THINK PINK
Breast cancer info from detection to treatment and beyond; celebrating survivors and women’s health professionals; fresh fall fashion; GCKH Brunch & Bubbles; fall in love with Lisbon
ALSO INSIDE
• GNO at Aragon Market + Wine Bar
• New book celebrates Pensacola Beach
from the editor
I’ve had an ongoing conversation with one of my best friends this year. It started like this:
ME: Did you call yet?
HER: Not yet.
ME: CALL!
And then it progressed to:
ME: Did you call yet?
HER: I tried, but I couldn’t get through.
ME: Try again!
And then, finally:
ME: Did you call yet?
HER: YESSSS! (Annoyed.) But they can’t fit me in until October.
So now it’s October, and one of my favorite people on the planet is finally going to get her Pap and her mammogram and all the things. It’s been years since she’s done this. I’ve known so many women who’ve had close calls and head-on crashes with their health lately that it scares me. I want to shout the news to the universe, no matter how annoying it makes me.
I’m a tester. I go to every annual appointment and do all the tests and follow all the doctors’ orders. But I’ve learned that so many of the women I hold dear don’t do that. I get it. We’re busy. We’re fine. There can’t possibly be anything wrong. Or maybe it’s that, deep down, we’re afraid there actually IS something wrong and we don’t want to know. And then we worry about paying for the visits, the tests and any potential treatments. Ugh.
But listen, according to the American Cancer Society, about 13% of women will be diagnosed with breast cancer in their lifetimes. That’s one in eight. When you’re in a group of eight female friends, family or coworkers, there’s a likelihood one of you falls into that statistic. But the great news is that medical science has progressed so much, so fast, that early diagnosis and treatment mean that a huge percentage (over 97%) of those women will survive.
Our aim with this issue it to show you incredible women who have made it to the other side of a cancer diagnosis, to give you information and an idea of the resources available if you or a loved one are faced with breast cancer or another women’s health issue, and, as always, to uplift and inspire the women of our community.
So, DID YOU CALL YET?
— Lisa Player
/ Kelly MacLeod EDITOR / Lisa Player
ART DIRECTOR / Elizabeth Meyer
CONTRIBUTING WRITERS
Liz Biggs, Sharla Gorder, Allison McCrory, Chelsea Owens, Leslie Peck, Lisa Player, Justine Williams Roper, Leah Seacrest, Magi Thomley Williams
CONTRIBUTING PHOTOGRAPHERS
Toni Sparks, Kate Treick
ADVERTISING
Jennifer Harrison, Magi Thomley Williams
staff
Liz Biggs, writer/columnist
Liz Biggs is a Pensacola native and mother of four. Once upon a time, she had a high-pressure career, but now she has a pension and is a freelance writer for Bella Magazine. Liz enjoys music, dancing, tennis and travel and tries to find humor in everything.
Alice Crann Good, writer
Award-winning writer Alice Crann Good spent 20 years with USA TODAY and Pensacola News Journal; accolades include the Scripps Howard Foundation National Journalism Award. She was also a state college PR specialist and is author of Betsy the Bookworm children’s book series.
Sharla Gorder, writer/columnist
Sharla Dawn Gorder is a Pensacola Beach resident and columnist for the Island Times newspaper. She is the author of “My Vices Collide; a Celebration of Being a Little Messed Up,” and is currently working on her next book, entitled “Crayon Dawn,” due out in October 2024.
Jennifer Harrison, advertising
Jennifer Harrison is a Pensacola native (via the Navy). She is very involved in the Pensacola community through IMPACT 100, Pensacola Navy Days, Food Distributions for Representative Salzman, Leadership Pensacola, ECPS Foundation, Achieve Escambia, ECCPTA and more. Making an impact is what drives her to do more.
Allison McCrory, writer/fashion stylist
Allison McCrory is almost a Pensacola native who has worked in writing and editing since 1984 when she started with The News, an afternoon newspaper that later merged with the morning Journal. The mom of two adult kids, Allison suffers from a tennis addiction, practices yoga and loves to cook.
Magi Thomley Williams, advertising/writer
Magi Thomley Williams, ACB, ALB is a business and nonprofit consultant, writer, trainer and speaker. Dedicated to improving her community by helping nonprofits build their boards, improve their media presence and attract donor funding,Magi enjoys writing about impactful nonprofits, thriving businesses and the women who lead them. Magi@ThomleyConsulting.com
Chelsea Owens, writer
Chelsea Owens grew up in Gulf Breeze and received degrees in communications and art from the University of West Florida. She has a lifelong passion for style and art, and over 10 years of social media and marketing experience. She is also a pilates instructor who enjoys both staying busy and relaxing at the beach.
Justine Roper, writer
Justine Roper is a doctor of physical therapy, personal trainer, and speaker from Pensacola. She has written articles surrounding women’s health for publications like Essence magazine and enjoys all things movement and food. She is the proud owner of InHer Physique Pelvic Floor Therapy & Wellness, where her passion for women’s health truly shines.
Leslie Peck, writer/beauty expert
Leslie Peck is a local aesthetician, makeup artist, lash artist and brow specialist. She has experience in TV, film, print and celebrity makeup in Los Angeles and 11 seasons of NYC Fashion week. Leslie was featured on the front page of the Wall Street Journal in 2007 for her work at Fashion Week.
Leah Seacrest, writer/fitness expert
Leah Seacrest, a seasoned fitness industry veteran with over 30 years, experience in group fitness and personal training, coowns REGYMEN Fitness Pensacola and is the SVP of REGYMEN Fitness overseeing operations and franchise growth. She is a mother of three and loves spending time outdoors.
Sonshine, writer
Sonshine is a Northwest Florida media personality, currenting hosting “Sonshine’s Corner” on BLAB TV. She is a business consultant, author, motivational speaker and fitness consultant. Sonshinemoorer@gmail.com.
Toni Sparks, photographer
Toni Sparks is a proud Pensacola native. As the visionary behind Short Story Studios. Toni is dedicated to creating magazine-quality images with unparalleled elegance and style. Her experiences infuse her photography with a unique perspective that celebrates and elevates every moment.
Kate Treick, photographer
Kate Treick is a professional photographer, writer, speaker and publisher who has called Pensacola home since 2012. She and her husband, Joel, have two teenaged kids and two funny little dogs. Kate loves spending time with friends, leading music at her church, reading and traveling. kate@katetreickphotography.com
Teresa Torres Zwierzchowski, social media
Teresa Zwierzchowski has more than 20 years’ experience in communications, including more than 15 years working for the Pensacola News Journal. She is a lover of all things communication including brand, culture and social media as well as community and public relations.
Elizabeth Meyer, art director
Elizabeth Meyer spent her early career as a designer and design director at newspapers across the country. She is currently an adjunct instructor and director of The McKinley Avenue Agency at Ball State University. Betsy was born in Pensacola while her father was in the U.S. Navy.
inside this issue
COVER STORY Think Pink Page 26
PROFILE
Tiffany Williams Page 38
12 SPEND OR SAVE
14 FASHION: Fresh fall feels
OUT & ABOUT Wine a Little, Dine a Lot! Page 60
22 CAUSES: Gulf Coast Kid’s House Brunch & Bubbles
24 BEAUTY: Skincare through cancer
36 PROFILE: Insights from Julie Zemaitis DeCesare, M.D.
40 BODY & SOUL: Spread your self-care umbrella
44 BODY & SOUL: Uterine fibroids, another women’s health concern
48 GNO: Aragon Market + Wine Bar
50 PRO TIPS: Advice from local breast cancer warriors
52 LOCAL FARE: “Crayon Dawn” book launch
54 WORTH THE TRIP: Fall in love with Lisbon
64 HER PERSPECTIVE: They’re not my lemons
66 HER PERSPECTIVE: Billy or Barry?
the
Screening to Survivorship
Let Baptist make it better.
At Baptist Health Care, we offer a comprehensive oncology treatment program that encompasses every aspect of cancer care. From diagnosis and patient education to leading-edge treatments and research, our nationally recognized program focuses on providing you with a personalized cancer care plan.
Deeply rooted in our Mission to help people throughout life’s journey, to make us — our community — better, Baptist Cancer Institute offers groundbreaking oncology and hematology care. As Baptist Health Care continues, to transform to better serve our community now and for generations to come with the team at Baptist Cancer Institute. ebaptisthealthcare.org
spendorsave
• Oberon sweater, $248, thereformation.com
• Cable Collectibles ribbon necklace, $975, davidyurman.com*
• Chanel medium lambskin classic double flap shoulder bag, $8,550, fwrd.com
• Off-the-shoulder sweater, $24.99, hm.com
• Rose gold bow necklace and earring set, $28, anneklein.com*
• Tabby shoulder bag with quilting, $395, coach.com where to shop
H&M: Cordova Mall, 5100 N. Ninth Ave., Pensacola; 855-466-7467; hm.com
*These designers are partners of the Breast Cancer Research Foundation
fashion
freshFall Feels
By Allison McCrory / Photos by Kate Treick Photography
It’s that celebratory season for West Floridians when fashion shifts from surviving the heat to dressing creatively.
“Have fun with your colors, prints, patterns and mix it on up!” said Diane McLaughlin of Lee Tracy on Gregory Street in Pensacola. “Let your personal style and imagination create your outfit for the day. October can still be quite warm for us here on the coast, so keep those tanks and tees handy and simply add a kimono or lightweight cardigan in new fall colors to help you feel like we’re changing seasons.”
McLaughlin notes that there are new fashion headlines as well as a few repeats.
“As far as pants and jeans and trousers are concerned, we’ll continue to see a high rise at the waist and a full leg,” she said, pointing out a style that has held fast for several seasons. “We have some beautiful pieces arriving that represent this style, and our denim collection will also have a strong presence with a straight, boot and wide leg. Gone are the days of the skinny jean for now.”
Pretty mid-length skirts in feminine toile or knits are trending and pair perfectly with fall’s favorite shoe — ballet flats. In other footwear news, “peep toe wedges and booties with jeans and the low-profile sneaker continue to be great accessories for a skirt, dress or pants of all types,” McLaughlin reported.
Rich, saturated hues are the hallmarks of Fall 2024.
“Classic navy is always such a great color for our coastal lifestyle here year-round, and we’ll continue seeing that throughout the season. However, burgundy has been real strong across the board. Rich, deep golds, greens and chocolate browns will be playing a big role in our fall color palettes.”
Shopping list: When elegance is in order, nobody does it better than Italy. These one-sizefits-all washable silk pieces in understated champagne ooze ethereal refinement. Wrap skirt, $68, and top, $98.
Shopping list: For days when you want to feel ultra-feminine and whimsical, consider this happiness-inducing floral boot dress by Easel, $78. Team with your favorite boots or booties to welcome autumn!
Heather Kealer
Heather Kealer has learned many things along her 27year cancer journey. She can list medical terms, drugs and treatments. But her biggest healing lessons have been the non-clinical ones like relinquishing control and tapping into a divine flow.
“The next time you are suffering —pay attention. It may be the closest you will come to God,” said Kealer, who has been fighting for her life on the cancer battlefield since 1997.
Kealer knows all about suffering. With two bouts of Hodgkin’s Lymphoma in her early 20s, two open-heart surgeries years later from damage she is convinced was from treatment and a stage 3 breast cancer diagnosis, one thing became crystal clear.
“Of all the suffering and painful season, I have learned many things, but mostly that these things are out of my control, and they should also be out of my mind. I put all my trust in God,” she said. “When things are out of your control it usually means God wants you to relinquish
control to him.”
With her life rebuilt on those rock-solid principles, Kealer is savoring each day. She takes care of the daughter doctors said she’d never have and volunteers at her church. Despite daily pain, she walks and embroiders and spends precious time with family.
Truly a coal miner’s daughter, Kealer studied dental hygiene at Pensacola State after working as a flight attendant. Following 15 years as a dental hygienist and numerous health issues, Kealer transitioned to stay-at-home momhood.
She believes God promised she’d be whole and complete after a season. She’s waiting, trusting, hoping and embracing that wholeness however it manifests.
“I’m in a season of fully expecting what God has for me.”
list:
a decade
is taking
Shopping list: Retro ’90s grunge? Bring it on! “All You Need is Love” shacket by Elan, $110, Liverpool Lucy boot cut denim in black, $109; Liverpool ribbed white tank, $58.
About the Location
Dharma Blue
300 S. Alcaniz St., Pensacola; 850-433-1275; dharmablue.com
Hair Compliments of Stefanie Bennett
Bennett’s Hair Salon
9500 Pensacola Blvd., Suite 11, Pensacola; 850-417-2925
Makeup Compliments of Lorie Weekley
Weber & Weekley Makeup and Skincare
260 S. Tarragona St., Suite 130, Pensacola; 850-7646629; weberandweekley.com
Clothes Compliments of Lee Tracy
701 E. Gregory St., Pensacola; 850-912-8639; leetracypensacola.com
Model Compliments of Izon Models & Talent LLC
301 N. Barcelona St., Suite E, Pensacola; 850-433-2099; izonmodels.com
stylingthe shoot
Photography: Kate Treick / Fashion styling: Allison McCrory Where to shop: Lee Tracy
causes Gulf Coast Kid’s House
Brunch & Bubbles
20 years of service to Pensacola area children
WANT TO GO?
• What: Brunch & Bubbles
• Where: Portofino Island Resort, Pensacola Beach
• When: Sunday, October 27, 11:00 a.m. to 2:00 p.m.
• Tickets: gulfcoastkidshouse.org/events/brunch-and-bubbles
• Info: For questions or sponsorship information, contact Rachel Smith at events@gulfcoastkidshouse.org or 850.595.5783
By Magi Thomley Williams
Gulf Coast Kid’s House will hold their wildly successful annual Brunch & Bubbles, presented by Sandy Sansing Dealerships, on Sunday, October 27, from 11:00 a.m. to 2:00 p.m. at the stunning Portofino Island Resort on Pensacola Beach.
This year, GCKH is not only celebrating their 20th anniversary, but also honoring 20 years of incredible generosity from Sandy Sansing. Since its inception in 2004, Sansing has donated an astounding $876,000 to Gulf Coast Kid’s House. His generous support extends beyond financial contributions; he served on the founding board of directors, the GCKH Future Fund Board, and is currently an emeritus board member.
GCKH is also excited to introduce Steve and Shelley Black as honorary chairs for Brunch & Bubbles 2024. Steve and Shelley, who met on a blind date in 1988, have been dedicated to serving their community for decades. The Blacks embody a commitment to serving the Pensacola area.
Florida ranks top 10 in the U.S for child abuse cases, and Escambia County is fourth highest in the state. In 2023, Gulf Coast Kid’s House served over 3,000 children. This organization is here to help children and families in the most horrific times of their lives. Won’t you do your part to support them?
Brunch & Bubbles individual tables are up for grabs at $6,500 each. Don’t miss out on this opportunity to enjoy upscale specialty cocktails, bottomless champagne, exciting live and silent auctions and delectable dishes prepared by local celebrity chefs. This year’s theme is Havana and will include multiple sensational entertainment offerings. In past years, the event sold out quickly, so secure your spot now.
48thAnnual Fashion Show
Oct. 24, 2024
Sanders Beach-Corinne Jones Resource Center 913 South I St.
5:30 p.m. Cocktails, Silent Auction and Charcuterie
6:30 p.m. Program and Live Auction
7 p.m. Fashion Show
Fashions provided by Bluetique, Dillard’s, Gulf Coast cabi Stylists and The Market & Mainly Shoes
For sponsorship information, visit baptisthealthcarefoundation.org or call 448.227.8150.
Sponsorships Available
Enter for a chance to win a $2,000 gift certificate to Beré Jewelers.
One winner will be selected at random between 8 and 9 p.m. on Thursday, Oct. 24, at Sanders Beach-Corinne Jones Resource Center. The winner will receive a $2,000 gift card to Beré Jewelers. Participants do not need to be present to win. Gift certificate is valid at Beré Jewelers until Oct. 24, 2025. No purchase necessary. Prizes are not transferable.
SKINCARE through cancer
Story and photos by Leslie Peck
The moment someone receives a cancer diagnosis, there are multiple devastating unknowns to worry about including the aftermath of fighting this horrible disease. One of the many profound side effects of going through cancer treatments is changes in the skin. Itchy, burning, dry, sensitive skin are all very typical during chemotherapy, radiation and post surgery. Sometimes patients have to slow treatments because of side effects. There are certain products to avoid and others that can help aid in some relief to the affected areas. Everyone is unique and their skin may react differently, so it is best to always consult your doctors on any products you use or discontinue using during treatment.
INGREDIENTS TO AVOID
When going through treatments, the skin is the barrier to protect the body and fight off any bad bacteria getting in. If the skin barrier breaks down and becomes thin, cracked, and easily damaged, it becomes a bigger risk for the patient to avoid infection and get through the necessary therapy. Any products that have alcohol, essential oils, perfumes, preservatives, parabens and sulphates can dry and irritate the skin or cause an allergic reaction. If you commonly exfoliate your skin, hold off until you’re finished with treatments. This may also include retinols, acne medications, chemical peels or any harsher product or service you may regularly do to maintain your skin. Take lukewarm baths or showers. Hot water will make the skin dry and irritated.
PRODUCTS TO RELIEVE SYMPTOMS
Trade out your cleansers and moisturizers for something gentle and fragrance-free. One thing to remember when looking for products to help soothe the skin: Just because something is labeled “natural” or “organic” does not mean every ingredient will calm the skin. Nature can produce some powerful substances. Look for ingredients with hydrating properties such as hyaluronic acid, aloe vera, shea butter, ceramides and glycerin. Always wear SPF. Most cancer treatments make the skin very sensitive to sunlight. Find a hydrating lip balm with vitamins A, C and E. The key is to replace as much moisture back into the skin to keep the barrier strong.
cover story
Think PINK
Breast cancer treatment and beyond
There is good news in the world of breast cancer. While it was once unheard-of for a woman to talk out loud about her breasts, now it’s not only OK, it’s considered healthy and necessary.
Yes, breast cancer will touch nearly 13% of women, according to the American Cancer Society, but the survival rate is now a phenomenal 97% and climbing. Breakthroughs in prevention, diagnostics and treatment have vastly improved both the journey and the outcome.
But a breast cancer diagnosis is scary and life changing. Being armed with good information for yourself or your loved one, though, will help you navigate the journey with support and confidence.
Baptist Medical Group’s new oncologist, Amr R. Hassan, M.D., DABIM, MLS, shared his thoughts on some of the most-asked questions surrounding breast cancer. He said the top question a patient asks after a cancer diagnosis
usually revolves around the stage of the cancer and how it will impact survival and treatment options.
This makes sense. It’s crucial to get a clear understanding of the situation and what’s going to happen. It’s often a good idea to take a family member or friend with you to these appointments to be sure you’re getting all the information and hearing it correctly.
Survivor Tara Kamm explained what it was like to get that diagnosis alone.
“Boy, was my world turned upside down! I only heard the word cancer and nothing else,” she said. “I then had to drive home sobbing and then deliver this terrible shocking news to my husband. Of course he had a million questions that I could not answer. Because all I heard was cancer. After the fear and shock wore off, I decided at that moment I’d never go alone to an appointment ever again. I needed to take someone to listen and take notes. I got tunnel
vision at each visit and had the ability to hear what I wanted, not what they were saying.”
Hassan went on to explain a bit about treatment beyond the traditional chemotherapy and radiation routes.
“Cancer treatment is a comprehensive and all-inclusive approach; it does not just rely on chemotherapy agents,” he said.
Hassan explained other components might “include body and mind therapy from massage therapy to nutrition guidance to psychological and behavioral medicine support, etc. The approach is multi-disciplinary, and a successful cancer treatment has to be multi-faceted to provide the chance of effectiveness and positive outcome.”
At the hospital level, there is an extensive team of experts to help, including oncology nurse practitioners, chemotherapy infusion nurses, medical assistants, social workers, nurse navigators and many others “who collectively and collaboratively” contribute to the patient’s treatment, Hassan explained.
“Cancer treatment has come a long way over the past two decades in particular,” he said. “The progress has been exponential for some malignancies like breast cancer … and there is so much more progress and improvements to come.”
When it comes to a team of people to help the patient, one critical component is the support a woman receives outside the walls of the hospital.
“The best advice that I can give a family member or a loved one is to provide an atmosphere that is loving, harmonious and peaceful to their loved one as he/she goes through cancer treatment,” Hassan stressed. “Tolerance is of insurmountable importance as well, because there are times or days where the cancer patient needs nothing more than being allowed to vent out a variety of feelings and emotions freely without judgment or persecution.”
TARA KAMM: THE POWER OVER PINK
Tara Kamm, creator of the Power Over Pink YouTube channel, has
extensive experience with breast cancer.
“My breast cancer journey started when I was 32 years old,” she said. “I found a lump in my left breast. It turned out to be an atypical cyst that required imaging for the following five years. At the end of the five years the mammogram showed new calcifications in my right breast that required biopsy. Those came back as ‘pre-cancerous,’ and I was told to go speak to an oncologist to discuss the findings. It scared me so bad that I never went. I just wanted to move on and be back to normal.”
After several years of tests and monitoring, Kamm finally had lumpectomy surgery that was followed by a diagnosis of invasive breast ductal carcinoma. Like many women, she just wanted to know how serious it was and whether she was going to be able to fight it and live.
Kamm went through four rounds of chemo and 33 rounds of radiation to her neck, chest and lymph nodes. She is grateful that she didn’t have to go it alone even though she got her diagnosis during COVID, and local support groups had shut down.
She had friends and family to help her through. Her husband, kids, mother and church friends all pitched in to help. She had friends take her to appointments, sit with her after chemo and set up meal trains which were all blessings to her family and took a lot of pressure off of her to be “normal.” Her employer worked with her and allowed her time off after each treatment.
Like many independent women, though, Kamm had trouble accepting help.
“I had to learn to allow them to love me … I quickly learned that I could not face cancer alone. It takes a village. Allowing others to help me when I needed it most really showed me a lot about myself.”
Kamm’s friends and family celebrated the end of her treatment by throwing a “Parade of Pink” with “cars, signs, wigs, Mardi Gras beads, yard signs and lots of glitter. I’ve never felt more love,” she said.
There were some alternative
PELVIC FLOOR PHYSICAL THERAPY
Urinary urgency or frequency
Inability to empty bladder completely
Frequent trips to the restroom at night
Pain during or after intercourse
Persistent low back or hip pain
Postpartum weakness & discomfort
Rectal pain
Abdominal separation or weakness
Recurrent abdominal pelvic symptoms after surgery
Pubic bone pain during pregnancy
RESOURCES FOR PATIENTS AND CAREGIVERS
Are you looking for resources to help you, a family member or friend who is battling breast cancer? Want to donate to a related cause? Here are some examples of local and national organizations that do research, provide support or sell or donate products to help.
There are many more resources in addition to these listed, including several local places that do cancer-specific lymphatic drainage, acupuncture and massage. As always, consult your doctor before starting any treatment.
• American Cancer Society/Making Strides: The American Cancer Society has been providing resources and doing research on all types of cancer for over 100 years. The ACS Making Strides movement “raises lifesaving funds that support breast cancer patients, survivors, thrivers and caregivers through every step of the journey.” They have oneon-one breast cancer patient support services and a 24/7 helpline. The local Making Strides event this year will be on Saturday, October 26. For more information, contact Melanie Row at melanie.row@cancer.org; 850-407-4735; or donate at Making Strides of Pensacola, P.O. Box 17127, Tampa, FL 33682
• Breast Cancer Research Foundation: Nonprofit committed to prevention and research for a cure. Donate or shop for “pink” gifts at bcrf.org.
• Cleaning for a Reason: Provides free housecleaning services for cancer patients. Visit cleaningforareason. org to learn more.
• EBeauty: Provides donated wigs to cancer patients. Visit Ebeauty.com.
• Imerman Angels: One-on-one cancer support group; Learn more at imermanangels.org.
• Keeping Abreast Foundation: A project of the local Krewe du YaYas that provides screening, preventative programs and assistance. Learn more at keepingabreastfoundation.org.
• Living the Ribbon Life: Provides fitness support after cancer treatment. Learn more at livingtheribbonlife.com.
• Pensacola Breast Cancer Association: Nonprofit that provides education and screening for local women in need. They have created a brochure for anyone who is diagnosed with breast cancer to have a list of all resources Pensacola has to offer the moment they are diagnosed. They also have a wealth of information on their website at Pensacolabreastcancerassociation. com.
• Pensacola Permanent Makeup: Provides eyebrow and areola tattooing. Learn more at pensacolapmu. com.
• Sisters Network, Inc.: A national African American breast cancer survivorship organization. Visit sistersnetworkinc.org.
• Susan G. Komen: Addresses breast cancer research, community health, global outreach and public policy initiatives. Visit komen.org for information.
treatments that helped her as well, such as acupuncture and IV infusions at Drip Parlor.
“I had great relief from the side effects of chemo when doing this. I went before and after each dose to give my body some help in healing and recovery time. It really improved the extreme dry mouth I was suffering from and the pain in my intestines,” she said. She worked with a nurse at Drip Parlor on what was OK to use during chemo, but she advises anyone to talk to their doctor first.
Now that she is done with treatment, she has sought even more alternative therapies to “regain some quality of life.” She said she has used lymphatic treatments, fascia massage, acupuncture and natural supplements.
Kamm wanted to help others going through this disease, so she started her Power Over Pink YouTube channel along with a big social media presence.
“I have to be honest here. The cancer journey was not what I expected it to be,” she said. “From diagnosis to treatment. I got little to no education on what was happening to my body and what to expect. I asked questions and got little answers.”
When she had a chemo side effect, she was told it couldn’t be connected because her dose was too low. She felt this response was “totally diminishing the reality of what I was experiencing in my body. Only to be sent to a specialist to tell me it was from my chemo.”
Kamm feels that cancer is like a burning house.
“The medical professionals see the fire and rush to put it out. They do a fantastic job putting out the fire of cancer and I am so grateful for that. They do their jobs very well.”
But she “came out of the fire with a body that will never be the same.” She has experienced neuropathy in her hands and feet. She researched ways to prevent neuropathy, like wearing ice gloves and socks during
“I have learned so much about myself in this journey. I can let people love me and I can do hard things! I can speak up when something ‘feels off;’ I can listen to my body and my intuition. So often we as women quiet that voice because we don’t want to be a bother. I say never, ever quiet that voice!”
— Tara Kamm, Power Over Pink YouTube channel creator and breast cancer survivor
treatment.
Kamm created the Power Over Pink community as “a place to ask questions and hear from survivors who have faced this battle and won.”
Her channel has video/podcast interviews of others who have had breast cancer, beat it and are thriving.
“I want to share their stories. Why? It gives the survivor a voice in an often-voiceless system and motivates them to keep moving forward with others and regaining their life after cancer. And, if we all share what we have learned and what we experienced it will help someone else who is entering the battlefield be better equipped. And hopefully they won’t feel alone or lost. We never give any medical advice. Just warriors sharing their stories to inspire hope and encouragement and guiding others on how to be their own advocate.
“Cancer is so much more than a pink ribbon. We have power in our journey, power in our stories, power in community, and we have Power Over Pink!”
KATHY SALDANA: SURVIVOR AND PATIENT CHAMPION
Kathy Saldana, a patient experience advisor at Baptist Health Care, knows the challenges a breast cancer patient faces because she was one herself.
“After three years of dieting, exercising, losing weight and getting in shape, I felt the best about myself
I had felt in decades. I got my first passport and scheduled my first cruise,” she recounted. But, on January 21, 2023 she opened her health system’s patient portal and read her biopsy result — “carcinoma.”
“I saw that word, closed the app and set out to have the best week of my life on that cruise, blissfully ignorant of what awaited me when I returned home. I told my daughter that we would enjoy the cruise, and then I would return, fight it, beat it and we would go on a victory cruise. We certainly enjoyed that cruise! Then, I returned, fought it, beat it and we went on our victory cruise in January 2024,” Saldana said.
Saldana had a lot of questions when she received her diagnosis.
“I hoped that since we found it early, I would not need chemo. That did not turn out to be the case. I was much more afraid of chemo than cancer. That remains true to this day. I had a bad cancer (triple negative), and it was very aggressive (grade three). I would need chemo, radiation and surgery.”
She also wondered if she would make it to her youngest daughter’s wedding in Michigan. (She did.) Finally, she wanted to know if her daughters needed to be worried, but luckily testing revealed it was not genetic.
Cancer taught Saldana many lessons along the way, including how strong she is. Throughout treatment she worked full time, maintained her house and mowed her own lawn. She even continued to run every day until developing neuropathy in her feet which made her too unstable to run.
“It was scary and difficult at times, but I found out that I am exactly as strong as I need to be,” Saldana said.
The second thing she learned was that even though she thought she was going through it alone, she wasn’t. Work and church friends turned up for her time and again.
“An executive director showed up for my first day of chemo, so I didn’t have to face that first, frightening moment alone,” she said, “and I even remember being wheeled down the hall before my surgery — bald, no make-up and in a hospital gown, wanting to be invisible,
“I try to never miss a sunset. They are each a unique gift. Enjoying the beauty around me is healing. I am so grateful to witness the beauty of this life –and to enjoy it here in Florida, which was a lifelong dream for me, is especially sweet. I’m grateful. The moments when I purposefully reflect on all I have to be thankful for are precious.”
yet there were two team members, literally running up to me to pray for me before I went into surgery — so, I realized it’s impossible for me to ever be alone as a Baptist employee or as part of a faith community.”
Finally, she said that despite spending years working on feeling confident about her appearance, cancer stripped her of all the confidence she had gained, and it was there that she learned her value far exceeds her appearance.
“I learned that my value is deep and intrinsic. It is borne of being human, a woman, a mother, a citizen — just being,” she said, though the loss of her hair during treatment was particularly difficult.
“I treasured my signature hair. That was a profound loss — one that will take years to recover from.”
She quarantined during treatment, working from home, because she was immuno-compromised and had an end goal.
“I was laser-focused on staying well enough to make it to my daughter’s wedding in Michigan after chemo, and I knew that even a cold could compromise that. Having a supportive employer was crucial,” she said.
To other women going through breast cancer, Saldana has some advice.
“Trust the process, learn what matters to you and then fiercely defend it,” she said. “Some women do a lot of research and need to know everything possible about their diagnosis and treatment. I
needed to know as little as possible. Breast cancer is a very personal journey and having control over your own treatment is important. Purpose to manage your own journey. It is yours. It is profound. Get all the help you need and refuse what is well-intended, but not helpful. Be okay asking for help and telling people, ‘No.’”
Her final bit of wisdom has to do with life after cancer.
“I have a friend who had breast cancer before I did. When I was first diagnosed, she told me something that I didn’t understand until recently. She said, ‘The people around you will get over your cancer long before you do,’ and that is the most profound truth that helps me today. As soon as you are ‘cancerfree,’ people think you are taking your victory lap and just picking up where you left off, but you are still feverishly and frantically running an unspeakably difficult race,” she said.
“When I received my good report, yes, of course I was elated and thankful,
but I was still bald, weak and facing more treatment and surgery — not to mention there would be years of ‘watching’ still ahead of me. People mean well, but the journey is far from over even when you get good news. It is difficult to hear people with full heads of hair say, ‘it’s just hair — it will grow back,’ and then, they even stop saying anything at all — they just assume you’ve moved on, but you’re still looking in the mirror at a totally different person than the one who got the bad news in the beginning — different physically, spiritually and emotionally.”
Now, Saldana has joined the breast cancer support group at Baptist Hospital and found it very valuable. She has found it validating and empowering to hear others speak the thoughts in her head.
“The pink sisterhood is real, and I am very grateful for it. It means a lot to me to be surrounded by others who understand this involuntary journey.”
After realizing she had “survived” cancer, Saldana wanted to declare it, so she started looking at the available pink ribbon survivor wear, but she couldn’t find just the right thing.
“When I couldn’t find shirts or hats that I wanted to wear, or even could wear on a daily basis, I started thinking about the ease of wearing, and giving, a lapel pin,” she said. “I knew I wanted to declare victory, so I designed a lapel pin with, ‘veni, vidi, vici’ [I came, I saw, I conquered] and the pink ribbon. I had the pins manufactured and donated them to Baptist Cancer Services for other pink sisters to have.”
Saldana wants to leave a legacy for others going through what she did.
“I hope the day comes when induction into this dreaded and beautiful pink sisterhood stops forever. In the meantime, I want my forced membership to mean something. I want to help others — it matters — it brings meaning to this path I never would have chosen, but have been graced to walk, nonetheless.”
profile
Empowering Women’s Health Insights from Julie Zemaitis DeCesare, M.D.
By Magi Thomley Williams / Photo by Kate Treick Photography
Julie Zemaitis DeCesare, M.D. is an inspiration in the field of women’s health. As a professor at the University of Central Florida College of Medicine and residency program director and department chair at HCA Florida West Obstetrics and Gynecology Department, she has dedicated her life to advancing women’s health. Dr. DeCesare is a fellow of the American College of Obstetrics and Gynecology (ACOG), currently serving as the chair of ACOG District 12 and on the ACOG board of directors.
DeCesare completed her undergraduate degree in nursing and earned an RN/BSN from the Catholic University of America. She then pursued medical school at Eastern Virginia Medical School, followed by a residency in Obstetrics and Gynecology at the University of Florida, Pensacola. She obtained her board certification in obstetrics and gynecology in 2005.
Long before all that education, though, DeCesare had a good role model to point her toward her chosen field.
“My grandmother was a granny midwife,” she said. “She was a Lithuanian immigrant, and my grandfather was a coal miner in Southwestern Pennsylvania. There was little to no access to health care in the company town in which they lived, and she had eleven babies — all at home. My dad was 10 of 11. She delivered the babies of most of the women in her community, and I grew up listening to her stories. She was definitely my inspiration for a career in women’s health.”
In the spirit of Breast Cancer Awareness Month, DeCesare stressed the importance of self-care.
“One in eight average-risk women will develop breast cancer in their lifetime, so it’s important to
RISK FACTORS FOR BREAST CANCER
Talk to your doctor about your risk factors and screening.
• Family history of breast cancer
• Early menarche (first menstrual cycle) or late menopause
• Choosing not to breast feed
• Use of combination hormone replacement therapy
• Dense breasts
• Known genetic mutation
know your body! When you are in the shower, it is important to feel your breasts so that if you feel something different, you can bring it to the attention of your health care provider,” she explained.
DeCesare said there is a misconception that imaging techniques other than mammogram are good screening tests. In fact, the best screening test for breast cancer is a mammogram, she said, with other imaging modalities, such as ultrasound and breast MRI, being useful tools in specific situations.
She advocates for clinical breast exams performed by a trained healthcare provider who knows how to spot abnormalities and warning signs.
“The US Preventative Service Task Force recommends against the CBE; however, the American College of Obstetricians and Gynecologists recommends a CBE every 3 years for ages 25-39, and annually after age 40,” she said.
“I do think the clinical exam is an important part of breast health, as sometimes just a subtle change or concern will prompt additional screening that can pick up a problem when it is in a very early stage.”
Any female, no matter her age, should discuss testing options with her healthcare provider and feel empowered to ask for the care she feels she needs. DeCesare recommends the ACOG website for more resources on screenings and breast health.
profile
Tiffany Williams Fighting the good fight
By Allison McCrory / Photo by Kate Treick Photography
Proactive.
For Tiffany Williams, there is no other option. So, when cancer reared its ugly head, action was swift and decisive.
“I had stage zero breast cancer two years ago. On August 16, 2022, I opted for a double mastectomy. I was fully reconstructed before Christmas,” said the mom of two little girls living lives packed with school days and afternoon ballet and gymnastics. Williams wasn’t about to miss out.
“Not surviving was not an option,” said Williams. “I had to be ready for the fight because I had a life to live.”
And live it she does, juggling the lives of her daughters with inspiration from “Finding Nemo. ”
“Mom life is full of surprises and a balancing act,” said Williams, who often finds herself channeling Dory’s advice to “Just keep swimming!”
In addition to motherhood, Williams nurtures her marriage to her husband, Cassius Williams, who works in law enforcement, works her job of 20 years, rallies for increased cancer research and funding and now fights for her father’s life.
“My dad was diagnosed with pancreatic cancer, and we are now about to begin his journey ... when I found out about my dad, I sprang into action. It felt like it was time to report to duty,” she said.
In addition, a close friend was recently diagnosed with breast cancer and has started chemotherapy.
While the disease creates landmines all around her, Williams keeps fighting for those she loves, herself and those she’ll never meet. She volunteers with American Cancer Society’s Cancer Action Network. With fellow members of the organization, she treks to Capitol Hill every year,
rallying for increased cancer research funding and legislation.
Through it all, Williams’ battle cry is consistent: Make screenings a top priority.
“I am passionate about early detection. Early detection is key. Early detection saved my life and greatly influenced my outcome,” said Williams, who knows first-hand the difficulty of making time for preventive measures. “Women are pulled in so many areas these days. Sometimes we nurture everyone but ourselves. We have to make time for self-care and self-check-ins.”
She credits her parents with teaching her to care for her health well.
“My parents preached to me and led by examples the importance of health when it came to early detection screenings. When I heard the news of my breast cancer diagnosis, I cried but immediately felt grateful that my breast cancer was caught early.”
A true cup half-full kind of girl, Williams calls her cancer journey “positive and empowering.”
“I feel good. I feel empowered with knowledge that can help others. Even though my cancer was caught early, I am being followed by my surgeon and have regular checkups, which should end this year.”
Maintaining equilibrium is a component of Williams’ healthy lifestyle.
“I am a fan of walking in the evening and strive to live a life where I manage my stress levels.”
Like so many cancer patients, Williams said emotional support is crucial to her healing.
“I ended up having so much support from husband, parents, siblings, aunts, uncles, cousins and friends. The diagnosis touched everyone in my life. I am so incredibly blessed to have family and friends. I miss my breasts, but the replacements aren’t bad ... I am alive and that is a blessing.”
body & soul
Spread your self-care UMBRELLA
By Magi Thomley Williams / Photos by Kate Treick Photography
Picture an umbrella: It only works when it is open and takes up space and when each spoke is sturdy, in line and reliable. Then it functions to keep everyone underneath its protection comfy, dry and in our Florida sun — not crisping. If you are the umbrella responsible for taking care of the people in your life, and your spokes (what hold you up, replenish, reinforce you) aren’t taken care of, everyone underneath the umbrella — including yourself — will be drenched. Or crispy.
This illustration is from Sarah Newman, AP, MAOM, an acupuncture physician serving patients at her practice Vitality Acupuncture LLC in Gulf Breeze.
“I have been honored to treat and share with women and girls of all ages across the decades, through their fight against cancer and for preventive whole health care,” Newman said.
Self-care is not self-ish; it is gentle, safe attention or tending to, so you can thrive and really be there for the people that you love. This is especially important for women who are battling cancer and those fighting alongside them.
Prioritizing your health makes it easier to take care of everything and everyone you care about. That includes your spiritual, mental, emotional and physical health that allow you to walk through life with integrity and balance. Think homeostasis, the most efficient functioning for your being; each impacts the rest. Things like quality sleep or laughter affect your entire being.
Healing — allowing yourself to be strong and capable and beautiful — opens the door to be nourished enough to give someone else a hand or be an example for them to see their own beauty in their strength and abilities, ultimately making the world a better, stronger, more beautiful place.
Newman offered tips on nourishing self-care:
Eat what works with you. Research reports that sugar feeds cancer, while other foods can work to prevent cancer
WANT MORE INFO?
Call or text 904-687-4093 or visit VitalityAcupuncture.net to begin your self-care journey.
and nourish the brain, breasts and entire body. Choose something healthier. Would you ever hire an employee that works against you? Use the same diligence for your food choices.
Adopt and practice selfacceptance, self-respect and loving kindness. When was the last time you looked in the mirror and noted three things you like rather than things you want to fix? Would you ever say to a friend, “Is that a rogue eyebrow or a wrinkle? Let me get my bifocals!”
“Why not upgrade to, ‘Damn, I’m having a good-looking day!’? Encouraging, validating self-talk impacts the cellular and physical level. Be your own breast friend,” Newman
encouraged.
Own your choice to work on growing your strength, capability and beauty. Own your choice to heal from cancer or other challenges by practicing self-care and acceptance. Choose nourishing and kind activities, treatments and environments that support your growth and healing. Newman said she coaches her daughter by saying, “You are a kind person, and you deserve kind friends.” That includes being a kind friend to yourself and making respectful, healthy choices for yourself. Good advice for anyone.
Newman was emphatic when she said, “Give yourself permission to make your umbrella both strong and beautiful. Take up space because you matter and so you will be able to protect the people you care about through the rainstorms (sometimes doozies) in life.”
Where Inspired Days Begin
body & soul
Uterine fibroids
Another women’s health concern affecting quality of life
By Justine Roper / Photo by Kate Treick Photography
Fibroids, although non-cancerous, can significantly affect a woman’s quality of life. These benign uterine tumors are common in women, particularly African American women.
Regina McCutcheon, M.D., OB/ GYN, and Kasha Williams, ARNP, have over 20 years of experience in women’s health and are well-versed in the challenges posed by fibroids. McCutcheon, inspired by “The Cosby Show” to pursue obstetrics and gynecology, trained at Tulane University School of Medicine and LSU OB/GYN residency. Williams, who began her career as a medical assistant before advancing to a nurse practitioner, has served the Gulf Coast community extensively. Her varied experience in women’s health has contributed to her success as a practitioner.
McCutcheon recalled her early experiences with fibroid patients.
“Oftentimes the patients that came to us looked like they were pregnant,” she said, and this was likely due to the lack of medical access within that population in Louisiana.
Approximately 25% to 50% of women with fibroids experience symptoms such as heavy menstrual bleeding, pelvic pain, constipation, bladder problems, fertility issues, increased urinary frequency and anemia. However, 50% to 75% of cases are asymptomatic. Both McCutcheon and Williams observe that many women are not devastated
upon diagnosis, as fibroids are often part of their family history. Yet, many women still experience fibroids without familial connections.
Fibroids are classified based on their location, McCutcheon explained.
“Submucosal fibroids lie inside of the uterus,” she said. This type is most likely to cause abnormal bleeding.
“Intramural fibroids are most likely to cause pain symptoms because they lie inside of the muscle tissue of the uterus.”
Subserosal fibroids lie on the outside layer of the uterus. “Imagine something is right under the skin where you can feel it.”
“Pedunculated fibroids have a stalk on them,” Williams added. “They hang off of the uterus similar to a tree.”
McCutcheon also explained that pedunculated fibroids have a mass effect as if they are pressing down on something. This is when you see bladder and bowel symptoms.
African American women are disproportionately affected by fibroids, with studies showing they are three times more likely to develop them than Caucasian women. Their fibroids also tend to be larger and cause more severe symptoms. Low vitamin D levels, which are common among African Americans, may contribute to the growth of fibroids. Regardless of race, 20% to 80% of women develop fibroids by age 50, with most cases occurring in their 40s and early 50s.
Risk factors for fibroids include
race, age, family history, the number of births a woman has had, obesity and hypertension.
McCutcheon explained the obesity link.
“The more fat cells a woman has, there is an enzyme called aromatase which converts these fat cells into estrogen. Excessive estrogen can feed fibroids. This is why one of the first lines of treatment is lifestyle changes and weight loss. And, it is not because of aesthetic reasons,” she said.
If a woman is concerned about fibroids, Williams recommends a pelvic ultrasound as the typical diagnostic approach. Depending on the fibroids’ size, they may be detected during a pelvic exam, but a transvaginal ultrasound provides a clearer picture. In some cases, a pelvic MRI is used for diagnosis.
McCutcheon cautions that other conditions, such as Crohn’s disease or diverticulosis, can mimic gynecological
issues, making imaging crucial for accurate diagnosis.
Many women worry about fertility after a fibroid diagnosis. McCutcheon assures patients that fibroids do not equate to infertility, and women can still get pregnant. In fact, women who have given birth are less likely to experience rapid fibroid growth, while those who haven’t are at higher risk.
Several treatment options are available for fibroids. Williams mentioned UFE (uterine fibroid embolization) and UAE (uterine artery embolization) procedures, which slowly shrink fibroids, though this process may be less appealing to some. Medication is also an option, particularly for managing heavy bleeding or temporarily placing a woman into menopause to shrink fibroids.
Surgery is another common treatment for fibroids. A myomectomy, which removes fibroids from the uterus, can be performed either
through an abdominal incision (open myomectomy) or vaginally (hysteroscopic myomectomy), the latter being the least invasive. However, women of reproductive age often experience fibroid recurrence, and multiple surgeries can increase the risk of adhesions and scar tissue over time.
McCutcheon advises caution when treating asymptomatic fibroids, as intervention should focus on improving quality of life rather than just addressing their presence. Williams encourages women to base treatment decisions on their personal goals, whether it’s managing symptoms or planning for pregnancy.
Ultimately, fibroids, though common, should not be a major roadblock in life. Experts like McCutcheon and Williams emphasize that there is no one-size-fitsall approach to treatment. The key is to stay informed, consider your options, and choose a treatment plan that aligns with your goals.
MY JOURNEY WITH FIBROIDS: A PERSONAL REFLECTION BY
JUSTINE ROPER
Navigating the world of women’s health can often feel like uncharted territory, especially when faced with conditions like fibroids. My own experience with fibroids has been a journey of discovery, resilience and learning to listen to my body in ways I never imagined I would have to. In many ways these things were foreign in regards to my health. Like many women, I was initially unaware of what fibroids truly were or how they could impact my life. It wasn’t until I found myself grappling with unexplained symptoms well into my 30s — persistent discomfort, heavy periods and a general sense of unease — that I began to unravel the mystery behind this common yet often misunderstood condition. Although I don’t know what lies ahead, I am grateful for the resources that I have come across along my journey. From my surgeon and OB/GYN, to support groups on social media, having the comfort of knowing that options are out there that can only get better with time allows my hope for a life without fibroids to rise.
PEPPER’S PICKS
Favorites in the tasting series
• Veuve de Vernay Brut Rose Sparkling (France): A French rosé sparkling of Grenache, Cinsault, and Syrah, aged in bottle for 9 months. On the nose, raspberry and red berries; on the palate, strawberry and apple with a touch of citrus.
• 2023 Grand Silex Loire Valley Sauvignon Blanc (Loire Valley, France): This 100% Sauvignon Blanc is aromatic and lively, with citrus aromas and notes of apple and passion fruit. The palate is savory, and the finish is expressive and wellbalanced.
• 2023 Lincourt “Steel” Chardonnay (Santa Rita Hills, CA): Made from 100% Chardonnay grapes sourced from select vineyard sites, this wine undergoes fermentation and aging in stainless steel tanks, eschewing oak influence to showcase the pure expression of the fruit. Citrus notes of lemon and green apple take center stage, accompanied by hints of tropical fruit and a subtle minerality that adds complexity.
• 2022 McManis Family Lodi Pinot Noir (Lodi, CA): Light purple in color, bursting with aroma and flavor, leading with ripe red cherry, strawberry cream and raspberry notes. The wine is silky on the palate with red fruit and vanilla undertones, culminating in a clean, lasting finish.
• 2022 McManis Family Lodi Merlot (Lodi, CA): The wine opens with notes of blackberry, vanilla cream and baking spices and leads into a midpalate dominated by black fruit, closing with a pleasing, toasty finish. Harvested between September 30 and October 2. After 6-9 days of fermentation on the skins, the resulting wine is pressed and finished fermentation in stainless steel tanks. The wine is then aged in French and American oak for six months.
• 2022 Borsao “Monte Oton” Garnacha (Aragon, SP): The vineyards for Monte Oton are situated high on the windswept slopes of the Moncayo. The sun-drenched, arid location is ideal for harvesting perfectly matured, fully ripened Garnacha grapes. Cherry red, intense fruit; has a ripe fruit nose, is full-bodied and elegantly textured; exhibits a long complex finish.
girls night out
ARAGON Wine Market + Wine Bar
By Magi Thomley Williams / Photos by Jackson Williams
Who doesn’t love a girls’ night out with great friends and great wine? Recently the Bella team took time to unwind and catch up. Between sips of superb wine and shared tasting notes, we chatted about recent life events, travel, family updates, even politics. No prep work or cleanup — it doesn’t get any better! Each Thursday evening from 5:00 to 7:00 p.m. at Aragon Wine Market + Wine Bar, for just $10, the wine-curious enjoy tastes of a curated wine lineup, palate-cleansing nibbles and $6 toward the purchase of a bottle of wine — all served up in a secluded, verdant courtyard. Set in downtown Pensacola, the lush AWM courtyard is the perfect locale for a wine event or any intimate gathering.
Charles “Pepper” Dowdy, the manager and buyer for AWM, has earned the WSET Level 2 Award in Wines certificate. He is an engaging host; eager to share his wine enthusiasm as well as the inviting courtyard.
WANT TO GO?
• What: Thursday Night Wine Tastings
• When: Thursday evenings from 5:00 to 7:00 p.m.
• Where: Aragon Wine Market + Wine Bar, 27 S. Ninth Ave., Pensacola
• Info: 850-433-9463; PensacolaWines@gmail.com
LEFT: Wine Experts Sara Hurley and Pepper Dowdy share their expertise with Wine Tasting attendees.
FAR LEFT: Bella teammates Kelly MacLeod, Magi Thomley Williams, Lisa Player, Liz Biggs and Allison McCrory enjoyed a girls’ night out in Aragon Wine Market’s courtyard.
Advice from local
BREAST CANCER WARRIORS
This month we asked Bella readers who are also survivors of breast cancer: What was the best and worst advice you heard during your battle against breast cancer? Read their responses and learn how you can support sisters in the fight. If you are a breast cancer warrior, we would be honored if you would share with us on Facebook/pensacolabella or Instagram/pensacolabella.
Best advice: Give myself grace. Some days meant staying in bed. Cry. Scream. But don’t stay there. The next day, get up, thank God and welcome the new day to rejoice and be glad in it!
— Sandra Donaldson, executive director/ CEO, Donaldson Edge Advocacy, Inc.
Best advice: Cancer teaches you who your true friends are, and it’s easy to become angry and hurt when the ones you thought would be there for you suddenly become scarce during treatment. Don’t waste your energy focusing on the ones who aren’t there to support you. Build your relationships with the ones who ARE. Remember that on the really hard days when chemo is making you incredibly ill and exhausted, these are signs that chemotherapy is doing its job obliterating cancer.
Worst advice: “It’s just hair. It will grow back.” I know that they were only trying to reassure me and make me feel less self-conscious about being bald. It’s exactly the same thing that I would have said to someone before my cancer diagnosis. This repeated comment made me angry because it felt as though others were minimizing the loss of what I considered a large part of my identity. Plus, it takes years for hair to regrow to the length I was used to! Vanity aside, it wasn’t “just hair” to me, it was my health and vitality being stripped from me. A better response is something like, “I hate you’re losing all of your hair. I know this is hard for you and I’ll love you with or without it.”
When people don’t know what to say to someone with cancer, a good approach is to just let the person know they are in a safe and welcoming place to talk about what they are experiencing.
— Emily Hardin,
owner, The Boobie Boutique LLC
Best advice: Keep your life as normal as possible. There will be rough days, but when you feel OK, go to work, go for a walk, enjoy your favorite sport. Get together with family or friends; do what you love and what makes you happy.
— Michelle Covell, ICU nurse, Gulf Breeze Hospital
Best advice: A friend told me about her experience with chemo but followed up with, “everyone reacts differently.” I didn’t realize that, and I was terrified that ALL the awful things I’d heard would happen to me. She told me to listen to my body and let my doctor know every detail, because they really can manage your symptoms better than you think. She was right! Taking this advice made my treatment more tolerable, and a lot less scary.
Worst advice: The first time I was diagnosed with breast cancer was in 2000, before the Affordable Care Act. I was told by a PA that I could take a test to determine if I had a genetic gene mutation called BRACA that tremendously increased my risk for ovarian cancer and possibly recurrence of breast cancer. She then asked if I had good insurance — I didn’t. Next, she told me that I probably shouldn’t get the test, because if I did test positive, I would be uninsurable through private insurance due to the pre-existing condition. This was true! I didn’t take the test and ended up with ovarian cancer in 2016 and breast cancer again in 2022. If I had taken the test, I would have had preventive surgeries, and avoided those two battles with cancer completely. I’m glad we have come a long way with insurance reform.
— Laura Baker, retired, three-time cancer survivor
— Compiled by Magi Thomley Williams
WANT THE BOOK?
Books can be purchased for $34.99 at the party or ordered online at crayondawn.com. They will also be available for purchase after October 6 at many local gift shops and book sellers. Check the website for locations. Since the book debuts just before the busy holiday season, the website offers a “Buy 3 Get 1 Free” deal for people who want to purchase for gifts.
WANT TO GO?
• What: “Crayon Dawn” debut party
• When: Sunday, October 6, 4 to 6 p.m.
• Where: The Salty Rose (formerly LandShark Landing); Pensacola Beach
• Cost: Free to the public
Exploring the love and mystery of PENSACOLA BEACH local fare
By Lisa Player / Photos provided
Bella writer Sharla Dawn Gorder has been busy bringing her newest creation to life, and she will share it with the world on October 6 at a party at the Salty Rose on Pensacola Beach, open to all. Her book, “Crayon Dawn,” is an homage to the beauty and power of the beach.
Gorder, a Pensacola Beach resident and longtime columnist for the Island Times newspaper, has been writing as long as she can remember.
“I have journals and diaries (the ones you could lock with a tiny key) dating back to elementary school,” she said. “I’m not sure exactly why I am so compelled to write stuff down — but I suspect it is, if not coded directly into my DNA, simply an indelible aspect of my personality. I am, for better or for worse, a ‘verbal processor.’ But I am also a bit of an introvert. Writing has always enabled me to process my emotions and explore life’s mysteries without necessarily engaging other humans until I’m ready.”
It was the hope Gorder found during a dark time in her life that inspired her to begin the path that led to this book.
“At a time when hope felt lost to me, insomnia drew me out of bed each morning and onto the dark beach in front of my house where I waited, quite literally, for the light. And it always came. This was the first simple lesson the dawn taught me: Darkness has its time, but light is always nigh.”
The beach kept feeding her these positive messages, she said, and she began to find joy again.
“Every day a new insight, a new delight, a new perspective. I was curious again, and grateful. I was alive.”
She began photographing the dawn at the beach
during daily walks, journaling about the experiences and inspiration she gained, and sharing many of those ideas in her newspaper column. Then she got the idea to compile them into a “big, beautiful coffee table book.”
The artistic inspiration for the book was a box of 64 crayons that made Gorder realize every one of those colors could be found at the beach at dawn. It’s a big book of 64 breathtaking beach photographs and 64 inspiring stories to go with them.
“Its pages are filled with color and humor and ‘fun facts,’” she said. “Read about the science of rainbows, the psychology of hope, the spirituality of attentiveness, the sensuality of sunlight…or just thumb through the gallery of photos and admire this place we call home.”
Yes, you can tell Gorder feels this area of the world is truly special.
“This planet we live on is incredibly beneficent. It is generous beyond belief. The problem is that we fail to engage with it in meaningful, attentive ways. We forget to go outside,” she said. “This particular dot on the globe — this island town of Pensacola Beach — is among the prettiest places on earth — still so unspoiled and welcoming. It is uniquely hospitable in that the beach is accessible to everyone who comes. We’ve always told our kids to ‘go outside and play.’
It’s time we heed our own advice.”
October is the perfect time for the book to debut, she thinks.
“This time of year — early fall — is perhaps the loveliest time. No crowds, low humidity, cool water.”
Gorder said “Crayon Dawn” is for anyone who loves the beach and for anyone who could use a little encouragement or inspiration.
“I do believe that’s all of us.”
CLOCKWISE FROM RIGHT:
Located at the MAAT Museum, the “Solitaire” sculpture is made from golden car rims and whiskey glasses; beautiful boats in the Maritime Museum; a hop-off stop at the highest skyscraper in Portugal; the towering Monument to the Discoveries. FAR RIGHT: The Monument to the Overseas Combatants.
worth the trip
Fall in love with Lisbon
Story and photos by Liz Biggs
Portugal is a southern European country on the Iberian Peninsula, bordering Spain. Its location on the Atlantic Ocean has influenced many aspects of its culture: salt cod and grilled sardines are national dishes, the beaches are a major destination, and the nation’s architecture is ancient, dating back to the 1500s. And of course, there is port wine. But port wine aside, the one thing that has (literally) put Portugal on the map is exploration. Portugal was one of the major players in the European Age of Discovery, taking the lead in the 15th and 16th centuries in searching for a route to Asia by sailing around Africa.
Portugal is tall, smart and handsome, but I fell in love with Lisbon. One of the oldest cities in the world, Lisbon is the third oldest capital city after Athens and Rome. It’s got everything you could want from a centuries-old European city: winding cobblestone streets, a skyline dotted with medieval castles, moody fado music, beautiful tilework everywhere, delicious food, and my favorite thing — it’s super walkable.
We spent five nights in Lisbon, but that was only a hook-up. For a full-blown love affair, plan to spend a week. And most importantly, book an Airbnb or hotel right smack-dab in the middle of town. Ours was in the Baixa neighborhood near bohemian Chiado, between the Alfama district and Bairro Alto. Here are some tips for an affair to remember.
THE BIG THINGS
Many of Lisbon’s must-see historic landmarks are located in the Belem area, along the Tagus River west of the city center. Be sure to visit Jeronimos Monastery and the Tower of Belem, both part of a World Heritage site. We also enjoyed a guided tour of the adjacent Maritime
Museum. Near the vast Gothic Jeronimos Monastery, the popular Pasteis de Belem patisserie is famous for its custard tarts. Across the street is the towering Monument to the Discoveries which celebrates the seafaring history of Portugal with beautiful detailing on its sculpted figures, as well as cleverly hidden symbolism. The top of the monument is one of the best viewpoints of Lisbon. Walk a bit farther to see the A-shaped Monument to the Overseas Combatants, meant to reflect great simplicity and unified character — the unity between all peoples involved in war — without resentment.
After experiencing all the big things listed above, we took a riverside walk to the fantastic MAAT Museum (Museum of Art, Architecture and Technology) and had lunch at their outdoor restaurant overlooking the river. Be sure to walk up on the roof of the mod building for an amazing view. Look down upon the fabulous
Joana Vasconcelos sculpture of an engagement ring on a monumental scale. The artist’s “Solitaire” is made up of 110 golden car rims crowned by an inverted pyramid composed of 1,450 crystal whiskey glasses, simulating a giant diamond.
A hop-on/hop-off tour is a great first date if you plan on falling in love with a city like Lisbon. Personally, I love seeing the kaleidoscope of old and new buildings and architecture from the comfort of my top deck, front row seat. You get your bearings, learn valuable history, and can jump off any time you see a place you want to visit. We jumped off and then jumped on a glass elevator up to the highest skyscraper in Portugal. Who knew? It was not on my to-do list, but the cute bartender made great cocktails up there so why not? Our ticket included a boat tour, a highlight of our trip.
THE LITTLE THINGS
They say it’s the little things that
count in a relationship. So, if you really want to be a good lover, take the time to step away from the monuments and do the little things. Ride a vintage streetcar; tram 28 is the one that gives the best look of the city. First developed in 1914, the route was designed to take residents from the central Biaxa district to neighborhoods like Graca and Estrela, meandering through many sights and charming neighborhoods. We took a cable car/ funicular up to the Bairro Alto (upper neighborhood) and enjoyed a sunset stroll and dinner al fresco.
The Santa Justa Lift, built in 1902 in the same style as the Eiffel Tower, can be a bit crowded and touristy, but we found it to be worth the wait. We didn’t make it to the National Tile Museum but heard it is worth the trip. Friends told us to go to the Santa Clara Flea Market, located in the Campo de Santa Clara, but it is only open on Tuesdays and Saturdays, so we missed it.
The Saint Jorge Castle is one of the
highest points in the city, well worth the uphill hike for a beautiful view. Peacocks roam freely on the grounds which added to the allure. And don’t forget about the magnificent Rua Augusta Arch, although we just went for the photo, not the tour.
The city’s rooftop bars are well worth a visit, but locals tend to frequent the free “miradouros” (viewpoints) dotted around the city to watch the sun go down instead. The Miradouro das Portos do Sol is arguably most popular, thanks to its tiled décor and bougainvillea, but for a quieter experience try the Miradouro da Graca. Bring a picnic and a drink to enjoy while you soak up the vibes of the city.
THE COOL THINGS
No visit to Lisbon is complete without a walk through the historic suburbs of Alfama and Mouraria, which tumble down the hillside below the Saint Jorge Castle. I got quite lost on the narrow, winding cobblestone roads but knew if I kept going down, I’d get there eventually. I ended up in a beautiful waterfront oasis in the heart of Alfama and had lunch at a café listening to the sounds of a saxophone player in the distance. If you are there in the evening, head for Casa de Fados. Formerly the home of singer Maria Severa, it’s one of the best places in town to listen to the soulful sounds of Fado.
As we walked along Pink Street (Rua Nova do Carvalho), I snapped the obligatory pic of the vibrant pink street under the rainbow umbrella canopy. A bustling party hub, this pedestrian street is the center of Lisbon’s nightlife. Alas, Pink Street is way too young for me; he stays up way past my bedtime.
Located in the Alcantara district, west of Lisbon, the LX Factory was once home to Lisbon’s textile factories and has now become one of the coolest hangouts in the city. The area retains its industrial warehouse vibe, but is now home to shops, boutiques, restaurants and bars. I
would have loved to check this area out, but we ran out of time.
SIDE TRIPS
When in Lisbon, save a day to go to the royal retreat of Sintra. Purchase your tickets in advance for the Pena National Palace, set in the Sintra mountains and created by King Ferdinand II. Traffic gets heavy, so try to book early morning tickets and make sure you give your Uber driver the correct address — there are three palaces in Sintra! We enjoyed the Sintra National Palace as well, had lunch in the quaint town, and walked to the Regaleira Palace. Wow, this UNESCO World Heritage site is the creepiest place I’ve ever been, especially the dungeonish Initiation Wells and eerie underground tunnels. If not pressed for time, follow the coast to the fishing town of Cascais and visit the seaside resort of Estoril.
FOOD AND WINE
I love seafood, but salted cod and grilled sardines are not my jam — not a big fan of truly authentic Portuguese food, especially the pig hooves and snouts. I like a more modern take on the farm to table concept. We had a fantastic meal at A Taberna da Rua das Flores. Chef Andre Magalhaes serves some of Lisbon’s most creative cooking. The chalkboard menu was not in English (always a good sign) but our server explained every dish and recommended wines. Prado and Alzur were highly recommended but book reservations in advance; we couldn’t get in. Cervejaria Ramero is worth the wait in line. The garlic shrimp is delicious as is the classic steak sandwich.
We took a few side trips to vineyards in the Douro Valley and although I don’t like port, I loved the local red and white table wines, especially the Vinho Verde.
Wise men say only fools rush in, but I can’t help falling in love with Lisbon. Cheers to an affair to remember.
out&about
Wine a Little, Dine a Lot!
Capstone Adaptive Learning & Therapy Centers held their annual Wine a Little, Dine a Lot! charity wine pairing gala on August 8 at Culinary Productions’ new venue in Downtown Pensacola. It was an evening of excitement with a live auction, wine tastings and excellent food by local chef Mike Desorbo. All funds raised from this event go toward educational and therapy services for children and adults with disabilities and medical conditions and their families.
Photos by Toni Sparks / Short Story Studios
By Sharla Gorder
They’re not my lemons her perspective
“When life gives you lemons…I promise not to tell you how my mother died of lemons.”
This dark-humored sentiment captioned a card that talk show host Kelly Ripa sent to a friend who was battling cancer.
I laughed — and then I cringed. How often have I said or done the exact wrong thing when desperately wanting to say or do the exact right thing, if such a thing even exists.
It probably doesn’t. One man’s encouragement is another man’s distress.
For example, quoting scripture, like “God’s grace is sufficient” may serve as a comforting reminder to a believer that divine support is nigh. But for me, in a recent struggle I was having, it felt reductive, even chastising. Sufficient for what, I wondered? And was I then deficient because I was hurting?
everyone is a verbal processor like me. And even if they are, I shouldn’t assume that I’m the one who has earned the privilege of bearing witness to their vulnerability in such a dire situation.
But perhaps the biggest “mistake” I keep making is so honest and sincere that it can be hard to see it as anything but helpful. I am genuinely impressed with the courage and fortitude of friends and family members who are obliged to fight these medical battles — and I tell them so. Ad nauseum. I mean it as encouragement, but it can come across as throwing down a gauntlet of sorts — a challenge for them to be constantly upbeat and optimistic — to live up to my glowing assessment of them.
Likewise, clichés that might ring true in theory can fall flat in practice when emotions are raw.
“Everything happens for a reason” is another one of those utterances that can lead the distressed down an even darker path as they wonder what they have done to cause their suffering.
These examples may seem obviously fraught, but I have erred in much subtler ways, though my intentions were always good.
I have asked, “What can I do to help?” and then instead of respectfully waiting for my role to unfold, I kind of pestered my friend into finding me a job so that I could feel like I was doing more than “sending thoughts and prayers.” This put even more responsibility on my friend. It wasn’t her job to make me feel better about her diagnosis.
I have pressured a family member to talk about her feelings around a scary upcoming surgery when what she really wanted was to go to a movie and laugh. Not
For me, it comes down to this — a lesson I’m called upon to revisit about twice a week. I even wrote a column about it entitled — “Don’t Just Do Something, Stand There.” I need to calm down.
While I’m certainly not advocating complacency when it comes to being there for others, I am trying to learn how to be still, open, aware and quietly available. In my yoga practice, we call this “holding space.” It’s a hackneyed phrase that I actually like. “Hold” is a gentle word — evocative of cuddling a baby or the tender wedding vow, “to have and to hold.” It’s the opposite of foisting, the antithesis of imposing.
I need to say less and listen more. I need to wait respectfully without an agenda for the “next right thing” to become apparent. I need to insist on only one thing — that my friend/family member understand that I am ready, willing and able to take on any role they see fit in helping them through their crisis.
And calmly hold space. I don’t need to busy myself trying to make lemonade.
They’re not my lemons.
Billy or Barry? her perspective
Three years ago, when I first started writing this column, I wanted a QR code next to the title so readers could listen to songs I chose while reading. “The Day the Lizmix Died” would have been accompanied by Don McLean’s “American Pie.” “Que Sera Sera and Ooh La La” would be paired with Doris Day and the Faces hits. “How Do You Mend a Broken Heart” — the Bee Gees, of course. And “The Good, the Bad and the Rebel” — David Bowie’s “Rebel Rebel.” Alas, not everyone had access to the same streaming service so it was not logistically possible. But I still dream.
By Liz Biggs
This column would be a tough decision between Billy Joel’s “Honesty” and Barry Manilow’s “It’s a Miracle.” Oh, the humanity — my brain is racked with an existential crisis, battling between science and religion. I generally have about 1,000 thoughts running through my head simultaneously, so thankfully only about 500 involve science and religion. Yes, there are grocery lists and important dates swimming around in there, but most of the time I am going down fun rabbit holes like, “Oh, Todd Rundgren is playing at the Saenger, let me listen to every album he has ever made.” (FYI: His 1968 Nazz album is my favorite.) My doctor prescribed medication for my condition. I tried it, stuff got done, but I missed my random thoughts. They’ve kept me company for 60 years. Sitting still is overrated. I don’t need medicine when I have naturally occurring deadline-induced hyperfocus.
But back to Billy vs. Barry — for me, Billy’s “Honesty” usually wins the battle. I believe in the cold, hard truth. This is a small town so many of you already know my “miracle baby” story. My daughter was 10 when we ran into my husband’s urologist in the Publix deli line. He asked, “How’s my miracle baby?” On the way home, she asked, “Mommy, why did he call me a miracle baby?” Hmmm — Billy or Barry?
The answer is both. I’m not good at sugarcoating but I did my best: If you put on rose-colored glasses, then yes dear, your birth was a miracle. A magic man in the sky named God waved his wand and you were born. But if you take off those glasses, then there is something called science. Your father had surgery to prevent pregnancy. He is genetically predisposed to the formation of scar tissue, so his tubes formed scar tissue and reconnected, a rare occurrence called recanalization. So, your birth can be explained scientifically. It is up to you whether you want to wear the rosecolored glasses or not. Some days you may need to and that’s okay. Some may judge my parenting decision to be brutally honest with my children. Years ago, I was scolded by a Sunday school teacher when the loaves and fishes lesson was taught and my daughter was skeptical of miracles. And I thought my little girl would sob when I told her the truth about Santa and the Easter Bunny. But no, she was relieved. She had seen her presents hidden under the bed in years past and was terrified of that bunny anyway. The conclusion is that the foundation was laid for honest communication, which is of great value in this wild world.
But back to Billy and my existential crisis. “Honesty is such a lonely word. Everyone is so untrue,” he sings. After having jury duty recently, the question that haunts me is: What good does it do for an atheist to swear to tell the whole truth “so help you God.” What is the punishment for lying if you don’t believe in hell? Perjury, of course, but what if the person is powerful and can lawyer up and avoid perjury? Why would a godless, powerful person ever tell the truth? Ay, Shakespeare, there’s the rub. That’s why stuff doesn’t get done around here. I’m busy questioning my faith in humanity. I need to clean out a closet, Billy. Maybe I’ll find some rosecolored glasses.