual must have substantial functional limitations in at least three of the following six categories: mobility, use and understanding of language, selfcare, learning, self-direction, and capacity for independent living. Parental income and resources for children under 18 are NOT considered unless they are seeking Medicaid coverage prior to having a waiver. However, the income and personal resources of an individual seeking waiver services
ARE considered in determining financial eligibility. Medicaid financial eligibility for individuals receiving waiver services is based on 300% of the Supplemental Security Income (SSI) maximum. As of January 2024, the SSI maximum income for a single individual is $943 per month, making Medicaid Waiver financial eligibility $2,829 per month.
In addition, for consideration for the CIH Waiver, the individual must also meet one of the following emergency criteria:
• Death of the primary caregiver with no other caregiver available
• Living with a primary caregiver aged 80 or older with no younger caregiver available
• Aging out of a residential placement through the Department of Child Services or Indiana Department of Education
• Extraordinary health and safety risk
• Moving from an institutional setting, including a nursing facility or group home
• Substantiated cases of abuse, neglect or exploitation
As of November 2023, the FSW has a capped annual budget for services at $26,482. The annual budget available under the CIH Waiver is based upon
factors such as the individual’s age, level of need and living situation.
FSW and CIH Service Examples:
• Extended Employment Services
• Behavior Management
• Participant Assistance and Care (FSW only)
• Respite
• Day Habilitation
• Adult Day Services
• Residential Habilitation (CIH only)
• Transportation
• Case Management
• Family and Caregiver Training
• Therapies, including Music and Recreation Therapy
Where do you apply for the FSW and CIH Waivers?
The BDS has created an online application portal called the BDS Gateway at bddsgateway.fssa.in.gov.
Priority status to receive the FSW Waiver is given to:
• Individuals aged 18 to 24 who have completed high school
• Adult and minor children of activeduty service members and veterans
• Individuals who no longer meet level of care on the H&W Waiver but do meet level of care on the FSW
Families and individuals can check the status of the FSW waiting list and keep information updated through the
State’s waiting list web portal at: in.gov/fssa/ddrs/informationfor-individuals-and-families/ bdds-waitlist-portal
If the date of application is not provided on the individual’s record, or if an individual or family does not have access to the internet, they should contact the BDS office at 800-545-7763.
Applicants should keep paperwork, including a copy of the original application and application date, in a safe place.
INDIANA MEDICAL MODEL
MEDICAID WAIVERS:
PathWays for Aging, H&W, and TBI Medical Model Waivers provide home and community-based services to Medicaid eligible persons who have a substantial physical or medical disability and would otherwise qualify for care in a Medicaid funded long term care facility. To be eligible for these waivers an individual must have substantial functional limitations in at least one skilled
H&W and PathWays Waiver Service Examples:
• Adult Day Services
• Assisted Living
• Attendant Care Homemaker
• Home-delivered Meals
• Respite
• Structured Family Caregiving
• Specialized Medical Equipment & Supplies
• Transportation
care need or three of the Activities of Daily Living, such as eating, dressing, mobility, toileting, etc.
The PathWays for Aging Waiver provides services to persons aged 60 and older. Managed Care Entities (MCEs) coordinate and approve medical care and waiver services for persons on the PathWays Waiver. The H&W Waiver provides services to persons aged 59 and younger. The TBI Waiver provides services to individuals of any age who have a diagnosis of traumatic brain injury.
Medicaid financial eligibility is based on 300% of the Supplemental Security Income (SSI) maximum. As of January 2024, the SSI maximum income is $943 per month, making Medicaid Waiver financial eligibility $2,829 per month.
The income and resources of an adult or child (under 18) receiving waiver services ARE considered in determining financial eligibility. Parental income and resources for children under 18 are NOT considered.
TBI Waiver Service Examples:
• Adult Day Services
• Assisted Living
• Attendant Care
• Behavior Management
• Residential-Based Habilitation
• Respite
• Structured Family Caregiving
• Supported Employment
Transportation
Where do you apply for the PathWays, H&W and TBI Waiver?
Apply at your local Area Agency on Aging (AAA). Call 800-986-3505 to be directed to the AAA in your area.
How long will you have to wait for services?
The length of time that you may have to wait is due in part to the availability of state and federal funds. However, you may want to apply even if you do not immediately need services. Applying is an important part of the process in planning for the future of your loved one.
For more information, consult this list of Indiana Medicaid Waiver Fact Sheets and Check Lists:
• FSW - fssa/ddrs/files/FSWBDS-Fact-Sheets-2024.pdf
• FSW - fssa/ddrs/files/ FSW_Checklist.pdf
• CIH - https://www.in.gov/ fssa/ddrs/files/CIHW-BDSFact-Sheets-2024.pdf
• PathWays for Agingmedicaidplanningassistance.org/ indiana-pathways-for-aging/
• H&W - in.gov/fssa/ddrs/files/BDSH-and-W-Fact-Sheet_2024.pdf
• TBI - in.gov/medicaid/members/ home-and-community-
based-services/traumaticbrain-injury-waiver.
What are the most pressing concerns about Indiana’s Medicaid Waiver system?
When the FSW replaced older waiver programs in 2012, waiting list times, which had historically been as long as a decade, began to decline significantly. But once again, as The Arc of Indiana’s Morris explained, the availability of new waiver slots is not keeping up with demand, and there is additional concern that the Family and Social Services Administration (FSSA) is not planning to fill some of the slots that are available.
The FSW, which serves individuals with IDD has a waiting list that is now 3 years long. These children and adults are missing out on critical therapies, behavior management, employment services, day services, and residential supports. Waiting lists for the Pathways Waiver and the H&W Waiver are 2.5 years long. The H&W Waiver supports some of the most medically complex and vulnerable Hoosiers under age 59. These are individuals with complex medical needs who may have rare diseases, live with ventilators, feeding tubes, mobility assistance devices, and require 24-hour care.
The Arc of Indiana’s Executive Director Kim Dodson explain the concerns and a position piece published in the Indiana capital Chronicle in July 2024.
Nearly overnight, the state is back to where it was almost 30 years ago with over 20,000 people on Medicaid Waiver waiting lists. How did we get here? Over the last two decades considerable progress has been made
in Indiana’s support system for people with disabilities, progress that other states admired and tried to model. Progress has eroded quickly over the last 9 months. State leaders need to get a handle on this as soon as possible. Medicaid waiver programs for people with IDD and physical disabilities are critical to keeping them out of institutions and with their families, or, for adults, living more independently. Waiver programs greatly enhance quality of life at a far lower cost than the alternative.
Our state officials should make every effort to maximize home and community-based waivers and ensure they offer a broad array of services. Indiana should not be proud of the fact that we are going back in time to the days of thousands of people on waiting lists to get the help they need and qualify for now.
Aggravating the situation is a serious budget shortfall. In December of 2023, the State of Indiana announced that it had overspent its Medicaid budget by one billion dollars. This particularly impacts families now served by the H&W Waiver. COVID was in part blamed for the shortfall. Because of the lack of home health care and other HCBS services during COVID the
state declared a Public Health Emergency (PHE) and allowed Legally Responsible Individuals, (typically parents of minor children, and spouses) to be paid to provide attendant care for their family member with a disability. The PHE ended on May 11, 2023, and most of the flexibilities were scheduled to end on November 11, 2023.
However, in a memo dated May 10, 2023, the Family and Social Services Administration (FSSA) stated, “some waivers used pandemic emergency authorities to allow additional flexibilities (special, short-term service allowances) for parents and legal guardians to be paid for care and support provided to a minor, dependent. At this time, the end of the federal PHE will not affect parents of minor dependents acting as paid caregivers on the Aged and Disabled and Traumatic Brain Injury Waivers.”
After the budget shortfall was discovered, however, the state reversed itself: Parents of minors on the A&D and TBI Waiver would no longer be paid to provide attendant care. Parents of adult children were not affected, but their services were strictly capped at a certain number of hours.
As Dodson further expounded: Last December the State announced that Medicaid was overspent by nearly $1 billion, partly due to the lack of oversight of the Division of Aging. The Division was working outside the scope of the A&D Waiver as approved by the Centers on Medicaid and Medicare Services (CMS). Rather than taking a thoughtful, well-planned approach, the state instead blamed families and made changes that will impact the lives of people with complex medical needs, lives that are already difficult and often too short.
The decision to not allow legally responsible individuals to provide attendant care services is disrupting the lives of many on the H&W and PathWays Waivers. Families were given the choice to either find often nonexistent alternative attendant care providers or continue to provide care through a service not equipped to address those with complex medical needs.
As the transition to new services began on July 1, many families already living in a stressful situation found providers were not ready and did not have critical services in place. Some families are still waiting on transition plans and formal notices from their case managers.
Additional information on changes made to Indiana’s Medicaid Waivers is available on this fact sheet developed by The Arc of Indiana: arcind.org/news/changes-tomedicaid-waiver-fact-sheets
NOTE! An Important Amendment to this story:
On September 18, 2024, investigative Indianapolis Star reporters, Tony Cook and Kayla Dwyer, uncovered a very upsetting finding regarding the Indiana Medicaid budget shortfall. Find the full article here: https://www.indystar.com/story/ news/investigations/2024/09/18/ lawsuit-state-medicaid-programoverbilled-by-as-much-as-700million/75278870007/
“Whistleblowers: Indiana Medicaid overpaid up to $700M amid lobbying, political pressure”
A summary of the article is found in the first two paragraphs of the article.
A federal whistleblower lawsuit accuses insurance companies and hospitals of defrauding Indiana’s Medicaid program of up to $700 million—money that could have helped prevent a $1 billion shortfall that prompted state officials to cut services.
The alleged overpayments were first flagged by the state’s fraud detection contractor, but the lawsuit claims industry-friendly officials in the state’s Medicaid office bowed to political pressure and in 2017 began curtailing efforts to recoup the improper payments. The lawsuit identifies as much as $724 million in suspected fraud, but acknowledges there could be duplications in the claims data or other factors that would reduce the potential losses to the state.
WHAT CAN I DO?
• If you think you or your loved one qualifies for a Medicaid Waiver, apply.
• If you are currently on a Medicaid Waiver waiting list, make sure BDS or your local AAA always has your correct address, phone number and email.
• You can check your status on the FSW waiting list and keep your information updated through the state’s waiting list web portal at:
• in.gov/fssa/ddrs/informationfor-individuals-and-families/ bdds-waitlist-portal
• If your date of application is not provided on your record, or if you do not have access to the internet, contact your local BDS office by calling 800-545-7763.
• Keep information up to date for the Medical Model (PathWays for Aging, H&W and TBI) Waivers by contacting your local Area Agency on Aging (AAA). Call 800-986-3505 to be directed to the AAA in your area.
• Remember, there is no waiting list for the CIH Waiver as it is an “emergency waiver.”
• Follow updates on the FSSA, OMPP, and The Arc Indiana websites and on social media. Attend in-person or virtual Town Halls or webinars sponsored by The Arc of Indiana or BDS so your concerns can be heard.
• The Indiana General Assembly makes decisions about Indiana’s Medicaid Waiver programs. Communicate with your state legislators and let them know how changes to waivers impact your loved one and family. Find your state legislators here: iga. in.gov/information/find-legislators
• Join social media groups where families are sharing resources, information, and can pose questions in a safe space.
• Call The Arc of Indiana at 317-9772375 and ask to speak with a family advocate if you need assistance. This webpage has links to information, including past webinars, explaining everything from Medicaid Waivers to social security to guardianship and much more. arcind.org/ourprograms/the-arc-advocacy-network/
GLOSSARY OF TERMS
• AAA—Area on Aging Agency
• A&D Waiver—Aged and Disabled Waiver
• BDS—Bureau of Disabilities
• BDDS—Bureau of Developmental Disabilities
• CIH—Community Integration and Habilitation Waiver
• DDRS—Division of Disability and Rehabilitative Services.
• FSSA—Family Social Services Administration
• FSW—Family Supports Waiver
• H&W Waiver—Health and Wellness Waiver
• HCBS Waivers—Home and Community Based Serves Waivers
• ICF/MR—Immediate Care Facility/Mental Retardation
• OMPP— Office of Medicaid and Planning
• TBI Waiver—Traumatic Brain Injury Waiver
WORKS CITED
• American Council on Aging. (2024). Indiana Medicaid’s planning for aging: Availability, benefits, and eligibility. American Council on Aging. medicaidplanningassistance. org/indiana-pathways-for-aging/
• The Arc of Indiana. (2024). 2024 Medicaid and Medicaid waiver changes. arcind.org/medicaid-waiver-updates/
• The Arc of Indiana. (2024). Changes to Indiana Medicaid waiver fact sheets. arcind.org/news/changes-tomedicaid-waiver-fact-sheets/
• Dodson, K. (2024, July 29). Waiver changes bring frustrating summer to Indiana families. Capitol Chronicle. indianacapitalchronicle.com/2024/07/29/waiverchanges-bring-frustrating-summer-to-indiana-families/
• Downard, W. (2024, Sept.3). Federal judge rules FSSA must provide modified relief for families in attendant care lawsuit. Document 54. Capitol Chronicle. https:// indianacapitalchronicle.com/2024/09/03/federal-judgerules-fssa-must-provide-modified-relief-for-families-inattendant-care-lawsuit/
• Family Support Services Administration (FSSA). (2024). CIH and FSW fact sheets. FSSA Disability Services. in.gov/ fssa/ddrs/developmental-disability-services/
• Family and Support Services Administration (FSSA). 2024. Health&Wellness waiver fact sheet. FSSA Bureau of Disability Services. in.gov/fssa/ddrs/files/BDS-H-and-WFact-Sheet_2024.pdf
• Family and Support Services Administration (FSSA). (2023, May 10). Memo: Home and community-based services waivers: Paid parent caregivers of minor dependents and the end of public health emergency FAQ. PDF, 1-4.
• Indiana Medicaid for Members. (2024). Traumatic brain injury waiver. In.gov. in.gov/medicaid/members/ home-and-community-based-services/traumatic-braininjury-waiver/
• Wheeler, M. (2021). Indiana’s Medicaid waiver programs: Home and community-based services for adults and children. Indiana Institute on Disability. iidc.indiana.edu/irca/articles/medicaid-waiver-programshome-and-community-based-services-for-adults-andchildren.html#:~:text=The%20waiver%20program%20 %22waives%22%20the,other%20needed%20 supports%20and%20services
• Cook, T. & Dwyer, K. (2024, Sept. 18). Whistleblowers: Indiana medicaid overpaid up to $700M amid lobbying, political pressure. Indianapolis Star. https://www.indystar. com/story/news/investigations/2024/09/18/lawsuitstate-medicaid-program-overbilled-by-as-much-as-700million/75278870007/
The Adoption Journey
BY CHRISTINA MCGAIRK
Andrea Mae of Muncie, Indiana, is an extraordinary woman whose story is a testament to the fact that families come in all shapes, sizes, and abilities. As we celebrate World Adoption Month, Andrea’s journey through adoption, parenthood, and ultimately divorce, serves as a powerful narrative of love, strength, and new beginnings.
Andrea’s journey into motherhood began with the adoption of her oldest daughter, Abigail. At the time, Andrea and her husband decided to adopt their first child
after several years of trying to get pregnant. They later adopted Shilo when Abigail was 3. Both were born with exceptional needs.
Andrea knew she wanted to adopt children as long as she could remember, “I’ve always been interested in adoption, especially kids with disabilities because they were less likely to be adopted and more likely to be abused in the foster care system.”
Abigail was diagnosed with neurofibromatosis type 1 when she was 9 months old. This led
to having a tumor removed from her leg. She also has a tumor in her optic nerve that is monitored but has never needed any sort of treatment. According to the Mayo Clinic website neurofibromatosis type 1, also known as NF1, is a genetic disorder that can cause skin pigment changes and tumors in the nervous system. NF1 is also linked to learning disorders, ADHD, and speech delays.
Shilo, who was adopted through the National Down Syndrome Adoption Network, was born with
Spring break, March of 2021. Hiking trip to Sarasota.
heart defects, epilepsy, and hypothyroidism, all of which are associated with Down syndrome. She had her first heart surgery shortly after birth and her second at 3 months old after contracting a virus. She is g-tube fed and uses a wheelchair to get around.
Then came Asher, Andrea’s biological child, who was born 10 years into her marriage. Andrea developed preeclampsia during her pregnancy, and Asher was born at 36 weeks, weighing 3 pounds 13 ounces. He had a string of birth defects, including congenital scoliosis and a tethered spinal cord. Recently he had a brain tumor removed from his cerebellum. “His tumor didn’t metastasize,” said Andrea. “The surgery was curative with no chemo or radiation needed.”
Despite his health challenges, Asher was the perfect little addition to their family. However, Andrea’s marriage took an unexpected turn that led to divorce after 16 years of marriage. “It’s been a struggle as a single parent now balancing appointments and a job, but I think we’re getting there most days,” she said.
Andrea has found strength in her children, who have distinct personalities.
Abigail, 16, is a kind and funny teen who believes in fighting the injustices of the world. She also loves horror movies and wants to be a forensic scientist. Shilo, 12, is a spicy preteen who has a smile that brightens up the room. Asher, 9, is a fierce protector of those he loves, especially his sister Shilo. He loves coding and gaming and wants to be a video game creator when he grows up.
Andrea’s faith has also strengthened since the divorce
and her church family at Urban Light Community Church has been a huge support in her life. She serves on the church board and is involved in special education and disability advocacy. Part of her advocacy included co-authoring a book with Jody Michele and Pastor Andrew T. Draper entitled “Disabling Leadership: A Practical Theology of the Broken Body of Christ.”
Andrea has been working as a special education instructional aide, but after she graduates from Ball State University in December, she will be an intensive intervention special education teacher. We asked her a few pertinent questions about adoption.
1.) How has adoption changed you as a person and as a parent? It has pushed me to really think about what being selfless means. Pushing my feelings aside and not making it about me. Parenting [these children] made me realize how important biological connections to our families are. It’s the natural order of things and what we need.
2.) What strategies have you found effective in helping your adopted children feel secure and loved?
I think that’s one of the biggest things about adoption. You have to go into it knowing that love doesn’t fix things. Adoption is trauma because they don’t get to experience being raised by their family. You have to sit in their pain. It’s painful because it’s not the way the world is supposed to work. We’ve been intentional by reading books by adoptees, joining adoptee Facebook groups,
approaching it from the source. Abigail wants to learn more about the civil rights movement. I will probably find books by black writers because it makes it more personal for her. I think that’s important.
3.) What do you wish more people understood about adoption?
That it should be a last resort. You’re spending $30,000 to adopt when that money should be spent to help the biological parent raise their child. Don’t get me wrong, I’m glad I’m their mom, but it’s at the expense of their pain and I wish it wasn’t like that.
4.) If you could dispel one myth about adoption, what would it be?
It’s two-fold. The first is that those who are adopted as infants don’t experience trauma, and the second is that love is enough to fix the trauma. Both of those are myths that hurt everyone in the adoption triad. Being in a home where they are loved just isn’t going to make that trauma go away.
5.) How do you plan to continue supporting adoption awareness and advocacy in your community? When people come up to me and ask about adoption, I try to be a bit raw and honest. I let them know it’s not an easy path, especially if you go into it just because you want to be a parent. I share books that have important information from birth moms. I share more of the hard things now about adoption in general because that wasn’t readily available when we went through the adoption process. For instance, I focus more on how to walk through adopted children’s trauma with them.
Andrea Mae of Muncie, Indiana, is an extraordinary woman whose story is a testament to the fact that families come in all shapes, sizes, and abilities.
RAISING YOUNG MEN OF FAITH
BY PAUL HATHCOAT
The importance of male leadership in the lives of young men cannot be overstated, especially in families where disabilities are part of daily life. Fathers, grandfathers, uncles, and mentors can shape young boys, teaching them not only how to be men but how to be *godly* men. For families raising children with disabilities, the call to lead by example and model a life of Christian faith is essential. Men are called to guide with humility, patience, and quiet strength rooted in Scripture. Let’s look at this concept, from a pastor’s perspective.
The Father’s Influence: A Reflection of God’s Love
As a father or mentor, your influence on a young man’s life is invaluable. You reflect God’s love and guidance. Just as God is a patient and loving Father, you can show that fatherly love in your relationship with your son, nephew, or mentee. For boys with disabilities, who face challenges others may not fully understand, your role becomes even more significant. You are not just a provider or protector but a source of spiritual direction and encouragement.
The Bible speaks clearly about a father’s role: “Fathers, do not provoke your children to anger, but bring them up in the discipline and instruction of the Lord.”* (Ephesians 6:4, ESV)
A father’s responsibility is not only to correct but to nurture. Whether through challenges related to their disability or the daily struggles of growing up, your calm and patient leadership provides a foundation of strength and security. The consistency of your faith will be a guiding light for your son.
Leading by Example with Humility and Strength
For boys to grow into men who honor God, they need to see
examples of what that looks like. It’s not about being the loudest voice but about leading with humility, showing strength through discipline, and remaining patient through life’s challenges. One of the greatest examples of quiet strength is found in Jesus Himself. Throughout the Gospels, Jesus is depicted as strong yet humble, powerful yet meek. He led by serving others, showing compassion, and teaching with patience. As men of faith, fathers and mentors are called to reflect this Christ-like example in their daily lives.
“Let your light so shine before men, that they may see your good works and glorify your Father in heaven.”* (Matthew 5:16)
Your light shines brightest when you embody the fruits of the Spirit— love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self-control (Galatians 5:22-23). For young men with disabilities, who may experience frustration or self-doubt, your example of faith through patience and quiet strength will speak volumes. They will see that true strength lies not in overpowering others but in serving and trusting God.
The Power of Scripture and Spiritual Discipline
For any young man, especially one navigating life with a disability, knowing God’s Word is essential. Fathers and mentors must take the lead in ensuring that the young men in their care not only hear the Word but understand it. Daily prayer, Bible study, and memorization of Scripture are disciplines that will equip boys with the spiritual armor they need to face life’s challenges. *“Train up a child in the way he should go, and when he is old, he will not depart from it.”* (Proverbs 22:6)
This training is not just about telling them what the Bible says but showing them how to live it out. When your son sees you turn to Scripture for guidance, he learns to do the same. When he watches you patiently handle difficulties with grace, he understands that faith is not just a belief but a way of living.
A Special Call to Dads of Children with Disabilities
To the dads and mentors of children with disabilities, know that your role is sacred. The challenges your family faces may be unique, but so is the grace God has given you to lead your child. You may feel overwhelmed at times but remember that God’s strength is made perfect in our weakness (2 Corinthians 12:9). Your faithfulness is a testimony not just to your family but to those around you.
Be encouraged! Your work as a father or mentor is a high calling, and God sees your heart. Your commitment to your child’s spiritual and emotional well-being is planting seeds of faith that will grow over time. Trust that God will equip you with the wisdom, strength, and patience you need for this journey.
“But those who wait on the Lord shall renew their strength; they shall mount up with wings like eagles, they shall run and not be weary, they shall walk and not faint.”* (Isaiah 40:31)
As you guide your son or loved ones, may you be renewed in strength and hope, knowing that God is with you every step of the way. Your role is immeasurable, and through your leadership, you are raising a generation of men who will walk in faith, live with integrity, and lead with humility. Keep pressing on—you are making a difference. Blessings!
Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat at phathcoat@wrcc.org.
LOCAL EVENTS
BY CHRISTIA WOODFORD — PUBLISHING ASSISTANT AND LOCAL EVENTS
Note: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. You qualify if you receive:
• Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women and children)
• SNAP (Supplemental Nutrition Assistance Program)
• TANF (Temporary Assistance for Needy Families)
• Apply here: https://www. childrensmuseum.org/visit/ hours/access-pass.
MUSEUMS
The Children’s Museum of Indianapolis Santa’s WinterFaire Welcome Nov. 29, 9:30 am Santa’s journey brings him to our newest experience, WinterFaire. Join us for a welcome party that will be
sure to get your toes tapping and bring a sparkle to your holiday season.
• Kick off the season in style with a special WinterFaire dance party
• Cheer for Blue, the Indianapolis Colts mascot, as he enjoys a ride on the WinterSlide
• Receive an Indianapolis Colts scarf, while supplies last
• Celebrate with Santa when he takes his first WinterSlide ride of the season!
For tickets and information: https://www.childrensmuseum. org/visit/calendar/ event/562/11-29-2024/09_30
Museum My Way, An adaptive museum experience
Dec. 10, 4:00 pm-7:00 pm
Capacity limited. Registration required. This special event is an opportunity for visitors with disabilities and/or sensory sensitivities to experience the museum in a new way. Families and groups of all abilities are welcome to play and learn together! Sensory
modifications to the museum environment include:Limited capacity. Quiet area with sensory items. Some music is turned down or off. Edited lighting effects in some areas
Members: Free, Nonmembers: $6 per person/Access Pass: $2 per person. For tickets:. https://www.childrensmuseum. org/visit/calendar/event/464
First Thursday Night- First Thursday every month Nov. 7, 4:00 pm
On the first Thursday of every month, we open our doors from 4–8 p.m. for just $6 admission per person! Why should you visit?
Admission is just $6 per person for the entire museum. That’s a savings of more than 75% per ticket! It’s the ONLY time the museum is open to the public in the evening, so it’s a perfect afterhours night for your family.
It’s not as crowded as you might think! We have limited capacity on First Thursday Nights. Parking is always free!
Our Food Court is open, so you can grab a quick and easy dinner for the whole family. Low cost. Low crowds. Late night play! https://www.childrensmuseum. org/visit/calendar/event/273
Various Events
Nov. 1- Nov.30, Opens at 10 AM 3000 N. Meridian St., Indianapolis, IN 46208, 317-334-4000 https://www.childrensmuseum.org
Conner Prairie — Indiana’s Living History Museum
Not A Twinkle Out Of Place
Nov. 29 & 30, Dec. 6 through 22 5:30 pm-9:30 pm 13400 Allisonville Road, Fishers, IN 46038
Join us for Central Indiana’s most beloved holiday festival and make the season magical at A Merry Prairie Holiday. Surround yourself amongst thousands of lights and celebrate the holidays in Prairietown with Historic Holidays. Capture picture-perfect moments all around as you celebrate the season. Get updates about the festival by texting MERRY to 317-779-3330
For more information: https://www. connerprairie.org/explore/thingsto-do/merry-prairie-holiday/
Sensory-Friendly Hours
The second Sunday of every month, from 10 AM to noon, are sensoryfriendly hours at Conner Prairie! Enjoy a calm environment
Check-in with Guest Relations, stating that you are here for sensoryfriendly hours. You will get free admission and may stay as long as you wish.
Various events
Nov. 1- Nov. 30, 10:00 am- 10:00 pm
Phone: 317-776-6000 or 800-966-1836 https://www. connerprairie.org/events/list
Indiana State Museum
Sensory Friendly Afternoon
Check website for dates in November 650 W. Washington St., Indianapolis, IN 46204
Experience the Indiana State Museum in a sensory-friendly way! Each month, we’ll lower the lights and reduce distractions to give children and adults
with sensory processing differences a chance to enjoy an interactive learning experience in a comfortable and accepting environment. Social narratives will be available at the ticket counter and sensory–based activities will be spaced throughout the museum. Plus, check out a Sensory Bag to make your experience even more enjoyable. Check calendar for dates https:// www.indianamuseum.org/calendar/
Various events
Nov. 1- Nov. 30 check website for events and times. https://www.indianamuseum. org/calendar/
SPORTS
Indianapolis Colts
Nov. 10 Buffalo Bills, Nov. 24 Detroit Lions
Lucas Oil Stadium, 500 S Capitol Ave, Indianapolis, IN 46225 https://www.colts.com/
FAMILY FUN
Indianapolis Zoo Christimas At The Zoo Nov. 23- Jan. 5, 2025, 5:00 pm- 10:00 pm
A light sprinkling of snow and the glow of twinkling lights will fill the sky, creating a magical nighttime experience that has become one of Central Indiana’s most beloved holiday traditions.
Dating back to 1967, the Indianapolis Zoo was the first zoo in the nation to hold a lights event. year and year, Christmas at the Zoo continues to grow. For our 57th year, we’re adding beautiful new decor and experiences, to enhance your next holiday trip to the Zoo. And the best part is it’s all included with regular admission! Be sure to visit Santa’s Village! https://www.indianapoliszoo.com/ zoo-events/christmas-at-the-zoo/
Various events scheduled daily
Nov. 1- Nov. 30, 9:00 am- 4:00 pm 1200 West Washington St. Indianapolis, IN 46222
https://www.indianapoliszoo.com/
Sensory Friendly Play at Urban Air
Noblesville Nov. 3, 9:00 am- 11:00 am 14450 Mundy Dr, Noblesville, IN 46060 Urban Air’s Sensory Friendly Play day is typically held on the first Sunday
of the month. Check the Noblesville calendar for the latest info. https:// calendar.google.com/calendar/u/0/ embed?src=hi8j9brk94jgnc7 1kmslc13js8@group.calendar.google.com
CHRISTMAS NIGHTS OF LIGHTS
Nov. 8- Dec. 31, Indiana State Fair Grounds Entrance Gate 12, 42 Street, Indianapolis, In The Indiana State Fairgrounds once again hosts Christmas Nights of Lights, Indianapolis’ largest drive thru light show synchronized to music broadcasting through your car radio! Online Reservations Are Required No cash or credit will be accepted at the ticket booth. With the new reservation system, wait times should be under an hour.
TICKET EXCHANGES
With limited tickets available each night, there are NO REFUNDS. Exchanges for a different night or time slot based on availability. Exchanges can only be made 5 days prior your original ticket date. To exchange your tickets, please call 317-593-4046. To register: https://www.indianastatefair. com/events/2024/christmasnights-of-lights22
Sensory Friendly Movie Night
Nov. 11, 5:00 pm-7:00 pm 3900 Hursh Rd, Fort Wayne, IN 46845 Sensory Friendly Movie Night is coming up on March 19th. The movie starts at 5:30 pm and doors open at 5:00 pm for concessions. The event is $5/ person at the door or $20/family. to register: https://www.facebook. com/photo/fbid=802505455228 974&set=a.231153492364176
ACC Breakfast With Santa: Registration opens in November Dec. 21, 9:00 am- 11:00 am New Hope Church, 5307 W. Fairview Rd. Greenwood, IN
Our annual Breakfast with Santa will have a delicious breakfast, “reindeer” games, holiday crafts, carriage rides, and a chance to meet with Santa Claus! Breakfast with Santa is for families affected by autism. Lots of fun for all ages and everyone in the family to enjoy.
Registration is required to attend Breakfast with Santa and will cost $10 per family. Our carriage rides are limited and will be first come, first served basis. We will email your scheduled time for the carriage ride before the event. Up to six attendees can ride in a carriage at a time. If you have any questions contact Kelli Higgins, Executive Director at k.higgins@ autismcc-in.org. to register: https:// autismcc-in.org/breakfast-with-santa/
AMC Theatres
Check website for location, date and times
AMC is proud to partner with the Autism Society to offer unique movie showings where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing! Our Sensory Friendly Film program is available on the second and fourth Saturday (familyfriendly) and Wednesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes, and don’t forget to share your family fun with #AMCSensoryFriendly. https://www.amctheatres.com/ programs/sensory-friendly-films
THE ARTS
Adaptive Dance
Nov. 7, 5:00 pm- 6:00 pm Every first Thursday through May 2025 the Arc of Hancock County, 8535 N Clearview Dr, McCordsville, IN 46055
We are proud to announce that we received a mini-grant from the Community Foundation of Hancock County to turn our Adaptive Dance (Body Rock) classes from March and April into a regular monthly program. These classes will be held at Hancock Wellness Center - McCordsville in the Community Room every first Thursday of the month from August 2024 through May 2025 from 5:006:00pm. This class is free, but you must be registered. Parents of participants under 18 years old must be present. We cannot wait to see you there! Please use the link to register: https:// arcofhcadaptivedance.eventbrite.com
Sensory-Friendly Performance of The True Story of the Three Little Pigs!
Nov. 10, 4:00 pm- 5:00 pm
122 S Walnut St, Bloomington, IN 47404
A musical “tail” that will bring the house down
There are two sides to every story, and when the Big Bad Wolf takes the stand in Piggsylvania’s Trial of the Century, he finally gets his say. But whether he’ll get a fair trial in a corrupt piggy court is anyone’s guess. Will the pigs’ splashy show make a puppet out of justice, or is the wolf’s song and dance about a sneeze gone wrong all razzle-dazzle?
Enter the jury box and help decide the fate of Big ‘n’ Bad in this musical adaptation of the hit children’s book. Fun for all ages! https://seeconstellation.org/
Adaptive Ballet Series
Jan. 6, 13, 27, Feb. 3, 10, 24 4:00 pm- 4:50 pm Winter Session
4055 Roy Wilson Wy, New Palestine, IN 46163
Come join us for a fun and inclusive ballet class tailored for all abilities! Whether you’re a seasoned dancer or just starting out, this class is designed to accommodate everyone. This program is designed for individuals with disabilities of all ages. No experience necessary, just bring your enthusiasm and willingness to learn. Parents and guardians must stay for participants under 18 years of age. For more information: https://www.eventbrite.com/e/ adaptive-ballet-winter-session-tickets916528640837?aff=ebdsoporgprofile
Beef and Boards
Fiddler on the Roof Oct. 10- Nov. 24
A Christmas Story: The Musical Nov. 29- Jan. 4, 2025 9301 Michigan Rd, Indianapolis, IN 46268 https://beefandboards.com/ Online/default.asp
Jubilate Choir
Butler University, Lilly Hall, Room 133 Wednesdays, 6:45-7:30 PM
The Jubilate Choir is for singers with special needs in grades 3-9. Singers with varying abilities meet each week to grow musically. This tuition-free choir focuses on proper singing techniques, music theory
and sight-reading, part-singing, and social skills involved in being a member of a musical ensemble. Though Jubilate has, at its core, the same goals as other choirs in the Indianapolis Children’s Choir (ICC), singers in Jubilate engage in additional activities like visual and tactile experiences that are catered specifically to the current members of the choir. Director: Lauren Southard For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir. org. https://icchoir.org/special-needs/
Gigi’s Playhouse
Various classes during the week. 5909 E. 86th St., Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org https://gigisplayhouse.org/ indianapolis/sfcalendar/
EVENTS
Uniquely You! Fundracing! Nov. 2, all day, starting at 9:00 am Indy Cycloplex, 3649 Cold Spring Road, Indianapolis, IN On Saturday, October 19, 2024, get behind the wheel of a state-of-theart, lithium-ion battery powered Top Kart racing kart and let it rip. In this adrenaline-pumping, time trial event, compete against friends, family and co-workers for top honors while raising funds to help Uniquely You (formerly Special Needs Living) inform more Indianapolis area families about resources to meet their special needs. Choose from one of four racing sessions throughout the day. Individual registration is $50 with an additional $200 minimum fundraising obligation, or you can just pay $250. A 3-person company racing team can register to compete against other teams for a single, team entry fee of $700. Participation takes about an hour and a half. Follow results in real time on your smart phone, all day long.
It’s a blast! So come on out and put the pedal to the metal, all for a good cause
To register and additional information: https://events.bemilesahead.net/ event/uy1
Fall Inspiring Abilities Expo with FUSE
Nov. 2, 9:00 am- 1:00 pm
401 W Meridian School Rd, Indianapolis, IN
Register today for the 2024 Fall Inspiring Abilities Expo! The expo offers families and professionals a great opportunity to network with organizations and service providers who meet the unique needs of individuals with disabilities. Visit the exhibit hall to meet and talk with therapy and service providers, nonprofit organizations, advocacy groups, recreation programs and other agencies serving adults and children with disabilities. https://www.fuseinc.org/
Richmond Disability Resource Fair 2024
Nov. 2, 11:00 am- 2:00 pm
Ivy Tech Community College, 2357 Chester Blvd, Richmond, IN Connections Case Management, Self-Advocates of Indiana and Ivy Tech Community College present the 2rd Annual Richmond Disability Resource Fair. This resource fair will provide information about community resources and services for individuals
disabilities and their families. Exhibitors will talk about the services and resources to assist individuals and families. There will be interactive areas, raffles, and food vendors. To be a vendor please reach out to info@connections-in. com for more information.
https://www.arcind.org/events/ list/?tribe-bar-date=2024-11-01
Lafayette Disability Resource Fair
Nov. 9, 11:00 am- 2:00 pm
Ivy Tech Community College Lafayette, 3101 S Creasy Ln, Lafayette, IN
The Arc Advocacy Network, a program of the Arc of Indiana, will have information about Medicaid Waivers, Vocational Rehabilitation Services, guardianship and alternatives, Special Needs Trusts, the Erskine Green Training Institute, and a variety of other topics available for families and self-advocates.
https://www.arcind.org/event/ lafayette-disability-resource-fair/
Ask The Arc Webinars
Nov. 14, 6:00 pm- 7:00 pm
Ask The Arc webinars provide information and discussion on timely topics relevant to people with intellectual
and developmental disabilities, their families, and their support systems. Webinars take place on the 2nd Thursday of the month at 6:00 p.m. EST. Past webinars are recorded and posted on our YouTube channel and on The Arc of Indiana Academy. Registration is for the complete webinar series. You can pick and choose which ones you want to attend without having to register each time. Click here to register https:// www.arcind.org/event/ask-thearc-webinars-2/2024-06-13/
2024 Bartholomew County Transition Fair
Nov. 15, 9:00 am- 1:00 pm
The Columbus Learning Center 4555 Central Ave, Columbus, IN
The Arc Advocacy Network, a program of the Arc of Indiana, will have information about Medicaid Waivers, Vocational Rehabilitation Services, guardianship and alternatives, Special Needs Trusts, the Erskine Green Training Institute, and a variety of other topics available for families and self-advocates. https:// www.arcind.org/event/2024bartholomew-county-transition-fair/
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
BED WETTING DEVICE
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Not everyone processes their surroundings the same way. This can cause overwhelming situations for some individuals. Our team at Specialized Home Care Services is here to help you find the right solutions.
The air you breathe within your home can have a great impact on your overall health. Indoor pollutants and air particles can have an influence on the condition of your lungs and respiratory function. Adding an air purifier to your home can reduce the particles and improve the air quality. Although air purifiers don’t necessarily remove all particles from your residence, they can reduce the amount of potential allergens and harmful particles in the air. The biggest benefit of this is creating a cleaner environment and improving your respiratory health.
Contact us today
Our team at Specialized Home Care Services carries a great selection of air purification systems.
(888) 506-4182 | specialized4u.com
621 N Central Ave, Connersville, IN 47331 specializedhomecareservices@gmail.com.
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Does your child have accidents at night? About 20 percent of children continue to have bedwetting episodes past the age of five due to genetics, slower physical development, an overactive bladder, and other factors. Bedwetting alarm systems can help keep kids dry at night by teaching them to change their nocturnal behavior without causing discomfort. Indiana Medicaid Waivers can cover this item if it can help provide independence with toileting needs. If you have a child that may benefit from this device, we can help you utilize your waiver funding to cover the costs! Ruth Roberts at Specialized Home Care Services
621 N Central Ave Connersville, IN 47331 ruth@specialized4u.com (317)-348-0708 Mobile (317)-348-0708 Fax
Tangram Early Intervention
Autism
Services
Now Enrolling, No Wait List!
Ignite your child's imagination and nurture their potential at the Connie J. Dillman Center for Autism and Behavioral Health at Tangram! Our ABA therapy and clinical diagnostic testing services are now accepting new enrollments!
At Tangram, we are dedicated to providing comprehensive support to both children and their families, fostering growth and development every step of the way! Tangram offers Assent-Based Applied Behavioral Analysis services. The Connie J. Dillman Center for Autism and Behavioral Health is committed to providing individualized evidence-based practices focusing on self-advocacy and naturalistic instruction. Now offering ABA services in the following settings: in home, at school, in center or in the community! Contact us today to arrange a consultation and discover how our ABA services program can benefit your family. Let's create a brighter future together!
To learn more, visit thetangramway.org, call 317-571-1042, or email behavioralhealth@thetangramway.org.
Now Enrolling Ages 2 to 10
