SUMMER 2018
A magazine for women's health
Make exercise an enjoyable part of your daily life
CASINO NIGHT 2018
Donât miss out on the action and the auctions when Casino Night 2018 comes to The Ritz-Carlton Tokyo, featuring New Orleans cuisine by special guest chef Sohan Ahluwalia, free-flowing drinks all night, a close-up magician and live entertainment. Keep beating the house and improving your odds to walk away with some great raffle prizes. Raise the stakes at the Live and Silent Auctions to help raise awareness of breast cancer.
Friday, September 7, 2018 at The Ritz-Carlton, Tokyo
Games: blackjack, Texas holdâem poker, roulette, Big Six, craps and slot machines Participation fee: 17,500 yen per person (buffet dinner, drinks included)
Special Live Auction Prize
Incredible New Orleans Cuisine!
One of the lucky bidders at the eveningâs live auction will win the chance to have Chef Sohan as their personal home cook for an evening. Imagine a chef of international renown cooking in your kitchen for you, your family and friends!
by Special Guest Chef Sohan Ahluwalia
Register now: www.rftcjapan.org Note: All proceeds from Casino Night will go toward Run For The Cure Foundationâs mission to eradicate breast cancer as a life-threatening disease in Japan.
CONTENTS 2 8 10 11
Summer Garden Party Break Through Your Exercise Barriers Making A Cartoon of Cancer
Summer 2018
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I Want to Give People the Support I Wish Iâd Had
12 14 16
Coping with Pain After Breast Surgery
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When Worry Gets Out of Control
Your Questions Answered
âWould Like to Meet âŠâ Dating After Breast Cancer
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From the Foundation (Follows English section) 1. RFTC® News 7. Resources 8. RFTC® Products 9. Dear Survivor 11. Why We Rebranded 12. What I Can Do 13. The Lemon Project Progress Report 15. What Do You Really Know About Cancer? 16. Monthly Self-Examination
RFTC® Japan is a registered NPO with the Tokyo Metropolitan Government since 2004. Our mission is to eradicate breast cancer in Japan as a life-threatening disease through education, timely screening, and treatment. Through our activities, the Foundation funds education initiatives, clinical examinations and mammography machines; donates funds to organizations that promote activities specific to the mission of the Foundation; and develops and executes community outreach programs. We have donated six mammography machines to six clinics in areas where women are underserved, more than 14,000 women have benefited from mammograms, with over 3,600 funded screenings. The Foundation holds three annual events open to the general public to raise funds in support of our cause. PiNK is Japan's one and only magazine dedicated to breast cancer. Some 18,000 copies of this quarterly magazine are distributed free-of-charge nationwide through medical institutions, cooking studios, sports shops, libraries and sponsoring companies. Please contact inquiries@rftcjapan.org for subscriptions. For more information about how to donate, become a sponsor, and/or volunteer for RFTC® Japan, please visit rftcjapan.org
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Recipes
Courtesy of Tokyo Gas Food Information Center
Summer Garden Party MENU
Seafood Season Vegetable Spanish Paella Spanish Pincho Skewers Lemon Cream Custard Strawberry Agua de Fresa (non-alcoholic) 2
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Recipes
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Recipes
Courtesy of Tokyo Gas Food Information Center
SEAFOOD SEASON VEGETABLE SPANISH PAELLA
Ingredients for 4 Servings 1 chicken thigh 1/4 teaspoon of salt Pepper (to taste) 100 g bamboo shoots, boiled Œ Paprika œ an onion 1 piece of garlic 2 tablespoons olive oil 4 whole shrimp 1 tablespoon of white wine [A] 400 ml water Saffron Œ cube of chicken stock (solid) Salt and pepper to taste 1 œ cups of rice 200 g of clams 4 lemon wedges 8 stalks of Japanese nanohana
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A Spanish-inspired Paella made with seafood and spring vegetables and seasoned with fresh saffron. Topped off with golden toasted paella bread, this dish creates a succulent blend of textures and flavors to welcome the warm weather. 4 3 6 KC A L P E R S E R V I N G | C O O K I N G T I M E : 4 0 M I N U T E S
Preparation Place clams in salt water (mimicking seawater conditions). Prep the shrimp by removing the shell, legs and whiskers. Soak the saffron in water. Boil nanohana stalks in water and olive oil.
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Instructions 1 Cut chicken thigh into bite-sized pieces and season with salt and pepper. Chop bamboo shoots into easy-to-eat pieces. 2 Cut the paprika into 4 equal pieces. Dice the onion and garlic. 3 Place paella bread in a pan and add half of the olive oil. Toast on medium heat until bread is cooked to a golden brown. Once cooked, remove the bread and add the shrimp. Add white wine and cook until evaporated.
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( E X C L U D I N G P R E PA R AT I O N T I M E )
Add the paella bread, remaining olive oil, onion and garlic in the pan, and stirfry on medium heat. Add the ingredients from section [A] to the pan and stir-fry on high heat. Once the mixture comes to a boil, add rice and lower heat from high to medium. Level the mixture in the pan and add the clams and paprika. Place the lid over the pan and cook on low heat for 20 minutes. Steam for another 10 minutes. Add lemon and nanohana.
Recipes
SPANISH PINCHO SKEWERS
Ingredients for 4 Servings Vegetable Mille-feuille [A] 8 carrot slices (5 mm) 8 cubes (5 mm thick slices) 8 pcs 8 zucchini slices (5 mm thick) 8 eggplant slices (5 mm thick) 1 tablespoon of olive oil Salt Πcube of chicken broth (solid) 3 g of gelatin powder 1 tablespoon of cold water Grilled Mushroom 4 mushrooms Salt 5 g of mayonnaise 2 stuffed olives Ham and Mango BBQ 4 pieces of mango 4 slices of raw ham 4 olives (black) Edible Pincho Skewers Spaghetti (uncooked) Frying oil
Here are 3 different Spanish Pincho Skewers made with a variety of fresh ingredients to create a colorful appetizer platter with a crunch.
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Preparation Mix the gelatin powder and cold water. Slice the stuffed olives in half. Instructions 1 Vegetable Mille-feuille: Season the vegetables from ingredient section [A] with olive oil and salt. Arrange into 8 skewers. Wrap the vegetables with 2 layers of aluminum foil and grill each side for 5 minutes. Then turn off the heat and let the vegetables sit for 10 minutes in residual heat. Keeping the grilled vegetables inside, shape the aluminum foil to form a container. 2 Place the mushrooms. stem-side up. and add salt and mayonnaise on the cap of the mushroom. Wrap the mango pieces with slices of raw ham. Wrap the ingredients in 2 layers of aluminum foil and grill each side for 5 minutes.
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Mix 80 ml of hot water with chicken stock, salt and gelatin. After mixture dissolves, pour into the aluminum foil container from Step 1 (with the vegetable skewers from Step 1 inside). Leave to cool. Break the uncooked spaghetti in half. and fry with frying oil in a pan at 160°C. Season with salt to taste. Vegetable Mille-feuille: Once gelatin is set, cut into equal pieces and spear with fried spaghetti from Step 4 to create 8 skewers. Grilled Mushroom: Use one fried spaghetti made in Step 4 to spear half a stuffed olive with 1 mushroom. Repeat to create 4 skewers. Ham and Mango BBQ: Then, using one fried spaghetti made in Step 4 to spear 1 black olive with 1 ham-wrapped mango. Repeat to create 4 skewers.
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Recipes
Courtesy of Tokyo Gas Food Information Center
LEMON CREAM CUSTARD
Ingredients for 4 Servings [A] 35 g of granulated sugar 3 tablespoons of white wine 2 tablespoon of lemon juice œ a lemon (grated) 1 egg yolk [B] 15 g of granulated sugar Vanilla bean (approx. 3cm long) 2 teaspoon of flour 250 ml of milk œ a lemon (grated) 8 finger biscuits Mint or chervil for garnish
This classic Spanish lemon custard dessert provides the perfect harmony of tartness and sweetness to top off any meal. 17 3 KC A L P E R S E R V I N G | C O O K I N G T I M E : 1 5 M I N U T E S
Preparation Cut open the vanilla pod and scrape out the beans into a bowl. Match the amount of vanilla beans with granulated sugar. Instructions 1 Place ingredients from section [A] in a pan and boil. Once the granulated sugar is dissolved, remove the pan from the stove, add œ a grated lemon, and let the mixture cool. 2 Beat the egg yolk in a separate pan. Then add ingredients from section [B] and mix. Once combined, add flour and mix.
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Add warm milk slowly into the ingredient mix made in Step 2. Place the pan on the stove on medium heat, taking care to stir. Once brought to a boil, remove from the stove and add œ a grated lemon. Break the finger biscuits in half and soak in the mixture created in Step 1. In a bowl, layer the soaked finger biscuits and the custard made in Step 3 alternatively until container is filled. Garnish with mint or chervil to your liking.
Note The vanilla beans can be combined with sugar during the preparation stage or added to the milk in Step 3.
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Recipes
STRAWBERRY AGUA DE FRESA (Non-alcoholic)
Ingredients for 4 Servings 1 grapefruit 6 strawberries 50 g of granulated sugar 2 tablespoons of white wine 250 ml of carbonated water
A colorful non-alcoholic cocktail made from fresh citrus fruits and strawberries. The refreshing flavor of this drink ensures your palette is refreshed throughout your meal. 71 KC A L P E R S E R V I N G | C O O K I N G T I M E : 10 M I N U T E S
Preparation Squeeze the grapefruit to gather the fruit juice.
Instructions 1 Crush the strawberries and mix with granulated sugar. Optional: place in a saucepan and add white wine. Boil on medium heat until alcohol is reduced. 2 Cool and add grapefruit juice. Divide it into glasses and carefully pour in carbonated water.
Note Crushing the strawberries brings out a pink color to the drink.
Interested in learning how to cook? We̢۪re looking for students www.tg-cooking.jp
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T H R O U G K A H E R B YOUR EXERCISE BARRIERS
e effects of h t h it w g in p o ec Whether youâr lacking in motivation, use st treatment or ju oving and make exercise et m these tips to g t of your daily life. ar an enjoyable p
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e all know exercise is good for us. Whether helping keep the extra pounds at bay or preventing conditions like heart disease, the health benefits of being active are clear and well documented. But physical activity can have specific benefits for people whoâve had cancer. âKeeping active throughout the cancer journey can reduce the negative impact of some cancer-related side effects such as fatigue, weight gain and lymphedema,â says Che Penny, a cancer rehabilitation specialist at Salisbury District Hospital. And thereâs no doubting that exercise can have a positive effect on mental health, from improving wellbeing and reducing anxiety to helping you feel more in control. So why do we sometimes find it so difficult to get going? Many things can conspire to stop us being as active as weâd like to be. Time is often limited, motivation might be lacking and exercise can seem like hard work. And if youâre recovering from treatment or dealing with side effects, exercising might be low on your to-do list.
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PHYSICAL BARRIERS Che says one of the most common physical barriers to exercise he sees in patients is fatigue. As paradoxical as it might sound, however, thereâs strong evidence that regular moderate activity reduces fatigue. The key word is âmoderateâ. âModerate intensity exercise should make your heart beat a little faster but you should still be able to hold a conversation,â says Che. A brisk walk is a perfect example which most people can squeeze into their daily routine. Worries about developing lymphedema, a chronic swelling of the arm after surgery, can put some women off exercising. But youâre more likely to increase your risk by overly protecting your arm and not using it enough. âSome women get a âfrozen shoulderâ from trying to protect the side theyâve had surgery on,â says Che. âThis can be prevented or helped by gentle exercises, progressed over time.â
The fact is thereâs nothing to stop anyone getting back to the activities or sports they enjoyed before treatment or from starting a new activity. The most important thing is to start slowly and build up gradually, especially if youâre new to exercise. Official guidelines recommend doing at least 150 minutes of moderate intensity activity a week, but you can split this up however you like. âThese guidelines can be achieved with daily activities, tweaking what you already do,â says Che. âFor example, park a little further away at the supermarket, use the stairs instead of the lift, or make your gardening and housework a little more vigorous.â Itâs also recommended that we all do some exercises to help strengthen our muscles, whether thatâs yoga, dancing or lifting light weights.
MENTAL BARRIERS While physical effects like fatigue can put a dampener on plans to get active, sometimes the mental barriers are just as hard to overcome. âSome people have never exercised before or had no desire to,â says Che. Itâs really important, he says, that everyone knows about the positive outcomes from physical activity, âso they know they can help control their weight, increase their wellbeing and may lower the risk of recurrence by starting an exercise program,â he says. The idea of going to a gym can fill people with dread. âA lot of people think that a gym or exercise class if full of lycra-clad, muscle-bound men and women, all super fit, will look and laugh at the newbie,â says Che. âThe majority of facilities cater for all ages, shapes and sizes.â Signing up to a gym, class or group with a friend can be a great way to motivate yourself. âIf the gym isnât for you, go for a walk, go for a swim, do exercise at home⊠the options are endless,â says Che.There are women whoâve enjoyed activities
as diverse as Nordic walking, aquacise, dragon boating and even curling. âExercise doesnât have to be expensive,â says Che. âThe internet is a great tool for finding local walking, Tai Chi or yoga groups, as well as some useful home exercise plans.â Strength and Flex, for example, is a five-week exercise plan for beginners, to improve strength and flexibility, available on the NHS website (nhs.uk). Think you hate exercising? Perhaps you simply havenât found the right activity. Worried you wonât stick at it? Tracking your progress can be a great way to stay motivated. Think exercise is too hard? Start slowly and build up. Often the hardest thing is getting started. But once you do, exercise can become an enjoyable part of everyoneâs life.
CHEâS TOP FIVE TIPS FOR GETTING ACTIVE 1. Goals Make them realistic and achievable and, more importantly, rewarded when theyâve been achieved!
2. Friends Get a friend to exercise with you, whether itâs going for a walk or swim together, or joining the local gym.
3. Variety Mix what you do throughout the week. Gym one day, yoga the next, country walk the day after.
4. Music Make yourself a decent playlist, or find your favorite album, and blast it out when youâre doing the housework or on your walk.
5. Enjoy If you donât enjoy your chosen activity, you wonât stick to the program. It should be fun, not a chore!
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MAKING A CARTOON OF CANCER Artist Christine Forbes began creating cartoons during her breast cancer treatment. A humorous take on the situations she found herself in, the cartoons helped her cope during a difficult time.
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t all happened very quickly. Iâd had pain in my breast for a while, but thought it was mastitis. Then I found a small lump. I saw the doctor, who sent me to the hospital. Within a few weeks Iâd had an ultrasound and biopsy, and was diagnosed with breast cancer. I was fortunate to suffer few side effects from the chemo. Iâd thought about doing a cartoon a couple of years before and always wanted to have a crack at it. I spent the time I was laid up developing this character who was going through the same thing as me but who wasnât quite me. I called her The Artbod. When youâre going through treatment it can feel like youâre in a parallel universe. Iâve made about 20 cartoons so far of the funny people Iâve met and things that happened to me. Some of the situations I found myself in were
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so silly they just lent themselves to something humorous. One time I was admitted to the hospital and it was so busy they had to put me in the kiddiesâ room. Seeing the funny side of it meant I wasnât worrying about myself, even when I was very ill. I really think it got me through it. You canât sit there and dwell on how ill you are; you just have to try to adapt to the situation. It was my daughterâs idea to share the cartoons on Instagram. I hope theyâre relevant to some people, and theyâll think: âThatâs something Iâve had to put up with.â Apart from a very sick period, I got through treatment extremely well. My family and friends have been incredibly supportive, as has West Dean College, where I do a lot of teaching. And aside from being tired, I feel very good.
I WANT TO GIVE PEOPLE THE SUPPORT I WISH IâD HAD Gemma Wells, 24, from Edinburgh, supports women with an inherited altered breast cancer gene through Breast Cancer Careâs Someone Like Me service.
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hen I had a double mastectomy with reconstruction in January 2016, I felt as though I had little support. My mum had breast cancer when I was about 12. Then her cancer returned when I was about 20. The second time my mum was diagnosed I had to be so strong, for my mum and my little brother. She was offered genetic testing, and tested positive for the altered BRCA1 gene. As a result I went for the test, too. At the time Iâd never heard of it. It was starting to be in the news with Angelina Jolie, but I still didnât really understand. I thought Iâd have the test and theyâd tell me itâs all fine. When they told me I had inherited the altered gene I thought: but I look fine, I feel fine, thereâs nothing wrong with me. I found out about the BRCA1 gene â which significantly increased my risk of breast cancer â in March 2014, at age 21.
The right decision I was told about different solutions to help manage my risk, but because of my age nothing was really relevant at the time. I probably couldnât have surgery until I was 25, or screening until I was 30. I tried to forget about it. But every time I heard the word âcancerâ I thought: Maybe today is the day Iâll get it. It felt like cancer was everywhere and I couldnât go through life avoiding it. Then I found a lump in my breast. It turned out to be a cyst, but I realized I had to make a decision. It felt like a sign. I met with a surgeon and saw a psychologist. I had so many different appointments. They told me all the positives as well as the negatives â the nasty stuff â to help me make up my mind. I was very mature for my age so they realized I knew what I was doing, and they agreed to do the surgery.
I had the surgery at age 23. It was absolutely the right decision.
Gaining confidence I had a lot of support from family, especially my mum. She saw it as her own fault, and while she wanted me to have the surgery she didnât want to push me into anything. My partner was really supportive, too. I didnât really talk about it to other people though. I really wanted someone who didnât know me but who knew what I was going through, who could answer all my questions â like could I ever wear a bikini again? After my surgery I wanted to support other people, so I contacted Breast Cancer Care. I started as a Someone Like Me volunteer, offering one-toone telephone support, last April. I share my experience of having a BRCA1 diagnosis, but Iâm also there if anyone whose mum has breast cancer wants to talk. Before becoming a volunteer I never really spoke about my experience. I avoided the subject. Itâs made me really confident in talking about it, and now Iâm really proud to because it has a positive effect on other people. To anyone newly diagnosed with an altered BRCA gene, Iâd say take time to do whatâs right for you. And go out and look for support. The surgery was not as bad as I thought it would be. I thought Iâd never see the light at the end of the tunnel, but one year on Iâm absolutely fine. I may get frustrated about little things. But when I take a step back I realize it was worth it.
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Coping with Pain After Breast Surgery Senior Clinical Nurse Specialist Rachel Rawson looks at ways to manage pain associated with breast surgery.
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hereâs no set way for how you might feel after treatment for breast cancer, and no two people are
the same. Treatments for breast cancer may cause some pain while youâre having them or for some time afterwards. Most people can manage pain after surgery by taking regular pain relief and doing arm and shoulder exercises. But for some people, pain can be longer lasting, and this can have an effect on everyday life.
Pain soon after surgery Immediately after surgery for breast cancer, and in the weeks that follow, youâll probably experience pain and sensations such as burning and numbness in the scar area and under the arm. If youâve had reconstruction surgery, you may have some stiffness or soreness in and around the operation site for several weeks or months afterwards. Taking regular pain relief, and continuing to do your post-operative exercises, can help to ease the area and reduce the pain. As healing takes place and you get more movement in your shoulder, the pain and sensations should subside â and for most people this does happen within about three months.
Longer-lasting pain However, for some people, nerve pain and sensitivity can carry on, and this can affect daily life in many different ways. It may interfere with your sleep or how you feel about your body, your ability to exercise or to find a comfortable bra, and intimacy with your partner. Longâterm pain is associated with nerve damage, which happens during surgery to the underarm (also called the
axilla). It occurs when the nerves supplying the skin have been damaged or stretched. People often describe this type of pain as shooting or burning, pressure sensations or numbness in the upper arm, chest area and under the arm. Recent research suggests that pain is more common in people who have had their lymph nodes removed, rather than a sentinel lymph node biopsy, when only the first (sentinel) node or nodes are removed. Simple pain relief, such as paracetamol or anti-inflammatory medications as tablets or gel, may help. But if the pain is not controlled and is affecting day-to-day life, youâll need to let your hospital team or GP know. They can fully assess your symptoms and may prescribe alternative treatments, such and antidepressants or anti-epileptic drugs, both of which have been shown to help with never pain associated with surgery.
Cording People who report cording often have pain and limited shoulder movement, and can feel tight âcordsâ of tissue stretching from under the arm and down the inside of the arm, sometimes as far as the wrist. Youâll find that doing your post-operative arm and shoulder exercises is very difficult. Cording is thought to happen when thereâs disruption to the lymph and blood vessels when lymph nodes are surgically removed from under the arm. Stretching the cord can improve the symptoms, though you may need physiotherapy to help with this. Cording does improve over time and usually gets better within three months. Some people develop cording more than once. Let your breast cancer nurse know if you think you have developed cording so they can refer you to the physiotherapist.
Phantom breast sensations and pain
Recent research suggests that pain is more common in people who have had their lymph nodes removed
Phantom breast pain or breast sensations can develop after a mastectomy. Phantom breast sensations are usually not painful, but it can feel as if your breast is still there. Some people will also have a feeling of pain, and this is known as phantom breast pain. The symptoms of phantom breast pain can be felt as pain in the area where the nipple was, or can involve the whole area where the breast was removed. For some people, phantom breast pain can last for years after the operation. Phantom breast pain is related to nerve damage at the time of surgery. Because of this, the most effective types of pain relief are those used to treat nerve pain. If you experience phantom breast pain and simple pain relief doesnât help, talk to your GP or hospital team.
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YOUR QUESTIONS ANSWERED Breast Cancer Careâs experts answer your questions about breast cancer and its treatment.
Q
I read in the paper that you can have radiotherapy at the same time as your operation. Is this available on the NHS? Iâd rather this than having to travel to the hospital every day.
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The type of radiotherapy you read about is called intraoperative radiotherapy. Itâs not yet widely available and isnât suitable for everyone. The most common type of radiotherapy used to treat primary breast cancer is external beam radiotherapy. It usually involves going to the hospital once a day for three weeks. Over the last few years, studies have looked at giving a single dose of radiotherapy at the same time as the operation to remove breast cancer. This is intraoperative radiotherapy. Itâs given directly to the area where the cancer was, after it has been removed and while the person is still under anesthetic. Your specialist can tell you if youâre eligible for intraoperative radiotherapy and whether you can be referred to one of the hospitals currently offering it. Anyone considering it should be told about the possible benefits and drawbacks. Benefits include no delay between surgery and radiotherapy and usually only one hospital visit. Women tend to have fewer skin reactions compared with external beam therapy. Possible drawbacks include having to spend longer under anesthetic. More women have a local recurrence (breast
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cancer which has come back in the chest/breast area or in the skin near the original site or scar) after intraoperative therapy. Despite this, overall survival seems to be very similar to external beam radiotherapy, but longer follow up is needed before this is known for sure. Some women who have intraoperative radiotherapy still need to have external beam radiotherapy as well. At the time of writing, the National Institute for Health and Care Excellence (NICE) is making a final decision about whether to recommend intraoperative radiotherapy for use in the NHS in England, and in what circumstances. Only a few hospitals have the equipment so people who donât live near one of these will have to travel greater distances for this treatment.
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Iâve just finished treatment, and Iâm worried about my breast cancer coming back. What symptoms should I report to the hospital?
A Q
I had a mastectomy for DCIS last year, but my neighbor has had a lumpectomy for breast cancer. Does this mean my cancer was more serious?
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Having a mastectomy doesnât mean that your cancer was more serious than someone who has had a lumpectomy â it just means that this was the right surgery for you. There are many different types of breast cancer. DCIS, which stands for ductal carcinoma in situ, is an early form of breast cancer. The cancer cells have developed within the ducts of the breast, but have not spread outside the ducts into the surrounding breast tissue or to other parts of the body. As they are confined to the breast ducts, DCIS has a very good outlook. The aim of surgery is to remove all the cancer from the breast. The surgery youâre offered will depend on different factors such as the size of cancer and where it is within the breast. There are two main types of breast surgery. Breastconserving surgery, also known as wide local excision or lumpectomy, is the removal of the cancer with a margin, or border, of normal breast tissue around it. A mastectomy is removal of all the breast tissue including the nipple area. Youâre more likely to be offered a mastectomy if the cancer affects a large area of the breast or the cancer is in more than one part of the breast.
Having a mastectomy doesnât mean that your cancer was more serious than someone who has had a lumpectomy
Most people have no more problems after their treatment. But sometimes breast cancer can come back, and itâs normal to worry about this happening. Having breast cancer means you have a slightly higher risk of developing a new primary breast cancer compared to someone whoâs never had breast cancer. Whatever type of surgery you had, be aware of any changes to the breast, chest or surrounding area, even if youâre still having followup appointments or regular mammograms. A new primary breast cancer can occur in the same breast after breastconserving surgery, or in the other breast. Sometimes breast cancer can come back in the chest or breast area, or the skin near the original site or scar. This is local recurrence. If breast cancer comes back and spreads to the tissues and lymph nodes around the chest, neck and under the breastbone, itâs called locally advanced breast cancer. Get used to how your scar feels, and check any remaining breast tissue, under your arm and the area around your neck regularly. If you notice a change, contact your hospital team if youâre still under their care, or see your GP to get it checked. If breast cancer spreads to other parts of the body, itâs called secondary breast cancer. Secondary breast cancer is most likely to develop in the bones, lungs, liver and brain. And while it can be controlled, sometimes for many years, it canât be cured. Many symptoms of secondary breast cancer are similar to those of other conditions; but if you notice a different or new symptom that persists and isnât related to general coughs, colds or aches and pains, report it to your hospital team or GP. Itâs difficult to list all of them, but symptoms to be aware of include: ⢠Pain in your bones, such as the back, hips or ribs, that doesnât improve with pain relief or lasts for more than one to two weeks and is often worse at night ⢠Unexplained weight loss and a loss of appetite ⢠Constantly feeling sick ⢠Discomfort or swelling under the ribs or across the lower abdomen ⢠Feeling constantly tired ⢠A dry cough or a feeling of breathlessness ⢠Severe or ongoing headaches ⢠Altered vision or speech
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âWould Like to Meet âŠâ Dating After Breast Cancer We asked a group of women to share their experiences of dating after a breast cancer diagnosis.
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he explosion of dating sites and apps may have revolutionized the way potential partners can meet nowadays. And a quick Google search for âdating adviceâ brings up countless pages dedicated to the topic. But if youâve had breast cancer, there may be additional worries to negotiate when looking for a match. Who better to help you navigate the world of dating after a breast cancer diagnosis than the women whoâve been there themselves?
The right time One of the first dilemmas a woman may face when meeting someone new is when and how to broach the subject of breast cancer. âFriends urged me to try online dating, but whenâs the right time to let someone know that you only have one breast?â ponders Penny, who was diagnosed at 52 in 2014. âDo I put it on my dating profile so nobody gets a shock?â Sue, 47 and diagnosed 10 years ago, says she initially felt like she needed a plan for how and when to tell people. âBut I soon realized it was a very individual thing; and that if and when the time was right, I would broach it.â The question of when to tell someone is closely linked to a fear of how theyâll react to the news. âI confess I feel terror at the idea that I might date someone, grow to like them and that theyâll bail out when they hear my history,â says Penny. âOr even worse when we get intimate they are horrified by what they see.â Sue also feared the reaction she might face. âI did have a fear that no one would want to be with me once they found out about it,â she says. âI couldnât imagine taking my clothes off in front of anyone again.â
Negative reactions A few of the women we asked did report that some potential partners lost interest when the topic of breast cancer came up. Penny recalls a date that she was set up on by a friend over a year after her diagnosis. It was inevitable, she says, that the subject would arise because her treatment was so recent. âIt wasnât until my date questioned me about what type of cancer Iâd had that I realized how embarrassed I was about making the disclosure. It may have been bad timing; but swiftly after I told him my cancer was in my breast, he up and left. I hadnât intended to talk about my breasts on my first date, and it seemed he was just as reluctant to hear about them!â Clair, 40 and diagnosed at 38, received a similarly curt response from an online suitor. âI did chat to one man who I really had a lot in common with and we got on really well. I decided to tell him and was shocked by his response. He normally wrote long messages; but his response was: âIâm sorry to hear that, Iâm not ignoring you I have to go out.â This really hurt.â
An amazing response Negative reactions are not necessarily the norm, though, and some women find they neednât have worried about how their date would respond. âI wanted to meet a man and for him to get to know me before telling him,â says Clair. âI had almost given up hope when I received a lovely message. We chatted daily. I felt like I had met my soul mate. When he asked me for a date I decided he had to know, so I started typing the message while in a flood of tears. I was really scared of what his response may be. The anxiety became intense when I saw âTyping a messageâ flash up on my phone. It seemed to take forever. His response was amazing: he said it re-
ally wasnât an issue for him and he still wanted to take me out.â Sue also found her initial fears of a bad reaction to be unfounded. âI remember being incredibly nervous the first time I needed to tell someone,â she says. âBut he reacted in a totally accepting way, acknowledging how hard it must have been to tell him. Subsequent partners have also all taken it in their stride.â
ageing bodies,â says Penny. âI wonder how they would feel about not having a breast to add to their insecurities!â Sue says she was initially terrified about the prospect of intimacy with a new partner and what they might make of her surgery. âBut without exception the men I have had relationships with have all been totally accepting,â she says. âThatâs not to say I havenât felt selfcoscious about it and really miss how I felt before breast cancer â there is a mourning for how it used to be.â Anyone worried about this sensitive topic might find Breast Cancer Careâs booklet Your body, Intimacy and Sex useful.
â ... we arranged a second date. Four months later, we are We found love still together and Despite the worries common to most whoâve been through breast very much in love.â women cancer, weâve heard several stories from
Clair recommends getting to know someone a little and picking the right moment to tell them. âAlthough it hurts to be rejectedâ she says, âdonât give up. Dating sites do work, just be patient.â Sue has similar advice for anyone worried about telling someone: âTell potential partners at the time that feels right for you â donât feel under pressure to say something the minute you meet someone. There are plenty of people out there who will be totally accepting of any changes as a result of breast cancer. If not, then this is their issue and not yours.â
An intimate topic Added to the fear of telling someone is the anxiety about becoming intimate for the first time. âI know of women in stable and happy relationships who feel shy about their
women who are going on to start a new and loving relationship. Jeanette, who was diagnosed at 45, went on her first date a year after diagnosis. He was a friend of a friend and knew about her cancer. âBut I wasnât sure if he knew I had had a mastectomy,â says Jeanette. âOur relationship progressed and we got closer, but it was still never discussed. âI knew I would have to broach the subject one day, so I told him by text (it was easier than a face-to-face conversation) that I needed to go into the hospital for another operation, my breast reconstruction. I was scared telling him because I didnât know how he would react. I gave him the choice there and then to walk away if he couldnât cope. He was lovely and said these words Iâll never forget: âI love you for youâ. It didnât bother him that I only had one breast.â And what about Clairâs first date? âI was very nervous but, as I had hoped, we hit it off instantly,â she says. âHe asked me about the cancer and we arranged a second date. Four months later, we are still together and very much in love.â
P iNK ⢠S U MMER 2018
17
When Worry Gets Out of Control Senior Clinical Nurse Specialist Rachel Rawson explains how to spot the signs of anxiety and explores some simple ways of coping.
A
nxiety is a normal human experience that many people live with. But when it becomes very strong or lasts for a long time it can be overwhelming. After breast cancer itâs not unusual for anxiety to get worse or to appear for the first time. It can leave you with a sense of worry or dread â where hours can be spent thinking over worst-case scenarios â and gets in the way of daily life.
When the bucket overflows Being diagnosed with breast cancer, having treatment, dealing with side effects, then learning to find your new normal is stressful. While having a degree of stress in life is fine, when it builds up it can lead to anxiety, which can be hard to cope with on a daily basis. The charity Anxiety UK has a useful way to think about stress and anxiety. Imagine that stress levels are like water
18
PiN K ⢠SUMMER 2 0 1 8
in a bucket. If stressors are added to the bucket, even tiny ones like the school run or commuting to work, over time the bucket fills up. Then one day, often after what seems like a trivial trigger, it overflows. At times like this the simple things in life can seem overwhelming, and the physical and psychological symptoms that anxiety brings can be difficult to understand and cope with.
Recognizing the signs Physical feelings of anxiety can include a racing heart, light-headedness, headaches, churning in the pit of the stomach and, for some people, panic attacks. The psychological signs of anxiety can be harder to identify. Experienc-
ing a sense of dread or numbness, the mind racing, restlessness, not being able to concentrate and fearing the worst are all symptoms of anxiety. Recognizing these signs and symptoms can sometimes be difficult and seeking help and support is often the hardest thing to do. But taking this first step can be the key to breaking the cycle of feeling fearful and insecure.
Reducing anxiety Finding a way to have a bucket with holes in the bottom can, in the long term, reduce overall stress levels and anxiety. Each one of these holes could be something positive thatâs done to manage anxiety. There are lots of different options but it will take time to find out what works for you. Being able to recognize what makes anxiety worse, talking about it and seeking help are all positive steps towards finding a way to manage anxiety.
9 ways to reduce anxiety
1
Talking about what triggers anxiety with a friend or partner â someone who knows you well and you can trust â can help. Talking to someone away from the home environment can also help. Speaking to a breast care nurse, calling Breast Cancer Careâs Helpline, posting on the online Forum or joining a support group can be useful ways of knowing youâre not alone.
2
Breathing more deeply can make you feel a lot calmer. Breathe in through your nose and out through your mouth. Try to keep your shoulders down and relaxed, and place your hand on your stomach â it should rise as you breathe in and fall as you breathe out.
3 4
Keeping a diary can help you see how youâre feeling day to day, as well as what helps or triggers stress and anxiety. Exercise can help you manage anxiety and panic attacks. Thinking about exercising can be overwhelming, but just going for a short walk every day can give you some time to yourself. There are lots of different types of exercise. The important thing is to find something you enjoy.
5
Reassure yourself that the symptoms youâre experiencing are caused by anxiety and will pass. This can help you feel calmer and less fearful of future bouts of anxiety.
6
Yoga and mindfulness may help you relax, sleep better and manage the symptoms of anxiety and panic attacks. There are lots of mindfulness apps available, some of which, like Smiling Mind, are free.
7 8
Big task can feel impossible, but breaking them down into smaller tasks can make them feel easier to complete. Talking therapies, such as cognitive behavioral therapy (CBT), are becoming more widely available. CBT focuses on changing the way you think and behave and teaches coping skills for dealing with difficult problems. Having access to counseling or therapy may also be useful. A trained therapist will work with you to understand the causes of your anxiety, and to find strategies to help maintain it.
9
Certain types of medication can be helpful and these can be used in addition to other self-help strategies. Antidepressants and beta-blockers are two of the most commonly used medications.
P iNK ⢠S U MMER 2018
19
RFTC NEWS ®
@RFTCtokyo
Pink Ball 2018 La Vie en Rose
TE XT BY AND REW HOWI TT / PHOTOS BY BENJ AMI N PA R KS A N D ST E VE MO R IN
Hold me close and hold me fast The magic spell you cast This is la vie en rose. â from Edith Piafâs internationally renowned song, âLa vie en roseâ (1947).
La vie en rose, directly translated as âlife in
pink,â is a French expression that means âlife through rose-tinted glassesââthat you see
the good in life, that you find joy in living. Run
set of taiko drum pieces, and Jamaican singer Monique Dehaney gave a spirited perfor-
mance of jazz standards, also singing âLa vie en rose.â
âPink Ball is always very entertaining,â said
Yoshikazu Yann Gahier, president and CEO
of Baccarat Pacific K.K. âI have a good time
each time I come. And the food is always very high-quality.â
This year was no exception. More than
for the Cure® Foundation has this in mind as
230 guests were treated to a delectable
cancer; it wants to see as many people as
association of luxury hotels and restaurants,
it works to achieve its aim of defeating breast possible keep experiencing the joys of life and holding their loved ones close.
Pink Ball 2018 â La Vie en Rose took place
in the Galaxy Ballroom at The Westin Tokyo
on March 23rd. It was a celebration of life and all the great things it has to offer: great entertainment, great food, and great people.
âEverythingâs gorgeous here,â said Hiroshi
Fueki, president of Medcore Associates. âItâs another world.â
The entertainment for the evening was
stirring and joy-filled. The Tenrin Daiko
1
Darakan Shido drummers played a powerful
PI N K ⢠SUMMER 201 8
five-course meal. Relais & Châteaux, a global arranged for two of its chefsâKazunori Otowa from the Otowa Restaurant in Utsunomiya and Hiroshi Yamaguchi from Kobe Kitano Hotel in Kobeâto prepare the dinner. It
included umamais roasted Kobe Beef, with
the beef donated by Asahiya Seinikuten; and
Filet de sawara, with the sawara, or Japanese Spanish mackerel, donated by Miyoshi Suisan.
âBut itâs not just a party,â said Takeshi
Suzuki of New Balance Japan, a longtime
supporter of the foundation. âWe all have
Run for the Cure Foundation
âWe are on a mission to empower Japanese women, ensure quality care for all, and save livesâ
P I NK ⢠S U MME R 2018
2
RFTC® NEWS
something in common here; thereâs a real feeling of community.â
Without a doubt, this feeling is founded
on a shared desire among the guests to do something to stop breast cancer and save
lives. As Run for the Cure® Foundationâs largest fundraising event of the year, Pink Ball is
an opportunity for generosity. This year, more than ¥16 million was raised.
The highest bid of the evening on a live
auction prize was for New York Nostalgia,
which sold for ¥1.4 million. It included a pair of Polaris Business Class tickets to New York with United Airlines, two nights in a deluxe
some hard truths about breast cancer. She
dispelled 10 commonly held myths, such as,
âBreast cancer is preventableâ; âSmall-breasted women have less chance of getting breast cancerâ; and âMen donât get breast cancer.â
Of the myth, âWearing deodorant causes
breast cancer,â she quipped: âLucky for usâ and those around usâthis is not true.â
Another myth, that âa breast cancer diag-
nosis is a death sentence,â she decried as patently false.
âHuge strides have been made in the
prognosis for breast cancer patients in
Salon at The Surrey Hotel for two, and a car
diagnosis is not a death sentence.â
rental with Hertz for up to seven days.
The silent auction prize Vietnamese River &
Beach Retreats, which included three nights
at the Anantara Hoi An Resort and two nights at Six Senses Ninh Van Bay, raised ¥255,000. However, not everything during the
evening was rose-tinted. In her speech, Vickie
PI N K ⢠SUMMER 201 8
of Run for the Cure® Foundation, shared
room at the InterContinental New York Barclay for two, three nights in a Grand Deluxe
3
Paradise Green, founder and chairperson
the last 10 to 15 years,â she said. âA Green then presented the
Unknown Hero Award, given
annually to someone who has made
a âprofound and positive differenceâ in
helping to tackle the problem of breast
cancer in Japan. This yearâs recipient was Dr. Naoto Ueno, a professor of medicine at The
Dr Naoto Ueno, who is a two-time cancer survivor, gives RFTC® founder Vickie Paradise Green a hug after his speech
âYou have made an impact because of your donations and supportâ
and community outreach programs have
grown lots since our first run event in 2002,â University of Texas MD Anderson Cancer Center. He also supervises trainees in the Japan TeamOncology Program (J-TOP).
In his acceptance speech, Dr. Ueno spoke
about the need for such a program for Japa-
said Green. âOur brand messaging no longer
accurately reflects what we offer and who we are. Itâs time for a change so that our spon-
sors, supporters, and volunteers understand what weâre about today.â
A short video was then shown, featuring
nese doctors.
the many activities the foundation is engaged
tion skills, there is no education about lead-
Cure®/Walk for Life event; Casino Night;
âThere is no education about communica-
ership, there is no education about the team
environment in healthcare in this country,â he said. âWe felt that we needed to change this
⊠Weâve been doing this for a long time now, and it has really made an impact. You have
made an impact because of your donations and support to us.â
in today, including the Tokyo Run for the
Cuisine for the Cure; PiNK magazine; PiNK
Beauty Party; and The Lemon Project. At the
end of the video, a new name and logo for the organization was revealed. Run for the Cure® Foundation will now be known as RFTC® â
Japanâs Leading Breast Cancer Foundation. âTonight, we recommit ourselves to the
To date, more than 2,000 Japanese profes-
many tasks that lie ahead,â said Green. âWe
With so many Run for the Cure® Foundation
women, ensure quality care for all, and save
sionals have been trained through J-TOP.
supporters gathered, it was an ideal opportunity to make an important announcement.
âRun for the Cure Foundationâs fundraisers
are on a mission to empower Japanese
lives. Together we are making a difference.â
In other words, RFTC® is helping women in
Japan to experience la vie en rose.
P I NK ⢠S U MME R 2018
4
RFTC® NEWS
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ãŸããUnknown Heroã®æè³åŒãè¡ãããä» å¹Žã¯ç±³ãããµã¹å€§åŠïŒïŒ€ã¢ã³ããŒãœã³ããã»ã³
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PI N K ⢠SUMMER 201 8
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ä» å¹Žãããããã®åæãšè³ åã«æ¯ãããã ãPINK BALLããç±æ°ãå·ããããªããŸãŸã²ã¹ã ãèŠéãæ·±å€24æã«å¹ãäžãããŸãããä¹³ãã
ã®çœ¹æ£è ãå¢ãç¶ããŠããä»ãRFTCã®æŽ»å㫠察ããé¢å¿ã®é«ãŸããæããäžæ¥ã§ããã
RFTC® Japan Partners (Alphabetical order)
P I NK ⢠S U MME R 2018
6
ãªãœãŒã¹
Resources RFTC® Japanããã³ã¢ã°ã©ãã£ãŒæ©æãå¯èŽããå©æéã®æäŸãè¡ã£ãïŒ
RFTC® Japanã®æŽ»åã«ãååã ãæ¯æŽããã ããŠããå»çæ©é¢ã§ãã
å¯èŽãã6å°ã®ãã³ã¢ã°ã©ãã£ãŒæ©åšã¯ãåèšããã19,180人ã®å¥³æ§ã«
Medical Institutions that support RFTC® Japan.
è¡ã£ãŠããå»çæ©é¢ã¯äžèšã®ãšããã§ãã
å©çšããŠé ããŠããŸããæ€èšºãå蚺ããçŽ60%ã®å¥³æ§ããåããŠãã³ã¢ã°ã©
ãã£ãŒæ€èšºãå蚺ããããšã¢ã³ã±ãŒãã«åçããŠããããã³ã¢ã°ã©ãã£ãŒæ€èšº ãæ®åããŠããªãããšãç©èªã£ãŠããŸãã
Below is a list of hospitals where RFTC® Japan has donated a mammography machine.
19,180 women have received screenings on these machines and 60%
indicated it was their first-ever screening.
åèç / Chiba
åèå¥çç é¢ / Chiba Kensei Hospital
ã262-0032 åèåžè±èŠå·åºå¹åŒµçº4-524-2
(4-524-2 Makuhari-cho, Hanamigawa-ku, Chiba-shi 262-0032) tel. 043-276-1851
www.chibakensei-hp.jp
æ±äº¬éœ / Tokyo
èè·¯å åœéç é¢ / St. Luke's International Hospital ã104-8560 æ±äº¬éœäžå€®åºæç³çº9-1
(9-1 Akashi-cho, Chuo-ku, Tokyo 104-8560) tel. 03-3541-5151 www.luke.or.jp
æå倧åŠç é¢ ä¹³è ºå€ç§â¢ãã¬ã¹ãã»ã³ã¿ãŒ / Shouwa University Hospital Breast Center
ã142-8666 æ±äº¬éœåå·åº æã®å°1-5-8
(1-5-8 Hatanodai, Shinagawa-ku, Tokyo 142-8666) tel. 03-3784-8000
showa-breast.com
åèæ°éœåžã©ãŒãã³ã¯ãªãã㯠/ Chiba Shintoshin Rurban Clinic
æ±äº¬å ±æžç é¢ / Tokyo Kyosai Hospital
(138 Soufuke, Inzai-shi, 270-1337)
(2-3-8 Nakameguro, Meguro-ku, Tokyo 153-8934)
ã270-1337 åèçå°è¥¿åžèæ·±138 tel. 0476-40-7711
www.chibashintoshi.or.jp
ã153-8934 æ±äº¬éœç®é»åºäžç®é»2-3-8 tel. 03-3712-3151
www.tkh.meguro.tokyo.jp
èšåç / Ibaraki
ä¹å· / Kyushu
ã300-1152 èšåççš²æ·é¡é¿èŠçºèå·æ¬é·2018-7
ã892-0833 鹿å 島ç鹿å 島åžæŸåçº3-31
ãŸã€ã°ããŠã£ã¡ã³ãºã¯ãªãã㯠/ Matsubara Womenâs Clinic (2018-7 Arakawahongo, Ami-cho, Inashiki-gun, Ibaraki 300-1152) tel. 029-830-5151
www.happy-mw.com
å²éç / Gifu
å»çæ³äººéŠšä»äŒ è€æç é¢ / Fujikake Hospital ã509-0214 å²éçå¯å åžåºèŠ876
(876 Hiromi, Kani-shi, Gifu 509-0214) tel. 0574-62-0030
www.okbnet.ne.jp/~fuj598
倧éªåº / Osaka
糞æ°ã¯ãªãã㯠/ Itouji Hospital
ã559-0016 倧éªåžäœä¹æ±åºè¥¿å è³å±1-1-6
(1-1-6 Nishikagaya, Suminoe-ku, Osaka 559-0016) tel. 06-6681-2772
瀟äŒå»çæ³äººåæäŒ çžè¯ç é¢ / Sagara Hospital (3-31 Matsubaracho, Kagoshima-shi, Kagoshima 892-0833) tel. 099-224-1811
ãã¬ã¹ããã¢å®®åŽç é¢ / Breastopia Miyazaki Hospital ã880-0000 å®®åŽåžäžžå±±2-112-1
(2-112-1 Maruyama, Miyazaki-shi, Miyazaki 880-0000) tel. 0985-32-7170
www.breastopia.or.jp
åæµ·é / Hokkaido
瀟äŒå»çæ³äººåæ åæã¯ãªãã㯠/ Hokuto Clinic ã080-0833 垯åºåžçš²ç°çºåºç·7-5
(7-5 Kisen, Inadamachi, Obihiroshi, Hokkaido) tel. 0155-48-8000
www.hokuto7.or.jp
www.myclinic.ne.jp/itoujiclinic/pc/index.html å»çæ³äºº çŽå¹žäŒ è±äžæž¡èŸºç é¢ / Toyonaka Watanabe Hospital ã561-0858 倧éªåºè±äžåžæéšè¥¿çº3-1-8 (3-1-8 Toyonaka-shi, Osaka 561-0858) tel. 06-6864-2301
www.watanabe-hp.or.jp/hospital
7
PI N K ⢠SUMMER 201 8
NPOæ³äºº RFTC® Japan
ã141-0032 æ±äº¬éœåå·åºå€§åŽ3-6-28 Daiwa倧åŽ3äžç®ãã«6é
(Daiwa Osaki 3-chome Bldg. 6F, 3-6-28 Osaki, Shinagawa-ku, Tokyo 141-0032) Tel: 03â-â6420â-â0860 Email: inquiries@rftcjapan.org rftcjapan.org
RFTC Products Online Shop rftcjapan.org/shop
NEW!
RFTC T-shirt
ãªã¹ã¹ã¡ïŒ
2017
S/M/L/XL ¥ 1,000
RFTC ãã£ãã RFTC Cap
RFTC T-shirt 2016
RFTC T-shirt
S/XL Only
Â¥ 500
2015
Â¥ 1,000
S/L/XL Only ¥ 1,000
Until Thereâs a Cure ãã³ã¯ãã³ã Pink Band MïŒL Â¥ 300
2012
XL Only ¥ 1,000
RFTC® Japanã¯ãRun for the Cure®/Walk for Lifeã€ãã³ãã®ãªãªãžãã«T-ã·ã£ãã«ããã¥ãŒãã©ã³ã¹ãžã£ãã³ã®åè³ããããŠããŸãã Our Run for the Cure®/Walk for Life event t-shirt is sponsored by New Balance Japan.
Shop online at rftcjapan.org/shop or email/fax us your
åååãè³Œå ¥ç¹æ°ããååãäœæãé»è©±çªå·ããèšå ¥ã®ãããã¡ãŒã«/
stock availabilities, please make payment to the account
åèšéé¡ããç¥ããèŽããŸãããªã³ã©ã€ã³ã·ã§ããããããè³Œå ¥ããã ããŸãã
order. After we get back to you with shipping fees and below with your full name.
Bank fees should be incurred by purchaser.
ãã¡ãã¯ã¹ã§ãç³ã蟌ã¿äžãããåšåº«ã確èªã®äžãéæãåããã rftcjapan.org/shop 代éã¯ãäžèšéè¡å£åº§ã«æ¯ã蟌ã¿ã
ãé¡ãèŽããŸãã ïŒæãå ¥ããŸããæ¯èŸŒææ°æã¯åèªãè² æ äžããã
ãæ¯æãéè¡å£åº§:
Mitsubishi Tokyo UFJ Bank
E-mail: inquiries@rftcjapan.org
ãã¯ãïŒ ã©ã³ãã©ãŒã¶ãã¥ã¢ãã¡ã³ããŒã·ã§ã³
Tokuhi) Run for the Cure Foundation
rftcjapan.org
äžè±æ±äº¬UFJéè¡ æžè°·æ¯åº æ®é 3609116
Shibuya Branch Futsuu 3609116
Tel: 03-6420-0860 Fax: 03-3492-1202
P I NK ⢠S U MME R 2018
8
ãµãã€ããŒã®æ¹ãžã®ã¡ãã»ãŒãžã³ãŒããŒ
SURVIVOR 2018 幎 3 æ 23 æ¥ïŒéïŒãŠã§ã¹ãã£ã³ããã«æ±äº¬ã«ãŠããã³ã¯ã㌠ã«ããéå¬ããã²ã¹ãã®çããŸãšæŽ»å 16 åšå¹Žããç¥ãããŸããã äŒå Žã§ã¯ãµãã€ããŒã®æ¹ãžã®ã¡ãã»ãŒãžãæžããŠããã ããDear Survivorãã³ãŒããŒãèšããã²ã¹ãã®çããŸã«ã¯ãCROSS ã®äžå¹Ž çã䜿çšããŠããããã®æãã綎ã£ãŠããã ããŸããã ãã®äžãããµãã€ããŒã®æ¹ããã¹ãã¡ãã»ãŒãž 3 éãéžå®ãã éžã°ããæ¹ã«ã¯ãã¯ãã¹ã»ã³ãã¥ãªãŒâ ¡ããŒã«ãã¯ã€ãã©ãã«ãŒ ããŒã«ãã³ãèŽåããŸããããã®æ¥ã«å¯ããããã¡ãã»ãŒãžã®äž ãããäžéšãçããŸã«ã玹ä»ããŸãã
At our 16th annual Pink Ball held on Friday, March 23rd, 2018, we collaborated once again with one of our sponsors to host the âDear Survivorâ corner. The guests had the opportunity to write a personal message to a survivor using the elegant pens created by CROSS. Toward the end of the evening, the survivors chose their favorite messages and the authors were awarded a Cross Century II Pearl White Lacquer Ballpoint Pen. We would like to share some of these inspiring messages with you.
ç§ãç ã«ãããçæ»ãããŸã㣠ãçµéšããããŸãããµãã€ã㌠ãšããèšèã¯æ¬åœã«æ»ã®ãµã¡ã ãã®çéãæå³ããŸããããã ãä¹ãè¶ãããããå¿ ã人ç ãåã¡åãæ°æã¡ã§ïŒå¿ã朰ã ããããªæãããŒãã¬ã¹ãªæã ãã©ããã£ãŠè±åŽã§ãããã¯èª åããããªãã®ã§ããæ¯å¹Žã®æ¡ ãèŠãããšã楜ãã¿ã«é 匵ã㟠ãããã
I have also experienced wandering between life and death because of an illness. The word survivor really means to come out from the point of death. You have overcome this, so go and win your life! There will be mornings when you will feel hopeless, but trust that you have what it takes to change that. Let's keep looking forward to the next cherry blossoms.
9
PI N K ⢠SUMMER 201 8
Dear Survivor, I am fortunate to have the best sister in the world. She has struggled with young onset Parkinsonâs Disease for 20 years, and then was diagnosed with breast cancer. She still always puts others first, and is always there when my life seems tough. She is my inspiration. 芪æãªããµãã€ããŒã®æ¹ã ãžã ç§ã¯äžçã§æé«ã®å§åŠ¹ãããŠå¹žã㧠ãã 圌女ã¯è¥ãããŠããŒãã³ãœã³ç ãæ£ ãã20 幎éã®éç ç掻ã®ããšã«ä¹³ãã ãšèšºæãããŸããã ããã圌女ã¯ã©ã㪠æã§ããã€ãä»ã®äººãæåªå ã«èããç§ ãèŸãææã«ãããšãããã€ããã°ã«ã ãŠãããŸãã 圌女ã¯ç§ã®ã€ã³ã¹ãã¬ãŒã·ã§ã³ã§ãã
Dear Survivors, We all have a mother, a sister, a friend who has fought or currently fights this battle. Today, we unite so that the war against breast cancer can be won once and for all. You are the living proof that we can do it. Stay strong! 芪æãªããµãã€ããŒã®æ¹ã ãžã ç§ãã¡ã«ã¯ãã®ç ãšæŠã£ãŠããæ¯èŠªã å§åŠ¹ãå人ãããŸãã ä»æ¥ãå ±ã«å£çµã ãŠä¹³ãããšã®æŠãã«åå©ããŸããããã ãªãã¯åå©ãå¯èœã ãšèšŒæããŠãããç ãã蚌ã§ãã匷ãçããŠãã ãããïŒ
P I NK ⢠S U MME R 2018
10
Why We Rebranded ãªãã©ã³ãã£ã³ã°ã®èæ¯
What began in 2002 as a charity run has now become so much more; Pink Ball, Casino Night, Cuisine for the Cure, PiNK Magazine, PiNK Beauty Party, The Lemon Project, and our Run and Walk are now bigger than ever. We have many more exciting ideas and
initiatives we want to try, but the name âRun
for the Cureâ had become a bit limiting. Many people already refer to us as RFTC, so we will now officially be known as RFTC â Japanâs Leading Breast Cancer Foundation.
2002幎ã«ãã£ãªãã£ãŒã©ã³ãšããŠçºè¶³ãã
sion â to eradicate breast cancer in Japan as
ã«ããã«ãžããã€ããããã¥ãžãŒããã©ãŒã¶
One thing that does not change is our mis-
a life-threatening disease through education, timely screening, and treatment.
Because of your support, RFTC has grown
to become the organization that it is today. We count on your continued support.
åœå£äœã¯ã16幎ã®æãçµãŠããã³ã¯ããŒ
ãã¥ã¢ããªã©ã®ãã£ãªãã£ãŒã€ãã³ãã®é å¬ããPiNKã ãPiNK Beauty Partyã ãã¬ã¢
ã³ãããžã§ã¯ããã®ã¢ãŠããªãŒãããã°ã©
ã ã®å®æœããããŸã§ã«æé·ããŸãããã㣠ãªãã£ãŒã©ã³ã¯ãã®åŸãRun for the Cure /
Walk for Lifeããšããã©ã³ïŒãŠã©ãŒã¯ã€ãã³ ããšããŠãå€ãã®ãµããŒã¿ãŒãåå ããŠãã
We will now officially be known as RFTC â Japanâs Leading Breast Cancer Foundation.
ãã£ãŠããŸãã
ãããããããããã¡ã®ããã·ã§ã³ã¯å€ããã ãšã¯ãããŸãããæ¥æ¬ã«ãããŠä¹³ãããåœãè ããçŸ æ£ã§ãªããªãæ¥ãç®æããæè²ãå®ææ€ èšºã®ä¿é²ãšæ²»çã®åçºæŽ»åãç¶ããŠãããŸãã æ¥é ãã倧å€ãªãåæ·»ãããã ããŸããŠãå¿ã
ãæè¬ããããŸãããããªãæé·ã«ãããŠéé²ã ãŠãŸãããŸãã®ã§ãä»åŸãšããååã»ãæ¯æŽã®ã» ã©ãããããé¡ãç³ãäžããŸãã
ä»åŸãšãäžå±€ã®ãæ¯æŽãšãååãè³ããŸãã ããé¡ãç³ãäžããŸãã
11
PI N K ⢠SUMMER 201 8
ä»åŸãšãäžå±€ã®ãæ¯æŽãš
ãååãè³ããŸããããé¡ã ç³ãäžããŸãã
ã§ããããšããå§ããŠã¿ã
What I Can Do
ⶠBecome a Distribution Point
ⶠé åžæ ç¹ã«ãªã
libraries, or individuals that will be partnering with us to distribute PiNK
é åžã»èšçœ®ããŠãåœå£äœãšå ±ã«ä¹³ãããå¥åº·ãªç掻ãžã®ç¥èã»æèã®åäžã«
RFTC®Japan is seeking companies, organizations, cafés, salons,
RFTC®ïžJapanã§ã¯ãPiNKèªã3æã6æã9æããã³12æã®å¹Žã«4åçºè¡ãã
and deliver its important contents to raise greater awareness about
ãååããã ããäŒæ¥ãå£äœãã«ãã§ããµãã³ãå³æžé€šãå人ã®çæ§ãåé
breast cancer and health. PiNK magazine is published four times a year
ããŠããŸããæ¥æ¬å šåœã§éèªãããã¯ã¢ãããããããå ¥æãããããªããã
in March, June, September and December. Please help us make PiNK
ã®ãæ¯æŽããé¡ãããŸãã
more accessible and easier to pick up all across Japan.
â· æéãšçµéšã§ãµããŒããã
â· Donate Time and Expertise
ããã®ç¿»èš³è ãæ ¡æ£è ãç·šéè ãšããŠåããçµéšããããŸããïŒPiNKèªã®
Do you have experience working as a professional translator, editor
å¶äœã«ãååé ããæ¹ã¯ããã²ãé£çµ¡ãã ããïŒ
and/or proofreader? Please contact us if you are interested in helping us create PiNK!
âž å¶äœ / å°å· / é éè²»ãå¯ä»ãã
âž Donate for the Production/ Printing/Delivery Costs
PiNKèªãèªè ã®çæ§ã«ç¡æã§ãå±ãã§ããŠããã®ã¯ãå人ãäŒæ¥ã®ã¹ãã³ ãµãŒã®çæ§ããã®å¯å€§ãªãæ¯æŽã®ãããã§ããçæ§ã®ãå¯ä»ã¯ã倧åãªç¥ èãæããèªè ãå±ãŸããç·å¥³åæ¹ã®ãšã³ãã¯ã¡ã³ããå³ããåœãå®ãããè¯
PiNK magazine has been produced, printed and delivered to its readers
ãéžæãããŠããããšãå©ããŸãã
and beneficiaries free-of-charge because of our generous individual and corporate sponsors. Your contribution will educate, encourage
äžè±æ±äº¬UFJéè¡ æžè°·æ¯åº
and empower both men and women in Japan for better-informed and
æ®éå£åº§3609116
potentially life-saving decisions.
ãã¯ãïŒ ã©ã³ãã©ãŒã¶ãã¥ã¢ãã¡ã³ããŒã·ã§ã³
(*æãå ¥ããŸããããæ¯èŸŒææ°æã¯åèªãè² æ äžãã)
Mitsubishi Tokyo UFJ Bank
Shibuya Branch, Futsuu 3609116
Tokuhi) Run for the Cure Foundation
詳现æ å ±ãçºéåžæã¯ãPiNK@rftcjapan.orgãŸã§ã
For more information or to become a distribution point, please contact PiNK@rftcjapan.org
PiNK ããã¯ãã³ããŒ
2012幎å€å·ããè±èªã»ã¯ã·ã§ã³ãè¿œå ãããŸããã An English language section was added in Summer 2012.
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2015 FALL
2015 SUMMER
2014 spring
PiNK
FREE
S P R I N G 2 0 1 5
A MAGAZINE FOR WO M E N ' S H E A LT H
FREE
A M AG A Z I N E F O R W O M E N ' S H E A LT H
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www.runforthecure.org
Power of Love
EMBRACING MY DESTINY
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2017 WINTER
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Volume 8 / Issue 3 å£å èª
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2018 SPRING
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女æ§ã® ããã æ å ±èª
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Danielle Walker www.runforthecure.org
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P I NK ⢠S U MME R 2018
12
BREAST CANCER AWARENESS AND EDUCATION INITIATIVE
The Lemon Project
Progress Report BY AD ORA DU
The arrival of Spring marks the start of new beginnings, and The Lemon Project is no exception. The quarter was highlighted by The Lemon Projectâs success in spreading awareness through collaborations with Philips and AIG.
I
n mid-March, Philips organized The Lemon
Project as part of its International Womenâs Day event, which focuses on promoting
the emotional and physical wellbeing of both
female and male staff. This event commenced with a panel discussion regarding the worklife balance among Philipsâ corporate pro-
fessionals with families, which was followed by The Lemon Project that drew over 60
participantsâover a third of whom were men. Participant feedback was positive, stating
that the seminar was informative and that
many were surprised
to learn that males also
are at risk of developing breast cancer.
Collaboration
between AIG and The Lemon Project also
kicked off this season. From April to July,
AIG will be hosting 36
seminars across Japan
with RFTC® Japan in an
effort to provide greater breast cancer under-
standing throughout the country, especially in medically underserved areas. Two of The was followed by a seminar in Osaka.
We welcome your organization to join our
observed around 25% male participation, and This quarter created new milestones for
RFTC® Japan as we began our first long-
term project that saw an increased initiative
seminar that teaches basic information and
challenges misconceptions regarding breast cancer. The seminar starts with a short
lecture, followed by a hands-on workshop
where participants use silicone breast models amination and to distinguish between cancerleave the seminar with potentially life-saving knowledge about breast cancer. For more information, visit
https://rftcjapan.org/feature/lemon-project/
13
PI N K ⢠SUMMER 201 8
rftcjapan.org
We remain committed to continue our
breast cancer seminars with current organi-
The Lemon Project is a free educational
ous and noncancerous tumors. Participants
employeesâ health and quality of life.
Lemon Projects were done in Tokyo, which
What is The Lemon Project?
to learn how to detect lumps through self-ex-
among corporations that support their
zations and to expand our reach nationwide. fight against breast cancer as a life-threatening disease and host your own The Lemon Project!
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ä»å¹Žã«å ¥ã£ãŠããã®ååæã¯ã瀟å¡ã®å¿èº«ã® å¥åº·ãç掻ã®è³ªã®åäžã«ç©æ¥µã«åãçµãŸããŠã
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æ³ãå®ææ€èšºã®å€§åããç¡æã®ã»ãããŒåœ¢åŒã§æããRFTCã®æè²
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åè掻åã§ãã
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ãã§ã¯åå è ãå®éã«ãã¬ã¹ãã¢ãã«ã«è§ŠããŠãããã®æ觊ãæ㧠èŠããããšãã§ããŸãã
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ã®çæ§ã«æäŸããããã«ããã°ã©ã ãããã«çº å±ãããŠãããããã«åŒãç¶ãåªåããŠãŸãã㟠ããç¡æä¹³ããã»ãããŒãã¬ã¢ã³ãããžã§ã¯ãã ã®éå¬ããåžæã®æ¹ã¯ããæ°è»œã«ãåãåãã ãã ããã
Campaign designed by
worldwidebreastcancer.com
P I NK ⢠S U MME R 2018
14
ä¹³ããã®ããš æ¬åœã« ç¥ã£ãŠããŸããïŒ
What do you really know about breast cancer?
ä¹³ããã«ã€ããŠãã¿ãªãããåç¥ã§ããã
What do you know about breast cancer?
ã§ããã§ãããïŒ
relating to breast cancer? What does it look like?
How can you tell if you have any abnormalities
ã©ã®ãããªæ¹æ³ã§èŠã€ããããšã
What does it feel like? How can you detect it?
èŠãç®ã®çç¶ã¯ïŒã©ããªæ觊ãªã®ïŒ
ä¹³æ¿ã®ããŒã¿ indentation
ç®èã®ãã ã skin erosion
èµ€ã¿ã»ã»ãŠã redness or heat
ä¹³é ããã®åæ³ new fluid
ç®èã®ç¡¬å hardening
è¡šé¢ã®å¹åž dimpling
çªåºããããã bump
ä¹³æ¿å ã®ããã inside lump
éèã®æ匵 growing vein
ä¹³é ã®çœåŒ nipple retraction
ç®èã®å€å âorange peelâ skin
You can learn more about the program and request the seminar online!
ããã°ã©ã ã®è©³çŽ°ç¢ºèªãã»ãããŒã®ãªã¯ãšã¹ãã¯ãªã³ã©ã€ã³ã§ãå¯èœã§ãïŒ
Please visit rftcjapan.org/en/feature/lemon-project/
rftcjapan.org/feature/lemon-project/ ããã§ãã¯
The Lemon Project reports are also available on our website. or contact us at PiNK@rftcjapan.org
Looking for an English-speaking support group?
15
å·Šå³ãµã€ãºã®å€å new asymmetry
PI N K ⢠SUMMER 201 8
rftcjapan.org
ãŸããã¬ã¢ã³ãããžã§ã¯ãã®ã¬ããŒãããŠã§ããµã€ãããã芧ããã ããŸãã ãŸã㯠PiNK@rftcjapan.org ãŸã§ãé£çµ¡ãã ããã
Tokyo Bosom Buddies, Survivor group in Tokyo for foreigners and English-speaking Japanese.
Gatherings at Franciscan Chapel Center in Roppongi once a month. For details, please email PiNK@rftcjapan.org
Campaign designed by
worldwidebreastcancer.com
æã«ïŒåºŠã®èªå·±æ€èšº
Monthly Self-Examination èªå·±æ€èšºã§ãã€ãã®æ觊ãèŠããŠãå°ããªå€å
You know your body better than anyone else.
èžãããããŠåœãæããŸãã
slightest abnormality immediately.
ãæ©ãæãåããŸãããã æ©æçºèŠãããªãã®
Know your normal, so you can detect the
èªå·±æ€èšºã®ææ
When to examine
æé©ã§ãã ççãäžèŠåãªå ŽåãéçµããŠãã
ation cycle, when breasts are less tender or
It's best to self-examine after your menstru-
ççãçµãã£ãŠãä¹³æ¿ã®ç·åŒµãè «ãããªãæã
swollen. If your cycle is irregular or you have
å Žåã¯ãæ¯æåãæ¥ã決ããŠãã§ãã¯ããŸãããã
reached menopause, pick a date you can
easily remember and check every month.
èªå·±æ€èšºã®æ¹æ³ ⶠé¡ã®åã§äž¡æãäžããä¹³æ¿ã«èµ€ã¿ã»è «ãã㪠ãããä¹³é ããåæ³ç©ããªãããèŠãŠç¢ºãããŸ
â¶
ãã
finger, middle finger and ring finger; to check
ã®æè ¹ãå³èžããã§ãã¯ããéã¯å·Šæã䜿ããŸ
your right breast, use your left hand. Gently
ãã Â次ã®ããã«åãããŠèã®äžããã©ã©ã€ã³ã㿠調ã¹ãŸãããã
A) ïŒç®æã«ã€ãã³ã€ã³ãµã€ãºã®åãïŒåæãã
ine for irritation, swelling or discharge.
or shower. Use the pads of your pointing
ã¯ããŠã¿ãŸãããã人差ãæãäžæãè¬æã®ïŒæ¬
ãªã調ã¹ãŸãããã çµãã£ãããå³æã§å·Šèžã
ⶠRaise arms in front of a mirror and examⷠYou can self-examine while taking a bath
â· ã颚åãã·ã£ã¯ãŒã§èº«äœãæŽãæã«ãã§ã
ããã¡ãé骚ãè©ãã€ãªãã èžå šäœããŸãã¹ã
Self-Exam Procedure
explore your breast area within the bound-
â·
軜ãã»å°ã匷ãã»æ·±ããŸã§è§Šããããã«ã å§åã
aries connecting armpit, rib, collarbone and shoulder for lumps following the patterns below, and repeat with the other side.
A) Draw three coin-sized circles in one spot,
applying different pressure each time: light,
å€ããŠãã§ãã¯ããŸãã
medium and deep.
B) èã®äžããå§ããèžå šäœã«ããã£ãŠäžäžæ¹å
B) Vertical or "up and down" (or "squares")
ãŠä»ã®æãåãããŸãã次ã®åã«ç§»åïŒäžæã
ing downwards, move your ring finger one
ã«ãäžã«ç§»åïŒè¬æãäžã«æ1æ¬åã¹ã©ã€ãããã
é¢ç¯1ã€åã¹ã©ã€ãããããŠä»ã®æãåãããŸãã äžã«ç§»åïŒäººå·®ãæãäžã«æ1æ¬åã¹ã©ã€ããã ããŠä»ã®æãåãããŸãã
pattern covering the entire breast. When mov-
âž
C) åãæ¹æ³ã§é骚äžã®ãžããã éšåãšé骚ã ãã§ãã¯ããŸãããã
âž ãŸããä»°åãã«å¯ãŠãè ãé äžã«ãããŠèª¿ã¹ ãããšãã§ããŸãã ãããããæ¹æ³ã§æ¯æè¡ã ãŸãããã
å€åãç°åžžãæãããšãã¯ãããã«å°éå»ïŒå€ç§ãä¹³è ºå€ç§ãä¹³è ºç§ïŒã«çžè«ããŸãããã
幎ã«äžåºŠã¯ããã³ã¢ã°ã©ãã£æ€èšºãåããäºãæšå¥šãããŠããŸãã觊ã£ãŠãããããªããããª
space over and have your other fingers follow. Move horizontally by moving your middle
finger one joint over. When moving upwards,
move your pointing finger one space over and have your other fingers follow.
C) Draw two strips using the same methods
from shoulder to the center of the collarbone. âž There is another method where you lie
down with one arm tucked behind your head.
Check your breast every month with whichever method you find easiest.
å°ããªãããèŠã€ããããšãã§ããŸãã
If you find any changes or abnormalities, contact your doctor immediately.
Some abnormalities cannot be detected by touch alone; therefore, it is recommended that women receive a mammography once a year.
ç£ä¿®ïŒ é岡ããã»ã³ã¿ãŒ ä¹³è ºå€ç§ é«æ©ãããå»åž«ã MammaCare Corporation
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