Brain & Spinal Injury Handbook - 22/23

Page 14

RECOVERY & REHABILITATION

What advice do you wish you could have given family AND FRIENDS AFTER YOUR STROKE? Life after stroke can be daunting and the support and understanding of family and friends is crucial. But it can be a challenge to communicate how you feel, and to know what the future will look like.

S Kate Allatt

troke survivor and GripAble ambassador, Kate Allatt shares 10 key things fellow stroke survivors wish they could have told their friends and family following their stoke.

Post-stroke recovery looks different to everyone. The effects of stroke can vary considerably, and can include memory loss, cognitive impairment, emotional difficulties, balance problems, sight loss, weakness, and much more. Whilst wrestling with concerns such as getting back to work, finances, and looking after the family, survivors are often having to remember how to carry out everyday tasks such as showering or making a cup of tea.

family and friends in those first few days, weeks, and months after our stroke, knowing what we know now.

Here are 10 things fellow stroke survivors wish they’d told their family and friends after their stroke:

1. 2. 3. 4. 5. 6.

7.

8. 9. 10.

Rehab can feel like a daily challenge and requires much determination and motivation. But with the right support and understanding from loved ones, progress is possible.

ADVICE FOR FAMILY AND FRIENDS OF A STROKE SURVIVOR At a recent GripAble peer-support discussion for stroke survivors, we discussed what we wish we could have told our

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Be patient and give me time – my recovery is a marathon, not a sprint Focus on what I can do, not what I can’t do Just because I look ok, it does not mean I am better My journey won’t be a smooth continuum – I will make small gains over a long stretch of time Don’t look back or forward, focus on the present and take each day as it comes I won’t ever be my former self again, and that’s ok – for those of us that have experienced strokes brought on by stress, carrying on as we were would not be possible nor helpful Don’t underestimate my abilities – stand up for my right to continue working if I want to, or support me in finding a new role that suits my needs There is more to me now than there ever was There will be good days and bad days – never give up hope Everyone’s experience of stroke recovery is different – stroke survivors are all on the same journey, but in different vehicles, and on different roads.

We hope that these advice points prove a useful source of information and guidance for stroke survivors and their families. To find out about future stroke survivor peer support sessions, visit www. gripable.co or contact Kate Allatt at kate@kateallat.com. sevenstarmedia.co.uk


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A very special thank-you to all our contributors

1min
pages 160-164

I am his deputy so why is the official Solicitor acting as his litigation friend?

6min
pages 152-155

Brain & spinal injury contact information

4min
pages 158-159

Release the cash tied up in your ongoing cases

2min
pages 150-151

What are the effects of the care crisis on compensation claims?

6min
pages 148-149

Leading experts - Specialists acting for a multitude of clients in all forms of personal injury

4min
page 147

MORR & Co

2min
page 146

The hidden victims of Covid-19 and how we can help them

5min
pages 142-145

After the Event Insurance – More than a promise

3min
pages 140-141

How we help seriously injured people

2min
pages 135-137

From strength to strength

7min
pages 132-134

Opening up the law after a serious spinal or brain injury

2min
pages 138-139

Living with a spinal cord injury

2min
pages 130-131

Functional electrical stimulation (FES) for correction of dropped foot

2min
pages 128-129

Why manage posture?

4min
pages 122-123

Historical merged with contemporary moving accessibly between the centuries

2min
pages 124-127

A simple solution to independent living after brain or spinal injury

11min
pages 113-115

Brotherwood Electric Wav is the perfect fit for Sussex charity

2min
pages 118-119

Innovations in wheelchair vibration dampening

2min
pages 120-121

Introducing CareFlex & the benefits of specialist seating

3min
pages 116-117

Somek and Associates’ Brain and spinal injury reports

1min
pages 111-112

Eximius Live-in care Ltd – Personalised live-in care in your own home

3min
pages 108-110

There’s nothing like the comfort of your own home

1min
page 104

Prestige Nursing & Care - Benefits of a fully managed service when sourcing brain and spinal injury care

1min
page 106

Resolution Care Services - Providing specialist personalised complex care solutions in Wales

1min
page 107

Empowering U

1min
page 99

Complete Care Amegreen... Connecting healthcare and wellbeing with our trusted partner, the Spinal Injuries Association (SIA)

2min
pages 100-101

Consumer lead healthcare that positions Advantage Healthcare as your provider of choice

2min
pages 102-103

Helping to improve lives

1min
page 98

Callum’s story: Returning home with live-in care

2min
pages 90-92

Maplewood Independent Living - Bespoke case management, specialist care & support

1min
pages 94-97

JAM Complex Care - Helping you live a rich independent & full life at home

2min
page 93

Working with diversity - The psychological personal injury service

1min
page 88

Registration, registration, registration

3min
page 89

A case manager’s perspective: Building relationships with clients and families

3min
pages 86-87

A care sector in turmoil - Is direct recruitment a solution?

3min
pages 80-81

MCCM – Mary Campbell case management

1min
page 79

Are you looking for a case manager in the South of England?

1min
page 78

Taking the holistic approach to rehabilitation and case management

3min
pages 74-75

Collaboration & the elephant in the room (substance misuse)

5min
pages 60-61

Innovation and quality are at the forefront of case management provision at StanleySmith

3min
pages 62-63

Expert rehabilitation case management services

7min
pages 66-67

Regulated HR services for court of protection teams balancing sensitivity & compliance

2min
page 65

Breakthrough case management ‘case management with care’

2min
pages 68-69

BABICM looks to the future

5min
pages 58-59

All your rehabilitation needs under one roof

3min
pages 52-53

Never give up

1min
page 45

Renovo Care Group: Helping people reconnect

1min
page 44

Dedicated rehabilitation creating happiness daily

4min
pages 40-42

Recognising the complex needs of families living with brain injury

1min
page 37

BIS Services

1min
page 36

How Calvert Reconnections’ new approach to brain injury rehabilitation is transforming lives

3min
pages 38-39

B&SI

7min
pages 32-35

Sex, relationships, consent and capacity: Can the arts therapies help?

7min
pages 20-21

Managing sleep - in long Covid

4min
pages 30-31

It’s only Child’s Play or is it?

8min
pages 26-28

Design for Independence celebrates 10th anniversary

2min
pages 18-19

What advice do you wish you could have given family and friends after your stroke?

2min
pages 14-15

Specialist behavioural support following a brain or spinal injury

2min
pages 16-17

Delivering life changing rehab at Askham

2min
pages 24-25

Rehab, Respite & Rock’n’Roll Supporting clients to achieve their goals

1min
page 29
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