COMMUNITY EVENT RECAP > 2 . 2 FOR 22Q
2.2 FOR 22Q
ADVOCATE. RAISE AWARENESS. MAKE A DIFFERENCE. BY SUMMERLY ROWLANDS
Izzy Snow was born on July 1st, 2021, and at 22 days old, she was diagnosed with a rare genetic condition called 22q11.2 deletion syndrome. This disorder can affect every system in the human body due to missing one tiny piece of chromosome 22. We welcome you to read up on the facts of this diagnosis along with Izzy’s personal journey thus far through our website www. my22qt.com, and we invite you to join our mailing list to receive quarterly newsletters full of updates & information. Just as we weren’t familiar with the term 22q, we quickly learned that most others aren’t either. Answers to our questions seemed unknown and it came down to figuring things out through a lot of our own research - hence the creation of my22qt. my22qt is a foundation we started in honor of our daughter, Izzy, with the mission to raise awareness, to educate others & help diagnosed families cope, and to pay it forward to the genetics division of Akron Children’s Hospital for expansion in research & services. In addition to creating the my22qt website, designing awareness apparel for our online shop, and writing as a parent contributor for this wonderful magazine, I have also been able to educate at local vendor markets and I have had amazing opportunities to speak in classrooms, in hospitals, for special needs events, and I have been interviewed on various podcasts. But the most recent accomplishment in raising awareness for my daughter and all other 22q warriors was hosting my first annual 2.2 for 22q awareness walk which took place on July 16, 2023. The walk was held at the Jackson Township park where 138 62
November 2023
